Send us a text with a question or thought on this episode ( We cannot replay from this link)
Imagine being nine years old and feeling a constant, unexplainable pain that no one seems to take seriously. That’s exactly what Arleigh Cole experienced, and in this powerful episode of Endo Battery, she shares her incredible journey from those early days of fatigue and bowel issues to becoming a fierce advocate for endometriosis and adenomyosis awareness. Join me, Alanna, as we uncover Arleigh’s story of enduring two surgeries, a hysterectomy, and the harsh realities of inadequate medical care. This episode shines a light on the importance of proper diagnosis, specialized treatment, and the unwavering support of a community that truly understands.
Arleigh and I dive deep into the emotional and physical challenges of living with an invisible disease. We discuss the cycles of false hope, the frustration of societal disbelief, and the profound sense of isolation that often accompanies such conditions. By sharing her personal battles and triumphs, Arleigh emphasizes the healing power of validation and community support. We also touch on the difficult transition through menopause and the impact of being constantly unseen and unheard, while highlighting the strength and resilience that comes from shared experiences.
We also explore the systemic issues plaguing women’s health, from the impact of endometriosis on pregnancy and motherhood to the disparities in healthcare access and treatment. This episode tackles the misconceptions, misdiagnoses, and emotional toll of chronic fatigue and pain, and underscores the urgency of educating young women about their bodies. Through personal anecdotes and broader societal insights, Arleigh and I stress the importance of advocacy, education, and continued research to support women facing these challenges. Tune in to be inspired by Arleigh’s transformation into a powerful advocate and to learn how you can contribute to raising awareness and driving change.
Thank you to our sponsor for this episode, Well-Being Pelvic Physical Therapy
Website endobattery.com
Journey Through Endometriosis and Adenomyosis
Speaker 1
0:03
Welcome
to
EndoBattery
,
where
I
share
about
my
endometriosis
and
adenomyosis
story
and
continue
learning
along
the
way
.
This
podcast
is
not
a
substitute
for
professional
medical
advice
or
diagnosis
,
but
a
place
to
equip
you
with
information
and
a
sense
of
community
,
ensuring
you
never
have
to
face
this
journey
alone
.
Join
me
as
I
navigate
the
ups
and
downs
and
share
stories
of
strength
,
resilience
and
hope
.
While
navigating
the
world
of
endometriosis
and
adenomyosis
,
from
personal
experience
to
expert
insights
,
I'm
your
host
,
alana
,
and
this
is
EndoBattery
charging
our
lives
when
endometriosis
drains
us
.
Welcome
back
to
EndoBattery
,
grab
your
cup
of
coffee
or
your
cup
of
tea
and
join
me
at
the
table
.
Speaker 1
0:47
Today
I'm
joined
by
my
guest
,
arlie
Cole
.
Arlie
is
an
incredible
Indo
warrior
who
began
her
public
advocacy
journey
by
courageously
sharing
her
story
on
through
her
page
,
missindostoodwarriors
.
Since
then
,
she's
continued
to
be
a
powerful
voice
in
the
community
as
a
certified
health
coach
,
using
her
platform
to
be
a
powerful
voice
in
the
community
as
a
certified
health
coach
,
using
her
platform
to
speak
out
about
the
challenges
of
living
with
endometriosis
.
I'm
excited
to
dive
into
her
journey
and
the
important
work
she's
doing
to
raise
awareness
.
Please
help
me
in
welcoming
Arlie
Cole
.
Thank
you
so
much
,
arlie
,
for
joining
me
today
and
allowing
me
to
sit
down
at
the
table
with
you
for
this
really
important
conversation
.
Not
only
important
,
but
it's
a
conversation
where
I
feel
like
people
are
going
to
feel
validated
because
your
story
has
been
impactful
for
many
online
.
If
you've
been
following
,
you'll
know
that
your
story
is
many
people's
story
,
so
thank
you
so
much
for
joining
me
.
Speaker 2
1:41
Thank
you
so
much
for
joining
me
.
Thank
you
so
much
for
opening
the
conversation
with
me
.
I'm
really
happy
to
share
my
own
personal
experience
because
,
like
you
said
,
I
think
it's
super
important
that
other
people
understand
that
they're
not
alone
,
and
all
of
our
stories
are
very
similar
and
overlapping
in
a
lot
of
areas
.
Speaker 1
2:03
Yeah
,
I
think
that's
part
of
what
going
through
this
journey
has
taught
me
is
that
people
who
have
lived
experiences
together
thrive
together
.
We
heal
together
,
we
grow
together
.
We
experience
life
differently
,
we
feel
validated
,
we
feel
very
uplifted
oftentimes
and
then
we
can
walk
through
the
trenches
together
with
understanding
,
and
so
I
think
that's
important
to
highlight
overall
.
But
in
saying
that
,
your
story
didn't
start
when
social
media
started
,
can
you
give
us
a
background
as
to
what
you've
gone
through
and
part
of
your
journey
and
what's
taking
you
to
where
you
are
today
?
Speaker 2
2:41
Sure
.
So
yes
,
my
journey
began
way
before
social
media
.
It
began
around
age
nine
and
I
was
sick
in
terms
of
having
a
lot
of
fatigue
.
I
had
bowel
issues
and
pelvic
pain
,
and
it
just
wasn't
ever
questioned
.
Really
,
it
was
never
brought
up
to
the
pediatrician
.
It
just
sort
of
seemed
like
to
me
that
that
was
something
that
everyone
was
experiencing
.
That
was
just
like
a
part
of
life
.
And
then
when
I
started
getting
my
period
at
13
,
again
,
it
was
getting
my
period
at
13
,
again
.
It
was
not
really
ever
a
big
conversation
.
It
was
just
more
about
the
fact
that
,
as
women
in
our
family
,
this
is
what
we
dealt
with
,
that
that
was
a
norm
.
There
was
nothing
abnormal
about
bleeding
through
sanitary
napkins
and
waking
up
in
a
pool
of
blood
and
not
being
able
to
get
out
of
bed
to
go
to
school
.
Just
sort
of
was
something
that
I
dealt
with
on
a
monthly
basis
until
it
became
more
of
a
regular
issue
in
terms
of
pain
and
fatigue
and
other
sort
of
mystery
ailments
and
symptoms
.
Speaker 2
4:04
And
it
took
me
24
years
to
be
properly
diagnosed
with
endometriosis
.
And
that
was
after
having
two
surgeries
,
one
for
what
was
suspected
cancer
and
then
two
was
a
hysterectomy
and
my
my
pain
and
issues
actually
became
worse
after
the
hysterectomy
because
I
did
not
see
a
specialist
.
I
really
didn't
know
very
much
about
the
disease
at
all
.
It
had
been
mentioned
to
me
in
my
early
20s
.
I
just
remember
somebody
saying
and
it
may
have
been
my
mom
,
because
she
also
had
endometriosis
but
after
she
had
a
hysterectomy
she
never
had
any
pain
.
So
I
think
somebody
said
to
me
along
the
way
you
might
have
trouble
getting
pregnant
,
but
that
was
really
the
only
thing
that
was
ever
mentioned
.
And
then
I
remember
being
pregnant
and
literally
in
labor
,
about
to
push
,
and
the
nurse
said
to
me
oh
well
,
now
you'll
never
.
