Endo Battery Fast Charged: EP 8 Endometriosis and Disability

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Endo Battery Fast Charged: EP 8 Endometriosis and Disability
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Ever wondered how endometriosis impacts not just personal lives but also the workplace and broader economy? Join us on Endobattery Fast Charged as we unpack the hidden toll this condition takes on productivity, both at home and on the job. Discover shocking studies that reveal how endometriosis-related absenteeism and presenteeism lead to lost productivity and heightened stress.

Links
The Effect of Endometriosis Symptoms on Absenteeism and Presenteeism in the Workplace and at Home. J Manag Care Spec Pharm. 2017 Jul;23(7):745-754.

 Endometriosis and the workplace: Lessons from Australia’s response to COVID-19. Aust N Z J Obstet Gynaecol. 2022 Feb;62(1):164-167. 

Disability from endometriosis in the United States Army. J Reprod Med. 1988 Jan;33(1):49-52.

Longitudinal Assessment of the Impact of Endometriosis on Patients’ Salary Growth and Risk of Leaving the Workforce. Adv Ther. 2020 May;37(5):2144-2158.

Endometriosis Is Undervalued: A Call to Action. Front Glob Womens Health. 2022 May 10;3:902371

Endometriosis and Disability: Analysis of Federal Court Appeals of Social Security Disability Insurance and Supplemental Security Income Claims by Individuals Suffering From Endometriosis. Womens Health Issues. 2024 May-Jun;34(3):221-231.

Health needs of women with disabilities across the lifespan

Physicians’ Perceptions Of People With Disability And Their Health Care

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The Impact of Endometriosis on Productivity

Speaker 1
0:01

Welcome

to

Endobattery

Fast

Charged
,

a

series

dedicated

to

keeping

you

informed

and

empowered

in

the

realm

of

endometriosis
.

Teaming

up

with

board-certified

patient

advocates
,

we

bring

you

the

latest

articles
,

research

and

insights

to

equip

you

with

accurate

information

and

a

deeper

understanding
.

Whether

you're

expanding

your

knowledge
,

staying

updated

or

seeking

clarity
,

you're

in

the

right

place
.

I'm

your

host
,

alana
,

and

this

is

Endobattery

Fast

Charged

charging

and

empowering

your

life

with

knowledge
.

Welcome

back

to

Endobattery

Fast

Charged
.

We're

diving

deep

into

the

research

on

how

endometriosis

wrecks

havoc

on

those

affected

by

it

in

their

daily

lives
.

And

hey
,

let's

not

forget

the

bizarre

fact

that

not

recognizing

it

as

a

disability

can

turn

anyone's

world

upside

down
.

We'll

also

take

a

peek

into

the

challenges

faced

by

our

physically

diverse

pals
.

As

a

friendly

reminder
,

though
,

correlation

does

not

always

equal

causation
,

so

grab

your

cup

of

coffee

and

get

ready

to

have

your

eyes

opened

as

we

explore

these

insights
.

Let's

get

started
.

The

first

study

that

we're

gonna

take

a

look

at

is

titled

the

Effect

of

Endometriosis

Symptoms

on

Absenteeism

and

Presenteeism

in

the

Workplace

and

at

Home
.

This

study

highlights

that

endometriosis

isn't

just

about

cramps

and

discomfort
.

It

can

also

seriously

mess

with

your

daily

life

and

work
.

Imagine

or

maybe

you

don't

have

to

imagine

this

that

you're

trying

to

get

through

your

workday
,

but

endometriosis

is

making

everything

feel

like

a

Herculean

task
.

According

to

this

study
,

there's

a

strong

link

between

endometriosis

symptoms

and

reduced

productivity
,

both

at

work

and

home
.

Those

with

endometriosis

end

up

losing

more

days

to

disability
,

with

some

pretty

eye-opening

numbers

recorded
.

On

average
,

people

with

endometriosis

lose

5.3

hours

a

week

to

employment

presenteeism
.

Presenteeism

means

that

you're

at

work

but

you're

so

out

of

it

that

your

productivity

is

in

the

gutter
.

Add

to

that

the

1.1

hours

of

straight-up

absenteeism
,

which

is

where

you

can't

even

make

it

to

work
.

