Pt. 2 with Dr. Abhishek Mangeshikar: The Silent Struggle of Endometriosis A Global Insight into Patient Care

The First Podcast
The First Podcast
Pt. 2 with Dr. Abhishek Mangeshikar: The Silent Struggle of Endometriosis A Global Insight into Patient Care
Loading
/

Send us a text with a question or thought on this episode ( We cannot replay from this link)

Discover the harrowing yet hopeful journey through the maze of endometriosis and adenomyosis care with our guest expert Dr. Abhishek Mangeshikar. Experience the solidarity of shared struggles as we dissect the arduous path to an accurate diagnosis and the potential pitfalls of repeated surgical endeavors. Dr. Mangeshikars insights highlight the indispensability of multidisciplinary teams and the promise of alternative therapies in the chronic pain battleground. We also confront the daunting specter of disease recurrence and weigh the long-term consequences of hormonal suppression therapies, while pondering their apparent overuse in certain healthcare systems. It’s a dialogue that not only empathizes with the fears and frustrations but also emboldens listeners with expert knowledge and strategies for navigating the complex healthcare landscape of these pervasive conditions.

Embark on a global odyssey of endometriosis management with us as we compare how cultural and demographic factors shape the diagnosis and treatment across the world. Dr. Mangeshikar and I investigate the significance of early detection and the role it plays in constructing effective treatment plans, including the potential enlightenment an international study might offer. Delving into the heart of healthcare disparities, this episode offers a critical look at the research hurdles faced by private practitioners and the imperative for adaptable treatment blueprints. Listen as we shed light on the French approach to centralized data collection and what it could mean for the progression of endometriosis care. It’s an episode brimming with revelations that empower patients and practitioners alike to forge a path toward more comprehensive and personalized healthcare.

Support the show

Website endobattery.com

Instagram: EndoBattery

Understanding Endometriosis and Adenomyosis Care

Speaker 1
0:03

Welcome

to

EndoBattery
,

where

I

share

about

my

endometriosis

and

adenomyosis

story

and

continue

learning

along

the

way
.

This

podcast

is

not

a

substitute

for

professional

medical

advice

or

diagnosis
,

but

a

place

to

equip

you

with

information

and

a

sense

of

community
,

ensuring

you

never

have

to

face

this

journey

alone
.

Join

me

as

I

navigate

the

ups

and

downs

and

share

stories

of

strength
,

resilience

and

hope
.

While

navigating

the

world

of

endometriosis

and

adenomyosis
,

from

personal

experience

to

expert

insights
,

I'm

your

host
,

alana
,

and

this

is

EndoBattery

charging

our

lives

when

endometriosis

drains

us
.

Welcome

back

to

EndoBattery
,

grab

your

cup

of

coffee

or

your

cup

of

tea

and

join

me

at

the

table

as

we

continue

with

our

guest
,

dr

Abhishek

Mingashakar
.

The

first

part

of

this

episode

left

us

with

a

lot

of

thought-provoking

conversation
.

If

you

haven't

already
,

I'd

go

back

and

listen

to

part

one
,

but

this

is

where

we

left

off

and

where

we're

going
.

Speaker 2
1:01

One

of

the

things

you

brought

up

was

my

biggest

personal

grouse

with

the

diseases

is

that

the

onus

to

get

the

diagnosis

has

fallen

onto

the

patient
,

which

shouldn't

be

the

case
.

They

should

be

getting

the

diagnosis

a

lot

sooner

and

a

lot

more

clearly

and

accurately

than

they

do

currently
.

There's

too

many

patients

that

fall

through

the

gaps

in

the

systems

due

to

lack

of

access

of

care

or

even

just

lack

of

awareness

among

the

medical

community
.

That

is

causing

a

lot

of

problems
.

My

biggest

problem

is

patients

who

have

not

the

ones

who

have

severe

disease
,

but

who've

had

multiple

failed

surgeries

and

then

we

have

to

do

a

surgery
.

