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In this episode we reflect back on two inspiring episodes that remind us that there is a need for accessible and equitable healthcare. We’re reflecting back on episodes 82, 89, and 90 from guests Chanda Hinton and Bryce Rafferty. Their journeys reveal the gaps in traditional medical models and advocate for an integrated approach to health that empowers individuals with disabilities.
• Chanda Hinton shares her experience navigating disability care
• Limitations of traditional medical models highlighted
• Importance of integrative therapies for enhanced quality of life
• Disparities in healthcare access for those with disabilities discussed
• Insights on the Americans with Disabilities Act (ADA)
• Practical resources for understanding disability rights provided
• Call for collective advocacy and communal support in healthcare reform
Website endobattery.com
EndoYear Reflection Series
Speaker 1
0:02
Welcome
to
EndoBattery
,
where
I
share
my
journey
with
endometriosis
and
chronic
illness
,
while
learning
and
growing
along
the
way
.
This
podcast
is
not
a
substitute
for
medical
advice
,
but
a
supportive
space
to
provide
community
and
valuable
information
so
you
never
have
to
face
this
journey
alone
.
We
embrace
a
range
of
perspectives
that
may
not
always
align
with
our
own
.
Believing
that
open
dialogue
helps
us
grow
and
gain
new
tools
always
align
with
our
own
.
Believing
that
open
dialogue
helps
us
grow
and
gain
new
tools
.
Join
me
as
I
share
stories
of
strength
,
resilience
and
hope
,
from
personal
experiences
to
expert
insights
.
I'm
your
host
,
alana
,
and
this
is
IndoBattery
charging
our
lives
when
endometriosis
drains
us
.
Welcome
back
to
IndoBattery
.
Grab
your
favorite
cup
of
coffee
or
your
cup
of
tea
and
pull
up
a
chair
at
the
table
with
me
.
Speaker 1
0:49
Can
you
believe
how
quickly
this
year
has
flown
by
?
It
feels
like
just
yesterday
.
We
were
setting
goals
and
dreaming
big
for
2024
.
Now
,
as
we're
staring
down
the
new
year
,
I
want
to
take
a
moment
to
reflect
not
just
on
our
personal
journeys
with
health
,
but
on
how
we
approach
change
as
a
whole
.
The
EndoYear
Reflection
Series
is
like
a
guiding
light
for
sparking
thoughtful
transformation
.
This
series
is
all
about
nuggets
of
wisdom
,
moments
of
clarity
and
inspiration
to
fuel
change
we
all
see
,
not
just
for
ourselves
,
but
for
the
communities
we're
part
of
.
Speaker 1
1:21
One
of
the
topics
I
became
deeply
passionate
about
this
year
is
accessible
and
equitable
care
for
all
.
It's
not
just
a
lofty
goal
,
it's
a
necessity
.
In
episode
82
,
I
sat
down
with
the
amazing
Chanda
Hinton
,
who
opened
my
eyes
to
this
in
ways
I
never
expected
.
Chanda
,
who
experienced
a
spinal
cord
injury
that
left
her
in
a
wheelchair
,
shared
her
journey
of
finding
life-saving
medical
care
,
but
also
the
stark
realization
that
traditional
treatments
alone
often
fall
short
in
providing
a
good
quality
of
life
.
Chanda
introduced
us
to
the
power
of
therapeutic
modalities
,
how
they
can
significantly
enhance
and
prolong
quality
of
life
,
not
just
for
those
with
visible
disabilities
,
but
also
for
people
with
invisible
ones
.
It
was
a
conversation
filled
with
relatability
,
motivation
and
yes
,
a
little
frustration
.
Here's
a
clip
from
our
chat
that
truly
captures
her
insight
.
Speaker 2
2:17
Why
that
injury
created
what
I
shared
earlier
was
because
,
you
know
,
when
I
was
shot
,
I
was
thrown
into
a
medical
model
rightfully
so
,
to
save
my
life
,
as
I
was
just
shot
,
but
also
into
the
medical
model
as
it
relates
to
how
was
I
going
to
address
my
spinal
cord
injury
for
the
rest
of
my
life
.
And
what
that
initially
looked
like
was
,
after
rehab
,
I
would
sit
in
a
power
wheelchair
and
I
would
consume
a
ton
of
medications
for
the
rest
of
my
life
,
and
after
doing
that
for
probably
a
decade
,
that
was
not
the
way
that
my
body
or
,
I
think
,
many
,
many
people
are
able
to
sustain
,
in
the
sense
that
it
wasn't
a
vibrant
.
I
was
constantly
sick
.
The
medication
would
cause
additional
secondary
conditions
.
