Send us a text with a question or thought on this episode ( We cannot replay from this link)
What if you had the power to navigate your own health decisions, armed with accurate information and backed by a supportive community? In this fascinating episode, we share our journey of advocacy for endometriosis, protecting the community by ensuring they receive correct and helpful information. We recognize the value of personal recommendations in selecting healthcare providers and stress the significance of mindful advocacy. With an eye on the future, we touch on the series coming up in 2024 covering topics such as interstitial cystitis.
Having diverse voices in the podcast space is not just an ideal, but a necessity. Especially when discussing a complex issue like endometriosis, experiences can differ vastly based on our backgrounds. In our conversation, we underscore the importance of bringing the unique experiences into the spotlight. We also examine the different challenges of navigating endometriosis in different countries and the critical role of evidence-based research. At the same time, we open up about our lessons learned as podcasters, the surprises we’ve encountered, and the overwhelming support from practitioners in the endometriosis community.
As we wrap up this illuminating discussion, we delve into the future plans and priorities for our podcast. We emphasize the importance of addressing co-conditions alongside Endometriosis, as well as the power of diverse voices from different countries and languages. As well as fostering an intentional space to support couples of all backgrounds. Finally, we express our heartfelt gratitude to all those who have supported our podcasting journey, reflecting on the importance of community when dealing with chronic illnesses and the lessons learned thus far. Join us and be a part of this journey as we advance understanding, advocacy, and empowerment in the world of endometriosis.
http://endobattery.com
https://insixteenyears.com/
endothickofit IG
Kathleen King- DEARG
Website endobattery.com
Navigating Endometriosis and Advocacy
Speaker 1
0:03
Welcome
to
Indobattery
,
where
I
share
about
my
endometriosis
and
adenomyosis
story
and
continue
learning
along
the
way
.
This
podcast
is
not
a
substitute
for
professional
medical
advice
or
diagnosis
,
but
a
place
to
equip
you
with
information
and
a
sense
of
community
,
ensuring
you
never
have
to
face
this
journey
alone
.
Join
me
as
I
navigate
the
ups
and
downs
and
share
stories
of
strength
,
resilience
and
health
while
navigating
the
world
of
endometriosis
and
adenomyosis
,
from
personal
experience
to
expert
insights
.
I'm
your
host
,
elana
,
and
this
is
Indobattery
charging
our
lives
when
endometriosis
drains
us
.
Welcome
to
Indobattery's
one-year
celebration
.
Thanks
for
ringing
in
your
two
of
this
podcast
with
me
.
Like
every
great
birthday
,
my
guests
and
I
celebrate
with
two
episodes
.
Join
us
as
we
continue
our
roundtable
discussion
on
the
Year
of
Trials
Trials
and
Lessons
in
Advocacy
and
Podcasting
.
This
is
where
we
left
off
and
where
we're
going
.
I
think
you're
being
protective
of
everyone
,
which
is
we
need
that
so
protective
.
Speaker 2
1:09
Yeah
,
yeah
,
yeah
,
and
I
know
we
all
are
.
I
mean
this
is
advocates
and
people
who
just
know
the
gravity
of
the
level
of
harm
that
can
be
done
just
in
a
comment
that
a
provider
says
that
it's
understandable
why
we're
overprotective
of
our
community
.
Speaker 1
1:24
Yeah
,
absolutely
.
I
think
that's
something
that
I'm
learning
more
about
how
to
really
become
not
just
an
advocate
for
endometriosis
but
be
an
advocate
for
the
words
that
are
spoken
into
the
endometriosis
community
and
how
they
can
,
even
with
the
best
of
intentions
,
can
be
just
as
harmful
.
And
I
am
learning
a
lot
about
that
.
And
I
think
the
thing
that
having
knowing
people
who
you
trust
recommend
people
,
that's
huge
and
I
think
for
me
I
have
.
Again
,
I
didn't
really
know
anyone
or
anything
.
I
started
this
night
absolutely
knew
one
surgeon
that
did
endometriosis
surgery
and
that
was
my
surgeon
.
That
was
the
only
person
I
knew
.
I
didn't
know
any
other
doctors
.
I
didn't
know
any
.
I
knew
my
pelvic
floor
PT
and
that
was
the
other
clinician
that
I
had
met
that
knew
endometriosis
or
even
knew
the
word
endometriosis
and
what
it
entailed
.
So
for
me
it
was
very
much
so
.
Whom
was
recommended
to
me
through
other
people
that
I
trusted
,
and
I
think
that
it's
taken
a
little
bit
of
weight
off
my
shoulders
to
not
have
to
find
people
that
I
felt
like
I
trusted
as
much
.
But
it's
because
when
you
have
that
core
group
of
people
that
you
know
have
the
best
interest
for
the
community
,
saying
you
need
to
talk
to
this
person
.
You're
like
,
okay
,
I
understand
that
a
little
bit
more
,
but
getting
to
know
them
and
what
they
do
speak
into
and
what
they
have
their
expertise
in
makes
a
huge
difference
.
Because
you
hop
on
a
podcast
and
you're
like
so
what
do
you
want
to
talk
about
today
?
It's
not
going
to
fly
.
You
can't
just
pop
on
anytime
and
let's
shoot
the
buries
because
it
doesn't
work
that
way
.
It's
not
usually
going
to
go
very
well
in
the
conversation
.
And
so
I've
learned
a
ton
from
all
of
you
.
Speaker 1
3:12
Kim
,
I
remember
the
one
time
you
came
on
.
You're
like
you
can
ask
for
a
refund
when
they
didn't
give
service
to
where
it
was
.
Like
they
didn't
,
they
did
what
for
you
.
They
get
a
refund
.
And
I
was
like
I
never
even
thought
about
that
.
Speaker 1
3:24
And
that
has
been
so
informative
and
talking
to
all
these
different
advocates
and
all
these
different
people
is
that
I
have
learned
and
grown
in
my
own
health
journey
in
in
vitriosis
,
and
so
one
of
the
things
that
I've
learned
the
most
is
how
strong
the
community
is
and
how
much
we
need
more
community
.
But
also
within
that
community
,
I
have
grown
to
have
better
expectations
for
my
practitioners
.
I've
learned
that
it
is
not
just
endometriosis
causing
needs
pain
factors
.
