Send us a text with a question or thought on this episode ( We cannot replay from this link)
What if you could transform an overwhelming challenge into a mission that changes lives? Our guest, Chanda Hinton, knows firsthand. After surviving a life-altering spinal cord injury at just nine years old, Chanda has turned her personal journey into a powerful movement for holistic healthcare solutions. Join us as we explore her inspiring path from patient to executive director of the Chanda Center for Health, where she champions comprehensive care for individuals with physical disabilities, including pivotal therapies like acupuncture, massage, and chiropractic services.
In this episode, we unravel the legislative triumphs that have paved the way for integrative therapies to become accessible and affordable. Discover the relentless advocacy behind the 2009 Colorado House Bill 1047, a groundbreaking bill that expanded Medicaid to cover essential services for spinal cord injury patients. Chanda sheds light on the ongoing struggle to achieve legislative recognition for conditions like endometriosis and the systemic changes needed to align healthcare with modern medical advancements. Learn about the cost-effective and life-enhancing benefits of these integrative therapies and the barriers that still exist in accessing them.
Finally, we tackle the pervasive healthcare barriers faced by individuals with disabilities, from inaccessible medical facilities to biased healthcare providers. Hear Chanda’s insights on overcoming these obstacles through the Chanda Center’s initiatives, including the establishment of an adaptive gym aimed at promoting health without financial strain. This episode is packed with powerful discussions on strategic planning, community support, and the relentless advocacy essential for driving systemic change. Don’t miss the invaluable lessons Chanda has learned while building a nonprofit dedicated to transforming disability healthcare.
Website endobattery.com
Empowering Healthcare Advocacy and Resilience
Speaker 1
0:03
Welcome
to
EndoBattery
,
where
I
share
about
my
endometriosis
and
adenomyosis
story
and
continue
learning
along
the
way
.
This
podcast
is
not
a
substitute
for
professional
medical
advice
or
diagnosis
,
but
a
place
to
equip
you
with
information
and
a
sense
of
community
,
ensuring
you
never
have
to
face
this
journey
alone
.
Join
me
as
I
navigate
the
ups
and
downs
and
share
stories
of
strength
,
resilience
and
hope
.
While
navigating
the
world
of
endometriosis
and
adenomyosis
,
from
personal
experience
to
expert
insights
,
I'm
your
host
,
alana
,
and
this
is
EndoBattery
charging
our
lives
when
endometriosis
drains
us
.
Welcome
back
to
EndoBattery
,
grab
your
cup
of
coffee
or
your
cup
of
tea
and
join
me
at
the
table
.
I'm
joined
at
the
table
today
by
my
guest
,
chanda
Hinton
.
Speaker 1
0:50
Chanda
embodies
resilience
and
vision
.
As
the
executive
director
of
the
Chanda
Center
for
Health
,
she
leads
a
nonprofit
dedicated
to
providing
holistic
healthcare
solutions
for
individuals
with
physical
disabilities
.
Her
journey
began
with
a
personal
mission
,
rooted
in
her
own
experience
,
to
create
meaningful
change
.
Chanda's
advocacy
culminated
in
the
passage
of
Colorado
House
Bill
1047
in
2009
,
establishing
critical
health
care
options
under
Medicaid
for
spinal
cord
injury
patients
in
the
Denver
metro
area
.
This
landmark
legislation
not
only
expanded
accessibility
to
acupuncture
,
massage
and
chiropractic
care
,
but
also
to
set
a
precedent
for
statewide
benefits
.
Speaker 1
1:33
Originally
from
Nebraska
,
chanda
holds
a
bachelor's
degree
in
communications
from
the
University
of
Denver
and
a
master's
in
nonprofit
management
from
Regis
University
.
In
her
commitment
to
extend
beyond
professional
achievement
,
she
cherishes
cheesy
80s
chick
flicks
and
engaging
and
enriching
conversations
within
her
community
,
all
while
prioritizing
time
with
loved
ones
amidst
her
demanding
role
.
Chanda
Hinton's
story
is
one
of
resilience
,
leadership
and
unwavering
dedication
to
improve
healthcare
accessibility
for
all
.
Please
help
me
in
welcoming
Chanda
Hinton
.
Thank
you
,
chanda
,
so
much
for
joining
me
today
.
I
am
really
excited
for
this
conversation
,
not
only
because
you
are
a
fellow
Coloradan
,
but
you're
also
just
passionate
about
your
craft
,
your
work
,
your
advocacy
,
and
I'm
really
excited
to
touch
on
this
and
our
conversations
have
already
been
flowing
.
So
thanks
for
joining
me
today
.
Speaker 2
2:22
Yes
,
I'm
so
excited
as
well
,
and
I
just
love
the
intersection
of
some
of
the
things
we've
already
started
talking
about
and
bringing
the
opportunity
,
as
you
had
said
,
to
the
table
just
to
talk
about
this
in
a
more
intimate
way
,
but
mostly
just
because
,
again
,
that
cross
section
between
,
like
you
know
,
endometriosis
,
but
then
also
like
when
you're
a
woman
living
with
a
disability
,
what
does
that
look
like
for
them
?
And
so
I'm
thrilled
and
honored
to
be
here
.
So
thank
you
for
asking
.
Speaker 1
2:50
Yes
,
I
am
also
excited
because
,
as
two
people
that
run
nonprofits
,
it's
fun
to
kind
of
bounce
ideas
off
of
each
other
and
see
some
of
the
similarities
between
chronic
illness
,
chronic
pain
and
some
of
the
things
that
we
struggle
with
as
people
trying
to
advocate
further
for
specific
causes
,
and
not
even
just
that
but
for
humans
.
I
mean
,
I
think
you
do
a
fabulous
job
,
especially
here
in
Colorado
,
of
advocating
for
those
with
disabilities
in
general
.
But
just
gosh
darn
,
I'm
excited
just
to
have
this
conversation
.
For
those
who
don't
know
who
Chanda
Hinton
is
,
can
you
give
us
some
background
on
who
you
are
and
what
you
do
and
why
I'm
so
excited
to
get
to
know
you
better
.
Speaker 2
3:39
Yeah
,
absolutely
so
.
I
am
the
executive
director
senior
executive
director
,
of
the
Chanda
Center
for
Health
,
which
is
a
health
clinic
in
Lakewood
,
colorado
,
that
provides
preventative
and
chiropractic
,
physical
therapy
,
care
,
coordination
,
behavioral
health
all
underneath
one
roof
with
this
very
intense
or
,
I
should
say
,
intentional
ability
to
serve
them
,
where
disability
competence
is
our
core
,
meaning
that
we
are
there
and
excited
to
serve
people
with
disabilities
.
It's
not
as
though
that
is
a
population
that's
like
oh
,
when
we're
done
serving
the
others
,
we'll
get
to
you
.
It's
like
no
,
like
that
.
That
is
who
we
want
to
serve
and
who
we
want
to
serve
well
in
all
the
ways
,
and
so
we
make
sure
that
it's
competent
,
disability
competent
.
We
make
sure
our
building
is
to
the
space
where
people
feel
so
welcome
there
and
that
the
barriers
to
getting
into
the
building
or
getting
on
treatment
tables
,
or
having
face-to-face
eye
conversations
with
people
at
the
front
desk
,
like
all
of
that's
broken
down
,
because
we
really
want
them
to
run
towards
healthcare
and
we
also
want
them
to
have
a
sense
of
belonging
and
we
also
want
them
to
have
the
space
feel
therapeutic
rather
than
white
and
sterile
,
right
.
So
that's
who
I
am
in
terms
of
this
workspace
,
but
I
of
course
it
comes
with
the
background
story
which
I
would
be
happy
to
share
,
and
we
can
do
that
.
