Send us a text with a question or thought on this episode ( We cannot replay from this link)
A year flies by when you’re immersed in the world of podcasting and advocacy. I can hardly believe it’s been a year since the inception of Endo Battery, and what a journey it has been! Joined by the resilient Kimether Redmon, the formidable Kathleen King, and the seasoned Amy Corfeli, we take you on a ride through our individual experiences in the realm of healthcare advocacy and podcasting, with a particular focus on Endometriosis, Adenomyosis, and chronic illnesses.
In this special episode, we embark on a journey through the trials and triumphs of advocacy in healthcare. Unveiling the nuances of the Irish healthcare system, the intersection of social justice issues, and the unyielding strength of communities facing Endometriosis and Adenomyosis, we offer an intimate exploration of the challenges faced within the healthcare sector.
Buckle up for insightful discussions about maintaining transparency and vulnerability in public platforms, the power of collective advocacy, and the game-changing impact of the 12 spoons theory for those navigating life with chronic illnesses.
But our journey doesn’t end there. Discover the behind-the-scenes of podcasting – the challenges, the victories, and the lessons learned. From navigating scheduling complexities to confronting unconscious biases, our hosts share their experiences, struggles, and achievements. Together, we delve into the importance of amplifying marginalized voices and the camaraderie essential in uplifting historically overlooked narratives.
Join us in commemorating this remarkable journey, filled with shared wisdom, invaluable insights, and a celebration of collective experiences. Come for the stories, stay for the camaraderie – this episode is a testament to the power of resilience, advocacy, and the warmth of shared experiences.
Tune in to Endo Battery as we mark this significant milestone and invite you to be a part of our celebration!
Website endobattery.com
Endometriosis and Adenomyosis Podcast Anniversary Celebration
Speaker 1
0:03
Welcome
to
Indobattery
,
where
I
share
about
my
endometriosis
and
adenomyosis
story
and
continue
learning
along
the
way
.
This
podcast
is
not
a
substitute
for
professional
medical
advice
or
diagnosis
,
but
a
place
to
equip
you
with
information
and
a
sense
of
community
,
ensuring
you
never
have
to
face
this
journey
alone
.
Join
me
as
I
navigate
the
ups
and
downs
and
share
stories
of
strength
,
resilience
and
health
while
navigating
the
world
of
endometriosis
and
adenomyosis
,
from
personal
experience
to
expert
insights
.
I'm
your
host
,
elana
,
and
this
is
Indobattery
charging
our
lives
when
endometriosis
drains
us
.
Welcome
to
Indobattery's
one
year
celebration
.
Thanks
for
ringing
in
your
two
of
this
podcast
with
me
.
Like
every
great
birthday
,
my
guests
and
I
celebrate
with
two
episodes
.
Join
us
as
we
unpack
part
one
of
this
celebration
.
Let's
get
started
.
Welcome
back
to
Indobattery
everyone
.
Today
is
a
special
day
.
It's
a
really
special
day
because
it
is
the
one
year
of
Indobattery's
existence
.
This
year
has
taught
me
so
many
things
,
and
I've
recounted
that
before
in
my
last
podcast
,
but
one
thing
that
I
have
said
and
will
always
say
is
that
it
has
taught
me
the
strength
of
this
community
,
and
this
community
would
not
be
as
strong
without
the
people
joining
me
today
.
These
people
have
their
own
podcast
,
so
they
know
exactly
what
it's
like
to
do
it
.
But
they
don't
just
do
the
podcast
,
they're
advocates
as
well
,
and
they've
done
it
at
various
lengths
of
time
.
Speaker 1
1:38
First
,
I
want
to
thank
Kimmether
Redman
for
coming
on
.
She's
amazing
.
She's
from
Wendell
Thickevitt
with
her
husband
,
brandon
,
and
we
have
Kathleen
King
,
whom
I
have
been
forever
wanting
to
have
on
,
and
she's
amazing
,
and
she
just
started
a
podcast
,
jarg
.
And
then
there's
Amy
.
Amy
,
as
many
people
know
,
has
been
doing
a
podcast
for
a
long
time
.
It
was
amazing
and
she
is
in
16
years
of
Indo
.
Thank
you
,
ladies
,
for
coming
on
and
joining
me
today
.
I
am
so
excited
to
have
you
all
here
,
so
excited
.
Thank
you
,
I'm
happy
to
be
here
.
First
,
I
want
to
start
off
by
saying
,
just
because
we've
all
had
a
podcast
for
varying
lengths
we
should
probably
talk
about
that
how
long
we've
done
our
podcast
,
but
we've
also
been
advocates
for
a
long
time
.
Kathleen
,
how
long
have
you
been
in
the
advocacy
world
for
endometriosis
?
Speaker 2
2:33
Oh
,
some
people
would
say
too
long
.
It's
25
years
.
Floss
at
this
stage
.
Yeah
,
I
think
I've
worn
people
up
over
the
years
,
but
yeah
,
25
years
now
since
my
diagnosis
.
I
joined
the
UK
charity
and
then
the
Irish
charity
after
that
and
have
been
involved
with
a
lot
of
online
groups
and
I
was
very
fortunate
,
within
weeks
of
trying
to
get
a
diagnosis
,
that
I
found
Nancy
Peterson
and
Heather
Grudon
online
and
they
sort
of
molded
me
,
I
think
,
into
the
advocate
that
I
am
now
and
I'm
very
fortunate
for
that
.
So
,
yeah
,
it's
been
a
while
.
It
makes
me
feel
old
.
That's
the
only
thing
.
Speaker 1
3:12
You're
forever
young
in
my
mind
,
but
your
podcast
,
you
just
started
,
your
podcast
.
Speaker 2
3:20
Yeah
,
so
the
podcast
Jarragh
is
only
going
since
really
the
1st
of
September
and
it's
something
that
I
had
thought
about
for
such
a
long
time
.
But
we
have
such
amazing
endometriosis
podcasts
out
there
,
including
Kimethers
and
Amy's
and
your
own
as
well
,
and
it's
like
am
I
adding
anything
of
value
?
But
then
I'm
sort
of
thinking
we
have
a
very
specific
Irish
community
and
while
a
lot
of
the
problems
do
overlap
that
we
have
in
Ireland
with
everybody
else
in
the
world
,
there
are
some
things
that
are
quite
specific
to
us
,
including
our
healthcare
system
,
with
a
lot
of
people
traveling
to
Europe
and
traveling
to
the
UK
as
well
.
So
there's
some
very
specific
local
quirks
,
I
suppose
you'd
call
them
,
that
would
be
good
to
cover
.
So
far
,
so
good
.
I'm
still
really
learning
and
,
like
I
say
,
learning
from
the
best
,
so
it's
been
great
to
have
all
you
guys
ahead
of
me
to
sort
of
learn
from
,
but
it's
been
fun
.
Speaker 1
4:12
Yeah
,
it's
been
amazing
.
Kimethers
has
been
not
as
long
in
the
advocacy
world
as
Kathleen
,
but
you've
been
doing
this
now
for
what
a
year
.
Speaker 3
4:25
Right
.
So
I
started
probably
with
advocacy
working
out
Can't
even
say
it
was
advocacy
,
I
think
it
was
just
really
just
introducing
myself
to
the
endometriosis
community
and
expressing
appreciation
for
them
,
just
welcoming
me
as
a
fellow
endopatient
as
well
as
a
clinician
who's
just
really
as
passionate
about
social
justice
issues
within
healthcare
.
So
I've
been
doing
advocacy
work
related
to
social
determinants
of
health
and
minority
health
disparities
for
20
years
but
I
am
still
very
much
a
baby
to
the
endometriosis
advocacy
world
.
But
I've
been
.
