Friendsgiving: The Healing Power of Community and Gratitude in Endometriosis Journey

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Friendsgiving: The Healing Power of Community and Gratitude in Endometriosis Journey
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Navigating the often murky waters of chronic illness like endometriosis can be a lonely endeavour. But what if you could find solace, understanding, and support in a community of individuals who are walking the same path as you? Welcome to our special Friendsgiving episode, where we deep dive into our personal experiences with endometriosis, how we’ve built a robust support system, and the power of being honest with each other.

We also unpack the value of community and gratitude, especially during the holiday season. We share our personal tales of Friendsgiving celebrations, the tricky navigation of tough family conversations, and how we cope with the added stress that holidays bring. We also introduce you to our unique endometriosis support network which is a lifeline of resources and support for those in need. On a lighter note, we chat about the simple joys of seasonal decorations and our shared love for pumpkins, despite their allure to the neighborhood squirrels! Also our shared addition to the Just Peachy drink from Ziggi’s Coffee. 

As we move forward, we delve into the impact and power of online support communities, particularly for those battling chronic conditions like ours. We share our experiences of how finding our tribe online has helped us cope better and feel less alone. We stress the importance of expanding these communities beyond just patients, as it can positively impact others’ health and lives. As we wrap up, we reflect on the significance of community and gratitude in sustaining us during challenging times and the role they play in maintaining connections. We also contemplate the beauty of Friendsgiving as a time to celebrate with our loved ones and to express gratitude for the good in our lives. We hope this episode leaves you feeling less alone, more connected, and perhaps even a little thankful!

Support the show

Website endobattery.com

Instagram: EndoBattery

Supporting Each Other Through Endometriosis

Speaker 1
0:00

Welcome

back

to

Indo

Battery

Happy

Friendsgiving
.

Today

it's

Friendsgiving

for

us
,

so

go

ahead

and

grab

your

cocktail
,

mocktail
,

coffee

or

tea

and

sit

back

and

relax

and

enjoy

the

conversation

that

I

will

be

having

with

someone

that

I

adore

greatly
,

who

is

in

my

life

all

the

time

and

can

never

come

out

of

my

life

ever
,

and

that's

my

work

wife

Chelsea
.

Speaker 2
0:21

Hello
,

hi
,

hi

Again
.

So

happy

to

be

here
.

I

love

when

you

invite

me

to

be

on

with

you
.

It's

always

fun
,

it

is

fun
,

it

is

fun
,

and

you

are

my

favorite

work

wife

I've

ever

had
,

so

really

I

am
,

you

are
,

yeah
,

yeah
.

Oh

wow
,

you

win

that

award

for

sure
.

Speaker 1
0:37

Is

it

because

we

have

angry

uteruses
?

It

is
.

Speaker 2
0:41

That's

what

brought

us

together
.

It

is

what

brought

us

together
,

our

angry

pelvises
.

Yes
,

in

general
.

Speaker 1
0:46

In

general
.

Yeah
,

it

wasn't

so

much

the

uterus

as

the

pelvis
,

for

us

Right
.

Yeah
,

even

though

uterus

was

angry

yeah
.

Speaker 2
0:53

Mine

was

like

uterosecral

ligaments

and

ovaries

and

all

the

other

things

were

angry
.

I

mean

my

uterus

was

pretty

angry
,

but

yeah
.

Speaker 1
1:00

Yeah
,

and

that's

why

I

think

having

community

and

why

this

Friendsgiving

is

important
,

because

Friendsgiving

is

about

giving

gratitude

for

your

community

that

you're

in
,

and

we

have

a

great

community
.

Speaker 2
1:13

We

do

have

a

great

community

and

we've

worked

really

hard

to

establish

this

community

and

kind

of

get

people

together

and

on

the

same

page

when

it

comes

to

this

disease

and

how

to

support

each

other
.

And

it

just

makes

me

really

happy

that

I

have

you

in

my

life

now

and
,

yeah
,

you

are

one

of

my

favorite

people
.

Speaker 1
1:30

So

thank

you
.

You're

one

of

mine
,

and

mostly

because

we

can

talk

to

each

other

about

everything
.

Like

I'll

call

Chelsea

and

I'm

like

I

will

sometimes

just

sit

on

the

phone

and

not

even

talk

and

like

work

on

stuff
.

Speaker 2
1:42

I

do

Like

I'll

sit

there

and

be

working

on

like

our

website
,

or

and

she'll

be

working

on

her

website
.

We'll

be

working

on

stuff
,

yeah
,

and

we

don't

even

talk
,

like

every

once

in

a

while

we

like

mutter

profanities

or

something
.

That's

it
.

That's

what

our

phone

calls

consist

of

sometimes
.

Speaker 1
2:00

Sometimes
,

and

it's

okay
,

but

it's

like

I

don't

know

what

it

is
.

It's

about

having

that

like

I

don't

know

what

to

call

it
,

maybe

that

camaraderie

of

the

moral

support
.

Speaker 2
2:10

The

moral

support
.

Speaker 1
2:10

Right
,

I

am

so

exhausted

right

now

and

I'm

a

little

moody

and

my

kids

are

going

to

drive

me

crazy
,

so

if

I'm

on

the

phone

with

you
,

maybe
,

just

maybe
,

I

can

get

something

done
.

