Send us a text with a question or thought on this episode ( We cannot replay from this link)
This episode of Endo Battery Fast Charged is a continuation into research and its correlation between the LGBTQ+ Community and endometriosis.
Here are the articles that are highlighted in this episode:
Jones CE. Queering gendered disabilities. J Lesbian Stud. 2021;25(3):195-211. https://pubmed.ncbi.nlm.nih.gov/32567533/
Dysmenorrhea and Endometriosis in Transgender Adolescents. J Pediatr Adolesc Gynecol. 2020 Oct;33(5):524-528. https://pubmed.ncbi.nlm.nih.gov/32535219/
Hematospermia in a Transgender Woman with Evidence for Endometrial Tissue in the Prostate. AACE Clin Case Rep. 2024 Jan 24;10(3):80-83. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11127599/
Endometriosis in transgender men: recognizing the missing pieces. Front Med (Lausanne). 2023 Aug 31;10:1266131. https://pubmed.ncbi.nlm.nih.gov/37720510/
Website endobattery.com
Expanding Perspectives on Endometriosis
Speaker 1
0:01
Welcome
to
Endobattery
Fast
Charged
,
a
series
dedicated
to
keeping
you
informed
and
empowered
in
the
realm
of
endometriosis
.
Teaming
up
with
board-certified
patient
advocates
,
we
bring
you
the
latest
articles
,
research
and
insights
to
equip
you
with
accurate
information
and
a
deeper
understanding
.
Whether
you're
expanding
your
knowledge
,
staying
updated
or
seeking
clarity
,
you're
in
the
right
place
.
I'm
your
host
,
alana
,
and
is
EndoBattery
Fast
Charged
charging
and
empowering
your
life
with
knowledge
.
Welcome
back
to
EndoBattery
Fast
Charged
.
Fabulous
listeners
,
this
month
is
Pride
Month
and
a
perfect
time
to
look
at
and
highlight
the
challenges
the
LBGTQ
plus
community
faces
with
endometriosis
.
If
you
missed
our
last
episode
,
I
highly
recommend
you
check
it
out
.
You
won't
want
to
miss
a
thing
.
Today
,
we're
continuing
our
journey
into
the
fascinating
world
of
endometriosis
research
,
especially
as
it
relates
to
the
care
and
healthcare
of
those
in
the
LGBTQ
plus
community
.
Not
only
are
we
shining
a
light
on
this
community
,
but
we're
also
diving
into
some
intriguing
research
that
could
change
how
we
define
and
treat
endometriosis
.
Now
,
before
we
get
carried
away
,
let's
remember
that
correlation
does
not
equal
causation
.
These
studies
are
like
fun
cousins
at
a
family
gathering
,
not
the
serious
parents
.
They're
here
to
inspire
and
empower
us
to
push
for
inclusive
change
,
but
don't
go
jumping
into
conclusions
just
yet
.
So
grab
your
glitter
and
let's
get
into
it
.
This
first
highlighted
study
brings
a
lot
to
the
surface
when
it
comes
to
endometriosis
and
research
.
Speaker 1
1:38
Professor
Kara
Jones
from
California
State
University's
Department
of
Women's
and
Gender
Studies
is
a
leading
voice
in
feminist
disability
research
,
particularly
known
for
her
work
on
cultural
narratives
surrounding
endometriosis
.
In
her
acclaimed
study
Queering
Gender
Disabilities
,
published
in
the
Journal
of
Lesbian
Studies
in
2021
,
jones
tackles
the
stubborn
myth
that
endometriosis
is
primarily
a
reproductive
disease
,
a
narrative
that
has
persisted
in
medical
literature
for
nearly
a
century
.
Jones
points
out
that
this
outdated
perspective
not
only
overlooks
the
many
cisgender
men
,
transgender
and
gender
non-confirming
individuals
who
suffer
from
endometriosis
,
but
also
perpetuates
harmful
treatment
approaches
.
The
focus
on
reproduction
has
led
to
interventions
with
high
failure
rates
,
causing
further
suffering
,
especially
among
LGBTQ
plus
populations
.
It's
a
bit
like
trying
to
fix
a
car's
engine
when
the
problem
is
actually
the
tires
You're
bound
to
miss
the
mark
and
make
things
worse
.
In
her
study
,
jones
argues
for
a
more
gender
neutral
approach
to
discussing
and
treating
endometriosis
.
She
emphasizes
the
need
for
inclusive
language
and
practices
that
recognize
the
diverse
experiences
of
all
people
affected
by
this
condition
.
