Hard Lessons, Hope, and Healing: Alanna’s Endometriosis Journey Revised

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Hard Lessons, Hope, and Healing: Alanna's Endometriosis Journey Revised
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Living with chronic illnesses like endometriosis and adenomyosis can feel like a constant battle against societal expectations, and Chelsea and Alanna, know this struggle all too well. We’ve discovered that managing our lives with these conditions often resembles trying to fit the contents of a 10-inch dinner plate onto a 6-inch one—an impossible task that only invites stress and anxiety. Join us as we share our personal journeys of setting boundaries and being realistic about what we can handle. From prioritizing staples like faith, family, and community to learning how to communicate our limitations effectively, we explore the delicate balance of maintaining our health and well-being amidst the pressure to always be productive.

Navigating the healthcare system can be daunting, especially when living with complex conditions like endometriosis. Chelsea and Alanna open up about their experiences with medical professionals who dismissed our concerns, and how finding the right doctor who truly listens can be life-changing. We discuss the importance of advocating for oneself and the systemic issues plaguing women’s health care. With the power of community support, we aim to empower others, encouraging self-love and growth through shared stories of grief, anger, and perseverance. Discover how embracing these challenges can be a catalyst for personal growth and change, and how serving others can offer profound healing on our journey together.

Support the show

Website endobattery.com

Instagram: EndoBattery

Managing Chronic Illness and Boundaries

Speaker 1
0:03

Welcome

to

EndoBattery
,

where

I

share

about

my

endometriosis

and

adenomyosis

story

and

continue

learning

along

the

way
.

This

podcast

is

not

a

substitute

for

professional

medical

advice

or

diagnosis
,

but

a

place

to

equip

you

with

information

and

a

sense

of

community
,

ensuring

you

never

have

to

face

this

journey

alone
.

Join

me

as

I

navigate

the

ups

and

downs

and

share

stories

of

strength
,

resilience

and

hope
.

While

navigating

the

world

of

endometriosis

and

adenomyosis
,

from

personal

experience

to

expert

insights
,

I'm

your

host
,

Alana
,

and

this

is

EndoBattery

charging

our

lives

when

endometriosis

drains

us
.

Speaker 2
0:41

Welcome

back

to

the

table

for

part

two

of

me

taking

over

endobattery
.

My

name

is

Chelsea

and

I'm

sitting

down

with

Alana

today

to

continue

learning

more

about

her

endometriosis

journey
.

This

is

where

we

left

off
.

Speaker 1
0:53

We

often

say

I

have

so

much

on

my

plate
,

I

can't

do

all

this
.

The

correlation

I

make

with

this

is

that

a

person

that

doesn't

have

a

chronic

illness

maybe

has

like

a

10-inch

dinner

plate
.

Right
,

you

go

to

a

buffet
,

you

get

your

10-inch

dinner

plate
,

you

fill

it

with

all

the

things

and

you

still

you're

able

to

enjoy

it
,

you're

able

to

fill

yourself

up

with

it
.

A

chronically

ill

person

really

only

has

a

6-inch

dinner

plate

and

if

you

try

to

shove

everything

from

a

10-inch

dinner

plate

onto

a

6-inch

dinner

plate
,

it's

going

to

overflow
,

yeah
,

and

it's

going

to

overflow
,

yeah
,

and

it's

going

to

get

contaminated

and

the

food's

going

to

touch
.

It's

going

to

touch
.

Speaker 1
1:29

And

you're

not

going

to

be

able

to
,

like
,

savor

what's

on

your

plate
.

You're

not

going

to

be

able

to

enjoy

it

in

its

purest

form
,

right
,

and

it's

not

going

to

be

nutritious

in

that

standpoint
,

because

it's

going

to

create

more

anxiety
.

It's

going

to
,

you

know
,

all

those

things

for

us

ADHD

or

autism

spectrum

people
,

the

more

we

try

to

pack

on
,

the

less

fulfilling

it

is
.

Yeah
,

and

so

the

thing

that

I've

learned

is

that

my

chronically

ill

plate

needs

to

be

managed
,

and

so

I

have

to

choose

what

I

want

to

put

on

my

plate
.

Yeah
,

and

is

this
?

Is

it
?

Am

I

just

sampling

it

just

to

try

it
,

or

is

this

something

that

I

feel

like

is

actually

going

to

be

nutritious

to

me
?

Is

it

going

to

fuel

me
?

Is

it

going

to

give

me

life
,

right
.

Speaker 1
2:12

And

then

the

other

part

of

that
,

too
,

is

like

we

talk

about

the

spoons

theory
,

which

is

really

how

this

kind

of

this

podcast

kind

of

started

with

its

name
.

If

you're

sampling

all

these

different

things

on

your

plate

using

a

new

spoon
,

you're

going

to

run

out

of

spoons

if

it's

too

full

and

you're

going

to

contaminate

it
.

Yep
,

right
,

and

so

I

just

feel

like

knowing

how

big

your

plate

is

and

what

you

can

put

on

it

before

it

runs

over

and

becomes

overwhelming

is

key
.

Yeah
,

and

I

think

that

we

try

to

live

in

a

space

where

we

get

the

10-inch

plate

but

we

only

have

capacity

for

a

6-inch
.

Speaker 2
2:48

Yeah
,

yeah
,

I

think

we

get

really

used

to

pretending

like

we

have

it

all

together

with

the

10-inch

plate
,

when

in

reality
,

like
,

the

gravy's

spilling

over

the

edge

and

the

mashed

potatoes

are

falling

off

and

the

bread

roll
,

you

know
,

is

off

the

plate

and

rolling

across

the

floor
,

and

but

we

pretend

like

we

have

it

together

and

we

just

don't
.

And

setting

boundaries

and

setting

expectations

for

ourselves

that

are

reasonable

is

so

important
.