Speaker 2
2:20

Yeah
,

I

would

agree

with

you

completely
.

You

help

keep

me

from

losing

my

mind

a

lot

of

times
,

which

is

good
,

especially

lately
,

because

my

hormones

have

been
,

I

think
,

non

existent
.

At

this

point

I'm

pretty

sure

they

all

are

just

gone
,

like

I

just

don't

have

any

hormones

left

or

anything
.

So

I

think

it's

been

a

little

bit

difficult

and

having

you

to

walk

through

it

and

be

like

hey
,

I

just

yelled

at

everyone

that

I

love

and

it

started

crying

at

the

same

time

and

then

pretend

like

nothing

happened

and

you're

like

hey
.

Speaker 1
2:50

I

know

exactly

how

that

is
.

I

just

had

a

meltdown

on

my

family

and

it's

fine
,

it's

fine
,

yeah
,

everybody's

fine
,

saving

for

their

therapy

bills

on

top

of

mine
.

So

it's
,

it's
,

it's
,

it's
,

it's
.

Speaker 2
3:00

It

might

remind

me

to

go

apologize

Like

it

might

be

a

good

idea

for

you

to

go

say

sorry
,

chelsea
,

for

the

words

that

you

said

and

your

attitude
,

cause

it

is

kind

of

bad
,

and

you'll

tell

me

that
,

which

I

love

I'd

be

like
.

You

do

have

a

bad

attitude
.

You

need

to

reel

it

in

which

is

nice
.

I

think

having

honest

friends

is

like

one

of

the

best

things

you

can

have
.

Speaker 1
3:18

Yeah
.

Speaker 2
3:19

So
,

and

you're

very

honest

with

me
.

Speaker 1
3:20

Well
,

and

it's

good
,

because

in

the

advocacy

world

or

when

you're

public

like

this

podcast

is

I

sometimes

just

need

to

bounce

ideas

off

of

you
,

like
,

hey
,

what

do

you

think

about

this
?

Or

like

I'm

really

trying

to

figure

out

how

to

do

this

and

make

it

approachable
.

What

does

this

look

like
?

And

sometimes

my

brain

is

so

inundated

with

all

the

information

that

I

am

constantly

learning
,

which

I'm

so

thankful

for

that

that

information
.

I'm

enjoying

just

being

able

to

sit

down

and

have

a

conversations

with

other

patients
,

with

doctors
,

with

experts

in

their

field
.

I

love

that
.

I

love

learning
.

But

sometimes

it's

I

get

so

in

the

weeds

of

that

that

I

need

someone

to

help

pull

me

out

and

say
,

hey
,

have

you

thought

about

this
?

Or

I'll

run

something

past

you

and

you're

like

Well
,

I

like

that
,

but

I

think

this

would

be

better
.

Yeah
,

and

I

think

that's

so

important

in

our

community

to

have

that
,

because

we

do

get

in

the

weeds
,

but

we're

also

dealing

with

an

illness

that

takes

a

lot

out

of

you
.

Speaker 2
4:25

I

would

agree

with

you

and

I

think

that

it's

one

of

my

favorite

things

about

our

friendship

is

when

I'm

having

a

bad

day

or

I

wake

up

and

it's

like

oh
,

I

didn't
,

I

slept

two

hours

last

night
.

I

can't

function

Like

you
.

Never

make

me

feel

bad

for

being

like
.

Today

is

not

the

day
.

Speaker 1
4:40

I

love

you
,

I

want

to

come

over
.

Speaker 2
4:41

I

want

to

see

you
.

You

know

we

had

plans
,

we

were

going

to

record

something
,

we

were

going

to

go

somewhere
,

and

you

will

never

give

me

a

hard

time

for

it

and

you'll

just

be

like
,

hey
,

I

get

it
,

you're

good
.

Take

the

day

off

Like
,

rest
,

relax
,

do

what

you

need

to

do
,

we'll

regroup

later
.

And

it's

so

nice
.

And

not

that

my

friends

that

don't

have

endometriosis

don't

understand
,

because

they

do
,

they're

awesome

about

it

usually
,

but

with

you
.

Speaker 2
5:05

It's

like

oh
,

it

takes
,

is

like

one

message

from

like

hey
,

today's

not

the

day

and

you're

like
,

hey
,

I

get

it

Must

have

been

a

rough

night
.

Must

have

been

a

rough

morning
,

whatever

it

is
,

and

it's

nice

having

somebody

that

you'd

like

love

me

unconditionally
.

Speaker 1
5:16

Yeah
,

or

you

can

complain

about

your

hot

flashes

too
,

or

my

hot

flashes
,

oh

my

gosh
.

Speaker 2
5:20

And

there's

so

that
,

like

I

was

actually

an

hour

late

today

to

meeting

her

because

I

had

to

shower
,

because

I

was

so

sweaty
.

It's

just

like

I

can't

go

out

in

public

Like

I

can
.

It

was

not

good

so

yeah
,

and

we

get

it
.

Speaker 1
5:34

I

mean
,

and

that's

the

thing
,

like

when

you

have

community
,

you're

able

to

feel

seen
,

and

I

think

that

that's

important

in

this

disease
,

because

I

feel

like

a

lot

of

times

we

feel

so

isolated
.

