Endo Year Reflection: #14

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Endo Year Reflection: #14
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The episode reflects on critical insights shared with Dr. Cindy Mosbrucker in episodes 84 and 85 about endometriosis care, highlighting the need for specialized knowledge and patient advocacy. We gained a deeper understanding of pain management, the implications of treatment decisions, and the importance of personalized healthcare. 

• Dr. Mosbrucker’s journey and insights on endometriosis care 
• The gap in medical education regarding endometriosis
• Using a baseball analogy to explain surgical skills and expertise
• Understanding the different types of pain beyond endometriosis
• Addressing the implications of current standard care practices
• Discussing the consequences of ovary removal
• The necessity of personalized hormonal treatment 
• Dr. Mosbrucker’s passion for patient care and advocacy 
• A call to action for awareness and support within the community

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Speaker 1
0:02

Welcome

to

EndoBattery
,

where

I

share

my

journey

with

endometriosis

and

chronic

illness
,

while

learning

and

growing

along

the

way
.

This

podcast

is

not

a

substitute

for

medical

advice
,

but

a

supportive

space

to

provide

community

and

valuable

information

so

you

never

have

to

face

this

journey

alone
.

We

embrace

a

range

of

perspectives

that

may

not

always

align

with

our

own
.

Believing

that

open

dialogue

helps

us

grow

and

gain

new

tools

always

align

with

our

own
.

Believing

that

open

dialogue

helps

us

grow

and

gain

new

tools
.

Join

me

as

I

share

stories

of

strength
,

resilience

and

hope
,

from

personal

experiences

to

expert

insights
.

I'm

your

host
,

alana
,

and

this

is

IndoBattery

charging

our

lives

when

endometriosis

drains

us
.

Welcome

back

to

IndoBattery
.

Grab

your

cup

of

coffee

or

your

cup

of

tea

and

join

me

at

the

table
.

I

hope

this

season

finds

you

well
.

Whether

you're

celebrating

the

holidays

or

simply

taking

a

breather
,

either

way
,

it's

always

a

good

time

to

recharge

not

just

your

body

but

your

IndoBattery
.

Speaker 1
0:59

In

our

IndoYear

Reflection

series
,

we've

revisited

some

standout

episodes

in

bite-sized

doses

Because
,

let's

face

it
,

if

you're

anything

like

me
,

remembering

everything

from

this

past

year

is

nearly

impossible
.

But

revisiting

these

episodes

has

been

refreshing
,

uplifting

and

packed

with

nuggets

of

wisdom
.

In

episodes

84

and

85

with

Dr

Cindy

Mossbrooker

are

prime

examples
.

Let

me

tell

you

her

story

is

nothing

short

of

extraordinary
.

As

the

only

doctor

to

have

done

a

fellowship

with

the

late
,

esteemed

Dr

David

Redwine
,

she's

been

at

the

forefront

of

a

paradigm

shift

in

endometriosis

care

and

excision

surgery
.

But

here's

the

twist

when

she

started
,

even

with

her

impressive

background
,

she

realized

she

wasn't

equipped

to

handle

advanced

cases

of

endometriosis
.

That's

when

her

mindset

and

approach

shifted

dramatically
.

Take

a

listen
.

Speaker 2
1:55

Before

I

spent

time

with

him

I

did

not

specialize

in

endometriosis

and
,

you

know
,

occasionally

we'd

have

somebody

that

had

endo

and

and

I'd

operate

on

them

and

do

the

ablation

techniques
.

Speaker 2
2:11

And

I

had

one

girl

that

that

had

these

recurrent

cysts

in

her
,

in

her

pelvis
,

despite

having

done

oophorectomy

on

her

for

endometriomas
,

and

I

didn't

realize

what

was

happening

and

I

didn't

know

what

I

didn't

know

because

I'd

never

been

taught
.

Speaker 2
2:34

And

now

I

know

exactly

what

was

happening

with

that

girl

and

I

wish

I

could

go

back

and

say
,

hey
,

let

me

do

your

surgery

the

correct

way
,

because

she

had

an

ovarian

remnant

and

we

never

got

the

disease

out

from

a

retroperitoneal

approach
.

