QC:How Common is Thoracic Endo and Is It Different in Teens?

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QC:How Common is Thoracic Endo and Is It Different in Teens?
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Thoracic endometriosis is likely more common than we think, and we’re only seeing “the tip of the iceberg” according to thoracic surgeon Dr. Francesco Di Chiara, who specializes in minimally invasive chest surgery at Oxford’s John Radcliffe Hospital.

• Most patients wait 7-8 years for endometriosis diagnosis, then additional years before seeing a thoracic specialist
• Current patients typically arrive in their 30s with pre-existing endometriosis diagnosis from gynecologists
• Dr. Di Chiara envisions a future where adolescents with chest symptoms would see thoracic specialists first
• Surgery for thoracic endometriosis in younger patients may actually be safer than in older adults
• The main surgical risks relate to age-related heart and lung diseases, not present in teens and young adults
• Healthcare coverage for thoracic endometriosis remains “patchy” across countries including the UK’s NHS
• Work is ongoing with NHS England to create a unified network for complex endometriosis care

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Introduction to Quick Connect

Speaker 1
0:00

Life

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I'm

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host
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alana
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and

it's

time

to

connect
.

Dr. Di Chiara: Thoracic Surgery Expert

Speaker 1
0:51

Today

I

am

joined

by

my

guest
,

dr

Francesco

Di

Chiara
,

a

leading

consultant

thoracic

surgeon

at

the

John

Radcliffe

Hospital

in

Oxford

and

a

true

pioneer

in

minimally

invasive

chest

surgery
.

Renowned

internationally

for

developing

and

refining

cutting

edge

techniques
,

including

groundbreaking

single

incision

procedure

for

thoracic

outlet

syndrome
,

dr

D

Chiara

is

transforming

the

way

we

approach

complex

thoracic

conditions
,

with

deep

expertise

in

lung

cancer
,

chest

wall

trauma

and

rare

disorders

like

thoracic

endometriosis
.

He's

not

only

a

gifted

surgeon
,

but

also

a

passionate

educator

and

an

innovator
.

I

am

thrilled

to

be

diving

into

this

conversation

with

someone

who

is

shaping

the

future

for

thoracic

endometriosis
.

Please

help

me

in

welcoming

Dr

Francesco

How Common Is Thoracic Endometriosis?

Speaker 1
1:31

Di

Chiara
.

How

rare

or

how

common

is

thoracic

endometriosis
?

Speaker 2
1:37

That's

the

bit

I

want

to

find

out

because

I

really

don't

believe

it's

rare
.

I

think

we're

just

seeing

the

tip

of

the

iceberg
.

We

are

seeing

the

patient

that

not

only

managed

to

go

seven
,

eight

years

to

be

diagnosed

with

endometriosis

but

then

also

another

few
,

several

years

to

get

to

see

a

thrust
,

especially

that

can

be

the

diagnosis
.

So

you're

seeing

a

fraction

of

the

fraction
.

For

example
,

all

my

patients

now

come

before

through

the

gynecologist

with

already

diagnosis

of

endometriosis
.

I

think

the

future

will

be

I

see

adolescents

that

has

a

death

first

symptoms

and

the

first

especially

they

see

somebody

with

thoracic

endometriosis
.

Now

I'm

seeing

patients

that

are

30

plus

symptoms

and

the

first

especially

they

see

somebody

for

thoracic

endometriosis
.

Now

I

see

in

patients

they

are

30

plus

and

they

already

have

diagnosis

of

endometriosis
.

Surgical Risks for Young Patients

Speaker 1
2:32

Is

there

risk

in

doing

thoracic

surgery

for

endometriosis

on

teens
?

Speaker 2
2:44

And

is

there

more

risk

of

it

coming

back

because

they

are

so

young
?

No-transcript

for

the

pelvis

seems

to

have

good

results

and

increased

quality

of

life
,

and

although

we

don't

have

the

numbers

and

the

data

to

support

this

claim

on

drastic

endometriosis
,

it

seems

intuitive

that

the

same

logic

you

apply

to

the

pelvis

you

should

apply

to

the

chest
.

So

actually

you

should

improve

the

quality

of

life
.

Speaker 1
3:08

Is

there

more

risk

associated

because

they

are

so

young
,

with

more

adverse

outcomes
?

Speaker 2
3:16

I

would

say

actually

it's

safer

because

the

main

risk

of

thoracic

surgery

is

related

to

aging

heart

disease

and

lung

diseases
,

which

are

basically

non-prevalent

Healthcare Coverage and Access Issues

Speaker 2
3:30

at

all

in

teens

and

young

adults
.

So

it's

generally

considered

safe

for

operating

younger

individuals
.

Speaker 1
3:39

Have

you

seen

a

shift

in

the

way

that

and

of

course

this

is

going

to

be

different

from

country

to

country

because

with

the

US

insurance

may

or

may

not

cover

it

if

they

see

it

on

the

heart
.

Are

you

noticing

over

in

the

UK

that

they're

taking

that

more

seriously

in

that

healthcare

system

for

those

in

the

public

health

system

to

get

better

help
?

Speaker 2
4:01

So

when

it

comes

to

provision

of

a

complex

endometriosis

care

in

the

UK
,

I

think

it's

a

work

in

progress

in

the

NHS
,

in

the

public

health

system
,

and

we

are

debating

as

we

speak

with

NHS

England

to

create

a

network
,

but

the

provision

is

quite

patchy

across

the

country
.

There's

not

a

definite

unified

program
.

Speaker 1
4:31

It's

probably

worldwide

yeah
.

Speaker 2
4:33

Yeah
,

it's

tricky

to
?

Speaker 1
4:34

Yeah
,

yeah
,

it's

tricky

to

get

surgery

good

surgeries

covered
,

but

does

the

severity

dictate

how

it

can

be

covered

across

the

board
?

And

I

don't

think

that

that's

an

easy

answer

for

anyone

Episode Closing and Contact Information

Speaker 1
4:47

to

answer
.

So

that's

a

wrap

for

this

quick

connect
.

I

hope

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insights

helped

you

move

forward

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more

clarity

and

confidence
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