So
that's
what
we
do
.
Speaker 2
5:16
We've
been
around
for
nearly
20
years
us
doing
this
amazing
work
and
maybe
going
in
at
a
later
point
of
like
how
we
got
to
where
we
were
with
not
only
philanthropic
dollars
but
changing
legislation
and
Medicaid
and
there's
some
other
things
we
can
go
into
,
but
the
backup
.
The
reason
why
I'm
so
passionate
about
this
type
of
care
and
creating
an
organization
and
continuing
to
push
that
evolution
of
healthcare
and
make
it
more
accessible
to
others
is
because
of
my
own
personal
story
,
and
when
I
was
nine
years
old
,
I
was
accidentally
shot
in
the
back
of
the
neck
between
C5
,
c6
.
And
so
I
was
instantly
paralyzed
.
It's
a
complete
injury
,
which
means
that
there's
no
the
spinal
cord
was
severed
,
meaning
no
full
recovery
.
So
I
function
in
everyday
life
in
a
power
wheelchair
.
I
have
a
modified
vehicle
where
I
zoom
around
to
all
of
my
duties
.
Speaker 2
6:12
I
have
a
beautiful
,
sweet
service
dog
.
That
is
just
heaven
to
me
as
well
.
But
those
are
kind
of
how
I
function
every
day
.
But
why
that
injury
created
what
I
shared
earlier
was
because
,
you
know
,
when
I
was
shot
,
I
was
thrown
into
a
medical
model
rightfully
so
,
to
save
my
life
,
as
I
was
just
shot
,
but
also
into
the
medical
model
as
it
relates
to
how
was
I
going
to
address
my
spinal
cord
injury
for
the
rest
of
my
life
.
Speaker 2
6:40
And
what
that
initially
looked
like
was
,
after
rehab
,
I
would
sit
in
a
power
wheelchair
and
I
would
consume
a
ton
of
medications
for
the
rest
of
my
life
,
and
after
doing
that
,
for
probably
a
decade
,
that
was
not
the
way
that
my
body
or
,
I
think
,
many
,
many
people
are
able
to
sustain
,
in
the
sense
that
it
wasn't
a
vibrant
.
I
was
constantly
sick
.
The
medication
would
cause
additional
secondary
conditions
.
So
when
I
turned
21
,
I
started
having
chronic
pain
.
I
was
added
another
medication
,
which
was
a
Percocet
,
during
2003
,
when
the
opioid
epidemic
was
at
its
peak
,
and
so
I
became
extremely
sick
by
utilizing
the
traditional
medical
model
,
and
from
there
I
got
really
sick
.
I
became
bed
bound
,
I
weighed
59
pounds
.
I
needed
to
be
hospitalized
for
medical
intervention
,
which
I
find
a
little
bit
interesting
,
like
I
was
shot
and
I
used
medical
intervention
to
save
my
life
,
but
then
the
overall
utilization
of
medication
then
resulted
in
me
needing
medical
intervention
again
to
save
my
life
.
So
it
was
interesting
to
see
the
difference
or
the
variance
between
those
two
scenarios
,
knowing
that
medicine
has
such
a
beautiful
place
in
our
lives
and
,
at
the
same
time
,
can
also
be
a
detriment
to
our
lives
,
and
so
that
balance
we're
seeing
those
variances
and
finding
a
balance
was
really
really
critical
to
me
,
and
so
that's
when
I
started
doing
integrative
therapy
.
Speaker 2
8:10
I
wanted
to
make
sure
that
I
balanced
the
medication
that
I
needed
to
take
,
the
medication
I
didn't
need
to
take
,
but
then
also
substitute
acupuncture
,
massage
and
movement
to
my
body
,
massage
and
movement
to
my
body
.
Given
my
paralysis
,
I
had
no
ability
to
move
anymore
,
like
.
So
if
I
could
have
,
if
I
could
have
gone
to
a
gym
,
awesome
if
I
was
still
moving
.
But
because
I
can't
move
,
I
have
to
rely
on
other
humans
to
move
my
body
,
and
that
doesn't
mean
that
that's
any
less
I
still
should
go
to
the
gym
.
And
if
that
looks
like
it's
a
person
that's
doing
that
for
me
a
physical
therapist
,
an
adaptive
yoga
provider
,
a
massage
therapist
.
It's
essential
to
living
a
vibrant
life
,
so
I'm
going
to
shut
up
now
because
that
was
really
long
.
Speaker 1
8:54
No
,
it's
beautiful
because
I
think
the
takeaway
for
me
on
that
too
is
that
a
lot
of
us
are
given
the
opioid
route
because
that's
what's
accessible
with
insurance
,
that's
what's
accessible
off
the
cusp
,
that's
what
they
know
.
But
for
those
with
endometriosis
it
doesn't
really
help
us
all
that
much
.
In
fact
,
sometimes
it
does
more
harm
than
it
does
.
Good
,
I
know
for
me
personally
my
kidneys
have
taken
a
toll
because
of
all
the
NSAIDs
that
I
used
prior
to
my
excision
surgery
.
So
I
mean
,
I
understand
that
from
a
very
real
point
of
view
,
because
a
lot
of
us
are
given
these
types
of
medical
therapies
but
not
necessarily
it's
not
helping
us
,
it's
not
allowing
us
to
have
a
better
quality
of
life
and
get
our
bodies
moving
and
really
supporting
our
bodies
,
and
so
that
is
exactly
what
a
lot
of
us
are
feeling
and
I
think
that
it's
just
a
very
close-knit
crossover
in
disability
.
It's
just
that
for
a
lot
of
us
with
endometriosis
,
ours
isn't
always
visible
disability
.
Speaker 2
9:59
Yeah
,
physically
visible
.
Speaker 2
10:00
I
think
what's
beautiful
about
the
crossover
where
disability
lies
is
that
we
have
to
all
just
be
really
open
to
that
.
Speaker 2
10:08
Disability
looks
very
,
very
different
ways
and
we
have
to
remember
that
not
all
of
them
are
visual
and
so
and
to
also
not
create
any
sort
of
judgment
around
which
has
more
severity
,
because
the
severity
is
how
each
individual
it
affects
them
.
Speaker 2
10:25
So
if
you
look
at
it
more
as
a
person
versus
a
group
,
it's
like
you
know
,
I
am
never
going
to
sit
back
and
say
someone
that
doesn't
have
paralysis
as
their
disability
is
somehow
suffering
less
,
right
,
like
that's
just
not
correct
.
Speaker 2
10:40
And
so
I
really
appreciate
you
saying
that
,
because
and
I
love
and
I
think
it's
important
to
reiterate
the
part
that
you
mentioned
is
that
oftentimes
providers
are
physicians
,
they
want
to
do
good
by
us
,
but
yet
they're
so
limited
by
the
bureaucratic
or
the
coverage
of
insurance
.
Suggest
the
things
that
would
be
very
beneficial
and
amazing
and
life
changing
to
us
,
because
it's
almost
as
if
they're
suggesting
something
that
then
there's
no
money
to
follow
it
,
and
I
think
that
that
puts
them
in
an
awkward
position
and
that's
why
we
just
have
to
keep
changing
legislation
and
funding
and
create
educating
those
providers
to
funnel
that
funding
towards
their
ability
to
say
hey
to
a
patient
.
Guess
what
Like
?
I'm
aware
of
this
and
I
want
to
offer
you
this
opportunity
,
or
go
look
at
this
,
because
then
that
frees
them
from
having
to
suggest
something
that
someone
is
not
going
to
be
able
to
have
access
to
.
Speaker 1
11:37
Yeah
,
which
brings
me
to
Advocating for Therapies and Legislative Change
Speaker 1
11:39
my
next
point
.