And

so

I

know

now

what

I

should

have

done

in

some

of

those

cases

before

I

learned

what

I

learned

from

him
.

But

I

will

tell

you

the

first

I

don't

know

a

couple

of

months

that

I

was

there

in

Bend

I

would

cry

when

I

heard

these

women's

stories

about

surgery

after

surgery

after

surgery

and

people

not

treating

them

right

and

doctors

making

the

patients

feel

like

they're

crazy

because

the

doctors

didn't

know

what

was

wrong

with

them
.

And

initially

it

made

me

sad

and

made

me

upset

and

then

it

just

made

me

mad

and

made

me

upset

and

then

it

just

made

me

mad
,

and

it

still

angers

me

when

I

see

28-year-olds

who

had

normal

ovaries

removed

and

they

weren't

told

what

the

repercussions

were

of

that
.

Speaker 2
3:40

They

weren't

told

what

their

life

was

going

to

be

like
,

you

know
,

for

the

next

25

years
,

until

they

should

have

normally

gone

through

menopause
.

And

the

patients

who

are

dismissed

because

they're

just

looking

for

secondary

gain
,

you

know
,

nothing's

really

wrong

with

you
.

You

know
.

Why

are

you

here
?

Why

are

you

on

my

doorstep

asking

for

meds
?

You

must

be

drug

seeking
,

you

know
.

You

must

be

crazy
.

You

must

have

been

raped

sometime

in

the
.

You

must

be

crazy
,

you

must

have

been

raped

sometime

in

the

past

and

you

just

don't

remember

it
.

So

you

need

to

go

do

psychotherapy
.

So

you
,

you

know
,

so

that

you

can

deal

with

this
.

Or

you're

just

stressed
.

That's

why

your

pelvic

floor

is

tight
.

There's

really

nothing

wrong

with

you
.

Speaker 1
4:18

Her

journey

really

highlights

the

stark

differences

in

skill

levels

and

expertise

when

it

comes

to

treating

endometriosis

and

full

disclosure
.

I

may

have

geeked

out

a

little

when

she

used

the

baseball

analogy

to

explain

the

skill

sets

of

surgeons
.

It's

such

a

relatable

comparison
,

especially

for

someone

like

me

who

loves

baseball
.

While

I

encourage

you

to

revisit

the

full

episode
,

here's

the

heart

of

the

analogy
.

Speaker 2
4:45

I

kind

of

look

at

surgeons

like

baseball

players
.

I

love

baseball
.

I

do

too
.

My

dad

used

to

take

me

to
.

You

know
,

my

mom

loved

baseball

too
,

so

we'd

all

go

to

baseball

games

from

when

I

was

a

kid

and

you

know

it's

like

there's

only's

only

so

many

justin

verlanders

yeah
,

there's

only

so

many

doctors

who

are

like

a

household

name

and
,

yeah
,

they're

who

you'd

want

on

your

team
,

no

matter

what
.

But

there's

a

lot

of

major

leaguers

who

are
.

Nobody

knows

them

unless

you

know
.

You

go

to

the

games

all

the

time

and

you

follow

your

team
.

And

people

like

Cal

Raleigh
,

the

Mariners

catcher
.

Yeah
,

he's

a

great

player
,

but

nobody

knows

him

outside

of

Seattle
.

Speaker 1
5:32

Right
,

you

know

that's

like

Charlie

Blackman

here
.

Speaker 2
5:34

Because

I

mean
,

there

are

some

people

who

are

like
,

you

know
,

derek

Jeter
,

a-rod
,

you

know

everybody
,

even

people

who

don't

follow

sports
.

They're

like

oh

yeah
,

I

know

who
,

derek

J

but

you

don't

need

Derek

Jeter

if

you

have

stage

one

endometriosis
,

right
,

you

need

Ty

France
,

my

favorite

first

baseman

from

the

Mariners
.

He's

a

great

player
,

he's

a

great

guy
.

Speaker 1
6:02

Stage

one

is

not

the

minor

leagues

Stage

one

in

the

sense

that

an

excision

specialist

still

needs

to

address
.

That's

stage

one
.

Speaker 2
6:09

Stage

one

is

like

your

routine

everyday

guy

on

the

Colorado

Rockies

or

the

Seattle

Mariners

that

you

and

I

know

who

they

are

because

we

follow

the

teams

but

nobody

else

knows
.