Speaker 2
5:46

And

we're
.

It's

exhausting

pretending

like

we're

okay

all

the

time
,

yeah
,

and

it's

so

nice

to

be

like

hey
,

not

okay

today
.

You

get

it
.

I'm

not

complaining
,

I'm

not
.

It's

just

this

is

where

I'm

at

and

I'm

just

exhausted

or

I

don't

feel

well
,

and

it's

just

nice

to

have
.

It's

nice

to

have

that
.

Speaker 1
6:05

Chelsea

is

on

the

nonprofit

board

with

me
,

shelby
,

and

then

there's

Lee

and

Inga

as

well
,

and

we

started

this

nonprofit

called

Indo

village

and

it's

been

really

good

for

us

to

have

a

space
,

with

other

endometriosis

patients

coming

in

and

bouncing

ideas

off

of

one

another
.

And

what's

been

so

fascinating

and

what

I'm

so

grateful

for

is

that

when

someone

walks

in
,

we

see

them
,

we

understand

exactly

what

they're

going

through

and

we

can

bounce

ideas

off

of

each

other

Like
,

hey
,

I'm

really

struggling

with

my

hormones
.

I

have

no

drive

at

all
.

Really
,

I

am

like

a

teenage

boy

over

here
.

Right
,

what

did

you

do
?

Oh
,

you're

taking

testosterone
,

got

it
.

I

didn't

know

that

was

an

option
.

Or

hey
,

I

saw

this

doctor

and

they

were

amazing
.

They

understood

what

endometriosis

was
.

If

you

need

a

doctor

like

this
,

this

is

a

really

good

resource

for

you
.

So

like

pooling

your

resources

and

having

ideas

to

bounce

off

of

one

another
,

because
,

just

because

you

have

an

excision

surgery
,

that's

step

one
.

But

life

still

happens
,

right
?

This

disease

did

not

happen

overnight
,

right
?

Nor

is

healing
.

Speaker 2
7:13

It

takes

years

to

undo

the

damage
.

I

mean
,

I'm

more

than

three

years

out

from

surgery

and

I'm

still

in

pelvic

floor

physical

therapy

regularly
.

I'm

still

doing

regular

massages

and

stuff

to

treat

some

of

my

muscle

dysfunction

in

my

back
.

I

work

at

it

every

day
.

You

know

I'm

still

every

day

I'm

trying

new

things

and

I'm

testing

out

stuff

just

to

see

what

works

and

what

doesn't

work
.

Speaker 2
7:34

And

so

it's

a

marathon

and

it's

important

that

you

have

people

on

your

team

to

kind

of

jump

in

for

you

and

help

out

where

they

can

and

support

you

along

the

way
,

because

this

is

not

an

overnight

hey
,

head

surgery

and

I

feel

great

the

next

day

and

I'm

ready

to

go

and

I

have

my

life

back
.

It's

and

that

was
,

I

think
,

one

of

the

things

that

was

so

surprising

to

me

about

this

disease

was

I

had

surgery

and

I

woke

up

and

I'm

like

I

definitely

felt

better
.

Speaker 1
7:58

Yeah
.

Speaker 2
7:59

But

it

was

like

oh

no
,

I

still

don't

feel

great

Like

what's

going

on
.

Excuse

me
,

body
.

Yeah
,

excuse

me
,

you're

supposed

to

be

better
.

Speaker 1
8:07

You're

not

as

permission

to

feel

this

way

again
,

right
?

Speaker 2
8:10

Yes
,

exactly
,

and

you

know

it's

like

that

excision

is

the

first

step

and

there's

so

much

more

involved

in

it

and

I

think

having

that

community

during

this

marathon
,

it's

just
,

it's

so

important

and

I'm

so

happy

that

we

have

the

group

that

we

have
,

you

know
,

with

our

nonprofit

board
,

but

also

the

members

of

Endo

Village

that

come

to

our

meetings

every

month
.

We

do

in-person

meetings

every

month

where

we

bring

people

in
,

you

know
,

the

Northern

Colorado

area

together

and

sometimes

we

have

education

stuff
.

Sometimes

we

do

like

fun

events
,

Like

this

month

it's

going

to

be

a

social

event

and

it's

just
,

it's

nice
,

it's

so

fun

to

be

able

to

sit

and

I

look

forward

to

seeing

everybody

and

we've

we've

built

a

really

good

group

here

and

I

just

cannot

emphasize

enough

how

healing

that

has

been

for

all

of

us
,

I

think
.

Speaker 1
8:54

Yeah
,

I

would

agree
.

I

mean
,

I

feel

like

you

know

before

I've

had

really

good

friends

and

I

still

do

it

Like

you

guys

aren't

my

only

friends
.

Speaker 1
9:01

I

hate

to

break

that

to

you

that

you're

not

my

only
.

I

know

I

thought

I

was

it
.

You're

my

workwife
.

You're

still
.

You're

the

only

workwife

I

have

right

now
.

I

like

that
.

I'll

take

that
.

Yeah
,

okay
,

I

do

feel

like

it's

important

that

we

recognize

that

this

disease

can

be

lasting

and

I

think

that

when

you

gather

people

who

understand

that
,

it

becomes

a

different

bond
.

I

don't

really

know

how

to

explain

it
.

