Looking at the Overlap of Endometriosis and PCOS With Dr. Behbehani and Dr. Liu

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Looking at the Overlap of Endometriosis and PCOS With Dr. Behbehani and Dr. Liu
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What happens when two of the most prevalent gynecological conditions intersect? Join us as Dr. Sadikah Behbehani and Dr. Lora Liu shed light on the complexities and common misconceptions surrounding endometriosis and PCOS. These esteemed experts guide us through the landscape of these conditions, emphasizing that although both affect a significant number of women, their co-occurrence is more about chance than any causal relationship. Through their insights, we aim to clarify the confusions that often arise between these conditions and highlight the importance of precise diagnosis for effective treatment.

Discover the intricate process of diagnosing PCOS using the Rotterdam criteria, an approach that demands patience, particularly in young women. Dr. Behbehani and Dr. Liu walk us through the genetic and lifestyle factors that may predispose certain ethnicities to PCOS and discuss strategic interventions like weight management to alleviate symptoms. The conversation takes an enlightening turn as we unravel the frequent misdiagnoses between PCOS and endometriosis—a misunderstanding that can lead to inappropriate treatments and prolonged patient distress.

Our discussion doesn’t stop at diagnosis; we venture into the realm of treatment options, from hormonal management to the evolution of surgical procedures like ovarian drilling. Dr. Liu shares her experiences with the emotional and transformative effects of excision surgery, painting a vivid picture of the impact proper treatment can have on patients’ lives. We also address systemic issues in women’s healthcare, such as the inadequacies in endometriosis treatment and the challenges faced by patients navigating infertility and IVF. Tune in for a thought-provoking conversation that empowers both patients and healthcare providers to pursue informed and compassionate care.

Dr. Sadikah BehbehaniThe Center for Endometriosis & Fertility
Dr. Lora Liu

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Website endobattery.com

Instagram: EndoBattery

Endometriosis and PCOS Intersection

Speaker 1
0:03

Welcome

to

EndoBattery
,

where

I

share

about

my

endometriosis

and

adenomyosis

story

and

continue

learning

along

the

way
.

This

podcast

is

not

a

substitute

for

professional

medical

advice

or

diagnosis
,

but

a

place

to

equip

you

with

information

and

a

sense

of

community
,

ensuring

you

never

have

to

face

this

journey

alone
.

Join

me

as

I

navigate

the

ups

and

downs

and

share

stories

of

strength
,

resilience

and

hope
.

While

navigating

the

world

of

endometriosis

and

adenomyosis
,

from

personal

experience

to

expert

insights
,

I'm

your

host
,

alana
,

and

this

is

EndoBattery

charging

our

lives

when

endometriosis

drains

us
.

Welcome

back

to

EndoBattery
.

Grab

your

cup

of

coffee

or

your

cup

of

tea

and

join

me

at

the

table
.

Speaker 1
0:45

Today

I'm

excited

to

welcome

two

of

the

most

accomplished

experts

in

endometriosis

care

to

the

table
.

First

we

have

Dr

Sadiqa

Bebehani
,

a

double

fellowship

trained

OBGYN
,

specializing

in

reproductive

endocrinology

and

infertility
,

as

well

as

minimally

invasive

gynecological

surgery
.

Dr

Bebehani

completed

a

second

fellowship

at

the

prestigious

Mayo

Clinic
,

where

she

mastered

complex

pelvic

surgery

using

both

laparoscopy

and

robotics
.

As

an

associate

professor

at

the

University

of

California

Riverside

School

of

Medicine
,

she

is

also

deeply

involved

in

medical

research

and

publications
.

With

her

rare

combination

of

training

in

surgery

and

infertility
,

dr

Bebiani

is

uniquely

equipped

to

treat

complex

gynecologic

conditions

such

as

endometriosis

and

fibroids

that

affect

fertility
.

Speaker 1
1:32

We're

also

joined

by

Dr

Laura

Liu
,

a

highly

respected

board-certified

excision

surgeon

specializing

in

deep

excision

of

endometriosis
.

Dr

Liu

is

known

for

her

expertise

in

minimally

invasive

techniques

and

her

dedication

to

providing

patients

with

evidence-based

care

that

brings

long-lasting

relief
.

With

her

background

in

both

gynecology

and

robotic

surgery
,

she

has

helped

countless

individuals

find

a

path

to

healing

after

enduring

years

of

chronic

pain
.

Together
,

both

Dr

Bebehani

and

Dr

Laura

Liu

bring

an

incredible

wealth

of

knowledge

to

today's

discussion
.

Please

help

me

in

welcoming

to

the

table

Dr

Bebe

Hani

and

Dr

Laura

Lou
.

Thank

you

both

for

joining

me

today
.

I

am

so

honored

that

you

took

the

time

out

of

your

busy

schedules

to

sit

down

with

me

and

talk

about

something

that

I

feel

like

is

very

important
,

which

is

the

intersection

of

PCOS

and

endometriosis
.

So

thank

you

both

for

joining

me

today
.

Thanks

for

having

us
,

Alana

we're

excited

to

be

here
.

Speaker 1
2:28

Thank

you
.

So
,

as

I

talked

about

before
,

there's

a

big

correlation

maybe

not

a

correlation
,

but

there

tends

to

be

a

lot

of

crossover

between

endometriosis

and

PCOS
.

Dr

Baiba-Henny
,

can

you

tell

us

a

little

bit

more

about

the

PCOS

piece

of

it

and

what

it

is
,

how

it

kind

of

responds

in

the

body
,

and

just

kind

of

give

us

that

overview
?

Speaker 2
2:53

Yes
,

I'm

glad

that

you

bring

this

up

because

this

is

a

question

we

get

asked

often

in

clinical

practice

is

how

are

endometriosis

and

PCOS

related
?

We

have

to

remember

that

endometriosis

occurs

in

about

15%

of

the

population
.

So
,

not

looking

at

pelvic

pain

or

fertility

patients
,

just

in

the

general

population
,

about

15%

of

women

will

have

endometriosis

and

5

to

15%

of

the

population

will

have

PCOS
.

So

they

may

not

necessarily

be

caused

by

the

same

cause
,

like

in

utero
,

or

the

same

manifestation

that

created

the

disease
.

But

because

they

are

both

prevalent

and

common
,

it

is

definitely

possible

for

women

to

have

both

endometriosis

and

PCOS
.

So

I

often

get

asked

is

the

endo

causing

PCOS
?

Is

the

PCOS

causing

endo
?

No
,

there

are

no

studies

to

show

that

one

causes

the

other
.

It's

just

because

they're

both

prevalent
.

It

is

absolutely

possible

for

both

diseases

to

co-occur

in

some

way
.

Diagnosing and Treating PCOS and Endometriosis

Speaker 2
3:51

Now
,

what

is

PCOS
?

You

asked

me

what

PCOS

was
.

Pcos
,

for

those

of

you

who

don't

know
,

stands

for

polycystic

ovarian

syndrome

and

it

is

often

misdiagnosed
.

So

a

large

proportion

of

women

will

come

see

me

and

say

oh

well
,

my

doctor

diagnosed

me

with

PCOS

5
,

10
,

15

years

ago
.

The

first

question

I

ask

them

is

how

was

the

diagnosis

established
?

And

most

of

the

time
,

they're

not

able

to

provide

the

evidence

or

the

results

that

led

to

the

diagnosis

of

PCOS
.

So

PCOS

is

often

misdiagnosed

and

sometimes

is

overdiagnosed
.

