Unveiling Advances in Endometriosis Care: Dr. Mona Orady, MD, Insights on Surgery, Adhesions, Early Detection, and Education

The First Podcast
The First Podcast
Unveiling Advances in Endometriosis Care: Dr. Mona Orady, MD, Insights on Surgery, Adhesions, Early Detection, and Education
Loading
/

Send us a text with a question or thought on this episode ( We cannot replay from this link)

Embark on an eye-opening journey with me, Alanna, as we pull back the curtain on the world of endometriosis and adenomyosis, guided by the wisdom of Dr. Mona Orady, MD, founder of the Orady Women’s Clinic. Discover the transformative impact of meticulous surgical techniques, like laser excision and ovary suspension, that promise to revolutionize patient outcomes. This episode illuminates the often-overlooked art of adhesion prevention and the profound difference it can make in preserving fertility and enhancing quality of life for those battling these conditions.

As we navigate the often turbulent waters of women’s health, Dr. Orady’s expertise shines a light on the pivotal role of early detection and specialized care for teens grappling with endometriosis. Learn why the expertise of a dedicated specialist can be a game-changer in managing this disease from its onset. The discussion also ventures into the broader healthcare landscape, advocating for reforms that ensure comprehensive post-surgery care and underscore a future where holistic treatment is the gold standard.

Closing this powerful episode, we celebrate the stories of resilience that define the path to recovery for many facing chronic conditions. From the potential of physical therapy to the joys of successful fertility treatments, we spotlight the diverse treatment avenues that offer hope and healing. Join us in our passionate plea for endometriosis education in schools, aiming to empower a new generation with knowledge and foster a world where awareness and timely intervention are the norm.

Support the show

Website endobattery.com

Instagram: EndoBattery

Preventing Adhesions in Endometriosis Surgery

Speaker 1
0:03

Welcome

to

Indobattery
,

where

I

share

about

my

endometriosis

and

adenomyosis

story

and

continue

learning

along

the

way
.

This

podcast

is

not

a

substitute

for

professional

medical

advice

or

diagnosis
,

but

a

place

to

equip

you

with

information

and

a

sense

of

community
,

ensuring

you

never

have

to

face

this

journey

alone
.

Join

me

as

I

navigate

the

ups

and

downs

and

share

stories

of

strength
,

resilience

and

hope
.

While

navigating

the

world

of

endometriosis

and

adenomyosis
,

from

personal

experience

to

expert

insights
,

I'm

your

host
,

elana
,

and

this

is

Indobattery

charging

our

lives

when

endometriosis

drains

us
.

Welcome

back

to

Indobattery
.

Grab

your

cup

of

coffee
,

your

cup

of

tea

or

your

beverage

of

choice

and

join

me

at

the

table

as

I

continue

my

conversation

with

Dr

Mona

Arati

of

the

Arati

Women's

Clinic
.

This

episode

is

packed

full

of

information
,

so

come

join

the

conversation
.

This

is

where

we

left

off
.

Speaker 2
0:57

Thank

you

for

joining

us
.

In

terms

of

the

adhesion

piece

of

it
,

that's

a

whole

another

piece

I

want

to

talk

about
.

I

actually

just

created

an

entire

session

at

the

Society

of

Laptoprescopic

Surgeons

conference

that

I

just

organized
,

just

on

adhesion

prevention
.

I'm

giving

a

session

in

Europe

next

week
.

Actually
,

I'm

flying

to

Vienna
.

Speaker 2
1:14

I'm

giving

an

entire

session

on

adhesion

prevention
,

especially

in

fertile

women
,

because

a

lot

of

people

don't

talk

about

this
,

but

adhesions

can

have

a

huge

effect

on

women

who

are

still

wanting

childbearing
.

It

can

affect

their

fallopian

tubes

and

block

their

tubes
.

It

can

cause

pain
.

It

can

cause

shifting

of

the

uterus
.

A

lot

of

them

already

have

some

adhesions

from

the

endometriosis
.

The

question

is

how

do

we

minimize

reformation
?

As

I

said
,

it

would

be

a

whole

lecture
.

I

gave

a

whole

hour

lecture

at

SLS

about

all

the

techniques

that

I

use

to

minimize

adhesions
.

But
,

to

be

very

brief
,

number

one

minimizing

the

surgery

that

I

do

to

make

sure

I

only

touch

what

needs

to

be

touched
,

meaning

I

don't

sit

there

digging

around
.

I

pick

up

the

endometriosis

lesions
,

I

excise

it

using

the

least

amount

of

energy

and

the

least

trauma

as

possible
,

even

if

that

means

using

a

laser

to

actually

cut

out

the

lesion
.

It's

less

traumatic

than

using

monopolar

energy

or

monopolar

scissors
.

I

use

a

laser

a

lot

in

endometriosis

surgery
,

using

microlaparoscopy

when

I

can
,

using

sharp

dissection

when

I

can
,

minimizing

tissue

trauma
,

minimizing

bleeding

because

blood

can

cause

adhesions

and

inflammation
.

Speaker 2
2:24

My

surgeries

and

everybody

knows

this
,

I

don't

like

to

see

blood

ever
.

They

have

to

be

completely

dry
,

perfectly

hemostatic

at

the

end
.

It

has

to

do

everything
.

You

rinse

everything

really

clean
,

then

using

agents

like

ADAPT
,

which

is

an

adhesion

prevention

solution

that

coats

everything

and

prevents

things

from

sticking

together
.

It's

like

a

syrup

that

covers

everything

and

coats

it

so

that

things

don't

stick

together
.

It

makes

everything

slippery

so

that

you

don't

develop

adhesions
.

Speaker 2
2:53

When

I

do

procedures

where

I

elevate

the

ovaries
,

I'll

basically

suspend

the

ovaries

away

from

the

area

that

I

dissected

or

cut

out

endometriosis

for

three

or

four

days

until

that

area

heals

over

and

then

I'll

cut

the

string

and

release

the

ovaries

so

that

when

they

come

back

down
,

the

fallopian

tubes

and

ovaries

were

not

in

the

area

that's

healing

so

they

don't

develop

adhesions

around

them
.

There's

a

lot

of

techniques

that

I

specifically

do

and

I

teach

to

prevent

adhesions
,

because

the

majority

of

my

patients

and

I

think

the

majority

of

endometriosis

patients

have

not

yet

had

children

and

you

don't

want

to

affect

their

ability
.

You

want

to

preserve

their

fertility

Adhesion
.

Prevention

is

a

big

part

of

that
.

It's

also

a

big

part

of

preventing

pain

and

things

like

that
.

I've

seen

patients

where

I've

re-operated

on

who

had

surgery

somewhere

else

or

had

someone

else

do

surgery
,

and

you

go

in

and

it's

a

complete

plastered

mess

of

everything

stuck

to

everything
.

How

is

that

not

burning
?

That's

painful

just

to

look

at
,

let

alone

to

actually

experience
.

Speaker 1
3:48

I

think

that's

the

problem

with

endopatients
,

though
,

specifically

is

sometimes

we

think
,

oh
,

the

endometriosis

is

back
,

but

that's

not

always

the

case
.

It

can

also

be

adhesions

from

the

surgery

and

that

doesn't

necessarily

mean

just

ablation

surgery

with

a

general

GYN
.

That

also

means

that

can

happen

with

even

other

surgeons
.

I

think

it's

more

different
.

Speaker 2
4:08

Sometimes

I

wonder

because

a

lot

of

people

ask

me

what

my

recurrence

rates

are
.

And

I've

been

looking

because

I've

been

in

San

Francisco

now

for

over

five

years

and

I've

done

over

a

thousand

surgeries

In

the

literature
.

If

you

look

at

the

literature
,

the

recurrence

rate

is

supposed

to

be

like

40%

in

five

years

or

something

like

that
.

For

endometriosis
.