And

it's

not

just

work

that

suffers

Household

chores

take

a

hit

too
.

The

study

also

showed

that

there

is

a

2.3

hours

of

household

presenteeism

and

2.5

hours

of

household

absenteeism

per

week
.

Things

get

even

tougher

as

symptoms

get

worse
.

If

you

have

three

or

more

symptoms

at

the

same

time
,

you're

in

for

a

world

of

hurt
,

literally

and

figuratively
.

Those

dealing

with

multiple

symptoms

lose

a

lot

more

hours

to

both

presenteeism

and

absenteeism

compared

to

those

with

just

one

or

two

symptoms
.

So

endometriosis

isn't

just

a

personal

health

issue
.

It's

a

productivity

thief

at

work

and

at

home
,

which

is

further

emphasized

in

this

next

publication

titled

Endometriosis

at

the

Workplace

Lessons

from

Australia's

Response

to

COVID-19
,

which

brings

to

light

that

endometriosis

is

no

joke
,

especially

when

it

comes

to

juggling

a

career
.

Speaker 1
2:58

This

recent

Australian

study

highlights

that

more

than

half

of

those

with

endometriosis

face

workplace

challenges

due

to

their

symptoms
.

Imagine

trying

to

focus

on

meetings

while

dealing

with

excruciating

pain
.

It's

like

trying

to

solve

a

Rubik's

cube

blindfolded
.

Reduced

hours

become

a

necessity

rather

than

a

choice
,

and

they

navigate

their

health

alongside

their

professional

responsibilities
.

But

it

gets

trickier
.

Over

one

in

10

individuals

with

endometriosis

reported

losing

their

jobs

because

of

the

disease
.

Picture

this

You're

an

ace

employee
,

but

endometriosis

has

a

knack

for

showing

up

uninvited
,

causing

missed

days

and

dwindling

productivity
.

Suddenly
,

you're

not

just

battling

a

chronic

condition
,

you're

also

dealing

with

job

insecurity
.

It's

a

harsh

reality

that

adds

another

layer

of

stress

to

an

already

challenging

situation
.

Interestingly
,

though
,

this

study

suggests

that

the

pandemic

has

inadvertently

shown

a

light

on

these

issues
.

With

remote

work

becoming

more

common
,

there's

a

glimmer

of

hope

that

flexible

working

conditions

might

offer

some

relief
.

If

only

we

could

convince

all

employers

that

productivity

isn't

all

about

where

you

work
,

but

how

well

you

can

work

when

you're

feeling

your

best
.

So

here's

to

hoping

that
,

with

this
,

newfound

awareness

leads

to

more

compassionate

and

accommodating

workplaces

for

everyone

battling

endometriosis
.

But

what

if

you

have

a

job

or

a

career

that

you

can't

work

from

home
?

Speaker 1
4:23

This

next

article
,

titled

Disability

from

Endometriosis

in

the

United

States

Army
,

takes

us

on

a

stroll

down

memory

lane
.

In

its

1988

publication
,

researchers

dug

through

the

medical

record

of

6,456

women

in

the

US

Army
.

They

looked

at

various

factors

like

age
,

race

and

whether

these

women

were

on

active

duty
.

The

key

focus

was

on

how

many

sick

days

were

racked

up

due

to

endometriosis
.

The

findings

Brace

yourself
.

On

average
,

each

active

duty

patient

with

endometriosis

clocked

in

15

sick

days

per

hospital

admission
,

and

it

didn't

matter

whether

they

were

young
,

old
,

black
,

white

or

green

with

polka

dots
.

15

days

was

the

magic

number
.

Considering

that

6.2%

of

the

female

army

population

had

endometriosis
,

this

study's

author

did

some

quick

math

and

estimated

a

whopping

total

of

21,746

lost

duty

days
.

That's

almost

60

years

of

soldiering

lost

to

this

disease
.

So

imagine

trying

to

run

an

army

with

thousands

of

soldiers

MIA

thanks

to

a

disease

that's

as

sneaky

as

it

is

painful
,

with

a

third

of

your

troops

sidelined

by

an

invisible

enemy
.

Endometriosis

1
,

army

0
.