It's

a

totally

different

bond

than

what

you

would

typically

see

within

your

friend

group
,

because

we

get

it

right
.

Right
,

we

get

it
.

We

get

our

crazy
,

yep
,

oh
,

we

get

it

Probably

too

well
.

Speaker 2
9:37

Probably

too

well
.

Speaker 1
9:38

Like

the

trauma

that

we've

faced

in

the

past
.

If

you

have

trauma
,

we

get

that

Right
,

we

get
.

Hey
,

I

tried

this
,

I

did

too
,

and

it

was

awful
.

It

was

awful

for

me

too
.

I'm

not

crazy
,

nope
,

no
,

am

I

crazy
?

Well
,

yeah
,

probably

we

both

are
,

but

you

know

we're

crazy

together
,

Right
?

Speaker 2
9:55

No
,

it's

very

true
.

It's

very

validating

to

have

other

people

you

know
,

because

I

think
,

especially

during

the

diagnostic

process

of

this

disease
,

and

how

long

it

takes

you

just

you're

told

nothing's

wrong

with

you

forever

you

know
,

I

mean
,

it

took

me

22

years

to

get

diagnosed

and

so

you

know
,

with

people
,

with

having

that

group

of

people

where

it's

like
,

hey
,

like

I

know

that

my

feelings

are

valid
,

I

know

that

what

I'm

experiencing

in

my

body

is

actually

true
.

Speaker 2
10:22

And

this

is

true
,

and

it's

so

nice

to

have

people

on

your

side

that

really

understand

that
,

but

it's

also

important

to

find

people

that

you

can

laugh

with
.

Oh

yeah
,

we

laugh

more

than

we

actually

do

anything

else
.

It's

so

true
.

It's

so

true
,

yeah
.

Speaker 1
10:37

And

I

do

think

like

that

is

part

of

that

healing

process
.

I

feel

like

we're

in

this
.

I

think

for

years

I

was

in

this

trauma
,

pain

cycle
.

And

it

was

hard

to

laugh

sometimes

because

I

was

grieving

what

I

wanted

my

body

to

do

and

wasn't

doing
.

And

then

I

just

feel

like
,

because

I

went

through

some

trauma

with

some

doctors

or

you

know

it's
,

all

of

that

was

a

lot

that

if

you

don't

laugh
,

you

don't

heal
.

Speaker 2
11:05

No
,

I

agree
.

I

think

laughter
,

like

they

say
,

laughter

is

the

best

medicine
,

and

they

do
.

It

sounds

cliche
,

but

it

is

so

true
.

I

mean
,

we

have

laughed

our

way

through

a

lot

of

trauma
,

I

think
.

And

it

really

does

help
.

It

really

has

made

a

huge

impact

on

my

healing

and

how

I

feel

emotionally

and

now

we

have

great

jokes

and

we

have

a

great

time
.

Speaker 1
11:26

We

think

we're

really

funny
.

We

think

we're

so

funny
.

We

also

have

an

addiction

to

these

peach

drinks

from

Ziggy's
.

They

should

sponsor

us
.

Speaker 2
11:34

Yeah
,

no
,

we

really

do

need

that

sponsorship
.

I

feel

like

I

have

you

got

me

hooked

on

them

and

now

I've

gotten
,

like

all

of

my

outside

of

my

endo

group
,

all

of

my

other

girlfriends

hooked

on

them
.

My

friend

just

came

out

to

visit

from

Pennsylvania

and

I

took

her

to

Ziggy's

to

get

them

and

we

went

three

times

this

weekend

to

get

drinks
.

Speaker 1
11:50

I

know
.

Speaker 2
11:51

She's

like

can

we

go

to

Ziggy's

please
?

I

need

one

of

those

drinks
.

And

she

had

to

go

back

and

she

was

very

sad

that

they

don't

have

Ziggy's

out

there

so
.

Speaker 1
11:58

I

know

so
,

if

you're

ever

in

Colorado
.

Speaker 2
12:00

Go

get

the

peach

drink

at

Ziggy's
.

He

will

thank

us
.

It's

delicious
,

you

will

thank

us
,

it's

so

good
.

Speaker 1
12:05

But

I

mean
,

it's

always

like
,

hey
,

you

need

a

Ziggy's
,

yeah
,

I

need

to

Ziggy's
,

Right
.

Speaker 2
12:09

Yeah
.

Speaker 1
12:09

And

that's

our

love

language

between

each

other
.

I

love

it
.

Speaker 2
12:11

We're

like

when

I

know

she's

having

a

bad

day
.

I

go

to

Ziggy's

and

get

my

drink

and

I

bring

one

and

drop

it

by

her

house

on

my

way

home
.

I

literally

drive

20

minutes

to

Ziggy's

almost

and

get

my

drink
.

It's

terrible
.

It's

such

an

addiction
.

They're

putting

one

by

my

house
,

thankfully
,

but

it's

not

gonna

be
.

But

that's

not

so
,

thankfully
,

if

you

Right
.

No
,

it's

costing

me

a

fortune
.

Speaker 1
12:30

Yeah
,

I

know
,

we

need

that

sponsorship
.

Come

on
,

we

need

that

sponsorship
.

We're

not

sponsored

yet
.

Speaker 2
12:35

Yes
,

yeah
,

so

it

is
.

