Endo Year Reflection: #7

The First Podcast
The First Podcast
Endo Year Reflection: #7
Loading
/

Send us a text with a question or thought on this episode ( We cannot replay from this link)

Welcome back to Endo Battery! In this Endo Year Reflection episode, we’re rewinding to highlight the most powerful moments from one of our most-requested series: The Fast Charged Series. What started as a “wild hair” idea to break down vetted endometriosis research quickly became a listener favorite, thanks to the insights of board-certified advocates Heather Guidone and Kate Boyce.

This episode dives into the studies that sparked “aha” moments, like the surprising links between periodontal disease and endometriosis, postmenopausal challenges, and how endo doesn’t stop at your pelvis—think gastrointestinal symptoms and beyond.

We also revisit an impactful conversation with researcher Allyson Bontempo, whose work bridges personal experience with scientific rigor. Allyson’s passion for inclusive research reminds us that everyone’s voice matters, and her insights—like the urgent need for providers to reclaim their curiosity—continue to resonate deeply.

Whether you’re revisiting favorite episodes or tuning in for the first time, this reflection is packed with validation, empowerment, and insights to recharge your battery. Tune in, be inspired, and join us as we continue advocating for change in the endometriosis community.

🔗 Episode Highlights:

  • Powerful studies explored in the Fast Charged Series
  • Allyson Bontempo’s groundbreaking research and the need for inclusivity
  • The surprising ways endometriosis impacts your entire body

🎧 Listen now and catch the full conversation with Allyson in Episode 92.

Support the show

Website endobattery.com

Instagram: EndoBattery

Speaker 1
0:02

Welcome

to

EndoBattery
,

where

I

share

my

journey

with

endometriosis

and

chronic

illness
,

while

learning

and

growing

along

the

way
.

This

podcast

is

not

a

substitute

for

medical

advice
,

but

a

supportive

space

to

provide

community

and

valuable

information

so

you

never

have

to

face

this

journey

alone
.

We

embrace

a

range

of

perspectives

that

may

not

always

align

with

our

own
.

Believing

that

open

dialogue

helps

us

grow

and

gain

new

tools

always

align

with

our

own
.

Believing

that

open

dialogue

helps

us

grow

and

gain

new

tools
.

Join

me

as

I

share

stories

of

strength
,

resilience

and

hope
,

from

personal

experiences

to

expert

insights
.

I'm

your

host
,

alana
,

and

this

is

EndoBattery

charging

our

lives

when

endometriosis

drains

us
.

Welcome

back

to

EndoBattery
.

Grab

your

cup

of

coffee

or

your

cup

of

tea

and

settle

in

and

join

me

at

the

table

as

we

continue

our

EndoYear

Reflection

Series
.

This

series

is

all

about

taking

a

step

back

to

look

at

the

incredible

conversations

we've

had

this

year
,

revisiting

some

of

the

most

powerful

and

impactful

moments

from

this

podcast
.

Whether

you've

been

with

us

all

year

or

you're

just

tuning

in
,

this

is

the

perfect

way

to

get

a

quick

recharge
.

Maybe

you'll

revisit

a

conversation

that

stuck

with

you

or

discover

an

episode

you

didn't

catch

the

first

time

around
.

Either

way
.

These

episodes

may

be

small
,

but

they're

mighty
.

They're

packed

with

big

insights
,

powerful

stories

and

moments

of

validation

that

remind

us

why

we're

in

this

together
.

So

sit

back
,

relax

and

let's

dive

into

the

moments

that

made

this

year

on

EndoBattery

unforgettable
.

Speaker 1
1:30

This

episode

we're

rewinding

the

tape

to

reflect

on

something

I

never

imagined

would

take

off

like

it

has

the

EndoBattery

Fast

Charge

series
.

Honestly
,

it

started

as

a

spur-of-the-moment

idea
,

a

wild

hair

moment
,

if

you

will
.

I

wanted

to

create

a

hub

of

vetted

research

and

information
,

broken

down

in

a

way

that

makes

sense

to
,

well
,

actual

humans
.

Why
?