I've

done

over

a

thousand

surgeries

and

I've

only

had

to

go

back

in

on

maybe

five

or

10

for

recurrence
.

Speaker 2
4:33

My

recurrence

rate

is

I

don't

want

to

say

what

it

is
,

but

it's

much

less

than

40%
,

probably

less

than

five

or

10%
.

I'm

wondering

is

it

because

I'm

so

diligent

about

adhesion

prevention

and

when

I

do

go

back

in

on

those

patients
,

they

don't

have

adhesions
?

They

literally

have

recurrent

endo

that

I

can

see

and

remove
.

It's

not

adhesions

that

caused

it

in

those

patients
.

Even

the

general

surgeon

that

I

work

with

sometimes

will

leave

rectal

endo

and

do

it

later

after

they've

had

their

baby
.

They'll

go

in

and

they'll

be

like

where

are

all

the

adhesions

that

are

supposedly

have

formed

from

the

lab
?

Speaker 2
5:05

I've

had

general

surgeons

that

are

like

what

do

you

do
?

What's

wrong

with

your

patients
?

Why

do

they

not

have

adhesions
?

I

think

that's

a

big

part

of

something

that

I'm

hoping

will

talk

about

more

in

the

endometriosis

community
,

because

I

think

surgeons

some

of

them

are

kind

of

blasé

about

it

and

they

think
,

oh
,

adhesions

are

inevitable
.

I

don't

think

they

are

inevitable
.

I

think

that

we

can

do

what

we

can
.

I'm

not

saying

no

way

you're

going

to

develop

adhesions
,

but

I

think

we

have

to

work

really

hard

to

minimize

it
.

Speaker 1
5:32

It's

more

about

making

sure

that

you

complete

everything

within

the

surgery
,

the

full

care
,

not

just

exercising

Well

that

you're

thinking

about

it
.

Speaker 2
5:41

You're

thinking

about

the

future
.

It's

not

about

this

surgery

now
.

It's

about

what

happens

five

years

from

now
.

What

happens

10

years

from

now
?

How

is

this

going

to

look

in

a

year
?

How

is

this

going

to

look

after

healing
?

What's

going

to

happen

when

this

patient

wants

to

get

pregnant
?

You

have

to

think

about

the

future
,

not

just

the

here

and

now
.

I

think
,

as

a

surgeon
,

that's

really

important
.

Speaker 1
6:01

I

feel

like

that's

a

big

part

of

why

we

get

confused

about

reoccurrence

rates

is

because

we

think
,

at

least

from

a

general

population

standpoint

and

I'm

speaking

only

from

what

I've

experienced

with

people

talking

to

me

about

it

is

just

that

the

confusion

between

what

is

actual

reoccurrence

and

what

is

actual

adhesion

from

a

surgery
,

it's

a

very

confusing

thing

because

they

can

both

be

pain

generators

Absolutely

and

that's

where

I

think

can

we

be

better

surgically

to

prevent

some

of

these

pain

generators

by

preventing

some

of

the

adhesions
.

Speaker 2
6:41

I

absolutely

think

there

is
,

and

I

think

we

have

to

at

least

try
,

right

Like

I

do

think

that

patients

should

ask

their

doctors
,

like

what

do

you

do

to

prevent

adhesions
?

Speaker 2
6:52

Or

just

do

the

surgery

and

and
,

and

I

don't

know
,

I

don't

want

to
,

I

don't

want

to
.

You

know
,

I'm

sure

most

doctors

do

something
,

but

they

have

to

at

least

have

it

in

their

mind
,

right
,

right
,

you

know

you

have

to

think

about

energy
,

you

have

to

think

about

tissue

trauma
,

you

have

to

think

about

bleeding
,

you

have

to

think

about

adhesion

barriers
,

you

have

to

think

about

things

like

suspension

and

right
,

and

you

know
,

I

was

talking

to

one

of

my

good

endometriosis

colleagues
,

who's

from

Greece
,

who

actually

taught

me

about

Varian's

suspension

technique

way

back

when
,

many
,

many
,

many

years

ago
,

and

I

was

talking

to

her

about

it

at

SLS
,

because

she

saw

that

Diagnosing and Treating Endometriosis in Teens

Speaker 2
7:27

I

do

that
.

She's

like
,

wow
,

I

do

that
.

You

know
,

this

is

you
,

you

operate

the

same

way

like

me
.

Because

I

was

showing

some

videos

and

I'm

like
,

yeah
,

well
,

you

know
,

you

know
,

vicki
,

I

learned

a

lot

of

this

from

you
.

It's
,

you

know
,

it's

a

lot

older

than

me

and

she's

been

doing

endometriosis

surgery

for
,

you

know
,

30

years

or

something

like

that
.

And

she's

like
,

yeah
,

but

you're

there
,

a

few

people

still

do

what

I

do
.

And

I'm

like
,

I

know
,

but

why
?

Why

is

that
?

And

I

think

it's

just

something
,

hopefully
,

as

we're

talking

more

and

things

like

the

endometriosis

summit
.

Sls

is

a

great

conference

in

the

IPPS
,

which

I

also

really

admire
,

the

International

Public

Pain

Society
.

Doctors

are

talking

more

about

it

and

we

talked

about

this
.

Speaker 2
8:02

I

think

endometriosis

doctors

should

be

like

the

GYN

oncologist
,

like

why

is

there

a

GYN

that

specializes

in

cancer

and

there

isn't

a

GYN

that

specializes

in

endometriosis
,

when

endometriosis

in

some

ways

can

be

worse

than

cancer

to

treat
?

Yeah
,

oh

it
.

You

know
.

A

general

OBGYN

Honestly

should

not

be

operating

on

endometriosis
,

in

my

opinion
,

or

they

should
.

They

should

know

what

their

limitation

is
.

Go

in
,

put

the

camera

and

diagnose

it
.

Don't

touch

anything
.

Take

the

fixtures

and

then

send

them

to

the

specialist
,

because

as

soon

as

they

start

touching

things

or

burning

things

or

cutting

things
,

you

can

cause

those

adhesions

that

then

later

on

I'm

having

to

deal

with

and

try

to

prevent

from

reoccurring
,

and

that

becomes

more

difficult
.

It's

more

difficult

to

prevent

adhesions

once

adhesions

were

already

there
.

Speaker 1
8:50

Right
,

prevent

adhesions

when

you're

you're

just

doing

surgery

on

someone

who

didn't

have

adhesions

before
,

right

and

then

the

other

part

of

that

too

is

that

it's

much

harder

for

the

patient

long

term

to

get

a

good

quality

Excision

and

get

all

disease

out
,

because

it's

all

mingled

within

that

and

then

your

organs

and

other

pelvic

components

are

compromised

even

more

Long

term

because

it

affects

the

nerves
,

it

affects

the

muscles
,

the

bowel

is

kinked
,

everything

is

shifted

and

trying

to

unravel
,

then

put

everything

back

to

where

it

belongs
.

Speaker 2
9:25

Number

one

takes

a

long

time
,

but

number

two
,

you

know
,

you

end

up

with

a

lot

of

raw

surfaces

which

can

then

form

adhesions

Right
,

and

so

the

more

we

think

about

prevention
.

And

that

takes

us

to

the

next

step
.

You

know

why

aren't

we

diagnosing

endometriosis

when

patients

are

young
,

so

we

can

treat

it

early
,

before

it

becomes

the

stage

four
?

Frozen

Pelvis

infertility

patient
.

Speaker 2
9:45

Yes

why

can't
?

I

know

that

when

patients

are

in

their

teens
.

Most

patients

have

symptoms

in

their

teens
.

Right
,

my

mini

micro

laparoscopy

is

a

wonderful

thing

for

that
,

if

I

can

do

a

laparoscopy

and

tell

Someone

you

have

endometriosis

and

you're

12

years

old
,

or

13
,

or

14

or

15
.