Community, Gratitude, and Chronic Illness

Speaker 2
12:39

I

mean
,

and

the

same

goes

for

you

You've

brought

me

Ziggy's

when

I

need

it

and

it's

like

hey
,

I

slept

two

hours

last

night
.

I'm

exhausted
.

It

was

up

all

night
.

I

had

hot

flashes
,

I

had

to

change

my

sheets

in

the

middle

of

the

night

because

I

was

so

sweaty
,

and

you

will

just

show

up

like

a

little

angel

from

heaven
,

from

the

goodies

heaven
,

to

bring

me

that

delicious

peach

drink
.

Speaker 1
13:00

So

I

would

like

to

think

that

I'm

an

angel
.

I'm

no

angel
.

Speaker 2
13:05

Oh
,

you

are

Well
.

No
,

maybe

not
.

Speaker 1
13:07

But

most

of

the

time

you

are
.

I'm

pretty

angelic
.

Sometimes

You're

pretty

angelic
.

I

mean

I

have

a

bell

that

I

ring

sometimes

to

call

my

family
.

Speaker 2
13:15

I'm

pretty

sure

I've

seen

a

halo

over

your

head

a

few

times
.

Speaker 1
13:18

Really

yeah
,

pretty

little
,

if

you

can

take

a

picture

next

time
,

I

can

prove

that

to

people
?

Speaker 1
13:21

Yeah
,

I'll

see

what

I

can

do
,

but

I

do

think

that

there's

value

in

having

gratitude

for

where

we're

at

and

where

we've

been
,

and

I

think

you

know

the

holidays

are

so

hard

for

so

many

people

and

it's

challenging

to

navigate
,

explaining

your

pain
,

your

fatigue
,

what

you're

going

through

to

family

members

that

maybe

don't

understand

it
,

and

or

functioning

through

all

the

different

things

that

we're

doing

on

a

daily

basis
,

whether

that's

cooking
,

cleaning
,

taking

care

of

family

members
,

trying

to

work
,

trying

to

walk

a

dog
.

And

then

you

add

the

holidays

to

that

and

it's

significantly

harder

and

the

stress

goes

up
,

inflammation

goes

up
,

flares

are

the

worst

during

the

holidays
,

and

so

just

having

that

community

in

that

base

of

okay
,

I

can

talk

to

someone

about

this
,

and

having

gratitude

for

that

too
,

yeah
,

it's

huge
.

Speaker 2
14:18

No
,

it

is

huge
.

I

am

so

grateful

for

you
,

for

the

other

women

on

our

team

that

we

have

here
.

It's

just

amazing

how

something

that

was

such

an

awful

point

in

my

life

and

such

an

awful

thing

to

experience

has

brought

so

much

joy

to

me

on

the

other

side

of

it
.

Yeah
,

with

these

friendships

and

the

relationships

that

we

have

with

each

other
,

it's

just
,

it's

magical

and

it's

nice

to

have

you
.

I'm

excited

for

the

holidays
,

actually

this

year

because

I

have

you

to

bounce

things

off

of

and

I

might

come

over

here

and

sleep

at

your

house
.

Speaker 1
14:50

You

can
,

If

you

can

get

past
.

She

hasn't

seen

my

giant

tree

that

I'm

getting

yet
,

but

I

usually

get

a

20

foot

Christmas

tree
.

Oh
,

that's

going

to

be

awesome
.

It

takes

up

this

whole

entryway
.

Speaker 2
15:00

I'm

really
.

I

love

the

people

that

put

Christmas

up

really

early
,

but

also

it

makes

me

feel

really

inadequate
.

Speaker 1
15:05

I'm

looking

behind
,

so

I'm

really

happy

that

I

showed

up

to

you

and

you

don't

have

a

Christmas

tree
.

I

saw

my

pumpkins
?

Speaker 1
15:09

Yeah
,

no

kind

of

the

squirrels

are

eating

more

than

half

of

them
.

I

usually

have

like
,

so

this

is

an

embarrassing

story

about

me
.

Every

year

we

go

to

this

pumpkin

patch

kind

of

close

to

our

house

and

they

have

the

best

pumpkins

because

they

have

all

the

different

colors
.

So

I'm

not

the

person

that

loves

just

big
,

round

orange

pumpkins
.

I

like

pumpkins

that

are

blue
,

green
,

pink
.

If

they

had

purple

ones

I'd

probably

have

those

too
.

I

love

gourds
.

I

love

little

warty

pumpkins

and

different

shapes

and

stuff
.

So

every

year

we

go

I'm

like

I'm

just

I'm

only

going

to

get

like

maybe

five

or

maybe

five
.

I

walked

away

with

92

pounds

of

pumpkins
.

Oh

my

gosh
.

Speaker 2
15:52

And

now

I

feel

like

that's

like

a

small

human
.

It's

more

than

my

kids
.

It's

more

than

my

kids
.

Speaker 1
15:59

It

weighs

more

than

my

kids
.

That's

like

a

teenager
.

That's

amazing
.

You

have

a

teenager's

weight

worth

of

pumpkins
,

yeah
,

and

I

actually

have

to

struggle

to

find

space

for

all

of

them
.

So

I

put

some

out

front

for

decoration

when

people

walk

in
,

because

I

love

fall
.