Speaker 1
5:41

Productivity

is

only

one

element

of

living

this

life

with

our

annoying

counterpart

called

endo
.

Endometriosis

doesn't

just

cause

pain

and

discomfort
.

It

also

affects

the

wallet
.

Adding

insult

to

entry
,

studies

show

that

patients

with

endometriosis

experience

lower

annual

salaries

and

slower

salary

growth
.

They

also

face

higher

risks

of

missing

work

compared

to

their

peers

without

this

disease
.

The

study

titled

Assessment

of

the

Impact

of

Endometriosis

on

Patient's

Salary

Growth

and

Risk

of

Leaving

the

Workplace
,

published

in

Advances

in

Therapy

in

May

of

2020
,

highlights

the

financial

burden

of

this

disease
.

Speaker 1
6:17

It's

not

just

about

managing

symptoms
,

but

also

about

navigating

the

economic

impacts
.

Imagine

battling

chronic

pain

and

then

realizing

it's

going

to

cost

you

your

paycheck
.

This

double

whammy

makes

managing

endometriosis

even

more

challenging
.

Endometriosis

likes

to

hit

us

really

where

it

counts
,

both

in

your

body

and

your

budget
.

In

the

article

titled
,

endometriosis

is

Undervalued
.

A

Call

to

Action

further

explains

the

implications

of

endometriosis
.

Imagine

having

an

uninvited

guest

who

not

only

overstays

their

welcome

but

also

leaves

a

mess

everywhere

they

go
.

That's

endometriosis

for

you
,

wrecking

havoc

on

the

lives

of

many
.

Speaker 1
6:55

Researchers

have

been

studying

this

meddlesome

disease

for

decades

and

one

thing

is

clear

Endometriosis

is

a

master

of

disruption
.

It

doesn't

just

affect

health
.

It

infiltrates

work
,

school

and

home

life
,

causing

people

to

miss

out

on

all

the

fun

and

not-so-fun

activities
.

The

economic

impacts

of

endometriosis

is

like

a

runaway

train
.

On

a

personal

level
,

it

hits

the

wallet

hard
.

Patients

often

find

themselves

shelling

out

their

hard-earned

cash

for

treatments

while

simultaneously

losing

income

due

to

work

disruption
.

It's

a

lose-lose

situation
.

And

if

you

think

it

stops

there
,

think

again
.

The

financial

black

hole

extends

to

the

public

health

realm
,

too
.

In

the

US

alone
,

endometriosis

costs

between

78

billion

and119

billion

annually
.

That's

more

zeros

than

most

of

us

can

count
,

and

Australia

isn't

far

behind
,

with

its

economic

burden

ranging

between

$6.5

billion

and

$7.4

billion
.

Speaker 1
7:54

So

what's

the

takeaway

here
?

Endometriosis

isn't

just

a

personal

health

issue
.

It's

a

public

health

crisis

with

the

price

tag

that

could

buy

a

small

country
.

We

need

to

start

paying

more

attention

to

this

disease
,

not

just

because

it's

the

right

thing

to

do
,

but

because

ignoring

it

costs

us

all

a

fortune
,

and

maybe
,

just

maybe
,

it's

time

to

put

this

uninvited

intruder

in

its

place
.

But

that

isn't

going

to

work

if

we

don't

have

a

complete

picture
,

which

is

what

this

next

research

article

helps

paint
.

In

the

study

titled

Endometriosis

and

Disability

Analysis

of

Federal

Court

Appeals

of

Social

Security
,

disability

Insurance

and

Supplemental

Security

Income

Claims

by

Individuals

Suffering

from

Endometriosis

further

accentuates

that

endometriosis

is

no

picnic
.

Speaker 1
8:40

Many

patients

are

stuck

using

up

all

their

sick

days
,

vacation

days

and

even

taking

unpaid

leave

just

to

manage

the

disease
.

Sure
,

some

can

tap

into

the

Family

Medical

Leave

Act

or

FMLA

for

job-protected

benefits
,

but

it's

unpaid

and

let's

be

real
,

not

everyone

can

even

qualify

for

FMLA
.

If

you

work

for

a

small

business

or

haven't

racked

up

enough

work

history
,

you're

out

of

luck
.