And

these

are

the

things

we

can

do

to

minimize

inflammation

and

to

minimize

Spread

of

endometriosis

and

to

minimize

progression

and

let

them

be

aware
.

Speaker 2
10:08

Like

a

lot

of

patients

are

like

I

wish

I

knew

I

had

this
.

I

would

have

frozen

my

eggs

when

I

was

25
.

Hmm
,

waited

till

I'm

now

38

and

trying

to

get

pregnant

and

I

have

minimal

eggs

left
.

And

now
,

what

do

I

do
?

Right
,

they

have

an

awareness

that

they

have

this

disease

and

they

can

make

those

life

decisions

with

information
.

Right
,

with

knowledge
.

And

if

we

don't

diagnose

them

early
,

they

then

they're

coming

to

you

shopped

at

40

that

they

now

have

this

and

they

have

one

embryo

and

it's

like
,

oh

my

god
,

how

are

we

gonna

get

her

pregnant
?

Speaker 2
10:36

Yeah
,

and

it's

very
,

it's

emotionally

draining

when

you

see

those

patients

day

in

or

they

out
.

Honestly
,

because

it's

just

tragic
.

Because

you

go

back

and

you

ask

them

and

you're

like

did

you

have

painful

periods
?

Yeah
,

I

was

passing

out

in

college

or

I

was
,

you

know
,

throwing

up

in

high

school
.

How

come

nobody

knew

that

these

symptoms

are

endometriosis
?

Right
,

right
,

no
,

I'm

starting

at

it
.

How

do

people

not

know

that

dysmenorrhea

is

painful

periods
?

But

that

happens

before

the

period
.

Which

hunter
?

That

is

my

diagnostic

key

for

endometriosis
.

Endometriosis

pain

starts

one

or

two

days

before

the

period
.

Hmm
,

this

menorrhea

or

painful

period

starts

when

you're

bleeding
.

That's

dysmenorrhea
.

You

can't

call

pain

one

or

two

days

before

the

period

dysmenorrhea
.

They're

not

having

a

period
.

That

is

endometriosis
.

That's

almost

100%

diagnostic

for

endometriosis
.

If

you

have

pain

the

day

or

two

before

the

period

and

then

as

it

progresses

it

gets

worse
,

three

days

before
,

four

days

before
,

five

days

before
,

seven

days

before

from

all

the

way

into

the

period

from

the

whole

month

now
.

Speaker 2
11:36

Yeah
,

I

mean

that

if

you

go

back

their

history
,

you

can

actually

see

that

it's

literally

the

same

story

every

single

time
.

Speaker 1
11:43

Then

how

do

we

diagnose

earlier
?

Speaker 2
11:45

Through
,

through

discussion
,

through

history
,

through

exam
,

through

ultrasound
,

through

the
.

The

other

one
,

the

tilted

cervix

right
.

Oh
,

I

have

a

tilted

uterus

in

our

tilted

left

is

turned

tilted

right
,

it's

shifted
.

This

and

that

I

mean
.

Do

you

know

that

we're

all

born

with

our

uterus

in

the

middle
,

just

like

our

heart
?

Speaker 2
12:03

is

on

our

left

side

and

our

liver

is

on

our

right

side

and

our

gallbladder

is

over

here

and

our

appendix

is

over

here
.

The

uterus

is

in

the

middle
.

That's

how

we're

born
.

That's

how

it

was

created
.

If

it's

not

in

the

middle
,

when

we're

a

teenager

or

when

we're

in

our

20s
,

something

moved

it
.

Guess

what

moved

it
?

The

endometriosis

moved

it
,

the

fibrosis

moved

it
.

Speaker 2
12:25

If

your

uterus

is

tilted
,

I

almost

guarantee

you

have

endometriosis
.

It

boggles

my

mind
.

I

talked

to

the

patient

and

I

said

oh
,

your

uterus

has

shifted

this

or

that
.

Oh

yeah
,

they

told

me

when

I

was

a

teenager

that

it

was

hard

to

get

a

pap

smear

because

they

couldn't

find

my

cervix

because

it

was

shifted
.

There

was

no

clue

in

that
.

Oh

my

God
,

the

cervix

has

shifted
.

There's

something

going

on
.

Maybe

it's

endometriosis
.

This

is

one

thing

that

I

like

when

I

talk

to

internal

medicine

and

family

doctors

which

I'm

now

trying

to

educate

all

the

family

doctors

and

internal

medicine

and

pediatricians

in

this

area

when

I

tell

them

that

it's

almost

like

their

mind

is

blown
.

Oh

my

God
,

I

see

this

so

often
.

How

did

I

not

know

that

this

is

a

thing
?

Speaker 1
13:04

Well
,

it's

because

no

one

talks

about

it
.

In

medical

school

I've

talked

to

so

many

doctors

that

are

like

we

spend

maybe

30

minutes

to

maybe

a

day

and

a

half

on

endometriosis
.

Maybe

the

literature

just

isn't

there
,

it's

not

at

the

forefront

of

their

mind
.

They're

thinking

what

they

learned

in

school

is

IBS

and

they're

learning

this
.

Just

happens

to

be

this

way
.

Speaker 2
13:29

This

is

how

it

grows
.

These

are

the

things

like

if

people

are

more

aware

of

these

symptoms
.

The

signs

and

symptoms
,

endometriosis
.

We

can

get

a

diagnosis

sooner
.

People

are

aware

that

mini-microlaparoscopy

exists
.

That

are

ways

that

we

can

prevent

endometriosis

progression
.

Why

are

we

not

treating

them
?

Why

do

I

keep

seeing

these

debilitated

16
,

17
,

18

year

olds

that

started

having

symptoms

when

they

were

11
?

Right
,

that

now

can't

function
,

can't

go

to

school
.

This

is

going

to

affect

the

rest

of

their

life
.

Speaker 1
13:59

How

do

we

decipher
,

like
,

when

is

it

time

for

us
,

as

parents
,

to

look

at

the

situation

and

say
,

okay
,

it

might

be

time

for

surgery
?

Is

there

a

process

to

take

in

order

to

see
,

okay
,

they're

starting

to

feel

this

pain

now
?

Do

we

do

hormonal

suppression

or

do

we

do

surgery
?

Or

do

we

like

what

is

a

good

step

for

those

of

us

who

have

girls

that

will

potentially

and

likely

deal

with

endometriosis
?

I

mean
,

I'm

starting

to

see

certain

things

in

even

my

nine

year

old

right

now
,

that

I'm

like

girlfriend
.

We

got

to

watch

this
.

Speaker 2
14:36

I

mean

honestly
,

it's

the

same

as

an

adult
.

So

you

know
,

when

I

when

I

see

patients

with

endometriosis
,

I

tell

them

there's

like

basically

four

reasons

to

have

surgery
.

The

first

one

is

debilitating

pain
.

You

can't

function

and

it's

just

nothing's

working
.

You

can't

leave

them

like

that

Right
.

They're

debilitated
,

they

can't

function
.

No

medication

is

going

to

get

them

out

of

that

without

surgery
.

You

can

try
,

but

most

of

the

time

it'll

fail

and

end

up

with

surgery
.

The

second

is

severe

anatomic

distortion
.

Speaker 2
15:03

So

I've

operated

on

18

year

olds
,

19

year

olds
,

16

year

olds

who

already

have

a

10

centimeter

endometrioma

on

their

ovary
.

I'm

like

I

can't

leave

that

there
.

It's

already

destroying

most

of

their

ovary
.

I

have

to

save

their

ovary

and

so

for

those

people

and

then

surgery

is

an

answer

and

you

can

talk

about

how

you

approach

it
.

You

know
,

do

you

do

medications

first
,

try

to

shrink

it
.

There's

all

sorts

of

things

that

we

can

discuss
.