It

makes

life

a

lot

more

difficult

and

a

lot

more

complex
,

but

what

was

already

complex

surgery

in

the

first

place

is

just

adding

to

the

levels

of

complexity

on

this
.

Exudate

on

this
.

Now
,

the

second

part

was

when

you

have

access

to

care

among

the

patient

population
.

You're

right
.

Speaker 2
2:18

As

an

endometriosis

specialist
,

I

can't

diagnose

EDS
,

I

can't

treat

it
.

So

I

think

another

point

we

need

to

is

we

need

teams
,

so

multidisciplinary

teams
,

not

just

for

surgery

but

also

to

treat

other

conditions

that

coexist

with

endometriosis

patients
,

to

treat

those

symptoms

and

conditions

as

well
.

So

rheumatology

is

a

good

start
.

Chronic

pain

specialists

are

very

useful

and

if

you

want

to

go

down

the

road

of

alternative

therapies
,

I

think

those

can

be

tried
.

I

don't

know

how

much

evidence

we

have

for

them
,

but

there

is

some

coming

about
.

There

are

some

publications

that

speak

to

it
.

I

personally

don't

have

any

experience

with

it
,

but

I

don't

dissuade

anyone

from

trying

it

if

they

want

to

and

it

gives

them

relief
.

Speaker 1
3:07

Right

Bottom

line

is

that

we

all

want

symptomatic

relief
.

It's

just

managing

how

to

get

there

and

I

have

to

say

I

told

you

this

is

going

to

be

everywhere
.

This

podcast

is

not

my

typical

podcast
,

but

it's

because

I

could

pick

your

brain

for

days

and

still

learn

a

ton
.

Speaker 2
3:24

I

wouldn't

have

that

much

to
.

Speaker 1
3:25

So

it's

probably

fair
.

But

you

know
,

part

of

this

too

is

like

understanding

the

steps

of

the

disease
.

So

many

of

us

live

with

this

disease

for

years

and

years

and

years
.

We

get

surgery
,

we

get

proper

treatment

and

we

still

struggle

with

muscular

skeletal

issues

and

this

all

can

correlate

right
.

But

then

we

feel

like
,

oh
,

maybe

my

endometriosis

is

back
.

We

hear

this

a

lot
.

Right
,

we

hear
,

well
,

I

had

to

have

another

surgery

because

of

the

endometriosis

but

they

didn't

find

anything
.

And

this

is

where

it

gets

tricky
,

because

then

that

leaves

the

patient

in

limbo

to

figure

out

what

comes

next
.

Is

it

pelvic

floor

PT
,

or

is

it

that

you

have

to

work

with

a

trainer
,

or

is

it

so

there's

other

modalities
?

Are

we

seeing

I

don't

know

if

this

is

relevant

or

not
,

but

are

you

seeing

a

prevalence

in

people

who

feel

like

they

have

reoccurrence

of

endometriosis

in

certain

parts

of

the

world

over

others
?

I

don't

know

if

that

makes

any

sense
,

but

does

that

make

sense
?

Speaker 2
4:39

No
,

it

makes

perfect

sense
.

So

I

think

the

biggest

fear

that

I've

seen

in

my

patients

is

that

they're

worried

about

their

disease

coming

back
.

So
,

years

after

surgery
,

if

there's

any

pain

that

comes

in
,

the

first

thought

the

brain

jumps

to

is

that

oh
,

my

endo

is

back
,

because

that's

the

thing

they

don't

want

to

go

through

again
.

Furthermore
,

speaking

of

musculoskeletal

issues
,

I

see

a

lot

of

iatrogenic

musculoskeletal

disease

which

is

secondary

to

years

and

years

of

hormonal

suppression
,

which

has

kind

of

led

to

osteoporosis
,

lupron

and

GnRH

agonists
,

and

at

the

age

of

26
,

they

have

osteopenia

and

early

onset

arthritis
.

This

is

not

a

disease

they

were

born

with
.

Speaker 2
5:31

This

is

a

disease

that

has

been

given

to

them

by

years

of

these

drugs
,

so

that

is

something

that

really

does

need

to

be

addressed
.