I
really
just
appreciated
how
supportive
people
have
been
to
me
,
wanting
to
just
offer
what
I
can
to
this
area
that
so
desperately
just
needs
as
many
clinicians
and
outspoken
advocates
really
raising
awareness
.
Speaker 3
5:21
And
with
the
podcast
,
my
husband
and
I
started
the
podcast
just
this
year
after
the
endometriosis
summit
.
Speaker 3
5:28
Sometime
after
the
endometriosis
summit
,
maybe
a
few
months
later
,
it
was
actually
Amy's
recommendation
who
said
you
guys
should
start
a
podcast
Because
we
mentioned
that
we
used
to
podcast
and
it
was
marriage
related
.
It
was
just
about
couples
living
life
and
just
trying
to
figure
out
this
marriage
thing
.
And
we
took
a
break
from
it
when
I
started
not
feeling
well
and
I
was
so
concerned
about
getting
back
to
it
and
didn't
know
exactly
how
to
frame
it
and
he's
like
you
could
do
something
that's
like
related
to
dealing
with
chronic
illness
,
and
I
was
like
that's
actually
a
good
idea
,
because
when
we
tried
looking
for
those
resources
we
couldn't
find
it
.
So
we
decided
to
start
EndoThick
of
it
and
it
is
a
podcast
for
couples
who
are
navigating
chronic
illnesses
like
Endo
and
it
has
been
very
well
received
and
we
are
really
excited
about
it
.
And
it's
very
informal
.
For
the
most
part
it's
just
people
coming
to
the
kitchen
table
having
a
conversation
that
Brad
and
I
would
have
had
anyway
on
our
own
,
so
it's
been
nice
to
invite
people
to
those
conversations
.
Speaker 1
6:30
Yeah
,
it's
so
good
too
.
It's
so
good
,
oh
my
goodness
.
Elliot
and
I
have
listened
a
lot
to
your
podcast
and
have
gotten
a
lot
of
good
information
.
But
really
just
like
connection
,
I
think
you
do
such
a
great
job
at
connecting
people
and
making
them
feel
part
of
that
,
especially
in
the
relational
realm
.
Lessons Learned in Advocacy and Podcasting
Speaker 1
6:49
Amy
,
you
have
been
an
advocacy
and
you've
been
doing
the
podcast
the
longest
.
How
long
have
you
been
doing
advocacy
and
how
long
have
you
been
doing
the
podcast
?
Speaker 4
6:58
Yeah
,
hi
everyone
,
thanks
for
having
me
here
today
.
My
name
is
Amy
.
I've
been
podcasting
for
almost
five
years
.
At
this
point
It'll
be
five
years
in
December
2023
.
I'm
starting
a
new
podcast
in
Spanish
,
which
is
also
about
living
with
endometriosis
.
So
I'm
really
really
excited
about
that
because
I
think
I'm
taking
.
Speaker 4
7:18
You
know
,
when
I
started
podcasting
,
kind
of
like
Kim
with
her
said
,
I
wasn't
really
an
advocate
,
I
just
wanted
to
.
I
had
my
best
friend
,
brittany
,
who's
my
co-host
,
and
she
doesn't
have
Endo
that
we
know
of
,
but
she
has
a
lot
of
also
period
problems
,
health
problems
,
things
like
that
.
So
we
just
wanted
to
get
together
every
week
and
just
talk
and
laugh
and
kind
of
de-stigmatize
and
take
away
the
shame
from
all
the
things
that
society
tells
us
is
shameful
,
right
,
like
menstruation
and
urinary
problems
and
digestive
problems
and
yeah
.
So
we
just
kind
of
wanted
to
talk
about
how
can
we
live
well
with
this
illness
,
right
?
And
how
can
we
,
how
can
we
just
I
don't
know
not
move
on
in
our
lives
,
but
how
can
we
like
not
get
stuck
in
all
the
difficulty
that
is
this
illness
and
how
can
we
try
to
build
a
life
worth
living
?
Speaker 4
8:11
And
so
it
started
as
that
and
then
,
as
we
kind
of
,
you
know
,
we're
meeting
every
week
doing
the
podcast
,
talking
about
like
tips
and
stuff
.
We
just
,
of
course
,
getting
further
and
further
into
endometriosis
,
realizing
how
much
misinformation
there
is
,
how
many
people
cannot
access
care
,
how
many
people
are
suffering
,
you
know
,
and
I
think
that
maybe
a
six
months
a
year
later
it
started
,
you
know
,
changing
into
this
advocacy
project
and
I
think
now
my
podcast
is
quite
different
from
what
was
at
the
beginning
,
where
now
I
have
a
lot
more
voices
on
I
deal
,
you
know
,
I
have
a
lot
more
experts
on
a
lot
more
patient
voices
.
And
then
I
want
to
,
well
,
I
am
taking
everything
that
I've
learned
after
five
years
of
podcasting
in
English
and
I'm
starting
a
limited
series
in
Spanish
about
20
episodes
with
patient
and
doctor
voices
to
you
know
,
to
help
spread
the
good
quality
information
to
you
know
,
people
who
may
not
normally
access
it
.
Speaker 1
9:08
It's
amazing
.
I
think
the
value
of
having
you
three
on
is
that
you
come
from
different
backgrounds
.
You
know
we're
not
all
the
same
,
which
is
the
best
part
about
this
,
and
I
think
that
highlights
just
how
endometriosis
affects
so
many
different
people
from
so
many
different
backgrounds
and
we
experience
,
although
some
of
the
same
things
,
we
also
experience
a
lot
of
different
things
,
and
I
think
when
I
first
started
this
podcast
or
Shelby
it
was
we
were
looking
for
more
specific
how
do
we
live
our
life
?
And
we
started
this
podcast
off
of
the
theory
of
the
12
spoons
.
The
12
spoons
,
essentially
,
is
if
we
are
given
essentially
12
spoons
a
day
to
dip
into
the
pot
of
life
,
to
eat
,
to
take
care
of
a
family
member
,
to
do
all
this
.
You
know
you
fill
all
your
12
spoons
by
the
end
of
the
day
.
You
don't
have
any
more
right
,
and
that's
when
you
rest
and
digest
and
then
you
regain
some
strength
.
But
if
you
are
spending
your
12
spoons
on
a
chronic
illness
,
you
don't
have
any
left
to
give
,
and
so
the
point
of
that
is
is
that
when
we
wanted
to
start
this
podcast
,
it
was
to
be
able
to
give
you
the
ability
to
not
expend
all
your
spoons
on
navigating
a
chronic
illness
.
Speaker 1
10:27
That
is
very
ambiguous
when
it
goes
to
research
and
information
and
things
like
that
,
and
it's
not
that
there
isn't
information
out
there
.
There's
a
lot
,
but
there
needs
to
be
more
,
and
so
that
was
kind
of
the
ballpark
that
we
were
living
in
a
little
bit
was
we
want
to
fill
the
battery
for
everyone
,
their
life
battery
with
Indo
,
and
that's
a
really
challenging
thing
to
do
,
but
we've
been
able
to
do
that
because
of
people
like
you
,
whom
I
would
have
never
in
a
million
years
that
I
would
have
this
platform
.
First
of
all
,
I
want
to
just
tell
you
that
I
this
is
this
starting
this
podcast
.
I
don't
know
about
you
,
ladies
,
but
starting
this
podcast
,
I
was
completely
out
of
my
comfort
zone
.
I
had
no
idea
what
I
was
doing
.
Speaker 1
11:14
I
had
my
YouTube
education
at
the
forefront
.
I
YouTube
everything
,
but
I
think
that
getting
out
of
my
comfort
zone
has
educated
me
better
,
and
then
it's
also
given
me
the
tools
to
help
other
people
with
their
journey
.