You
know
,
you
don't
have
to
worry
about
endometriosis
because
you
had
a
baby
.
Um
,
so
clearly
that's
not
the
case
and
it
wasn't
the
case
and
my
issues
,
like
I
said
,
after
I
had
a
hysterectomy
with
an
oncology
gynecologist
,
it
got
worse
.
Speaker 2
5:32
It
got
worse
because
it
was
burned
out
and
it
wasn't
excised
.
I
started
developing
other
sort
of
autoimmune
issues
and
my
inflammation
was
really
high
.
I
had
rashes
on
my
face
.
I
had
like
burning
in
my
eyes
constantly
,
obviously
like
the
abdominal
dissension
looked
like
six
months
pregnant
on
a
regular
basis
,
to
the
point
where
it
didn't
matter
anymore
about
what
I
ate
.
You
know
,
if
I
restricted
pasta
or
rice
or
bread
or
you
know
,
carbs
,
that
would
help
.
And
then
it
was
like
,
well
,
I
just
ate
a
piece
of
chicken
,
you
know
.
Or
I
just
had
a
tomato
.
I
removed
all
like
nightshades
and
inflammatory
foods
.
I
did
learn
a
lot
about
diet
and
how
that
can
worsen
symptoms
and
contribute
to
bowel
problems
,
but
I
knew
that
that
was
not
like
,
that
wasn't
going
to
fix
my
issues
.
Speaker 2
6:31
But
it
did
definitely
help
.
But
it
was
so
bad
to
the
point
where
I
did
go
see
a
specialist
and
I
had
stage
four
deep
infiltrating
endo
with
frozen
pelvis
.
Everything
was
completely
glued
together
.
I
ended
up
with
a
bowel
resection
.
It
had
not
just
been
on
the
surface
of
the
bowel
,
but
it
actually
penetrated
the
layers
of
the
bowel
,
causing
an
obstruction
.
And
you
know
,
funny
enough
,
my
imaging
never
showed
that
.
In
fact
I
had
multiple
colonoscopies
and
no
one
said
anything
about
obstruction
.
In
fact
I
was
told
that
I
didn't
do
the
bowel
prep
properly
and
that
I
must
not
have
done
it
right
which
was
super
infuriating
because
I
definitely
did
the
bowel
prep
.
Speaker 1
7:23
You're
like
I
know
what
happened
and
it
was
correct
,
Exactly
.
Speaker 2
7:28
So
you
know
it's
.
It's
been
a
wild
,
wild
journey
.
I
just
had
my
fifth
surgery
,
which
was
removing
my
final
ovary
.
I'm
already
in
menopause
.
Prior
to
removing
that
ovary
,
we
had
figured
that
out
and
the
ovary
that
was
just
taken
out
was
completely
black
and
it
had
all
these
cysts
on
it
.
And
if
I
had
waited
one
more
month
for
surgery
and
another
cycle
,
those
cysts
would
have
ruptured
and
I
would
have
been
full
of
cells
again
,
which
would
have
required
a
much
larger
surgery
.
So
I'm
very
grateful
that
I
have
pushed
and
advocated
for
myself
and
shared
my
story
so
that
other
people
don't
have
to
go
Finding Community in Endometriosis Healing
Speaker 2
8:15
through
this
.
It's
wild
that
you
can
have
a
disease
that's
completely
not
recognized
or
fully
understood
and
then
have
that
diagnosis
and
still
continue
to
have
to
like
,
advocate
and
fight
and
educate
.
If
I
didn't
do
all
those
things
,
I
would
probably
go
crazy
.
I
feel
like
it's
inside
me
to
just
have
to
share
my
experience
because
I
can't
,
I
guess
,
harbor
any
more
of
all
of
that
,
like
a
lot
of
people
have
.
Speaker 1
8:43
It
is
hard
when
you
walk
through
a
long
time
of
this
horrible
experience
.
And
I
don't
know
if
you
experienced
this
,
but
initially
,
when
I
was
diagnosed
again
,
I
had
a
doctor
who
was
great
.
She
was
fighting
for
me
,
she
wanted
to
do
her
best
by
me
,
but
again
I
had
ablation
and
I
just
had
that
false
sense
of
hope
over
and
over
and
,
over
and
over
again
.
And
I
just
feel
like
sometimes
,
when
you
compile
all
of
those
years
of
false
hope
and
those
years
of
pain
and
triggers
and
trying
to
advocate
constantly
for
yourself
,
just
so
that
you
have
some
quality
of
life
,
like
you're
not
even
looking
for
top-notch
quality
of
life
,
you're
looking
for
some
quality
of
life
,
right
.
Yeah
,
that's
such
a
good
point
,
yeah
,
and
I
feel
like
saying
something
and
not
living
in
that
space
of
,
I
want
to
say
,
trauma
a
little
bit
and
living
in
that
,
I
really
think
,
helps
our
bodies
heal
and
helps
our
minds
heal
and
helps
our
souls
heal
.
Speaker 1
9:49
To
talk
about
it
and
everyone's
going
to
be
different
,
but
I
know
for
me
,
this
is
why
I'm
doing
this
is
because
it
has
been
extremely
healing
to
sit
down
with
other
people
and
not
only
feel
validated
and
heard
,
but
also
again
to
feel
like
,
okay
,
I'm
not
the
only
one
who's
walked
through
this
,
I'm
not
crazy
,
I'm
not
doing
it
.
Speaker 2
10:11
You
know
100%
.
I
mean
,
I
think
the
amount
of
us
that
have
been
told
that
it's
in
our
head
or
that
we
just
need
to
see
a
psychologist
or
go
on
antidepressants
is
wild
.
That
word
crazy
is
such
a
trigger
word
for
me
because
I
feel
like
I've
been
called
crazy
my
whole
life
.
I've
been
dismissed
.
Speaker 2
10:37
My
entire
life
I've
been
criticized
,
I've
been
not
believed
by
you
know
,
friends
,
family
,
employers
,
doctors
.
You
know
you
name
it
because
it's
an
invisible
disease
that
you
can't
see
,
and
so
when
we
can't
see
things
,
we
just
automatically
think
that
there's
something
mentally
wrong
with
the
person
.
Right
,
that
there's
something
mentally
wrong
with
the
person
and
the
tremendous
amount
of
damage
that
that
does
.
You
carry
it
throughout
life
and
into
adulthood
and
even
when
,
if
you're
lucky
enough
to
raise
your
own
children
,
you
question
yourself
.
It's
something
that
I've
been
focusing
on
a
lot
lately
.
I
think
sort
of
in
this
next
chapter
in
my
life
,
like
I'm
in
menopause
now
and
my
son
is
going
to
be
18
.
Like
there's
all
that
like
midlife
stuff
sort
of
happening
.
But
I'm
really
reflecting
back
on
all
of
the
words
,
all
of
the
things
that
have
been
said
that
have
been
super
damaging
and
only
because
of
people's
you
know
,
outside
judgment
or
criticism
over
something
that
can't
be
seen
.
Speaker 1
11:50
Yeah
,
and
it's
hard
because
they
can't
see
it
,
they
can't
feel
it
.
Therefore
,
it
must
not
be
real
,
right
,
and
that's
so
harmful
because
many
things
are
on
scene
.
Many
things
are
on
scene
.