So
when
I
turned
21
,
I
started
having
chronic
pain
.
Speaker 2
3:08
I
was
added
another
medication
,
which
was
a
Percocet
,
during
2003
,
when
the
opioid
epidemic
was
at
its
peak
,
and
so
I
became
extremely
sick
by
utilizing
the
traditional
medical
model
,
and
from
there
I
got
really
sick
.
I
became
bed
bound
,
I
weighed
59
pounds
.
I
needed
to
be
hospitalized
for
medical
intervention
,
which
I
find
a
little
bit
interesting
,
like
I
was
shot
and
I
used
medical
intervention
to
save
my
life
,
but
then
the
overall
utilization
of
medication
then
resulted
in
me
needing
medical
intervention
again
to
save
my
life
.
So
it
was
interesting
to
see
the
difference
or
the
variance
between
those
two
scenarios
,
knowing
that
medicine
has
such
a
beautiful
place
in
our
lives
and
,
at
the
same
time
,
can
also
be
a
detriment
to
our
lives
.
And
so
that
balance
,
or
seeing
those
variances
and
finding
a
balance
,
was
really
,
really
critical
to
me
,
and
so
that's
when
I
started
doing
integrative
therapy
.
I
wanted
to
make
sure
that
I
balanced
the
medication
that
I
needed
to
take
,
the
medication
I
didn't
need
to
take
,
but
then
also
substitute
acupuncture
,
massage
and
movement
to
my
body
.
Speaker 2
4:20
Given
my
paralysis
,
I
had
no
ability
to
move
anymore
,
Like
.
So
if
I
could
have
,
if
I
could
have
gone
to
a
gym
,
awesome
if
I
was
still
moving
.
But
because
I
can't
move
,
I
have
to
rely
on
other
humans
to
move
my
body
,
and
that
doesn't
mean
that
that's
any
less
.
I
still
should
go
to
the
gym
.
And
if
that
looks
like
it's
a
person
that's
doing
that
for
me
a
physical
therapist
,
an
adaptive
yoga
provider
,
a
massage
therapist
it's
essential
to
living
a
vibrant
life
as
someone
who
doesn't
use
mobility
aids
or
face
the
challenges
of
visible
disabilities
,
I
hadn't
fully
considered
the
hurdles
others
encounter
daily
.
Speaker 1
4:58
This
conversation
made
me
realize
how
often
we
overlook
experiences
of
those
with
disabilities
,
visible
or
invisible
,
in
discussions
about
endometriosis
and
chronic
illness
.
Chanda
also
shed
light
on
societal
challenges
for
those
with
disabilities
.
Here's
a
moment
that
really
stuck
with
me
.
Speaker 2
5:14
Yeah
,
I
think
that
my
sense
granted
,
being
a
woman
with
a
spinal
cord
injury
,
there's
some
that
apply
to
that
component
of
it
,
but
there's
bigger
pieces
that
comply
to
all
of
us
,
right
?
I
know
that
with
the
work
that
I've
been
doing
,
it's
been
very
devastating
to
see
that
the
center
is
more
accommodating
and
physically
accessible
to
people
with
disabilities
than
what
we've
always
seen
as
the
traditional
model
,
such
as
physician
clinics
or
specialty
clinics
,
meaning
,
like
,
if
you
want
to
go
get
your
mammogram
,
there's
not
very
many
machines
that
can
do
that
,
that
are
accessible
to
people
.
So
the
thing
is
is
that
we've
been
living
30
years
post
the
ADA
,
which
was
created
in
1990
.
And
we
are
still
coming
up
against
the
most
disparaging
civil
rights
violations
in
our
healthcare
system
that
really
,
to
me
,
are
completely
unacceptable
.
And
this
has
kind
of
been
the
new
project
that
I've
been
working
on
.
And
I
believe
again
that
these
are
providers
that
went
to
school
,
wanted
to
become
a
physician
,
because
they
believed
in
healing
,
they
believed
in
wanting
to
help
people
and
again
,
they've
been
caught
up
in
the
bureaucratic
process
of
it
because
they
only
get
paid
so
much
by
so
many
individuals
in
order
to
make
what
it
is
that
they
need
to
do
get
done
and
they're
limited
in
terms
of
what
is
covered
.
And
so
and
some
of
these
,
I
would
say
,
providers
are
within
institutions
,
that
if
the
institution
doesn't
support
it
,
they
as
a
provider
have
very
little
authority
to
make
any
level
of
change
.
