Embracing the Journey: Finding Peace, Self-Love, and Community in the Face of Endometriosis with Amy Corfeli

The First Podcast
The First Podcast
Embracing the Journey: Finding Peace, Self-Love, and Community in the Face of Endometriosis with Amy Corfeli
Loading
/

Send us a text with a question or thought on this episode ( We cannot replay from this link)

Have you ever felt dismissed, gaslighted or faced severe undiagnosed symptoms of a chronic condition like endometriosis and adenomyosis? Our guest, Amy Corfeli, host of ‘In 16 Years of Endo’ and author of ‘Finding Peace with a Devastating Disease’, takes us on her personal journey of resilience, acceptance and self-compassion. Amy’s story underscores the emotional toll of these diseases and the importance of integrating them into one’s life, finding a new normal that focuses on self-care, and battling feelings of inadequacy with self-compassion.

We venture into exploring self-compassion and self-acceptance, concepts often dismissed as trivial but in reality, they are crucial for your emotional well-being. Through sharing our personal experiences, we give you tools for self-awareness and kindness to oneself. We talk about the origins of the self-critic, how societal expectations and discrimination feed it. We dive deep into the topic of self-acceptance, learning to embrace our imperfections, and growing from them. We also touch on the role of shame and the importance of separating oneself from negative self-talk. This episode is a journey towards self-love.

Living with a chronic illness can feel isolating, and we delve into the emotional toll of endometriosis and the challenges faced by those who suffer from it. We stress the importance of finding a supportive community. Amy shares insights from her book and her ongoing journey of finding peace and acceptance with endometriosis. As we close, Amy shares her thoughts on acknowledging and sitting with our emotions without letting them consume us. We aim to equip you with a dose of validation, understanding, and shared resilience. You are not alone on this journey. Tune in for a conversation filled with acceptance, self-love and the power of a supportive community in the face of chronic illness.

Find ‘In 16 Years of Endo’ podcast HERE
Read ‘Finding Peace with a Devastating Disease’ HERE

Support the show

Website endobattery.com

Instagram: EndoBattery

Navigating Endometriosis and Adenomyosis Journey

Speaker 1
0:03

Welcome

to

Indobattery
,

where

I

share

about

my

endometriosis

and

adenomyosis

story

and

continue

learning

along

the

way
.

This

podcast

is

not

a

substitute

for

professional

medical

advice

or

diagnosis
,

but

a

place

to

equip

you

with

information

and

a

sense

of

community
,

ensuring

you

never

have

to

face

this

journey

alone
.

Join

me

as

I

navigate

the

ups

and

downs

and

share

stories

of

strength
,

resilience

and

hope
.

While

navigating

the

world

of

endometriosis

and

adenomyosis
,

from

personal

experience

to

expert

insights
,

I'm

your

host
,

elana
,

and

this

is

Indobattery

charging

our

lives

when

endometriosis

drains

us
.

Welcome

back

to

Indobattery

Today
.

Speaker 1
0:43

My

guest

is

not

only

a

phenomenal

human

but

a

phenomenal

advocate
.

She

is

the

host

of

In

16

Years

of

Indo

and

is

the

author

of

Finding

Peace

with

a

Devastating

Disease
.

Welcome
,

amy

Corvalli
.

Welcome
.

Thank

you

so

much

for

coming

on

today

and

being

able

to

share

some

of

your

journey
.

Your

passion

is

really

grounded

in

your

journey
.

Can

you

give

us

just

a

taste

of

where

you've

been

on

your

journey

with

endometriosis
,

and

then

we

can

even

talk

about

the

advocacy

as

well
?

But

really

your

journey

is

what

kick

started

you

into

the

advocacy

and

into

your

podcast

and

into

your

book
.

So

if

you

can

give

us

just

a

little

bit

of

your

story
,

that

would

be

great
.

Speaker 2
1:27

Yeah
,

thanks
,

Elana
.

Well
,

first

of

all
,

thank

you

so

much

for

having

me

here

today
.

Really

pleased

to

be

here
.

Like

you

said
,

my

name

is

Amy

Corvalli
.

My

pronouns

are

she
,

her
.

I

think
,

like

most

of

us
,

my

story

is

just

pretty

much

full

of

gaslighting
,

dismissal

and

normalization

of

symptoms
.

Started

having

symptoms

when

I

was

in

high

school
.

We

went

to

a

bunch

of

doctors

for

like

the

first

year
,

did

colonoscopies
,

endoscopy
,

stool

tests
,

neurological

tests
,

having

a

lot

of

brain

fog

and

fatigue

and

stuff

like

that
,

but

of

course

no

one

found

everything
.

Everything

was

normal
,

just

like

so

normal
.

Speaker 2
2:09

It

all

happened

yeah

so
,

as

everything

was

so

fabulously

normal
,

the

support

began

to

fall

away
,

the

support

of

my

family
,

the

support

of

my

friends
,

the

support

of

the

people

around

me
,

just

like

pretty

much

everyone

started

actively

gaslighting

and

dismissing

what

I

was

feeling
,

which

I

think

a

lot

of

people

can

relate

to
,

right
,

and

that's

really

hard
.

So

then

I

just

went

through

the

next

like

16

years

with

no

diagnosis

and

living

with

really

severe

symptoms
,

symptoms

that

disrupted

my

college

experience
,

my

work

experience
.

I

couldn't

work

for

a

while
,

I

got

fired

from

some

jobs
.

It's

just

living

with

this

disease

is

incredibly

hard
.

It

devastates

every

single

aspect

of

your

life
.

And

yeah
,

I

got

diagnosed

at

33

years

old

and

really

by

that

point

I'd

pretty

much

given

up
.

Speaker 2
3:02

I

just

thought

that

I

was

sensitive

I

just

quote

unquote

sensitive

and

quote

unquote

weak

and

that

I

just

wasn't

adequate

and

that

my

body

was

broken

and

that

was

the

reason

why

I

was

sick

and

it

was

probably

psychosomatic
.

And

the

only

reason

I

did

get

diagnosed

is

because
,

I

guess
,

when

I

was

around

like

30
,

my

symptoms
,

which

were

severe

every

single

day
,

but

they

got

even

more

severe

I

started

my

worst
,

most

excruciating
,

unbearable

pain
,

like

probably

for

so

many

listeners
.

So

it

was

with

my

period

and
,

of

course
,

every

month

it's

like

you're

when

I

was

16

years

old

that

break

your

back
,

scream
,

ride

on

the

floor
,

pain

maybe

only

happened

for

like

two
,

three

hours

by

the

time

I

was

30
,

it

was

going

on

for

like

a

week
,

right
,

and

you're

just

like

literally

debilitated
,

disabled

by

pain
,

for

more

than

a

week

in

bed
,

ruining

your

life
.

And

that

pain

started

happening

away

from

my

menstrual

cycle
.

So

that

kind

of

started

indicating

to

me

like

maybe

something

else

is

going

on

here
,

because

I

started

having

that

same
,

what

I

considered

menstrual

pain
,

but

I

know

now

it

was

endopain
.

But

that

like

unbearable

you

know
,

crawl

out

of

your

skin
,

endopain
,

I

don't

know

when

I

drank

a

glass

of

cold

water

or

when

I

would

bend

over

and

tie

my

shoe

or

go

over

a

speed

bump
.

So

I

started

getting

these

signals
.