I
mean
,
you
look
at
social
media
and
it
has
its
place
and
it
can
be
very
good
.
But
again
,
you
look
at
social
media
for
those
that
put
a
really
pretty
picture
on
there
but
maybe
are
suffering
in
the
depths
,
you
know
,
and
it's
very
similar
to
this
disease
.
Speaker 1
12:17
I
think
that
I
don't
know
about
you
,
but
for
me
there
are
moments
that
I
have
had
to
put
on
a
brave
face
,
put
on
a
happy
face
,
and
no
one
would
know
that
I
was
in
so
much
pain
and
I
would
even
say
sometimes
still
in
that
pain
.
When
it
comes
to
I
have
,
you
know
,
same
thing
menopause
,
it's
been
wonderfully
horrible
,
that's
such
a
good
way
to
put
it
.
I
mean
it's
been
great
I
don't
have
the
endomiosis
symptoms
anymore
,
I
don't
have
the
endosymptoms
.
But
man
,
there's
all
these
other
things
I
have
to
deal
with
now
and
trying
to
understand
those
things
.
But
sometimes
you
have
to
put
on
a
brave
face
just
to
make
it
through
the
day
,
whether
you
want
to
or
not
,
and
you
still
sometimes
have
to
live
life
,
and
I
think
that's
what's
hard
is
we
can
only
do
that
so
much
before
it
really
impacts
our
lives
and
our
quality
of
life
and
our
outcome
long
term
.
And
so
to
not
be
believed
,
to
not
be
heard
,
to
not
be
seen
,
man
,
it
takes
a
toll
on
all
of
us
to
not
be
seen
,
man
.
Speaker 2
13:29
It
takes
a
toll
on
all
of
us
.
Yeah
,
totally
what
you
said
before
about
us
needing
to
,
you
know
,
connect
on
that
level
with
other
people
because
they
understand
it
.
It's
interesting
to
me
,
like
how
I've
met
people
within
this
community
and
I
recently
did
a
below
the
belt
event
and
a
bunch
of
them
came
and
,
like
you
know
,
we're
friends
online
,
right
,
we
like
each
other
based
on
what
we
post
and
we
really
don't
know
each
other
very
well
at
all
,
but
there's
such
a
sense
of
community
when
you
meet
somebody
else
that
has
this
diagnosis
.
It's
just
like
an
instant
connection
between
you
and
that
person
,
which
has
been
incredibly
helpful
when
it
comes
to
mental
health
and
healing
and
not
feeling
alone
because
it
is
a
lonely
disease
.
Speaker 2
14:22
And
a
lot
of
people
will
say
well
,
even
though
I
know
that
there's
lots
of
us
out
there
,
I
still
feel
very
isolated
and
alone
.
And
that's
true
because
every
one
of
our
situations
is
very
different
in
the
ways
of
what
we've
experienced
from
doctors
and
just
our
cases
,
our
degree
of
disease
.
Speaker 2
14:40
But
,
there's
so
many
positive
things
that
I've
found
about
sharing
my
story
and
the
community
response
,
because
there
are
definitely
days
where
I
feel
like
no
one
else
gets
it
and
I
will
share
the
hard
stuff
and
I
try
not
to
focus
so
much
on
that
.
But
there
are
days
where
it
is
really
hard
.
There
are
days
where
you
physically
just
can't
function
just
getting
up
to
go
to
the
bathroom
.
It
takes
a
lot
of
energy
and
there's
a
lot
of
guilt
and
shame
attached
to
that
,
like
I
often
feel
that
way
.
I
recently
had
a
day
where
I
just
was
beyond
exhausted
and
I
had
to
,
you
know
,
cancel
my
plans
and
you
do
feel
,
you
just
feel
crappy
all
around
when
it
comes
to
dealing
with
this
.
You
know
there's
so
many
different
emotional
,
mental
components
to
having
a
chronic
illness
.
Speaker 1
15:45
Yep
,
absolutely
,
and
I
think
what
you
said
about
having
that
community
is
key
and
I
talk
about
this
all
the
time
.
I
talk
about
how
important
community
is
and
you
will
never
find
a
community
who
gets
you
more
than
those
in
the
endo
community
,
because
we've
experienced
Uncovering Health Disparities for Women
Speaker 1
15:58
it
.
We've
been
called
lazy
because
we're
so
tired
.
I
was
called
that
for
the
longest
time
,
even
as
a
kid
.
I
remember
wanting
to
for
the
longest
time
.
Even
as
a
kid
,
I
remember
wanting
to
sleep
all
the
time
and
I'm
looking
back
at
it
and
I'm
more
aware
now
of
what
not
to
say
or
do
to
my
kids
if
they're
feeling
a
certain
way
because
of
what
I
went
through
.
But
also
just
looking
at
the
times
,
like
you
said
,
the
nurse
saying
you
won't
have
to
worry
about
endometriosis
Same
thing
.
I
had
that
very
same
thing
.
Yes
,
I
was
fortunate
to
be
able
to
have
kids
,
but
it
wasn't
easy
and
it
didn't
go
away
.
It
didn't
solve
the
issues
.
In
fact
,
it
made
it
worse
in
a
lot
of
ways
.
For
me
it
did
,
and
I
no
same
.
Speaker 2
16:41
That's
exactly
like
my
pregnancy
was
really
hard
.
It
was
really
really
rough
and
essentially
,
oddly
enough
,
like
getting
pregnant
.
Having
my
son
was
a
tipping
point
for
my
problems
.
Like
it
started
,
it
plummeted
,
my
health
plummeted
and
you
know
that
was
a
scary
,
scary
time
.
I
had
a
brand
new
baby
.
People
still
weren't
listening
to
me
,
people
were
still
calling
me
crazy
and
then
I
ended
up
with
the
misdiagnosis
of
cancer
.
So
the
pregnancy
for
me
like
all
those
hormones
in
the
body
and
everything
I
felt
like
it
revved
everything
up
and
it
is
something
that
again
like
I
attach
the
pain
and
the
trauma
of
endo
to
the
birth
of
my
son
Because
it
was
incredibly
traumatic
the
night
before
I
had
him
.
That
is
something
I've
been
working
on
for
almost
18
years
is
sort
of
how
you
detach
like
something
that
was
so
traumatic
and
life
altering
to
something
so
wonderful
and
a
miracle
.
You
know
it's
really
hard
.
Speaker 1
17:54
Mm
,
hmm
,
I
hadn't
really
thought
of
that
before
.
That's
a
really
great
point
to
make
.
Not
that
you
wanted
to
make
it
,
but
I
think
it's
important
to
highlight
it
.
I
didn't
put
that
together
,
that
the
correlation
between
something
so
wonderful
catapulting
something
so
awful
.
Speaker 2
18:12
Yeah
,
it
really
,
it
really
did
,
and
it's
it's
like
the
irony
,
I
guess
.
But
you
know
,
I
think
there's
got
to
be
other
women
who
have
similar
experiences
in
terms
of
having
a
very
uncomfortable
pregnancy
,
and
that
also
has
made
me
sort
of
carry
,
you
know
,
a
sense
of
loss
or
grief
,
because
I
feel
like
I
wasn't
able
to
enjoy
that
time
and
all
of
those
moments
that
you
sort
of
picture
in
your
head
while
being
pregnant
and
then
after
delivery
,
because
I
was
struggling
so
hard
to
just
be
well
enough
to
take
care
of
him
.