We

do

need

to

understand

the

consequences

of

long-term

administration

of

these

drugs

in

the

medical

community
.

The

pharmacologic

companies

take

no

responsibility

in

educating

it
.

They

say

just

give

this

to

the

patient
,

she'll

be

asymptomatic

and

she'll

be

fine
.

And

then

you

see

down

the

line
,

you

see

these

conditions

cropping

up

very

frequently

nowadays
.

So

I

think

that

is

one

of

the

biggest

problems
.

Speaker 1
6:06

And

I

think

this

is

a

good

point

to

bring

up
,

because

with

these

GnRH

drugs

are

they

more

accessible

in

other

parts

of

the

country
.

So

we're

seeing

more

of

the

muscular

skeletal

problems

in

certain

parts

of

the

world

as

opposed

to

others
.

Because

this

is

a

question

I've

had

for

a

while

now

is

you

know
,

in

America

we

have

access

to

a

lot

and

in

fact

that

is

their

primary

go-to

for

any

care

treatment

in

the

general

OBGYN

arena
.

So

for

us
,

like

I

feel

like

we're

seeing

more

and

more

people

continue

to

have

pain

post-excision

and

jump

to

reoccurrence
,

when

actually

it's

not

reoccurrence
,

it's

because

of

these

drugs
.

Is

it

more

prevalent

in

countries

like

America
,

or

are

we

seeing

this

worldwide
?

Speaker 2
6:53

So

when

we

speak

to

recurrence

we

have

to

talk

about

whether

it's

true

recurrence
,

whether

there's

disease

that

was

maybe

not

completely

removed
,

that's

continued

to

grow
,

that

was

maybe

not

completely

removed
,

that's

continued

to

grow
,

that's

growing

now
,

or

microscopic

disease

that's

you

know
,

progressed

or

you

know
.

Or

whether

it's

persistence

of

disease
,

where

somebody

had

a

big

nodule

in

the

bowel

and

they

had

two

or

three

cysts

removed

and

they

still

have

disease

in

the

bowel

obviously
.

So

that's

not

a

recurrence
,

that's

persistence

of

disease
.

It's

like

I

tell

someone

you

know
,

if

you

have

appendicitis

and

somebody

removes

your

uterus
,

you

still

have

appendicitis

at

the

end

of

the

day
.

So

if

you

have

disease

in

the

rectum

and

you

remove

your

uterus

or

your

ovaries
,

you're

still

going

to

have

disease

in

the

rectum
.

So

it's

more

about

making

the

diagnosis

completely

and

removing

the

disease
.

Endometriosis Treatment and Recurrence Rates

Speaker 2
7:42

So

when

you

look

at

general

recurrence

rates

reported

by

ACOG

back

in

the

day
,

they

were

50

to

80%
.

Okay
,

when

ablation

was

standard

of

care
.

But

when

you

zoomed

in

the

microscope

onto

endometriosis

centers

the

recurrence

rates

dropped
.

So

the

recurrence

rates

for

endometriomas

were

10

to

15%
.

The

recurrence

rates

for

bowel

endometriosis

if

you

had

a

resection
,

the

recurrence

rate

was

0.5%
.

If

you

had

a

disc

excision

it

was

1%
.

If

you

were

shaving

it

was

about

6%

because

you

leave

some

degree

of

fibrosis

behind
,

and

for

deep

endometriosis

it's

between

3%

to

5%
,

so

in

the

pelvic

side

wall

and

the

uterine

sacral
.

Speaker 2
8:26

So

very

low

recurrence

rates

compared

to

50

to

80%
.

So

that

is

where

we

need

to

define

standard

of

care

to

differentiate

between

true

recurrence

and

persistence

of

disease
.

And

when

I

look

at

my

patient

population

that

I

follow

up

with
,

I

see

most

re-operations

would

primarily

happen

due

to

adenomyosis
,

at

the

most
.

Of

course

there

are

some

who

have
.

