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Thoracic endometriosis is likely more common than we think, and we’re only seeing “the tip of the iceberg” according to thoracic surgeon Dr. Francesco Di Chiara, who specializes in minimally invasive chest surgery at Oxford’s John Radcliffe Hospital.
• Most patients wait 7-8 years for endometriosis diagnosis, then additional years before seeing a thoracic specialist
• Current patients typically arrive in their 30s with pre-existing endometriosis diagnosis from gynecologists
• Dr. Di Chiara envisions a future where adolescents with chest symptoms would see thoracic specialists first
• Surgery for thoracic endometriosis in younger patients may actually be safer than in older adults
• The main surgical risks relate to age-related heart and lung diseases, not present in teens and young adults
• Healthcare coverage for thoracic endometriosis remains “patchy” across countries including the UK’s NHS
• Work is ongoing with NHS England to create a unified network for complex endometriosis care
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Introduction to Quick Connect
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0:00
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Dr. Di Chiara: Thoracic Surgery Expert
Speaker 1
0:51
Today
I
am
joined
by
my
guest
,
dr
Francesco
Di
Chiara
,
a
leading
consultant
thoracic
surgeon
at
the
John
Radcliffe
Hospital
in
Oxford
and
a
true
pioneer
in
minimally
invasive
chest
surgery
.
Renowned
internationally
for
developing
and
refining
cutting
edge
techniques
,
including
groundbreaking
single
incision
procedure
for
thoracic
outlet
syndrome
,
dr
D
Chiara
is
transforming
the
way
we
approach
complex
thoracic
conditions
,
with
deep
expertise
in
lung
cancer
,
chest
wall
trauma
and
rare
disorders
like
thoracic
endometriosis
.
He's
not
only
a
gifted
surgeon
,
but
also
a
passionate
educator
and
an
innovator
.
I
am
thrilled
to
be
diving
into
this
conversation
with
someone
who
is
shaping
the
future
for
thoracic
endometriosis
.
Please
help
me
in
welcoming
Dr
Francesco
How Common Is Thoracic Endometriosis?
Speaker 1
1:31
Di
Chiara
.
How
rare
or
how
common
is
thoracic
endometriosis
?
Speaker 2
1:37
That's
the
bit
I
want
to
find
out
because
I
really
don't
believe
it's
rare
.
I
think
we're
just
seeing
the
tip
of
the
iceberg
.
We
are
seeing
the
patient
that
not
only
managed
to
go
seven
,
eight
years
to
be
diagnosed
with
endometriosis
but
then
also
another
few
,
several
years
to
get
to
see
a
thrust
,
especially
that
can
be
the
diagnosis
.
So
you're
seeing
a
fraction
of
the
fraction
.
For
example
,
all
my
patients
now
come
before
through
the
gynecologist
with
already
diagnosis
of
endometriosis
.
I
think
the
future
will
be
I
see
adolescents
that
has
a
death
first
symptoms
and
the
first
especially
they
see
somebody
with
thoracic
endometriosis
.
Now
I'm
seeing
patients
that
are
30
plus
symptoms
and
the
first
especially
they
see
somebody
for
thoracic
endometriosis
.
Now
I
see
in
patients
they
are
30
plus
and
they
already
have
diagnosis
of
endometriosis
.
Surgical Risks for Young Patients
Speaker 1
2:32
Is
there
risk
in
doing
thoracic
surgery
for
endometriosis
on
teens
?
Speaker 2
2:44
And
is
there
more
risk
of
it
coming
back
because
they
are
so
young
?
No-transcript
for
the
pelvis
seems
to
have
good
results
and
increased
quality
of
life
,
and
although
we
don't
have
the
numbers
and
the
data
to
support
this
claim
on
drastic
endometriosis
,
it
seems
intuitive
that
the
same
logic
you
apply
to
the
pelvis
you
should
apply
to
the
chest
.
So
actually
you
should
improve
the
quality
of
life
.
Speaker 1
3:08
Is
there
more
risk
associated
because
they
are
so
young
,
with
more
adverse
outcomes
?
Speaker 2
3:16
I
would
say
actually
it's
safer
because
the
main
risk
of
thoracic
surgery
is
related
to
aging
heart
disease
and
lung
diseases
,
which
are
basically
non-prevalent
Healthcare Coverage and Access Issues
Speaker 2
3:30
at
all
in
teens
and
young
adults
.
So
it's
generally
considered
safe
for
operating
younger
individuals
.
Speaker 1
3:39
Have
you
seen
a
shift
in
the
way
that
and
of
course
this
is
going
to
be
different
from
country
to
country
because
with
the
US
insurance
may
or
may
not
cover
it
if
they
see
it
on
the
heart
.
Are
you
noticing
over
in
the
UK
that
they're
taking
that
more
seriously
in
that
healthcare
system
for
those
in
the
public
health
system
to
get
better
help
?
Speaker 2
4:01
So
when
it
comes
to
provision
of
a
complex
endometriosis
care
in
the
UK
,
I
think
it's
a
work
in
progress
in
the
NHS
,
in
the
public
health
system
,
and
we
are
debating
as
we
speak
with
NHS
England
to
create
a
network
,
but
the
provision
is
quite
patchy
across
the
country
.
There's
not
a
definite
unified
program
.
Speaker 1
4:31
It's
probably
worldwide
yeah
.
Speaker 2
4:33
Yeah
,
it's
tricky
to
?
Speaker 1
4:34
Yeah
,
yeah
,
it's
tricky
to
get
surgery
good
surgeries
covered
,
but
does
the
severity
dictate
how
it
can
be
covered
across
the
board
?
And
I
don't
think
that
that's
an
easy
answer
for
anyone
Episode Closing and Contact Information
Speaker 1
4:47
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answer
.
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.
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