Speaker 1
3:10

Well

and

I

think

that's

like

for

me

in

doing

this

podcast
,

I

love

getting

the

information

out

I've

had

to

step

back

and

say

I

don't

have

the

capacity

to

do

a

whole

YouTube

channel

with

video

right

now
,

like
,

and

I

will

maybe

get

there

one

day
,

but

I

don't

have

that

right

now
,

I

don't

have

the

capacity

for

that
.

And

I

think

that

for

those

of

us

who

have

trauma

from

missing

out

on

things
,

that

when

we

feel

equipped

to

do

something
,

we

overfill

and

it

kind

of

sets

us

back

and

I

think
,

just

understanding

that

you

can't

just

continue

piling

things

on

because

you

think

you

can
,

because

you

will

burn

out

and

your

body

doesn't

recover

the

same

as

someone

who

doesn't

have

any

chronic

illnesses
,

and

so

that's

something

that

I've

learned

and

I've

had

to

continue

learning
.

And

there's

those

staples

on

our

plate
,

right
?

So

for

me
,

my

staples

on

my

plate

are

the

faith
,

family
,

friends

and

how

to

help

serve

those

in

the

community

yeah
,

and

the

podcast

is

definitely

a

big

part

of

that
.

Speaker 1
4:10

But

if

I

continue

to

add

things

onto

my

plate

that

don't

fuel

me

and

don't

feed

me
,

those

other

things

don't

get

the

attention

they

need
,

right
.

I

just

know

that

I

have

to

take

less

on

and

I

have

to

be

okay

with

that
,

and

I

think

that's

something

that

is

really

hard

for

us
,

because

society

has

told

us

that

we

need

to

be

go-getters
,

we

need

to

be

able

to

do

the

B's

and

C's

of

life
,

when

we're

barely

surviving

an

X
,

y

and

Z
,

yeah
,

you

know
,

yep
,

and

so

I

feel

like

that's

kind

of

something

that

I've

learned
,

because

I

put

that

expectation

on

myself

to

be

able

to

accomplish

all

this

stuff
,

but

my

body

cannot

handle

that
.

Speaker 2
4:44

Right
,

yeah
,

no
,

I'm

almost

40

years

old

and

I'm

just

now

figuring

out

how

to

establish

boundaries
,

how

to

communicate

clearly

with

people

and

be

like

hi
,

I

need

you

to

understand

that

I

don't

feel

well

and

if

that's

too

much

for

you
,

then

sorry
,

but

that's

not

my

problem
.

Like

I'm

not

going

to

make

it

and

I'm

sorry

if

I'm

canceling

on

you

or

I'm

sorry

if

I'm

not

willing

to

set

plans

with

you

right

now
.

Right
,

because

I

just

don't

have
.

You

know
,

I

am

hour

to

hour

on

how

I

feel

sometimes

and

it's

like

I

could

feel

great

in

the

morning

and

then
,

by

the

time

dinner

rolls

around

and

I'm

supposed

to

go

meet

people
,

I

feel

awful

and

I

like

can't

even

get

out

of

bed
,

and

so

I

think
,

setting

those

boundaries

and

learning

this
,

you

know
,

and

a

lot

of

it

has

just

been

over

these

last

few

years

where

it's

like

you

know
,

it's

okay
,

going

from

being

this

go-getter

and

doing

all

of

the

things

to

doing

the

things

that

serve

you

only
.

Speaker 1
5:29

And

I

think

that's
.

Speaker 2
5:30

I

think

it's

healthy
.

I

think

it'd

be

good

even

for

non-chronic

illness

patients

to

do

that

and

just

take

a

step

back

and

really

prioritize
.

You

know
,

and

this

disease

kind

of

makes

you

prioritize

what's

important

to

you
.

Speaker 1
5:52

It

does
.

And

I

didn't

realize

that
,

I

didn't

realize

how

whole

body

consuming

it

is
.

And

even

still
,

there

are

days

that

I

think

I

can

manage

more

than

I

can
.

And

what

I

realized

is

that

my

body

takes

more

recovery

time
.

Yes
,

before

I

would

think
,

oh

well
,

this

is
.

You

know

me

being

lazy
,

because

this

is

what

I

heard
.

Right
,

you're

always

tired
,

you're

always
,

you

just

don't

want

to

do

it
.

You

just
,

you

know
,

like

all

those

things

that

people

kind

of

throw

shade

at

you

for
.

Speaker 1
6:12

And

there's

proof

to

back

this

up
.

There's

scientific

evidence

that

points

to

the

fact

that

endometriosis

brains

have

a

harder

time

with

fatigue
,

have

a

harder

time
.

Their

brain
,

the

mapping

of

their

brain
,

changes

compared

to

those

who

don't

have

it
.

Yeah
,

it's

scientific
,

right
.

So
,

yes
,

I'm

not

functioning

the

same

as

you
,

but

that's

okay
.

Yeah
,

and

it's

not

to

make

excuses
,

I

don't
,

because

it's

not

an

excuse
,

no
,

it's

a

reality
,

right
.

And

I

think

that

if

we

can

shift

our

mindsets

from

an

excuse

to

reality

and

do

what

you

can

when

you

can
,

then

we

might

be

able

to

feel

more

fulfilled
.

Yes
,

and

not

sitting

in

a

space

of

but

I

wish

I

could
,

yeah
,

yeah
.

Speaker 2
6:56

I

would

agree
,

cause

I

think

that

we

spend

a

lot

of

time

sitting

there

thinking

about

the

what

ifs

and

what

could

have

beens

in

our

lives

when

we

look

at

what

this

disease

has

taken

from

us
.

Speaker 2
7:05

You

know
,

I

mean

it's

still

most

of

my

late

twenties

and

most

of

my

thirties

at

this

point
,

and

it's

it's

hard

to

you

know

not

mourn

that

and

dwell

on

that

type

of

thing

where

it's

like
,

oh
,

I

could

have

been

doing

this
,

I

could

you

know
.