Speaker 2
15:28

The

third

one

is

they've

tried

hormonal

management
.

It's

not

working
.

They

don't

really

want

to

go

to

the

next

step

of

hormones

or

they

don't

want

to

stay

on

hormones

unless

they

know

for

sure

100%

they

have

endometriosis
.

So

more

for

like

their

diagnostic

capabilities

that

we

want

to

do

surgery
.

The

fourth

reason

is

fertility
,

which
,

if

someone

is

already

having

impacted

and

usually

it's

not

a

teen
,

it's

early

twenties

their

AMH

is

already

being

impacted
,

their

FSH

is

already

being

impacted
,

they

have

fertility

concerns
,

their

tube

is

already

dilated
.

Those

ones

I

would

rather

do

surgery

on

now
.

At

least

get

the

process

stopped

so

that

they

don't

keep

progressing
.

Okay
,

everyone

else
,

honestly
,

you

could

try

to

manage

their

symptoms
,

either

medically

or

with

physical

therapy

or

bladder

treatment

or

bowel

treatment

and

anti

inflammatory

Recognizing and Treating Teenage Endometriosis

Speaker 2
16:15

dice
.

There's

all

sorts

of

things

we

can

do

for

teenagers
.

Not

everyone

will

need

surgery

to

at

least

delay

the

need

for

surgery
.

But

we

still

need

to

diagnose

them

with

endometriosis
.

We

can't

just

say

oh

yeah
,

it's

all

in

your

head
.

Speaker 1
16:28

Go

to

therapy
.

Speaker 2
16:29

Go

to

therapy

right
,

yeah
.

Which

I

mean
.

There's

a

place

for

it
,

for

me

as

a

teenager

it

was

oh
,

you

need

to

eat

more

fiber
.

You're

constipated
,

you

know
.

I'm

like

really
,

Because

I

don't

feel

constipated
.

I

just

feel

like

I'm

going

to

die
.

Speaker 1
16:42

every

time

I

have

a

period

I'm

like

you

know
,

it's

kind

of

what

we

all

feel
,

and

to

be

dismissed

as

a

teen
,

I

think

does

perpetuate

the

mental

health

issues

that

we

already

faced

with

endometriosis

and

so

when

we're

not

believed

at

an

early

age

or

we

think

pain

is

just

normal

all

the

time
,

it's

perpetuating

something

further

on

down

the

line
.

If

we

can

address

it

earlier
,

even

if

it's

in

the

mini

micro

laparoscopy
,

like

it's

important

to

understand

our

body
,

but

do

it

the

least

invasive

that

we

can

and

just

yeah
,

and

it's

interesting
.

Speaker 2
17:20

It

is

interesting

because

I

have

a

lot

of

patients

that

tell

me

like

chronic

pain

patients

who

are

now

are

like
,

literally

in

chronic

pain

all

the

time
,

even

when

I've

now

dealt

with

their

pain
.

They

have

self

doubt
,

like

they

doubt

that

they

don't

have

pain

anymore

and

they

feel

they

tell

me

I

wish

I

had

been

validated
,

like

I

wish

someone

had

said

yes
,

you

have

pain
,

because

it's

now
.

They

don't

even

doubt

that

they

have

pain
,

like

it's

like

they

don't

believe

their

own

self
,

they

don't

believe

their

own

sensations
.

And

it's

tragic

because

it's

hard

to

take

care

of

them
,

because

you

ask

them

do

you

have

pain
?

And

they're

like

I

don't

know
.

Yeah
,

maybe

that's

me

half

the

time
.

Yeah
,

it's

like

I

don't

know
.

I've

been

living

with

pain

for

so

long
.

I

don't

know

what

not

having

pain

feels

like

you

know
,

and

that's

tragic

because

it

affects

you
.

Speaker 2
18:04

It

affects

you

in

every

single

way

and

it's

not
.

It

ends

up

with

those

patients

not

even

not

just

taking

care

of

their

pain

symptoms
.

They

ignore

every

aspect

of

their

life
,

yeah
,

ignore

their

emotions
,

they

ignore

their

needs
,

they

ignore

their

desires
,

they

ignore

their

dreams
.

And

it's

tragic

because

it's

so

hard

to

reverse

it

when

it

gets

to

that

point
.

It

is

so

hard
,

it

takes

years

of

therapy

and

years

of

treatments

and

years

of

self

love

and

self

care

and

affirmations
,

yeah
,

and

it

takes

so

much

to

do

that

and

it

makes

me

sad

when

I

see

that
.

And

you

try

your

best
.

But

it's

so

hard

because

and

that's

what

I

mean

when

I

tell

you

that

you

know
,

surgery

doesn't

fix

everything

Right
.

As

a

surgeon
,

it

hurts

me

to

say

that

because

I

mean

I

went

into

surgery

because

I

love

that

you

could

fix

it

Right
,

throw

medications

at

it
,

and

I

learned

how

to

do

endometriosis

surgery

because

I

love

that

I

could

go

in

and

remove

the

disease

and

like

feel

that
,

oh

my

gosh
,

I

fixed

it
.

Speaker 2
19:01

But

when

I

see

those

patients

that

you

do

the

surgery

and

they're

still

struggling

mentally
,

emotionally

and

in

other

ways
,

you

know
,

sexually

and

in

their

relationships

and

in

their

love

of

life
.

It's

heartbreaking
,

but

just

as

good

as

when

you

do

sit
,

when

you

do

catch

it

early

and

you

can

treat

people

and

people

telling

me

every

day

I

hear

that

you've

changed

my

life
.

I'm

a

new

person
,

you

know
,

I'm

a

new

woman
.

I

now

can

travel
.

I

now

can

do

this
.

I

now

can

pursue

my

career

dreams
.

I

now

I'm

pregnant

with

the

baby

that

I've

always

wanted
.

I

mean

these
,

these

messages

that

I

get

every

single

day
.

They're

what

keep

me

going
,

honestly
,

through

this
.

The

turmoil

of

the

medical

health

care

system

that

we're

in
,

that

we

talked

about

earlier

and
,

you

know
,

keeping

it

pushed

through

and

try

to

make

this

dream

happen
.

Speaker 1
19:44

I

feel

like

that's

one

thing

that

we

have

to

acknowledge

is

that

the

health

care

system

is

not

set

up

for

excision

surgeons

to

really

help

heal

and

bring

quality

of

life

back

for

endometriosis

patients
.

I

feel

like

it

is

set

up

almost

to

have

them

fail
.

The

something

that

I

want

to

highlight

to

everyone

is

the

fact

that

if

you're

seeing

a

true

excision

specialist

and

endometriosis

specialist
,

they

work

so

hard

and

put

so

much

out

there

with

very

little

return

for

them

personally

other

than

your

stories

and

your

ability

to

heal

in

life
.

They're

not

out

there

being

the

next

Jeff

Bezos

of

the

medical

system
.

It

is

hard

work

and

you're

seeing

trauma
.

You're

not

just

seeing

physical

trauma
.

You're

seeing

the

mental

trauma
,

the

emotional

trauma
,

the

financial

trauma
,

because

that's

real

in

this

system
,

right
,

and

so

managing

that

from

a

doctor's

perspective
.

Speaker 1
20:47

I

can't

imagine

how

challenging

that

would

be

to

see

that

day

in

and

day

out
.

If

we

can

prevent

that

just

a

little

bit

by

seeking

care

as

teens

when

the

symptoms

start
,

so

that

the

doctor

can

track

it
.

Okay
,

we're

seeing

a

little

bit

more

change

in

you
.

Maybe

we

need

to

look

at

potentially

having

surgery

in

the

next

year

or

so
.

What

ways

can

we

keep

you

comfortable

at

this

point
.

I

don't

know
,

I

just

feel

like

we

would

see

less

trauma
.