But

when

we

are

correctly

diagnosing

PCOS
,

we

diagnose

it

based

on

a

criteria

called

the

Rotterdam

criteria
.

So

that's

the

scientific

way

of

diagnosing

PCOS
.

What

the

Rotterdam

criteria

looks

at

is

to

see

if

women

have

irregular

periods

or

no

periods
,

so

that's

one

of

the

criteria
.

Have

irregular

periods

or

no

periods
?

So

that's

one

of

the

criteria
.

Speaker 2
4:49

Number

two

is

elevated

male

type

hormones

called

androgens

testosterone
,

dhea
,

17-hydroxyprogesterone
.

Those

fall

in

the

category

of

androgens
,

or

clinical

findings

of

elevated

androgens
,

like

having

increased

facial

hair
,

acne
,

sometimes

male

pattern

baldness
.

Those

are

all

called

clinical

findings

of

elevated

androgens

or

elevated

male

type

hormones
.

And

then

number

three

is

the

appearance

of

polycystic

ovaries

on

ultrasound
.

So

you

need

two

out

of

those

three

things

to

be

diagnosed

with

PCOS
,

and

the

reason

why

this

is

important

is

because

many

women

will

have

an

ultrasound

to

show

multiple

follicles

or

cysts

on

their

ovaries

and

be

automatically

told

that

they

have

PCOS
.

Speaker 2
5:29

You

cannot

diagnose

PCOS

based

on

just

one

of

the

three

things
.

You

cannot

just

have

polycystic

appearing

ovaries

and

have

PCOS
.

You

need

to

have

polycystic

appearing

ovaries
,

plus

one

of

the

other

two

things

on

the

criteria
,

which

are

either

irregular

periods

or

absent

periods
,

or

clinical

or

lab

findings

of

elevated

androgens
.

So

you

need

two

out

of

three

to

diagnose

PCOS
.

And

then

you

can't

be

really

young

and

diagnose

PCOS
.

Speaker 2
5:55

You

need

to

wait

a

certain

number

of

years

after

you

start

your

period
.

So

you

can't

have

a

15-year-old

who

started

her

two

years

ago

see

a

GYN

and

be

told

she

has

PCOS
.

She's

too

young

to

be

diagnosed

with

PCOS
.

You

need

at

least

six

to

eight

years

of

regular

menstrual

cycle
.

So

from

the

start

of

the

first

period

we

wait

six

to

eight

years

before

you

re-evaluate

the

situation

to

see

if

they

have

PCOS

or

not
,

because

it

takes

this

long

for

the

brain

to

stimulate

the

ovaries

to

produce

hormones

on

a

regular

basis
.

So

it's

very

common

for

girls

in

the

first

six

to

eight

years

of

starting

a

period

to

have

irregular

periods
,

elevated

androgens

and

polycystic

appearing

ovaries

on

ultrasound
.

But

they

will

not

have

PCOS

if

you

just

give

them

time

to

regulate

their

own

hormones
.

So

that's

another

important

thing

to

remember

is

you

need

to

give

your

body

time

to

adjust

to

having

periods

before

you're

able

to

diagnose

PCOS
.

Speaker 1
6:53

Do

they

know

what

causes

PCOS
?

Is

it

just

the

hormonal

imbalance

of

it
,

or

are

people

predisposed

to

having

PCOS

because

of

a

genetic

component
?

Speaker 2
7:03

Absolutely
.

That's

a

great

question
.

So

we

know

that

it

tends

to

run

in

certain

ethnicities
.

So

you

know

I

said

the

prevalence

is

about

5

to

15

percent
,

depending

on

where

we're

geographically

located
.

In

the

US

it's

closer

to

5
.

But

if

we

look

at

certain

populations

and

ethnicities
,

like

Mediterranean

people

or

people

of

Southeast

Asian

descent
,

those

populations

are

more

likely

to

have

PCOS
.

Speaker 2
7:27

It

definitely

has

a

genetic

predisposition

and

also

a

lifestyle

predisposition
.

So

women

who

are

obese

or

pre-diabetic

are

more

likely

to

have

PCOS
.

So

pre-diabetes

is

a

common

finding

in

PCOS

patients
.

It

could

be

the

insulin

resistance

that

has

led

to

the

PCOS

and

has

led

to

the

prediabetes
.

But

the

cause

of

PCOS

is

not

clearly

identifiable
,

just

like

with

endometriosis
.

We

don't

know

exactly

why

some

women

have

PCOS

and

others

don't
.

But

there's

definitely

a

genetic

component

and

a

lifestyle

component
.

So

women

who

are

lean

are

less

likely

to

have

PCOS
.

They

actually

have

a

different

subtype
.

We

call

it

lean

PCOS

as

opposed

to

the

regular

PCOS
,

because

PCOS

tends

to

occur

in

overweight

women
.

And

that's

another

thing

is

I

often

tell

my

patients

is

if

you

lose

10%

of

your

body

weight
,

there's

a

very

good

chance

that

you

will

establish

regular

cycles

and

then

you

will

not

fit

the

diagnostic

criteria

for

PCOS
.

So

we

cannot

say

you

have

PCOS
.

So

just

losing

weight

may

be

enough

to

help

regulate

hormones

and

establish

regular

cycles
.

Speaker 1
8:33

Interesting
.

And

now

you

both

do

endometriosis

excision

surgery
.

But
,

Dr

Liu
,

you

primarily

only

do

excision

surgery

for

endometriosis
.

Can

you

explain

to

those

who

maybe

are

trying

to

differentiate

between

PCOS

for

endometriosis
?

Can

you

explain

to

those

who

maybe

are

trying

to

differentiate

between

PCOS

and

endometriosis

what

endometriosis

is
,

as

well

as

how

you

go

about

diagnosing

and

treating

that
?

Speaker 3
8:57

Yeah
,

I

think

you

know
,

like

Sadiqa

mentioned
,

what

I

found

in

my

practice

is

a

lot

of

patients

are

diagnosed

or

they

come

to

me

and

they're

like

I

have

PCOS
,

I

have

really

painful

periods
,

I

have

heavy

periods
,

and

they

go

through

all

of

these

symptoms

saying

that

they
,

you

know
,

my

doctor

told

me

I

had

PCS

and

I

was

like

did

your

doctor

ever

mention

endometriosis
?

And

they're

like

no
,

I

you

know
,

I

kind

of

Googled

that

on

my

own

and

I

find

that

you

know

a

lot

of

patients

or

not

a

lot
,

but

there

are

patients

who

are

definitely

misdiagnosed

and

told

they

have

PCOS

when

actually

they

have

endometriosis
.

Managing PCOS and Endometriosis Symptoms

Speaker 3
9:30

So

one

of

the

biggest
,

or

what

I

believe
,

are

the

symptoms

of

endometriosis
.

So

one

of

the

biggest

differentiating

qualities

of

the

two

diseases

is

PCOS

really

shouldn't

cause

pain
.

It

shouldn't

cause

pain
,

it

shouldn't

cause

bowel

symptoms
,

it

shouldn't

cause

bladder

symptoms
.

It

can

cause

difficulties

getting

pregnant
,

it

can

cause

difficulties

with

ovulation
,

but

it

shouldn't

cause

pain

and

I

think

that's

something

that

can

differentiate

the

two
.

Speaker 3
9:57

For

patients

who

are

kind

of

wondering

do

I

have

PCOS
,

do

I

have

endometriosis
?

Do

I

have

both
?

I

think

if

you

have

a

lot

of

pain

and

your

quality

of

life

is

impaired

by

your

periods
.