I

can

remember

very

specific

cases

at

the

top

of

my

head

that

had

a

recurrence

in

the

bowel
,

but

very

low

recurrence

rate

compared

to

if

adenomyosis

progresses

and

becomes

symptomatic

and

then

they

need

treatment

for

that
,

which

is

a

much

more

difficult

disease

to

treat

than

endometriosis
,

because

your

options

are

kind

of

limited

and

also

when

you

have

cysts
,

cysts

tend

to

have

a

slightly

higher

recurrence

rate

and

not

all

recurrence

cysts

need

reoperation

unless

they

become

very

large

or

very

symptomatic
.

Speaker 1
9:33

Is

this

prevalent

worldwide

in

your

experience
?

Because
,

culturally
,

I

mean
,

I

feel

like

we

are

a

culture

here

in

America

that

we

want

everything

accessible
.

I

don't

know

if

that's

true

everywhere
,

but

here

it

is
,

and

so

we'll

take

anything

we

can

to

alleviate

symptoms
,

and

that's

what's

accessible
.

Are

these

drugs
?

So

when

you're

looking

in

Asia

and

other

parts

of

the

world
,

are

you

seeing

the

same

trend

with

muscular

skeletal

issues

postoperatively
?

Speaker 2
10:02

Yes
,

speaking

about

the

drugs
,

when

you

look

at

OBGYN

in

general
,

there's

a

tremendous

reluctance

to

do

surgery

for

the

disease
.

Fair

enough
,

it's

a

very

difficult

surgery

to

do

surgery

for

the

disease
.

Fair

enough
,

it's

a

very

difficult

surgery

to

do
.

Very

few

people

can

do

it

and

even

fewer

can

do

it

successfully
.

So

why

upskill

when

you

can
?

You

know

medicate

Because

the

belief

is

that

if

they

keep

the

patient

on

suppression
,

the

patient's

not

going

to

bother

them

with

symptoms
,

right
.

So

they

say

I'm

in

pain
,

do

something
.

Speaker 2
10:39

And

now
,

suppression

doesn't

work

for

everyone

and

but

if

somebody

is

put

on

suppression
,

say

60

of

the

time

they

will

have

some

resolution

of

symptoms

and

I

mean

only

symptoms
,

not

resolution

of

disease
.

So

but

they

don't

understand

the

downfall

because

this

delays

your

diagnosis
,

this

delays

treatment
.

Just

because

there's

a

down

regulation

of

symptoms

doesn't

mean

that

there

is

a

cessation

in

the

progression

of

the

disease
.

The

disease

can

still

grow

in

the

absence

of

symptoms
.

It

can

still

go

and

cause

a

block

in

the

ure
.

The

disease

can

still

grow

in

the

absence

of

symptoms
.

It

can

still

go

and

cause

a

block

in

the

ureter

which

can

cause

the

kidney

to

fail
.

It

can

go

and

cause

an

obstruction

in

the

bowel

that

can

lead

to

an

intestinal

obstruction

which

can

be

life-threatening
.

So

in

those

cases

it's

very

important

to

have

that

diagnosis

before

prescribing

medical

therapy
,

because

you're

kind

of

endangering

somebody's

life

when

you're

doing

that
.

Speaker 2
11:35

If

you're

allowing

an

obstruction

of

the

ureter

to

turn

into

kidney

failure
,

if

you're

allowing

a

bowel

nodule

to

turn

into

an

obstructive

lesion
,

you're

you

know
,

if

you

go

into

intestinal

obstruction

it's

life-threatening
.

Then

you

need

big

emergency

surgery

and

usually

in

the

casualty

of

the

A&E

they're

not

going

to

do

a

laparoscopy
,

they're

going

to

do

a

big

open

surgery

and

do

a

resection

of

the

bowel

and

say
,

okay
,

at

least

it's

not

cancer
.

So

those

are

true

stories

that

have

happened

to

patients

and

then
,

like

I

said
,

there

needs

to

be

more

awareness
,

more

awareness
.