Speaker 1
6:22

Yeah
,

but

the

minor

leagues

are

the

ablation

surgeons
.

Speaker 2
6:26

Yeah
,

Triple

A
.

Double

A

is

general

OBGYNs

who

make

a

mess

out

of

things
.

General

OBGYNs

who

make

a

mess

out

of

things
.

Speaker 1
6:33

Dr

Mossberger

also

spoke

candidly

about

the

complexities

of

pain
.

Not

all

pain

is

endopain
.

This

is

such

an

important

distinction
.

She

explained

how

central

sensitization
,

where

our

amazing

yet

complicated

brains

hold

on

to

pain

memories

and

can

make

it

feel

like

we're

still

experiencing

pain

even

when

we've

taken

the

right

steps

to

address

it

it's

like

phantom

limb

syndrome
,

but

with

Endo
.

Let's

hear

her

perspective
.

Speaker 2
7:00

Yeah

it

starts

with

listening

and

believing

and

saying

yes
,

there's

something

going

on

with

you
.

I

don't

know

what

it

is
,

but

I'm

not

going

to

rest

until

I

figure

it

out
.

But

it's

hard

for

some

people

because

they've

been

so

dismissed

for

so

long

and

they've

been

told
.

Well
,

it's

the

nerve

transmission

of

potentially

painful

experiences
,

but

it's

not

really

turned

into

pain

until

it's

processed

in

your

brain
.

And

so

I've

had

discussions

with

patients

and

trying

to

explain

the

role

of

the

brain

and

their

history

of

trauma

and

their

anxiety

and

how

that

plays

a

role

in

how

they

perceive

pain
,

and

most

of

I

will

say

most

of

my

patients

are

like

oh

well
,

that

makes

a

lot

of

sense
.

But

a

few

of

them

are

like

they

get

really

mad

and

really

upset

and

they

think

that

I'm

trying

to

dismiss

them

and

tell

them

that

you

know

their

pain's

all

in

their

head

and

there's

nothing

wrong

with

them
.

But

that's

not

the

point
.

Speaker 2
8:20

The

point

is

to

say

you

know
,

we

need

to

think
.

When

we're

taking

care

of

women

with

endo

and

pelvic

pain
,

we

need

to

think

not

only

of

what's

going

on

in

the

pelvis
,

but

how

is

this

affecting

their

brain
?

How

is

it

affecting

their

emotions
?

How

are

their

emotions

affecting

their

pain
.

What

can

they

do

about

it
?

How

can

cognitive

behavioral

therapy

and

other

things

like

this

try

to

ramp

down

the

emotion

of

the

pain
?

You

know
,

I

kind

of

understand

why

it's

a

bit

of

a

slippery

slope
,

but

it's

also

necessary

because

it's

basic

biology

and

it's
,

you

know
,

how

our

bodies

work
.

Speaker 1
9:04

This

doesn't

mean

your

pain

isn't

real

far

from

it

but

it's

a

reminder

to

look

at

the

mental

and

emotional

toll

pain

takes

and

how

addressing

that

can

be

just

as

important

as

physical

treatments
.

One

of

the

most

powerful

parts

of

our

conversation

was

when

she

addressed

the

harm

caused

by

the

current

standard

of

care
,

particularly

when

it

comes

to

ovary

removal
.

While

there

are

valid

medical

reasons

to

remove

ovaries

and

I'm

living

proof

of

that

it

shouldn't

be

the

go-to

solution
,

for

endo

Removing

ovaries

doesn't

cure

endometriosis

and

this

misconception

is

harming

patients
.

Take

a

listen

to

her

thoughts
.

Speaker 2
9:41

Right

now
,

standard

of

care

is

people

doing

ablations
.

It's

okay

for

doctors

to

remove

totally

normal

ovaries

in

a

25-year-old
.

If

the

patient

decided

to

take

them

to

court

to

say

you

took

my

ovaries

out
,

all

they

have

to

do

is

say

you

signed

the

consent

form

Right

and

it's

because

it's

within

standard

of

care
.