You

know

that
,

okay
,

maybe

there

is

something

seriously

wrong

with

me
,

because

I

had

lost

touch

with

the

idea

that

something

was

seriously

wrong

with

me
.

There

was

something

seriously

wrong

with

me
.

Speaker 2
4:33

By

the

time

I

was

diagnosed

I

had

a

partial

bowel

blockage
.

In

fact
,

every

time

I

ate

I

was

throwing

up

because
,

you

know
,

but

again

that's

gets

blamed

on
.

Plus
,

you

know
,

I

always

have

had

a

lot

of

chronic

diarrhea

with

my

symptoms
.

So

then

that

gets

blamed

on

like

eating

disorders
,

things

like

that
,

so

which

I

didn't

have
.

But

you

know
,

every

time

you

go

for

help

people
,

people

find

a

reason

why

it's

not

something

physical

and

it's

like

something

emotionally

wrong

with

you
.

Speaker 2
5:00

So

I

think

a

big

part

of

my

journey

has

been

relearning

how

to

trust

myself

and

relearning

how

to

have

that

self-compassion

with

myself
.

Speaker 2
5:09

You

mentioned

my

book
,

finding

Peace

for

the

Devastating

Disease
,

and

these

are

reflections

that

I

started

writing

even

before

I

was

diagnosed

because

you

know
,

I

think

maybe

it

was

like

28

or

something
,

but

I

could

no

longer

take

NSAIDs

right

Like

I've

been

taken

to

proxen
,

like

it

was
,

you

know
,

tic-tacs

for

you

know
,

over

a

decade

and

I

ended

up

getting

really

bad

gastritis
.

This

was

diagnosed

via

endostopy

and

I

had

to

stop

taking

them

because

my

esophagus

was

like

being

destroyed

and

I

realized

like

I

don't

know

how

I'm

going

to

live

with

that

pain
,

like

if

I

can't

have

NSAIDs
.

And

I

was

trying

to

work

with

my

doctor

and

we

were

trying

things

like

Vicodin
,

tramadol
,

you

know
,

tylenol
,

but

like

none

of

that

did

anything

for

the

pain

and

it

came

to

a

point

where

it

was

just

like

I

need

to

figure

out

how

to

be

with

my

pain
.

I

need

to

figure

out

how

to

be

with

my

body
,

with

myself
,

with

my

life
,

or

I

don't

think

I'm

going

to

make

it

further

Like

I

think
,

I'm

going

to

end

up

unaliving

myself
,

right
?

Speaker 2
6:13

So

I

think

that

like

set

me

down

a

path

of

doing

a

lot

of

like

emotional

and

spiritual

healing

to

try

to

cope

and

find

the

tools

to

cope

and

also

to

find

acceptance

and

ultimately

try

and

find

peace

with

all

of

the

circumstances

that

I

was

facing

in

my

life

that

were

extremely

devastating
.

Embracing Endometriosis

Speaker 1
6:36

Right

and

I

do

feel

like
,

for

all

the

years
,

that

it

takes

a

lot

of

us

to

get

a

diagnosis

of

endometriosis
,

and

those

are

years

of

layering

on

the

trauma
,

layering

on

failed

expectations
,

layering

on

the

feeling

of

being

a

failure
,

of

being

inadequate
,

of

being

why

is

this

my

lot

in

life

and

you've

had

ruined

relationships
,

you've

had

ruined

jobs

and

I

think

that

for

me
,

I

really

came

to

terms

with

the

fact

that

my

body

is

unique
.

But

it

didn't

happen

overnight

and
,

if

I

would

dare

say
,

I

am

still

going

through

that

journey

now

of

figuring

out

my

body

is

unique
.

My

body

is

not

made

the

same

as

anyone

else's
.

I

mean
,

even

as

an

endometriosis

patient
,

my

body

is

still

different

than

every

other

endometriosis

patient

and

we

can't

quantify

everyone's

story

the

same
.

It's

very
,

very

different
.

Speaker 1
7:38

And

what

has

led

us

to

the

path

of

this
?

But

I

think

something

that

I've

really

admired

about

you

and

what

you're

doing
,

not

only

in

your

podcast

but

in

your

book
,

is

when

you're

talking

about

coming

to

terms

with

this

diagnosis

and

the

things

that

you've

had

to

deal

with

in

this

diagnosis
.

Can

you

kind

of

explain

that

even

more
,

because

I

think

you

have

such

a

beautiful

way

of

allowing

others

to

see

that

it

is

okay

to

find

that

piece
,

it

is

okay

to

step

in

a

place

of
.

This

is

who

we

are

and

we're

going

to

live

life

continuing

to

heal
.

Speaker 2
8:16

Yeah
,

I

think

that

you

know
,

I

think

it

is

a

lifelong

journey

really

to

find

acceptance
,

to

find

peace
,

to

find

these

coping

mechanisms
,

like

especially

with

chronic

disease

it's
,

you

know
,

I

think

all

of

these

are

skills
.

I

think

it's

a

skill

to

have

peace
,

to

have

acceptance
,

to

have

self-compassion
,

to
,

you

know
,

not

ruminate

so

much
,

not

catastrophize

so

much
,

to

be

with

your
,

to

learn

to

be

with

your

pain
.

I

think

all

of

these

are

skills

that

we

can

learn

and

that

we

can

get

better

at
.

And

something

that

I

love

is

a

quote

by

Peter

Levine

that

says

without

the

tools
,

trauma

rules
.

And

I

think
,

yeah
,

I

think

that

is

just

brilliant

because
,

you

know
,

for

the

first

28

years

of

my

life
,

I

did

not

have

any

tools
,

and

I

really

mean

like

no

tools
.

I

came

from

a

difficult

childhood

home

with

pretty

much

no

emotional

support
,

so

like

very
,

you

know
,

stunted

emotional

support

there

by

the

time

I

was

30
,

I

had

two

divorces
.

Okay
,

so

my

yeah
,

it's
,

I

didn't

have

the

tools
.

People
,

let

me

tell

you
,

and

the

trauma

ruled
.

Speaker 1
9:30

Yeah
,

yeah
.

Speaker 2
9:33

And

so

then
,

as

I

started

learning

these

tools

which
,

you

know
,

at

this

point
,

I've

been

learning

the

tools

for

about

10

years

Everything

started

to

change

for

me
,

you

know
,

and

in

many

ways

my

life

outside

didn't

change
,

my

circumstances

didn't

change
,

my

pain

didn't

change
.

My

pain

was

still
,

just
,

as

you

know
,

bad
,

like

passing

out

on

the

toilet
,

screaming

writhing
,

contemplating

if

I

should

go

to

the

ER
.

But

I

began

to

change
,

you

know
,

and

by

me

changing

in

a

way
,

then

my

life

changed

right
.

So

my

life

was

the

same

and

it

was

the

same

devastation
,

but

the

way

I

was

handling

it

was

different
,

the

way

I

thought

about

it

was

different
,

the

way

I
,

the

way

I

was
,

dare

I

say
,

embracing

it

was

different
.

Speaker 2
10:20

And

I

spent

so

much

of

my

life

fighting

against

this

disease
,

you

know
,

fighting

against
.

I

don't

want

to

be

sick
,

I

want

things

to

go

back

to

the

way

they

were
,

I

want

to

go

back

to

normal

or
,

you

know
,

before

having

symptoms
,

but

it's

like

news

flashing

me

at
.