Because
,

like

many

of

you
,

I've

had

those

moments
.

One

day
,

I'd

think
,

is

anyone

even

researching

endo
?

Then

the

next

day
,

I'd

get

frustrated

by

the

studies

that

felt

disconnected

from

real

life

experiences
,

and

occasionally

I'd

find

myself

excited

over

a

headline

and

think
,

yes
,

finally

progress
.

But

let's

be

real
,

I

wasn't

equipped

to

dive

into

this

alone
,

so

I

called

in

reinforcements

Enter

board

certified

advocates

Heather

Godone

and

Kate

Boyce
,

two

powerhouses

who

not

only

know

the

research

but

know

how

to

translate

it
.

Together
,

we've

tackled

some

fascinating

studies

this

year

and

I'm

thrilled

to

say

this

series

has

become

one

of

the

most

requested

features

of

the

podcast
.

Speaker 1
2:34

Trust

me
,

I

didn't

see

that

one

coming
.

I'll

admit
,

the

first

episode

it

was

a

little

shaky
.

I

had

no

clue

how

this

series

would

come

together

or

whether

anyone

would

even

tune

in
.

But

as

we

kept

going

I

found

myself

loving

it

more

and

more
.

I've

learned

so

much

and

genuinely

enjoy

digging

into

the

research

that

matters
.

For

example
,

we've

explored

connections

like

periodontal

disease

and

endometriosis

based

on

an

analysis

from

the

National

Health

and

Nutrition

Examination

Survey
.

Spoiler

alert

turns

out

there's

more

happening

in

our

mouths

than

just

cavities
.

Then

we

tackled

a

unique

challenge

with

postmenopausal

endometriosis
,

proving

that

this

condition

doesn't

clock

out

after

menopause
.

And

let's

not

forget

the

study

that

tied

endometriosis

to

higher

healthcare

utilization

in

upper

gastrointestinal

symptoms
,

because

apparently

endo

just

has

to

involve

your

gut

in

things

too

right
.

And

that's

just

scratching

the

surface
.

There

have

been

so

many

more

intriguing

studies
.

We've

unpacked

together

the

best

part
.

This

series

is

only

just

getting

started
.

As

long

as

there's

research

coming

out

and

let's

hope

that

pipeline

never

runs

dry

I

plan

to

keep

these

fast-charged

episodes

going

strong
.

So

thank

you

for

listening
,

for

loving

this

series

as

much

as

I

do
,

and

for

reminding

me

why

we're

here

to

educate
,

empower

and

recharge

our

batteries
.

Here's

to

another

year

of

learning

together
.

Speaker 1
3:58

Something

truly

special

that

came

out

of

the

EndoBattery

Fast

Charge

series

was

the

connection

and

conversation

with

Allison

Bontempo
.

Allison's

research

wasn't

just

another

study
.

It

was

a

voice

a

voice

for

so

many

who

desperately

needed

it
.

Her

work

resonated

deeply

because

she's

not

only

a

researcher
,

she's

someone

who

personally

experiences

life

with

this

disease
.

What

I

found

so

inspiring

about

Allison

is

how

she

balanced

that

personal

connection
.

She

didn't

let

her

own

journey

cloud

her

research
.

Instead
,

she

used

it

to

fuel

a

driving

force

to

push

for

the

kind

of

change

we've

all

been

waiting

for
.

Her

work

showed

what's

possible

when

passion

and

precision

meet
.

Allison's

dedication

has

filled

a

critical

gap

in

endometriosis

research

and

it's

already

making

waves

in

the

community
.

She's

proof

that

when

you

combine

lived

experience

with

scientific

rigor
,

you

get

something

powerful
,

something

that

can't

be
,

ignored
.

Speaker 1
4:50

Don't

just

take

my

word

for

it
,

but

here's

a

little

glimpse

into

my

conversation

with

Allison
.

Take

a

listen
.

Speaker 2
4:56

So

in

one

of

my

classes

about

computer

mediated

communication
,

I

decided

to

apply

my

health

focus
,

so

I

chose

endometriosis

and

then
,

in

the

context

of

mediated

communication
,

so

you

know

developing

a

proposal

for

examining

online

community

use

of

individuals

with

endometriosis
.