You
have
created
a
heroic
feat
in
challenging
the
legislative
but
also
the
medical
system
by
almost
partnering
with
Medicare
or
Medicaid
and
getting
coverage
for
those
integrative
therapies
.
Which
,
how
?
How
did
you
do
this
?
How
,
what
were
the
challenges
behind
that
?
Because
,
my
goodness
gracious
,
insurance
is
going
to
be
the
death
of
me
in
and
of
itself
,
because
it's
,
I
mean
,
how
we
.
Most
of
our
integrative
therapies
are
not
covered
by
insurance
if
we
are
trying
to
seek
intentional
,
very
specific
care
in
these
integrative
therapies
,
because
the
providers
themselves
can't
afford
to
have
their
practice
based
on
insurance
.
So
how
did
you
integrate
?
Speaker 2
12:25
that
,
yeah
,
and
to
answer
this
,
I
also
want
to
just
be
mindful
of
the
difference
between
,
like
,
private
insurance
and
Medicaid
,
right
,
like
,
I
know
that
there's
a
difference
there
,
and
I
think
that
one
of
the
components
is
that
the
population
we
serve
is
predominantly
lands
within
that
Medicaid
as
their
primary
insurance
because
of
their
long-term
disability
,
like
the
various
things
that
come
with
that
level
,
such
as
home
health
care
,
durable
medical
equipment
,
like
all
of
these
really
intense
needs
that
are
very
,
very
costly
.
So
I
just
want
to
be
kind
of
mindful
of
that
difference
,
knowing
that
all
insurance
needs
to
cover
it
,
regardless
of
whether
it's
Medicaid
or
not
.
I
just
wanted
to
kind
of
indicate
that
component
,
and
so
my
drive
was
that
we
needed
to
at
least
have
Medicaid
recognize
that
one
.
These
services
acupuncture
,
massage
and
chiropractic
were
cost
effective
,
but
they
were
also
going
to
improve
the
quality
of
life
for
folks
with
long-term
disabilities
because
of
how
complex
their
health
care
is
,
as
well
as
the
level
of
secondary
conditions
that
come
from
it
,
and
so
what
I
set
out
to
do
,
and
what
we
did
in
2009
,
is
that
we
proposed
to
the
Colorado
legislative
body
that
we
wanted
to
prove
to
them
that
these
services
would
absolutely
reduce
that
cost
of
savings
,
but
then
improve
their
lives
.
Speaker 2
13:45
And
so
we
passed
a
bill
in
2009
that
,
for
the
first
time
,
colorado
Medicaid
started
funding
massage
,
acupuncture
and
chiropractic
care
.
And
so
what
that
is
?
It
opened
up
this
opportunity
for
those
on
Medicaid
to
get
more
proactive
and
preventative
services
,
rather
than
again
just
sitting
in
their
wheelchairs
and
only
taking
medication
.
And
so
I'll
be
honest
,
there
is
not
a
major
secret
to
doing
this
.
Like
I
I
tell
people
every
day
I'm
like
,
if
I
could
do
it
,
you
can
do
it
,
just
trust
me
.
Like
I
have
no
special
degree
I
have
no
.
Like
I
am
a
person
of
passion
that
set
a
determination
and
connected
with
a
lot
of
people
and
made
it
happen
,
and
so
I
truly
believe
everybody
has
the
ability
to
do
it
.
Speaker 1
14:34
They
just
need
to
be
empowered
and
passionate
about
it
.
Speaker 1
14:37
I
think
the
biggest
takeaway
there
because
,
honestly
,
none
of
the
advocacy
work
if
you
want
to
do
anything
,
advocacy
you
can't
do
it
.
Speaker 1
14:46
Without
passion
,
you'll
burn
out
instantly
,
and
so
,
especially
when
you're
dealing
with
legislative
pieces
,
which
brings
me
to
my
next
topic
is
that
legislative
pieces
for
endometriosis
are
not
inclusive
for
hardly
anything
,
because
it's
a
lot
of
times
categorized
as
either
a
women's
health
issue
,
but
not
even
that
,
or
a
menstrual
disorder
,
and
so
we
don't
get
the
disability
oftentimes
that
maybe
we
warrant
,
because
,
as
you
and
I
were
talking
about
previously
not
on
the
podcast
,
but
before
this
we
were
talking
about
just
the
disparities
in
legislative
wording
and
how
we
can
get
disability
funding
or
even
get
funding
for
these
types
of
integrative
therapies
,
because
we
don't
qualify
for
those
Medicaid
benefits
because
they
don't
recognize
it
as
a
disability
,
even
though
a
lot
of
us
are
out
of
work
for
a
week
during
our
cycle
or
as
it
progresses
,
it
gets
into
the
whole
month
where
you
can't
really
function
.
Speaker 1
15:48
You
are
crippled
by
pain
and
crippled
by
the
fact
that
maybe
our
muscles
are
atrophied
from
not
being
able
to
use
them
,
or
maybe
you
have
sciatic
endometriosis
or
who
knows
.
But
what
I'm
saying
to
that
is
is
that
we
have
to
do
better
in
the
legislative
piece
and
getting
more
people
the
assistance
that
they
need
for
those
invisible
illnesses
like
endometriosis
.
It
all
matters
,
but
you
have
to
be
passionate
about
it
,
that's
for
sure
.
Speaker 2
16:15
Oh
yeah
,
no
and
absolutely
,
and
I
think
that
you
know
what
it
is
that
you
just
spoke
to
,
and
the
community
that
surrounds
this
particular
disability
.
It's
so
essential
to
elevate
the
topic
,
elevate
the
need
,
elevate
the
funding
sources
,
because
that's
where
change
happens
.
We
live
in
a
world
,
we
live
within
systems
,
where
things
were
not
always
recognized
right
,
and
so
we've
created
systems
that
live
in
a
place
where
we're
getting
certain
types
of
support
,
but
it
doesn't
mean
that
it's
all
accurate
or
correct
or
that
I
think
for
me
,
the
biggest
thing
is
that
it
can't
stay
the
same
.
It's
got
to
continue
to
evolve
,
and
so
,
because
we
,
as
humans
,
are
finding
more
and
more
,
either
through
research
or
either
as
we
evolve
as
humans
,
we're
finding
more
things
out
about
our
bodies
,
and
that
then
just
needs
to
naturally
align
with
the
resources
that
then
need
to
support
the
new
evolution
.
That
they
have
to
go
hand
in
hand
,
right
?
You
can't
just
discover
something
and
be
like
,
oh
well
,
it's
been
discovered
.
It's
like
,
okay
,
well
,
now
the
system
needs
to
follow
that
that
need
.
Speaker 1
17:24
Right
,
which
is
kind
of
what
your
story
is
a
prime
example
of
.
It
was
good
to
have
that
medical
intervention
,
but
that
wasn't
sustainable
long-term
.
You
needed
something
else
to
sustain
your
ability
to
live
life
,
and
I
feel
like
that's
true
for
a
lot
of
us
.
With
endometriosis
specifically
,
you
know
it's
taken
us
years
for
a
diagnosis
.
Then
it
can
take
years
for
proper
treatment
if
you
get
that
,
but
you're
still
living
with
pain
,
and
having
these
options
to
us
is
essential
.
But
what
are
some
of
the
most
predominant
barriers
to
having
access
to
integrative
therapies
?
Speaker 2
18:05
I
can
name
mine
but
in
your
opinion
,
what
have
you
noticed
?
Yeah
,
so
I
would
say
just
well
,
one
,
the
understanding
of
integrative
therapies
.
Right
,
because
I
think
that
there's
different
definitions
of
just
even
those
terminologies
.
Right
,
that
integrative
therapy
shouldn't
be
really
identified
any
further
as
either
a
complementary
or
an
alternative
.