That

sounds

more

like

endometriosis

to

me

than

PCOS
.

Now
,

if

you

have

difficulties

conceiving

and

you

don't

have

any

of

the

other

symptoms
,

with

pain

or

anything

like

that
,

that

could

be

quote

unquote

silent

endometriosis

or

unexplained

infertility

caused

by

endometriosis
,

or

it

could

also

be

from

PCS
.

But

I

think

if

you

have

pain
,

if

your

primary

symptom

is

pain

around

the

time

of

ovulation

or

periods
,

that's

going

to

be

endometriosis
.

Speaker 2
10:33

Right

and

we

know
,

Dr

Lu
,

may

I

add

something

please
?

So

actually
,

if

women

tell

me

that

they

have

pain

with

ovulation
,

it

is

unlikely

PCOS
,

because

PCOS

patients

don't

ovulate
.

Speaker 3
10:43

Pain

with

ovulation
,

it

is

unlikely

PCOS
,

because

PCOS

patients

don't

ovulate
.

They

don't

ovulate
,

so

they

don't

have

pain
.

Speaker 2
10:47

So

having

pain

is

an

unusual

symptom

that
,

like

Dr

Liu

said
,

is

more

likely

to

be

endometriosis

related
.

And

some

women

will

say

I

only

have

pain

once

every

three

or

four

months
.

Well
,

because

you're

only

ovulating

once

every

three

or

four

months

and

you

could

have

the

endo

that's

creating

the

pain

when

you're

ovulating
.

So

just

wanted

to

explain

that

point

a

little

further
,

since

Dr

Liu

is

absolutely

right

you

cannot

have

pain

with

PCOS

if

you're

not

ovulating
.

Speaker 1
11:12

Yeah
,

and

that's

interesting

to

think

about

because

I

think

a

lot

of

people

correlate

the

two

as

both

being

painful
.

So

the

fact

that

PCOS

really

in

theory

should

not

be

painful

is

a

good

indicator

that

it's

more

endometriosis

related
.

That's

fascinating

to

kind

of

put

that

correlation

together
.

The

other

thing

too

and

maybe

you

can

speak

on

this

either

one

of

you

is

the

fact

that

with

endometriosis
,

early

detection

and

diagnosis

is

key

for

proper

care

and

treatment
,

and

to

not

have

that

delay

in

diagnosis

is

key

to

being

able

to

preserve

fertility
,

other

symptoms

of

endometriosis
,

whether

that's

prolonged

pain

or

anything

like

that
.

What's

your

experience

with

providers

diagnosing

it

with

PCOS

before

endometriosis
?

Is

that

common

at

an

earlier

age
,

or

they

don't

even

put

the

two

together

at

all
.

Speaker 3
12:02

I'll

let

Sadiqa

speak

a

little

bit

more

in

detail
.

But

I

think

a

lot

of

providers
,

when

patients

present

at

a

young

age
,

either

with

painful

periods

or

irregular

periods
,

they

automatically

get

a

ticket

to

birth

control

pills

automatically

and

if

that

doesn't

work

then

they

try

a

different

birth

control

pill

and

then

they

try

10

others

and

birth

control

pills

and

again

I'm

going

to

let

Dr

Beva-Hondi

speak

a

little

bit

more

about

this

for

PCOS
.

But

birth

control

pills
,

it's

hormonal

suppression
.

It

prevents

ovulation
.

For

the

most

part
,

most

of

them

prevent

ovulation

If

a

young

patient

presents

with

irregular

periods
,

painful

periods

at

a

young

age
,

and
,

as

Dr

Babani

mentioned

too
,

you

really

can't

even

diagnose

PCOS

until

six

to

eight

years

after

their

first

menstrual

cycle
,

after

they

regulate

their

own

hormones
.

You

know
,

I

think

the

birth

control

pills

people

think

is

just

a

silver

magic

bullet

for

everything
.

Pcos
,

endometriosis
,

doesn't

matter
,

we're

going

to

treat

you

anyway

the

same

because

it

just

doesn't

matter
.

Speaker 2
13:02

Just

go

on

the

birth

control

pills
,

pill

versus

30
,

or

change

the

progesterone

from

Northendron

to

Drosperinone
,

the

results

will

likely

be

very

similar
.

We're

just

wasting

our

patients'

time

where

we

should

really

be

digging

into

the

root

cause

of

the

problem

so

we

know

how

to

fix

it
.

I

have

nothing

against

birth

control

pills
.

They

actually

play

an

excellent

role

in

the

management

of

PCOS

in

women

who

are

not

trying

to

get

pregnant
,

because

you

mentioned

early

detection

Early

detection

of

PCOS

is

actually

important

to

reduce

their

lifetime

risk

of

developing

uterine

cancer
.

So

women

who

have

undiagnosed

or

untreated

PCOS

for

many
,

many

years
,

they're

not

ovulating
,

they're

not

producing

their

own

progesterone
,

they

keep

producing

estrogen

only
,

and

that

estrogen

is

actually

stimulating

the

lining

of

the

uterus

to

produce

precancerous

cells
.

So

we

don't

want

that
.

We

want

to

give

our

patients

progesterone
,

either

through

progesterone

only

pills

or

through

the

birth

control

pill
,

to

reduce

that

risk
.

But

when

we're

talking

about

endometriosis

and

pelvic

pain
,

the

birth

control

pill

is

not

going

to

make

the

endo

go

away
,

just

like

it's

not

going

to

make

the

PCOS

go

away
.

Speaker 2
14:16

I

always

tell

my

patients

we

treat

the

symptoms

of

PCOS

and

we

don't

really

treat

the

disease
,

because

the

disease

may

go

away

once

we

remove

certain

lifestyle

factors
,

like

I

said
,

obesity
.

Once

it

resolves
,

or

insulin

resistance
.

Once

it

gets

treated
,

the

PCOS

may

go

away
.

But

we

treat

the

symptoms

while

they're

there
.

So

if

the

woman

has

irregular

periods
,

we

have

to

make

them

regular

because
,

like

I

said
,

the

irregularity

can

put

them

at

risk

for

developing

uterine

cancer
.

If

the

woman

has

infertility
,

we

have

to

treat

that

and

help

them

get

pregnant
.

If

they

have

heavy

periods
,

we

treat

those

heavy

periods

and

if

they

have

pelvic

pain
,

then

we

have

to

investigate

and

see

why
.

Because

pelvic

pain

does

not

fit

into

the

diagnostic

criteria

or

the

common

symptoms

of

PCOS
.

Speaker 1
14:59

Right

For

endometriosis
.

Gold

standard

is

excision

surgery
.

How

do

you
,

other

than

lifestyle

changes
,

help

with

PCOS
?

Speaker 2
15:07

That's

a

good

question
.

So

if

they

have

infertility

and

we're

helping

them

get

pregnant
,

then

helping

them

ovulate

is

where

we

start
,

because

they

are

usually

anovulatory
.

With

PCOS

they're

not

ovulating
,

so

we

either

give

them

a

pill

to

help

them

ovulate

and

they

can

have

regular

intercourse

at

home
.

Try

that

for

three

months
.

If

they're

pregnant
,

great
,

we

don't

do

anything
.

Or

if

that

doesn't

work
,

we

can

add

procedures

in

the

office

something

simple

like

an

intrauterine

insemination
,

where

we

inject

the

sperm

directly

into

the

uterus

to

help

get

the

sperm

and

the

egg

to

meet

faster
.

Or

it

can

even

be

as

invasive

as

in

vitro

fertilization

or

IVF
.