But

there

is

a

big

uh

that

between
,

especially
,

fertility

specialists

and

uh

endometriosis

surgeons
,

where

they're

more
.

They're

like
,

okay
,

we'll

get

the

patient

pregnant
,

but

we

won't

treat

the

disease
.

So

that's

how

it

works
.

Speaker 1
12:25

Which

is

interesting

to

think

about
,

because

and

correct

me

if

I'm

wrong

if

you

were

to

take

a

drug
,

say

Lupron
,

it

does

affect

your

fertility
,

but

it

doesn't

treat

the

disease
,

Am

I
?

Right

in

that

assumption
,

like

the

ovarian

reserve

can

be

diminished

because

of

this
,

or

is

that

completely

anecdotal
?

Speaker 2
12:44

So

estrogen

levels
.

So

the

Lupron

is

a

GnRH

drug

anode

that

acts

on

the

levels

of

the

brain
,

so

it

goes

and

competes

with

estrogen

receptors
,

so

it

drops

estrogen

levels
.

And

there

are

a

lot

of

studies

and

I

think

Dr

David

Rudwine

showed

that

there's

no

great

recovery

of

estrogen

levels

even

after

cessation

of

Lupron

therapy

and

they

suppressed

that

data

as

well
.

There

are

protocols

in

fertility

treatments

where

they

give

short

doses

of

GnRH

agonists

to

downregulate

the

ovaries

and

once

that

effect

goes

off

the

ovaries

overproduce

so

you

get

more

of

a

response

to

produce

AIDS
.

So

that's

why

they

use

those

drugs

and

it

also

for

them
.

It's

symptomatic

relief

for

the

patient

and

it

downregulates
,

so

it

fulfills

their

purpose

for

the

upcoming

IVF

cycle
.

Speaker 1
13:43

I

told

you

this

episode

is

going

to

be

random
.

We're

everywhere

today
,

but

it's

all

good
.

I

feel

like

I'm

sitting

down

and

just

getting

the

answers

that

I

have

had

brewing

in

my

brain

for

a

really

long

time
.

So

thanks

for

joining

this

train

with

me

of

crazy

and

answering

a

lot

of

those

questions
,

because

I

think

it's

relevant

and

I

think

these

are

questions

that

I

hear

all

the

time

from

patients

who

are

walking

through

this

journey
,

not

so

much

on

like

the

anecdotal

part

of

like

worldwide

endometriosis

and

persistence

of

disease

and

things

like

that
,

but

that's

curiosity

on

my

part
.

Speaker 1
14:23

It

is

important

to

just

kind

of

note

that

it

doesn't

really

matter

where

you

are

in

the

world
,

what

diet

or

environment

you're

Global Perspectives on Endometriosis Care

Speaker 1
14:31

in
.

Endometriosis

is

endometriosis
.

It's

invasive

at

its

core

and

you're

going

to

have

to

figure

out

care

and

treatment
,

which

is

what

really

is

the

hard

part
,

or

a

diagnosis

actually
,

for

that

matter
.

Diagnosis

is

probably

the

hardest

part

to

get

for

a

lot

of

people
,

but

I've

always

just

questioned

that

the

relationship

between

cultures

and

demographics

and

endometriosis
.

So

that

answered

that
.

Thank

you

for

that
.

That's

good
,

anecdotally
,

of

course
,

but

also

just

to

talk

about

the

different

care

and

treatment

that

people

get

around

the

world
.

I

think

that

we

talked

about

this

a

lot

at

the

summit
.

Actually
,

it's

a

topic

of

conversation

that

I

think

we

need

to

continue

having

about

endometriosis

and

getting

people

worldwide

better

care

and

diagnosis
.

Speaker 2
15:16

Dr

Mosbrocker

was

saying

it's

very

interesting

because

she's

had

a

couple

of

patients

of

Indian

origin

that

she

treated

and

she's

noticed

certain

phenotypes
.