So
,
you
know
,
I
feel
like
we
don't
.
We
definitely
don't
talk
enough
about
postpartum
,
obviously
,
either
,
but
we
definitely
don't
talk
about
the
effects
on
women's
bodies
when
they
have
endometriosis
and
they're
pregnant
,
like
it
would
be
interesting
to
see
,
statistically
and
research
wise
,
like
,
how
many
people
with
endo
see
an
increased
risk
in
either
morning
sickness
or
that
.
Speaker 2
19:23
To
me
would
be
super
important
because
,
like
,
what
effects
does
that
have
on
the
fetus
and
,
you
know
,
mentally
on
on
mom
while
this
is
all
happening
,
to
her
body
and
her
hormones
?
So
hopefully
we're
talking
yeah
,
but
yeah
,
my
,
my
brain
sort
of
goes
back
to
all
of
those
things
that
I
wish
could
have
been
happier
times
.
Speaker 1
19:50
Yeah
,
the
first
endometriosis
summit
I
went
to
.
I
had
the
privilege
of
walking
into
Epcot
with
Dr
David
Redwine
and
we
had
this
conversation
actually
.
Speaker 2
20:02
And
.
Speaker 1
20:03
I
asked
him
.
I
said
you
know
,
why
do
you
think
it
is
that
some
women
with
endometriosis
really
struggle
during
pregnancy
and
they
feel
awful
and
then
others
feel
fantastic
.
It's
like
the
first
time
their
symptoms
turn
on
or
off
.
And
he
said
,
you
know
,
there's
just
not
a
lot
out
there
that
indicates
one
way
or
the
other
.
He
goes
it's
likely
a
hormonal
thing
and
where
the
endometriosis
is
in
your
body
and
the
inflammation
you
know
,
and
where
it's
inflamed
and
what
it's
affecting
.
And
so
it
was
just
.
I
will
always
cherish
that
time
to
sit
down
and
have
that
conversation
with
him
because
he
was
so
honest
and
real
about
just
the
effects
of
endometriosis
on
many
people
who
,
in
various
forms
of
life
,
have
struggled
.
But
that
specific
topic
was
one
that
I
had
always
questioned
.
And
he
took
the
time
and
just
sat
down
and
said
you
know
,
we
just
don't
know
enough
about
it
.
We
don't
know
enough
about
the
disease
as
it
is
.
And
I
mean
he
did
great
work
,
but
from
that
standpoint
they
couldn't
pinpoint
it
.
I
was
like
,
well
,
golly
,
gee
whiz
.
Speaker 2
21:07
Dr
David
Roadwine
isn't
sure
he
was
such
an
incredible
person
and
I
also
had
a
couple
opportunities
to
speak
with
him
and
hear
him
speak
and
you
know
,
I
feel
like
he's
like
the
father
figure
that
everyone
wishes
that
they
had
,
you
know
,
like
he
just
so
kind
and
so
caring
and
so
genuine
and
such
a
level
of
intelligence
and
reason
,
but
not
unbiased
way
,
something
very
special
about
,
about
that
man
.
But
I'm
thinking
now
because
I'm
in
menopause
,
a
lot
of
my
mindset
has
sort
of
shifted
to
what's
happening
to
our
hormones
.
During
that
time
A
light
bulb
went
off
in
my
head
,
like
you
must
be
either
perimenopause
or
menopause
.
In
the
last
year
I
was
like
this
is
interesting
.
This
is
how
I
felt
postpartum
and
this
is
how
I
felt
when
I
was
on
birth
control
.
So
there's
1000%
of
correlation
between
what
happens
to
the
hormones
when
we're
put
on
birth
control
,
when
we
have
postpartum
and
when
we're
in
menopause
,
and
whether's
the
drop
in
estrogen
or
you
know
all
levels
.
Speaker 2
22:28
I
don't
know
.
But
I'm
hopeful
,
with
all
of
the
new
research
and
information
coming
out
about
menopause
,
that
we'll
sort
of
be
able
to
use
that
information
and
that
will
help
support
other
theories
within
endometriosis
.
And
you
know
,
pmdd
is
something
that's
sort
of
on
the
rise
,
being
talked
about
more
.
I
100%
had
PMDD
and
again
just
thought
that
I
was
crazy
,
because
it
does
make
you
feel
that
way
and
,
sure
enough
,
people
also
felt
that
way
.
But
you
know
,
that
is
also
something
that
they've
been
looking
into
.
And
now
there
is
a
drug
out
there
.
I
don't
know
the
name
of
it
,
but
I've
heard
rumors
that
there's
a
drug
for
PMDD
and
postpartum
.
Speaker 2
23:17
So
,
I
do
wonder
is
that
something
that
could
help
patients
with
endometriosis
and
also
,
you
know
,
women
in
menopause
?
Speaker 1
23:25
Right
To
clarify
.
Pmdd
is
premenstrual
dysphoric
disorder
,
so
it's
not
PMS
,
it's
on
another
level
.
It's
on
another
level
.
Speaker 2
23:37
I
think
there's
overlapping
.
You
know
it's
probably
a
spectrum
like
everything
,
but
it's
really
severe
depression
symptoms
during
the
week
before
leading
up
until
your
period
.
It's
something
that
I
feel
like
we're
seeing
a
rise
of
.
Speaker 1
23:56
I
think
we're
becoming
more
aware
of
it
too
.
I
think
that
people
are
starting
to
talk
a
lot
more
,
and
I
think
this
is
where
it's
important
to
understand
the
value
of
social
media
,
if
you
can
use
it
for
good
,
because
,
as
a
whole
,
women's
health
and
I
say
women's
in
the
sense
that
that's
how
it's
categorized
,
but
in
women's
health
it
has
been
very
misunderstood
.
There
hasn't
been
a
lot
of
research
towards
women's
health
in
general
.
They're
for
a
long
time
had
a
very
misogynistic
viewpoint
in
medicine
and
still
does
,
I
think
,
a
lot
in
research
and
in
the
health
industry
,
and
so
,
for
women's
health
specifically
,
our
role
was
to
produce
children
and
take
care
of
a
house
for
years
,
right
and
so
there
was
no
point
in
looking
at
any
other
symptoms
or
any
other
ways
that
women
would
benefit
from
medical
care
,
even
though
we
are
the
highest
consumers
of
medical
care
.
Right
and
so
,
but
there's
just
not
the
research
for
that
,
there's
not
an
understanding
for
that
.
Speaker 1
24:58
So
I
think
at
this
point
,
people
are
standing
up
,
and
I'm
not
saying
women
,
just
women
are
standing
up
for
this
.
I'm
saying
people
in
general
are
standing
up
,
saying
this
isn't
right
,
like
we've
got
to
take
a
bigger
picture
,
and
social
media
has
played
a
large
part
in
that
.
Again
,
we
have
to
be
careful
what
we
look
at
on
social
media
and
understanding
it
,
because
that
can
perpetuate
a
much
bigger
issue
if
it's
misunderstood
or
if
it's
not
correct
.
But
I
do
have
to
say
I
think
that
there's
the
shift
in
dynamics
between
us
sitting
back
and
being
okay
with
whatever
comes
our
way
.
They
get
to
it
,
they
get
to
it
.