So

we

treat

the

infertility

just

like

any

other

infertility
,

but

with

certain

precautions
,

knowing

that

their

cause

of

infertility

is

anovulation

and

PCOS
.

Speaker 2
15:53

And

the

good

thing

about

PCOS

when

we

do

decide

to

do

IVF

is

that

they're

the

best

responders
.

We

actually

worry

about

over-responding

with

PCOS

patients
.

So

it's

very
,

very

normal

to

get

20

and

30

and

40

eggs

with

PCOS

patients
.

So

it's

not

an

egg

quantity

issue
,

it's

not

even

always

a

quality

issue
.

I

always

tell

them

it's

the

fact

that

the

egg

is

just

not

being

released

from

its

shell
.

So

you've

got

plenty

of

eggs

on

your

ovaries
,

those

cysts

that

we're

calling

polycystic

ovaries
.

Those

cysts

are

not

cysts
,

they're

eggs

in

their

early

stages

of

development
.

Speaker 2
16:25

So

having

PCOS

is

a

good

problem

to

have

when

we're

treating

fertility
,

because

it

means

that

we

have

a

great

reserve

of

eggs

to

choose

from
.

There

are

plenty

of

eggs

on

the

ovary
.

We

just

need

to

help

those

ovaries

release

the

eggs

on

a

regular

basis
.

So

that's

how

we

would

treat

the

infertility

aspect
.

If

someone

has

irregular

periods

and

they're

bothering

them

because

they're

heavy

so

when

they

finally

have

a

period

two

or

three

months

later

they're

clotty
,

they're

heavy
,

they're

soaking

through

their

clothes

then

we

want

to

prevent

that

from

happening

by

either

putting

them

on

birth

control

pills

or

having

them

take

a

week

off

progesterone

every

month

so

that

their

body

sheds

the

lining

every

month

rather

than

have

it

accumulate

towards

the

end
.

And

if

someone

has

insulin

resistance
,

which

we

typically

see

with

PCOS
,

I

put

them

on

metformin
.

So

we

need

to

get

their

sugars

regulated

and

that

metformin

will

actually

help

regulate

their

cycles
.

It'll

help

them

have

more

regular

periods

when

we

resolve

the

insulin

resistance

issue
.

Speaker 1
17:19

Fascinating
.

When

you

have

a

patient

come

in

and

they

have

both

PCOS

and

endometriosis
,

how

do

you

address

that

when

we're

faced

with

both

of

those

things
?

Speaker 2
17:29

So

I

always

tell

patients

I'm

treating

you

as

a

whole
,

I'm

treating

all

your

symptoms
.

What

makes

me

a

little

different

than

my

other

REI

colleagues

is

I'm

also

an

endometriosis

specialist
.

So

if

someone

and

I

always

tell

patients

it

depends

on

who

you

go

to

see

first
.

If

you

go

see

the

endometriosis

surgeon

first
,

they'll

definitely

treat

your

endo

and

they

will

not

really

care

about

your

irregular

periods

as

much

until

the

endo

is

all

gone
.

Then

they'll

be

like
,

okay
,

now

you

need

to

see

a

hormone

specialist
,

an

REI
,

who

can

help

treat

your

PCOS
.

If

you

go

see

a

fertility

doctor

first
,

all

they

want

to

do

is

treat

the

PCOS
,

because

that's

what

they

do

every

day
.

They'll

ignore

the

pain
.

They'll

ignore

the

endo
.

They'll

say

we'll

get

back

to

that

later
.

Now

let's

focus

on

why

your

periods

are

irregular
,

or

let's

help

you

ovulate

and

see

if

that

will

get

you

pregnant
.

So

it

depends

on

who

you

see

first
.

Speaker 2
18:14

But

I

have

the

advantage

of

being

trained

or

board

certified

in

infertility

and

also

being

mixed

trained

in

endometriosis
.

So

when

I

see

my

patients

my

approach

is

a

little

different
.

I

talk

to

them

and

see

what's

bothering

them

first
.

Is

the

pain

interfering

with

their

quality

of

life
?

If

so
,

then

we

definitely

need

to

get

that

first
.

First
,

are

they

bothered

by

their

irregular

periods

and

they

just

want

to

have

a

regular

cycle

where

they

can

track

ovulation

and

try

and

conceive

that

way
?

Speaker 2
18:41

Because
,

yes
,

they

may

have

endo
,

but

we

don't

know

if

the

endo

is

affecting

their

fertility
,

because

about

70%

of

women

with

endometriosis

can

get

pregnant

naturally
.

It's

only

30%

of

women

with

endo

that

have

infertility
.

But

if

you're

not

ovulating

at

all
,

we're

not

giving

your

buddy

a

chance

at

getting

pregnant

at

all
.

Your

chance

is

almost

zero
.

So

if

they

say

you

know
,

my

pain

is

not

bothering

me
,

maybe

I

have

endo
,

maybe

I

don't
,

I'm

not

interested

in

pursuing

that

just

yet
.

I

want

to

see

if

I

ovulate
,

will

I

get

pregnant

naturally

first
.

Then

I'll

try

that

first
.

But

usually

ultimately

it'll

involve

a

combination

of

both

treating

the

pelvic

pain
,

doing

surgery

for

the

endo
,

finding

out

if

it's

there

and

removing

it

if

we

find

it
,

and

then

also

getting

them

on

a

regimen

where

they're

going

to

ovulate

consistently

to

give

them

the

best

chance

of

getting

pregnant

naturally
.

Speaker 1
19:28

Do

you

notice

a

significant

difference

for

those

who

have

the

surgery

for

endometriosis

first
,

as

opposed

to

having

it

after

trying
,

like

IVF

or

other

methods
,

to

becoming

pregnant
?

Speaker 2
19:40

Absolutely
.

I

wouldn't

even

proceed

with

IVF

if

we

had

a

strong

suspicion

for

endo
,

because

the

surgery

may

save

them

the

cost

of

IVF
.

If

we

do

the

surgery

and

we

find

endo

and

we

treat

it
,

then

they

may

have

a

good

chance

of

getting

pregnant

naturally

without

IVF
.

And

if

they

don't

get

pregnant

and

we

still

do

IVF
,

their

chances

of

pregnancy

with

IVF

is

going

to

be

significantly

better

than

if

the

endo

was

still

there

and

we

hadn't

removed

it
.

And

I'm

going

to

add

one

more

thing

to

the

discussion
,

and

I'm

not

sure

if

Dr

Liu

does

that

or

not
,

but

when

I

have

my

PCOS

patients

go

in

for

surgery

for

endometriosis
,

I

actually

will

do

ovarian

drilling
,

since

I'm

there
,

you

know

Ovarian Drilling and Ovary Removal Debate

Speaker 2
20:19

might

as

well
.

Speaker 2
20:19

Ovarian

drilling

is

a

surgical

procedure

that

was

done

very

often

in

the

older

days

when

fertility

treatment

was

not

as

available
.

So

we

would

go

in

and

surgically

poke

holes

in

the

ovary
.

Those

holes

are

meant

to

release

that

thick

layer

where

the

androgens

are

being

produced
.

Remember

I

mentioned

the

elevated

male

type

androgens

that

we

see

with

PCOS

patients
.

So

those

are

produced

by

cells

called

the

theca

cells
.

The

theca

cells

are

around

the

cortex
,

the

superficial

layer

of

the

ovary
.

So

if

we

poke

multiple

holes

in

the

ovary
.

That's

called

ovarian

drilling

and

it

actually

helps

women

ovulate

and

overcome

that

problem

of

elevated

androgens
.