You

know
,

you're

28
,

you've

been

sick

for

12

years

at

this

point
,

like

you've

been

sick

for

over

half
,

almost

half

your

life
,

and

at

this

point
,

more

than

half

of

my

life

have

been

sick
.

So

at

some

point

it

became

about
.

How

can

I

look

around

me

and

see

this

life
,

that

this
?

You

know

that

this

wrecking

ball

of

endometriosis

has

come

in

and
,

like

my

life
,

has

been

devastated

and

crushed

in

many

ways
,

I

feel
,

you

know
,

ruined

in

some

ways

not

all

ruined
,

but

ruined

relationships
,

ruined

career

opportunities
.

You

know
,

how

can

I

look

at

these

ruins

around

me

and

this

catastrophe

and

how

can

I

build

something

with

that
?

How

can

I
,

instead

of

pushing

this

away

and

saying

I

don't

want

this
,

I

don't

want

this
,

with

every

bone

in

my

body

I

don't

want

this
,

and

say

I

have

this
,

this

is

absolutely

the

only

thing

I

have
,

you

know

this
,

this

breath

that's

keeping

me

alive
,

and

this

like

ruined

landscape

before

me

because

of

endometriosis
.

So

how

can

I

integrate

this

into

my

life
?

You

know
,

how

can

I

start

building

a

life

with

endometriosis
?

How

can

I

start

processing

my

feelings
?

Speaker 2
11:50

Because

I'm

angry
,

I

am

furious

and

I
.

That

is

completely

normal

and

natural
.

Of

course

I'm

angry
,

of

course

I'm

furious
,

but

you

know

what
?

That

anger

is

destroying

me
,

maybe

even

more

than

the

endometriosis

itself
.

Like

that

anger

is

festering

inside

of

me

and

I'm

bitter

and

I'm

mean

and

I'm

cruel

and

I

trauma

dump

all

the

time

and

I

whine

and

I

never

smile

and
,

like

this

disease

is
,

has

and

is

destroying

my

life
,

but

also
,

like

the

way

that

I'm

facing

it

is

also

destroying

my

life

and

I

think

to

look

at

your

life

and

look

at

yourself
,

you

also

have

to

learn

to

cultivate

so

much

self-compassion
,

because

this

isn't

a

case

of

saying

like
,

okay
,

now

I'm

gonna

be

mad

at

myself

because

of

the

way

I've

handled

it
.

Speaker 2
12:39

It's

been

really

poor

for

12

years
.

No
,

no
,

the

way

I

handled

it

was

the

best

that

I

could
.

There's

no

manual

for

dealing

with

getting

sick

when

in

your

last

year

of

high

school

and

then
,

like

you

know
,

crapping

on

the

sidewalks

in

front

of

people

because

your

diarrhea

was

so

bad

and

bleeding

through

your

office

chair

on

the

first

day

of

work

and

falling

down

in

the

subway

and

everyone

gawking

at

you

because

you

know
,

and

like

calling

911

and

the

ambulance
.

There's

just
,

there's

no

manual

to

live

with

these

moments

that

we

are

living

with
,

right
.

So
,

cultivating

that

self-compassion

and

saying

like

I'm

doing

the

best

I

can

I

really

am
,

and

but

I

also

realized

that

I

wanna

do

it

a

different

way

you

know
.

Speaker 2
13:24

So

how

can

I

start

learning

a

new

way
,

how

can

I

start

learning

new

tools
,

how

can

I

start

learning

a

new

way

to

grow
?

And

how

can

I

give

myself

that

grace

during

this

whole

process

as

I

change

and

I

try

to

change

who

I

am

and

change

the

way

that

I

feel

about

my

life
?

Speaker 1
13:45

I

feel

like

giving

ourselves

grace

is

one

of

the

hardest

things

to

do
,

because

we

are

our

worst

critics

just

in

life
.

In

general
,

I

feel

like

we

tend

to

be

less

generous

with

the

grace

when

it

comes

to

us

because

we

have

to

live

in

our

bodies

and

we

have

high

expectations

of

ourselves

or
,

adversely
,

because

people

haven't

believed

us

for

so

long

that

maybe
,

just

maybe
,

they're

right
,

you

know
.

And

so

we

second

guess

ourselves

constantly
.

And

so

when

it

comes

to

grace
,

we

second

guess

do

we

deserve

the

grace

to

feel

the

way

we're

feeling
?

Do

we

deserve

the

grace

to

walk

a

life

that

isn't

easy

to

walk

and

say
,

you

know
,

you're

having

a

flare

and

you're

supposed

to

do

something
,

having

the

grace

to

say

I

can't

right

now

and

be

okay

with

that

and

not

feel

like

you

need

to

beat

yourself

up

for

not

being

able

to

do

something
.

Speaker 1
14:44

And

that's

really

hard

when

society

is

not

in

that

bubble

and

that

space

with

us
,

right
,

and

we

mentally

wanna

be

out

in

the

world

of

normal
,

normal
,

whatever

normal

is

right
.

We

wanna

be

in

that

world

of

normal
,

but

ultimately

we're

not
.

We

don't

feel

normal
,

we

don't

feel

right
,

we

don't
.

You

know
,

we

have

an

insurmountable

amount

of

fatigue

that

we

can't

navigate

normally
.

And

so

how

do

we

give

ourselves

that

grace
?

How

do

we

change

our

mindset

into

thinking

it

is

okay
,

it

is

okay

to

grieve

this
,

it

is

okay

to

give

ourselves

grace
?

How

do

we

switch

that

mindset

from

trauma

mindset

to

that

grace
?

Speaker 2
15:32

mindset
,

yeah
,

I

think
,

giving

our

self

self

compassion
.

The Importance of Self-Compassion and Self-Acceptance

Speaker 2
15:37

A

lot

of

people

talk

nowadays

about

self

compassion

and

self

acceptance

and

you

know
,

at

the

beginning
,

when

I

first

learned

about

this
,

I

was

well
,

I

was

very

also
,

I

was

very

like

bitter
,

but

I

would

remember

just

like

rolling

my

eyes

and

be

like
,

oh

God
,

this

is

so

stupid
,

you

know
.

And

now

I

think

it

is

just

like

so

crucial

and

so

vital

because

we

have

to

live

with

ourselves

and

I

think

the

self-critic
,

like

you

said
,

is

so

strong

and

the

self-critic
,

the

self-critic
,

is

bred

over
,

you

know
,

years
,

decades

of

every

single

day

interactions

with

the

way

society
.

I

mean
,

first

of

all
,

let's

talk

about

I

mean

there's

not

time
,

so

in

brief

passing
,

we'll

just

say
,

like

there's

ableism
,

racism
,

ageism
,

like

you

know
,

there's

so

much

discrimination

and

bias

and

expectations

that

are

completely

unrealistic

and

racist

and

ableist

about

the

people

that

we

quote

unquote

should

be

in

society
.

About

how

productive

we

should

be
,

about

how

you

know

what

we

should

look

like

to

meet

some

made

up

unachievable

beauty

standards
.

For

me
,

something

that

helped

a

lot

was

like

learning

that

a

lot

of

the

pressure

that

I've

put

on

myself

and

a

lot

of

this

inner

critic

voice

that

I've

internalized

isn't

my

own
,

you

know
,

it's

what

I've

been

taught
.