Instead

of

that
,

we

got

to

focus

on

the

what

is

happening

now
,

where

we're

at

right

now
,

and

what
?

Speaker 2
7:30

we

can

control

right

now

and

guess

what
?

I

can

control

how

full

my

plate

is
.

Yeah
,

I

have

the

control

over

that
.

You

have

the

control

over

that

Exactly
.

It's

just

so

hard

to

not

go

with

societal

norms

and

do

all

of

the

things

and

be

the

boss
,

babe
,

and

be

all

of

those

things

that

society

wants

us

to

be
.

No
,

we're

tired

and

we're

sick

and

we

need

naps
.

Speaker 1
7:43

Yes
,

Lots

and

lots

of

naps

and

we

need

to

be

okay

taking

those

naps

and

if

the

house

doesn't

get

cleaned

one

day
,

it

doesn't

get

cleaned
.

Speaker 2
7:53

It

doesn't
,

and

I

think

you

and

I

are

lucky

that

we

have

really

supportive

partners
.

Like

my

husband

is

so

supportive
,

like

and

you

know

I'll

be

like

I'm

having

a

rough

day

and

he's

like

go

take

a

nap
,

go

lay

down
,

go

put

your

feet

up

for

a

little

bit
,

go

do

whatever

you

need

to

do

to

feel

a

little

better
,

like

I've

got

this

and

I

know

your

husband

is

the

same

way
,

which

is

such

a

blessing

because

there's

a

lot

of

I've

been

in

other

relationships

where

it's

not

that

way
.

Speaker 2
8:17

Not

that

way

at

all
,

not

that

way
.

Speaker 1
8:19

But

I

do

think

like

it's

interesting

to

sit

back

and

observe

our

support

systems

and

how

they've

shifted

and

changed
,

because

now

that

my

girls

are

old

enough

to

kind

of

understand

some

of

what

I'm

up

against
,

they

have

more

questions

and

the

thing

that

this

podcast

has

given

me

is

the

ability

to

answer

some

of

those

questions
.

I

can't

answer

all

of

them

and

I've

been

really

honest

with

my

girls

and

saying

sometimes

I

get

mad

at

my

body
,

Sometimes

I'm

mad

with

the

hand

that

I've

been

dealt
,

but

I'm

really

grateful

on

the

other

end

and

I

love

hearing

when

my

girls

tell

me
,

mom
,

are

you

helping

someone
?

And

I

always

say

I

hope

I

am
,

I

hope

I'm

helping

people
.

Speaker 2
8:57

You

are
.

Speaker 1
8:58

And

they're

like
,

okay
,

good
,

I

want

to

do

that

too

and

know

and

I

think

that

I'm

able

to

now

show

my

kids

through

example

what

it

can

look

like

to

serve

others

and

find

joy

in

that

without

overdoing

it
.

Yeah
,

but

they're

also

seeing

me

grieve

and

I

think

that's

really

something

that

I

didn't

understand
.

I

always

associated

grief

with

death

and

now

I

associate

grief

with

anything

that

we

have

a

sense

of

loss

for
.

Speaker 2
9:25

And

we

have

a

lot

of

loss

with

this

disease
.

Speaker 1
9:28

Absolutely
.

But

there's

also

things

that

it

brings

you
.

It

can

bring

you

community
,

if

you

let

it
.

It

can

bring

you

work

wives
,

if

you

let

it
.

Speaker 2
9:36

Great

relationships

with

people
.

Yeah
,

I've

met

people

all

over

the

world

since

I've

been

diagnosed

with

this

and

they

are

some

of

my

favorite

people

I've

ever

met
,

like

wonderful
,

great

friends
,

people

that

we

can

reach

out

to

at

any

time

of

the

day
.

They'll

answer

our

questions
,

they'll

support

us

through

stuff
.

It's

really

amazing
.

Yeah
,

the

community

that

we've

built

and

worked

our

way

into
,

yeah
,

we've

kind

of

shoved

our

way
.

We

did

shove

our

way

in
.

Speaker 1
10:00

It

might've

been

prompted

by

a

shot

of

tequila
,

but

we

are

there
.

It

might

have

been

prompted

by

a

shot

of

tequila
,

but

we

are

there
.

Yeah
,

we

are

there
.

That's

not

true
,

but

I

think

too

there's

that

sense

of

belonging

when

you

are

surrounded

by

people

who

understand

you

and

who

have

been

there
,

and

although

you

have

other

friends

who

are

fantastic
,

it's

not

quite

the

same
.

Speaker 2
10:22

No
,

no
,

my

unchronically

ill

friends

do

not

understand

what

I'm

going

through

at

all
,

and

it's

not

quite

the

same
.

No
,

no
,

my

unchronically

ill

friends

do

not

understand

what

I'm

going

through

at

all
,

and

it's

not

their

fault
,

I

mean
,

I'm

glad

they

don't
,

because

I

don't

want

them

to

feel

the

same

way

that

I've

felt

over

these

last

few

years

and

but

a

lot

of

them

just

don't

understand
.

You

know
,

and

and

that's

fine
,

they

don't

have

to
.

But

I

also

have

to

set

firm

boundaries
.

Speaker 1
10:41

But

I

also

think

that

we

it's

important

for

us

to

give

space

to

that

too

yeah
,

and

understanding

and

grace
,

because

they

don't

understand

it

and

until

you

live

in

this

space
,

it's

really

hard

to

understand

because

it

is

so

invisible
.

Most

of

the

time

it's

not

like

they

can

see

a

cast

on

our

arm

or

they

can

see

us

hooked

up

to

tubes
,

although

some

people

are

and

have

all

the

bags
.

Speaker 2
11:02

Right
,

you

know

Advocating for Ourselves

Speaker 2
11:03

.