So
what
are
some
of
the
things
that
you
have
learned
starting
this
podcast
that
you
don't
know
if
you
would
have
quite
gathered
at
the
beginning
?
Kathleen
,
you're
new
to
this
.
Speaker 2
11:40
I
think
for
me
,
I
was
waiting
until
everything
was
perfect
.
So
my
branding
isn't
finished
,
my
website's
not
done
,
my
social
media
accounts
aren't
ready
,
and
I
was
like
I
have
to
wait
for
all
those
things
to
be
done
.
And
it
was
this
sort
of
analysis
,
paralysis
thing
,
wasn't
it
?
It
was
just
like
but
I
can't
do
it
until
it's
perfect
,
I
can't
do
that
.
And
then
one
of
the
days
I
was
just
like
do
you
know
what
You're
going
to
have
to
get
this
done
,
girl
,
because
you're
going
to
leave
it
so
long
that
it's
just
going
to
go
off
the
boil
.
It's
going
to
be
obsolete
and
people
are
desperate
for
information
and
you
need
to
deliver
that
to
them
.
You
need
to
get
that
out
there
somehow
,
even
if
it's
not
perfect
.
Speaker 2
12:17
And
I
think
that
falls
into
the
trap
where
living
with
the
chronic
illness
like
endometriosis
and
chronic
pain
,
where
we
have
put
on
that
brave
face
for
so
long
and
we've
put
on
this
perfect
front
,
we
turn
up
to
work
,
we
have
the
hair
done
,
we
have
the
makeup
on
,
we
have
the
clothes
on
,
we
can
do
all
the
things
,
but
I
think
it
was
just
a
case
of
just
jumping
and
get
started
and
all
of
those
other
things
,
like
the
polish
and
all
that
can
come
afterwards
.
But
yeah
,
for
me
I
think
it
was
just
basically
copy
yourself
on
and
get
started
and
not
procrastinate
any
longer
.
Speaker 1
12:50
Yeah
,
I'm
glad
you
didn't
procrastinate
any
longer
,
amy
.
You've
been
doing
this
the
longest
,
though
,
and
you've
probably
garnered
a
lot
of
information
in
things
that
you've
learned
.
What
are
some
things
that
you've
really
taken
away
from
starting
your
podcast
?
Speaker 4
13:10
Yeah
,
I
think
a
couple
of
things
.
I
think
one
of
the
first
things
is
that
our
voices
matter
and
I
think
that
can
be
really
easy
to
not
know
about
ourselves
,
because
we've
spent
years
,
maybe
decades
,
of
being
gaslit
and
dismissed
and
told
that
what
we're
saying
we
experience
isn't
true
,
right
,
that
our
pain
isn't
what
we
say
it
is
,
our
symptoms
isn't
what
we
say
it
is
.
So
we're
just
weak
,
it's
just
part
of
being
a
menstruator
,
blah
,
blah
,
blah
.
So
I
think
when
you're
starting
a
project
like
this
,
sometimes
it's
like
what
Kathleen
said
earlier
Just
my
voice
matter
.
Am
I
contributing
?
Anything
Like
?
Does
this
space
need
me
?
And
I
want
to
tell
you
,
yes
,
absolutely
Like
.
This
space
needs
every
single
voice
out
there
sharing
your
story
,
your
experience
,
your
information
,
because
we
all
reach
different
people
and
we
all
have
a
different
way
of
speaking
and
engaging
and
connecting
,
and
some
people
are
going
to
vibe
with
me
and
some
people
aren't
,
but
they're
going
to
,
you
know
,
be
really
drawn
to
Kathleen
or
to
Kimmether
.
So
I
think
that's
one
of
the
first
things
is
,
when
I
started
,
I
was
so
scared
and
when
I
listened
to
the
earliest
episodes
that
I
did
like
episodes
one
through
20
,
I
mean
you
can
hear
how
scared
.
I
was
.
In
my
voice
Like
you
can
hear
how
insecure
I
felt
,
how
far
out
of
my
comfort
zone
I
was
.
So
,
yeah
,
I
really
want
to
encourage
everyone
to
know
that
your
voice
matters
and
your
story
matters
.
Speaker 4
14:36
And
the
second
thing
I
think
that
I've
really
learned
is
and
of
course
,
I
think
this
is
now
being
,
you
know
,
in
advocacy
and
doing
this
for
a
long
time
is
how
important
it
is
to
really
try
to
find
accurate
information
before
sharing
it
.
And
I
think
at
the
beginning
you
know
there's
times
when
you're
following
people
,
you
think
you
find
a
website
,
you
think
that
it's
accurate
information
,
you
really
do
right
and
then
you
share
it
and
then
you
find
out
that
it's
not
accurate
information
.
I
think
the
longer
you've
been
doing
this
,
the
better
you
get
engaged
,
because
you
learn
more
,
you
know
more
,
you
read
more
,
you
are
connected
with
more
people
.
You
get
a
better
gauge
of
,
like
,
what
is
a
good
source
of
information
,
what
isn't
a
good
source
of
information
.
Speaker 4
15:19
But
I've
definitely
shared
things
that
,
especially
when
it's
like
and
no
adjacent
,
like
things
about
gut
health
or
things
about
hormones
that
you
know
later
I
found
out
actually
that
wasn't
the
correct
information
,
right
,
and
I
have
to
go
back
and
correct
that
and
let
people
know
that
I
messed
up
right
,
that
I
made
a
mistake
.
So
I
think
,
really
trying
to
find
the
best
information
and
,
you
know
,
maybe
even
sitting
on
the
not
the
project
,
but
sitting
on
an
episode
for
a
while
,
like
I
have
an
episode
coming
up
about
interstitial
cystitis
,
I
did
all
the
research
I
like
wrote
out
,
you
know
my
bullet
points
,
and
then
I'm
just
kind
of
sitting
on
it
,
not
in
the
way
Kathleen
said
,
where
it's
like
I'm
waiting
for
it
to
be
perfect
,
but
I'm
just
like
giving
it
a
month
or
two
to
see
what
else
I
can
find
,
what
else
people
are
saying
,
to
really
make
sure
that
I'm
not
,
you
know
,
publishing
something
before
I've
actually
finished
doing
all
the
research
for
it
.
Speaker 1
16:14
Kimberther
,
you've
been
doing
this
for
a
little
bit
,
but
you
started
a
podcast
prior
to
doing
this
podcast
.
What
is
different
this
time
and
what
have
you
learned
?
Not
only
about
podcasting
,
but
obviously
about
endometriosis
,
because
you're
fairly
new
to
the
endometriosis
community
,
so
I'm
sure
you
have
a
lot
of
things
that
you
have
learned
just
in
the
last
year
.
Speaker 3
16:34
Yeah
,
absolutely
so
.
When
we
podcast
in
the
past
,
it
was
just
for
fun
.
It
was
actually
something
for
us
to
stay
connected
with
family
and
friends
when
we
moved
across
country
and
a
lot
of
our
friends
are
married
or
in
relationships
,
so
we
just
decided
to
make
it
with
that
focus
Overcoming Challenges in Chronic Illness Podcasting
Speaker 3
16:53
.
And
when
I
started
getting
unwell
and
not
really
understanding
why
I
was
feeling
the
way
I
was
feeling
later
learning
,
of
course
,
that
it
was
due
to
endometriosis
I
became
more
guarded
with
our
podcast
,
like
with
the
information
I
would
share
,
and
I
felt
like
I
was
losing
some
of
my
authenticity
because
I
was
putting
up
this
wall
of
not
wanting
to
be
vulnerable
about
sharing
that
,
by
the
way
,
I'm
having
all
these
weird
symptoms
that
I
can't
make
sense
of
.