Paid

sick

leave

sounds

like

a

dream
,

offering

job-protected
,

paid

time

off
.

But

here's

the

kicker

not

everyone

gets

that

sweet

deal
.

Eligibility

varies

by

state
,

so

it's

like

playing

a

game

of

will

they

or

won't

they

with

your

paycheck
.

Now

let's

dive

into

the

world

of

Social

Security

Disability

Insurance

or

SSDI
,

and

Supplemental

Security

Income
,

ssi
.

Spoiler

alert
,

it's

a

mess
.

Speaker 1
9:31

Research

shows

that

claims

for

endometriosis-specific

disabilities

are

often

given

the

cold

shoulder
.

The

disease

isn't

even

listed

as

an

official

impairment
,

so

those

suffering

from

it

face

all

sorts

of

roadblocks

misconceptions

about

the

disease
,

tricky

diagnostic

criteria

and

complicated

treatment

plans

that

make

proving

their

case

a

nightmare
.

And

guess

what
?

Many

claims

are

flat

out

denied
,

despite

the

debilitating

nature

of

endometriosis
.

It's

like

trying

to

convince

a

cat

to

take

a

bath
.

Nearly

impossible

and

utterly

exhausting
.

Denied

patients

often

need

to

lawyer

up

just

to

get

through

the

appeals

process
,

adding

even

more

stress

to

their

already

challenging

lives
.

According

to

this

study
,

it's

clear

that

the

system

is

failing

these

individuals
.

The

courts

are

clogged

with

appeals

from

those

who

just

want

some

relief

and

recognition

for

their

disease
.

It's

a

never-ending

cycle

of

frustration
,

paperwork

and

legal

jargon
.

So

if

you

have

someone

with

endometriosis
,

give

them

a

high

five

for

making

it

through

each

day

and

maybe

consider

advocating

for

better

policies

that

don't

treat

them

like

they're

asking

for

a

unicorn

on

a

silver

platter
.

Those

research

articles

highlight

the

fact

that

endometriosis

presents

a

significant

challenge

in

terms

of

both

debilitating

effects

on

daily

life

and

financial

burden
.

However
,

the

situation

becomes

even

more

complex

when

considering

individuals

who

already

contend

with

physical

disabilities
.

Speaker 1
10:57

Recent

studies

delve

into

the

intersectionality

of

these

issues
,

shedding

light

on

how

women

with

disabilities

navigate

the

additional

burdens

of

things

like

endometriosis
.

Moreover
,

these

studies

illuminate

disparities

within

the

healthcare

system
,

revealing

shortcomings

on

how

individuals

with

physical

disabilities

are

perceived

and

treated
,

underscoring

the

urgent

need

for

tailored

healthcare

strategies

that

address

these

intersecting

challenges

effectively
.

The

first

publication

that

looks

into

these

challenges

is

titled

Health

Needs

of

Women

with

Disabilities

Across

the

Lifespan
.

It

addresses

the

unique

health

care

needs

of

women

with

disabilities
,

from

adolescence

to

old

age
.

It

highlights

these

women

who

often

face

barriers

such

as

navigating

attitudes
,

lack

of

information
,

environmental

changes

and

geographical

obstacles

when

assessing

health

care
.

The

authors

argue

the

necessity

for

comprehensive

and

empathetic

health

care

services

to

manage

their

disabilities

and

prevent

additional

health

issues
.

They

also

suggest

various

strategies

to

overcome

these

barriers

and

improve

the

quality

of

care

for

women

with

disabilities
.

But

it's

not

just

about

the

women

with

disabilities

that

face

disparities

in

healthcare
.

This

next

article

looks

at

all

people

with

disabilities
.

Speaker 1
12:09

In

episode

82

of

In

no

Battery
,

chanda

Hinton

talked

about

this

next

study

titled

Physicians'

Perceptions

of

People

with

Disabilities

and

their

Healthcare
.

If

you

haven't

listened

to

that

episode
,

I

strongly

encourage

you

to

do

so
.

However
,

a

bunch

of

researchers

got

curious

about

what

doctors

think

about

treating

people

with

disabilities
.

You

know

those

superheroes

among

us

who

deal

with

extra

challenges

daily
.