It's

the

people

who

have

said

to

me
,

like

you're

not

smart

enough
,

you're

not

beautiful

enough
,

you're

not

you

know

XYZ

enough
,

you're

not

productive

enough
,

you're

not

this
,

you're

not

that
,

you

can't

rest
,

you're

lazy
,

like

all

of

that

coming

together

and

then
,

like

you

said
,

the

years

and

years

of

dismissal
,

gaslighting
,

that

messes

with

a

person

psychologically
.

You

know
,

and

so

it's
.

I

think

it's

easy
,

it's

natural
,

to

internalize

all

of

that

and

then

bully

ourselves

and

then

be

our

worst

bully
.

Speaker 2
17:29

I

think

something

that

helped

me

a

lot

is
,

first

of

all
,

learning

that

most

people

have

a

very

angry

self-critic

inside
,

that

this

is

a

real

thing
.

You

know

the

self-critic
,

the

judge

inside
.

There's

whole

books

written

about

it
,

there's

workbooks
.

I

think

it

comes

back

to

trying

to

find

those

tools
.

Maybe

for

some

people

that

is

working

with

a

mental

health

professional
.

For

me
,

that

was

like

reading

books

about

the

self-critic

and

doing

online

worksheets

that

are

designed

to

be

done
,

you

know
,

on

your

own
,

like

exploring

your

inner

voice
,

right
,

getting

more

self-awareness
,

getting

more

mindfulness
.

For

me
,

meditation

was

really

big
.

Not

everyone

has

to

meditate
,

but

I

think

finding

that

self-awareness
,

to

start

hearing

the

way

that

you

talk

about

yourself
.

Speaker 2
18:16

You

know
,

I

noticed

for

myself

it

was

like

every

time

I

was

in

a

flare

I

just

totally

berated

myself

and

beat

myself

up
.

It

was

like

you're

in

a

flare
,

you're

lazy
,

you're

a

loser
,

this

is

your

fault
,

this

is

cause

you

ate

XYZ
,

this

is

cause

you're

weak
.

How

much

more

horrible

am

I

making

the

experience
?

I'm

already

in

a

really

difficult
.

I'm

already

in

pain
.

I've

already

canceled

my

plans
.

I

mean

it's

really
,

it

sucks
.

You

know

it's

horrible
.

And

then

I'm

saying

to

myself

this

is

your

fault
,

you're

a

loser
.

Why

can't

you

get

it

together
?

Why

are

you

still

sick
?

Speaker 2
18:47

So

for

me
,

a

lot

of

my

personal

journey

has

come

from

starting

to

be

more

self-aware

of

the

things

that

I

say

to

myself
.

My

self-critic

was

so

strong
.

I

think

I

also

have

a

lot

of

rumination

and

truest

of

thoughts

and

when

I

would

start

criticizing

myself
,

I

would

find

ways

to

stop
.

You

know
,

sometimes

I

would

just

be

like

stop
,

stop
,

like

take

a

breath
.

It

feels

stupid

at

first
,

especially

when

I

fervently

hated

myself
,

like

I

loathe

myself
.

Speaker 2
19:14

So

when

I

was

saying

to

myself

you're

so

stupid
,

you're

lazy
,

like

it's

your

fault
,

you're

sick

because

you

did

whatever
,

like

you

ate

whatever

food
,

you

didn't

take

a

walk

or

whatever
,

whatever

thing
,

I

was

saying
,

that

was

my

fault
.

It

feels

so

normal

and

natural
.

It

feels

like

those

are

the

right

words
,

cause

that's

a

story

you've

lived

with

your

whole
,

probably

your

whole

life

where

you're

like

no
,

this

is

it

is

my

fault
.

No

one

argued

with

me
,

I

would

you

know
.

I'd

bet

you

a

million

dollars
,

this

is

my

fault
.

And

so

learning

to

like
,

start

separating

ourselves

from

that

story

and

be

like

okay
,

wait
,

would

I

say

this

about

my

child

or

about

my

loved

one
?

Would

I

say

this

about

my

cat
?

You
?

Speaker 2
19:49

know

if

you

don't

you

know

right

Cause

for

me

it's

like

I

wasn't

very

close

to

my

family
,

so

I

was

like

I

don't

want

to

think

about

them
,

but

like

let

me

think

about

my

pet
.

Like

let

me

look

at

my

little
,

cute

little

baby

when

she

has

diarrhea
.

Would

I

be

like

this

is

your

fault
,

suki
,

because

you

went

and

you

like

licked

the

floor

in

the

wrong

spot
?

Like

no
,

I'd

be

like
,

oh
,

my

baby

sick
.

So

it's

like

learning

how

to
,

learning

how

to
,

how

to

love

yourself

and

how

to

treat

yourself

with

that

kindness
,

and

it

is
.

Speaker 2
20:17

It's

a

long

journey

for

some

of

us
,

you

know
,

depending

on

how

deep

those

roots

of

self-loathing

are
,

or

you

know

how

deep

our

shame

is
.

Shame

was

a

really

big

one

for

me
.

I

was

so

ashamed

every

time

I

had

a

flare
.

I

was

so
,

so

ashamed
.

Every

time

I

was

sick
,

or

every

time

I

didn't

feel

like

I

was

my

best

self
,

or

I

had

brain

fog

and

I

stumbled

over

my

words

around

people
.

I

was

so

mortified

and

so

ashamed
.

So

it's

like

finding

these

tools

first

of

all
,

finding

the

awareness

and

then

finding

the

tools
,

and

that

could

be
,

again
,

mental

health
.

Speaker 2
20:53

For

me
,

tapping

emotional

freedom

technique

was

a

really

big

one

when

I'm

feeling

a

lot

of

shame
,

you

tap

these

pressure

points

in

your

face

and

you

say

out

loud

something

like

I

love

and

accept

myself
,

even

though

I

bled

on

a

chair

at

work

and

people

saw
.

I

love

and

accept

myself
,

even

my

blood

on

a

chair

at

work

and

people

saw
.

And

it's

really

hard

to

get

those

words

out

when

you're

feeling

a

lot

of

shame
.

Like

those

words
,

they

feel

like

I

can't

say

them

because

they

don't

feel

true
.

But

the

more

you

practice

these

tools
,

the

better

you

get
.

Speaker 2
21:23

And

I

think

now
,

like

self-compassion

is

probably

the

biggest

gift

that

I've

ever

given

myself

in

my

life
.

Bigger

than

having

excision

surgery
,

which

obviously

was

a

very

big

one

to

help

me

start

feeling

a

lot

better
.

Bigger

than

my

career

taking

off
.

Bigger

than
,

dare

I

say
,

getting

my

most

wonderful

kitty

cat
,

who

I

love
,

in

the

world
.

Like
,

I

think
,

self-compassion

and

learning

to

say

I

live

with

myself
,

in

my

body

and

I

have

to

learn

how

to

accept

and

love

myself

throughout

everything

in

life
.

That's

really

hard

but

I

think

that

is

one

of

the

most

beautiful

and

most

liberating

things

that

you

can

do

for

yourself

in

your

life
.

Speaker 1
22:08

Yeah
,

I

think

it's

true
,

like

just

having

an

ounce

of

self

talk

that's

positive

makes

a

massive

difference
.

I

remember

one

time

this

is

when

I

was

probably

early

college
,

I

wanna

say

A

friend

of

mine
.