I've
learned
hormones
are
my
worst
enemy
right
now
.
There's
other
enemies
at
play
here
.
It's
not
just
the
endometriosis
,
although
that
is
what
drove
a
lot
of
that
hormone
imbalance
for
me
.
So
,
amy
,
what
is
something
that
you
from
doing
,
all
the
podcasts
that
you've
done
and
all
the
people
that
you've
had
on
,
what
are
some
ways
that
have
impacted
you
the
most
in
your
journey
?
What
are
some
things
that
you've
learned
?
Speaker 4
4:19
Well
,
you
know
,
kind
of
like
what
you
were
saying
is
.
Speaker 4
4:21
I
think
that
something
I've
really
learned
is
,
well
,
first
of
all
,
that
we're
all
individuals
,
right
Like
first
of
all
that
,
what
works
for
one
person
is
not
going
to
work
for
another
person
,
and
I
know
we
hear
that
a
lot
and
we
see
that
a
lot
on
social
media
.
Speaker 4
4:35
But
I
think
when
you're
having
a
platform
,
having
a
podcast
,
it's
like
really
being
cognizant
of
the
fact
that
what
has
helped
me
may
not
help
another
person
.
In
fact
,
it
might
harm
another
person
.
So
I
think
you
know
,
always
trying
to
educate
from
a
viewpoint
of
I'm
not
trying
to
make
any
decisions
for
you
,
I'm
not
trying
to
tell
you
what
to
do
.
All
I'm
trying
to
do
is
give
you
information
,
and
it's
never
going
to
be
all
the
information
right
,
because
I
don't
have
all
the
information
in
the
world
,
no
matter
how
knowledgeable
you
know
one
could
become
,
after
115
episodes
of
my
podcast
,
it
is
still
not
all
the
information
that
we
need
to
live
with
this
illness
.
So
I
think
you
know
,
whenever
I'm
advocating
educating
,
always
coming
at
it
from
this
information
is
to
guide
you
.
But
whatever
you
decide
is
the
best
decision
for
you
and
I
support
that
and
also
realizing
that
for
myself
right
.
Speaker 4
5:37
Like
,
sometimes
we're
going
to
make
decisions
that
other
people
don't
,
maybe
you
don't
think
are
the
best
decisions
for
us
,
right
?
But
we
all
have
to
make
our
decision
of
our
treatment
,
our
lifestyle
,
our
life
,
based
on
where
we
are
right
now
and
the
knowledge
that
we
have
.
So
I
think
that's
something
that's
just
in
general
,
with
advocacy
.
And
then
I
think
something
I've
just
been
learning
,
you
know
,
is
we're
doing
different
series
,
like
we
have
a
series
coming
up
in
2024
on
interstitial
cystitis
.
We
have
a
series
coming
up
on
pain
,
which
was
.
They
were
so
much
work
I
just
want
to
put
out
there
.
Speaker 1
6:11
Yes
.
Speaker 4
6:13
But
and
I
want
to
have
more
like
hormone
experts
on
to
talk
about
hormone
replacement
therapy
that's
something
that's
become
very
important
to
me
now
that
I'm
in
perimenopause
and
I've
had
lost
my
ovary
and
just
having
a
lot
of
like
symptoms
from
low
hormone
output
.
So
I
think
something
that
I'm
learning
and
I
it's
like
again
it's
like
you
know
it
,
but
I'm
really
learning
it
is
that
it
really
is
the
full
body
disease
.
Right
,
like
it
is
absolutely
a
full
body
disease
and
there's
so
many
different
reasons
,
so
many
different
pain
generators
,
there's
so
many
different
symptom
generators
and
like
even
I'm
five
years
post-ecision
and
I'm
still
frigging
out
reasons
for
why
I
have
certain
symptoms
right
,
Whether
that's
low
hormone
output
or
SIBO
,
or
a
tight
pelvic
floor
,
or
like
a
up-regulation
of
my
central
nervous
system
,
or
there's
just
every
year
it's
like
I
can
get
deeper
and
deeper
into
other
pain
generators
.
Speaker 4
7:13
Right
and
so
I
think
it's
just
constantly
having
that
present
is
.
It's
not
just
for
most
of
us
,
it's
not
just
endometriosis
and
that's
really
hard
.
That's
really
hard
because
it's
like
if
it
was
just
endometriosis
,
maybe
it
would
make
life
a
little
simpler
,
right
?
Right
,
because
it
wouldn't
be
like
,
okay
,
how
do
I
deal
with
endo
,
but
also
now
,
how
do
I
deal
with
like
all
the
endo
fallout
,
right
,
like
all
the
endo
dominoes
?
So
that's
something
I'm
really
committed
to
exploring
in
my
podcast
and
I
think
it's
something
that
I
just
keep
learning
more
and
more
about
the
different
co-conditions
that
people
have
had
in
conjunction
or
that
people
have
in
conjunction
with
their
endometriosis
,
and
how
complicated
it
can
be
to
really
improve
your
quality
of
life
.
It's
hard
.
Speaker 1
7:58
It
is
hard
.
Speaker 1
7:59
It's
really
it's
hard
,
it's
so
hard
it
can
be
consuming
.
Honestly
,
it
can
be
very
consuming
to
try
to
figure
that
out
and
I
think
for
everyone
it's
different
for
everyone
in
the
path
to
get
to
wellness
is
different
for
everyone
,
I
think
.
For
me
,
I
didn't
know
half
of
these
terms
when
I
started
and
that's
why
I'm
like
I'm
glad
I'm
learning
these
,
because
I
you
can't
speak
into
something
you
don't
know
and
that's
.
I
think
that
that
is
,
I'm
putting
pieces
together
.
As
I
go
with
my
journey
and
my
health
and
the
things
that
I'm
learning
.
I'm
like
,
oh
well
,
that
makes
more
sense
to
me
now
.
Oh
,
I
can
research
this
now
and
and
then
I
can
speak
into
the
space
a
little
bit
better
and
our
passion
drives
that
right
.
Speaker 1
8:49
The
things
that
interest
us
more
and
our
passions
,
the
things
that
we
didn't
know
previously
,
that
now
we're
like
,
oh
,
that
light
bulb
just
flipped
,
I'm
going
to
research
this
more
and
then
you
speak
into
it
resonates
different
with
different
people
at
that
point
.