If

somebody

has

persistent

pain

and

thought

to

be

from

endometriosis
,

it's

okay

to

castrate

a

25-year-old
.

And

to

me

that's

not

okay

in

any

world

and

it

certainly

isn't

okay

without

a

very

long

discussion
.

Even

in

my

40-year-old

patients

who

come

in

and

say

you

know
,

I

really

want

you

to

take

my

ovaries

out
.

Speaker 2
10:28

I

talk

to

them

for

a

long
,

long

long

time

about

what

are

you

going

to

feel
?

You're

going

to

be

menopausal
,

your

bones

are

going

to

get

brittle
,

your

brain

is

going

to

get

old
,

your

vagina

is

going

to

dry

up
,

your

bladder

is

going

to

be

irritable
,

you're

going

to

have

to

pee

all

the

time
.

You're

going

to

be

irritable
.

You're

going

to

have

to

pee

all

the

time
.

You're

going

to

be

incontinent
.

All

these

things

are

going

to

happen

to

your

body
,

not

right

away
,

but

over

time
,

and

your

aging

process

is

going

to

be

accelerated
.

And

yes
,

we

can

reverse

some

of

that

and

abate

some

of

it

with

hormone

replacement
.

Speaker 2
11:04

But

there

was

a

study

a

few

years

ago

that

showed

that

women

who

have

bilateral

oophorectomies

prior

to

menopause

have

an

increased

what's

called

all-cause

mortality
,

which

means

death

by

any

reason
,

and

giving

them

hormone

replacement

will

minimize

that

somewhat

and

make

that

increased

risk

come

back

towards

one

which

is

no

increased

risk
,

but

it

never

quite

gets

to

one
.

It

gets

close

to

it

but

it

never

quite

gets

there
.

And

then

the

other

thing

that

I

see

a

lot

is

women

who've

had

their

ovaries

out

and

they're

not

appropriately

replaced

hormonally
.

So

they've

got

hot

flashes
,

they

don't

sleep

well
,

they've

emotional
,

they

feel

like

crap

and

nobody

takes

the

time

to

say

well
,

you

need

estrogen
,

you

need

testosterone
,

you

might

need

a

little

progesterone
,

maybe
,

maybe

not
,

but

we

need

to

get

you
.

Speaker 2
12:06

If

you're

30

years

old

and

you

have

no

ovaries
,

you

can't

just

give

them

a

0.05

patch
,

which

is

perfectly

fine

for

a

55

or

60

year

old

woman
,

because

they're

30
,

you

know
,

and

they're

used

to

estradiol

levels

fluctuating

between

103

and

300

or

400
.

Whereas

when

you're

50

and

you're

about

to

be

menopausal
,

your

average

estradiol

level

is

probably

you'd

be

happy

at

50
.

These

younger

gals
,

they

need

a

higher

dose

and

they

need

higher

levels

and

that's

just

normal

and

physiologic
.

But

doctors

are

afraid

to

do

it
.

Speaker 1
12:48

What

made

these

episodes

so

special

was

Dr

Mossberger's

passion
.

We

initially

planned

for

like

a

one-hour

chat
,

but

it

quickly

turned

into

a

three-hour

deep

dive
.

That's

how

committed

she

is

to

patient

care

and

advancing

our

understanding

of

endometriosis
.

She

ended

this

episode

with

a

call

to

action

for

all

of

us

advocates
,

providers

and

patients

alike

to

carry

the

torch

for

better

care

and

greater

awareness
.

She

reminds

us

to

honor

the

legacies

of

pioneers

like

Dr

Redwine

and

the

continued

work

of

Nancy

Peterson

for

Nancy's

Nook
,

while

also

pushing

for

new

breakthroughs
.

You

can

find

episodes

84

and

85

on

your

favorite

streaming

platforms
,

and

I

highly

recommend

giving

them

a

listen

or

a

re-listen
.

Thank

you

for

taking

the

time

out

of

your

day

to

join

me

here
.

It's

an

honor

to

sit

at

this

virtual

table

with

you
,

sharing

stories
,

learning

together

and

growing

as

advocates
,

not

just

for

ourselves
,

but

for

our

entire

community
.

Until

next

time
,

continue

advocating

for

you

and

for

those

that

you

love
.

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