It's

my

favorite

season

and

the

squirrels

every

year

eat

them
,

and

everyone

else

has

pumpkins

on

their

porches

in

my

neighborhood
.

Do

you

think

they

get

eaten
?

Nope
,

they

just

know

you're

really

generous
.

Speaker 2
16:24

I

am

generous

with

my

pumpkins
.

They're

just

a

generous

human

and

they

know

that

they're

not

going

to

get

shot

at
.

They're

eating

your

pumpkins
.

Maybe

your

neighbors
?

They're

a

little

worried
,

I

don't

know
.

They

should

be
.

Speaker 1
16:34

Yeah
,

yeah
,

they

should

be
,

but

I

do

have

the

pumpkins
.

Speaker 2
16:39

But

then

I'm

at

her

house

and

she

has

a

lot

of

pumpkins
.

I

have

a

lot

of

pumpkins
.

There's

a

lot

of

pumpkins

here
.

Speaker 1
16:44

Yeah
,

I

do

have

a

lot

and

they're

like

all

different
.

I'll

have

to

take

a

picture
.

I'm

going

to

post

it

with

this
.

Speaker 2
16:49

Yeah
.

Speaker 1
16:50

So

you

guys

can

see

all

my

pumpkins
.

The

point

of

that

is

is

that

holidays

and

community

are

important
.

They're

so

important

and

having

a

relationship

where

you

can

just

come

and

just

digest

what

is

happening

in

your

life

or

having

someone

show

up

on

your

doorstep

with

something

that

you

need
,

is

so

important
,

and

I

think

that

with

the

Indimitriosis

community
,

these

people

are

made

different
.

Speaker 2
17:12

Yeah
,

oh

yes
.

Speaker 1
17:13

You

know
,

like

I

have

met

so

many

amazing

people

through

this

community

who

will

step

up

and

support

you

in

any

way

that

they

can
,

and

I

don't

know

if

that's

common

within

chronic

illness

communities

or

not
,

but

I

will

say

that

within

this

community

specifically
,

I

have

felt

so

welcomed
,

which

is

odd

to

say
.

I

feel

welcomed

in

a

chronic

illness

community
.

That

sounds

terrible
,

but

it's

true

because

people

want

to

help

you

Right
.

They

want

you

to

have

the

best

quality

life
.

Speaker 2
17:48

You

can
,

yeah
,

and

they

will

take

time

out

of

their

day

to

talk

with

you
,

to

explain

things
,

to

give

you

resources

and

refer

you

to

specialists
.

Speaker 2
17:58

And

I

mean

like

we

spend

a

lot

of

our

time

advocating

for

patients

in

Northern

Colorado

and

explaining

hey
,

you

know
,

these

are

the

doctors

that

people

have

had

great

luck

with

here
,

these

are

the

doctors

that

have

good

results

that

you

know
,

and

we

share

a

lot

of

that

information

and

I

think
,

I

would

like

to

think
,

that

we've

helped

quite

a

few

people

find

a

better

life

on

the

other

side

of

excision

surgery

and

all

the

other

things

that

come

with

that
.

Speaker 1
18:22

So

Well
,

I

think

it's

true
.

I

mean
,

I

see

it

worldwide
,

within

the

community
.

Speaker 1
18:27

Oh

yeah
,

and

you

just

have

to

reach

out

and

ask

for

support

and

people

are

there

for

you

and

support's

going

to

look

different

for

everyone
.

I

think

the

other

part

of

this
,

too
,

is

we

talk

about

support
,

but

support

might

look

different

for

you
.

Where

you

can

support

by
,

you

know
,

giving

material

that

is

good
,

evidence-based

material
,

yeah
.

Or

support

might

be

I

have

a

really

good

ear

to

listen

to

you

or

support

might

just

be

hey
,

here's

a

link
,

here's

a

position

to

go
,

or

place

to

go
,

here's
,

you

know

it's

support

and

gifts

within

supporting

are

all

different
.

Yes
.

Speaker 2
19:03

Yeah
,

it's

kind

of

like

the

love

language

thing

where
,

like

some

people
,

are

really

great

at

gift

giving
,

you

know
.

And

so

those

are

the

people

that

we

want

on

our

team

to

do

our

care

packages

for

patients

that

are

having

surgery
,

you

know
.

And

then

there's

some

people

who

are

great

at

listening
,

and

those

are

the

people

when

we're

having

the

bad

day

that

we

contact
,

and

so

we

do

have

a

good

group

of

patients

here

in
.

Speaker 1
19:25

Northern
.

Speaker 2
19:25

Colorado

that

we

can

bounce

things

off

of

and

that

I'll

have

their

different

strengths

and

weaknesses
.

And

we

really

work

to

play

into

those

with

them

and

and

it's

different

for

everybody
,

everybody

is

a

little

bit

different

in

what

they're

doing
.

I

do

think

it's

important

to

you

know

for

those

that

are

listening
.

The Power of Online Support Groups

Speaker 2
19:42

You

know

we

have

an

in-person

support

group

but
,

finding

support

in

any

way

that

you

can
.

You

know

we're

blessed

with

social

media
.

It's

a

blessing

and

a

curse
.

Speaker 1
19:50

I

feel

like

yes
.

Speaker 2
19:52

Oh
,

and

I

complain

a

lot

about

Facebook
.