Speaker 2
21:14

We

would
,

and

even

to

be

honest
,

like

with

some

of

my

teenagers
,

just

knowing

that

they

have

this

and

that

there's

an

explanation

and

an

acknowledgement

of

what

they're

going

through

is

almost

enough

for

them
.

Speaker 1
21:28

I

can

see

that
.

Speaker 2
21:29

And

then

you

try

to

treat

them

medically

and

surgically

and

all

of

that
.

But

just

having

an

acknowledgement

because

as

a

teenager

you're

going

through

so

many

termoils

and

changes

and

hormones

and

all

sorts

of

stuff

and

you're

just

discovering

yourself

as

a

person
,

as

a

human

being
,

separate

from

your

parents
,

and

to

know

that

someone

believes

you

or

they

have

that

acknowledgement

of

that

you

are

suffering

or

that

you

are

in

pain
,

I

think

is

a

huge

thing

that

we

should

not

minimize
.

I'd

rather

over

diagnose

teen

ando

than

misaffuse

you

and

make

them

feel

traumatized
.

Speaker 1
22:03

Yeah
,

that's

huge

though

I

mean
.

I

look
,

I

think

back

to

when

I

was

a

teenager

and

all

the

things

that

I

went

through

and

I

didn't

I

mean

no

one
.

I

didn't

even

hear

the

word

of

endometriosis

until

I

was

married

for

about

a

year

and

had

a

kidney

stone

removed

and

it

was

then

that

they

found

an

endometrioma
.

And

that

was

the

first

time

that

I

had

ever

heard

when

I

went

to

my

OBGYN
,

who

said

immediately

she's

like

I'm

95%

sure

that's

an

endometriosis
,

I'm

pretty

sure

you

have

it
,

because

she

heard

all

my

other

symptoms

that

went

along

with

it
.

And

I

think

it

was

that

at

that

point

that

I

realized

that

I

wasn't

normal

in

my

cycle
,

I

wasn't

normal

in

my

pain
,

but

then

I

felt

really

abnormal

because

I

was

given

this

diagnosis

that

I

felt

like

was

super

rare

because

no

one

had

talked

about

it

to

that

point
.

Speaker 1
22:52

And

that's

also
,

I

think
,

what

you're

trying

to

do

is

you're

talking

about

the

whole

person
,

not

just

surgical
,

you're

not

just

talking

disease
,

you're

talking

the

years

of

trauma
.

How

can

we

get

you

help

Walking

through

that
?

I

think

something

that

we've

underestimated

is

the

ability

for

our

specialists

to

walk

with

us

in

complete

healing
,

and

that's

something

that

you

and

I

have

talked

about

a

little

bit
.

It's

just
,

this

is

step

one

surgery
.

Step

one

diagnosis
.

Step

one

like

half

step
,

yeah
,

half

step
,

but

that

complete

picture
.

Challenges and Improvements in Healthcare System

Speaker 1
23:29

Because

now

I'm

like

putting

my

pieces

together

and

I'm

like
,

mona
,

where

were

you
?

Huh
,

like

30

years

ago
,

yeah
,

30

years

ago

I

was

like

I

was

in

med

school
.

Speaker 2
23:38

I

think

I

was

in

college
.

Speaker 1
23:44

Yeah
,

but

I

just

feel

like

if

we

can

help

teens

navigate

this

disease

better
,

talk

about

it

and

it

not

be

so

unattainable

for

treatment

and

care
,

could

we

potentially

see

a

better

healthcare

system
.

Speaker 2
23:59

That's

the

thing

right
,

can

we

help

them

for

the

future
?

The

healthcare

system

is

a

whole

other

bottle

of

wax
.

Honestly
,

the

healthcare

system
.

I'm

Canadian
,

so

I

came

from

the

Canadian

healthcare

system

and

I

came

from

the

Canadian

healthcare

system

until

2001

when

I

graduated

medical

school

and

I

came

here

to

do

my

residency

because

my

family

had

moved

to

the

US

and

I

was

appalled
,

like

and

I've

been

appalled

and

the

feeling

of

oh

my

God
,

this

is

a

disaster

has

only

gotten

worse
.

It

is

the

healthcare

system

in

the

United

States

is

failing

us
.

Speaker 2
24:31

It's

failing

doctors
,

it's

failing

patients
,

it's

failing

everybody

and

it

needs

to

be

fixed
.

But

honestly
,

like

I've

had

this

discussion

with

other

doctors
,

it

almost

needs

to

completely

fail

and

just

fall

apart

so

that

we

can

rebuild

it

from

scratch
.

And

it

has

to

stop

being

a

business
.

It

can't

be

a

money

maker

for

insurance

companies

and

executives

that

make

millions

of

dollars

off

of

healthcare
.

The

money

has

to

go

into

one

pot

and

we

actually

spend

it

on

patients

and

doctors

and

caretakers

and

nurses

and

all

the

people

that

are

actually

doing

healthcare
.

Why

all

the

money

going

to

the

executives
,

the

business

people
?

They

can't

do

that
.

Speaker 2
25:16

You

can't

it's

just

it

can't

continue

that

way
.

This

is

not

a

business
.

We

should

not

be

profiting

hearing

off

of

people

being

ill
.

Speaker 1
25:25

No
.

Speaker 2
25:25

That's

a

whole
,

nother

philosophical

discussion
.

But

it

is

tragic

and

I

see

it

every

day

and

when

I

have

to

fight

10

times

a

day

and

I

have

to

do

peer-to-peer

calls

to

insurance

companies

to

get

an

MRI

on

a

patient
.

Speaker 2
25:39

Because

I

work

a

lot

of

MRIs

and

every

time

it's

like

an

argument

why

does

she

need

an

MRI
?

Well
,

she

has

endometriosis
.

Well
,

if

so
,

it's

like

well
,

I

need

to

see

where

the

endometriosis

is

so

I

can

do

her

surgery
.

Well
,

and

then

I

get

the
.

Oh
,

endometriosis

isn't

treated

by

surgery
.

It's

like

where

were

you

for

the

last

20

years
?

Like
,

are

you

talking

to

a

person

who's

like

pediatrician

or

like

some

weird

doctor

on

the

other

end
,

who

isn't

even

a

gynecologist
,

who's

telling

me

that

I

don't

need

an

MRI
?

It's

like

I'm

the

doctor

I

need

an

MRI
.

Approve

the

darn

thing
.

And

sometimes

it

takes

like

an

hour

of

conversation

for

me

to

convince

someone

to

let

me

order

an

MRI

on

a

patient
.

Can

you

believe

that

I

spend

an

hour

of

my

time

on

the

phone

trying

to

approve

an

MRI
?

That's

nice
,

or

peer-to-peer

discussion

or

whatever

it

is

that

I'm

ordering

which

you

could

have

done

A

whole

surgery
.

Speaker 1
26:30

A

whole

surgery
.

You

could

have

given

care

to

someone

that

desperately

needed

it

in

that

timeframe
.

That's

insane

to

me
.

Speaker 1
26:40

That's

insane

to

me
.

Well
,

and

I

think

too

that

something

that

we

had

talked

about

prior

to

coming

on

is

that

doing

surgeries

can

be

preventative

care

from

years

and

years

of

trauma

From

seeing

this

doctor
,

that

doctor

and

another

doctor

oh

wait
,

they

all

didn't

believe

you
,

so

let's

send

you

to

the

psychologist
.

And

now

the

trauma

is

even

tenfold

on

that
.

So

when

we're

talking

teen

endometriosis
,

early

diagnosis
,

early

treatment
,

it's

really

early

preventative

care

for

what

could

potentially

happen

and

the

trauma

that

could

potentially

happen

further

on

down

the

line
.

Speaker 2
27:16

Yeah
,

these

patients

can

develop

depression
,

they

can

develop

lifelong

disability
,

they

can

be

completely

absent

from

the

workforce
.