It
should
really
be
a
part
of
mainstream
.
So
I
feel
like
just
the
concept
of
integrative
therapies
,
separated
from
any
level
at
which
,
what
population
it's
serving
or
whatever
,
just
that
in
itself
,
I
think
,
still
has
a
lot
of
evolution
to
have
.
Speaker 2
18:42
So
there's
that
piece
,
I
think
.
Then
,
once
you're
educating
and
making
sure
that
we're
all
getting
,
you
know
we
have
a
country
of
healthcare
providers
and
the
National
Institute
of
Health
and
you
know
all
the
various
things
to
recognize
that
.
That's
one
barrier
.
After
,
outside
of
recognition
,
then
it's
just
the
what
I
see
as
the
funding
sources
to
then
fund
something
that
maybe
remains
unrecognizable
.
For
those
that
do
recognize
it
,
ensuring
that
the
resource
of
funding
is
adequate
,
right
.
So
I
think
that
another
barrier
could
be
like
oh
,
we
recognize
that
we're
going
to
give
you
this
much
and
it's
kind
of
like
,
well
,
in
order
to
really
make
an
impact
on
somebody
that's
living
with
a
long-term
disability
,
which
means
it's
not
going
to
go
away
.
This
is
a
lifetime
disability
,
so
it's
got
to
come
with
a
lifetime
level
of
service
and
treatment
in
order
to
sustain
and
keep
people
in
a
good
place
where
they're
not
going
from
acute
to
then
non-acute
,
acute
to
non-acute
Like
.
You've
got
to
create
that
baseline
,
knowing
that
,
yes
,
of
course
we're
all
going
to
have
our
outliers
right
,
we're
all
going
to
get
maybe
sick
or
have
an
episode
of
some
sort
that's
going
to
take
us
off
that
baseline
.
But
if
we
can
get
to
that
baseline
,
to
where
we
can
at
least
function
really
well
in
society
and
engage
with
people
and
work
and
all
the
various
things
,
I
think
that's
what's
essential
.
Speaker 2
20:08
So
recognition
,
the
funding
,
and
then
,
lastly
,
the
barrier
is
the
education
,
because
once
you
start
getting
recognition
,
you
start
getting
funding
.
Then
it's
making
sure
that
those
that
are
living
with
a
disability
are
aware
of
the
funding
opportunities
or
the
coverage
,
as
well
as
the
all
of
the
quote
unquote
.
I
call
them
brokers
of
health
care
that
need
to
be
reminding
them
or
letting
them
know
not
even
reminding
,
just
letting
them
know
up
front
that
hey
,
within
your
benefits
,
you
have
access
to
this
because
it
takes
a
lot
of
moving
parts
.
You
have
access
to
this
because
it
takes
a
lot
of
moving
parts
,
but
I
think
that
,
yeah
,
when
you're
dedicated
,
you
can
absolutely
,
you
know
,
make
it
happen
.
And
of
course
it's
going
to
.
There'll
be
,
there'll
be
baby
steps
and
there'll
be
grand
steps
,
and
and
you
just
keep
going
.
Speaker 1
20:55
Yes
,
I
mean
you
have
to
one
foot
in
front
of
the
other
and
there's
times
that
we
get
pushed
back
a
little
bit
and
you
just
have
to
keep
pushing
forward
,
because
there's
going
to
be
barriers
and
there's
going
to
be
blocks
and
I
think
,
as
good
as
it
can
be
,
there
are
still
challenges
within
our
health
system
,
A
lot
of
challenges
within
our
health
system
,
especially
for
those
with
endometriosis
and
other
chronic
illnesses
that
aren't
recognized
by
the
healthcare
community
as
being
a
chronic
illness
.
Speaker 1
21:24
I
think
moving
forward
,
pushing
forward
and
not
allowing
those
barriers
to
stop
you
or
deter
you
,
will
get
you
leaps
and
bounds
,
if
not
for
you
,
for
future
generations
.
Speaker 1
21:35
You
know
,
and
that's
kind
of
why
I
do
,
what
I
do
is
not
necessarily
for
me
the
damage
some
damage
has
been
done
to
the
body
,
but
I
do
want
to
change
the
future
outcome
and
make
I
mean
,
I
can't
do
it
alone
,
we
all
have
to
all
do
it
together
right
,
but
be
a
part
of
changing
the
narrative
behind
endometriosis
.
Changing
the
narrative
behind
the
delay
in
diagnosis
from
seven
to
10
years
to
one
at
most
.
Changing
the
barrier
to
proper
treatment
from
additional
seven
to
10
years
or
never
for
some
people
to
proper
care
and
treatment
being
the
gold
standard
to
everyone
,
allowing
that
to
be
accessible
to
everyone
.
But
I
do
feel
like
excision
and
surgery
is
,
I
say
,
step
two
.
I
think
the
integrative
like
the
pelvic
floor
,
physical
therapy
,
acupuncture
,
chiropractic
is
really
step
one
to
help
support
your
body
and
get
it
to
where
it
can
walk
through
surgeries
or
medical
traumas
much
better
.
But
then
you
are
likely
going
to
need
this
support
long
term
.
Speaker 2
22:40
Oh
,
absolutely
yeah
,
Because
I
mean
because
we
all
have
to
be
aware
that
there's
probably
going
to
be
a
procedure
or
a
surgery
,
but
any
,
anything
that
you
can
do
on
a
prevention
level
prior
,
during
,
after
I
mean
,
those
are
essential
for
all
,
all
humans
,
let
alone
probably
even
more
critical
for
folks
that
are
living
with
any
level
of
disability
.
And
I
love
what
you
said
.
Same
for
me
in
terms
of
,
like
the
center
.
You
know
the
work
that
we're
doing
if
it
benefits
us
you
and
I
personally
,
absolutely
,
but
our
primary
goal
is
that
we're
impacting
so
many
other
people
.
And
I
love
what
you
said
about
future
generations
because
I
know
today
the
work
that
I
do
.
Speaker 2
23:21
I
probably
am
having
an
easier
time
still
running
into
barriers
and
challenges
,
but
I
am
confident
that
I'm
having
probably
more
successes
in
this
lifetime
because
of
the
work
of
those
with
disabilities
prior
to
my
time
,
and
so
I
often
find
it
as
like
this
is
my
ability
to
give
back
to
those
that
you
know
really
made
accessibility
,
like
I
think
about
the
people
that
you
know
started
to
make
,
like
you
know
,
fights
and
rallies
to
make
things
physically
accessible
for
us
,
and
so
it's
kind
of
like
you
know
you
did
that
and
I'm
going
to
do
this
and
,
before
we
know
it
,
several
generations
and
centuries
from
now
,
we'll
have
people
that
are
benefiting
from
the
work
we've
done
today
and
taking
it
to
the
next
level
.
Speaker 2
24:07
And
I
just
think
that
that
was
such
an
important
thing
to
do
,
because
I
oftentimes
think
that
we
can
get
stuck
in
our
,
we
get
in
our
own
way
a
little
bit
,
and
I
think
that
that's
really
an
essential
piece
is
that
you're
part
of
the
whole
.
Speaker 2
24:22
What
I
also
would
say
is
that
,
which
I
know
you
and
I
probably
are
on
the
same
page
about
this
too
,
is
that
I
never
dismiss
the
reality
that
not
everybody
wants
to
be
in
the
work
that
you
and
I
are
doing
,
right
?
So
I
think
that's
one
thing
I
always
throw
out
to
people
too
is
that
your
impact
can
even
be
small
.