We

don't

nowadays

take

women

to

surgery

just

for

that
,

and

20

years

ago

people

used

to

do

that
.

But

nowadays
,

because

we

have

so

much

more

advancement

in

medicine
,

we

give

them

pills

rather

than
,

you

know
,

take

them

to

the

OR
.

But

if

I'm

there

doing

their

endo

excision

surgery

and

I

know

they

have

PCOS
,

I

will

add

ovarian

drilling

to

my

procedure
.

Speaker 3
21:14

But

Sadiqa
.

It

has

to

be

confirmed
.

Speaker 2
21:17

PCOS

Correct
.

So

if

I've

diagnosed

them

already

based

on

their

hormone

checks

the

Rotterdam

criteria

they

fit

the

diagnosis

of

PCOS
.

They

have

infertility
.

They're

trying

to

get

pregnant
.

We

also

suspect

endo
.

When

I

go

in

for

my

surgery

to

remove

and

treat

the

endo

since

I'm

there
,

it

literally

takes

10

seconds

to

poke

10

holes

on

each

ovary
.

There
.

It

literally

takes

10

seconds

to

poke

10

holes

on

each

ovary

and

there

are

no

significant

side

effects
.

Help
,

that's

the

data
.

It's

maybe

not

as

consistent

in

helping

get

pregnant
,

but

there

are

no

side

effects

or

harm
,

since

we're

there

already

doing

something

else
.

Speaker 1
21:51

Right

For

those

with

PCOS

that

maybe

they've

tried

all

these

different

methods
.

Is

there

ever

conversation

about

removing

the

ovaries

at

any

point
?

They're

past

fertility

stage

or

you

know

they

are

past

wanting

to

have

kids

but

they're

having

symptoms

of

PCOS
.

Maybe

that's

the

hair

growth

or

the

imbalance

of

hormones
,

or

whatever

the

case

may

be
.

Is

there

ever

that

conversation

that

you

have

with

your

patients

about

removing

your

ovaries

and

the

side

effects

of

that
?

Speaker 2
22:19

I'll

start

by

talking

about

PCOS

patients

and

Dr

Liu
,

you

can

also

talk

about

endo

patients

and

having

their

ovaries

removed
.

So

from

a

PCOS

perspective
,

I

don't

think

removing

the

ovaries

is

a

good

idea
,

because

the

disease

is

a

lot

more

multifactorial

than

just

the

ovaries

and

we

have

ways

of

managing

the

symptoms

of

PCOS

without

removing

the

ovary
.

Removing

the

ovary

will

not

solve

the

problem
.

It

may

actually

create

worse

problems

when

women

go

into

menopause
.

Because

if

they

go

into

menopause

and

they

will
,

if

we

remove

their

ovaries

before

the

natural

age

of

menopause
,

that

I

have

to

give

them

hormones

to

replace

the

ovary

that

we've

removed
.

Speaker 2
23:00

I

would

rather

keep

their

ovary

and

give

them

different

types

of

hormones

that

are

safer
,

that

will

resolve

the

symptoms

they're

experiencing

from

PCOS
,

without

it

being

hormone

replacement

therapy

for

menopause
.

So
,

for

example
,

if

they're

bothered

by

the

hair

growth
,

the

androgens
,

then

there

are

medications

that

we

can

prescribe
.

One

popular

one

is

called

fenestride
.

That

will

reduce

the

hair

growth
,

reduce

the

male

type

hormones
,

but

it

is

very

toxic

to

an

embryo

so

they

cannot

get

pregnant

while

they're

on

it
.

So

they

need

to

be

on

reliable

contraception
,

iud

or

birth

control

pills

or

they

can

do

more

dermatology

and

cosmetic

things

like

laser

hair

removal
.

Those

things

are

usually

safer

and

will

probably

resolve

the

problem

in

a

way

that's

more

convenient

for

the

patient

without

creating

new

symptoms

and

new

issues

like

removing

the

ovaries
.

Would

Dr

Liu
,

would

you

talk

about

how

you

would

approach

your

endo

patients

if

they've

had

PCOS

and

you're

concerned

about

removing

an

ovary
?

Speaker 3
24:00

Yeah
,

no
,

I

don't

like

to

remove

ovaries

in

premenopausal

women
,

I

mean

even

if

when

they

approach

the

age

of

menopause

around

the

age

of

50
,

maybe

we'll

have

that

conversation

and

it's

really

only

to

reduce

the

risk

of

developing

ovarian

cancer

in

the

future
.

I

generally

don't

like

to

remove

ovaries

healthy

ovaries

on

patients
,

even

if

they're

PCOS
.

I

would

prefer

to

control

the

symptoms

of

PCOS

with

medication
.

First

of

all
,

you

need

your

ovaries

for

bone

health
,

brain

health
,

heart

health
,

cardiovascular

health
,

all

of

that

stuff
.

And

it's

very

easy

to

remove

an

ovary

I

mean

it

takes

20

seconds
.

But

I

just

don't

think

it's

the

right

thing

to

do

for

patients

either

with

PCOS

or

for

patients

with

endometriosis
.

Speaker 3
24:46

The

only

time

that

I

will

ever

remove

an

ovary

generally

on

a

premenopausal

woman

is

if

the

other

ovary

looks

good

and

healthy
.

If

the

offending

ovary

has

had

multiple

endometriomas

or

they

have

lots

of

pain

on

that

side

of

the

head
,

it's

very

stuck

and

it's

not

it's
.

There's

really

no

healthy

ovarian

tissue

left

for

me

to

salvage

after

doing

a

deep

dissection

or

after

removing

an

ovarian

cyst
.

But

again
,

I

always

want

to

look

and

make

sure

that

other

ovary

is

healthy
,

just

because

that

other

ovary

will

take

over

the

function

of

the

missing

ovary
.

So

I

I

have

a

really

hard

time

when

I

have

patients

who

come

to

me

when

they're

young

and

they've

lost

one

or

both

ovaries

for

really

no

good

reason

at

all

that

I

can

figure

out
.

You

know

again
,

you

know

they've

had

surgery

by

other

physicians
.

Speaker 3
25:31

I

just

I

feel

so

sad

I

really

do

when

that

happens

and

I

really

try

to

preserve

ovaries

at

all

costs
,

all

the

while

speaking

with

the

patient
.

You

know
,

at

the

end

of

the

day
,

if

the

patient's

like

I've

had

problems

with

my

right

ovaries

ever

since

I

started

menstruating

and

I

am

48

or

I'm

45
,

my

left

side

is

beautiful
.

I've

never

had

an

issue

with

my

left

side
.

Please

take

out

my

right

ovary
.

It's

just
.

You

know
,

that's

a

conversation

that

we

will

definitely

have
.

It

has

to

be

a

conversation

between

myself

and

the

patient
,

but

I

will

present

all

the

data

and

at

the

end

of

the

day
,

you

know
,

I

will

make

a

recommendation

and

the

patient

can

decide

what

the

patient

wants

to

do

in

regards

to

that
.

But

I

have

a

hard

time

removing

ovaries
.

I

really

do
,

yeah
.

Speaker 1
26:14

As

someone

who's

had

both

ovaries

removed
,

the

outcome

of

that

is

much

harder

than

I

had

anticipated
.

Speaker 1
26:19

In

fact
,

prior

to

that
,

I

didn't

really

understand

what

the

long-term

effects

of

having

both

ovaries

removed

would

be
,

and

I

think

that

needs

to

be

a

conversation

that's

had

with

your

provider

and

a

good
,

evidence-based

approach

to

talking

to

the

patient

about

what

we'll

be

facing

after

we

do

that
,

if

we

choose

to

have

our

ovaries

removed
.