Speaker 3
17:24
So
we
stopped
that
podcast
and
when
we
reconsidered
doing
this
one
and
it
having
a
chronic
illness
focus
,
some
of
the
things
that
I
learned
that
helped
us
really
get
started
with
it
is
that
one
,
since
we
had
already
done
this
before
and
I'm
already
in
a
have
been
in
professions
that
often
will
bring
out
the
professionists
and
the
people
pleaser
and
people
.
That's
something
that
I've
already
worked
on
a
lot
.
So
I
went
into
this
podcast
with
zero
concern
about
pleasing
everyone
.
I
knew
that
chronic
illness
already
is
going
to
take
up
so
much
energy
and
I'm
going
to
have
to
work
around
that
to
even
be
able
to
record
.
So
the
last
thing
I
needed
to
do
was
also
make
people
pleasing
and
profession
professionalism
still
like
precious
energy
and
headspace
in
the
process
.
So
you
know
,
when
we
went
into
this
,
it
felt
really
good
to
just
go
into
it
knowing
I'm
not
going
to
be
everyone's
cup
of
tea
,
not
everyone's
going
to
like
my
voice
,
not
everyone's
going
to
hear
what
I
want
to
say
,
and
I'm
going
to
do
it
anyway
,
because
I
know
that
there
are
some
who
do
want
to
hear
this
and
who
appreciate
being
a
part
of
those
conversations
.
Speaker 3
18:42
Another
thing
that
I
already
kind
of
hinted
on
is
the
fact
that
I
have
chronic
illnesses
and
I
was
afraid
that
that
would
set
me
up
for
failure
,
that
eventually
I
would
get
,
you
know
,
a
good
momentum
going
and
then
symptoms
would
get
out
of
control
and
I'd
have
to
stop
.
And
I
want
to
do
that
.
I
really
wanted
to
commit
to
this
and
be
able
to
do
it
long
term
.
So
I
almost
didn't
start
because
I
was
waiting
for
myself
to
get
to
a
level
of
symptoms
that
was
manageable
enough
and
I
thought
that
I
could
do
the
podcast
in
a
nice
regular
rhythm
but
again
,
just
like
Kathleen
mentioned
,
that
ended
up
kind
of
slowing
me
down
and
causing
a
bit
of
analysis
For
analysis
too
,
it's
of
well
,
just
how
well
do
I
need
to
be
to
be
able
to
do
this
podcast
about
being
chronically
ill
?
Speaker 3
19:35
And
I
was
like
you're
overthinking
this
,
kymether
,
just
do
it
,
do
it
ill
.
And
I've
done
episodes
recording
from
my
bed
.
I've
done
episodes
with
heat
and
pads
and
ice
packs
on
my
body
.
I've
done
episodes
where
I
sound
super
bubbly
and
great
,
and
then
there's
some
episodes
where
I
sound
more
down
and
a
little
more
soft
spoken
and
I
just
had
to
be
okay
with
that
.
That
.
Speaker 3
20:06
You
know
what
it's
just
more
important
for
me
to
just
bring
my
authentic
self
to
the
table
or
to
the
microphone
in
this
case
and
that
if
anyone
has
a
problem
with
that
,
that's
fine
,
because
I'm
firm
in
the
importance
of
authenticity
in
this
space
,
so
I'm
not
going
to
change
that
for
anyone
.
Speaker 1
20:25
Yeah
,
that's
such
an
important
lesson
though
,
because
I
know
when
I
started
I
really
didn't
.
I
was
not
knowledgeable
about
any
of
this
.
I
felt
like
I
was
.
I
felt
like
I
started
it
because
I
twofold
,
I
wanted
to
right
my
wrongs
from
what
I
had
learned
from
,
like
the
retrograde
menstruation
ablation
theory
,
of
everything
.
Right
,
I
talked
to
everyone
about
that
.
I
am
allowed
.
I
am
not
short
on
words
.
Everyone
knows
this
by
now
,
and
so
I
,
even
from
early
diagnosis
,
I
was
telling
people
what
I
knew
,
what
my
doctor
was
telling
me
.
Speaker 1
20:59
So
then
,
when
I
started
this
podcast
and
realizing
I
didn't
know
anything
,
it
really
was
like
you
have
to
put
yourself
out
there
to
be
vulnerable
to
say
I
don't
know
everything
,
I
don't
know
what
I'm
doing
.
I
am
glad
I'm
learning
this
,
and
that
was
something
that
I
felt
like
even
for
me
was
so
important
was
to
learn
with
the
people
that
listen
,
because
I
would
say
there's
a
large
number
of
people
who
are
just
learning
about
endometriosis
and
that's
why
they're
coming
to
all
these
different
podcasts
and
they're
they're
seeking
out
information
.
A
large
percentage
didn't
know
much
about
endometriosis
and
so
my
goal
has
always
been
to
learn
with
them
and
,
I
think
,
doing
life
with
them
in
your
chronic
illness
,
stage
of
pain
,
flares
,
tired
,
fatigue
,
all
of
that
.
Inviting
them
into
that
space
has
been
so
impactful
for
so
many
people
because
it
makes
them
feel
less
alone
.
They're
not
alone
in
navigating
this
journey
.
That
is
really
hard
,
not
only
from
the
informational
standpoint
,
but
also
from
the
living
standpoint
.
I
mean
,
we
were
talking
before
we
came
on
about
all
the
different
signs
and
symptoms
of
perimenopause
and
how
felt
,
how
seen
we
felt
and
how
amazing
it
was
.
Speaker 1
22:15
You
experienced
this
and
I
experienced
this
,
and
it's
that's
what's
so
great
about
having
this
community
in
.
I've
heard
Kathleen's
name
for
years
now
,
like
probably
a
good
five
or
six
years
prior
to
even
starting
this
,
to
see
Kathleen
step
from
not
only
advocacy
into
the
podcast
world
,
I
was
like
,
yes
,
kathleen
,
yes
,
do
it
.
And
I'm
so
glad
that
you
didn't
wait
till
you
felt
perfect
or
felt
like
you
could
do
everything
or
had
everything
put
together
to
be
able
to
do
that
,
because
what
you
give
to
the
community
is
far
better
than
a
logo
.
It's
far
better
than
the
sound
or
whatever
.
You
have
a
lot
to
offer
and
I'm
so
thankful
that
you
decided
to
do
this
.
It's
so
great
.
What
are
some
of
the
challenges
that
you've
experienced
in
doing
a
podcast
?
Speaker 2
23:09
I
think
the
challenges
is
sort
of
timing
and
scheduling
,
I
think
for
a
lot
of
people
,
isn't
it
?
And
while
we
rely
on
a
lot
of
goodwill
and
we're
relying
on
fellow
advocates
or
our
community
to
make
time
to
sort
of
come
on
podcasts
and
things
like
that
and
we
know
people
have
a
lot
of
commitments
there's
commitments
to
work
,
commitments
to
family
,
commitments
to
living
with
their
chronic
illness
as
well
,
and
we
have
to
pace
ourselves
.
So
that
in
itself
is
one
challenge
.
And
on
the
other
side
then
you're
sort
of
when
you're
looking
to
interview
healthcare
professionals
,
particularly
in
Ireland
,
you
know
a
lot
of
them
have
dual
practice
,
so
they
may
have
public
health
practice
and
they
will
have
private
practice
,
maybe
in
the
evening
as
well
.
So
it
can
be
very
,
very
difficult
to
sort
of
get
time
and
to
sort
of
persevere
.
Challenges and Growth in Podcasting
Speaker 1
23:56
There's
a
lot
of
suspicion
out
there
.