Speaker 1
11:03

Yeah
,

there

are

those

people

and

I

just

wish

that

we

could

convey

to

others

effectively

the

extent

of

which

this

disease

ravishes

our

bodies
.

And

that's

something

I

didn't

realize

in

starting

this

podcast
,

or

even

part

of

my

story

is

how

much

it

affected

my

whole

bodily

system
.

And

now

I

look

at

it

and

I

see

so

many

patients

who

are

like

my

back

is

hurting
,

my

hip

is

hurting
,

I

can't

pee
,

or

I

pee

too

much
,

or

you

know
,

I'm

constantly

pooping

or

I'm

not
,

I'm

never

pooping
,

or
,

and

it's

like

there's

an

underlying

reason

for

that
,

and

I

think

that

we

have

become

so

complacent

in

society

to

just

take

doctors

at

their

word

as
,

oh
,

you

just

have

IBS

or

you

just

are

depressed
.

We're

so

used

and

I'm

guilty

of

this
.

This

is

why

I

was

with

the

same

doctor

for

so

long

was

because

I

felt

this

sense

of

loyalty

and

trust
.

But

even

with

that
,

it

is

okay

to

explore

more

about

who

you

are

and

what

you're

living

with
.

It's

not

going

behind

their

back
,

it's

understanding

your

disease
.

Speaker 2
12:08

Yeah
,

and

it's

your

right
.

Absolutely

their

feelings

are

not

your

responsibility
,

and

if

your

doctor

gets

their

feelings

hurt

because

they're

not

qualified

to

handle

the

issues
.

It's

not

your

fault
,

not

your

responsibility
.

No
,

let

them

cry

themselves

to

sleep

at

night

when

they

see

you

took

yourself

off

the

schedule
.

Speaker 1
12:24

so

right
,

the

other

part

of

that

too
,

is

we

pay

their

bills

right
,

especially

in

the

us
,

oh

yeah
,

but

everywhere
,

I

mean

oh
,

I've

a

few

like

ski

trips

and

stuff

for

doctors

over

the

last

few

years

right
.

So

if

they're

not

serving

you
,

it's

time

to

look

somewhere

else
.

Yeah
,

and

you

have

to

kind

of

break

up
.

And

it

doesn't

mean

they're

any

less

of

a

person
,

right
,

it

just

means

that

they

aren't

meeting

that

need

where

it

needs

to

be

met
.

Speaker 2
12:49

Yeah
,

no
,

I

mean
,

you

know

my

story

with

my

most
.

I

had

a

GP

a

few

years

ago

that

I

was

seeing
,

really

liked

her

for

a

while

and

then

my

symptoms

started

coming

back

and

I

just

wasn't

feeling

great

and

I

mentioned
,

you

know
,

hey
,

I

really

think

it

could

be

my

endo
,

I'm

not

sure

and

she

spent

a

good

solid

five

minutes

arguing

with

me

about

how

it

couldn't

be

endo
,

cause

I

don't

have

a

uterus
,

and

I

was

like

that

is

not

how

this

works
,

not

even

a

little

bit
,

even

a

little
.

Speaker 2
13:12

And

she

was

unwilling

to

listen

to

anything

that

I

had

to

say
,

any

research

I

had

to

provide
,

and

so

I

ended

up

ending

that

doctor

patient

relationship
,

moved

on

to

somebody

else
.

Absolutely

wonderful

experience
,

no

issues
.

Do

not

have

to

explain

things
.

Speaker 2
13:25

It's

amazing
,

you

know
,

and

firing

that

doctor

was

one

of

the
.

I

didn't

go

to

the

doctor

for

almost

two

years
,

Right
,

Because

I

was

just

like
.

I

am

so

discouraged

I'm

never

going

to

find

a

doctor

that

believes

me
.

I'm

never

going

to

find

a

doctor

that

understands

this

minus

the

excision

surgeons

but

they're

not

great

long-term

doctors
.

That's

not

their

specialty
,

that's

not

what

they

do
.

So

I

think

it's

good

that

you

have

found

a

way

to

advocate

for

yourself
,

that

you've

taught

other

people
.

I

mean
,

you

taught

me

how

to

do

that
.

So

I

know

you're

worried

about

making

a

difference
,

but

you

are

the

one

that

taught

me
.

Hey
,

like

there's

an

entire

endobattery

episode
,

you

can

fire

your

doctor
.

I'm

pretty

sure

you

have

that

in

you

already
.

Battery

episode

you

can

fire

your

doctor
.

I'm

pretty

sure

you

have

that

in

you

already
?

Speaker 1
14:02

I

probably

did
.

I'm

a

little

feisty
,

you

are

real

feisty
.

I

thought

I

was

feisty

until

I

met

you

and

I

was

like

that's

my

soul

sister
.

No
,

I

could
.

I

could

get

scrappy
.

You

could

real

fast
.

I

think

that's

the

thing

is
.

We

have

to

count

on

each

other

to

feel

empowered
,

because

we

get

stuck

in

our

brains

and

on

our

heads

and

in

our

fatigue

and

in

our

pain

and

everything

else
.

You

need

someone

to

say

that's

not

okay
,

To

validate

the

way

that

you

are

feeling

yeah
,

or

someone

to

say

have

you

considered

maybe

doing

this
?

Speaker 2
14:30

Yeah
.

Speaker 1
14:30

Yeah
,

I

think
.

Speaker 2
14:31

I

called

you

after

that

appointment
.

It

was

like

this

is

awful
.

And

she's

like

move

on
,

like

go

find

somebody

else
,

find

somebody

that

you

don't

have

to

convince

that

you

don't

feel

well
,

Right
?

Speaker 1
14:44

You

know
,

it's

like

that

is

such

great

advice

that

you

gave

me
.