Speaker 1
26:40

Mind

you
,

I

had

mine

removed

because

mine

continued

to

have

endometriomas

that

were

massive

in

size

and

a

lot

of

adhering

was

happening

and

no
,

it

was

different

for

my

case
.

But

I

also

would

say

that

I

hear

patients

time

and

time

again

say

they

just

went

ahead

and

removed

my

ovaries

so

that

it

would

solve

my

hormonal

imbalance

of

endometriosis
,

which

is

what

I

hear
,

which

is

not
,

you

know
,

evidence-based
.

It's

not

providing

the

best

accurate

information

to

the

patient
,

and

I

think

that's

an

issue

that

we

have

in

women's

health

in

general

is

that

the

information

that

we

are

given

isn't

complete

information
.

It's

just

essentially

throwing

a

Band-Aid

at

the

issue

and

not

addressing

the

actual

situation

with

evidence

and

with

expertise

a

lot

of

times

which

I

think

both

of

you

have

amazing

expertise
,

Dr

Liu
,

for

you

because

you

do

primarily

endometriosis

excision
.

When

you

have

these

patients

that

come

in

with

both

PCOS

and

endometriosis

and

you

address

the

endometriosis

piece
,

what

is

your

role

after

that

in

addressing

the

PCOS

piece
?

Speaker 3
27:40

I

fortunately

work

with

really

good

REIs
.

I

have

a

list

of

them
,

we

text

each

other
,

we

refer

to

each

other

and

I

tell

my

patients

look
,

I

am

very

good

at

what

I

do
.

I

can

definitely

get

rid

of

your

endometriosis
,

but

you

definitely

want

somebody

other

than

me

to

manage

your

PCOS

just

because

I

am

not

up

to

date

on

all

that

stuff
.

I

have

not

been

trained

as

extensively

as

Dr

Bebehani

or

the

other

REI

counterparts

and

you

deserve

the

best

person

to

help

you

with

this

particular

issue
.

So

I

will

refer

out
.

I

wish

Dr

Bebehani

was

closer

and

I

would

send

all

my

patients

to

her

because

I

think

she's

amazing
.

But

look
,

I

know

my

limitations
.

I'm

very

good

at

what

I

do

and

I

also

know

when

there's

somebody

else

who

does

a

better

job

at

certain

things

than

I

do

a

lot

of

things

better

than

I

do

and

I

have

no

problems

with

sending

my

patient

to

the

person

who

can

help

them

the

most
,

because

they

deserve

the

best
.

Speaker 1
28:38

Dr

Abubahani
,

when

you

have

patients

come

in

that

have

seen

other

providers

before

you
,

are

there

challenges

with

that
?

Are

there

challenges

when

they've

been

provided

with

extensive

hormones

or

maybe

multiple

rounds

of

IVF

or

whatever

the

case

is
?

Is

there

more

challenges

associated

with

seeing

a

provider

that

isn't

as

well-rounded

trying

to

treat

the

PCOS

piece

and

the

endometriosis
,

absolutely

so

you

have

to

remember

I

practice

in

Southern

California
.

Speaker 2
29:08

There's

a

fertility

office

every

two

miles
.

There

are

tons

of

IVF

centers

here
,

and

so

patients

will

often

go

on

Google
,

find

the

fertility

clinic
,

see

excellent

reviews

about

the

doctors
,

go

see

them

and

then

don't

understand

why

they've

had

two

or

three

unsuccessful

IVFs
.

Then

they

go

see

the

doctor

next

door

and

then

it's

the

same

case

scenario

until

they

come

and

see

me

and

I

review

their

IVF

history

and

this

poor

patient

has

had

six

embryo

transfers
,

four

egg

retrievals
,

multiple

beautiful

blastocysts

created

that

have

just

not

resulted

in

a

pregnancy
.

And

it

breaks

my

heart

that

no

one

ever

mentioned

the

possibility

of

endometriosis

to

those

patients
,

because

no

one

even

asked

about

their

pelvic

pain
.

They've

all

been

dismissed
,

not

a

problem
.

Maybe

the

other

doctor

didn't

put

you

on

the

right

protocol
.

Let's

try

a

different

protocol
.

Speaker 2
29:52

Or

maybe

the

lab

didn't

create

good

embryos
.

Speaker 2
29:54

Their

ICSI

rates

are

not

as

good

as

our

ICSI

rates
.

Let

me

do

your

IVF

and

I'll

get

you

better

embryos

that

will

definitely

get

you

pregnant
,

and

so

it

just

it

saddens

me
.

I

really

get

invested

in

my

patient's

care

and

I

feel

for

them
,

and

it

just

bugs

me

that

no

one

had

the

courage

to

say
,

like

Dr

Lu

said
,

you

know

your

limits
,

you

know

what

you

can

do

and

what

you

cannot

do
.

So

you

should

want

what's

best

for

your

patients

and

if

you

see

that

the

patient

has

gone

through

this

many

IVF

cycles

that

are

unsuccessful
,

you

should

now

think

outside

the

box

and

say
,

okay
,

this

may

be

outside

of

my

jurisdiction
,

let

me

find

them

someone

that

can

explore

the

possibility

of

endometriosis
,

because

we're

all

smart

physicians
,

we've

all

went

to

medical

school

and

OBGYN

residency
.

We've

all

heard

of

endometriosis
.

Yes
,

it

may

not

be

their

specialty
,

but

there's

ample

data

now

to

show

that

endometriosis

is

a

huge

part

of

the

unexplained

infertility

category
.

And

if

we

fix

it
,

then

we've

identified

the

problem
,

we've

solved

the

problem

and

now

they

can

get

pregnant
.

Speaker 3
30:52

So

if

you're

not
,

and

I'm

also

sorry

to

say
,

though
,

dr

Bebehani
,

but

then

they

lose

the

business
,

and

I

know

that

sounds

terrible

to

say
.

Empowering Patients in Women's Healthcare

Speaker 3
31:07

You

know
.

You

said

it

breaks

your

heart

when

you

see

patients

like

that
.

It

boils

my

blood
.

When

I

see

patients

like

that
,

I

have

a

visceral

reaction
.

I

get

angry

because

these

poor

patients

now

they're

like

late

thirties
,

they've

gone

through

and

they've

had

a

known

endometrioma

for

this

entire

time

nine

IVF

cycles

later

and

they

still

can't

hydrostat

pinks
,

and

I'm

just

like

it

doesn't

break

my

heart

anymore
.

I'm

like

over

being

sad
.

I'm

actually

very

angry

and

that

is

why

I

think
,

um
,

like

you

said
,

you

know

I'm

in

New

York

city
.

There's

IVF

centers

on

every

corner

too
,

and

it's

just

it's

not

okay
,

for

sure
,

dr

lou
.

Speaker 2
31:43

But

you

know

why

I

don't

get

mad

or

upset

or

show

my

emotions

in

front

of

patients
,

because

it's

not

fair

to

them
.

They

did

their
,

they

did

their

research
.

They

know
.

Speaker 3
31:50

I

know

it's

not

it's

not

fair

to

them

at

all

but

I

am
,

I

am
,

I

know
,

not

mad

at

the

patient
.

Obviously

I

am

mad

on

behalf

of

the

patient
.

I

know

the

patient

did

nothing

wrong
.

They

trusted

physicians
.