Speaker 2
23:57
I
think
as
well
,
too
,
that
you
know
,
certainly
in
a
country
where
we
don't
have
very
readily
easily
access
to
excision
or
to
surgeons
who
can
remove
all
of
the
disease
,
there's
a
suspicion
that
you
know
they're
going
to
be
attacked
in
some
way
or
that
it
may
be
quite
an
aggressive
question
in
session
,
and
I
hope
that
I
think
my
previous
history
,
like
you
know
that's
away
from
running
events
and
running
conferences
on
endometriosis
will
show
that
that's
not
going
to
be
the
case
,
that
it
is
a
case
of
trying
to
get
that
accurate
information
out
there
,
trying
to
show
that
there
are
pathways
for
people
living
in
Ireland
,
you
know
,
to
access
treatment
that's
suitable
for
them
and
them
as
an
individual
.
Speaker 2
24:39
But
I
think
it's
trying
to
juggle
everything
I
think
is
tricky
and
trying
to
make
sure
that
you've
got
the
balance
of
not
just
the
formal
and
serious
information
but
also
a
bit
of
humour
as
well
,
you
know
,
and
to
sort
of
,
we
get
dragged
down
and
off
in
our
day
.
I
think
it's
always
good
then
to
have
that
wee
bit
of
humour
,
which
I
think
we've
all
brought
into
our
podcast
as
well
too
,
and
I
feel
like
I
know
everybody
that
I
listen
to
and
that
could
be
on
your
lunch
break
or
could
be
in
the
evenings
,
and
you
sort
of
feel
it's
a
comfort
sometimes
to
put
that
on
.
So
I'd
like
to
hope
that
I
can
overcome
that
challenge
,
that
people
think
,
okay
,
we're
not
sick
of
listening
to
her
after
25
years
banging
on
a
bit
of
endometriosis
,
that
this
is
actually
a
fresh
sort
of
look
of
things
.
So
that's
probably
it
.
Speaker 1
25:22
No
,
that's
so
valuable
.
Amy
,
you
again
have
been
doing
this
a
while
.
What
are
some
things
that
maybe
you
didn't
see
coming
your
way
,
or
have
been
some
challenges
for
you
,
because
five
years
it's
a
long
time
to
learn
some
things
.
Speaker 4
25:37
It
is
a
long
time
.
You
know
.
I
think
one
of
the
things
that
I'm
really
trying
to
do
now
with
my
podcast
that
I
didn't
do
at
the
beginning
and
that
I
really
wasn't
aware
of
at
the
beginning
is
,
you
know
,
lifting
up
the
voices
of
people
who
have
different
experiences
than
mine
at
the
beginning
.
You
know
,
especially
because
a
lot
of
the
episodes
I
think
we
went
50
episodes
without
even
interviewing
another
person
,
because
the
first
two
years
it
was
really
just
me
and
Brittany
.
It's
a
laughter
,
lots
of
humor
.
You
know
,
talking
about
our
did
that
really
happen
?
Experiences
,
right
like
our
,
all
these
moments
and
how
we're
getting
through
them
.
But
you
know
,
I
think
,
realizing
that
as
a
person
who
holds
a
lot
of
privileges
with
my
identities
you
know
,
being
a
white
,
cis
woman
,
heterosexual
that
it's
really
important
to
realize
and
understand
that
not
everyone
in
this
community
has
the
same
experiences
that
I've
had
,
not
everyone
has
had
the
same
privileges
that
I
have
.
Speaker 4
26:33
So
I
think
,
on
one
end
,
it's
really
been
trying
to
educate
myself
,
to
learn
and
unlearn
a
lot
of
things
that
you
know
,
unconscious
biases
,
that
I
hold
a
lot
of
the
worldviews
that
I
hold
and
,
on
the
other
hand
,
as
part
of
,
like
you
know
,
being
not
just
using
inclusive
language
but
also
like
amplifying
voices
of
historically
marginalized
people
,
of
voices
that
are
not
heard
as
commonly
,
because
this
is
a
very
white
cis
space
,
you
know
,
and
I
think
that
it's
important
to
recognize
that
and
try
to
lift
up
the
voices
of
other
people
in
our
community
worldwide
.
Speaker 4
27:13
And
I
think
that's
something
I've
really
been
focusing
on
recently
is
bringing
in
voices
of
,
you
know
,
different
identities
,
bringing
in
voices
from
different
parts
of
the
world
.
I
think
that
is
just
so
important
.
It's
something
that
I
wish
we
had
done
from
the
beginning
,
but
unfortunately
we
did
not
.
But
we
are
definitely
doing
that
now
.
Speaker 1
27:32
And
you're
doing
a
great
job
.
A
great
job
I
was
actually
.
I
think
Kimmether
and
I
were
talking
about
how
much
you've
compiled
so
many
resources
and
spoke
into
so
many
different
people's
lives
,
like
where
people
are
at
,
and
had
resources
to
follow
that
.
We
were
talking
about
just
the
depth
of
resources
that
you
have
.
You've
done
such
a
beautiful
job
of
talking
into
that
space
that
we
often
can
miss
,
and
I
didn't
think
of
those
things
when
I
first
started
podcasting
.
I
was
like
what
?
Speaker 1
28:04
And
to
be
honest
,
I
I
had
a
list
of
five
things
.
We
had
the
list
of
five
podcast
episodes
that
we
could
do
,
and
beyond
that
we
didn't
know
what
we
were
going
to
do
,
and
so
just
realizing
further
on
down
the
line
how
much
there
is
to
the
endometriosis
world
really
expands
that
horizon
.
You've
done
a
great
job
of
speaking
to
every
community
within
the
community
,
which
I
think
is
a
challenge
to
do
.
It's
been
a
challenge
but
Kimmether
also
has
that
as
well
because
you
have
a
beautiful
viewpoint
on
so
many
things
.
You're
the
practitioner
,
you're
part
of
the
Black
community
,
indo
Black
and
you've
done
all
of
that
advocacy
work
.
But
what
are
some
things
that
you
have
been
really
challenging
?
Trying
to
combine
all
of
your
efforts
with
the
podcast
and
educating
everyone
around
you
.
Speaker 3
29:05
At
least
with
the
podcast
,
it's
honestly
been
great
.
Speaker 3
29:10
There
hasn't
been
a
lot
of
challenges
,
but
the
main
ones
have
been
both
the
transparency
and
being
a
clinician
who
was
dealing
with
these
chronic
illnesses
,
as
well
as
the
transparency
of
my
marriage
being
out
there
to
the
public
and
it's
a
price
that
we
are
obviously
ever
willing
to
pay
because
we
think
that's
what's
needed
in
this
space
is
that
transparency
of
a
lot
of
the
struggles
with
navigating
diseases
like
endometriosis
is
the
fact
that
our
circles
and
families
aren't
really
talking
about
these
things
and
these
challenges
and
honestly
that's
the
case
with
relationships
often
is
that
people
kind
of
keep
their
struggles
to
themselves
and
don't
welcome
people
into
that
or
even
reveal
those
struggles
,
and
then
they
lose
the
opportunity
of
one
being
able
to
bring
light
to
the
issue
and
receive
support
,
perhaps
from
someone
,
but
also
it
eliminates
the
chance
of
someone
else
being
able
to
be
seen
because
you
revealed
those
vulnerable
areas
.
Speaker 3
30:28
So
when
it
comes
to
our
marriage
,
even
though
we
love
doing
it
and
we
don't
have
a
problem
with
it
,
there
is
some
challenge
with
it
that
we
have
to
just
be
okay
with
.
So
,
for
example
,
we
talk
about
painful
sex
and
intimacy
challenges
and
just
some
of
the
things
that
are
associated
with
anyone
who
is
dealing
with
chronic
pelvic
pain
,
and
we
really
have
to
have
that
conversation
of
just
how
comfortable
are
we
are
,
how
far
are
we
willing
to
go
with
that
,
and
we
really
were
just
like
we're
going
to
just
put
it
all
out
on
the
table
because
we
,
because
we
realized
that
a
big
issue
is
that
people
aren't
talking
about
it
.