I

mean
,

gosh
,

if

we

held

doctors

to

a

higher

standard
,

I

question

whether

we

would

be

in

this

situation

that

we

are

now
.

Speaker 2
14:52

Yeah
,

I

would

agree
.

I

mean
,

if

there

was

better

medical

school

education

on

this
,

if

we

actually

actually

if

they

actually

researched

women
,

if

they

actually

involved

us

in

like

clinical

trials

right

things

right

that

affect

women
.

That

would

be

nice

so

and

you

know

there's

a

lot

of

failures
.

It's

hard

to

talk

about

that

because

you

know

there

are

so

many

great

doctors

out

there

that

are

fighting

against

the

system

and

it

really

is

the

system

here

in

the

us

at

least
.

That

just

sets

us

up

for

failure
.

Speaker 1
15:20

I

think

everywhere
.

I

think

this

is

a

worldwide

issue

that

we

face

Yep
.

Speaker 1
15:25

And

I

would

say

the

one

thing

that

I've

learned
,

and

I

continue

to

learn

to

do
,

is

how

to

stop

invalidating

myself
.

Yes
,

yeah
,

because

and

it

was

only

recently

that

this

hit

me

how

much

I

was

actually

doing

that

I

went

in

to

go

see

a

provider

and

I

was

telling

her

all

these

and

and

and
.

Going

into

this

provider
,

I

was

like

I

don't

even

know

what

to

say

to

her
,

like

I

don't

even

know

how

she

can

help

me
.

And

so

I

went

in

and

I

kind

of

gave

her

the

brief

rundown
,

or

whatever
,

of

everything

I

was

experiencing

and

she

goes
.

She

stopped

me

and

she

said

I

feel

like

you're

trying

to

tell

me

something
,

but

you're

also

really

holding

back

from

telling

me

something
.

Speaker 1
16:06

She's

like

there's

something

on

your

mind

and

something

that

you

need

to

tell

me
,

but

you're

putting

up

that

wall

and

I

lost

my

ever

loving

mind

because

I

just

started

sobbing

and

I

have

never

done

that

in

a

doctor's

office

After
,

yes
,

in

my

car
,

absolutely
.

I've

never

cried

in

a

provider's

office

and

I

kept

apologizing

to

her
.

I'm

like

I'm

so

sorry
,

I

don't

know

why

I'm

crying
,

and

she

goes
.

No
,

this

is

a

safe

space

for

you

to

tell

me

everything
.

She

goes
.

I

can't

help

you

if

I

don't

know

everything
.

Speaker 2
16:41

Well
,

and

what

a

sign

that

is

for

how

mistreated

endopatients

are
,

where

it's

like
.

All

she

said

was

just

tell

me

what's

going

on

and

that

is

enough

for

you

to

feel

heard
,

because

so

many

other

doctors

just

do

not

care
.

They

don't

care
.

Speaker 1
16:54

Right
,

and

and

I

had

to

convince

myself

that

I

mattered

enough

and

that

my

body

mattered

enough

to

talk

about

everything

going

on

and

that

I

wasn't

going

to

be

dismissed

or

invalidated

by

her
,

right
,

yeah
,

there's

so

much

fear

in

walking

into

doctor's

offices

and

not

every

doctor's

office
,

I

do

it

to

some

of

the

best

doctors

because

there's

that

fear

that

they're

not

going

to

be

able

to

help

me
,

that

there

is

no

help

for

me
,

or

that

it's

not

that

bad
.

Right
,

those

are

like

the

chief

things

for

me
.

Yes
,

like

I'm

not

worth

having

a

better

quality

of

life

than

what

I

already

have

because

others

have

it

worse
.

You

know
,

the

list

goes

on
,

and

I

just

feel

like

we

get

stuck

in

this

trap

of

comparison

to

other

patients
,

which

we

have

to

get

out

of
,

because

your

story

matters
,

your

symptoms

matter
,

your

body

matters
,

your

feelings

matter
,

your

mental

health

matters
,

and

they

shouldn't

be

invalidated

by

a

provider
.

Speaker 1
17:46

No
,

or

yourself
.

Right
,

you're

feeling

what

you're

feeling
.

There's

a

reason

for

it
.

Do

we

need

to

sometimes

get

help

on

a

psychosomatic

spectrum
?

Yes
,

because

we

have

so

much

trauma
,

right
,

we

have

to

learn

how

to

walk

through

it

so

we

know

what

is

really

affecting

us

as

opposed

to

what

isn't

affecting

us
,

right
?

Speaker 2
18:03

Yeah
,

and

when

you

think

of

the

statistics

where

you

know

it

takes

between
,

what

is

it
?

Seven

to

10

years

to

get

diagnosed

and

an

average

of

eight

doctors
,

is

that

right
?

Which

is

crazy

to

me

because

mine

was

like

30
.

I

know
,

but

I

feel

like

those

are

really

low

numbers
.

Right
,

I

do

too
,

but

even
,

but

even

there
,

you

know
,

if

you

have

eight

doctors

in

a

row
,

tell

you

that

you're

fine
.

Eight

doctors
,

eight

people

who

went

to

med

school
,

I

mean
,

that's

a

combined
.

What

is

that
?

13

years

in

med

school

times
,

eight
,

I

can't

do

them

out

that

fast
.

Speaker 2
18:28

Yeah
,

I'm

not

doing

that

fast
,

104

years

of

schooling

and

they

all

told

me

you

know

and

I

don't

know

anything
.

You

don't

know

anything

we're

not

medical

professionals
.

We're

just

like

two

girls

that

are

nerds

about

endometriosis
.

Speaker 1
18:42

That

I

didn't

know
.

I

was

a

nerd

about

endometriosis

until

I

started

this
.

I

had

no

idea

how

big

of

a

nerd

I

was
,

until

we

started

this
,

and

I'm

like
,

wow
,

I'm

pretty

nerdy

when

you

can

talk

for

hours

about

endo

and

our

families

are

like

are

you

done

yet
?