I

mean
,

their

entire

life

is

affected
.

Patients

who

spend

hundreds

of

thousands

of

dollars

on

fertility

treatment

that

could

have

been

prevented
,

where

we

could

have

done

surgery

and

they

could

have

gotten

pregnant
.

Like

why
?

Why

are

we

spending

all

this

money
?

And

we

could

actually

prevent

all

of

this

excess

expenditure

on

antidepressants
,

you

know
,

disability
,

fertility

treatment
,

all

of

this

if

we

treat

endometriosis

properly

from

the

beginning
.

Speaker 1
27:48

Yeah
,

and

that

takes

understanding

the

disease

properly

from

the

beginning
,

yeah
,

which

is

also

that's

another

conversation
,

but

that

is

another
.

That's

a

whole

nother

ball

of

wax

that

we

could

really

melt

on

that

one
.

Huh
,

I

mean

I

don't
.

I

don't

know

if

there's

any

easy

solution

at

this

point
,

but

I

do

think

that

what

you're

doing

is

so

important

because

the

surgery

that
,

like

we've

said
,

that's

one

piece

of

it
.

How

do

you

follow

up

with

patients

and

walk

through

them

past

that

surgery

and

what

should

be
?

I

don't

know

about

an

expectation
,

but

what

should

be

something

that

doctors

should

be

doing

with

their

patients

post

surgery

that

you

find

beneficial
?

Yeah
?

Speaker 2
28:28

I

mean
,

we

don't
.

We

talked

about

this
.

I'm

not

just

a

surgeon

who

does

surgery

and

then

send

you

back

on

your

merry

way

and

that's

it
.

We're

done
.

Like

for

me
,

my

patients

are

mine

for

life
.

I

will

follow

them

forever
,

make

sure

their

pain

stays

away
.

If

they

want

to

get

pregnant
,

they

get

pregnant
.

If

they

have

bladder

issues
,

we've

treated
,

address

those

issues
.

If

they

have

GI

issues
,

that

we've

addressed

those

issues
.

If

they

have

mental

issues
,

that

we've

addressed

those

issues
.

That

they

get

the

physical

therapy

they

need
,

they

get

the

bladder

treatment

they

need
,

they

get

the

fertility

treatment

they

need
.

And

following

them

to

make

sure

that

the

endometriosis

doesn't

come

back
.

And

if

it

does

come

back
,

how

do

we

treat

it
?

Like

to

me
,

it's

not

just
,

I'm

not

just

a

surgeon

who

does

surgery

and

that's

it
.

Speaker 2
29:05

For

me

once

an

endometriosis

patient

or

a

patient

with

other

diseases

fibroids
,

pcos
,

whatever

I

do

all

menstrual

disorders

right
.

Postmenopause

too
,

I

treat

menopause

patients
.

I

treat

teens
.

I

do

pediatric

gynecology
.

I'm

also

trained

in

pediatric

gynecology
.

So

for

patients

who

are

going

through

pubertal

problems

or

have

malaria

and

anomalies
,

the

double

uterus
,

absent

vagina
,

all

of

that
,

I

treat

all

of

that
.

So

for

me
,

a

patient

is

not

just

a

patient
.

Speaker 2
29:30

I'm

treating

one

disease
,

they're

an

entire

person

that

I

will

be

their

doctor

for

life

if

they

want

me

to

be
,

and

so

it's

so

much

the

diagnosis

beforehand

coming

up

with

a

management

plan

that

fits

that

patient

at

that

time
.

What

is

it

that

their

goals

are
?

And

I

work

with

that
.

They

tell

me

what

they

need

and

then

I

work

with

how

to

get

them

to

their

goals
.

Speaker 1
29:50

And

then

after

surgery
.

Speaker 2
29:51

It's

the

same

Patients

who

have

painful

intercourse

dysparunia
.

Sometimes

doing

the

surgery

is

not

enough
.

You

have

to

treat

the

vestibulitis
,

you

need

to

treat

the

vaginismus
.

Speaker 2
30:00

You

need

to

treat

the

psychological

trauma

of

being

afraid

of

having

sex
,

right
,

right
,

you

need

to

do

therapy
,

like

there's

the
.

I

always

tell

patients

with

who

especially

the

ones

that

are

really

bad
,

where
,

like
,

they

haven't

been

able

to

have

sex

I

tell

them

it's

going

to

probably

take

me

a

year

to

get

you

to

have

sex
,

even

if

I

have

the

surgery
.

So

we're

still

going

to

need

treatment

post-op

to

get

you

to

that

point

where

you

have

pleasurable

sex
,

and

it

may

take

six

months
,

it

may

take

a

year
.

Right
,

it's

going

to

be

an

instant

fix
.

It's

not

because

there's

a

lot

behind

that
.

Speaker 2
30:27

Same

with

bladder

issues
.

You

know

the

patients

that

come

to

me

and

they're

like
,

oh

my

God
,

I

wake

up

12

times

a

night

to

pee

and

I'm

like
,

oh

my

gosh
,

how

do

you

sleep
?

Right
,

you

get

to

sleep
.

And

again
,

I

tell

them

the

surgery

will

help
,

but

we're

still

going

to

need

to

do

some

treatment

post-op

and

it's

going

to

take

maybe

six

months

or

a

year

to

get

you

to

the

point

where

you

can

sleep

through

the

night
.

Speaker 1
30:45

Right
.

Speaker 2
30:46

And

because

it's

not

just

one
.

It

is

one

disease

but

there's

so

many

manifestations

and

so

many

side

effects

of

that

disease

right
.

Speaker 2
30:54

You

have

to

treat

Right

and

every

patient

is

different
.

So

my

point

is

a

surgeon

shouldn't

just

drop

a

patient

afterwards
.

You

do

their

surgery

and

they

go

away
.

And

that's

why

I

do

a

lot

of

telehealth

right
,

because

I

have

patients

from

all

over

the

country

and

I

try

to

manage

them

from

remotely
.

Between

me

and

my

physician

assistant
,

we

come

up

with

a

management

plan

when

they

leave

and

then

we

keep

checking

in
.

So

I

usually

check

in

with

patients

that

have

active

problems
.

I

usually

check

in

every

six

weeks
,

wow
,

post-op
,

until

they're

better
,

and

then
,

when

they're

better
,

we

go

to

six

months

and

then
,

with

they're

really

good

and

they're

doing

great

and

awesome
,

then

I

check

in

once

a

year

with

them
.

That's

amazing
.

So

it's

you

know
.

I

do

check

in

with

patients
,

you

know
,

pretty

frequently
.

Speaker 1
31:38

Yeah
.

Speaker 2
31:38

Up

until

they

get

to

their

goal
,

yeah
.

And

once

they

reach

their

goal

and

they're

like
,

yeah
,

I'm

good
,

dr

Roddy
,

let's

just

they're

not

like
,

okay
,

I'll

see

you

in

a

year
.

And

then

usually

they're

really

sad

by

that

point
,

because

they've

seen

me
.

What

do

you

mean
?

I'm

not

going

to

see

you

for

a

year
,

I'm

like

well

you're

good
,

right
,

you

need

anything

from

me
.

They're

like
,

yeah
,

we're

great
,

but

we're

going

to

miss

you
.

Speaker 1
31:55

But

can

we

go

have

dinner

now
?

Speaker 2
31:59

I'll

bring

cookies

to

the

office

or

something

like

that

yeah
,

just

to

stop
,

but

yeah
.

Speaker 1
32:05

That's

amazing
.

I

feel

like

that

kind

of

genuine

care
.

It

helps

with

healing
.

The

more

informed

a

patient

is
,

with

realistic

expectations
,

the

better

their

outcome

long

term

is
.