Speaker 1
19:55

They

need

to

get

their

act

together

and

make

things

better
.

That's

all

I

have

to

say
.

Speaker 2
19:58

Yeah
,

come

on
,

Mark

Zuckerberg
.

Speaker 1
20:01

Yeah
,

we're

like

together

here
.

Is

he

still

in

Facebook
?

I

don't

even

know
.

I

don't

even

know
.

I

think

he's

a

robot
.

Speaker 2
20:09

So

you

know

we

talk

about

community

and

we

talk

about

in-person

and

you

know

finding

your

people

locally

if

you

can
.

But

if

you

don't

have

that

ability

you

don't

have

that

opportunity
.

Maybe

you're

in

a

rural

area

or

there's

just

you

know

you're

not

wanting

to

put

yourself

out

there

to

find

those

people
.

Online

can

be

a

really

great

place

for

support
.

It's

amazing

the

support

that

I

found

through

different

Facebook

groups

and

it's

just
.

It's

really

helped

a

lot
,

like

my

mom

had
.

My

mom

and

I

both

have

a

rare

vascular

compression

disorder
.

It's

called

Maytherner

Syndrome

and

she

was

diagnosed

in

the

early

2000s

and

after

years

and

years

and

decades

of

drama

and

pain

and

misery

and

all

this

stuff

and

she

had

no

community

she

doesn't

know

anybody

else

that

has

this

Right
.

There

is

nobody

that

she

could

be

like

hey
,

I'm

having

a

bad

day
,

hey
,

my

leg

hurts
,

this

and

this

is

going

on
,

I

have

another

blood

clot
,

I

have

this

issue
.

There's

nobody

for

her

to

talk

to
.

Speaker 2
21:05

And

now

I

have

the

same
.

You

know
,

I

was

diagnosed

with

the

same

condition

a

few

years

ago

and

it's

amazing
.

I'm

in

a

Facebook

group

with

like

4,000

other

patients

and

we

can

bounce

stuff

off

each

other
.

We

can

share

our

doctors
,

we

can

share

our

experiences
.

These

things

worked

really

well

for

me
.

This

didn't

work
.

This

is

a

great

plan
.

This

wasn't

great

for

me
,

and

it's

just
.

It

makes

me

so

sad

when

I

think

about

my

mom

going

through
,

you

know
,

decades

of

this

pain

and

misery

by

herself
,

with

nobody

that

understands

it
,

because

it's

a

rare
.

They

say

it's

rare
.

It's

probably

not

as

rare

as

I

think

it

is
.

Speaker 1
21:38

Yeah
,

and

in

vitreous
.

This

was

really

when

I

first

got

there
.

Speaker 2
21:41

They

always

say
,

oh
,

this

is

so

rare
,

and

it's

like
,

oh
,

actually

everybody

has

it

pretty

much

so

you're

like

I

can

count

them

on

all

my

fingers

and

toes

Right

yeah
.

Speaker 2
21:48

So

you

know
,

and

it

probably

would

have

made

a

huge

impact

on

her

if

she

would

have

had

that

support

you

know
,

I

mean
,

she

had

her

family

and

we

understood

because

we

watched

her

go

through

it
,

and

but

it

would

have

made

a

huge

difference
,

I

think
,

and

so

it's
.

It's

important

to

use

those

resources

that

are

available

to

you
.

There

are

a

lot

of

support

groups

out

there
,

and

if

there

isn't

one
,

start

one

for

your

community

Right
.

Start

something
.

All

you

have

to

do

is

get

together
,

that's

it
.

Just

find

some

like-minded

people
.

Find

them

online
.

Find

them

in

person
,

however
,

you

have

to

find

them
,

but

it

makes

a

huge

difference
.

Speaker 2
22:20

It

has

completely

changed

my

life

in

such

a

good

way
,

finding

you

guys
.

Speaker 1
22:25

Yeah
,

I

mean

and

that's

what

I

was

saying

too

is

like

I've

had

a

friend

group

for

a

long

time

and

I

love

them
,

but

this

is

it's

a

different

field
,

it's

a

different

dynamic

of

support
.

It's

a

different

kind

of

friendship
.

And

and

they're

all

great

and

we

need

them

all

because

if

we

inundate

ourselves

with

just

endometriosis
,

right
.

Speaker 2
22:48

Oh
,

that's

a

lot
.

Speaker 1
22:49

It's

a

big
,

I

mean

it's
.

It's

heavy
.

It

can

be

really
,

really

heavy
,

and

we

deal

with

things

constantly

that

are

more

and

more

challenging

every

day
.

Navigating

this

disease

is

not

easy

and

it's

certainly

you

should

never

do

it

alone
,

but

sometimes

you

have

to

step

out

of

that

and

have

other

community

people

too
.

You

know

you

have

to

have

another

support

system
,

but

I

also

think

that's

part

of

like

education
,

because

you

have
,

like
,

one

of

your

best

friends

knows

more

about

endometriosis

now

and

has

been

able

to

help

other

people

right

with

diagnosis

and

other

ways

of

like
.

Hey
,

that

sounds

like

it

could

be

endometriosis
.

Have

you

ever

heard

about

that
,

you

know
?