Nope
,

we're

not
,

we'll

never

stop

talking

so
.

Speaker 2
19:01

But

when

you

hear

it

you

know
,

over

eight

to

10

years
,

eight

ish

doctors

on

average
,

if

that's

if

I'm

remembering

correctly
.

That's

so

damaging

yeah
,

it

is

so

damaging

to

your

self-esteem
,

it's

damaging
,

you

don't
.

You

can't

trust

yourself
,

you

can't

trust

how

you

feel

in

your

own

body
,

you

so

you

know

there

is

a

lot

of

mental

health

aspect

that

goes

into

this

disease

where

it's

you

know
,

and

it

kind

of

falls

into

that

hey
,

I

treated
,

I

had

the

hysterectomy
,

I

had

the

excision
,

but

I

need

pelvic

floor

physical

therapy
.

Speaker 2
19:29

I

need

regular

physical

therapy
.

I

need

to

learn

how

to

poop

again

like

a

normal

person
.

I

didn't

know

how

to

breathe

properly
.

I'm

still

working

on

the

breathing
.

Oh
,

I'm

still

terrible

about

it
.

Speaker 1
19:44

Yeah
,

I

don't
.

Speaker 2
19:45

My

diaphragm

does

not

work

the

way

that

normal

people's

diaphragms

work

and

it's

just

like

I

cannot

breathe

normally
.

But

you

also

have

to

address

that

mental

health

aspect

and

look

at

you

know

what
,

if

you

have

depression
,

if

you

have

anxiety

over

it
?

And

and

try

to

find

somebody

qualified

to

help

you

work

through

that
,

because

it

is

awful

and

it

is

so

bad

for

your

self-esteem
.

Speaker 1
19:58

So

bad
.

But

I

also

think

when

you

walk

into

a

new

provider's

office
,

you're

always

afraid

of

what

they're

going

to

say
.

What's

the

new

diagnosis
?

What's

the

new

challenge
?

What's

the

this
,

what's

the

that
?

It's

twofold

right
,

because
,

like
,

either

you

want

nothing

or

you

want

it

all
.

Yeah
.

Speaker 1
20:13

Like

there's

not

a

whole

lot

of

in

between

to

that
,

because

you're

like

I

want

a

diagnosis
,

I

want

to

know

why

I'm

feeling

this

way
,

but

I

also

don't

really

want

to

know
,

because

then

I

have

to

deal

with

it

and

that's

like

more

time
,

more

money
,

more

lifestyle

changes
,

more

of

all

these

things

that

feel

compounding
,

which
,

again
,

is

why

talking

to

someone

is

important
,

because

we

can't

carry

this

load

alone
,

and

that's

why

we

started

the

support

group
,

and

that's

why

it's

important

to

seek

out

mental

health

counseling
,

so

that

you

don't

have

to

carry

the

load

alone
.

Other

people

can

support

you

along

the

way

and

you

don't

carry

it

all

by

yourself
,

and

they

were

amazing
.

Speaker 2
20:56

Hey
,

I

saw

this

doctor

and

it

was

the

worst

experience

I've

ever

had
.

Oh

hey
,

have

you

tried

this
?

Have

you

tried

this

type

of

therapy
?

Have

you

looked

at

acupuncture
?

Speaker 2
21:04

I

found

a

great

acupuncturist

you

know
,

I

mean

we

share

so

many

resources
,

you

know
,

with

the

expectation

where

it's

like

do

what

you

want

with

these
,

right
,

you

know
,

if

you

want

to

make

an't
,

have

this

group
.

You

know
,

I

mean
,

I

would

never

be

on

the

medications

I'm

on

now

if

it

wasn't

for

you

guys
,

cause

I
,

the

whole

reason

that

I'm

doing

a

lot

of

the

things

I'm

doing

in

order

to

fix

myself

is

because

I've

seen

you

guys

do

it

and

it's

helped

you

and

it's
,

you

know
,

been

hugely

beneficial

for

you

and

other

people

in

our

group
.

Yeah
,

without

that

support
,

we

don't

have

that

yeah
,

and

I

think
,

too
.

Speaker 1
21:39

I

think

there's

something

to

be

said
.

Something

you

won't

get

out

of

a

doctor's

office

is

lived

experience
.

Yeah
,

and

sometimes

we

need
,

as

patients
,

to

hear

other

patients

talk

about

their

experience
,

because

I

think

that

allows

you

the

ability

to

take

the

next

best

steps

for

you
.

Yes
,

and

and

there's

been

a

lot

of

things

that

I

didn't

really

correlate

with

my

journey

until

I

talked

to

other

people

that

experienced

the

same

thing

and

then

had

a

diagnosis

or

then

had

a

way

that

they

were

helping

solve

some

of

the

issues

that

they

were

facing
.

That

lived

experience

is

what

can

carry

you

to

the

next

stage

of

healing
,

and

I

do

feel

like

I

have

healed

a

lot

in

just

being

in

community

with

others
.

Yeah
,

you

know
,

which

is

why

you

know

in

this

podcast
,

like

I

always

talk

about
,

we

need

to

be

part

of

this

community
,

joining

us

at

the

table
,

because

the

table

is

where

you

share

the

most

intimate

meals
,

which

goes

back

to

my

plate

theory

and

my

spoon

theory

and

all

the

theories

you

see

where

my

mind

goes
.

Speaker 2
22:43

We're

very

food

oriented

here
.

Speaker 1
22:45

Even

though

we

can't

eat

it

half

the

time
.

Speaker 2
22:46

We

don't

eat

most

of

the

things
,

but

we

like

talking

about

it
.

We'll

talk

about

it
.

We

make

good

analogies
.

Yeah
.