If
they
don't
,
they
don't
Into
.
We've
got
to
do
better
,
we
deserve
better
and
I
think
that
is
shifting
.
I
mean
,
I
don't
know
,
in
your
opinion
,
if
you've
seen
that
,
but
I
think
there
is
a
shift
.
Speaker 2
25:42
Yeah
,
I
completely
agree
with
you
.
And
who's
to
say
how
big
that
shift
is
?
I
think
I'm
trying
to
be
very
optimistic
in
thinking
that
we
do
have
sort
of
this
rising
happening
right
now
from
a
lot
of
people
from
a
lot
of
different
backgrounds
and
beliefs
sort
of
stepping
up
and
saying
no
,
this
isn't
right
and
we
need
to
change
this
.
I
mean
I
feel
like
we
have
a
lot
of
power
.
I
think
we
need
more
people
to
join
in
and
help
to
support
that
,
because
it
does
sort
of
almost
feel
like
five
steps
forward
,
10
steps
back
at
times
.
I've
been
involved
with
the
Connecticut
legislation
for
endometriosis
for
the
last
two
years
and
I
actually
had
a
phone
call
this
morning
with
someone
from
the
health
department
and
talking
about
updating
our
education
sex
head
in
schools
here
in
Connecticut
,
where
I
live
,
at
least
it's
not
mandated
.
Certain
things
aren't
mandated
,
which
was
really
interesting
to
find
out
the
fact
that
we
aren't
teaching
girls
about
their
full
anatomy
um
and
in
high
school
is
super
disturbing
because
it's
such
a
disservice
like
Like
.
Speaker 2
27:04
I
feel
that
if
you
educate
someone
about
their
body
,
that
the
delay
in
diagnosis
will
be
drastically
lower
,
because
if
they
know
what
their
body
parts
are
and
how
their
organs
work
and
function
,
then
they'll
know
if
something
isn't
right
.
You
know
,
or
quote
,
unquote
normal
,
but
right
now
we
just
teach
about
menstruation
on
a
basic
level
and
then
internal
anatomy
.
So
,
for
instance
,
in
a
junior
health
class
they're
getting
male
anatomy
and
then
they're
getting
the
ovaries
,
the
uterus
,
fallopian
tubes
and
possibly
cervix
,
and
it's
left
up
to
the
teacher
and
the
district
,
the
town
and
the
state
in
terms
of
what
they
teach
.
So
there's
no
like
mandates
and
this
is
.
You
know
,
we're
in
more
of
a
liberal
state
,
so
I
can't
imagine
other
states
probably
aren't
teaching
anything
.
Speaker 1
28:03
But
it's
pretty
wild
that
we
aren't
educating
young
girls
,
women
,
about
their
bodies
and
how
they
work
and
what
their
anatomy
is
body
changing
curriculum
with
my
daughter
that
they
did
at
the
school
and
they
actually
did
a
fairly
decent
job
,
talking
about
the
smells
that
are
going
to
start
producing
,
and
they've
talked
about
the
hormones
and
the
pheromones
,
and
they've
talked
about
,
you
know
,
what
your
body
does
in
preparation
for
,
prepare
for
having
a
child
,
or
talks
about
all
these
Shifting Women's Health Education Focus
Speaker 1
28:43
different
things
.
Speaker 1
28:43
The
one
thing
that
I
was
like
who
I
can't
,
I
need
to
get
into
the
school
was
they
were
talking
about
if
you
have
a
painful
period
,
you
can
take
an
Advil
or
talk
to
your
provider
,
and
I
was
like
no
,
no
,
no
,
no
,
we
need
to
be
a
little
bit
more
specific
.
Yeah
,
that's
it
.
Yeah
,
yeah
,
be
specific
about
that
,
be
a
little
bit
more
assertive
and
saying
if
you
have
really
painful
periods
,
you
need
to
see
a
provider
that
understands
that
it
could
be
X
,
y
and
Z
,
and
I
think
we
don't
do
that
because
providers
themselves
don't
know
enough
about
it
,
and
that
goes
back
to
the
education
that
a
lot
of
these
providers
receive
is
not
great
,
and
so
I
think
there
is
an
element
of
that
,
at
least
for
our
state
and
our
school
.
Speaker 2
29:32
We
actually
I
feel
like
they
did
a
fairly
decent
job
for
a
fourth
grader
,
helping
them
understand
that
.
But
I
think
we're
so
far
away
from
that
happening
,
you
know
,
just
because
of
everything
else
that's
happening
.
But
I
think
that
it's
so
important
because
had
someone
told
me
that
pain
wasn't
normal
and
my
first
period
I
was
in
pretty
horrible
pain
,
like
I
could
have
been
a
game
changer
.
Speaker 2
30:01
You
know
,
if
it
didn't
take
me
24
years
to
be
diagnosed
,
maybe
I
wouldn't
have
gone
through
all
the
trauma
that
I
have
.
And
government
and
at
a
federal
level
,
because
the
amount
of
money
that
is
spent
in
medical
care
for
endometriosis
is
just
wild
.
I
have
really
just
no
understanding
of
why
this
disease
has
been
just
completely
unrecognized
for
so
long
.
But
I
do
feel
like
we
have
some
really
amazing
people
fighting
for
awareness
on
this
and
I
do
feel
hopeful
that
we'll
be
able
to
piggyback
on
this
whole
push
for
menopause
awareness
.
You
know
it's
a
bipartisan
issue
.
It
affects
more
than
half
the
population
.
So
I'm
looking
forward
to
seeing
what
ends
up
happening
with
the
Women's
Health
Initiative
and
if
endometriosis
gets
any
funding
from
that
.
We
are
on
the
list
,
like
we
are
named
.
Speaker 1
31:18
So
that's
,
positive
.
Speaker 2
31:20
But
what
we'll
actually
get
?
Speaker 1
31:22
we
don't
know
,
and
that's
what
is
hard
,
and
that's
what
you're
talking
about
the
five
steps
forward
,
10
steps
back
,
feeling
you
know
we
can
be
on
the
list
but
it
could
be
completely
misrepresented
.
And
that
is
what
is
challenging
about
advocacy
and
when
we're
talking
about
the
challenge
of
making
sure
that
good
education
gets
out
there
.
This
is
why
Because
the
legislative
piece
plays
a
huge
part
in
our
care
and
a
huge
part
in
our
education
starting
at
a
very
young
age
.
It's
not
just
to
get
diagnosed
by
the
time
that
you're
16
.
So
you
can
be
diagnosed
when
you
start
having
symptoms
at
,
say
,
age
9
or
10
,
or
even
as
you
start
your
period
at
13
,
so
that
you
don't
have
to
go
through
so
much
trauma
to
get
to
where
you
have
somewhat
of
a
balanced
and
fulfilling
life
where
you're
not
constantly
fighting
to
survive
and
a
lot
of
us
doility
.
Speaker 2
32:28
I
think
maybe
a
lot
of
light
bulbs
would
go
off
for
people
you
know
,
there
,
there's
a
lot
of
people
that
are
trying
to
have
babies
.
There
are
a
lot
of
people
that
want
to
have
babies
and
and
can't
,
and
maybe
that's
because
they
weren't
diagnosed
at
12
or
13
,
you
know
,
and
it's
been
20
years
and
they
haven't
successfully
been
able
to
get
pregnant
and
no
one
can
figure
out
why
.