She

was

asking

me

what

my

experience

was

and

I

said

you

know
,

it

would

be

a

very

interesting

study

to

have

specialists

from

different

parts

of

the

world

compare

their

patient

population

and

see

where

they

primarily

have

disease

and

if

there

are

any
,

you

know

geographic

trends

of

whether
,

say
,

bowel

endometriosis

or

ovarian

endometriosis

or
,

you

know
,

diaphragm

or

thoracic

endometriosis
.

So

I

think

that

would

be

a

very

interesting

study

to

put

together

from

different

centers

and

it

would

take

a

lot

of

work

and

coordination

among

different

centers
.

Speaker 1
16:04

It

would
.

But

I

mean
,

I

think

to

that

point

too

it

would

be

interesting

and

I

think

it

would

probably

be

beneficial

long

term
.

But

it's

also

that's

kind

of

putting

the

cart

before

the

horse
.

We
,

we

first

have

to

get

people

diagnosed

at

an

earlier

stage
.

Speaker 2
16:20

I

think

that's

going

to

be

key

in

understanding

that

portion

of

the

disease

diagnosis

is

a

very

interesting

topic

because

there

is

a

movement

in

some

of

the

countries

where

they're

banding

a

hashtag

that

diagnosis

is

therapy

but

diagnosis

is

diagnosis
.

Yes
,

that's

step

one
.

I

mean

you

should

be

completely

prepared

with

your

diagnosis

before

you

attempt

surgery
.

Speaker 2
16:48

There

was

a

big

debate

in

the

early

2000s

where

they

would

see

a

big

endometriosis

surgeon

would

say

I

don't

need

that

diagnosis
,

I'll

put

the

scope

in

and

figure

it

out
.

But

now

we

know

that

there

is

such

severe

endometriosis

that

can

be

affecting

the

nerves

which

even

when

you

put

a

scope

in

your

pelvis

would

look

normal

and

you'd

have

to

really

dig

down

deep

along

that

nerve

to

pick

out

the

disease
.

So

unless

you

were

able

to

make

that

diagnosis

clinically

or

via

imaging
,

you

would

never

know

how

to

treat

this

patient
.

So

I

think

diagnosis

is

important
,

but

only

to

help

you

plan

your

treatment
.

Speaker 2
17:25

Diagnosis

is

not

a

substitute

for

treatment
.

You're

not

going

to

replace

good

surgery

at

the

end

of

the

day
,

and

good

surgery

will

never

happen

without

good

diagnosis
.

So

they

kind

of

go

hand

in

hand

and

we

need

to

understand

that

distinction

and

I

think

you

either

if

you're

an

endometriosis

surgeon
,

I

believe

you

have

to

make

the

diagnosis

yourself
.

So

do

your

own

ultrasound

or

read

your

own

MRI
,

or

work

with

someone

who

you

trust

and

who

you

can

pull

up

to

the

OR

and

yell

at

them

if

they

miss

something
,

so

that

they

learn
.

That's

very

important

to

have

that

kind

of

relationship

in

your

team
.

So

I

think

that's

how

teams

have

to

work
.

You

can't

have

a

radiologist

sitting

100

miles

away

and

you

call

them

up

and

say

okay
,

what

do

you

have
?

And

then

you

go

into

surgery

and

it's

not

matching

with

what

they

found
.

And

then

there's

no

accountability

and

there's

no

learning

process

there

right
,

okay
,

let's

make

a

roadmap
.

Speaker 1
18:24

So

first

we

need

diagnosis
,

and

then

we

need

a

roadmap

for

surgery

and

treatment
.

And

then

what

comes

next

after

that
?

Post-operative

care

with

physical

therapy
,

physiotherapy

what

else

am

I

missing
?

Speaker 2
18:43

Occupation

therapy
,

mental

health
,

sexual

therapists
,

whatever

the

problems

are
.

So

each

patient

is

different
.

Speaker 2
18:54

You

have

to

tailor

their

therapy

to

what

the

problems

are
.