And
so
,
but
,
kathleen
,
you've
just
started
your
podcast
.
Are
there
things
that
you've
taken
away
that
have
either
helped
in
your
journey
or
just
that
you
maybe
didn't
even
know
because
you've
been
doing
this
a
long
time
in
the
advocacy
sense
,
but
not
necessarily
in
the
podcast
sense
and
so
you're
so
kind
of
fresh
.
Is
there
anything
that
so
far
that
you've
like
gleaned
from
what
you've
been
doing
?
Speaker 3
9:26
I
think
it's
sort
of
echoing
everything
that
Amy
had
said
there
is
so
important
and
I
think
for
me
I
drew
on
the
experience
from
dealing
with
individual
queries
that
come
in
through
to
the
charities
and
on
the
helpline
that
I
would
have
volunteered
on
for
years
.
And
certainly
in
the
case
in
Ireland
where
it
can
be
very
practical
concerns
,
it
may
be
not
just
that
you're
unable
to
access
particular
treatment
or
particular
clinician
or
particular
type
of
busy
or
whatever
it
is
.
It
can
be
something
as
practical
as
are
there
any
supports
available
,
like
for
college
students
?
Speaker 3
10:03
or
are
there
any
financial
supports
available
or
write
up
as
to
where
it's
?
Like
you
know
,
a
lot
of
people
in
Ireland
wouldn't
know
about
pelvic
physio
.
We
don't
have
annual
gynecology
exams
either
.
There's
a
lot
of
things
that
are
different
in
this
country
in
our
healthcare
system
and
I
think
all
those
queries
over
the
years
have
sort
of
built
up
to
what
I
would
like
to
get
across
Empowering Advocacy for Endometriosis
Speaker 3
10:24
.
But
also
as
well
to
keep
an
in
mind
that
advocates
have
taken
a
bash
in
over
the
last
number
of
years
and
we're
always
being
seen
as
hammering
home
excision
.
We
do
this
and
we're
recommending
surgeons
and
all
that
.
Speaker 3
10:38
None
of
that's
true
.
We
know
that
as
advocates
we're
pumping
the
information
out
there
for
people
to
make
a
decision
,
and
I
have
people
come
to
me
looking
for
me
to
make
a
decision
for
them
.
I
can't
do
that
.
None
of
us
can
do
that
.
Speaker 3
10:50
All
we
can
do
is
give
people
the
tools
and
the
information
to
put
the
pieces
of
the
jigsaw
together
.
Speaker 3
10:55
We
can
certainly
guide
them
as
much
as
we
can
,
and
I
think
the
resources
and
guidance
thing
is
important
,
because
I
think
when
you
give
people
access
to
accurate
information
and
give
them
the
signposting
towards
further
people
to
speak
to
or
for
their
clinicians
to
look
at
or
for
their
services
to
dive
into
.
Speaker 3
11:16
They
can
make
those
decisions
themselves
when
they're
empowered
to
do
so
,
because
,
as
Kim
had
mentioned
earlier
on
as
well
,
that
we're
often
disempowered
when
we
sit
in
front
of
a
clinician
.
A
lot
of
us
have
suffered
trauma
and
that's
been
disbelieved
for
so
many
years
that
again
giving
somebody
that
piece
of
accurate
information
and
giving
them
the
signpost
to
go
on
and
learn
more
,
it's
so
empowering
again
,
and
I
think
that's
one
of
the
things
that
I
hope
to
get
through
in
the
podcast
not
just
a
case
of
practical
tips
and
tricks
on
how
to
survive
in
this
country
with
endometriosis
,
no
endometriosis
but
also
to
allow
them
the
tools
that
I
was
given
back
in
the
day
,
where
I
could
then
go
and
learn
and
develop
further
and
then
start
advocating
not
just
for
myself
but
for
everybody
around
me
as
well
.
I'm
hoping
that
I
can
get
that
across
.
Speaker 1
12:13
I
think
you
will
.
Just
in
the
last
10
minutes
or
was
it
30
seconds
of
speaking
,
I'm
like
,
oh
yeah
,
kathleen's
right
,
you're
so
wise
and
you're
so
well
spoken
.
I
think
you're
going
to
do
fabulous
.
You've
been
doing
it
for
so
long
.
I
mean
the
advocacy
part
of
it
.
You've
been
outspoken
.
Speaker 1
12:36
It's
not
that
you
haven't
been
speaking
about
endometriosis
.
It's
now
that
you're
making
it
in
a
version
that
streams
across
your
speakers
and
you've
done
a
beautiful
job
at
communicating
all
the
different
correlations
and
all
the
different
avenues
of
endometriosis
that
are
taken
.
I
think
it's
so
hard
to
beautifully
articulate
the
disease
.
That's
not
so
beautiful
,
and
I
think
that
you
do
that
so
very
well
and
have
for
a
long
time
,
and
I
think
that's
why
it
was
really
important
for
me
to
have
you
on
today
,
because
I've
gotten
a
lot
of
valuable
information
from
you
and
I
think
something
that
I
really
have
learned
is
that
the
international
piece
of
endometriosis
is
very
different
for
every
country
.
Speaker 1
13:26
And
I
didn't
really
I
mean
,
I
lived
in
a
bubble
,
if
I'm
being
honest
.
I
truly
was
like
this
little
bubble
of
this
little
girl
in
the
middle
of
the
United
States
and
Colorado
,
like
trying
to
speak
about
this
stuff
,
and
it
has
opened
my
mind
to
just
how
challenging
endometriosis
is
to
navigate
in
other
countries
and
I'm
realizing
sometimes
as
hard
as
it
is
to
navigate
here
in
the
US
.
Other
countries
is
almost
more
challenging
in
some
ways
,
because
they
have
the
private
healthcare
and
then
they've
got
the
public
healthcare
and
that's
something
that
we
don't
necessarily
have
here
.
I
mean
,
we
definitely
have
,
like
,
the
Medicare
and
things
like
that
,
but
it's
different
,
right
?
It's
a
different
take
altogether
.
So
I
just
the
way
that
you
have
navigated
,
speaking
about
endometriosis
,
you're
gonna
do
amazing
things
in
your
podcast
and
I'm
excited
to
continue
listening
to
that
.