I

was

sitting

there

and

he

said
,

alana
,

you

did

so

good

with

this
,

or

I

can't

even

remember

exactly

the

compliment

that

he

fed

me
.

And

I

turned

back

around

to

him

and

I

said
,

oh

thanks
,

you're

so

great

at

this

and

you're

so

great

at

that
.

And

I

was

like

and

you

know
,

I

didn't

think

it

through

and

he

goes
,

alana
,

stop
,

he

goes
.

I

want

you

to

accept

that
.

I

just

gave

you

a

compliment
.

I'm

not

giving

you

this

compliment

for

my

benefit

or

even

for

yours
,

but

I'm

giving

it

to

you

so

that

you

understand

what

people

see

about

yourself
.

And

I

was

like

okay
,

he

goes
.

No
,

no
,

no
,

no
,

I

don't

think

you

hear

me
.

I

think

you

need

to

accept

the

compliment

that

I'm

giving

you
.

I

don't

need

one

back
.

And

I

was

like
,

okay
,

all

right
,

I

don't

know

how

to

do

this

very

well
,

I'm

really

good

at

self

loading
,

I'm

really
,

you

know
,

and

I

think

that

it

took

that
,

I

don't
.

It

took

that

one

moment

and

that

one

person

telling

me
,

I'm

not

giving

you

this

compliment

for

my

own

good
,

I

don't

need

any

rebuttal
,

just

accept

it
.

And

I

was

like
,

okay
,

I

really

dealt

with

a

lot

of

self

doubt

and

a

lot

of

insecurities

growing

up

in

regards

to

how

I

felt

most

of

the

time
,

because

I

think

that

I

was

in

a

constant

state

of

feeling

blah
,

you

know
,

and

Demetriosis

doesn't

really
,

you

know
,

make

you

feel

pretty

most

of

the

time
.

Accepting Our Imperfections and Self-Neutrality

Speaker 1
23:57

You
,

I

know

that

sounds
,

why

doesn't

it
?

I

guess
,

sounds

so

pretty
.

But

I

just

I

really

struggled

with

that

and

I

had

another

friend

of

mine

was

like

you

look

so

pretty

today

and

I

was

like
,

oh
,

thanks
,

you're

looking

great

too
.

And

they

said
,

no
,

can

you

just

accept

that

compliment
?

And

I

think

that

what

you're

doing

so

beautifully

and

you

explain

it

so

well

is

just

accepting

who

we

are

and

not

shoving

off

the

positive

stuff
.

Because

I

don't

know

about

you
,

but

I

do

feel

like

it

is

really

easy

to

consume

negative

thoughts
.

It's

really

easy

to

consume

criticisms

from

others

and

from

ourselves
.

What's

really

hard

is

to

consume

positive
,

affirming

thoughts

and

actions

and

beliefs
,

because

of

trauma

or

because

of

any

number

of

things

that

we've

walked

through
.

How

was

it

for

you

in

the

last
,

say
,

couple

years
,

learning

that

you

may

not

ever

be

100%

and

kind

of

accepting

that

we

may

not

be

100%
,

but

it's

about

the

growth

that

we

take

and

the

change

that

we

make
.

Speaker 2
25:10

Yeah
,

I

love

this

question
.

Before

I

answer

it
,

I

feel
,

if

I

just

go

say

one

little

thing

off

of

what

you

said

about

the

positive

comments
,

I

think

too
,

it

can

be

really

hard

to

go

from

self-loathing

to

then

like

self-positivity
.

So

I

think

self-neutrality

is

something

that

I've

always

aimed

for
.

So
,

for

example
,

say

you're

looking

back
,

because

I

think

it's

easy

to

look

back

and

have

a

lot

of

regrets

now

that

we

have

hindsight
.

I

look

back

at

some

of

the

choices

I

made

about

my

treatments
.

Right
,

like

I

went

on

depo

per

vero

when

I

was

young
.

That's

what

the

doctor

presented

to

me
.

She

told

me

my

only

option

was

depo

or

live

with

it
,

of

course
,

and

I

was

like

18
,

so

I

was

like
,

okay
,

well
,

yeah
,

depo
,

let's

do

it

Made

me

very
,

very

sick

and

of

course
,

everyone

has

different

experiences

on

these

drugs
.

That

was

just

my

personal

experience
.

But

later

I

was

really

angry

with

myself

because

when

I'd

asked

her

are

there

side

effects
?

She

told

me

there

was

no

side

effects
,

which

felt

very

fishy

in

the

moment
.

But

she

was

like
,

no
,

no
,

there's

no

estrogen
,

so

there's

no

side

effects
.

And

I

was

like
,

okay
,

great
,

well

then
,

yeah
,

shoot

it

in

my

butt
.

And

later
,

when

I

became

very

just

had

a

horrible

experience
,

especially

with

my

mental

health
,

with

depo

per

vero
.

Speaker 2
26:20

I

was

really
,

you

know
,

pre-amy

finding

herself

compassion

that

Amy

hated

that

18

year

old

Amy

hadn't

pushed

back
,

hadn't

gone

online

to

look

at
,

hadn't

been

made

an

informed

decision
,

hadn't

known

to

do

that
.

And

now
,

when

I

look

back

at

that

difficult

moment

in

my

life
,

all

I

feel

is

love

for

that

girl

because

I

think

about

who

Amy

was

at

that

time
.

She

was

18

years

old

or

19
.

She

was

by

herself

in

the

appointments
.

She

was

by

herself

in

between

her

college

classes
.

She

had

no

idea

what

was

going

on

with

her

health
.

She

was

scared
.

She'd

been

sick

for

three

years
.

At

that

point

no

one

knew

it

was

happening
,

no

one
.

Everyone

was

saying

that

it

was

in

her

head

and

it

was

psychosomatic

and

everything

was

normal
.

She

was

so

lost

and

she

was

so

scared

and

she

was

struggling

so

hard
.

Speaker 2
27:13

In

that

appointment

with

that

doctor

who

was

misinformed

and

you

know

it

was

back

when

I

still

had

my

trust

my

it's

just

like
,

you

know
,

100%

trust

and

faith

in

my

doctors

were

now

like

oh

yeah
,

thanks
,

I'll

think

about

it

and

research

everything

you

say

before

I

make

a

decision
,

but

that

Amy

was

so

different

back

then

and

that

Amy

just

deserves

a

huge

hug
.

You

know

it

doesn't

deserve

that
.

I

go

back

and

I

continue

to

berate

choices

I

made
.

What

20

years

ago

at

this

point
,

like

Amy
,

come

on
.

So

I

think
,

yeah
,

just

for

me

learning

to

not

look

back

with

positivity

and

be

like
,

well
,

it's

okay
,

I

mean
,

you

did

your

best

and

like
,

you

tried
,

no

like
,

but

just

look

back

and

be

like

neutral

about

it
,

right
,

like

it

wasn't

a

choice

I

would

make

now
,

but

it

was

a

choice
.

I

made

them

because

I

was

doing

my

best

and

that

girl

deserves

a

hug

for

doing

her

best
.

Speaker 1
28:11

I

wanna

hug

that

girl

too
.

Yeah
,

I

wanna

hug

her
.

She

was

so

cute
.

Speaker 2
28:18

I

wanna

hug

everyone

on

this

podcast
,

so

thank

you

for

letting

me

Meaning and Acceptance With Chronic Illness

Speaker 2
28:24

add

that
.