Speaker 3
31:09
So
you
know
,
I
think
we
have
gotten
over
the
biggest
hump
of
that
particular
challenge
,
but
it's
something
that
Brandon
and
I
stay
in
really
open
communication
about
to
those
so
that
we
are
respecting
each
other's
preferences
and
and
are
keeping
each
other
safe
in
that
process
.
Navigating Transparency and Vulnerability in Healthcare
Speaker 3
31:27
And
then
I
am
definitely
learning
a
lot
about
how
to
do
this
while
also
working
as
a
healthcare
provider
.
I
think
it's
a
wonderful
thing
when
I
see
a
clinician
who
is
open
about
their
health
care
challenges
.
It
just
helps
break
down
this
wall
between
patient
and
provider
,
where
the
provider
is
often
put
on
a
pedestal
as
the
authority
,
authoritative
individual
who
tells
you
everything
you're
doing
wrong
and
tells
you
how
you're
supposed
to
do
it
right
.
So
I
do
this
with
my
own
patients
.
Speaker 3
32:05
So
I
do
the
same
with
the
podcast
is
that
I
really
tries
to
try
to
expose
the
humanity
within
healthcare
providers
and
show
that
we
struggle
with
these
health
care
issues
just
like
many
people
do
.
Speaker 3
32:19
But
then
I
also
keep
always
try
to
keep
in
mind
that
many
of
us
have
been
harmed
by
clinicians
.
Speaker 3
32:25
So
you
know
that
that's
a
challenge
that
I'm
honored
to
really
navigate
very
mindfully
so
that
I
can
even
hopefully
help
people
heal
in
that
area
.
To
hear
from
a
healthcare
provider
that
their
voice
is
important
,
that
their
pain
is
is
valid
,
and
that
I
am
not
speaking
from
some
place
of
authority
and
instead
I'm
just
meeting
people
right
where
they
are
because
I'm
there
to
,
I
think
it
can
actually
be
a
really
positive
thing
.
So
it
makes
it
totally
worth
it
to
be
transparent
.
But
it
just
means
I
have
to
be
really
mindful
about
what
I
say
and
you
know
and
what
kind
of
healthcare
information
that
I
share
,
and
also
just
understanding
that
this
level
of
transparency
is
not
typical
clinicians
,
so
it's
not
something
that
clinicians
are
very
comfortable
with
.
I
learned
that
I
that
I
have
this
,
this
platform
,
and
and
that's
okay
,
because
even
that
opens
conversations
of
why
isn't
it
okay
to
show
that
that
I
deal
with
chronic
illness
as
well
,
because
it's
been
nothing
but
positive
with
my
interactions
with
my
own
patients
.
Speaker 3
33:36
So
good
,
it's
a
challenge
,
but
it's
a
good
challenge
.
Speaker 1
33:39
Yeah
,
I
feel
like
when
you
were
talking
about
how
much
you
want
to
share
,
it
was
funny
because
when
Ellie
at
first
came
on
the
podcast
,
him
and
Dane
were
talking
about
some
of
the
intimacy
things
and
afterwards
he's
like
your
mom's
going
to
listen
to
that
and
I
was
like
,
yeah
,
and
that
was
hard
.
He
was
like
I
didn't
think
about
that
,
it's
fine
,
it's
fine
,
you
know
,
like
it
,
I
feel
like
you
have
to
.
There
is
a
certain
level
of
vulnerability
that
you
have
to
be
willing
to
have
when
you're
doing
a
podcast
,
and
there's
for
me
there's
not
a
whole
lot
,
I
won't
talk
about
this
because
I
think
when
we
talk
about
it
being
a
whole
body
and
a
whole
life
issue
,
you
have
to
be
able
to
open
yourself
up
more
,
to
speak
into
those
spaces
,
and
so
For
us
,
it
was
very
much
that
way
of
where
are
my
boundaries
?
What
am
I
willing
to
talk
about
?
What
am
I
not
willing
to
talk
about
?
But
then
again
,
I
think
,
amy
,
like
you
were
talking
about
,
it
was
I
need
to
be
able
to
include
everyone
,
which
I
wasn't
necessarily
aware
of
when
we
started
this
,
and
it
wasn't
for
a
lack
,
but
wasn't
for
wanting
to
.
It
was
just
for
a
lack
of
knowledge
and
I
think
that's
something
that
doing
this
podcast
has
really
opened
my
eyes
to
is
just
how
to
be
able
to
talk
about
it
.
Speaker 1
34:56
So
sometimes
exclusive
we
can
be
in
our
mindsets
and
in
our
thoughts
and
what
we
talk
about
,
instead
of
inclusive
,
because
that
is
a
tricky
balance
sometimes
of
like
,
yes
,
this
is
what
I
know
and
this
is
what
I
can
speak
to
,
but
it
doesn't
include
everyone
.
That's
something
that
I've
really
tried
to
glean
from
other
people
and
other
podcasts
and
what
I've
learned
in
the
research
that
I
have
done
,
which
is
mostly
due
to
the
people
in
the
community
.
I've
really
had
to
be
aware
of
the
people
who
want
to
come
on
the
podcast
and
speak
.
That's
been
a
challenge
for
me
of
like
I
want
to
make
sure
what
they're
saying
is
going
to
be
beneficial
to
the
listeners
and
not
harmful
,
and
I
think
that
that
has
been
a
challenge
Way
more
challenging
than
I
had
anticipated
,
because
I
don't
think
we
anticipated
even
doing
as
many
interviews
as
we
have
.
It's
just
kind
of
taken
that
direction
,
and
so
I've
had
to
be
more
cognizant
of
who's
coming
on
the
podcast
,
because
I
don't
want
the
listeners
to
be
harmed
in
any
way
because
it
could
add
to
their
trauma
that
they've
already
experienced
.
Speaker 1
36:06
And
I
don't
know
,
have
you
all
experienced
that
kind
of
tug
and
pull
of
?
We
want
good
information
,
but
how
do
we
get
that
information
?
How
do
we
get
this
good
information
?
How
do
we
vet
people
?
How
has
that
been
for
you
,
amy
,
since
you've
been
doing
this
the
longest
?
But
how
have
how's
that
been
for
you
when
you
shifted
from
doing
it
as
a
two
person
platform
to
now
interviewing
more
people
?
Speaker 4
36:29
Yeah
,
I
think
it's
really
important
that
I
guess
that
you
have
on
.
That's
something
that
I've
certainly
been
very
careful
about
Screening and Learning in Advocacy
Speaker 4
36:36
.
I
think
really
,
first
of
all
,
a
lot
.
I
think
there's
a
lot
of
people
who
write
you
and
they
say
they'd
like
to
come
on
your
podcast
.
I
don't
think
I've
ever
let
anyone
on
who's
written
to
me
,
not
because
I'm
against
that
or
anything
,
but
because
of
what
you
said
,
like
I
really
need
to
know
the
person
you
know
and
I
think
,
most
of
the
people
I
pretty
much
everyone
I've
invited
on
or
people
that
I've
been
following
for
a
long
time
,
people
that
I've
personally
interacted
with
.
Speaker 4
37:02
Some
of
these
are
even
people
I
would
consider
my
,
my
friends
and
I
think
,
when
you
have
been
in
this
space
for
five
years
,
like
I
have
,
I
,
you
know
when
I'm
like
,
oh
,
pelvic
floor
therapy
,
I
know
someone
,
oh
,
interstitial
cystitis
,
I
know
someone
.
Speaker 4
37:15
It's
like
now
.
I
know
people
who
I
consider
very
well
versed
,
very
well
spoken
,
who
I
know
are
going
to
be
inclusive
,
who
I
know
are
going
to
,
you
know
,
be
aware
,
more
aware
of
their
unconscious
biases
.