And

I

hadn't

really

searched

the

literature

before

and

you

know

I

had

to

for

this

project

and

I

came

across

this

one

article

I

think

it's

called

like

the

therapeutic

affordances

of

online

communities

for

women

with

endometriosis
,

or

something

like

that
,

and

it

was

talking

about

this

delay

that

was

nine
,

10

years
,

and

I

was

like

that's

so

kind

of

bananas

Again
,

like

I

hadn't

experienced

it
,

but

I

didn't

realize

it

was

such

a

problem
.

And

then

that

led

me

to

another

study

and

to

another

study

and

I

just

kept

reading

about

it
.

And

then

I

started

reading

which

often

happens

in

the

context

of

diagnostic

error

is
,

you

know
,

the

communication

that

takes

place

between

patients

and

clinicians
.

And

so

I

was

finding
,

you

know
,

correspondingly
,

during

this

time
,

patients

were

often

feeling

like

their

symptoms

were

dismissed
.

So

I

put

together

a

proposal

which

was

the

assignment

for

the

class
,

and

the

professor
,

you

know

not

with

a

health

background
,

but

she

was

like

you

can

actually

like

do

this
.

So

I

designed

the

study
.

I

did

it

during

my

master's

and

I

feel

like

there's

a

lot

more

research

out

now

Patients

themselves

doing

endometriosis

research
,

because

I

guess

nobody

else

will
,

um
,

but

so

so

I

feel

like

that

first

study

was

at

a

time

where

there

wasn't

as

much

study
,

because

I

feel

like

I

see

a

lot

more
,

uh
,

advertising

for

studies

on

on

social

media

now
.

Speaker 2
6:36

But

this

was

back

in
,

like
,

and

I

had

reached

out

to

a

bunch

of

endometriosis

organizations

asking

if

they

could

advertise

a

study
.

Speaker 2
6:46

And

you

know

I

got

like

a

few

hundred

in

the

first

hour

and

it

was

across

40

different

countries
.

I

was

like

praying

for

like

150

because

for

certain
,

like

analysis
,

like

you

need

to

have

a

certain

amount

to

detect

if

there's

a

correlation

between

two

things
.

And

then

I

got

like

easily

150

in

the

first

hour

and

I

got

I

think

it

was

like

1700

patients
.

And

then

in

the

comments
,

like

I

had

a

comment

section

at

the

end

is

there

anything

else

that

you

want

to

share

about

your

experiences
?

In

case

I

missed

something

that

was

important

and

not

really

expecting

patients

to

fill

it

out
,

but

half

the

patients
,

after

completing

a

20

to

30

minute

survey
,

went

on

to

talk

more

about

their

experiences

and

it

just

felt

like

there's

such

a

need

for

people

to

do

research

in

this

area

and

I

didn't

realize

how

desperately

it

was

needed
.

But

it

was

almost

like

that

survey

was

a

forum

for

patients

to

feel

heard

where

historically

they

haven't

felt

heard

by

the

medical

community

Not

that

I'm

a

medical

person

myself
,

but

just

institutionally

I

guess
.

Speaker 1
7:48

Being

a

patient

yourself

and

then

seeing

what

other

patients

are

going

through
.

Balancing

that

professional

and

the

personal
,

yeah
.

Speaker 2
7:54

For

me

it's

always

been

difficult
.

So

here
,

in

kind

of

a

less

academic-y

space
,

I'm

a

lot

more

open

and

like

I

will

disclose

it
.

But

in

my

research

typically

I

don't

you

know
.

For

example
,

I

did

an

interview

study
,

I

introduced

who

I

was
,

this

and

that

I

didn't

say

I

have

endometriosis
.

And

that's

always

something

that

I

struggle

with
,

because

I

want

them

to

know

that

I

understand

a

lot

of

what

they're

experiencing
.

But

at

the

same

time

I

don't

want

them

to

feel

like

I'm

doing

this

because

I'm

doing

me

search
,

as

what

we

call

it

in

PhD

programs
.