Speaker 1
22:52

But

I

mean
,

if

you're

like
,

oh
,

let's

go

meet

for

coffee

and

you

have

coffee

at

a

table
,

you

get

to

know

more

about

these

people
.

You

get

to

know

the

more

intimate

aspects

of

who

people

are

when

you

sit

down

at

a

table

and

have

coffee

with

them
.

Speaker 1
23:04

Yeah

absolutely

that's
.

What

we

need

as

a

community

is

to

be

able

to

feel

safe

enough

to

sit

at

the

table

with

others

and

learn

and

grow

and

heal
.

I

think
,

honestly
,

I

didn't

see

that

as

a

big

element

starting

this
,

but

now
.

Now

that

is

like

my

whole

takeaway
.

Speaker 2
23:23

Yeah
,

so

would

you

say

like

your

goals

have

changed

since

you

started

endobattery
?

I

feel

like

they

have
,

but

how
?

How

do

you

feel

like

your

goals

have

changed

over

the

last

three

years
?

Speaker 1
23:35

Uh

well
,

I

think

part

of

it

is
.

I

thought

it

was

just

for

information

and

now

I'm

realizing

it's

about

community
.

Yeah
,

and

now

I'm

also

realizing

that

I

am

right

there

with

my

community

and

my

goals

in

doing

this

is

to

continue

not

only

advocating

but

meeting

people

where

they're

at
,

in

the

space

that

they're

at
,

and

that's

why
,

you

know
,

when

I

have

people

on

or

whatever
,

I

want

to

be

able

to

try

to

help

build

Empowering Growth and Support in Advocacy

Speaker 1
24:05

that

bridge
.

Because

I

don't

know

about

you
,

but

for

me

it

was

really

hard

to

advocate

for

myself

in

the

midst

of

all

my

pain
.

Speaker 1
24:12

And

there

have

been

times
,

even

still

in

the

discovery

phase
,

of

something

else

happening

that

it's

hard

for

me

to

advocate
,

or

it's

hard

for

me

to

hear

things
,

or

it's

hard

for

me

to

advocate
,

or

it's

hard

for

me

to

hear

things
,

or

it's

hard

for

me

to

figure

out

my

next

steps
.

But

if

this

is

a

tangible

way

to

do

that
,

I

want

to

help

do

that

and

facilitate

that

way

of

healing

or

information

gathering

or

whatever

the

case

may

be
.

Speaker 1
24:35

So

my

overall

goal

is

not

only

to

provide

advice
,

good
,

evidence-based

material
,

but

also

to

meet

people

where

they're

at
,

and

part

of

that

is
,

you

know
,

emailing

me

info

at

endobatterycom
.

If

you

have

questions
,

if

you

want

to

hear

about

a

specific

topic
,

or

if

you

just

telling

me

a

little

bit

about

your

story
,

you

can

email

me

and

be

like

hey

Alana
,

I

just

wanted

to

tell

you

this
,

and

it

fuels

me

so

much

when

I

hear

things

like

that
.

But

I

really

try

to

impress

on

people

that

this

is

not

so

much

my

podcast

as

it

is

theirs
.

I'm

learning

a

ton
.

I'm

learning

a

lot

about

myself
,

about

the

endometriosis

community
,

about

endometriosis

as

a

disease
,

but

also

life

past

excision
.

When

you're

looking

past

the

endometriosis

and

I

think

that's

something

that

we

don't

often

talk

about

enough

is

life

after

excision

and

the

challenges

that

you

can

have
,

but

also

the

good

things

that

you

can

have
.

And

so

my

goal

with

doing

the

podcast

and

in

my

own

journey

is

just

growth

growth

in

community
,

growth

in

knowledge
,

growth

and

understanding
.

Speaker 1
25:47

Growth

in

community
,

growth

in

knowledge
,

growth

and

understanding

and

growing

in

loving

myself

more

through

this

journey

and

showing

myself

grace
,

because

that's

a

really

hard

thing

for

me

to

do
,

and

I

think

when

you

have

people

surrounding

you

like

you

and

I

talk

all

the

time

but

we've

both

come

to

one

another

and

said

I'm

so

mad

right

now

and

to

feel

validated

in

that

is

huge
,

yeah
,

and

we

all

need

that

space
.

So

I

don't

know
,

I

think

just

showing

each

other

grace

but

allowing

space

for

grief

and

anger

and

frustration
,

but

using

that

to

fuel

change
,

is

important
.

It's

beautiful
.

I

think

that's

beautiful
.

Speaker 2
26:21

Well
,

I

know

I

can

speak

for

a

good

chunk

of

the

endometriosis

community

when

I

say

that

you

really

are

contributing

in

a

huge

way

to

the

conversation
.

You're

contributing

to

the

information

that's

available
.

I've

learned

a

ton

from

your

podcast

and

I

talk

to

you

every

day
.

Speaker 3
26:39

So
,

and

I've

learned

so

much
,

you

know

I

mean

you

have

incredible

guests
.

Speaker 2
26:43

You

do

a

really

good

job

of

balancing

everything
,

of

talking

about

the

emotional

side
,

the

physical

side
,

all

of

it
,

and

I

just

I

know

you're

making

a

huge

difference

and

it

makes

me

so

proud

to

be

your

friend
.

Speaker 1
26:53

So

why

you're

sitting

next

to

me

is

to

boost

me
.

Speaker 2
26:56

Yeah
,

you

know

I'm

here

to

make

you

feel

good
,

so

but

I

mean

it
,

I

really

do
,

Like

you've

changed

my

life

in

such

a

positive

way

and

I'm

100%

certain

that

I'm

not

the

only

person

that

feels

that

way
,

so

I

know

you

have

a

lot

of

listeners

that

are

grateful

for

the

content

you

provide

and

the

support

you

provide
,

even

if

it's

just

while

we're

just

sitting

at

your

kitchen

table

with

microphones

hanging

out

talking
,

drinking

our

Ziggy's

hashtag
.