Plus
,
you
have
the
best
accent
out
of
anyone
I
know
.
So
there's
that
,
thank
you
.
Speaker 3
14:26
I
need
to
learn
to
speak
slower
than
I
think
.
That's
the
only
thing
.
Speaker 1
14:30
Why
Just
speed
it
up
,
girl
?
We
got
things
to
cover
here
,
we
got
things
to
go
.
So
I
have
had
so
many
people
say
Kimmether
man
,
I
learned
so
much
from
Kimmether
when
she
was
on
your
podcast
.
She's
so
well
spoken
and
she
doesn't
give
herself
enough
grace
.
That's
me
speaking
right
there
.
That
was
me
in
that
moment
because
you
are
so
well
spoken
.
But
what
is
something
that
you
have
taken
away
from
doing
the
podcast
for
your
own
journey
?
Speaker 2
15:03
It
definitely
has
challenged
me
to
approach
evidence-based
research
quite
differently
than
I've
had
professionally
and
just
historically
,
endometriosis
has
been
almost
like
a
twilight
zone
for
me
when
it
comes
to
research
.
Speaker 2
15:21
I
worked
in
research
for
15
years
before
becoming
a
nurse
practitioner
and
there's
a
very
standard
approach
to
research
.
Speaker 2
15:31
There's
a
typical
way
to
look
at
the
literature
and
then
you
draw
conclusions
based
off
of
the
best
evidence
available
,
and
endometriosis
was
totally
different
.
Speaker 2
15:43
So
part
of
the
podcast
and
choosing
to
do
a
podcast
that
will
touch
on
the
topic
really
made
me
have
to
kind
of
turn
on
his
head
how
I
would
typically
just
read
research
articles
and
basically
say
,
okay
,
this
is
the
best
of
what's
available
.
So
this
must
be
accurate
and
this
must
be
appropriate
to
be
able
to
share
and
with
this
disease
,
you
can
have
incorrect
information
from
even
your
most
reputable
sources
and
I
just
had
never
encountered
that
before
.
So
when
we
chose
to
do
the
podcast
even
though
we're
not
doing
a
lot
of
like
trying
really
hard
not
to
be
a
heavily
scholarship
focused
podcast
we
are
going
to
bring
up
these
conditions
and
their
associated
conditions
and
we
want
to
ensure
accuracy
.
So
I
take
it
very
seriously
how
I'm
analyzing
research
in
this
area
and
ensuring
that
I'm
including
a
wide
variety
of
voices
in
that
.
Diversity in the Podcast Space
Speaker 2
16:48
Another
thing
,
too
,
that
I've
learned
,
which
definitely
gives
me
fire
to
keep
going
,
is
the
importance
and
what
was
also
a
need
for
more
BIPOC
in
this
space
Just
people
of
color
speaking
into
this
space
.
Speaker 2
17:05
It
was
something
that
I
was
looking
for
and
just
couldn't
find
a
lot
of
that
,
especially
within
the
podcast
space
,
and
it
has
been
probably
one
of
the
main
things
that
people
have
shared
as
being
particularly
important
for
them
to
have
that
diversity
of
voices
in
this
space
,
because
there
are
a
lot
of
Anthemetriosis
podcasts
out
there
and
I
think
they
all
serve
their
role
in
different
ways
and
they
all
have
their
mission
and
their
approach
and
for
us
,
we
are
choosing
to
be
really
intentional
about
speaking
about
the
black
experience
Brandon
as
a
black
man
,
me
as
a
black
woman
and
not
shying
away
from
sharing
the
nuances
that
come
with
that
.
Speaker 2
17:53
That's
another
transparency
area
that
we
always
kind
of
struggle
with
.
There's
just
how
transparent
to
be
in
that
area
and
how
to
be
mindful
and
responsible
about
that
.
But
I'm
slowly
but
surely
learning
how
to
do
that
in
an
effective
manner
and
in
a
way
that's
honoring
,
of
course
,
for
other
people
of
color
.
That
helps
them
be
seen
as
well
.
Speaker 2
18:16
But
also
delivering
information
in
a
way
that
is
still
relatable
and
worth
listening
to
for
anyone
.
So
if
I'm
speaking
about
my
experience
,
that
is
maybe
considered
something
unique
,
to
like
the
experience
of
a
black
woman
in
this
Anthemetriosis
space
.
I
think
it's
remarkably
important
for
my
white
or
not
like
those
who
do
not
identify
as
people
of
color
to
hear
those
stories
and
to
know
about
that
perspective
and
to
be
curious
about
it
.
So
we
try
to
incorporate
that
and
we
don't
even
have
to
be
remarkably
intentional
,
because
as
long
as
we're
being
our
authentic
selves
is
going
to
come
out
,
and
in
hopes
that
that
also
just
creates
curiosity
for
people
too
.
But
yeah
,
I
didn't
think
much
about
that
when
we
started
the
podcast
.
Speaker 2
19:14
We
just
was
like
we'll
just
be
a
couple
that
is
gonna
say
we
don't
know
what
we're
doing
,
we're
navigating
this
thing
,
but
let's
all
do
it
together
.
We
didn't
really
think
about
the
responsibility
but
,
also
the
honor
of
really
being
able
to
help
bring
some
diversity
into
the
space
,
so
it's
something
we
take
very
seriously
and
it's
definitely
one
of
the
things
that
keeps
us
going
with
it
too
.
Speaker 1
19:43
Yeah
,
there's
a
lot
to
learn
about
that
.
I
feel
like
I
started
the
same
way
of
like
,
well
,
I'm
just
gonna
be
myself
,
I'm
gonna
tell
everyone
,
but
you
do
have
to
be
so
aware
of
those
things
.
And
I
look
back
now
and
I'm
like
I
really
learned
a
lot
in
every
episode
that
I
recorded
,
because
I
wasn't
aware
of
a
lot
of
this
stuff
Prior
to
recording
.
Again
,
I
lived
in
that
bubble
and
I'm
very
good
at
my
bubble
,
but
beyond
that
bubble
,
I
needed
to
be
able
to
pop
the
bubble
.
You
know
what
I
mean
.
Like
I
just
had
to
.