So

each

patient

is

different
,

so

you

have

to

tailor

their

therapy

to

what

the

problems

are

and

you

have

to

fix

or

attempt

to

diagnose

and

then

treat

everything
.

So

it's

very

important

to

have

a

good

team

and

a

good

network

of

different

specialties

at

your

disposal
,

and

I

think

it's

easier

in

some

countries
,

like

in

India

at

least

the

way

I

work
,

it's

private

care
,

so

we

have

everyone

accessible

and

pretty

close

by
,

so

it's

easy

enough

to

do
.

But

I

understand

limitations

in

countries
,

especially

in

university

hospitals

or

in

academia
,

where

everybody's

kind

of

doing

their

own

thing

and

they

don't

have

that

much

time

to

dedicate

to

a

specialty

that

may

not

be

considered

their

own
.

So

there

are

challenges

in

different

countries
.

So

if

we're

going

to

create

a

roadmap

or

a

template
,

it

has

to

be

adaptable

to

different

working

environments
.

Speaker 1
19:51

And

then
,

once

we

get

to

that

point
,

can

get

more

research
.

This

is

a

big

picture
.

Speaker 2
19:57

Research

is

very

difficult

because

you

get

research

from
,

mostly

from

academia

so

university

hospitals

which

do

the

least

amount

of

work

or

the

least

challenging

work

and

I'm

speaking

broadly
.

I'm

sure

there

are

some

university

hospitals

that

do

fantastic

work
,

but

usually

most

cutting-edge

centers

are

private

care

that

are

doing

that

and

then

to

publish

and

do

your

own

research

becomes

your

own

responsibility
.

The

expenses

come

out

of

your

own

pocket
.

So

if

you're

paying

research

analysts

or

statisticians

to

track

your

data
,

you're

paying

it

out

of

your

own

pocket
,

which

may

not

be

incentive

enough

for

most

people

yeah

you

know

the

guy

I

trained

with
,

Forrest

Roman

in

France
.

Speaker 2
20:44

The

French

have

a

fantastic

database

for

endometriosis

care

so

everything

goes

into

national

database

and

everything

is

entered
.

He

personally

goes

and

enters

it

after

each

surgery

so

everything

is

logged

and

they

can

extrapolate

data

and

come

up
.

They

come

up

with

the

best

papers

on

endometriosis

because

they

have

such

fantastic

data

entry

and

records

and

he

pays

his

research

team

out

of

his

own

profits
.

He's

a

very

dedicated

guy
.

It

doesn't

really

work

in

other

countries

where

you're

resource

limited

and

or

some

people

just

may

not

be

interested

in

putting

their

research

out
.

They

just

want

to

do

their

work
.

Speaker 1
21:24

Yeah
,

so

maybe

we

need

a

research

database

where

all

the

physicians

can

put

in

their

data
.

So

anyone

out

there

who's

a

tech

guru

we've

already

clarified

that

neither

one

of

us

or

that

should

make

a

database

for

all

the

doctors

to

put

all

their

information

in
,

and

then

we

could

have

better

data

worldwide
.

I

just

solved

the

world's

problem
,

done
.

Speaker 2
21:46

But

see

again
,

I

can

come

up

with

more

problems

for

that
,

because

does

everybody

speak

the

same

language

in

endometriosis
?

Some

people

use

stage

1
,

2
,

3
,

4
.

Some

people

use

the

AGL

classification
.

Some

people

use

the

NGIN

score
.

How

many

people

are

making

complete

diagnosis

and

how

are

you

going

to

extrapolate

all

that

data
?

Yes
,

you

can
.

The

French

do

it

very

well
,

but

they

have

standardized

data

entry
.

Now

to

get

consensus

about

data

entry

is

you're

going

to

have

to

take

the

world's

top

endometriosis

surgeons

and

convince

them

that

this

is

the

way
,

and

from

my

experience
,

any

surgeon

tends

to

be

the

most

egoistic

person

in

the

room
.