Speaker 2
23:28

yeah
,

and

really

I

mean

it's

from

her

listening

to

me

bitch

and

moan

for

the

We've

been

friends

since

we

were

16
.

So

she's

been

along

with

me

on

this

ride
,

with

me

from

almost

day

one

and

it's

amazing

her

talking

to

her
,

she

sounds

like

an

endometriosis

advocate
.

Speaker 2
23:43

When

I

talk

to

her

about

stuff
,

she'll

be

like

oh
,

did

you

see

I've
?

She

follows

a

lot

of

the

endometriosis

surgeons

that

we

are

friends

with

and

that

we

follow
.

And

did

you

see

this
?

There's

new

research
,

there's

this
.

Did

you

see

this

person's

here

and

doing

these

things

and

received

this

award
?

And

it's

so

fun

watching

her

like

be

my

little
,

like

mini

best

friend

advocate

and

it's

one

of

my

favorite

things

and

she

really

has

helped

a

lot

of

people
.

Same

thing

I

have

a

neighbor

who

is

the

same

way

like

as

soon

as

somebody

says

anything

about

their

periods
,

she

will

be

like

I

have

the

person

you

have

to

learn

about

this
.

This

is

what

this

is
.

If

you

google

it
,

it's

probably

going

to

be

crazy

information

and

it

might

be

wrong
.

So

call

her
,

here's

her

number

and

she

knows

like

she

fights

for

people

to

get

good

information

and

it's

awesome
.

And

that's

the

other

thing

is

like

growing

our

community

outside

of

the

just

the

patients

into

the

supporting

people

of

the

patients

and

how

they

can

impact

other

people's

health

in

their

lives
.

Speaker 1
24:39

Yeah
,

I'm

so

grateful

for

you
,

I'm

so

grateful

for

this

community
,

I'm

so

grateful

for

all

of

you

listeners

who

have

impacted

my

life

in

such

a

positive

way

and

this

has

been

such

a

fun

journey

to

walk

with

people

on
.

It's

been

hard
,

it's

been

challenging

and

it's

been

heartbreaking

at

times
,

but

it's

also

really
,

really

rewarding

and

I'm

so

grateful

that

I

have

the

listeners

and

the

support

people

behind

me
.

That's

ever

all

the

people

that

have

come

on

the

podcast
.

To

the

people

that

maybe

you

don't

hear

the

voices

of

us

as

often
,

they're

still

there
.

They're

still

being

my

cheerleaders

and

helping

me

and

figuring

out
.

You

know
,

here's

some

really

good

information

you

should

talk

about

here's
.

You

know
,

yeah
,

and

just

having

that
,

that

support

outside

of

just

friends
,

its

support

in

the

community
,

and

it's

so

needed

and

that

is

how

we

will

heal

as

a

community
,

that

is

how

we

will

grow
,

and

I

do

think

having

gratitude

is

going

to

really

allow

us

the

energy

and

space

to

keep

going
.

Speaker 2
25:47

I

agree
,

gratitude

is

one

of

the

most

important

things
,

I

think
,

and

it's

hard

to

find

that

sometimes

when

you're

in

it
.

Yeah
,

when

you

wake

up

every

day

and

you're

miserable
,

but

it's

like
,

hey
,

I'm

grateful

I

found

the

surgeon

I

found

I'm

grateful

that

I

was

able

to

have

the

surgery

that
.

I

had

I'm

grateful

that

I

have

an

awesome

pelvic

floor

physical

therapist
.

That

is

one

of

the

funniest

people

I've

ever

met
.

Speaker 1
26:08

We

love

her
,

we

love

her
.

Speaker 2
26:09

Hilarious
,

so

funny
,

so

fun
.

She's

the

best
.

So

you

know
,

and

it's

sometimes

it's

just

finding

those

things
,

and

then

there's

some

days

where

it's

like

you

know

what

the

only

thing

I'm

grateful

for

is

my

peachy

drink
.

Speaker 1
26:22

Ziggy's
,

and

that's

all

I

can

find

gratitude

for

$8

a

piece

Ziggy's
.

Come

on
,

I

can't

afford

that
.

Speaker 2
26:30

We're

going

broke

on

your

drinks
,

but

sometimes

that's

it
,

you

know

sometimes

you

have

days
,

but

it's

most

of

them

tend

to

be

better

than

that
,

and

a

lot

of

that

is

because

we

have

this

community

and

absolutely

each

other

to

pull

each

other

out

of

the

funk

when

we

get

Gratitude and Community Support

Speaker 2
26:43

into

it
.

Speaker 1
26:43

So
,

and

if

it's

hard

to

find

gratitude
,

there

is

one

thing

you

can

be

grateful

for

is

that

there's

others

in

this

with

you
.

Absolutely
,

yeah
.

So

that's

what

we

want

to

just

impart

with

you

is

that

gratitude

makes

a

huge

difference
,

but

I

am

so

grateful

for

this

community

and

the

way

that

it

supports

one

another
.

We

hear

you
,

we

see

you

and

we

want

to

live

in

this

journey

with

you

so

that

we

can

all

do

it

better

together
.

Absolutely
,

so
,

until

next

time
,

enjoy

your

Thanksgiving

and

continue

advocating

for

you

and

for

those

that

you

love
.

Thanks
,

chelsea
,

thank

you
,

alana
.

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