They

trust

and

I'm

not

bashing
,

listen
,

I'm

not

bashing

anyone
.

Speaker 3
32:12

I

just

feel

like

there's

maybe

there's

a

lack

of

awareness
.

I

think

that's

a

huge

part
,

even

in

the

GYN

world
,

absolutely

in

the

GYN

world
,

I

mean
,

everyone's

known

about

endometriosis
,

but

it's

like

a

paragraph

in

medical

school
.

I

still

ask

my

medical

students

what

do

you

know

about

endometriosis
?

And

it's

like
,

oh
,

we

learned

a

little

bit
.

Like

you

retrograde

menstruate
,

and

it's

like

it

causes
,

and

it's

like

it's

something

having

to

do

with
,

like

I

don't

know
,

you

have

pain

and

you

have

to

miss

school
.

Like

they

have

no

idea
.

So

if

that's

what

they're

teaching

in

medical

school

and

then

in

residency
,

you

don't

get

a

lot

either
.

I

mean
,

I

was

fortunate

I

did
.

Speaker 3
32:48

But

I

think

that

the

majority

of

residencies

do

not

have

good

endometriosis

training
.

They

think

that
,

oh
,

let's

go

in

there
,

let's

burn

a

couple

of

things

that

look

like

black

dots
,

let's

stick

a

laparoscope

in

and

let's

take

a

look

around
.

No
,

everything

looks

fine
.

Five

minutes

later

they

go

out
.

They

tell

the

patient

you

don't

have

endo

because

they

don't

recognize

it
.

And

so
,

yeah
,

I'm

not

mad

at

the

patient
,

I'm

not

even

mad

at

the

healthcare

provider

because
,

honestly
,

they

may

not

even

know
,

they

may

not

even

know
,

they

may

just

think

it's

unexplained

infertility

and

let's

keep

on

going
.

But

I

am

mad

that

this

is

such

a

prevalent

common

disease

and

patients

are

suffering
,

and

it's

years

and

decades

of

pain

and

being

ignored
,

and

so

that's

that's

what

really

makes

me

upset
.

It's

it's

the

whole
,

it's

the

whole

system
.

Speaker 2
33:38

I

completely

agree

with

you

and

you

know

what

I

actually

try

and

educate

my

REI

colleagues
.

So

I've

gone

around
,

knocked

on

their

doors
,

talked

to

them

about

what

I

am

here

to

add

on

to

their

care
.

I'm

not

here

to

steal

their

patients

away
.

I'm

here

to

help

help

their

patients

achieve

their

goal

of

fertility
.

I'm

happy

to

do

their

surgery
,

send

them

back

to

you
,

but

they

will

not

refer

them

for

two

reasons
.

One

is

because
,

like

Dr

Liu

said
,

they're

worried

that

they're

going

to

come

see

me

and

then

not

go

back

to

them
.

And

number

two
,

they

don't

believe

that

endometriosis

is

anything

to

do
?

Speaker 3
34:05

They

don't

believe

it
.

Speaker 2
34:06

I've

gone

to

medical

conferences
.

I've

taught

lectures
.

I've

been

attacked

after

lectures
.

Your

data

is

weak
.

Your

data

doesn't

really

support

that

IVF

helps

improve
,

or

excision

of

surgery

helps

improve

IVF

outcomes
.

We're

not

going

to

change

our

clinical

practice
.

We're

still

going

to

keep

doing

10

and

11

and

12

IVF

cycles
.

Why
,

you

know

that's

what

bothers

me

is

I've

tried
,

dr

Lu
,

I've

gone

out

on
,

you

know
,

every

conference

I

talk

about

endometriosis

and

fertility
.

It's

one

of

my
,

you

know
,

most

cherished

talks

because

I

feel

like

I'm

definitely

one

of

the

best

people

to

talk

about

it

given

that

I'm

trained

in

both

aspects
.

Speaker 2
34:41

but

you

know
,

even

I

have

and

not

all

REIs

are

like

that
,

I

have

to

say

I

have

a

bunch

of

REIs

who

are

excellent

at

referring

their

patients

to

me

for

surgery
.

Yes
,

but

but

always

after

they've

tried

a

bunch

of

IVF

cycles

like

it's

right
.

Speaker 2
34:54

It's

never

a

first

line

on

their

treatment

but

after

trying

a

bunch
,

a

couple
,

or

if

the

patient

brings

it

up
,

then

they

will

admit

that

they're

not

the

best

people

to

talk

about

the

disease

and

send

them

over

to

see

me
.

But

the

majority

will

just
,

you

know
,

not

interested
.

No
.

Speaker 1
35:09

Yeah
.

At

what

point

do

we

stop

listening

fully

at

the

system

and

listen

to

the

patients
?

Because

this

is

where

I
,

as

a

patient
,

I

get

frustrated

because

patients

have

said

so

many

times

I'm

frustrated

with

women's

health
,

I'm

frustrated

with

the

fact

that

no

one

knows

what

I'm

going

through

and

I

see

10
,

12

providers

before

I

get

an

answer
.

I'm

frustrated

because

I

spent

all

these

thousands

of

dollars

trying

to

get

pregnant

and

yet

I

still

can't

get

pregnant

and

I'm

in

a

lot

of

pain

and

no

one

can

tell

me

why
.

Speaker 1
35:36

At

what

point

do

providers

start

listening

to

patients

and

their

experiences
?

Speaker 1
35:40

Because

if

you

ask

a

majority

of

patients

who

have

gone

through

excision

surgery

for

endometriosis
,

not

all

are

successful

with

fertility

but

and

not

all

are

successful

at

being
,

you

know
,

100%

pain

free
,

because

the

reality

is

that

the

is

the

disease

doesn't

often

leave

us

able

to

be

100%

pain

free

because

of

other

things

going

on
.

And

so

at

what

point

do

we

step

back

and

say

but

my

quality

of

life

has

been

significantly

increased

because

of

excision

surgery
,

and

if

patients

are

saying

this

has

been

extremely

helpful

for

me
,

can

we

as

a

community

just

listen

to

that
?

I

think

that

many

patients

are

feeling

unheard
,

invalidated
,

and

I

think

a

lot

of

that

is

because

of

that

system
.

But

when

will

the

patient

start

having

that

voice

in

the

educational

system
?

And

of

course
,

there

are

doctors

that

do

like

you
,

ladies
,

but

is

that

even

a

feasible

thing
?

Walking

into

fellowships

and

med

schools

as

a

patient

saying

this

really

increased

my

quality

of

life

or

this

increased

my

ability

to

have

kids

Is

that

even

heard

anymore
?

Or

is

it

just

backed

by

data
?

Speaker 2
36:46

For

us
,

dr

Lu

and

myself
,

we

definitely

hear

that

that's

what

we're

here

for

to

listen

to

our

patients

and

that's

why

Dr

Lu

said

I

give

them

the

evidence-based

material

on

removing

ovaries
,

I

give

them

my

clinical

recommendation
,

but

at

the

end

of

the

day

they're

the

boss
.

They

tell

me

what

they

want

and

if

someone

comes

in

and

says
,

well
,

I

really

want

a

hysterectomy
,

I

talk

to

them

about

the

pros

and

cons
,

but

if

that's

what

they

want

ultimately
,

you

know

my

job

as

their

physician

is

to

guide

them

and

then

also

respect

their

wishes
.

So

for

the

REIs

or

the

GYNs

that

are

dismissing

and

ignoring

patients'

pain
,

that's

not

okay
.

That's

what

we

are

treating

our

students

and

residents

and

fellows
.