But

to

answer

the

question

that

you

asked

me

about
,

you

know
,

kind

of

making

peace

with

the

fact

that

maybe

I'm

never

gonna

be

symptom

free
,

and

I

think

it

was

funny

I

put

this

up

on

Instagram

like

a

couple

of

months

ago

and

I

just

said

like

I

think

I

finally

accepted

the

fact

that

I'm

never

gonna

be

symptom

free
.

I've

been

sick

for

20

years

and

what

my

symptoms

have

looked

like

in

that

time

has

changed
,

you

know
.

I

think

now

they're

a

lot

less

severe
.

I

think

before
,

for

many

years

a

decade

or

more

I

was

living

at

a

eight

out

of

10
,

10

being

the

highest

symptoms
,

and

eight

out

of

10

with

spikes

to

10
,

you

know
,

during

my

period

or

during

a

bowel

movement
,

I

think
.

Now

I'm

probably

living

at

a

four
,

and

the

spikes

that

I

have

are

maybe

a

seven

on

the

worst

day
.

But

there's

not

a

lot

of

spikes

now

too
.

They're

not

very

frequent
,

maybe

like

once

a

month
.

So

I

think

I'm

doing

like

so

well
,

you

know
,

and

I

think

if

someone

who

wasn't

chronically

ill

was

like
,

oh

my

gosh
,

you

don't

feel

good

every

day
,

and

then

be

like

feel

sorry

for

me

or

like

feel

sad
,

but

I

just

feel

thrilled
,

like

I

feel

thrilled

that

I

have

a

tolerable

baseline

and

I

know

how

to

cope
.

I

know

how

to

manage

the

symptoms

I

have
.

I

have

all

these

tools
.

Now

I
,

you

know
,

I

give

myself

permission

to

rest
.

I

have

that

self

compassion
.

Speaker 2
29:54

I

actually

give

myself

a

hug

a

lot

Sometime

when

I'm

having

a

really

bad

day
.

I

sit

on

the

floor
,

on

this

rug
,

you

know
,

I

cross

my

legs
,

I

put

my

arms

around

myself
,

I

squeeze

really

hard
,

I

close

my

eyes
,

I

start

rocking

back

and

forth

and

I

say

to

myself

you're

gonna

be

okay
,

you're

gonna

be

okay
.

And

I

just

squeeze

myself

and

I

hold

myself

and

I

rock

sometimes

and

I

put

on

like

music

or

I

might

do

like

chanting

from

YouTube

or

something
,

and

I'll

do

that

maybe

for

20
,

30

minutes

and

share

Maybe

someone's

listening

and

going

well
,

that

sounds

silly
.

No
,

when

you're

in

this
,

the

depths

of

grief

and

hopelessness

and

despair
.

But

you

find

a

tool

which

for

me
,

that's

my

tool

and

for

someone

else

they

have

different

tools

and

we

all

have

different

tools
.

But

to

have

a

tool

where

we

can

use

our

tool

and

come

out

of

that

tool
,

come

out

after

using

that

tool
,

feeling

a

little

more

revitalized
,

feeling

a

little

more

hope
,

processing

our

feelings

or

our

grief
,

not

getting

stuck
.

I

think

that

tool
,

that

rocking

back

and

forth

that

helps

remind

me

that

I'm

gonna

be

okay
,

that

helps

give

myself

support

by

hugging

myself
.

The

rocking

is

soothing
,

so

it's

like

all

these

things

come

together

to

help

support

myself
.

Speaker 2
31:12

So
,

yeah
,

when

I

put

on

Instagram

this

idea

that

I

don't

think

I'm

ever

gonna

be

100%

symptom

free
,

I'm

okay

with

that
.

I

think

my

goal

for

so

long

was

to

be

100%

symptom-free

at

whatever

cost
.

Now

my

goal

isn't

about

being

symptom-free
.

My

goal

still

does

include

having

a

tolerable

baseline
,

because

obviously
,

when

you're

at

an

8
,

9
,

10

every

day
,

that's

a

really

difficult

way

to

live

your

life
.

My

goal

now

is

really

about

my

quality

of

life
.

My

goal

now

is

about

what

you

said
,

you

know

having

meaning

in

my

life
,

having

purpose
,

having

moments

of

joy
,

having

a

reason

to

get

up

every

single

morning
,

having

a

life

that

I

feel

is

worth

living
.

Even

though

I

have

endometriosis

symptoms
.

That's

a

part

of

my

life
,

just

like

the

way

my

hair

is

black

and

I

have

a

kitty

and

there's

cockroaches

in

my

kitchen

right

now
.

Speaker 1
32:14

Oh

no
,

oh

dear
.

Speaker 2
32:16

But

like

that's

just
,

this

is

my

life

and

how

can

I

make

this

life

that

I

feel

is

worth

living
?

And

that's

the

goal

that

I

have

for

myself

now
.

And

whether

or

not

I

become

symptom-free
,

I

don't

care

anymore
,

that's

not

important

to

me
.

Speaker 1
32:35

There's

so

much

truth

to

just

not

only

accepting

where

you're

at
,

but

allowing

yourself

we

talked

about

grace
,

but

to

step

back

and

evaluate

even

where

you're

at
.

I

think

there's
.

You

know
,

you

don't

have

to

get

it

right

the

first

time
,

and

I

think

that

we

have

these

unrealistic

expectations

that

we

will

do

everything

right

the

first

time
,

and

we

were

talking

about

this
.

We

do

not

do

things

right

the

first

time
.

That

is

why

we're

able

to

grow

and

to

learn
,

and

I

think

you

hit

the

nail

on

the

head

when

you

talked

about

the

fact

that

you

wish

you

would

have
.

You

know
,

we

can't

live

in

the

we

wish
,

we

wish
.

We

wish

we

would

have

known
.

Instead
,

I

think
,

if

there's

so

much

value

in

saying

we

did

the

best

we

could

with

what

we

had
,

now

it's

time

to

move

forward
.

Speaker 1
33:26

Am

I

missing

out

on

things

still
?

If

you

are
,

then

maybe

that's

another

way

of

evaluating

where

am

I

missing

out

and

why

am

I

missing

out

on

these

things
?

But

it

also

accepting

that

you

aren't

always

going

to

get

it

right

and

moving

forward

in

figuring

out

how

to

improve

your

quality

of

life

Not

necessarily

that

it's

going

to

be

perfect
,

but

to

improve

your

quality

that

I

will

take

any

day

of

the

week

over

perfect
,

because

improvement

is

better

than

stagnant
,

and

I

just

think

that

there's

we

need

to

have

that

mindset

sometimes

at

least

for

me
,

I

need

that

mindset
.

I

don't

have

to

be

perfect
.

Speaker 1
34:07

If

I'm

improving
,

I'm

not

stagnant
,

and

that's

true

with

our

emotions
,

it's

true

with

how

we

process

our

trauma
,

it's

true

with

how

we

communicate

to

others

and

how

we

do

advocacy

work

and

how

you

know

it

all

ties

in
.

What

are

your

next

steps

to

improvement
?

When

it

comes

to

advocacy

and

accepting

that
,

although

this

is

a

nasty

disease
,

it's

kind

of

catapulted

you

into

the

space

of

helping

others

and

I

think

that

that's

valuable

too
.

It's

not

nice

sometimes

what

this

disease

does

to

us
,

but

we

can

be

nice

to

others

and

helping

them
.