Speaker 1
20:14
I
had
to
be
okay
,
being
uncomfortable
,
and
I
think
that
was
something
that
I
learned
Very
early
on
.
Well
,
to
be
fair
,
I
was
very
uncomfortable
,
even
hearing
myself
in
the
microphone
for
the
first
time
.
I
don't
know
if
you
all
were
very
uncomfortable
with
that
,
but
I
was
very
uncomfortable
hearing
my
own
voice
.
I
was
.
I
still
am
not
super
comfortable
editing
myself
because
I
don't
like
the
sound
of
my
voice
.
No
one
does
like
,
so
I
tell
everyone
that
comes
on
like
you
will
not
like
the
sound
of
your
voice
,
just
gonna
throw
that
out
there
,
but
to
everyone
else
it's
fine
,
it'll
be
fine
,
you
know
,
but
it
was
so
uncomfortable
for
me
to
step
and
speak
into
the
microphone
and
the
first
time
I
did
.
I
don't
know
if
you
guys
will
remember
this
,
but
you
do
remember
that
Saturday
night
live
skit
where
they
were
talking
about
sweaty
balls
.
Speaker 3
20:59
They're
made
from
a
secret
sweaty
family
recipe
.
Speaker 1
21:03
Do
you
remember
that
Kimethers
over
here
laughing
?
That's
what
we
had
to
do
to
break
the
mold
of
like
making
it
funny
and
getting
used
to
like
that
sound
,
and
so
I
think
like
Moving
from
this
step
of
getting
comfortable
hearing
ourselves
to
then
being
comfortable
being
uncomfortable
,
talking
about
topics
that
aren't
really
that
comfortable
to
talk
about
and
being
vulnerable
,
has
been
the
most
impactful
for
me
,
and
I
think
that
if
we
can
continue
doing
that
with
valuable
resources
that
we
have
,
I
think
the
podcasting
world
with
Indymetriosis
is
just
gonna
bloom
even
more
so
.
And
the
thing
that
I
have
also
learned
and
I
am
shocked
by
all
the
time
is
just
how
much
support
we
get
from
practitioners
and
people
in
the
Indymetriosis
community
willing
to
come
on
and
talk
about
their
expertise
.
That's
something
I
did
not
see
coming
.
I
don't
know
if
you
all
experienced
that
.
I
know
I'm
sure
,
kathleen
,
you've
met
a
lot
of
these
people
as
well
,
so
it
was
probably
a
little
bit
easier
,
but
I
didn't
know
anyone
.
Expanding Perspectives on Endometriosis
Speaker 2
22:13
It's
funny
because
for
me
I
it's
kind
of
been
the
opposite
only
because
I
am
really
trying
hard
to
bring
in
Industries
and
fields
outside
of
Indymetriosis
into
this
Indymetriosis
space
.
So
most
of
the
time
it's
me
as
part
of
,
like
,
getting
to
know
the
person
is
.
So
this
is
what
Indymetriosis
is
.
Like
,
you
know
,
like
because
they
most
they
they're
not
in
this
space
at
all
,
are
they
?
You
know
some
,
but
they're
not
in
the
thick
of
it
,
like
with
like
they're
,
they're
not
.
They
haven't
been
in
in
this
for
eight
,
for
years
and
decades
because
we're
trying
to
pull
in
people
who
are
like
relationship
counselors
or
sets
,
therapists
or
individuals
who
are
supporting
people
dealing
with
infertility
,
but
not
just
specifically
working
in
Indymetriosis
.
Speaker 2
23:09
So
I
Definitely
think
that
you
know
there
are
people
there
,
they're
willing
,
but
I
feel
like
I'm
Having
to
kind
of
pull
them
into
this
Indymetriosis
Space
and
then
tell
them
why
their
voice
would
be
very
important
in
this
space
,
like
why
we
need
to
hear
from
you
and
because
we
can't
just
keep
talking
about
and
though
with
people
who
already
know
this
information
,
I
mean
to
bring
in
other
professionals
.
It's
also
that
why
I
am
so
excited
about
Amy's
Spanish
podcast
.
Speaker 2
23:43
And
her
plans
to
bring
in
,
like
menopause
specialist
,
hormone
specialist
,
like
nutritionists
,
like
I'm
like
,
yes
,
yes
,
like
,
because
,
yes
,
we
have
fantastic
Indymetriosis
specialists
who
are
so
kind
and
are
always
so
willing
to
Speak
with
us
so
that
they
can
help
get
that
education
out
there
.
But
I
came
into
this
community
really
and
it
didn't
take
me
long
to
notice
that
it
was
almost
a
bubble
a
bit
,
and
I
would
love
to
just
start
poking
holes
in
that
bubble
and
bring
bringing
in
those
those
experts
and
and
people
who
can
speak
into
this
space
for
us
,
because
we're
still
100%
human
.
People
dealing
with
many
other
things
also
Just
endo
,
like
trying
to
keep
our
marriage
afloat
right
,
are
Trying
to
support
our
,
our
partner
,
because
but
but
we're
sick
at
the
same
time
,
you
know
.
So
I
love
that
there
are
the
endo
clinicians
,
are
that
way
,
but
it's
a
little
bit
different
for
the
ones
who
are
not
in
this
,
in
this
space
.
They're
not
so
willing
because
they
just
are
uncomfortable
Jumping
into
into
this
new
arena
.
Speaker 1
24:52
Yeah
,
I've
experienced
that
I
,
you
know
I've
had
a
couple
people
on
talking
about
their
own
areas
of
expertise
that
aren't
actually
part
of
endo
but
maybe
correlate
in
some
way
or
another
,
whether
it
be
because
of
you
know
,
eds
or
all
of
those
kind
of
play
a
part
,
right
,
like
it's
not
necessarily
endo
specific
,
but
they
do
play
a
part
.
But
I
will
say
that
there
have
been
times
that
people
have
been
like
I
don't
really
know
if
this
is
an
endometriosis
type
Podcast
.
I'm
like
well
,
it's
actually
more
of
like
a
whole
life
podcast
because
we're
trying
to
navigate
of
a
chronic
illness
that
Involves
our
mental
health
,
our
finances
.
It
involves
our
,
our
relationships
and
our
work
life
.
And
how
do
,
how
do
we
manage
it
?
Is
it
okay
for
an
employer
to
do
this
?