And

that's

something

that

I

feel

like

we

really

underestimate

is

the

realistic

expectations

of

what

surgery

is
,

of

what

endometriosis

is

the

care
,

everything

else

and

I

think

you

know

you've

talked

about

this

before

but

even

in

your

protocol
,

whether

it's

hormone

based
,

hormone

suppression

you

really

set

the

expectation

Okay
,

here

are

all

your

options
.

If

this

is

your

end

goal
,

here's

all

your

options
,

here's

what

each

of

these

options

do
.

That's

called

informed

consent
.

And

then

you

allow

them

to

pick

what's

going

to

be

best

for

them
,

and

I

think

that

that

also

lends

to

a

better

outcome

because

they're

not

as

traumatized
.

Speaker 1
32:56

Well
,

my

doctor

didn't

tell

me

that
,

or

my

doctor

didn't

tell

me

this
.

And

then

going

into

surgery
,

post

surgery
,

I

think

it's

just

as

informative

to

say

you're

not

going

to

be

100%

post

op
,

you're

not

going

to

be

100%

even

in

a

couple

weeks
.

It's

going

to

take

time
.

Let's

figure

out
,

let's

unravel

some

of

what's

going

on
,

and

I

just

feel

like

that's

a

really

hard

thing

and

something

that

all

of

us

not

all
,

I

would

say
,

a

majority

of

us

endometriosis

patients

who

have

had

multiple

surgeries
,

specifically

really

struggle

with

that

expectation

of

like

okay
,

we've

had

this

amazing

excision

surgery
,

but

I'm

still

feeling

this

pain
,

I'm

still

feeling

this

fatigue
,

I'm

still

having

issues

with

my

hormones

and

we

don't

feel

the

support

that

we

need

walking

through

that
.

Understanding and Treating Endometriosis

Speaker 2
33:45

Yeah
,

and

I

tell

my

patients

especially

the

fatigue

aspect
.

I

mean
,

a

lot

of

them
,

people

are

patients

with

chronic

fatigue
.

They

have

the

surgery
,

they

will

lose

that

chronic

fatigue

will

go

away
,

but

it

can

take

maybe

six

months
,

yeah
,

and

then

feel

so

much

energy

and

like

I

feel

amazing
.

But

I

always

have

to

tell

them

your

body

has

to

heal

from

that

surgery
.

And

then

the

other

patients

you

come

in

and

they're

like

oh
,

I

have

anemia
,

I

have

to

have

surgery
.

Some

of

them

are

actually

surprised

when

I'm

like
,

well
,

you

don't

have

to

have

surgery

right

now
,

we

can

try

physical

therapy
,

bladder

treatments
,

the

yada
,

yada
,

yada
.

If

that's

your

goal

is

not

to

have

surgery

right

now
,

we

can

do

other

things

and

then

if

we

ultimately

end

up

having

surgery
,

yeah
,

then

we

have

surgery
.

But

I

don't
,

like

I

don't

want

patients

to

come

in

thinking
,

oh
,

this

is

my

only

option
.

I'd

love

to

give

them

other

options

and

ultimately

we

may

need

to

have

surgery
,

but

I

don't

like

push

the

surgery

on

them

right

away
,

Like

oh

yeah
,

you

have

a

note
.

Speaker 2
34:39

you

have

to

have

surgery
,

not

necessarily
,

not

right

now
.

You

may

have

to

in

the

future
,

but

not

necessarily

right

now
.

Speaker 1
34:45

Yeah
,

I

mean

gosh
.

That

is

so

good

to

hear
,

I

think
,

for

people

and

it

does

give

hope

to

those

that

feel

that

way

of

like

I

just

need

to

have

surgery

and

I'll

be

all

better
,

maybe
,

maybe

some

of

this

can

be

preventative

too

of

like

the

pelvic

floor

dysfunction

and

making

sure

that

we

care

for

that

even

prior

to

surgery
,

to

see

if

surgery

is

needed

at

that

point

I

mean
,

don't

get

me

wrong
.

Speaker 2
35:12

So

a

lot

of

the

patients

are

old

right

after

surgery
.

I

mean
,

they

have

surgery

and

it's

amazing
,

all

of

a

sudden

they

have

no

pain

and

they're

pregnant

and

they're

every

other

goals

come

A

lot
.

A

lot

of

patients

are

like

that
.

But

for

patients

with

chronic

pain

specifically
,

who've

had

the

disease

for

a

long

time

and

they

have

a

lot

of

the

other

effects

the

bowel

problems
,

the

bladder

problems
,

the

fatigue
,

the

pelvic

floor

tension
,

the

neurologas

and

all

of

this

that

takes

a

long

time

to

reverse
.

It

took

a

long

time

to

happen
.

It's

going

to

take

a

long

time

to

reverse

and

I

like

it

very
,

you

know
,

it's

great

when

it

does

reverse

really

fast

and

at

three

months

are

like

I

feel

amazing
,

I'm

like

great
,

wonderful
.

But

I

don't

like

to

give

that

expectation

Right
.

Speaker 1
35:51

Oh

and

that's

and

I

think

that

that's

staying

within

the

bandwidth

of

like

knowing

that

you

can't

solve

everything

in

24

hours
.

That

would

be

amazing
,

though
,

if

you

could

figure

out

a

way

to

do

that
,

some

Star

Trek

way

of

doing

that
,

to

make

us

just

wipe

it

off

clean
.

That'd

be

amazing

when
?

Speaker 2
36:09

I

tell

patients
,

I

mean
,

when

we

get

pregnant
,

it's

like
,

oh

well
,

we're

going

to

have

a

baby
.

Guess

what
?

Nine

months

later
,

you

forget

the

baby
.

It's

not

like

the

next

day

you

have

the

baby
.

It

takes

time
.

It

takes

time

Right
,

it

takes

time

to

bounce

back

from

that
.

Speaker 2
36:21

It's

like

you

know
,

it

takes

you

like

frickin
,

like

I

mean
.

They

call

it

the

fourth

trimester

for

a

reason
.

There's

like

at

least

12

weeks
.

You

still

don't

feel

like

a

normal

person
.

Actually

I

would

argue

it's

like

12

years
.

But

anyway
,

12

years

it

takes

time
,

you

don't
?

You

know
,

everything

takes

time

it

doesn't
.

Speaker 2
36:39

It's

not

something

that's

instantaneous
.

What

is

amazing

to

me
,

though
,

in

terms

of

fertility

treatment

though
,

is

it

does

quite

amazing

how

fast

people

do

get

pregnant

after

surgery
.

Usually
,

it's

within

three

months
,

which

is
,

like

to

me
,

mind

blowing
,

yeah

yeah
.

Like

especially

fertility

patients

who
,

like
,

haven't

been

able

to

get

pregnant

for

six

years

and

then

a

month

later

they're

pregnant
.

That

amazes

me
.

I

see

that

all

the

time
,

and

every

time

I'm

like

wow
,

that's

amazing
,

that's

awesome
,

awesome
,

and

that

has

to

keep

you

going
.

Speaker 2
37:11

That

has

to

keep

me

going
,

and

it's

something

that's

really

sad
,

because

fertility

patients

should

know

that

that's

an

option
,

like

they

don't
.

I

don't

know

why

it's

still

touted

that

oh
,

if

you

have

infertility
,

you

have

to

do

IVF

First
.

And

that's

yeah
,

and

it's

like
,

why

do

we

spend

all

this

money

on

IVF
?

And

yes
,

ivf

can

get

some

of

them

pregnant
,

but

a

lot

of

them

fail
.

Speaker 2
37:31

And

going

through

failed

IVF

after

failed

IVF

after

failure

is

heartbreaking
.

Yeah
,

it

sucks

as

an

emotional

tool

and

you're

pumping

yourself

full

of

hormones

and

you

know

injections

and

it

is

so

difficult
.

Yeah
,

I

went

through

one

IVF

cycle

personally

and

I

couldn't

do

it

anymore
.

I

was

like

no
,

I

can't
.