What's

your

next

step

for

that

and

has

that

been

beneficial

in

that

healing

process
?

Speaker 2
34:50

Yeah
,

I

think

since

I

made

my

platform
,

I've

always

tried

to

be

very

transparent

with

everything
,

really

like

my

thoughts
,

my

struggles
,

my

next

steps
,

my

healing

journey
.

I

think

I've

really

just

tried

to

share

openly

and

I

think

sharing

our

stories

helps

a

lot
.

Seeing

that

other

people

identify

with

our

stories

helps

a

Finding Community and Healing Through Endometriosis

Speaker 2
35:13

lot
.

I

think

that

this

disease

is

so

isolating

and

it

is

so

easy

to

feel

desperately

alone
.

Speaker 2
35:23

And

I

know

for

such

a

long

time

I

didn't

know

I

had

ENDO
,

so

I

didn't

know

this

community

of

200

million

people

existed
.

I

didn't

know

that

there

were

people

who

understood

what

I

was

going

through
,

who

were

going

through

something

similar
.

I

had

no

idea

and

I

was

so

desperately

alone
.

So

I

think

finding

community

is

so

crucial

and

so

vital
,

I

think
,

for

all

of

us
,

especially

for

a

lot

of

us
.

Maybe

we

don't

have

that

family

support
,

we

don't

have

people

in

our

lives

who

believe

us
,

and

that

is

absolutely

emotionally

gut-wrenching

to

be

in

that

place

and

trying

to

be

there

for

people

through

my

podcast
,

through

my

book
,

providing

that

emotional

support
.

So
,

yeah
,

I

think

next

steps

is

just

continued

advocacy
,

continued

talking

about

meeting

people
,

sharing

where

we

are
.

Speaker 1
36:16

Which

is

powerful
,

because

your

book

okay
,

we're

going

to

talk

about

your

book

for

just

a

second
.

So
,

if

you

have

resonated

with

what

Amy

has

been

talking

about
,

she

wrote

her

book

just

for

you

and

probably

for

you

too
.

That

had

to

have

been

healing

for

you

to

write

this

book
,

to

really

go

back

and

retrace

some

of

these

steps
.

Tell

us

a

little

bit

about

what's

in

your

book
,

because

I

think

this

is

going

to

be

a

really

good

tool
,

talking

about

the

different

tools

that

maybe

you

didn't

have

growing

up
,

but

how

we

can

get

those

tools

and

put

them

in

our

tool

belt

or

our

toolbox
,

how

we

can

kind

of

cope

with

this

disease
.

This

has

to

be

a

valuable

tool

for

a

lot

of

people
.

Was

it

for

you
,

and

what

do

you

hope

people

get

out

of

your

book
?

Speaker 2
37:07

Yeah
,

I

think

that

for

all

these

things

it's

so

important

to

recognize

that

we're

all

individuals
,

we

all
.

Different

things

resonate

with

different

people
,

different

tools

for

different

people
.

I

am

a

firm

believer

that

I

do

think

we

can

all

find

peace
.

But

I

do

think

peace

is

ongoing

because

even

10

years

later
,

some

days

I

have

a

lot

of

peace

and

some

days

I'm

just

like

I'll

try

for

peace

tomorrow
.

Today

I'm

just

going

to

stew

in

a

bit

of

anger
.

So

I

think

these

concepts

they're

ongoing
,

they're

flexible
,

they're

changing
,

they

unfold

alongside

you

and

I

think

there's

different

building

blocks

for

acceptance

and

for

peace

and

for

some

people

that

could

be
.

It's

just

going

to

depend

what

we

need

in

our

life
.

For

some

people

it

might

mean

you

need

to

find

more

meaning

in

your

life
.

Maybe

it's

just

like

your

life

feels

really

empty
.

For

some

of

us

it

might

be

finding

more

support
,

finding

community
.

For

some

of

us

it

might

be

getting

more

self-awareness

of

our

thoughts
,

like

we

were

talking

about

working

on

our

self-critic
,

that

judge

in

our

head
.

So

I

think

there's

so

many

different

aspects

and

different

ways

that

we

can

try

to

propel

ourselves

forward
,

to

start

feeling

differently

about

our

life
,

our

body
,

our

disease
.

I

think

I've

always

tried

to

be

really

compassionate

in

my

approach
,

whether

it's

my

book

or

my

podcast
,

because

I

really

want

to

meet

people

where

they

are
,

because

sure
,

I

could

get

on

here

today

and

see

like
,

oh
,

I

feel
,

like

I'm

really

fine
,

I

found

peace

and

I'm

finding

peace

with

my

life
,

and

sometimes

it

can

be

easy

to

forget

that

I've

been

doing

this

for

20

years

now
.

So

this

is

like
,

like

I

said
,

their

practices
.

So

I

think
,

yeah
,

just

meeting

people

where

they

are

and

saying

if

you're

in

a

place

right

now

where

you're

just
,

you're

so

furious

and

you're

so

angry
,

that's

okay
,

that's

to

be

there
.

I

was

there

for

a

decade
.

If

you're

in

a

place

where

you're

like

I'm

grieving
,

I'm

grieving

and

the

idea

of

having

peace

or

hope

or

any

moments

of

joy

right

now
,

that

feels

absolutely

like

a

devastating

black

hole

that

I'll

never

get

out

of
.

I

know

those

feelings

too
,

you

know
,

and

that's

okay

to

be

there

too
.

Speaker 2
39:20

So

with

my

book
,

it's

basically

reflections

on

all

these

different

topics

that

we've

been

talking

about
.

They're

just
,

they're

short

reflections
,

which

I

think

is

very

helpful
.

When

you

have

fatigue

and

you

have

pain
,

it

can

be

really

hard

to

read

and

to

pay

attention
.

I

also
.

The

audiobook

is

coming

in

March

2024
,

so

I'm

super

excited

about

that
.

I'm

reading

and

producing

and

publishing

that
.

Speaker 2
39:42

But

yeah
,

just

like

you

know

reflections

about
,

about

our

self-talk
,

about

our

pain
,

I

want

to

make

sure

that

it

felt

very

validating
.

Speaker 2
39:51

I

put

in

reflections

of

a

couple

of

my

doctor's

appointments

or

a

couple

of

times

people

dismissed

or

gaslit

me

or

even

moments

of

extreme

pain
.

Speaker 2
40:01

You

know

I've

had

a

lot

of

people

message

me

and

be

like

I'm

only

on

chapter

three

and

I'm

already

sobbing

because

I

finally

feel

like

someone

put

into

words

what

I've

been

feeling

like

with

my

pain

but

I've

never

been

able

to

express

it
.

And

I

think

those

you

know

those

messages

are
.

They're

so

beautiful

to

get

but

they're

also

just

so

rewarding

to

realize

that

we're

not

alone

in

this

right

and

we

feel

again
.

We

feel

so

alone

because

when

we're

there

in

the

worst
,

most

backbreaking

pain

on

our

you

know

bathroom

floor

vomiting

and

you

know

pooping

at

the

same

time
,

like

it

doesn't

matter

if

we're

surrounded

by

a

billion

people

saying

like

pet

petting

our

back

and

saying

like

you're

going

to

be

okay
,

like

you're

alone

and

you're

in

your

pain
,

but

there

are

people

who

understand

your

pain

and

there

are

people

who
,

you

know
,

have

maybe

found

these

tools
,

like

we're

saying

to
,

to

try

to

live

a

little

better

with

our

pain
.