Is
it
not
okay
for
an
employer
to
do
this
?
How
do
we
?
How
do
we
ask
for
time
off
when
we
can't
function
?
Things
like
that
that
we
don't
always
think
about
.
Speaker 1
25:47
I
get
very
clinical
Sometimes
and
that's
my
brain
wanting
to
learn
more
about
the
disease
itself
.
But
really
I
think
we
have
to
Step
back
and
say
,
okay
,
we
really
do
need
to
learn
more
about
every
facet
of
everything
that
could
involve
us
in
life
.
It
may
not
be
for
everyone
,
but
if
we
are
experiencing
something
and
if
we
are
wanting
more
information
on
something
,
chances
are
other
people
in
the
community
are
as
well
,
and
that's
something
that
I
Strongly
feel
like
.
I'm
learning
and
growing
in
that
and
I'm
doing
.
I
want
to
do
more
of
that
.
That
is
a
responsibility
that
I
want
to
take
on
going
forward
within
the
endo
battery
side
of
Navigating
,
really
living
up
to
that
.
12
spoons
,
let's
fuel
,
let's
recharge
your
battery
,
in
In
your
finances
,
let's
recharge
your
battery
.
And
how
do
you
manage
your
time
effectively
when
your
brain
fog
is
taking
over
?
I
don't
know
.
But
let's
learn
,
you
know
,
and
I
think
that's
something
that
will
be
beneficial
for
a
lot
of
people
.
But
we
all
have
.
Speaker 1
26:49
The
thing
that
I
love
about
having
all
of
you
on
today
is
the
fact
that
you
each
have
a
different
dynamic
on
your
podcast
and
you
Lend
your
voice
differently
,
and
I
think
that's
why
I
wanted
to
highlight
these
podcasts
today
is
because
they
are
different
and
you
can
get
information
from
any
of
these
podcasts
and
it
will
be
received
and
it'll
be
brought
to
you
differently
,
and
I
think
that
that
is
okay
and
you
will
learn
something
from
each
of
us
,
I'm
sure
.
But
I
really
think
that
the
more
that
we
spread
awareness
of
other
advocates
and
other
people
speaking
about
endometriosis
and
other
life
challenges
,
the
better
the
whole
community
will
be
in
the
support
that
we
can
give
to
one
another
.
And
I
just
and
that's
the
reason
why
I
wanted
to
have
all
these
lovely
ladies
on
today
is
because
,
yes
,
we
all
have
a
podcast
,
but
we're
not
in
competition
.
We
are
really
feeling
a
cup
of
information
,
but
also
we
are
fueling
a
cup
of
just
humanity
in
what
we're
doing
and
in
bringing
the
humanity
to
this
chronic
illness
.
I'm
excited
to
hear
where
we're
all
going
collectively
with
our
podcast
,
because
I
think
that
a
lot
of
really
great
things
are
happening
with
all
of
us
.
Speaker 1
28:07
I
know
,
kathleen
,
you
just
started
.
What
are
we
going
to
see
from
you
next
?
Speaker 3
28:11
Well
,
I
hope
that
I
can
sort
of
build
on
the
shoulders
of
everybody
who's
come
before
me
and
what
a
great
team
we
have
here
and
such
great
inspiration
,
and
I
think
you
know
,
just
echoing
back
what
everybody
said
,
there's
so
much
room
for
different
voices
.
Speaker 3
28:26
You
know
,
I
need
to
make
sure
that
I
include
all
the
marginalized
communities
within
Ireland
.
I
need
to
make
sure
that
I
include
all
the
topics
that
are
relevant
within
Ireland
but
are
also
relevant
worldwide
as
well
.
Certainly
,
from
the
queries
over
the
years
,
the
majority
of
people
don't
really
care
about
the
theories
of
endometriosis
.
They
don't
really
care
for
whether
it's
caused
by
one
thing
or
another
.
What
they
usually
need
in
that
moment
of
time
is
a
bit
of
comfort
,
somebody
to
listen
,
somebody
to
bring
back
that
focus
to
them
again
and
,
I
think
,
allowing
them
that
sort
of
space
to
take
on
small
bits
of
information
at
a
time
,
be
that
how
to
book
a
pelvic
fizzy
appointment
or
how
to
find
a
dietician
or
how
to
find
a
GP
to
actually
listen
to
you
.
So
I
think
,
using
the
,
you
know
,
inspiration
from
everybody
and
making
sure
that
we
don't
keep
this
a
very
insular
and
parochial
community
,
we
need
to
expand
it
,
we
need
to
blow
it
wide
open
.
Speaker 3
29:22
You
know
,
I
should
be
able
to
listen
to
any
of
the
guys
here
and
sort
of
go
yeah
,
that's
relevant
to
my
life
here
in
Ireland
and
you
should
be
able
to
listen
to
mine
and
say
,
yeah
,
I've
taken
something
away
from
that
.
The
social
care
system
might
be
different
,
but
it's
given
me
an
idea
to
see
what
resources
might
be
available
in
my
county
or
in
my
country
.
So
I
think
,
even
though
we
are
a
very
tight
community
,
I
do
think
we
risk
becoming
very
insular
,
and
I
think
the
more
external
factors
we
can
bring
into
that
,
the
better
,
and
be
that
through
variability
within
the
populations
that
we
speak
to
,
variability
in
the
professionals
that
we
speak
to
,
and
variability
again
in
the
sort
of
patient
community
,
if
you
want
to
describe
it
that
way
as
well
too
.
Everybody's
got
a
very
individual
story
and
a
very
individual
you
know
path
to
treatment
and
a
very
individual
sort
of
outcome
as
well
too
.
So
there's
your
room
for
absolutely
everybody
.
So
I'm
hoping
that
I
can
bring
that
.
Speaker 1
30:17
I
think
you
will
.
I
think
you
will
.
Amy
,
you're
already
doing
your
podcast
episodes
,
but
what
else
is
coming
along
for
you
?
Because
you've
got
some
really
good
stuff
coming
.
I
know
you
do
,
I
just
know
you
do
.
Speaker 4
30:32
Well
,
first
of
all
,
I
think
I'll
be
podcasting
for
the
next
like
10
years
because
I
absolutely
love
it
,
even
though
it
is
so
much
hard
work
and
I
really
just
do
want
to
put
that
out
there
that
it
is
hard
work
to
have
a
.