To

do

is

listen

to

your

patient

and

if

your

patient

is

not

happy
,

find

out

why

and

what

you

can

do

to

help

them
,

even

if

it

is

not

within

the

realm

of

your

rotation
.

So

if

you're

in

an

ER

rotation

and

you

don't

know

what

to

do

to

help

this

patient

with

pelvic

pain
,

go

on

the

internet
,

look

it

up

on

UpToDate
,

see

what

it

could

be

and

if

you

find

something

that

you

think

may

help

them
,

then

you

go

back

there

and

you

give

them

recommendations

on

who

to

see

that

may

be

able

to

understand

their

problem
.

So

it's

not

okay

to

just

follow

data

blindly

without

listening

to

your

patient

and

see

how

they

feel

about

it
.

And

then

also
,

the

patients

are

very

smart

nowadays
.

You

ask

when

are

we

gonna

start

listening

to

our

patients
?

Speaker 2
37:58

I

love

that

social

media

has

empowered

women

to

find

the

resources

that

are

right

for

them
.

My

kids

always

make

fun

of

how

long

my

business

name

is

Center

for

Endometriosis

and

Fertility
,

but

I

tell

them

this

is

the

best

way

for

patients

to

find

me
,

because

when

they

Google

endometriosis

and

fertility
,

I

pop

up

and

then

they

can

read

the

resources

that

are

there

set

up

for

their

type

of

disease
.

You

don't

have

to

dig

through

textbooks

nowadays

or

the

yellow

pages

to

find

doctors
.

You

go

on

the

internet
,

you

search

things

and

social

media

pops

up
.

You've

got

Twitter

accounts
,

instagram

accounts
.

Dr

Lu

posts

excellent

surgical

videos
.

Patients

are

educated

now
.

They

watch

those

and

they're

like

this

is

the

type

of

surgery

I

want

for

myself
.

Or

they

read

patient

reviews
.

You

mentioned

that

not

all

women

will

get

pregnant

100%
.

Not

all

patients

will

get

rid

of

their

pain
,

but

when

you

read

other

women's

experiences
,

you

want

that

for

yourself
.

You're

like

this

is

what

I

want

for

me
.

So

this

is

where

you

end

up

going
,

yeah
.

Speaker 1
38:52

What

should

people

be

aware

of

for

both

the

PCOS

piece

but

also

the

endometriosis
,

when

they

are

seeking

out

new

providers
?

Because

this

is

a

very

hard

thing

for

a

patient

to

do

to

know

where

to

go

and

what

to

look

for

when

they

are

seeking

out

educated
,

well-rounded

providers
.

Maybe

they

don't

specialize

in

everything
,

but

they

understand

where

they

do

specialize

and

can

refer

out
.

I

think

is

a

huge

part

of

it
.

But

what

should

they

look

for
?

Oh
,

that's

a

good

question
.

Let's

start

with

endometriosis

care
,

because

that's

kind

of

your

ballgame
.

What

should

they

be

looking

for

for

an

endometriosis

doctor

or

surgeon
?

Speaker 3
39:27

I

think

one

of

the

biggest

things

is

well
,

first

of

all
,

low-hanging

fruit

Make

sure

that

the

surgeon

does

excision
,

not

ablation
,

which

excision

means

cutting

out

the

endometriosis

lesions
.

Ablation

means

burning

it
.

We

do

know

that

excision

is

the

gold

standard

and

that

is

what

provides

you

with

pathological

diagnosis
,

which

means

that's

how

you

cut

out

the

endometriosis
.

You

send

it

to

the

pathologist
.

They

look

at

it

under

microscope

and

they're

like

yes
,

this

is

endometriosis

and

that's

how

you

get

diagnosis

and

that's

also

how

you

get

treated
,

because

you

remove

the

lesion

or

the

disease

that

could

be

causing

the

symptoms
,

such

as

pain
,

the

bowel

symptoms
,

the

bladder

symptoms
,

the

infertility
.

That's

treatment

for

the

disease
.

So

I

think

that's

the

number

one

thing

is

make

sure

it's

excision
.

Second

of

all
,

you

know
,

I

think

it

would

be

good

for

patients

to

really

focus

on

surgeons

who

really

only

do

endometriosis

surgery
.

Dr

Bebe

Hane

is

specialized

because

she

does

both

and

she's

very

good

at

both
.

But

you

see

a

lot

of

these

endometriosis

treatment

centers

popping

up

all

over

the

country

because

it's

very

fashionable

these

days
.

Endometriosis

is

which

is

good
,

which

is

good
.

I'm

not

saying

it's

a

bad

thing
,

but

I

also

think

that

a

lot

of

their

surgeons

are
,

first

of

all
,

they're

fellowship

trained
,

which

is

excellent
,

which

means

that

they've

had

extra

years

of

training

in

surgery

after

residency
.

Speaker 3
40:53

But

they're

probably

not

just

doing

endometriosis

surgery
.

They're

probably

doing

a

lot

of

big

fibroids
.

They're

probably

doing

a

lot

of

large

uteruses
.

They're

doing

hysterectomies
.

They're

doing

a

lot

of

big

fibroids
.

They're

probably

doing

a

lot

of

large

uteruses
.

They're

doing

hysterectomies
.

They're

doing

a

lot

of

different

things
,

which

I

think
,

when

it

comes

to

endometriosis
,

it's

really

good

if

you

can

find

someone

who

does

it

all

day
,

every

day
,

and

that's

all

they

do
,

because

endometriosis

is

such

a

tricky

disease

and

it

can

grow

on

literally

any

organ

you

can

think

of
.

And

if

really

you're

only

doing

one

endometriosis

surgery

a

month

and

the

rest

of

your

surgeries

are

fibroids
,

you

may

not

be

equipped

when

you

get

into

the

OR

with

a

difficult

endometriosis

case

to

really

do

a

thorough

surgery

and

really

give

the

patient

the

best

outcomes

just

with

one

surgery
.

So

I

think

that's

another

thing

is

look

and

make

sure

that

they're

specialized
.

That

is

all

they

do
.

Speaker 2
41:49

Like

Dr

Liu

said
,

I

can

definitely

do

both

of

us
.

We

can

do

fibroids
,

we

can

do

hysterectomies
,

we

can

do

pelvic

inflammatory

disease
,

we

can

do

everything
.

But

the

reason

why

we

choose

to

do

only

endometriosis

because

the

more

you

do

of

it

the

better

you

get

at

it
,

because

it's

a

very

complex

disease

and

it

presents

in

so

many

different

ways
.

That's

one

thing
,

and

the

other

thing

is

there

are

other

surgeons

that

can

do

fibroids

or

PID

or

o't

have

to

see

the

low

volume

surgeons

or

the

surgeons

that

may

have

a

lower

understanding

of

the

disease
.

Speaker 1
42:17

Yeah
,

oh
,

that's

great

advice
.

Thank

you

both

so

much

for

taking

the

time

and

breaking

this

down
.

I

appreciate

it
.

Thank

you

for

your

wisdom
.

You're

welcome

here

anytime
,

so

thank

you
.

Speaker 2
42:39

Thank

you

so

much
.

We

appreciate

it
.

Thanks

for

having

us
.

Speaker 1
42:43

I

hope

this

episode

was

helpful

and

if

you

have

more

questions
,

go

ahead

and

email

info

at

endobatterycom

and

I'd

be

happy

to

reach

out

to

experts

to

help

answer

those

questions

and
,

until

next

time
,

continue

advocating

for

you

and

for

those

that

you

love
.

Thank

you
.

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