By
moving
away
from
the
narrow
,
reproductive-focused
narrative
,
we
can
develop
better
,
more
effective
treatments
that
truly
address
the
need
of
everyone
with
endometriosis
.
So
next
time
someone
mentions
endometriosis
,
remember
that
it's
not
just
a
women's
issue
.
Thanks
to
researchers
like
Professor
Jones
,
we're
starting
to
see
the
bigger
picture
and
push
for
change
that
can
make
a
real
difference
for
everyone
dealing
with
this
painful
disease
.
After
all
,
good
science
and
compassionate
health
.
As
we
go
through
this
next
case
report
,
I
want
to
remind
you
that
I
am
not
a
medical
professional
and
I
didn't
take
six
additional
years
to
learn
how
to
pronounce
these
medical
terms
correctly
.
So
bear
with
me
as
we
continue
to
walk
through
this
.
Speaker 1
3:30
But
in
this
next
fascinating
case
study
titled
Hermetospermia
in
Transgender
Women
with
Evidence
of
Endometrial
Tissue
in
the
Prostate
,
researchers
described
an
unusual
medical
finding
in
a
35-year-old
transgender
woman
being
treated
for
hematospermia
,
a
condition
characterized
by
the
presence
of
blood
in
the
seminal
ejaculate
.
During
the
investigation
,
benign
prosthetic
tissue
containing
a
small
focus
of
malarian
and
endometrial
type
tissue
was
discovered
.
This
intriguing
case
has
significant
implications
for
our
understanding
of
endometriosis
,
particularly
regarding
its
origins
and
the
mechanisms
behind
its
development
.
The
authors
of
this
study
,
published
in
AACE
Clinical
Case
Reports
,
asserts
that
this
finding
provides
strong
evidence
against
the
wildly
discussed
theory
that
retrograde
transport
of
menstrual
tissue
is
a
primary
case
of
endometriosis
in
cisgender
women
.
According
to
the
retrograde
menstruation
theory
,
menstrual
blood
flows
backwards
through
the
fallopian
tubes
into
the
pelvic
cavity
,
leading
to
the
implantation
and
growth
of
endometrial
tissue
outside
the
uterus
.
However
,
the
presence
of
endometrial-type
tissue
in
the
prostate
of
transgender
women
who
has
never
menstruated
challenges
this
notion
.
Instead
,
the
researchers
suggest
that
this
case
supports
the
induction
theory
of
endometriosis
.
Speaker 1
4:51
The
induction
theory
posets
endometrial
tissue
can
develop
from
undifferentiated
cells
located
outside
the
uterus
,
influenced
by
various
factors
such
as
hormones
or
inflammation
.
In
this
particular
case
,
the
endometrial
tissue
in
its
prostate
likely
originated
from
such
precursor
cells
,
which
were
then
induced
to
differentiate
into
endometrial-like
tissue
.
This
aligns
with
the
idea
that
endometriosis
can
occur
in
individuals
regardless
of
their
menstruation
history
,
pointing
to
a
more
complex
intrinsic
mechanism
of
disease
development
.
This
study
not
only
highlights
the
complexities
of
endometriosis
,
but
it
also
underscores
the
importance
of
considering
diverse
patient
populations
when
studying
disease
mechanisms
.
The
findings
from
this
case
report
may
encourage
researchers
and
clinicians
to
reevaluate
traditional
understanding
of
endometriosis
and
explore
alternative
explanations
that
could
lead
to
more
effective
treatments
and
management
strategies
as
we
continue
to
uncover
multifaceted
nature
of
this
condition
.
The
hope
is
that
such
insights
will
ultimately
improve
patient
care
and
outcome
across
different
populations
.
Speaker 1
6:00
The
discovery
of
endometrial
tissue
in
the
prostate
of
transgender
women
being
treated
for
hematospermia
provides
compelling
evidence
supporting
the
induction
theory
of
endometriosis
.
This
challenges
the
retrograde
menstruation
hypothesis
and
opens
new
avenues
for
understanding
and
addressing
this
complex
condition
.
The
study
serves
as
a
reminder
of
the
importance
of
inclusive
research
and
the
need
to
broaden
our
perspectives
on
disease
mechanisms
.
In
an
older
,
smaller
study
called
Dysmenorrhea
and
Endometriosis
in
Transgender
Adolescents
,
the
authors
discovered
that
7
out
of
35
transmasculine
individuals
in
their
study
population
had
endometriosis
.
Their
findings
highlight
a
critical
issue
the
evaluation
of
endometriosis
is
often
underutilized
in
transmasculine
individuals
who
experience
dysmenorrhea
.