Speaker 4
30:43
You
know
.
You
know
it's
hard
work
to
have
the
podcast
,
not
only
to
find
the
guests
,
to
schedule
the
guests
,
to
learn
about
the
guests
,
to
make
the
questions
,
to
be
there
,
and
then
you
know
you
don't
feel
good
,
then
you're
.
You
know
it's
a
lot
of
spoons
,
a
lot
of
work
,
but
I
just
feel
like
there's
so
many
topics
too
.
I've
already
done
115
episodes
and
I
have
a
hundred
like
I
literally
have
another
115
lined
up
.
You
know
,
like
I
have
a
whole
list
of
like
people
that
I
want
to
come
on
in
2024
and
then
2025
.
And
you
want
them
all
to
come
on
at
once
.
But
that's
not
possible
.
You
know
you
can
only
have
I
don't
know
25
,
30
episodes
a
year
.
So
got
to
speak
to
face
them
out
.
But
there's
just
so
much
to
talk
about
.
You
know
,
and
it's
what
we're
saying
,
there's
just
there's
so
much
to
talk
Podcast Plans and Priorities
Speaker 4
31:26
about
.
I'm
really
branching
off
into
co-conditions
.
I've
just
been
doing
a
whole
series
on
disability
.
It's
still
going
on
.
It's
like
an
eight-part
series
about
identifying
as
disabled
or
dynamically
disabled
,
asking
for
accommodation
at
work
,
like
finding
the
best
way
to
do
it
,
like
finding
the
confidence
to
say
like
I'm
disabled
and
I
identify
as
disabled
,
if
that's
what
a
person
chooses
to
identify
,
as
you
know
.
So
I
think
there's
so
many
like
offshoots
to
go
down
.
I
really
want
to
go
down
the
whole
hormone
replacement
therapy
,
not
just
for
perimenopause
,
but
also
because
we
have
so
many
people
that
go
into
surgical
menopause
or
even
,
like
me
,
I
,
you
know
,
I'm
not
in
surgical
menopause
,
but
by
losing
an
ovary
it
tanked
my
hormones
and
I
was
not
prepared
for
that
.
I
was
not
prepared
for
how
to
find
a
doctor
,
for
the
symptoms
I
would
encounter
,
and
that
delayed
,
you
know
,
that
caused
me
suffering
and
that
delayed
me
getting
the
treatment
that
I
need
,
because
I
just
had
no
clue
about
it
.
Speaker 4
32:23
So
lots
of
different
things
I
want
to
explore
on
my
podcast
.
Lots
of
different
world
voices
.
I
have
a
World
Care
series
where
I'm
interviewing
people
from
different
countries
.
You
know
,
people
from
Kenya
,
nigeria
,
india
,
jamaica
,
bolivia
,
bringing
on
voices
from
different
countries
where
the
care
and
the
social
and
cultural
barriers
are
different
from
you
know
what
I've
experienced
and
hearing
those
voices
.
And
then
have
my
Spanish
podcast
coming
out
,
yes
,
which
I'm
just
so
thrilled
about
,
and
I
feel
like
I've
taken
like
everything
that
I've
learned
in
these
five
years
from
the
English
podcast
and
I've
you
know
I'm
making
a
really
great
podcast
in
Spanish
.
Of
course
,
again
,
it's
not
perfect
and
it's
not
going
to
be
the
best
podcast
in
the
world
,
but
I
try
to
hit
a
lot
of
topics
,
both
to
do
with
Endo
co-conditions
and
patient
voices
,
and
have
a
lot
of
different
representation
from
Spanish-speaking
countries
,
lots
of
different
guests
from
lots
of
you
know
,
over
a
dozen
countries
.
I
feel
really
excited
about
that
.
Speaker 4
33:25
And
then
my
audiobook
is
coming
out
in
March
2024
.
From
my
actual
book
that
I
wrote
,
which
is
Finding
a
Piece
of
the
Devastating
Disease
.
So
I'm
here
to
stay
.
You
know
I'm
in
the
spoons
every
day
trying
to
.
Sometimes
there's
no
motivation
,
so
you
just
watch
TV
and
you're
like
I
think
I'll
be
motivated
tomorrow
and
just
yeah
,
working
with
the
spoons
the
best
you
can
.
Speaker 1
33:49
Absolutely
so
.
True
,
I
know
that
,
kim
,
with
your
,
you've
experienced
that
too
of
like
trying
to
do
the
podcast
and
try
to
work
,
and
Brandon's
working
,
but
what's
coming
up
for
you
guys
,
because
you're
navigating
a
lot
of
schedules
as
well
.
But
I
know
that
you
have
great
things
coming
up
.
We
do
.
Speaker 2
34:07
And
you
know
,
we
basically
have
decided
that
we're
just
going
to
scale
our
vision
depending
on
just
how
our
demands
are
in
any
particular
season
of
life
,
and
that
way
we
don't
get
discouraged
if
things
have
to
shift
or
if
things
have
to
pause
,
like
we
really
are
a
perfect
match
,
because
I'm
the
project
management
minded
person
,
brandon
is
the
creative
,
and
the
combo
basically
provides
creativity
within
boundaries
.
Yeah
,
so
so
we
have
,
you
know
,
very
clear
vision
of
remaining
couple
centered
,
no
matter
what
,
empowering
them
to
make
informed
decisions
for
themselves
and
their
families
.
So
everything
that
we
do
will
pour
out
of
that
space
.
We're
excited
to
portray
the
diversity
of
couples
who
are
dealing
with
chronic
conditions
,
partners
,
spouses
,
parents
of
young
children
,
older
children
,
people
without
children
Just
as
much
diversity
as
we
can
display
.
We
want
to
really
try
to
honor
that
and
ensure
that
as
many
voices
are
heard
from
,
because
every
single
couple
has
something
amazing
to
share
,
even
if
it's
coming
out
of
hardship
.
We've
been
able
to
just
learn
so
much
,
so
we
want
to
continue
with
that
.
And
then
,
with
professionals
,
we're
going
to
continue
to
very
meticulously
choose
professionals
who
are
committed
to
offering
their
expertise
that's
focused
on
improving
the
quality
of
life
,
particularly
for
the
relationship
unit
.