And
so
I
see
all
of
those
one
the
systems
being
the
issue
,
and
then
I
also
see
our
own
kind
of
state
and
federal
government
needing
to
step
up
to
the
plate
and
just
say
,
hey
,
there's
some
violations
occurring
and
compliance
is
going
to
start
coming
down
and
so
that
people
,
all
people
,
have
equitable
access
to
healthcare
and
can
be
put
on
a
treatment
table
,
get
their
pap
smears
once
a
year
.
Like
those
things
are
not
happening
today
.
Like
people
are
being
turned
away
from
healthcare
because
they
have
a
disability
,
because
people
are
so
uncomfortable
,
have
never
had
the
education
or
the
financial
ability
to
care
for
them
,
and
so
it's
interesting
.
So
those
are
the
major
barriers
kind
of
highlights
there's
.
Obviously
it's
far
more
complex
than
that
.
Speaker 2
7:42
I
think
the
other
components
is
that
there's
lots
of
biases
in
our
health
care
systems
,
as
well
as
gaslighting
,
and
so
you
know
the
health
care
.
Gaslighting
is
just
one
of
those
things
that
I
feel
a
lot
of
folks
with
disabilities
unfortunately
have
to
experience
which
results
in
a
lot
of
trauma
,
because
,
right
when
they
say
that
,
oh
,
it's
all
in
your
head
like
,
oh
,
you
don't
know
what
you're
like
,
you
know
,
like
we're
the
provider
,
it's
like
no
,
no
,
no
,
no
.
There's
this
thing
now
called
you
know
,
patient
advocacy
,
and
there's
this
thing
called
that
what
I
feel
is
real
and
it's
not
okay
for
you
to
determine
otherwise
.
And
so
I
think
that
there's
that
ongoing
piece
,
as
well
as
the
biases
that
providers
,
depending
on
their
age
,
age
or
their
cultural
background
,
some
can
look
at
disability
in
a
very
disparaging
way
.
Speaker 2
8:30
There
was
an
article
of
a
research
where
there
were
all
these
physicians
in
the
room
and
they
asked
them
to
raise
their
hand
if
they
believed
that
their
patients
with
disabilities
could
be
healthy
.
And
no
one
raised
their
hand
because
their
association
that
disability
and
health
,
good
health
or
disability
and
wellness
could
coexist
wasn't
even
a
reality
to
them
.
Wow
,
that's
crazy
to
me
.
So
we're
being
served
by
providers
that
don't
even
believe
that
we
can
be
healthy
people
.
Yeah
,
what
kind
of
direction
and
care
are
they
going
to
give
us
?
Not
very
good
,
right
,
like
they
might
just
think
that
they're
trying
to
put
band-aids
on
things
just
to
keep
us
alive
for
as
long
as
we
can
,
but
in
reality
it's
like
no
,
we
can
live
for
a
really
long
time
because
we're
healthy
,
productive
people
in
our
society
.
So
it's
interesting
.
Disability Advocacy and Legal Rights
Speaker 1
9:29
But
Chanda's
story
was
just
the
beginning
.
It
fueled
my
desire
to
learn
more
about
the
intersection
of
disability
and
advocacy
.
That
curiosity
led
me
to
Bryce
Rafferty
,
a
staff
attorney
with
the
Colorado
Cross
Disability
Coalition
,
who
joined
me
for
episode
89
and
90
.
Bryce
took
us
on
a
deep
dive
into
the
Americans
with
Disabilities
Act
,
or
the
ADA
what
it
is
,
what
protections
it
offers
and
how
it's
evolving
to
address
invisible
disabilities
.
Bryce
doesn't
just
talk
about
laws
.
He
gives
us
practical
tools
for
understanding
our
rights
and
navigating
systems
that
well
,
let's
face
it
,
aren't
always
designed
to
support
everyone
equally
.
Hearing
Bryce
talk
about
this
inspired
me
to
dig
a
little
bit
deeper
.
Speaker 3
10:12
The
ADA
defines
disability
as
any
kind
of
condition
,
physical
or
mental
impairment
that
substantially
affects
or
limits
a
major
life
activity
,
and
so
you're
going
to
have
a
lot
of
argument
over
what
does
substantially
limits
mean
?
What's
the
major
life
activity
?
Speaker 1
10:36
Right
.
Speaker 3
10:36
And
there
has
been
,
and
there
will
continue
to
be
,
a
lot
of
litigation
and
argument
about
that
.
There
have
been
actually
recently
.
This
is
one
thing
I'm
working
on
.
I
am
putting
into
plain
English
,
as
best
as
I
possibly
can
,
a
bunch
of
new
rules
and
regulations
that
are
correlated
to
the
Rehabilitation
Act
,
which
is
kind
of
a
sister
act
of
the
Americans
with
Disabilities
Act
,
and
how
these
laws
work
,
at
least
federally
,
and
I
mean
it's
similar
with
states
.