Speaker 2
40:59

And

I

think

that

the

goal

of

all

of

my

advocacy

is

just

to

try

to

help

people

live

a

little

better
,

to

find

a

tool

that

works

for

them

to

have

a

better

quality

of

life
,

whatever

that

looks

like

for

them
.

And

I

just

want

to

remind

people

that

it

really

does

take

time

and

it

really

is

just

one

little

baby

step
,

one

little

baby

step
,

one

little

baby

step
,

and

sometimes

it's

so

imperceptible

and

those
,

those

steps

will

add

up

and

one

day

you

look

back
,

like

me
,

and

you'd

be

like
,

wow
,

it's

been

10

years
.

And

like

that

Amy

who

was

so

scared

and

loathed

herself

and

already

had

two

divorces

at

30

and

had

like

no

friends

and

like

just

whined

and

trauma

dumped

and

cried

and

grieved

and
,

you

know
,

had

suicidal

ideation
,

like

that

Amy

is

not

there

anymore
.

And

this

is

totally

different

Amy

here

today

and

it's

kind

of

like

I

don't

know

how

I

got

here
,

but

I

do

know

how

I

got

here

and

so
,

yeah
,

I

just

I

really

want

to

leave

people

with

with

hope
.

Speaker 2
42:03

You

know

that

things

can

improve
.

And

even

if

things

don't

improve
,

maybe

we

can

change
,

and

we

can
.

We

can

change

the

way

that

we

feel

about

our

situation
.

There

are

things

I'm

never

going

to

get
.

There

are

things

that

I've

lost

to

this

disease
,

that

I

will

never

get

back
.

They

don't

hurt

half

as

much

anymore

because

I've

been

able

to

find

peace

with

them
.

Speaker 1
42:24

Yeah
,

oh
,

it's

so

powerful

and

so

good
.

You

are

such

a

light

to

so

many

people
,

and

I

think

that

validation

can

come

in

different

forms

and

sometimes

we

just

need

oh
,

someone

else

has

lived

through

this

to

allow

us

to

accept

where

we

are

at

or

where

we've

been
.

And

I

think

we've

talked

about

accepting

and

grieving

and

these

words

may

seem

unattainable

to

some

people
,

but

it's

not

and

the

the

community

aspect

of

having

endometriosis

and

living

with

people

that

have

endometriosis

surrounding

you
,

supporting

you
,

is

so

invaluable
.

You

can't

put

a

price

tag

on

that
,

because

healing

comes

from

those

that

you're

around
.

Sometimes
,

too
,

when

you

don't

have

the

strength

to

give

yourself

the

grace

or

you

don't

recognize

that

you

are

grieving

Sometimes

I

think

that

that

is

a

really

tricky

thing

to

recognize

is

am

I

grieving

or

am

I

just

a

negative
,

bitter

person

right

now
?

Speaker 1
43:28

No
,

you're

grieving
.

You're

grieving

what

you've

gone

through
.

You're

grieving

where

you're

going

and

you're

grieving

what

you

thought

your

life

would

be
,

and

that

is

okay
.

That

is

okay

to

do

that
.

So

thank

you

for

taking

the

time

to

really

speak

into

that

and

speak

into

people's

lives
,

and

this

is

let

this

be

your

permission

to

walk

through

that
.

Let

this

Amy

gave

you

permission

and

her
.

Her

book

is

coming

with

her

voice
,

which

is

also

super

soothing

and

calming
.

So

I

recommend
,

when

that

comes
,

to

download

that

the

audible

version

of

it
.

I

don't

know

if

it's

unaudible
,

I

just

said

that
,

but

I

just

it's
.

I

want

you

to

get

this

book

for

your

sake
,

because

she

does

this

path

so

beautifully

and

it's

not

perfect
,

and

I

think

that

that

is

okay

too
,

and

that's

what

makes

it

so

great

is

that

it's

not

perfect

and

we

aren't

perfect
.

So
,

amy
,

thank

you

so

much

for

joining

me

today

and

taking

your

time

and

just

giving

all

the

knowledge

and

wisdom

that

you

have
.

I

just

so

appreciate

you
.

Speaker 2
44:29

Well
,

thank

you

so

much
,

Alana
.

Speaker 2
44:30

I

really

appreciate

you

inviting

me

to

come

on

your

podcast

and

yeah
,

I

mean

just

final

words

is

to

everyone

give

yourself

permission

to

be

exactly

where

you

are
,

to

feel

exactly

what

you

feel
.

Speaker 2
44:43

And

maybe

you

look

around

and

you're

like

I

don't

like

where

I

am

and

I

don't
.

Maybe

I

don't

even

like

the

person

that

I

am
,

like

you

said
,

alana
,

like

bitter

and

trauma-dumping

and

crying

all

the

time
.

But

give

yourself

permission

to

say

it's

okay

that

I'm

wherever

I

am
,

it's

okay

that

I'm

here

and

slowly

I

can

learn

the

tools

and

I

can

learn

the

practices

to

change

where

I'm

at

and

to

try

to

have

a

life

that

is

more

aligned

with

what

I

want
.

And

maybe

we

cannot

get

back

everything
.

You

know
,

my

life

looks

different

than

I

thought

it

would

look

like
,

but

it's

still

a

life

worth

living
.

So

I

really

want

to

just

leave

everyone

with

that
.

I

want

everyone

to

just

I

want

to

give

everyone

a

big

hug

right

now

and

say

that

I'm

so

proud

of

all

of

you

because

it

is

so
,

so

difficult

to

live

with

this

illness
.

Speaker 2
45:35

It

is
,

you

know
,

practically

impossible
.

And

we're

doing

it

every

single

day
,

even

if

we're

not

doing

it

the

best

that

we

think
,

or

you

know
,

someone

is

doing

it

better
,

like

who

cares

how

someone

else

is

doing

it

and

like

almost

who

cares

how

we're

doing

it
,

like

we're

doing

it

and

getting

through

those

unsurvivable

traumas

and

moments
.

We

got

through

them
,

you

know
,

and

I

think

we

deserve

a

pat

on

the

back

to

ourselves

to

say

like

I'm

getting

through

my

life

and

of

course
,

I

want

to

do

more

than

get

through

my

life
.

Right
,

I

want

to

live

my

life
,

but

there

are

days

when

we're

just

going

to

get

through
.

And

I

still

have

those

days

and

I

just

pat

myself

on

the

back

and

say
,

you

know
,

it's

okay

to

just

be

where

you

are

right

now
.

Embracing Change and Advocating With Amy

Speaker 2
46:14

Things

can

change
.

Speaker 1
46:15

It's

okay

to

sit

in

a

space

for

a

second
.

We

just

can't

live

there

because

that's

not

living

right
.

So
,

amy
,

thank

you

so

much
.

If

you

want

to

continue

hearing

more

of

what

Amy

is

talking

about
,

she

has

her

podcast

again

in

16

years

of

Indo

is

the

name

of

her

podcast
,

and

she

is

not

only

an

advocate

and

speaks

so

elegantly
,

but

she's

really

coming

up

with

some

amazing

things
,

so

you'll

want

to

follow

her
.

She's

doing

really
,

really

great

work

and
,

until

next

time
,

continue

advocating

for

you

and

for

those

that

you

love
.

Leave a Reply

Your email address will not be published. Required fields are marked *