We're
very
big
on
that
being
the
focus
.
We
try
to
individually
highlight
the
importance
of
everyone
in
the
relationship
.
You
know
,
having
the
quality
of
life
prioritize
,
but
then
also
particularly
like
trying
to
offer
expertise
that
supports
the
unit
as
a
whole
.
And
then
,
with
us
being
still
so
new
at
this
,
we
also
are
kind
of
keeping
things
flexible
for
that
and
in
that
regard
,
we
really
try
to
take
in
the
feedback
that
we
receive
from
other
couples
,
from
our
listeners
,
and
we
do
take
it
seriously
.
I
definitely
know
when
feedback
is
something
that
we
want
to
consider
versus
something
that
doesn't
align
with
our
mission
and
our
ethics
and
our
pillars
of
how
we
wish
to
approach
the
podcast
.
But
for
those
who
do
provide
really
great
feedback
,
we
try
to
incorporate
that
into
the
long
term
plan
.
So
we
hope
to
one
day
offer
a
couple's
retreat
.
Speaker 2
36:37
Something
also
that's
been
popping
up
is
a
couple's
focused
support
group
.
So
we're
just
going
to
put
them
in
our
you
know
,
put
them
on
our
vision
board
and
try
to
figure
out
okay
,
are
these
things
that
we
can
incorporate
and
scale
in
a
way
that
remains
feasible
for
us
and
ensure
that
,
even
though
this
is
hard
work
,
that
we
continue
at
a
pace
that
keeps
us
still
loving
it
.
So
that's
why
we're
okay
.
If
perhaps
,
we
only
get
one
podcast
out
in
a
month
.
We
just
say
you
know
what
,
we
have
to
scale
it
to
meet
our
needs
in
those
seasons
and
that's
okay
.
Speaker 2
37:14
So
the
one
thing
that
we
will
not
be
doing
is
forcing
ourselves
to
crank
out
quantity
just
to
get
it
out
.
We
can
sometimes
feel
pressured
to
do
that
as
podcasters
and
that's
something
that
we
committed
early
on
to
not
make
a
focus
If
it
doesn't
organically
feel
like
something
that
we
need
to
talk
about
,
sit
down
and
record
.
No
,
and
honestly
,
people
have
been
really
supportive
of
anything
that
we
can
come
out
and
share
.
So
that's
also
been
encouraging
to
remind
me
that
it's
okay
to
pace
myself
Because
ultimately
,
I'm
going
to
make
myself
available
not
only
to
our
listeners
but
to
my
patients
,
to
my
husband
,
to
my
dog
,
to
my
family
.
I
want
to
be
here
for
the
long
haul
.
So
that
means
really
prioritizing
our
health
book
my
health
as
the
one
with
the
chronic
illness
,
his
health
as
the
one
who
is
often
caring
for
the
person
with
chronic
illness
,
and
then
the
health
of
our
marriage
itself
too
.
Speaker 1
38:17
So
oh
,
it's
so
good
,
it's
so
good
.
I
think
you
made
a
valid
point
.
We
just
need
to
give
ourselves
grace
.
And
you
know
,
each
of
you
have
put
so
much
work
into
your
podcast
.
Speaker 1
38:30
I
don't
I
didn't
realize
how
much
work
would
be
entailed
into
creating
a
podcast
.
I
thought
it
was
going
to
be
like
a
couple
days
a
month
,
but
it's
like
how
green
I
was
,
I
was
like
I
legitimately
was
like
,
oh
,
it's
going
to
be
a
couple
days
a
month
,
that's
fine
,
I
don't
have
time
for
that
.
It's
not
.
It's
almost
like
a
40
hour
work
week
,
sometimes
or
more
.
And
there's
been
times
that
I've
had
to
have
boundaries
and
my
husband's
had
to
put
boundaries
in
place
because
I'm
not
good
at
boundaries
when
it
comes
to
that
passion
that
drives
us
,
and
so
he's
like
you
got
to
step
away
from
the
mic
for
a
minute
,
you
got
to
step
away
from
talking
endometriosis
for
a
second
and
you've
got
to
say
I
don't
want
to
hear
endometriosis
for
24
hours
in
this
household
.
And
it
is
a
real
struggle
to
do
that
.
It's
a
lot
of
work
and
a
lot
goes
into
it
,
but
it's
worth
it
.
And
it's
so
true
that
each
of
us
have
a
voice
.
Speaker 1
39:17
But
you
all
have
been
so
impactful
in
my
journey
with
endometriosis
,
as
well
as
being
a
podcaster
,
and
so
for
that
I
just
want
to
say
thank
you
.
Gratitude and Support in Podcasting Journey
Speaker 1
39:27
Thank
you
all
for
being
who
you
are
but
being
the
support
that
I
didn't
know
I
needed
in
this
first
year
of
podcasting
,
and
I
know
that
,
moving
forward
into
my
next
year
of
doing
it
because
I'm
not
stopping
yet
my
next
year
of
doing
it
that
I
know
that
this
community
will
rally
around
me
when
I'm
not
feeling
my
best
or
when
my
ADHD
I'm
sorry
all
of
you
that
have
had
to
experience
is
that
my
ADHD
takes
over
and
I'm
having
a
hard
time
focusing
,
or
whatever
the
case
is
.
Speaker 1
39:55
You
all
have
been
so
instrumental
in
this
journey
up
into
this
time
,
and
I
know
that
,
moving
forward
,
you'll
continue
just
with
what
you're
doing
,
but
also
in
supporting
me
as
a
human
,
not
just
a
podcaster
.
So
I
just
want
to
say
thank
you
from
the
bottom
of
my
heart
,
and
I'm
so
excited
to
see
where
this
year
goes
for
all
of
you
.
You
have
a
lot
of
big
things
going
on
,
and
I'm
excited
to
carry
on
the
mission
of
advocacy
for
those
dealing
with
chronic
illnesses
in
general
and
those
dealing
with
life
,
for
being
honest
.
So
thank
you
for
being
a
spoon
that
gives
to
me
.
Thank
you
for
recharging
me
and
until
next
time
.
Everyone
remember
that
these
advocates
continue
advocating
for
you
,
but
you
advocate
for
yourself
and
for
those
that
you
love
.