But
you
know
,
I'll
tell
you
,
I'm
having
a
kind
of
a
hard
time
with
that
in
the
Spanish
podcast
because
,
again
,
the
quality
of
the
guest
is
so
important
.
But
most
of
the
people
that
I
follow
are
in
English
.
I
haven't
been
very
deep
into
the
you
know
community
,
the
end
of
community
of
Spanish
speakers
,
so
there
were
some
people
who
write
off
the
bad
.
I
was
like
,
oh
,
I
know
you're
going
to
be
able
to
talk
about
pain
,
I
know
you're
going
to
be
able
to
talk
about
public
floor
,
but
there's
a
lot
of
people
that
I'm
like
I
really
need
someone
for
mental
health
or
you
know
this
other
topic
and
I
don't
know
where
to
find
a
good
quality
guest
.
Speaker 4
38:03
So
I've
been
reaching
out
to
a
lot
of
the
people
I
trust
,
asking
them
do
you
know
a
good
guest
for
this
topic
?
Luckily
I've
had
,
you
know
,
a
lot
of
people
really
want
to
collaborate
,
not
incoming
on
the
show
,
but
in
helping
me
find
someone
right
.
So
I
put
out
some
feelers
to
some
of
my
Spanish
speaking
endo
friends
and
was
like
,
hey
,
I
really
want
to
have
a
registered
dietician
on
.
I
don't
know
anyone
.
Do
you
know
someone
?
Speaker 4
38:26
And
typically
they
can
,
you
know
,
suggest
someone
to
me
and
then
I
can
go
take
an
hour
to
look
at
their
website
,
look
at
their
,
you
know
,
platform
or
Twitter
,
whatever
you
know
,
whatever
feeds
that
they
have
.
But
I
agree
,
I
also
think
really
looking
into
the
guest
who
you're
gonna
come
on
see
what
can
they
talk
about
.
I
spend
a
lot
of
time
before
I
have
a
guest
on
prepping
for
the
interview
,
sometimes
an
hour
or
two
hours
,
three
hours
,
because
I
really
go
into
all
their
different
social
media
.
I'm
like
this
person
is
really
good
at
talking
about
this
.
I'm
gonna
ask
these
questions
and
it's
like
really
trying
to
find
the
guest
who
can
speak
and
then
finding
the
questions
that
can
pull
the
info
that
you
want
out
of
the
guests
.
Speaker 4
39:09
So
I
think
that
it's
really
an
art
,
but
I
think
it
is
something
that
we
get
better
at
over
time
.
Speaker 1
39:15
I
would
agree
.
I
would
agree
with
that
a
lot
.
You
do
get
better
at
it
and
I
still
have
so
much
to
learn
and
that's
why
I
think
the
value
that
you
bring
,
amy
,
is
I
have
learned
a
lot
from
you
and
I
love
that
you
are
so
supportive
,
even
for
me
.
This
is
why
I'm
like
Amy
you
have
to
be
here
.
You're
such
a
great
support
system
for
me
because
you've
learned
a
lot
and
you're
willing
to
share
what
you've
learned
,
and
I
think
that
that
has
been
so
helpful
for
me
in
this
last
year
.
But
I
know
,
kathleen
,
for
you
you've
been
an
advocacy
for
a
long
time
,
so
I'm
sure
you
know
a
lot
of
these
people
.
Is
that
a
challenge
still
for
you
to
think
of
?
Okay
,
do
I
want
to
talk
to
this
person
?
Is
this
someone
I
know
?
Some
backstory
here
.
Maybe
I
don't
want
to
talk
to
this
person
.
Has
that
been
something
that
you
struggled
with
in
starting
your
podcast
?
Speaker 2
40:04
Yeah
,
that
is
a
challenge
and
unfortunately
,
I
think
,
having
the
history
of
20
odd
years
,
you
started
coming
in
with
inherent
bias
,
don't
you
?
And
we
all
fall
victim
,
I
think
,
to
listen
to
other
people's
opinions
as
well
,
you
know
.
So
I
think
,
oh
,
that
person
,
I
don't
like
them
because
they
said
this
,
or
that
person
may
advocate
for
something
else
,
but
I
think
it's
like
Amy
has
said
there
,
that
you
can
always
find
a
specialist
topic
or
a
specialist
question
,
or
you
can
guide
the
interviewer
around
to
something
that
they're
very
good
at
.
And
certainly
why
I
may
have
biases
against
certain
topics
or
certain
individuals
or
whatever
,
I
would
like
to
think
that
I
should
be
able
to
leave
that
behind
,
because
they
will
always
have
something
to
bring
to
the
table
.
Speaker 2
40:48
I
think
,
yeah
,
it
can
be
hard
to
screen
people
out
and
I
suppose
,
knowing
that
my
preference
is
somebody
who's
lived
experience
,
I
put
huge
weight
on
the
fact
that
somebody
has
gone
through
maybe
a
chronic
illness
.
You
know
,
as
Kimmy
Thurstead
,
she's
working
as
a
healthcare
professional
.
She
brings
that
into
her
day
to
day
as
well
,
and
that's
very
,
very
important
because
for
me
,
I
think
that
gives
them
a
compassion
and
an
empathy
that
starts
us
off
on
a
good
foot
,
whereas
maybe
somebody
who's
very
just
,
very
clinical
they've
come
in
,
they've
done
their
appointments
,
whatever
.
They
don't
necessarily
understand
the
community
.
That
can
be
learned
and
that's
certainly
something
we
can
chat
about
and
develop
.
But
my
preference
is
somebody
who's
given
that
proven
track
record
.
Speaker 2
41:31
But
in
saying
that
there
are
gems
out
there
,
there
are
people
that
I
have
invited
to
speak
at
an
event
a
number
of
years
back
who
have
taken
didn't
even
know
the
word
enemy
drill
since
when
I
phoned
them
up
they
were
like
oh
yeah
,
of
course
I
know
about
that
,
yeah
,
and
then
they're
like
frantically
googling
in
the
background
but
they
turned
out
to
be
,
you
know
,
some
of
the
best
advocates
that
we've
had
,
because
they've
taken
it
,
they've
looked
at
the
trauma
,
they've
looked
at
the
absolute
disgrace
that
enemy
drill
is
in
Ireland
and
worldwide
and
they've
done
something
about
it
.
And
you
know
,
there's
always
that
potential
of
that
gem
where
somebody
takes
the
information
and
runs
with
it
.
I've
even
seen
it
myself
with
some
of
the
advocates
here
in
Ireland
where
they've
started
off
with
horrendous
misinformation
and
you're
sort
of
going
,
oh
,
this
is
never
going
to
work
out
.
And
then
you
know
,
through
conversation
and
through
sort
of
you
know
development
as
well
,
people
do
,
they
learn
,
they
develop
,
they
expand
,
and
you
know
,
being
able
to
refer
them
to
good
resources
is
good
,
but
certainly
without
,
I
think
,
the
community
that
we
have
and
that
we've
grown
to
trust
,
it
would
be
a
lot
more
difficult
.
Speaker 2
42:41
And
I
think
you
know
,
as
Amy
has
said
,
it's
known
where
to
look
for
those
resources
.
If
I
don't
know
of
somebody
,
I
can
ask
somebody
who
does
know
.
And
I
think
that's
very
important
and
not
to
sort
of
think
that
you
know
,
we
may
know
everything
,
or
we
may
know
everything
about
everybody
.
You
know
,
no
matter
how
long
you're
doing
this
,
there's
always
something
for
me
to
learn
,
so
there's
always
somebody
else
for
me
to
learn
about
as
well
,
and
I
think
that's
important
.
I
think
,
recognizing
our
own
limitations
and
also
our
own
biases
as
well
too
.