So
it's
just
completely
irrational
thinking
that
we
aren't
educating
women
about
their
bodies
and
how
they
work
and
what
is
quote
unquote
normal
and
what
is
not
.
Speaker 1
33:11
Which
leads
me
to
my
next
point
,
because
you've
lived
through
this
whole
life
going
through
multiple
surgeries
.
Then
you
started
a
social
media
page
and
your
social
media
handle
is
Miss
Endo
Stud
.
Speaker 1
33:24
Yes
,
and
that's
why
I
feel
like
this
is
so
important
,
because
your
journey
took
you
to
where
you
are
now
.
You
have
this
social
media
that
you
talk
a
lot
about
,
this
,
you
advocate
on
your
social
media
.
But
beyond
your
social
media
,
what
has
really
propelled
you
to
?
Not
just
your
journey
propelled
you
to
what
you're
doing
now
,
but
what
was
a
poignant
point
in
your
life
that
you
were
like
I
need
to
do
something
about
this
and
talk
about
this
?
Speaker 2
33:48
So
,
let's
see
,
almost
six
years
ago
was
my
first
surgery
with
an
endometriosis
specialist
,
and
it
was
like
maybe
two
days
before
surgery
that
I
decided
that
I
was
going
to
start
posting
and
recording
and
sharing
my
journey
,
and
I
think
at
that
point
endometriosis
really
didn't
have
a
presence
on
social
media
.
There
were
some
accounts
here
and
there
,
but
I
figured
I
was
going
to
share
because
I
had
no
idea
how
I
was
going
to
wake
up
.
I
was
going
in
for
a
surgery
that
could
have
a
,
you
know
,
potential
of
me
waking
up
with
a
cystoscopy
bag
,
having
a
stroma
bag
meaning
,
like
my
intestines
,
my
bowels
weren't
working
.
Speaker 1
34:41
There
was
a
lot
of
risk
.
Speaker 2
34:42
I
had
no
idea
how
I
was
going
to
come
out
of
that
surgery
and
I
sort
of
was
like
well
,
you
know
,
I'm
going
to
document
.
However
,
it
is
that
I
wake
up
.
That's
really
what
propelled
me
forward
Surgery Without a Game Plan
Speaker 2
34:56
.
It
was
just
the
idea
that
there
wasn't
a
plan
.
There
was
an
idea
,
a
suspicion
,
but
that
there
wasn't
.
You
know
,
oh
,
we
see
that
there's
,
you
know
,
a
piece
of
metal
.
We'll
say
in
your
abdomens
,
we're
going
to
go
in
and
we're
going
to
take
it
out
and
this
is
,
you
know
.
And
then
you're
just
like
,
oh
,
okay
,
great
,
and
then
I'm
going
to
be
healed
,
right
,
this
was
like
,
well
,
we
can't
really
tell
from
imaging
,
and
your
blood
work's
not
giving
us
any
answers
,
and
your
blood
work's
not
giving
us
any
answers
,
but
we
are
going
to
put
you
under
and
potentially
you
could
wake
up
with
the
loss
of
quality
of
life
or
you
have
the
potential
to
wake
up
and
have
gained
better
quality
of
life
because
of
what
we
can
do
.
Speaker 2
35:43
So
that
,
to
me
,
is
wild
.
It's
wild
that
we
go
under
the
knife
with
really
no
game
plan
,
you
know
,
no
sort
of
like
mapped
out
scenario
.
It's
it's
like
hide
and
seek
.
It's
like
you
know
,
we'll
see
what
we
find
when
we
get
in
there
.
So
you
know
,
I
wonder
how
many
people
have
woken
up
and
had
bowel
resections
and
didn't
expect
to
have
one
at
all
.
Something
inside
of
me
really
made
me
feel
like
that
was
there
was
a
potential
there
,
but
then
there
was
still
such
a
great
shock
when
I
did
wake
up
from
that
.
So
it's
just
all
of
it
is
just
wild
.
Speaker 2
36:24
It's
wild
to
me
that
there's
so
much
unknown
and
yet
so
many
people
are
so
desperate
that
you
know
they'll
go
under
the
knife
with
no
information
.
And
it's
even
scarier
.
And
having
been
one
of
those
people
who
was
like
not
informed
enough
and
had
surgery
with
someone
that
wasn't
a
specialist
,
that's
even
crazier
to
me
.
You
know
,
now
,
now
thinking
back
about
it
,
I'm
like
,
all
right
,
he
did
a
lot
of
damage
,
but
I'm
really
grateful
that
he
didn't
do
say
like
X
,
y
and
Z
or
he
didn't
take
my
ovaries
at
that
time
I
was
really
against
my
ovaries
being
taken
.
I
at
least
had
enough
information
about
how
my
hormones
worked
that
I
didn't
ever
agree
to
them
being
taken
.
But
yeah
,
back
to
the
healing
.
Like
sharing
my
story
has
helped
me
and
has
made
me
realize
that
you
know
there
are
lots
and
lots
of
other
people
who
have
also
gone
through
the
trauma
of
diagnosis
and
surgery
.
Speaker 1
37:25
Yeah
.
Has
this
shifted
the
way
that
you
do
life
in
helping
other
people
?
Speaker 2
37:31
Yeah
,
it's
shifted
my
mindset
a
lot
.
You
know
they
always
sort
of
say
that
like
when
you
go
through
trauma
,
you
know
you're
obviously
changed
and
I
felt
that
it
was
super
important
to
take
my
pain
and
turn
it
into
power
,
like
use
my
story
and
suffering
to
bring
awareness
and
to
practice
gratitude
.
I
know
that
sounds
like
cheesy
to
people
and
we've
all
like
seen
those
you
know
gratitude
signs
and
home
goods
or
TJ
.
Speaker 2
38:00
Maxx
yeah
,
it's
a
real
.
It's
a
real
thing
.
I
look
at
every
single
person
I
encounter
on
a
daily
basis
who's
a
stranger
and
there's
something
in
the
back
of
my
head
that
just
always
is
on
repeat
,
like
you
have
no
idea
what
they're
going
through
.
You
have
no
idea
you
know
what
trauma
they've
experienced
or
are
currently
experiencing
.
It's
given
me
a
perspective
because
of
not
looking
like
I'm
ill
really
made
me
think
deeply
about
just
how
you
never
really
truly
know
what
someone's
going
through
.
Speaker 2
38:38
And
so
therefore
,
I
treat
every
person
with
kindness
and
respect
,
because
of
that
so
it's
.
It's
created
a
certain
like
level
of
peace
and
kindness
inside
of
me
through
going
through
this
Just
a
level
of
understanding
and
just
1,000%
judgment
free
.
Speaker 1
38:56
Yeah
,
it's
crazy
how
an
angry
body
can
make
you
see
humanity
very
,
very
differently
.
It's
interesting
that
you
say
that
because
I
feel
like
I
have
been
more
educated
on
the
different
walks
of
life
,
the
different
kinds
of
people
that
encounter
different
struggles
,
and
looking
at
them
as
a
person
that
just
needs
more
understanding
and
love
as
opposed
to
judgment
.