Right
,
because
sometimes
going
through
these
barriers
and
going
through
these
challenges
are
so
exhausting
that
it's
like
you
don't
want
to
dismiss
that
piece
,
because
that's
such
a
deep
reality
and
that
not
everybody
has
to
or
wants
to
do
the
deep
work
,
but
maybe
they
just
want
to
contribute
on
the
sidelines
,
and
those
sideline
level
support
is
so
critical
to
those
that
are
in
the
deep
components
of
it
.
So
I
just
wanted
to
mention
those
two
things
that
kind
of
came
up
as
a
result
of
our
conversation
.
Speaker 1
25:10
Absolutely
.
And
you
know
,
and
I've
always
said
this
,
sometimes
those
people
who
support
those
that
maybe
are
more
visual
to
the
public
eye
,
the
ones
that
support
us
,
are
the
most
crucial
,
because
they're
the
ones
really
that
are
the
pillars
of
what
we
are
the
most
crucial
because
they're
the
ones
really
that
are
the
pillars
of
what
we
are
able
to
do
.
Speaker 1
25:28
They're
the
ones
that
hold
us
up
when
we
don't
want
to
do
it
anymore
,
and
that
support
piece
is
crucial
to
anyone
,
especially
when
you're
walking
through
your
own
chronic
pains
and
illness
,
to
have
people
support
you
along
and
encourage
you
,
because
this
is
not
easy
work
to
do
and
neither
is
supporting
sometimes
Overcoming Healthcare Barriers for Disabilities
Speaker 1
25:48
.
And
something
I
want
to
come
back
to
is
the
fact
that
we
talked
about
barriers
for
those
walking
through
the
trenches
of
disability
.
What
are
some
of
the
hardest
barriers
that
those
with
disabilities
face
in
the
healthcare
system
?
Speaker 2
26:03
Yeah
,
I
think
that
my
sense
granted
,
being
a
woman
with
a
spinal
cord
injury
,
there's
some
that
apply
to
that
component
of
it
,
but
there's
bigger
pieces
that
comply
to
all
of
us
,
right
?
I
know
that
with
the
work
that
I've
been
doing
,
it's
been
very
devastating
to
see
that
the
center
is
more
accommodating
and
physically
accessible
to
people
with
disabilities
than
what
we've
always
seen
as
the
traditional
model
,
such
as
physician
clinics
or
specialty
clinics
,
meaning
,
like
,
if
you
want
to
go
get
your
mammogram
,
there's
not
very
many
machines
that
can
do
that
,
that
are
accessible
to
people
.
So
the
thing
is
is
that
we've
been
living
30
years
post
the
ADA
,
which
was
created
in
1990
.
And
we
are
still
coming
up
against
the
most
disparaging
civil
rights
violations
in
our
healthcare
system
that
really
,
to
me
,
are
completely
unacceptable
.
And
this
has
kind
of
been
the
new
project
that
I've
been
working
on
and
I
believe
again
that
these
are
providers
that
went
to
school
,
wanted
to
become
a
physician
,
because
they
believed
in
healing
,
they
believed
in
wanting
to
help
people
and
again
,
they've
been
caught
up
in
the
bureaucratic
process
of
it
because
,
you
know
,
they
only
get
paid
so
much
by
so
many
individuals
in
order
to
make
what
it
is
that
they
need
to
do
get
done
,
and
they're
limited
in
terms
of
what
is
covered
.
And
so
and
some
of
these
,
I
would
say
,
providers
are
within
institutions
that
if
the
institution
doesn't
support
it
,
they
as
a
provider
have
very
little
authority
to
make
any
level
of
change
.
And
so
I
see
all
of
those
one
the
systems
being
the
issue
,
and
then
I
also
see
our
own
kind
of
state
and
federal
government
needing
to
step
up
to
the
plate
and
just
say
,
hey
,
there's
some
violations
occurring
and
compliance
is
going
to
start
coming
down
and
so
that
people
,
all
people
,
have
equitable
access
to
healthcare
and
can
be
put
on
a
treatment
table
,
get
their
pap
smears
once
a
year
.
Like
those
things
are
not
happening
today
.
Like
people
are
being
turned
away
from
healthcare
because
they
have
a
disability
,
because
people
are
so
uncomfortable
,
have
never
had
the
education
or
the
financial
ability
to
care
for
them
,
and
so
it's
interesting
.
So
those
are
the
major
barriers
kind
of
highlights
there's
obviously
it's
far
more
complex
than
that
.
Speaker 2
28:31
I
think
the
other
components
is
that
there's
lots
of
biases
in
our
healthcare
systems
,
as
well
as
gaslighting
,
and
so
you
know
the
healthcare
.
Gaslighting
is
just
one
of
those
things
that
I
feel
a
lot
of
folks
with
disabilities
unfortunately
have
to
experience
,
which
results
in
a
lot
of
trauma
,
because
when
they
say
that
,
oh
,
it's
all
in
your
head
,
like
,
oh
,
you
don't
know
what
you're
like
,
you
know
,
like
we're
the
provider
,
it's
like
no
,
no
,
no
,
no
.
There's
this
thing
now
called
you
know
,
patient
advocacy
and
there's
this
thing
called
that
what
I
feel
is
real
and
it's
not
okay
for
you
to
determine
otherwise
.
And
so
I
think
that
there's
that
ongoing
piece
as
well
as
the
biases
that
providers
,
depending
on
their
age
or
where
their
cultural
background
,
some
can
look
at
disability
in
a
very
disparaging
way
.
Speaker 2
29:20
There
was
an
article
of
a
research
where
there
were
all
these
physicians
in
the
room
and
they
asked
them
to
raise
their
hand
if
they
believed
that
their
patients
with
disabilities
could
be
healthy
.
And
no
one
raised
their
hand
because
their
association
that
disability
and
health
,
good
health
or
disability
and
wellness
could
coexist
wasn't
even
a
reality
to
them
.
Wow
,
that's
crazy
to
me
.
So
if
we're
being
served
by
providers
that
don't
even
believe
that
we
can
be
healthy
people
,
what
kind
of
direction
and
care
are
they
going
to
give
us
?
Not
very
good
right
,
like
they
might
just
think
that
they're
trying
to
put
band-aids
on
things
just
to
keep
us
alive
for
as
long
as
we
can
,
but
in
reality
it's
like
no
,
we
can
live
for
a
really
long
time
because
we're
healthy
,
productive
people
in
our
society
.
So
it's
interesting
.
Speaker 1
30:18
Well
,
and
it's
interesting
to
put
it
that
way
because
you
know
,
I
look
at
the
endo
community
at
large
and
I
would
say
there's
this
misconception
that
if
you
have
endometriosis
that
you
will
never
be
fully
healthy
,
or
the
opposite
of
that
is
have
a
hysterectomy
,
you'll
be
completely
healthy
and
it'll
cure
it
.
So
we
are
in
this
like
weird
gray
area
of
misunderstanding
constantly
and
of
course
,
a
lot
of
us
in
the
endometriosis
community
understand
that
it
starts
with
defining
endometriosis
correctly
like
hurdle
one
.
But
I
think
that
it's
true
.
I
think
that
is
a
large
part
of
getting
quality
care
is
not
walking
in
with
a
provider
that
already
has
preconceived
notions
of
what
your
health
should
be
.
Speaker 2
31:03
Yeah
,
yeah
,
absolutely
Like
a
preconceived
notion
about
whether
they
think
that
you
can
be
a
healthy
human
with
a
disability
.
And
there's
an
article
,
it's
a
great
article
.
It's
called
I'm
not
the
doctor
for
you
and
,
granted
,
yeah
,
it's
highlighting
and
looking
at
people
with
physical
disabilities
,
but
it
is
translatable
.
You
can
translate
that
level
of
example
to
any
any
,
any
other
disability
,
to
show
that
we're
sitting
in
a
pretty
significant
issue
in
the
healthcare
world
when
it
comes
to
some
pretty
strong
levels
of
discrimination
that
,
unfortunately
,
is
not
just
solely
on
the
provider
.