So

to

convince

them

that

they

have

to

change

the

way

they're

thinking

and

doing

things

is

a

Herculean

effort

at

best

yeah
,

that's

true
,

but

I

like

your

optimism

and

I

think

we

should

work

towards

that
.

Speaker 1
22:43

I

was

just

trying

to

solve

all

the

world's

problems

here
.

That's

all

all

the

world

of

endometriosis
.

If

we

could

just

solve

it

with

one

app
,

wouldn't

that

be

amazing
?

We're

not

there

yet
.

Speaker 2
22:54

Well
,

they

trying
,

not

for

lack

of

trying
.

I

mean
,

mauricio

Obrado

came

up

with

the

AGL

classification
.

It

was

an

app

that's

quite

fantastic
.

Even

the

enzyme

system

is

brilliant
.

So

I've

seen

MRI

reports

from

countries

where

I

don't

speak

the

language

and

I

didn't

have

to

use

Google

Translate

because

they

wrote

the

enzyme

score

at

the

end

and

I

knew

exactly

where

the

language
.

And

I

didn't

have

to

use

Google

Translate

because

they

wrote

the

angioenesis

score

at

the

end

and

I

knew

exactly

where

the

disease

was
.

Speaker 1
23:19

So

I

knew

how

to

treat

that

patient

Interesting

I
,

you

know
.

And

that's

why

I

think

it's

important

to

talk

about

worldwide

endometriosis
,

because

we

get

stuck

in

at

least

I

do

in

my

little

American

bubble

where

I

don't

understand

some

of

the

challenges

that

people

face

worldwide

or

that

doctors

face

worldwide
.

I

mean
,

I

think

that

that's

I

mean

a

whole

nother

topic

that

we

could

talk

about

another

time
.

But

I

do

think

that

just

the

barriers

that

we

face

in

endometriosis

isn't

just

the

disease
,

it's

cultural

language
,

diagnostic
,

it's

the

list

goes

on
.

So

it's

a

good

point
.

Oh
,

my

goodness
.

Speaker 1
23:55

Okay
,

this

is

a

lot

to

process

and

I

hope

that

we

can

continue

having

conversation

surrounding

this

and

be

as

sporadic

as

possible

in

the

future
,

because

this

is

how

we
,

this

is

how

we

talk

at

the

dinner

table
,

this

is

we

talk

about

all

the

different

things
,

and

this

is

why

when

I

tell

people
,

you

know
,

join

me

at

the

table
.

It

know
,

join

me

at

the

table
.

It

truly

is

joining

me

at

the

table

in

these

conversations

that

are

everywhere

but

also

very

informative
,

because

they're

part

of

this

conversation
,

what

we've

talked

about

today
.

Everyone

has

a

piece

of

that
.

We

all

have

a

place

at

the

table

of

endometriosis
,

where

we

can

talk

about

it

and

we

can

expand

our

horizons

and

knowledge
.

Speaker 1
24:36

And

it

doesn't

have

to

be

uniform

all

the

time
.

It

can

be

conversational
.

So

that's

why

this

is

so

good
.

And
,

of

course
,

you're

amazing

all

the

time
,

dr

Manks
,

thank

you

so

much

for

your

time
.

Thanks

for

joining

me

today
.

Thanks

for

everything

you're

doing

groundbreaking

research

on

your

own

thought

process
,

everything
.

Also
,

again
,

if

you

need

a

bowel

resection
,

he's

a

great

surgeon

for

that
.

Speaker 2
24:59

So

thank

you

for

having

me

and

for

making

it

such

an

easygoing

informal

conversation
.

I

think

you

have

a

natural

gift

that

gets

people

to

just

keep

talking

and

kind

of

self-incriminate

as

well
.

You

could

have

been

a

lawyer
.

Speaker 1
25:17

Gonna

need

a

lawyer
.

No
,

anytime
.

You

know

you're

welcome

here

anytime
,

anytime

at

the

table
.

So

until

next

time
,

everyone

continue

advocating

for

you

and

for

those

that

you

love
.

Thank

you
.

Leave a Reply

Your email address will not be published. Required fields are marked *