I
think
that's
a
key
and
I
think
that
this
disease
,
as
weird
as
it
sounds
,
has
opened
my
eyes
to
a
lot
of
that
,
has
opened
my
eyes
to
the
traumas
others
face
and
has
opened
my
eyes
to
the
struggles
that
other
people
face
and
doesn't
allow
me
to
sit
back
and
be
blind
to
all
of
that
.
And
I
think
it
has
helped
grow
me
as
a
person
and
it's
helped
me
grow
my
purpose
I
don't
know
if
you've
experienced
that
as
well
Like
this
disease
has
grown
my
purpose
in
life
.
Speaker 2
39:54
Oh
,
100%
.
Speaker 2
39:56
It's
like
I
love
to
hear
you
say
that
,
because
at
this
point
I
have
been
a
hairstylist
and
makeup
artist
for
over
20
years
and
I'm
feeling
like
a
shift
in
what
direction
I
want
to
go
in
in
life
like
still
taking
care
of
people
and
helping
them
feel
good
about
themselves
,
but
on
a
different
level
now
than
just
like
surface
level
,
and
I
100%
know
what
a
privilege
it
is
that
I
have
had
access
to
care
.
I
100%
can
relate
to
the
person
who
is
dismissed
or
ignored
or
waits
hours
upon
hours
in
the
emergency
room
because
of
being
on
state
health
insurance
,
as
a
single
mom
was
on
state
assistance
and
the
treatment
that
I
received
was
so
poor
it
was
.
You
know
,
you're
completely
judged
and
it's
just
a
lack
of
empathy
and
understanding
.
And
I'm
a
white
woman
,
so
I
often
think
about
the
fact
that
I
live
within
close
proximity
to
New
York
,
so
therefore
,
you
know
I
could
take
a
train
and
go
see
a
specialist
.
I
have
a
certain
level
of
education
and
ability
to
research
and
educate
myself
and
find
good
resources
and
the
correct
information
.
Advocating for Endometriosis Awareness
Speaker 2
41:23
And
that's
not
always
the
case
.
I
think
that
there's
a
very
small
percentage
of
people
with
endometriosis
that
are
able
to
access
the
type
of
quality
and
the
level
of
care
that
is
needed
to
properly
remove
this
disease
.
And
,
having
essentially
been
on
both
sides
of
the
playing
field
,
I've
seen
the
treatment
that
you
get
from
a
top
endometriosis
specialist
.
I
see
that
care
.
I've
been
able
to
fight
health
insurance
to
receive
that
care
.
Speaker 1
41:56
But
not
everyone
can
do
that
.
Speaker 2
41:59
And
then
I've
also
been
left
in
waiting
rooms
and
been
accused
of
opioid
seeking
and
having
mental
health
issues
and
that
being
my
reason
,
and
when
I
had
state
health
insurance
,
I
was
lucky
enough
to
have
known
somebody
who
was
working
in
the
hospital
one
day
when
I
was
there
and
had
been
sitting
in
debilitating
blackout
pain
in
the
waiting
room
for
like
six
hours
,
and
my
mom
called
them
and
they
came
down
to
check
on
me
and
it
was
amazing
because
their
scrubs
were
a
certain
color
.
Speaker 2
42:34
It
identified
them
as
being
part
of
anesthesia
and
the
reaction
that
I
got
from
other
providers
when
that
person
spoke
to
me
was
wild
,
was
just
absolutely
wild
,
was
wild
,
it
was
just
absolutely
wild
.
And
I
immediately
was
taken
into
a
room
and
she
whispered
to
me
are
you
on
state
health
insurance
?
And
I
looked
at
her
and
I
said
no
,
I
said
I
was
.
I
said
but
I
have
private
insurance
now
and
she
goes
well
in
the
system
it
still
says
that
you
have
state
health
insurance
.
And
I
looked
at
her
and
I
was
like
state
health
insurance
?
And
I
looked
at
her
and
I
was
like
is
that
why
I
was
left
in
the
corner
for
six
hours
,
like
the
things
that
I
have
witnessed
,
seen
,
experienced
within
healthcare
,
with
having
this
disease
.
I
need
to
write
a
book
.
I
mean
,
it's
wild
the
mistreatment
that
people
get
and
,
like
I
said
,
I'm
a
white
woman
,
so
it's
crazy
.
Speaker 1
43:35
Yeah
,
absolutely
Absolutely
,
it
is
.
I've
said
this
before
I
live
in
a
very
predominantly
white
world
.
Where
I
live
,
there's
not
a
lot
of
diversity
,
although
it
is
changing
a
little
bit
.
Where
I
live
,
there's
not
a
lot
of
diversity
,
although
it
is
changing
a
little
bit
,
and
so
I
just
wasn't
aware
of
a
lot
of
it
because
I
am
not
exposed
to
a
lot
of
it
.
And
it
wasn't
until
I
started
doing
the
podcast
,
until
I
started
really
looking
into
endometriosis
advocacy
,
that
I
really
recognized
that
the
disparities
are
large
.
Speaker 1
44:04
When
it
comes
to
different
walks
of
life
,
different
races
,
different
ethnicities
,
all
of
it
,
belief
systems
,
religions
,
you
name
it
,
there
just
tends
to
be
a
lot
of
people
not
being
treated
like
people
,
and
that
bothered
me
so
much
.
So
I'm
glad
I'm
learning
Again
.
Having
a
chronic
illness
has
taught
me
a
lot
.
It's
taught
me
a
lot
about
life
.
It's
taught
me
a
lot
about
people
.
It's
taught
me
a
lot
about
myself
,
and
I
think
we
can
grow
and
build
off
of
our
experiences
and
off
of
our
knowledge
to
create
better
change
for
everyone
.
Speaker 1
44:43
And
you're
doing
a
great
job
at
not
sitting
down
and
being
silent
when
you
know
that
that's
not
within
you
.
You're
stepping
up
into
a
space
that
is
not
always
easy
to
be
vulnerable
on
.
It's
not
always
easy
to
walk
into
a
legislative
house
and
talk
about
things
.
It's
not
always
easy
to
speak
up
on
something
that's
controversial
,
and
you're
putting
yourself
in
that
position
to
do
so
with
a
greater
purpose
beyond
yourself
,
and
so
I
putting
yourself
in
that
position
to
do
so
with
a
greater
purpose
beyond
yourself
,
and
so
I
just
appreciate
you
doing
that
.
Speaker 2
45:13
Oh
,
thank
you
.
That
means
a
lot
.
And
you
know
,
I
have
to
say
there's
something
that
has
been
inside
me
since
I
was
a
little
girl
I
guess
I'll
say
some
sort
of
fire
,
this
little
fiery
piece
of
me
that
has
sort
of
always
spoken
up
or
been
outspoken
,
if
that's
how
people
want
to
refer
to
it
.
I
never
saw
the
difference
in
color
,
I
never
saw
the
difference
in
gender
.
Speaker 2
45:42
I
definitely
struggled
with
little
boys
when
I
was
a
little
girl
,
because
I
wasn't
gonna
just
stay
in
the
kitchen
or
stay
playing
with
the
dollhouse
,
like
I
thought
that
the
playing
field
was
level
,
and
I
started
to
notice
as
I
got
even
older
that
that
was
like
frowned
upon
and
that
there
was
pushback
from
men
and
women
because
there
was
something
in
me
that
was
different
and
that
was
opinionated
and
was
I'm
passionate
and
I
don't
really
know
how
else
to
be
.