It
is
a
part
of
the
system
too
.
It's
a
system
that
has
been
created
to
not
discriminate
,
but
yet
there
are
some
strong
levels
of
inability
to
have
our
providers
be
in
compliance
and
support
them
with
what
they
need
in
order
to
be
compliant
.
Speaker 1
31:57
Yeah
,
absolutely
.
Something
that
you
had
mentioned
to
me
prior
that
I
found
fascinating
and
really
I
hadn't
put
a
ton
of
thought
into
because
I
haven't
been
in
this
place
,
is
those
who
have
a
physical
disability
or
limitation
.
Getting
diagnosed
with
endometriosis
is
a
very
challenging
thing
because
some
providers
cannot
see
beyond
the
physical
limitation
or
the
physical
disability
.
Can
you
kind
of
just
touch
on
that
for
us
,
because
I'm
not
sure
that
we
talk
a
lot
about
this
?
Speaker 2
32:29
Yeah
.
So
if
you
think
about
,
you
know
,
multiple
disabilities
,
I
mean
we
have
folks
that
,
like
example
,
we
have
an
individual
with
a
spinal
cord
injury
and
also
lives
with
lupus
,
right
?
So
he
has
to
be
really
mindful
that
when
he
is
in
conversation
with
his
providers
that
they
understand
that
there
is
a
constant
need
to
remember
whether
what's
coming
up
is
a
result
of
lupus
or
the
spinal
cord
injury
.
So
I
can
almost
guarantee
yeah
,
I
absolutely
can
guarantee
there
are
women
with
spinal
cord
injuries
that
also
suffer
for
endometriosis
.
I
can
almost
probably
confidently
say
that
90%
,
maybe
even
99%
of
them
don't
even
know
.
Speaker 2
33:11
Because
what's
happening
right
now
is
with
the
physicians
that
are
serving
folks
with
complex
,
because
what's
happening
right
now
is
with
the
physicians
that
are
serving
folks
with
complex
,
long-term
physical
disabilities
they're
always
just
constantly
trying
to
address
the
secondary
conditions
,
right
?
So
let's
say
,
urinary
tract
infections
,
pressure
sores
,
bladder
bowel
dysfunction
,
spasticity
,
like
heart
,
there's
all
of
these
things
,
right
?
That
is
a
direct
result
of
a
spinal
cord
injury
that
they
focus
on
,
and
so
oftentimes
our
physicians
never
have
us
come
in
for
annual
routine
exams
,
which
is
what
every
human
needs
,
in
addition
to
the
awareness
of
your
primary
disability
and
the
secondary
conditions
.
Because
Chanda
still
has
a
body
.
I
want
to
know
how's
my
cardio
,
what's
my
?
Speaker 2
33:58
I
want
to
know
my
cholesterol
.
I
want
to
know
my
cardio
.
I
want
to
know
,
like
I
want
to
have
my
pap
smears
when
they're
normal
.
I
want
to
know
,
like
I
want
,
the
traditional
preventative
measures
that
you
do
with
all
of
your
patients
that
are
not
disabled
.
I
want
those
same
tests
and
measurements
too
,
because
that
in
itself
,
in
addition
,
yeah
,
it
might
look
different
because
it
may
be
impacted
by
my
spinal
cord
injury
,
but
that's
some
valid
information
,
right
.
So
if
I
don't
get
proper
annual
exams
,
of
course
there's
going
to
be
a
lot
of
things
that
are
missed
because
they're
only
addressing
and
focusing
on
the
secondary
conditions
,
and
that's
a
scary
place
to
live
because
a
lot
of
women
with
spinal
cord
injuries
will
come
down
with
some
level
of
cancer
because
they
were
never
,
ever
getting
pre-screened
for
anything
.
Speaker 1
34:49
because
of
that
very
reason
,
which
is
interesting
to
me
that
you
mentioned
urinary
and
bowel
and
everything
else
,
because
I
mean
,
a
lot
of
endometriosis
patients
deal
heavily
with
bowel
dysfunction
,
urinary
and
dysfunction
bladder
issues
.
I
mean
,
if
we're
looking
at
endometriosis
and
the
involvement
,
that's
really
high
for
us
,
so
the
cross
in
those
two
would
ultimately
lead
to
them
completely
missing
endometriosis
if
they
have
it
and
focusing
on
their
primary
as
the
symptom
,
as
opposed
to
there's
something
else
going
on
here
.
You
know
Exactly
,
yeah
.
Speaker 2
35:26
Yeah
,
it's
very
interesting
,
right
.
It's
like
just
think
about
if
somebody
with
lupus
also
had
endometriosis
,
right
?
Or
,
like
you
know
,
I'm
not
just
talking
about
spinal
cord
injury
.
There's
so
many
different
comorbidities
that
when
,
when
we
can
have
providers
aware
of
that
,
knowing
that
not
one
outweighs
the
other
,
I
see
healthcare
as
a
team
.
When
you
have
a
provider
like
they're
supposed
to
be
your
,
your
teammate
,
you
know
your
teammate
in
your
healthcare
awareness
and
your
goals
.
And
again
,
we've
been
caught
up
in
a
system
where
,
unfortunately
,
we
get
15
minutes
and
that
15
minutes
just
doesn't
allow
for
folks
to
have
the
ability
to
really
have
a
teammate
as
a
part
of
their
care
team
which
is
their
provider
.
Speaker 1
36:09
Absolutely
,
and
you
know
I
talk
about
this
a
lot
,
about
having
a
multidisciplinary
team
.
That
doesn't
just
mean
from
the
surgical
standpoint
,
that
doesn't
just
mean
from
a
specialist
standpoint
.
This
is
sometimes
your
physical
therapist
or
your
pelvic
floor
physical
therapist
or
your
acupuncturist
will
see
something
that
your
main
provider
won't
,
because
they're
seeing
and
hearing
you
on
a
different
level
.
They're
able
to
step
outside
of
that
15
minutes
and
hear
you
and
say
something's
not
adding
up
.
Maybe
we
should
consider
this
have
you
gotten
your
blood
work
for
that
?
Have
you
?
And
that's
where
this
comes
full
circle
with
the
integrative
therapies
,
because
I
feel
like
when
you
have
the
ability
and
the
time
to
sit
down
with
people
outside
of
the
scope
of
their
specialty
and
talk
about
some
of
these
challenges
that
we're
facing
,
they're
able
to
kind
of
pinpoint
that
something's
not
quite
right
or
something's
not
aligning
with
your
primary
diagnosis
.
It
can
be
something
that
is
contributing
to
your
primary
pain
but
isn't
necessarily
your
primary
diagnosis
or
primary
challenge
.
Speaker 2
37:15
Oh
no
,
absolutely
.
What
I
love
about
that
is
the
integrative
component
,
right
,
and
I
think
,
like
you
said
,
full
circle
brought
us
kind
of
back
to
why
the
Chanda
Center
,
you
know
,
wanted
to
make
sure
we
had
multiple
disciplinary
services
underneath
one
roof
.
Right
,
we
even
had
we
used
to
have
a
primary
care
in
there
as
well
,
but
just
between
our
behavioral
health
provider
they
can
see
certain
things
at
some
level
.
But
what
I
love
about
our
team
is
that
they're
always
in
support
of
each
other
,
and
we've
also
had
to
learn
to
have
providers
get
out
of
their
own
way
in
the
sense
of
like
hey
,
have
a
respect
for
acupuncturists
.
Like
,
yes
,
you
may
have
gone
to
a
higher
level
of
what
you
identify
as
medical
school
,
but
I
mean
,
we
have
acupuncturists
that
have
went
through
multiple
years
of
Chinese
medicine
and
herbs
and
all
these
things
.