They

wanted

to

figure

out

if

doctors

are

doing

a

good

job

or

if

they

needed

a

bit

of

a

nudge

in

the

right

direction
.

Speaker 1
12:39

First

off
,

the

researchers

found

that

many

doctors

felt

like

they

were

in

a

scene

from

a

medical

drama

without

a

script
.

They

admitted

they

didn't

have

enough

training

or

experience

to

treat

patients

with

disabilities

properly
.

Imagine

trying

to

perform

a

complicated

dance

without

knowing

the

steps
.

That's

how

doctors

felt
.

On

the

bright

side
.

Most

doctors

genuinely

wanted

to

help

provide

good

care
,

but

here's

the

kicker

they

often

had

trouble

communicating

with

their

patients
.

It's

like

they

were

trying

to

speak

Klingon

when

someone

only

understands

Elvish
.

The

communication

gap

sometimes

leads

to

misunderstandings

and

less

effective

care
.

Speaker 1
13:16

The

study

also

highlights

that

the

healthcare

system

itself

was

a

bit

of

a

mess
,

to

which

many

of

us

are

not

shocked

by
.

Picture

a

hospital

as

a

giant
,

chaotic

game

of

Tetris
,

where

pieces

don't

quite

fit

together
.

Accessibility

was

a

big

issue
,

not

just

physical

access
,

but

also

access

to

information

and

resources

that

could

help

patients

with

disabilities
.

While

doctors

are

well-meaning

but

slightly

confused

chefs

trying

to

make

a

gourmet

meal

without

its

ingredients
,

they're

eager

to

learn

and

improve
.

The

study

suggests

that

with

better

training

and

a

more

inclusive

healthcare

system
,

doctors

can

become

rock

stars

of

medical

care

for

people

with

disabilities
.

Thanks

for

tuning

in

this

week
.

Speaker 1
13:57

And

in

light

of

the

ongoing

advocacy

by

those

living

with

endometriosis
,

it's

clear

that

recognizing

this

condition

as

eligible

for

formal

workplace

and

school

accommodations
,

as

well

as

federal

disability
,

is

essential
.

The

severe

chronic

pain

associated

with

endometriosis

profoundly

impacts

daily

functioning
,

making

it

challenging

for

individuals

to

work
,

maintain

a

household

and

engage

in

social

activities
.

This

debilitating

pain

often

results

in

reduced

productivity
,

missed

work

days

and
,

in

severe

cases
,

job

termination
.

By

providing

necessary

accommodations
,

we

can

help

individuals

manage

their

symptoms

more

effectively

and

maintain

steady

employment
.

Addressing

endometriosis

as

a

federal

disability

would

not

only

validate

the

experiences

of

those

affected
,

but

also

provide

them

with

essential

support

and

protection
.

This

recognition

would

foster

a

more

inclusive

environment
,

ensuring

that

individuals

receive

the

understanding

and

assistance

they

The Economic Impact of Endometriosis

Speaker 1
14:53

need

to

thrive
.

Speaker 1
14:53

From

a

public

health

perspective
,

the

financial

burden

of

endometriosis

is

staggering
,

with

costs

including

medical

treatments
,

surgeries
,

medications

and

lost

income

due

to

inability

to

work
.

We

can

alleviate

some

of

these

financial

burdens

through

access

to

disability

benefits

and

support
.

This

would

not

only

benefit

individuals
,

but

also

reduce

the

overall

economic

impacts

on

society
.

Ultimately
,

recognizing

endometriosis

as

a

federal

disability

would

bring

much-needed

attention

to

the

disease
,

fostering

greater

research

findings
,

better

treatments

and

more

comprehensive

support

systems
.

Above

all
,

it

would

provide

those

living

with

endometriosis

the

legal

protections

and

accommodations

they

deserve
,

validating

their

experiences

and

empowering

them

to

lead

a

fuller
,

more

productive

life
.

If

you

want

to

read

more

on

these

research

articles
,

go

to

the

description

in

the

podcast

episode
,

and

you

can

find

all

the

links

there
.

Until

next

time
,

continue

advocating

for

equitable

care

for

all

of

endometriosis

patients
.

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