Speaker 1
27:19

Sponsor

us

hashtag
,

please
.

We're

not

sponsored

yet
.

I

am

happy

to

do

it

and

I

you

know

I've

said

this

before

to

so

many

people
.

I

didn't

know

I

needed

this

podcast

as

much

as

I

do

in

some

ways
,

because

it's

been

part

of

my

healing

journey

yeah

it's

been

part

of

figuring

out

my

purpose

yeah

and

I

also

want

to

say

that

your

purpose

doesn't

always

have

to

be

easy
,

no
,

and

pain-free

it

doesn't
.

Speaker 1
27:44

And

there

are

many

days

that

I

question

certain

things

and

I

beat

myself

up

in

my

own

head

about

certain

things

and

I

question

my

ability
.

Why

am

I

doing

this
?

Am

I
?

You

know

all

these

things

right
?

Yeah
,

and

I

think

that's

only

natural

it

is
.

Speaker 1
28:00

But

I

do

think

that

if

we

allow

doubt

to

fill

our

heads

without

motivation
,

then

it's

just

that

it's

just

doubt
.

But

if

we

allow

doubt

to

propel

us

into

something

more
,

to

get

us

thinking

outside

the

box
,

to

get

us

thinking

outside

the

situation
,

then

that's

empowerment

it

is
.

And

that's

empowerment

it

is
.

And

I

just

want

to

encourage

people

like

if

you

have

doubt
,

even

if

it's

in

your

own

health
,

let

it

empower

you

to

grow

and

change

and

to

step

outside

the

known

box

and

into

the

unknown

box
,

because

I

bet

you

anything
,

the

colors

are

brighter

they

are
.

You

will

be

unstoppable

from

that

point
.

So

that's

kind

of

my

mindset
,

and

doing

a

lot

of

it

too

is

like

I

have

doubt

all

the

time
.

But

what's

that

doubt

going

to

do
?

It's

going

to

propel

me
,

it's

going

to

empower

me
.

Speaker 2
28:52

So

no
,

and

I

think

there's

a

huge
,

huge

benefit

to

service

as

healing
.

Yeah
,

and

there

really

is
.

I'm

sure

there's

science

behind

it

somewhere
.

Speaker 1
29:02

Mel

Robbins

probably

has

something

like

that
,

Mel
,

if

you

want

to

come

on

please
.

Speaker 2
29:05

Oh

my

gosh
,

that

would

be

my

dream
.

Speaker 1
29:07

If

she

wants

to

come

on

and

talk

about

that
,

that

would

be
.

Wouldn't

that

be

impactful
?

Oh

everyone

get

on

Put

in

the

messages

to

Mel

Robbins
.

Speaker 2
29:14

Yes
,

because

we

love

her
.

And

she

really

is

brilliant

about

this

stuff

and

it

helps

so

much

to

a

step

outside

of

your

journey

and

be

beneficial

to

other

people

on

their

journey
.

Speaker 1
29:27

And

that

in

turn

heals

some

of

those

broken

pieces

inside

of

us
.

Yeah
,

absolutely
,

I

100%

agree

with

that
.

I

would

say

1000
,

but

that's

not

an

actual

number
.

Speaker 2
29:33

It's

okay
,

we

like

exaggerating
,

it's

fine
.

Speaker 1
29:36

It's

true

Drama

queens
,

according

to

all

the

doctors
.

Speaker 2
29:38

We're

just

exaggerating
.

Speaker 1
29:40

Exaggerating

Loud

drama
.

Queens
,

we're

making

things

up
.

Speaker 2
29:42

Yeah

Well
,

I

really

appreciate

everything

that

we

talked

about

today
.

It

is

so

fun

being

on

your

show
.

I

love

when

you

have

me

on

here

and

I

appreciate

you

being

such

a

good

friend
,

such

a

great

podcast

host

and

such

a

fierce

advocate

for

patients

with

endometriosis

in

our

communities

and

around

the

world
.

There

are

people

listening

all

around

the

world

and

it's

really

quite

amazing

for

me

to

see

what

you

have

turned

this

into
,

and

it

makes

me

so

proud

to

be

your

friend
.

So

thank

you

so

much

for

letting

me

jump

in

here

today

and

chat

with

you
.

Speaker 1
30:14

I'd

have

you

all

the

time

if

I

could
.

Speaker 2
30:16

You

know

I'm

too

tired

for

that
.

I

can't

put

that

on

my

six

inch

plate

but

I'm

happy

to

show

up

like

once

a

month
.

So

need

me

so

I

have

enough

energy

for

one

podcast

a

month
,

maybe
,

or

with

the

right

guests
,

maybe

I'd

show

up
.

Speaker 1
30:28

But

everyone

needs

to

tell

Chelsea

how

much

they

love

her
.

Speaker 2
30:32

Oh

I
,

it

would

be

good

for

my

self-esteem
.

I

am
.

I

still

have

self-esteem

issues
,

so

I'm

working

through

them
.

I've

got

a

great

therapist

but

don't

say

anything
.

Speaker 1
30:41

Mean

about

me
,

yeah

I

can't

take

it
,

I'm

too

fragile
.

Speaker 2
30:47

Oh

no
,

thanks

for

sitting
,

making

me

sit

down

and

talk

about

myself

yeah
,

no
,

I

feel

like

it

was

time

for

people

to

kind

of

get

a

recap

from

you

and

just

learn

about

what

you've

learned

on

your

journey
,

because

you've

changed

so

much

over

these

last

few

years

that

I

have
,

thank

goodness

goodness
,

I'm

not

a

stagnant

pond
.

Speaker 1
31:04

You

were

really

annoying

before
.

Speaker 2
31:06

Thank

you

for

listening

today
.

Until

next

time
,

please

keep

advocating

for

yourself

and

for

others
.

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