Speaker 2
38:02
And
so
we
always
talk
about
a
linear
model
of
care
,
meaning
that
there's
no
one
provider
in
this
center
that
is
above
another
.
Speaker 2
38:10
Like
you
have
to
be
in
collaboration
with
each
other
,
because
,
guess
what
,
the
person
that
gets
impacted
when
you
don't
is
the
end
user
,
and
everybody
has
really
,
I
wouldn't
say
,
bought
in
,
but
they're
only
there
because
they
believe
in
that
,
because
we'll
only
allow
people
that
believe
that
to
be
people
serving
at
the
center
.
Speaker 2
38:29
You
know
that
there's
no
ego
.
There's
none
of
that
Because
,
at
the
end
of
the
day
,
your
ego
as
a
provider
will
absolutely
affect
an
individual
human
that
does
not
need
that
,
and
that's
why
you
chose
to
be
a
provider
is
to
serve
them
,
and
they
have
the
right
to
have
multiple
providers
.
World
would
be
quite
beautiful
because
there
should
not
only
be
one
tiny
center
in
Lakewood
,
colorado
,
that
is
doing
it
,
and
I
know
that
there's
other
clinics
that
do
integrative
therapies
,
but
they
oftentimes
will
not
include
mainstream
physician
.
They'll
only
do
like
maybe
a
DO
or
a
doctor
of
osteo
,
those
things
like
that
.
And
so
I
think
that
the
more
that
we
can
emerge
those
two
quote
unquote
separate
worlds
into
one
,
the
more
success
that
all
providers
,
but
even
the
end
user
,
will
have
.
Speaker 1
39:25
Absolutely
.
I
100%
agree
with
that
,
because
we
see
this
in
the
endometriosis
community
a
lot
and
it's
a
challenge
that
we
are
faced
with
often
and
that
we
are
the
ones
putting
our
team
together
,
which
is
good
,
but
also
we
have
to
get
our
team
to
talk
to
one
another
for
our
betterment
of
ourselves
,
but
also
for
the
future
generations
.
Again
,
it
goes
back
to
that
If
we
can
as
a
community
and
as
providers
,
if
we
can
encourage
them
to
work
together
and
as
providers
,
if
we
can
encourage
them
to
work
together
,
I
think
the
outcome
for
all
patients
will
be
significantly
better
.
And
I
don't
see
that
a
lot
,
to
be
honest
,
like
I
really
struggle
seeing
people
working
together
and
collaborating
,
partially
because
of
ego
or
they
don't
understand
it
,
or
whatever
.
But
it
is
a
challenge
to
find
a
team
that
will
work
hand
in
hand
together
for
the
betterment
of
their
patients
and
there
are
those
out
there
that
do
but
it
is
,
it's
challenging
.
I
think
that
is
a
barrier
for
those
of
us
with
endometriosis
for
sure
.
Speaker 2
40:25
Yeah
,
and
for
everyone
,
because
it
wouldn't
it
be
nice
if
that
was
just
the
standard
way
that
we
did
healthcare
in
America
.
Is
that
it's
it's
a
collaborative
team
,
regardless
of
whether
you
have
a
disability
or
not
,
like
that's
just
the
standard
,
because
so
much
healthcare
and
prevention
and
,
you
know
,
benefit
could
come
from
that
for
sure
.
Speaker 1
40:44
Yeah
,
For
those
listeners
that
aren't
from
Colorado
or
even
from
the
United
States
,
what
are
some
tools
or
some
ways
that
they
can
help
find
integrative
therapies
that
will
accommodate
their
needs
?
Speaker 2
40:57
Yeah
,
I
mean
,
I
always
tell
our
folks
that
whenever
thinking
about
the
services
,
right
,
just
being
aware
that
all
different
services
are
going
to
produce
a
different
outcome
,
right
,
so
that's
always
beautiful
,
which
is
why
we
have
different
ones
,
and
so
trying
multiple
of
them
to
really
identify
which
ones
are
going
to
be
most
effective
for
you
.
But
even
if
you're
reaching
out
to
those
providers
,
it's
always
nice
to
maybe
even
do
some
research
on
whether
there's
a
sliding
scale
fee
clinic
in
your
community
,
right
,
because
we
all
know
that
finances
is
a
big
thing
,
and
especially
if
it's
not
currently
covered
.
So
I
always
look
for
sliding
scale
.
I
always
look
for
calling
them
and
ensuring
like
,
hey
,
have
you
ever
worked
with
somebody
with
this
level
?
If
not
,
can
you
refer
me
to
somebody
else
?
And
,
I
think
,
ensuring
that
before
you
even
go
there
,
if
there's
any
level
of
accommodation
that
you
need
,
make
sure
that
they're
going
to
be
comfortable
with
those
accommodations
Advocating for Equitable Healthcare Access
Speaker 2
41:51
.
Speaker 2
41:51
Because
the
last
thing
,
which
I
always
feel
is
one
thing
that
people
with
disabilities
run
into
all
the
time
,
is
that
we
show
up
because
we're
,
so
you
know
whether
we're
having
a
good
day
or
bad
day
,
we're
.
Maybe
we're
just
going
to
be
optimistic
that
when
we
show
up
,
healthcare
providers
are
going
to
open
up
their
arms
to
us
because
one
it's
called
healthcare
and
we're
going
.
We're
going
there
for
the
sake
of
our
health
care
,
but
yet
we
feel
so
alienated
or
pushed
away
or
unseen
,
and
when
that
happens
in
health
care
,
people
run
.
And
when
people
run
then
that
means
that
their
health
care
is
not
met
,
because
it's
like
who
wants
to
keep
showing
up
when
they
are
not
seen
and
heard
and
are
not
being
treated
in
a
way
that
everyone
should
be
treated
?
Speaker 2
42:39
And
so
I
think
oftentimes
diagnoses
or
lack
of
,
or
,
once
you
like
,
people
people
could
just
stop
doing
health
care
and
live
a
life
of
suffering
,
but
then
,
let
alone
just
not
ever
get
the
support
,
or
things
become
more
complex
,
because
we
see
every
day
that
participants
will
use
the
emergency
room
as
their
primary
care
,
or
you
know
,
when
they
would
go
into
a
different
massage
clinic
,
they
were
just
like
,
yeah
,
when
they
looked
at
me
,
they're
like
,
uh
,
I've
never
massaged
anyone
in
a
wheelchair
before
.
Like
that
feeling
alone
is
just
so
.
It
can
be
so
intimidating
for
some
people
.
And
so
those
are
my
suggestions
when
reaching
out
and
trying
to
find
those
providers
.
And
again
,
you
,
making
it
normal
will
bring
them
to
a
place
of
seeing
the
normalcy
of
it
,
because
it
is
normal
,
for
goodness
sakes
.
We're
just
humans
that
have
all
these
various
conditions
and
that's
just
the
way
that
it
is
.
Speaker 1
43:34
Right
,
what
is
next
for
the
center
?
Because
you
guys
have
a
lot
going
on
and
it
is
amazing
.
If
you
have
not
heard
of
your
center
,
can
you
give
us
first
of
all
,
the
website
for
people
to
check
it
out
,
because
I
think
we
can
either
learn
from
it
or
gain
experience
through
that
,
and
then
also
what's
next
for
you
in
your
nonprofit
.
Speaker 2
43:54
Yeah
,
so
the
our
website
is
candacenterorg
and
,
yeah
,
I
hope
that
everyone
gains
insight
from
how
they
might
be
able
to
.