The
team
emphasized
that
while
some
symptoms
of
endometriosis
can
be
alleviated
with
testosterone
treatment
,
it
remains
critical
to
consider
the
disease
in
trans
patients
presenting
with
symptoms
irrespectable
of
their
testosterone
use
.
Speaker 1
7:01
The
study
underscores
the
need
for
heightened
awareness
and
proactive
evaluation
of
endometriosis
in
transgender
adolescents
.
It
seems
that
endometriosis
doesn't
discriminate
based
on
gender
identity
,
and
the
chronic
pain
it
inflicts
deserves
attention
and
care
.
Gender
adolescents
it
seems
that
endometriosis
doesn't
discriminate
based
on
gender
identity
,
and
the
chronic
pain
it
inflicts
deserves
attention
and
care
.
So
here's
the
takeaway
Whether
you're
dealing
with
teens
or
adults
,
the
message
is
clear
Don't
overlook
endometriosis
in
transmasculine
patients
.
It's
easy
to
assume
that
testosterone
will
wave
a
magic
wand
and
make
all
the
symptoms
disappear
,
but
reality
begs
to
differ
.
If
someone's
reporting
pain
,
it's
time
to
dig
deeper
,
regardless
of
their
hormone
therapy
status
.
Speaker 1
7:36
The
study
emphasizes
the
need
to
converge
on
a
compassionate
call
to
action
.
Transmasculine
individuals
deserve
comprehensive
healthcare
that
doesn't
brush
off
their
pain
.
By
staying
vigilant
and
considering
endometriosis
in
patients
with
dysmenorrhea
,
we
can
offer
them
the
care
they
need
and
deserve
.
Plus
,
who
wouldn't
want
to
be
known
for
practicing
medicine
with
both
heart
and
knowledge
on
inclusive
care
?
In
this
last
study
,
it
highlights
that
endometriosis
is
often
thought
of
as
a
condition
that
affects
only
cisgender
women
,
but
this
view
is
increasingly
being
challenged
.
The
research
article
titled
Endometriosis
in
Transgender
Men
Recognizing
the
Missing
Pieces
highlights
that
endometriosis
is
a
significant
issue
for
transgender
men
as
well
.
Unfortunately
,
awareness
about
endometriosis
in
transgender
men
is
still
lacking
,
which
can
delay
diagnosis
and
treatment
,
exacerbating
the
problem
.
Speaker 1
8:28
This
2023
overview
emphasized
the
broader
disparities
in
endometriosis
care
.
They
pointed
out
that
people
of
color
,
transgender
and
non-binary
individuals
,
those
from
socioeconomical
disadvantaged
backgrounds
and
adolescents
face
significant
hurdles
in
getting
diagnosed
and
treated
.
The
gap
in
awareness
among
healthcare
providers
and
policymakers
is
particularly
troubling
.
If
endometriosis
goes
undiagnosed
or
is
inadequately
treated
,
it
can
lead
to
severe
consequences
like
chronic
pain
,
infertility
,
depression
and
a
drastically
reduced
quality
of
life
.
In
essence
,
we
need
to
shift
our
understanding
of
endometriosis
from
a
niche
women's
health
issue
to
a
broader
,
more
inclusive
healthcare
concern
.
Redefining Endometriosis
Speaker 1
9:10
As
precision
medicine
advances
,
recognizing
and
addressing
the
unique
needs
of
individuals
affected
by
endometriosis
is
crucial
.
This
means
better
education
for
healthcare
providers
,
more
inclusive
research
and
policies
that
ensure
equitable
access
to
care
for
everyone
,
regardless
of
their
gender
identity
,
race
or
socioeconomic
status
.
In
conclusion
,
it's
time
to
update
our
perspective
on
endometriosis
.
It's
not
just
a
women's
disease
.
It's
a
human
disease
that
can
impact
anyone
.
By
broadening
our
understanding
and
improving
our
approach
to
diagnosis
and
treatment
,
we
can
significantly
enhance
the
quality
of
life
for
all
those
affected
.
Thank
you
for
joining
me
this
week
,
and
I
encourage
you
to
continue
looking
into
the
disparities
in
which
many
face
when
it
comes
to
endometriosis
diagnosis
and
care
,
because
if
we
understand
it
,
then
we
can
advocate
better
and
we
can
continue
advocating
for
the
change
that
needs
to
take
place
to
accelerate
diagnosis
,
care
and
treatment
.
Until
next
time
,
continue
advocating
for
you
and
for
those
that
you
love
.