I
guess
you
know
I'm
unapologetically
me
.
It
means
a
lot
to
hear
you
say
that
as
someone
who
just
met
me
but
can
see
that
and
appreciate
that
,
because
it's
literally
something
I
don't
think
.
Speaker 1
46:36
I
can
turn
off
.
Speaker 2
46:36
I
don't
want
to
turn
off
and
at
the
same
time
,
it
definitely
is
something
that's
always
been
in
the
back
of
my
head
in
terms
of
my
self-esteem
,
because
I've
gotten
a
lot
of
criticism
and
judgment
for
speaking
out
and
for
sharing
,
and
I
don't
really
understand
that
.
But
it
is
something
that
sort
of
comes
with
the
territory
,
I
think
,
when
you
step
outside
the
box
and
you
discuss
things
that
are
uncomfortable
.
Speaker 1
47:06
Yeah
,
it's
so
true
,
but
those
are
the
ones
that
make
the
biggest
impact
.
I'm
just
going
to
tell
you
that
you
know
when
you're
doing
advocacy
out
loud
,
if
you're
not
ruffling
feathers
,
are
we
changing
a
lot
?
I
?
Speaker 1
47:16
don't
know
you
don't
have
to
be
a
public
speaker
to
make
change
and
be
loud
.
You
don't
have
to
be
someone
that
is
vocal
,
even
on
social
media
,
to
be
loud
.
I'm
not
saying
that
that's
where
the
loudness
comes
.
It's
in
speaking
up
for
those
who
are
struggling
to
speak
for
themselves
because
they
are
in
so
much
pain
or
they're
not
in
a
position
to
do
so
.
To
create
that
change
,
you
have
to
be
able
to
speak
up
.
Speaker 2
47:42
Yeah
,
and
I
think
that
there
is
such
a
high
percentage
of
people
that
,
going
back
to
the
bias
and
the
inequalities
,
like
they
don't
have
that
ability
or
don't
have
that
personality
to
do
so
.
So
you
know
,
I'd
rather
take
being
told
that
I'm
too
much
or
I'm
dramatic
or
crazy
I'll
accept
it
,
but
I'd
rather
hear
all
those
things
and
continue
to
do
whatever
it
is
that
I'm
doing
,
because
there
are
a
fraction
,
a
very
small
percentage
of
us
who
do
have
the
ability
to
do
this
and
I
think
if
we
all
continue
to
share
that
and
use
that
little
fire
inside
of
us
,
that
change
will
occur
in
being
validated
and
being
seen
,
and
everything
else
is
just
impactful
.
Speaker 1
48:35
So
I'm
excited
to
see
what
comes
in
the
future
and
what
your
passions
drive
you
to
do
,
because
I
think
that
it's
going
to
be
something
very
great
.
I
think
you
have
a
lot
of
really
big
moving
greatness
particles
in
you
.
Hopefully
not
full
of
endo
.
I'm
just
saying
that
.
I'm
just
going
to
put
that
out
there
right
now
.
Full
of
endo
.
Speaker 1
49:10
I'm
just
saying
that
I'm
just
gonna
put
that
out
there
right
now
.
All
good
,
all
good
,
healthy
cells
exactly
,
and
as
soon
as
we
all
figure
out
the
hormone
replacement
aspect
of
it
and
how
to
live
without
those
will
be
golden
exactly
exactly
it's
real
it's
.
Speaker 2
49:22
It's
interesting
how
much
menopause
and
endometriosis
like
parallel
oh
yeah
you
.
Speaker 2
49:28
You
know
,
both
understudied
,
under-researched
,
underfunded
,
both
debilitating
.
They
both
affect
quality
of
life
,
they
affect
your
work
,
your
relationship
.
Like
the
statistics
are
probably
the
same
in
a
lot
of
places
,
except
everyone's
going
to
go
through
it
,
versus
like
one
in
nine
or
one
in
10
.
And
I
wouldn't
be
surprised
if
that
statistic
drops
to
like
one
in
five
after
some
research
and
education
is
actually
done
.
But
yeah
,
I
think
that
I
have
a
lot
of
ideas
I
have
.
My
brain
is
swirling
with
thoughts
and
actions
that
I
want
to
take
and
things
I
want
to
push
on
.
I've
recently
had
to
sort
of
take
a
little
bit
of
a
step
back
from
social
media
.
I
had
been
posting
about
my
last
surgery
and
,
you
know
,
sometimes
I
feel
like
there's
so
many
things
I
want
to
say
and
social
media
tells
you
like
not
to
do
that
,
you
know
like
post
at
a
certain
time
and
make
sure
you
share
like
a
story
and
a
reel
about
your
posts
,
and
I
am
just
not
very
savvy
when
it
comes
to
that
.
Speaker 2
50:34
It's
a
full
time
job
.
Yes
,
I
don't
have
time
for
,
but
I
do
have
to
sometimes
take
a
step
back
,
but
at
the
same
time
,
I
also
recognize
how
important
it
is
to
take
time
for
myself
.
And
there's
nobody
out
there
that's
expecting
anything
of
me
,
that
this
isn't
a
paid
gig
.
This
is
me
sharing
my
story
,
but
I
do
have
a
lot
more
thoughts
and
a
lot
more
passion
and
drive
and
things
to
share
.
It's
just
a
matter
of
collecting
it
all
and
not
getting
too
caught
up
in
the
social
media
world
of
endometriosis
.
Speaker 1
51:11
I
completely
get
that
,
and
sometimes
we
have
to
step
back
and
rejuvenate
our
souls
and
rejuvenate
our
energy
,
because
it's
exhausting
to
do
advocacy
,
it's
exhausting
to
put
yourself
out
there
constantly
,
and
I
think
that
the
impact
that
we
have
when
we're
rested
and
we're
ready
and
we've
got
a
fire
in
us
to
go
is
much
greater
than
the
weary
,
and
so
I
think
that's
important
for
me
to
hear
and
to
take
hold
of
as
well
.
I
think
all
of
us
do
.
We
need
to
step
back
sometimes
and
take
a
breath
,
and
that's
OK
,
I
think
it's
warranted
,
and
we
come
back
with
more
fire
in
our
bellies
and
ready
to
go
and
ready
to
continue
our
fight
against
this
disease
and
creating
better
care
for
everyone
with
it
.
So
thank
you
,
arlie
,
for
just
taking
the
time
,
for
being
vulnerable
and
opening
up
to
us
and
sitting
at
the
table
with
me
and
just
allowing
people
to
join
us
.
So
thank
you
so
much
for
doing
that
and
joining
me
today
.
Speaker 2
52:07
Thank
you
so
much
for
inviting
me
to
your
table
.
Speaker 1
52:10
You're
welcome
Anytime
.
I
want
to
take
the
time
to
thank
our
powerhouse
sponsor
for
this
episode
of
endobattery
wellbeing
pelvic
physical
therapy
.
If
you
want
to
learn
more
about
their
mission
,
go
to
wellbeing
physical
therapycom
.
Thank
you
for
tuning
in
today
.
If
you
found
value
in
today's
conversation
,
be
sure
to
subscribe
,
leave
a
review
and
share
this
episode
with
others
who
may
benefit
.
Until
next
time
,
continue
advocating
for
you
and
for
those
that
you
love
.