You
know
,
depending
on
what
level
of
ambition
you're
currently
at
,
like
you
can
,
there's
so
many
ways
to
replicate
what
it
is
that
we've
done
for
any
,
any
disability
right
,
and
so
I
think
that
that's
really
essential
in
that
everyone
absolutely
can
have
the
capacity
or
education
to
do
it
,
because
I
didn't
go
to
school
to
learn
how
to
open
up
a
health
clinic
,
like
what's
your
background
?
I
just
got
communicate
.
I
mean
,
granted
,
I
got
my
master's
in
nonprofit
management
after
a
while
,
but
at
the
first
,
when
I
first
started
it
,
it
was
just
like
it's
because
I
really
believe
in
it
.
And
so
,
yeah
,
that's
the
website
.
Speaker 2
44:43
And
then
,
in
terms
of
what's
next
for
us
,
is
that
we're
going
into
our
strategic
planning
,
which
I
think
that
one
of
the
things
is
that
strategic
planning
,
I
think
with
all
of
us
,
is
that
it
can
be
really
good
or
it
can
be
really
bad
.
Speaker 2
44:52
And
so
I've
always
said
,
when
we
go
into
our
strategic
planning
,
is
that
we're
not
doing
it
for
the
sake
of
doing
it
.
We're
doing
it
to
really
identify
what
we
want
to
see
in
our
future
.
And
I
think
that
some
of
the
things
that
have
come
up
for
us
is
that
we
are
really
looking
at
doing
an
adaptive
gym
again
,
where
it
will
be
not
coming
out
of
the
of
the
individual
,
because
our
philosophy
at
the
center
is
that
we
provide
services
to
individuals
where
they
do
not
pay
out
of
pocket
,
but
rather
the
health
care
system
is
paying
on
their
behalf
,
because
when
they
keep
them
healthy
,
they
save
costs
,
and
so
that's
that
advocate
component
.
So
we're
going
to
continue
to
advocate
.
We're
going
to
continue
to
evolve
the
lines
of
service
that
we
already
do
,
as
well
as
evolve
and
really
work
on
that
project
of
ensuring
that
our
mainstream
healthcare
system
is
giving
disability
equitable
healthcare
.
Speaker 1
45:48
So
important
,
so
important
,
I
know
right
.
Oh
,
you're
like
music
to
my
ears
right
now
.
You're
so
great
.
I
love
that
you
had
that
passion
and
that
heart
to
do
that
and
you
didn't
allow
your
challenges
to
get
in
the
way
of
not
only
supporting
you
but
so
many
others
Like
that
is
,
to
me
,
the
makings
of
a
superhero
.
I'm
just
blown
away
by
everything
that
you've
been
able
to
accomplish
in
that
it's
.
It's
just
amazing
.
That's
all
.
I
mean
,
not
all
,
but
you're
just
amazing
and
I
really
want
.
Speaker 2
46:24
I
really
appreciate
that
and
,
like
you
and
I
were
talking
about
earlier
,
like
the
things
that
you
and
I
do
and
a
lot
of
people
do
,
we
don't
do
it
alone
like
we
have
so
many
,
so
so
many
people
backing
us
up
because
I
came
up
with
an
idea
but
I
wasn't
the
only
one
that
was
able
to
fund
it
.
There's
so
many
,
so
so
many
people
backing
us
up
because
I
came
up
with
an
idea
but
I
wasn't
the
only
one
that
was
able
to
fund
it
.
There's
so
many
components
of
it
that
I
didn't
have
the
expertise
to
do
.
And
so
I
truly
believe
that
when
we
create
something
based
off
of
a
need
that
is
not
being
met
and
you
continue
to
see
it
evolve
,
you
continue
to
see
it
impact
more
and
more
people
like
you're
going
down
the
right
path
and
you
got
the
right
people
supporting
you
,
and
I
just
really
appreciate
everyone
that
one
helps
us
get
where
we
are
,
but
then
also
even
you
and
other
people
that
are
evolving
other
things
out
in
community
that
just
really
need
the
attention
.
Speaker 1
47:14
Yeah
,
it
does
,
and
that's
,
you
know
,
like
,
the
nonprofit
I'm
part
of
called
Indo
Village
is
very
much
that
same
mindset
of
it
.
Takes
a
village
,
it
truly
,
truly
does
on
all
advocacy
fronts
.
Chanda
,
last
thing
before
we
wrap
up
,
but
I
want
to
know
what
has
been
the
most
profound
thing
that
you
have
learned
in
your
journey
in
doing
this
?
Speaker 2
47:35
Ooh
,
that's
a
serious
question
.
Speaker 2
47:40
I
oh
goodness
this
is
usually
I
can
like
come
up
with
it
right
away
.
Speaker 2
47:43
I
would
say
that
,
being
a
bit
naive
in
your
processes
of
creation
and
passion
,
that
part
,
I
think
,
is
what's
always
been
deep
for
me
,
because
I
often
think
that
there's
sometimes
we
don't
move
on
things
because
we
don't
think
that
we're
smart
enough
or
we
don't
think
that
we
have
what
it
takes
.
And
what
I
loved
is
that
I
wasn't
scared
of
asking
questions
and
I
wasn't
scared
of
just
being
.
You
know
what
I'm
naive
,
and
being
naive
results
in
this
,
and
I'm
okay
with
that
,
because
actually
being
naive
brought
forth
a
lot
of
amazing
things
,
meaning
like
when
I
didn't
have
fear
around
,
like
well
,
I
don't
know
how
to
pass
legislation
,
because
I
was
so
naive
,
I
wasn't
scared
of
it
,
and
so
,
therefore
,
it
just
happens
.
I
think
that
,
for
me
,
is
really
the
profound
components
of
this
stuff
.
Granted
,
there's
so
I
mean
there's
so
many
,
and
the
fact
that
I
have
to
choose
one
is
really
unfair
,
but
that's
the
one
that
I'll
say
as
it
relates
to
just
myself
and
something
that
I
can
share
with
others
.
Speaker 1
48:57
Oh
,
that's
so
good
.
I
would
say
the
same
.
I
mean
,
I
think
I've
learned
so
much
about
not
only
myself
,
but
also
the
disease
and
the
challenges
that
we
face
,
but
also
the
really
amazing
parts
of
having
this
disease
is
this
community
,
and
I
was
completely
naive
to
that
,
and
I
have
,
again
,
not
stopped
at
asking
questions
.
That's
why
I
started
.
This
is
because
I'm
not
the
expert
,
but
I
know
the
ones
that
are
and
I'll
ask
the
questions
because
I'm
just
curious
most
of
the
time
,
and
so
that
is
so
profound
,
I
think
,
for
all
of
us
to
live
by
.
It's
just
that
being
naive
is
not
a
bad
thing
.
It
just
continue
asking
the
questions
,
it's
so
good
.
Speaker 2
49:40
Oh
yeah
,
ask
all
the
questions
you
want
.
Like
.
That's
the
,
that
is
the
motto
,
like
it
in
life
.
Everyone
,
everyone
,
like
just
asked
a
lot
of
questions
and
there's
nothing
wrong
with
it
.
Speaker 1
49:50
Yes
,
that's
so
good
,
chanda
.
Thank
you
so
much
for
your
time
and
your
insights
and
your
passion
and
your
heart
.
I'm
excited
to
continue
this
relationship
more
and
build
and
grow
with
each
other
in
the
advocacy
and
disability
front
for
endometriosis
as
well
as
integrative
solutions
.
So
thank
you
so
much
for
taking
the
time
with
me
.
Speaker 2
50:12
I
just
appreciate
that
,
yeah
no
,
thank
you
so
much
for
having
me
and
yes
,
let's
stay
in
touch
.
Speaker 1
50:18
Yes
,
Thank
you
so
much
and
until
next
time
,
everyone
continue
advocating
for
you
and
for
those
that
you
love
.