I

don't

want

them

to

feel

like

I

don't

care

about

them
,

that

this

is

just

a

means

to

an

end

to

understanding

something

that

happened

to

me
,

because

that's

not

the

case
.

But

if

a

patient

will

say
,

well
,

like
,

oh
,

just

curious
,

what

got

you

interested

in

this

research
?

Speaker 2
8:39

You

know
,

I'll

disclose

it
.

But

it

is

a

difficult

thing

and

you

know

you

don't

want

to

be

judged
.

I

want

patients

to

entrust

me

with

their

stories
.

Speaker 1
8:47

There's

so

much

from

this

conversation

with

Allison

that

has

stuck

with

me
.

One

point

in

particular

was

the

fact

that

research

needs

to

consider

all

voices
,

no

matter

a

person's

race
,

religion
,

sexual

orientation

or

beyond
.

If

it's

going

to

truly

be

good

and

complete

research
,

it

needs

to

include

everyone
.

Anything

less

like

focusing

on

less

diverse

populations

means

we're

missing

a

huge

part

of

the

picture

and
,

honestly
,

haven't

we

had

enough

of

that

already
.

But

there

was

something

Allison

said

that

really

gave

me

pause
,

something

that's

been

on

repeat

in

my

inner

dialogue

ever

since

she

said

providers

have

this

lack

of

curiosity
.

Now

I

know

I'm

not

doing

her

words

justice
,

because

the

way

she

said

it

hits

so

much

deeper

than

just

those

few

words
.

So

instead

of

me

trying

to

explain

it
,

I'll

let

Allison

tell

you

herself
.

Take

a

listen
.

Speaker 2
9:37

I

feel

like

clinicians
,

doctors
,

these

days
,

they

lack

interest

and

curiosity

with

patients

and

it's

like
,

well
,

how

can

that

be
?

Because

they're

doctors
,

they're

like

problem

solvers
.

You

think

of

House

MD
,

like

you

know

the

show
,

but

that's

often

not

what

patients

get
,

you

know
.

It's

almost

seems

like

they

don't

want

to

have

to

engage

with

something

that's

not

algorithmic
,

right
,

because

that's

what

they're

being

told
.

Is

you
,

do

you

have

this

symptom
?

Yes

or

no
?

Yes
,

okay
,

go

to

this

next

set

of

questions
.

And

that

leaves

things

very

black

and

white
.

And

you

know
,

if

it

doesn't

fit

within

that

box
,

it's

not

validated

by

clinicians
.

So

we're

the

doctors

who

are

genuinely

interested

in

care

about
,

curious

about

what's

going

on

with

patients
.

And

just

from

what's

reported
,

they

don't

seem

to

be

patients
.

And

just

from

what's

reported
,

they

don't

seem

to

be
.

And

again
,

like

you

cited

some

reasons

of

why

that

might

be
,

you

know
,

like

concern

for

maybe

financial

outcomes

more

than

patient

care
.

Speaker 1
10:34

I'm

truly

excited

for

everything

Allison's

going

to

accomplish

for

the

endometriosis

community
.

She's

already

given

so

much

voice

and

validation

to

those

who

need

it

most

and
,

best

part
,

she's

just

getting

started
.

I

really

encourage

you

to

keep

following

her

work
.

It's

a

reminder

that

your

voice

matters

and

deserves

to

be

heard
.

If

you

wanna

dive

deeper

into

our

conversation
,

you

can

catch

the

full

episode
.

It's

episode

92
.

Trust

me
,

it's

worth

a

listen

and

with

that
,

thank

you

for

joining

me

on

this

journey

of

reflection
.

This

year

has

been

full

of

incredible

guests

who've

brought

so

much

insight
,

compassion

and

empowerment

to

the

table
.

I

hope

you

felt

as

inspired

and

encouraged

as

I

have
.

Stay

tuned

for

the

next

reflection

episode
.

It's

guaranteed

to

make

you

see

things

just

a

little

differently
.

Until

then
,

continue

advocating

for

you

and

for

those

that

you

love
.

Leave a Reply

Your email address will not be published. Required fields are marked *