But
I
mean
you
take
Congress
right
,
and
so
Congress
identifies
a
problem
and
in
the
case
of
disability
it's
okay
.
Speaker 3
11:15
We
have
a
very
large
subset
of
our
population
that
is
not
integrated
into
society
.
They're
not
in
the
workforce
,
they're
not
able
to
have
independent
lives
.
These
are
people
who
are
capable
of
and
want
to
be
in
society
,
but
they're
in
assisted
living
facilities
under
very
difficult
conditions
,
often
having
to
deal
with
neglect
,
abuse
.
So
the
whole
idea
really
and
this
came
out
of
the
culture
revolution
in
the
60s
and
70s
Initially
the
Rehabilitation
Act
was
passed
in
1973
.
Americans
with
Disabilities
Act
,
the
ADA
,
was
in
1990
.
And
then
there's
a
bunch
of
case
law
and
courts
interpreting
these
things
and
then
these
regulations
that
come
out
.
Speaker 3
11:59
But
going
back
to
the
Rehabilitation
Act
this
summer
a
bunch
of
new
rules
and
regulations
were
passed
that
go
into
great
depth
and
help
in
defying
disability
.
Speaker 3
12:11
They
take
that
definition
that's
in
the
ADA
,
you
know
,
substantially
limiting
major
life
activities
,
and
what
an
impairment
is
.
Speaker 3
12:20
And
people
might
have
heard
about
the
Supreme
Court
decision
that
overturned
Chevron
,
and
I
mean
you
might
like
hear
that
phrase
and
have
no
idea
what
it
means
.
But
basically
what
it
means
in
practice
is
that
Congress
and
other
administrative
agencies
,
like
the
Department
of
Health
and
Human
Services
,
for
instance
,
in
this
case
,
have
to
be
extremely
specific
when
they
are
defining
both
who
benefits
from
certain
rules
,
how
they're
supposed
to
work
,
what
context
they
apply
in
,
where
they
don't
.
And
so
these
rules
that
were
just
promulgated
and
made
into
effect
in
July
,
I
believe
go
into
great
detail
and
they
add
chronic
fatigue
syndrome
,
they
add
COVID
,
they
add
a
lot
of
invisible
disabilities
,
which
is
great
to
see
because
that
is
a
very
underserved
population
,
to
your
point
.
So
,
generally
speaking
,
the
law
really
defines
disability
in
that
kind
of
big
umbrella
term
of
an
impairment
that
substantially
limits
a
major
life
activity
,
and
we're
getting
a
lot
more
help
from
the
Department
of
Health
and
Human
Services
in
defining
what
all
those
elements
are
and
providing
like
a
ton
of
examples
,
which
is
great
yeah
.
Speaker 3
13:33
Because
then
you
can't
argue
that
in
court
,
or
you
can
point
to
an
actual
regulation
and
get
an
answer
.
Speaker 1
13:40
One
of
the
biggest
takeaways
from
my
conversation
with
Bryce
was
this
Creating
change
isn't
just
a
job
for
policymakers
or
advocates
.
It's
something
we
all
have
to
be
part
of
,
whether
it's
educating
ourselves
,
standing
up
for
our
rights
or
simply
listening
to
those
who
face
different
challenges
.
Every
small
action
matters
.
Bryce's
passion
was
contagious
and
I
walked
away
with
a
renewed
sense
of
conviction
to
step
out
of
my
bubble
and
push
for
change
,
not
just
for
myself
,
but
for
others
.
Getting
to
know
Chanda
and
Bryce
has
been
a
gift
,
not
just
because
they're
fellow
Coloradans
,
but
because
they've
expanded
my
perspective
in
ways
I
never
anticipated
.
Empowering Advocacy and Reflection Through Podcast
Speaker 1
14:20
I
encourage
you
to
revisit
these
episodes
.
Whether
it's
your
first
time
listening
or
your
fifth
,
I
promise
you'll
walk
away
with
fresh
insights
and
a
fire
to
make
a
difference
.
Thank
you
for
joining
me
as
we
approach
the
final
episodes
of
our
EndoYear
Reflection
Series
.
Be
sure
to
subscribe
so
you
don't
miss
a
moment
.
Remember
knowledge
isn't
just
power
.
It's
the
fuel
that
helps
us
advocate
for
the
care
we
deserve
and
drive
meaningful
change
.
I'm
grateful
for
everything
I've
learned
this
year
,
and
I
hope
these
episodes
have
helped
you
feel
the
same
.
Until
next
time
,
continue
advocating
for
you
and
for
those
that
you
love
.