I
,

you

know
,

I

and

it

and

it
,

and

it

and

it

and

it
.

And

some

people

who

do

it

over

and

over
,

I

mean

kudos

to

them
,

I

mean

you

are

a

trooper
,

but

why
?

Why

are

we

putting

them

through

that

before

we

diagnose

them
?

Why

don't

we

diagnose

them
?

Try

the

conservative

surgery

method

first
,

right
.

If

they

need

IVF
,

and

they

need

IVF
,

fine

Right
.

But

it

just

it's

heartbreaking

to

me

when

I

see

patients

who've

gone

through

six
,

eight

years

of

infertility

and

then

that

you

do

the

surgery

and

they

get

pregnant
.

And

it's

like

they

come

back

to

me

and

like

why

didn't

anyone

tell

me

this
?

And

I'm

like

I

don't

know
,

just

be

happy

or

pregnant
,

like

I

can't

answer

that

question

for

you
,

because

they

didn't

know
.

Speaker 2
38:26

Cause

they

didn't

know

yeah
.

Speaker 1
38:27

Right
,

yeah
,

and

and

that

I

see

that

so

many

times

and

talking

to

people
,

I

mean

even

in

my

own

story

I

wish

there

were

things

that

I

would

have

known

earlier
.

Speaker 2
38:37

Right
,

oh
,

all

of

us
.

Speaker 1
38:38

All

of

us

are

that

way
.

Speaker 2
38:39

Don't

you

wish

we

could

talk

to

our

20

year

old

self

and

say

hey
,

by

the

way
,

in

the

future

XYZ
.

You

should

do

this
.

I

wish
.

Right
,

I

would

have

changed

my

life
.

Speaker 1
38:48

I'd

be

so

much

more

wise
,

I

know

right
,

I

would

have

avoided

a

lot

of

things

along

the

way
.

Speaker 2
38:54

I've

had

a

lot

of

love

to

go

back

and

talk

to

my

20

year

old

self
.

Speaker 1
38:57

Right

that

would

be

amazing
.

I

would

love

that
,

it'd

be

great
,

but

we

can't
.

And

so

now

we

have

to
.

Now

we

take

what

we've

been

given

and

what

we've

walked

through

and

help

other

people

and

we

continue

this

journey

of

making

sure

that

endometriosis

is
,

first

of

all
,

understood

correctly

and

defined

correctly

and

taught

correctly

to

those

around

us

Right
,

and

then

understanding

that

it

is
.

It

is

a

major

disease
.

It's

not

a

period

pain
.

It's

not

missing

school

for

two

or

three

days

when

you're

a

teenager
.

It's

not

infertility
,

it

is

its

own

thing

that

causes

these

other
.

Speaker 2
39:37

Yeah
,

and

it

has

long-term

consequences
.

Yeah
,

you

know
,

it's

not

like

it's

just

a

one

time

thing
.

Like

you

know
,

sometimes

I

like

I

had

my

gallbladder

out
,

I

got

gallstones
.

I

had

my

gallbladder

out

as

a

teenager
.

Once

it

was

out
,

that

was

it
,

it

was

done
,

right
.

Right
,

you

don't

have

a

gallbladder

anymore
,

easy

Right
.

This

is

not

that
.

Speaker 1
39:54

No
.

Speaker 2
39:55

Not

the

same
.

Speaker 1
39:56

No
,

no
,

and

understanding

that
,

I

think
,

is

going

to

help

future

generations

with

seeking

better

care

and

treatment

for

this

disease
.

Speaker 2
40:06

I

mean
,

and

hopefully
,

hopefully
,

even

the

medical

community

starts

to

realize

that

this

is

like

cancer
.

It

should

have

its

own

specialty
.

Yep
,

it

just

should
.

Menstrual

disorders

is

not

even

just

endometriosis
.

Endometriosis
,

fibroids
,

pcos
,

hormonal

problems
,

like

menstrual

disorders

is

a

specialty

in

itself
.

Speaker 1
40:26

Yeah
.

Speaker 2
40:26

And

sometimes

I

joke

like

you

know
,

it's

always

obstetrics

and

gynecology

and

it's

like

obstetrics

is

first
,

gynecology

is

like

the

problem

child
,

right
?

Yeah
,

I

can't

explain

that

I've

forgotten

about

and

I'm

like

why

does

obstetrics

get

so

much

attention

when

you

only

spend

nine

months

of

your

month

life

pregnant

and

you

spend

like

40

years

menstruating
,

right
?

Speaker 1
40:47

Right
,

why
?

Why

is
?

Speaker 2
40:48

that

Right
,

you

spend

four

years

of

our

life

menstruating
.

Every

woman

will

have

some

menstrual

problem

at

some

point
,

right
.

A

fibroid
,

a

polyp
,

abnormal

bleeding
,

an

infection
,

whatever
.

But

that's

a

hormonal

issue
.

Right
,

every

woman

will

have

a

menstrual

issue

at

some

point

in

their

life
.

And

we

focus

so

much

on

the

nine

months

of

pregnancy
,

right
,

I'm

not

saying

it's

not

important
,

I'm

just

saying

why

is

gynecology

the

forgotten

child
?

Speaker 1
41:13

Yes
,

and

not

to

say

that

endometriosis

is

a

menstruation

problem

in

and

of

itself
.

It's

a

whole

body

issue
.

Right
,

like

we

see

the

diaphragmatic
,

we

see

the

thoracic

endometriosis
.

I

mean

it's

everywhere
,

so

it

just

typically

will

manifest

during

the

menstruation

cycle

and

that

is

a

huge

indicator

for

a

lot

of

people

not

everyone
,

but

a

lot

of

people
.

That

is

a

massive

indicator

as

to

something

else

is

going

on
.

It's

not

just

a

bad

period
,

it's

not

just

I

can't

walk

during

my

cycle
.

It's

not

just

I

can't

breathe

during

my

cycle
.

There

is

something

else

going

on

in

your

body

and

typically

people

will

notice

it

in

their

menstrual

Advocating for Endometriosis Education in Schools

Speaker 1
41:57

cycle
.

And

I

think

that

if

we

can

acknowledge

the

fact

that

it

is

not

just

those

things
,

it

is

something

else

causing

these

symptoms

during

that

time
,

oh

my

gosh
,

let's

talk

to

their

schools

about

this
,

right
,

let's

talk

to

nursing

programs
,

pediatrics
.

Speaker 2
42:12

Why

isn't

it

a

sexual

education

class
?

Like

everybody

has

sex

ed

class
.

Like
,

why

don't

we

teach

it

endometriosis

symptoms

and

sex

ed

class
?

Like
,

why

not
?

Yeah
,

we

don't

know

that

passing

out

and

throwing

up

during

our

period

isn't

normal
.

Speaker 1
42:24

No
,

yeah
,

through

our

nonprofit

that

we

started

here
.

That

is

a

goal
.

Of

ours

is

to

get

into

the

schools

and

talk

about

this

more
,

educate

young

people

about

this

disease
.

So

we

can

talk

for

days
.

I

know

we

could

go

for

on

for

hours
,

but

I

just

want

to
,

if

you

want
.

Speaker 1
42:40

Yeah
,

we

will
.

We'll

have

to

do

part

two
,

but

thank

you

so

much

for

bringing

light

to

something

that

we

really

haven't

talked

about

much
,

and

I

think

that

we

need

to

talk

more

about

teen

endometriosis
,

adhesion

and

the

healthcare

system

and

how

that's

designed
.

But

thank

you

so

much

for

taking

the

time

oh
,

thank

you

and

just

being

a

wave

maker

through

this

whole

thing
.

So

I

appreciate

it
,

and

until

next

time
,

endometriosis

warriors

continue

advocating

for

you

and

for

those

that

you

love
.

Leave a Reply

Your email address will not be published. Required fields are marked *