I
think
,
yeah
,
I
think
that's
the
tricky
one
,
isn't
it
?
Speaker 1
43:13
It
is
,
it
is
really
tricky
,
but
I
do
think
that
you
made
a
fantastic
point
in
the
fact
that
we're
still
all
learning
.
You
can
be
doing
advocacy
work
for
years
upon
years
and
I
bet
you
anything
the
Nancy
Peterson's
,
Heather
Guadones
they're
constantly
learning
because
you
know
and
there's
a
lot
of
advocates
out
there
that
are
doing
a
lot
of
really
great
work
and
because
endometriosis
,
just
by
nature
of
the
disease
,
is
a
continued
educational
point
.
Right
,
we're
not
where
we
need
to
be
with
education
.
We
don't
have
the
research
that
we
need
to
have
to
really
understand
all
the
facets
of
it
.
We're
not
where
we
want
to
be
in
the
laws
and
in
the
care
of
endometriosis
,
and
so
part
of
doing
and
speaking
into
a
space
of
endometriosis
is
knowing
that
you
are
going
to
continue
learning
and
growing
in
your
knowledge
,
as
well
as
growing
and
learning
and
how
to
communicate
that
knowledge
to
other
people
.
Speaker 1
44:09
And
I
think
that's
been
a
really
tricky
thing
for
me
is
I'm
learning
with
a
lot
of
the
people
that
come
onto
the
podcast
.
I'm
learning
along
with
the
listeners
and
I
love
that
because
then
you're
getting
the
real
Rahlana
where
I'm
like
I
didn't
know
this
.
I
don't
want
people
to
feel
like
I
know
everything
,
I
don't
know
everything
,
I
don't
know
anything
.
I
am
very
,
very
green
in
a
lot
of
areas
and
there
is
an
element
of
being
okay
with
knowing
that
you
are
going
to
continue
learning
,
and
it
is
okay
to
learn
.
We
don't
all
know
everything
,
and
I
think
you
know
.
Kimmether
could
have
very
easily
come
into
this
and
been
like
I
know
everything
because
I'm
a
practitioner
,
and
she
is
,
and
she
has
.
You
have
not
done
that
,
Kimmether
.
You
have
not
ever
made
anyone
feel
that
way
,
which
kudos
to
you
,
because
you're
just
a
warm
person
in
general
,
but
I
.
Is
that
something
that
?
Speaker 3
45:13
would
be
a
serious
red
flag
.
Speaker 1
45:15
Yeah
,
really
would
,
but
you
do
.
You
have
kind
of
a
different
platform
because
you
are
interviewing
couples
or
people
who
have
experienced
in
navigating
this
chronic
illness
.
So
it's
a
little
bit
different
because
you
are
combining
both
the
information
but
also
the
emotional
standpoint
of
it
.
What
is
that
like
when
you
have
guests
on
your
podcast
?
What
is
the
challenge
there
with
that
,
and
what
are
some
things
that
you've
really
found
beneficial
?
Speaker 3
45:45
Well
,
so
,
because
we
are
trying
to
bring
in
professionals
as
well
as
couples
or
even
individuals
who
are
able
to
speak
on
their
relational
experiences
and
their
lived
experience
.
I'm
asking
them
to
also
have
a
significant
level
of
transparency
too
.
So
I
really
find
it
challenging
to
really
want
to
find
people
who
are
willing
to
be
that
transparent
and
then
also
have
perhaps
a
partner
who
,
equally
,
is
okay
with
that
transparency
.
But
I
really
do
also
adopt
a
lot
of
what
Kathleen
and
Amy
does
as
well
in
getting
to
know
the
people
first
ahead
of
time
,
planning
ahead
of
time
,
figuring
out
what
can
they
best
speak
about
,
what
are
the
topics
that
they
are
comfortable
speaking
on
from
whether
it's
a
component
of
their
lived
experience
or
a
certain
subject
matter
that
they
just
have
good
mastery
over
and
really
focusing
on
that
so
that
it
can
be
as
comfortable
of
a
conversation
for
the
guests
without
putting
them
on
a
spot
to
have
to
then
navigate
something
that
perhaps
they're
not
as
comfortable
with
,
because
those
are
going
to
be
the
times
that
perhaps
ignorance
or
misinformation
can
fall
into
those
gaps
.
So
really
try
to
craft
around
their
comfort
level
,
and
not
only
with
transparency
but
also
their
subject
matter
expertise
.
Speaker 3
47:22
Also
,
I
am
remarkably
critical
of
clinicians
.
It's
almost
shameful
.
I'm
almost
a
mean
guy
.
I'm
just
like
I
mean
,
and
it's
not
because
I
think
I'm
better
than
them
or
anything
like
that
.
It's
just
that
the
level
of
harm
from
clinicians
is
so
rampant
it's
what
I've
personally
experienced
,
and
it's
what
many
of
us
have
experienced
that
my
BS
media
is
just
very
sensitive
,
and
I
also
know
that
as
a
clinician
,
you
can
have
all
the
good
intentions
in
the
world
and
still
cause
significant
harm
.
Speaker 3
48:03
And
the
safety
of
our
audience
is
our
top
priority
and
I
am
willing
to
have
clinician
interviews
be
few
and
far
between
if
it's
to
ensure
that
I
can
maintain
that
safety
for
the
audience
,
because
I
can
agree
with
them
on
some
things
.
I
can
disagree
with
some
things
as
well
,
but
at
the
end
of
the
day
,
if
I
have
any
concern
that
this
may
cause
harm
,
I
literally
would
trash
the
whole
thing
and
say
thank
you
so
much
for
your
time
,
because
it
still
is
an
opportunity
for
me
to
learn
.
I
love
having
the
conversations
with
clinicians
and
learning
from
them
.
It
doesn't
always
mean
that
they
are
going
to
be
that
right
voice
to
speak
into
this
specific
niche
space
and
thankfully
I'm
slowly
but
surely
starting
to
encounter
the
clinicians
who
are
like
minded
in
that
area
and
also
the
more
outspoken
that
I
have
become
about
dealing
with
chronic
illness
as
a
clinician
,
the
more
clinicians
who
are
approaching
me
who
also
deal
with
chronic
illness
.
Speaker 3
49:21
And
we're
like
a
little
,
it's
like
a
little
club
,
and
I
do
want
to
empower
them
to
speak
from
that
space
and
that
perspective
and
in
those
situations
,
then
,
yes
,
I
absolutely
welcome
them
to
have
a
conversation
and
if
,
from
that
conversation
,
we
feel
like
,
wow
,
this
would
be
really
good
information
for
us
to
share
with
with
our
audience
.
Here's
how
I
think
it
would
be
beneficial
and
we're
in
agreement
,
then
we
can
have
them
on
on
the
show
.
So
you'll
see
that
there's
very
few
,
but
we
do
have
a
lot
.
We
have
several
and
now
planned
and
recorded
Navigating Advocacy and Protectiveness
Speaker 3
49:55
.
But
I'm
wondering
,
do
I
need
to
tone
it
down
a
bit
?
Am
I
a
little
too
,
too
?
Speaker 1
50:05
I
think
you're
being
protective
of
everyone
,
which
is
we
need
that
,
so
protective
yeah
.
Speaker 3
50:12
Yeah
,
yeah
,
and
I
know
we
all
are
.
This
is
advocates
and
people
who
just
know
the
gravity
of
the
love
of
harm
.
That
could
be
done
just
in
a
comment
that
a
provider
says
that
it's
understandable
why
we're
overprotective
of
our
community
.
Speaker 1
50:28
Yeah
,
absolutely
.
Join
us
in
the
next
episode
as
we
each
reveal
what's
next
on
our
podcast
and
so
much
more
.
You
won't
want
to
miss
it
.