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Discover the truth behind endometriosis guidelines and research as I, Alanna, join forces with trailblazing patient advocates to uncover the latest insights in the complex world of endometriosis care. We’re peeling back the layers on the updated clinical guidelines from esteemed health organizations and addressing the often undisclosed challenges when evidence is sparse. With a critical eye, we evaluate potential biases and conflicts of interest that could tint the recommendations, directly impacting the outcomes for those affected by this condition.
Join us as we embark on an enlightening journey through the first week of Endo Battery Fast Charged, where knowledge is power and solidarity fuels change in the world of endometriosis.
Articles and Links
Endometriosis: A review of recent evidence and guidelines
https://www1.racgp.org.au/ajgp/2024/january-february/endometriosis
Social Media, Endometriosis, and Evidence-Based Information: An Analysis of Instagram Content
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10778603
Delayed diagnosis and treatment of adolescents and young women with suspected endometriosis
https://www.sciencedirect.com/science/article/abs/pii/S2468784724000163?via%3Dihub
A Pilot Feasibility Multicenter Study of Patients After Excision of Endometriosis
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3662751/
Endometriosis in Adolescents: A Systematic Review
https://journals.sagepub.com/doi/abs/10.5301/je.5000264
Complete laparoscopic excision of endometriosis in teenagers: is postoperative hormonal suppression necessary?
https://www.fertstert.org/article/S0015-0282(11)00335-9/fulltext
Fear of progression, depression, and sleep difficulties in people experiencing endometriosis-pain: A cross-sectional study
https://www.sciencedirect.com/science/article/pii/S0022399924000072?via%3Dihub
Endometriosis and mental health: a population-based cohort study
https://www.ajog.org/article/S0002-9378(24)00064-4/pdf
Relationship of migraine and other forms of chronic pain
https://www.sciencedirect.com/science/article/abs/pii/B9780128233573000276?via%3Dihub
Resources and insights provided by: Heather Guidone BCPA, CEC & Kate Boyce BCPA, Endo Girls Blog
Website endobattery.com
Alanna
0:01
Welcome
to
Endo
Battery
Fast
Charged
,
a
series
dedicated
to
keeping
you
informed
and
empowered
in
the
realm
of
endometriosis
.
Alanna
0:08
Teaming
up
with
board-certified
patient
advocates
,
we
bring
you
the
latest
articles
,
research
and
insights
to
equip
you
with
accurate
information
and
a
deeper
understanding
.
Whether
you're
expanding
your
knowledge
,
staying
updated
or
seeking
clarity
,
you're
in
the
right
place
.
I'm
your
host
,
Alanna
,
and
this
is
Endo
Battery
Fast
Charged
charging
and
empowering
your
life
with
knowledge
.
Welcome
back
to
Endo
Battery
Fast
Charged
,
where
we're
all
about
keeping
you
charged
up
and
ready
to
tackle
the
week
ahead
at
lightning
speed
.
Before
we
dive
into
the
highlights
we
have
in
store
for
you
today
,
make
sure
you
take
a
moment
to
check
out
all
the
links
in
the
podcast
description
.
Whether
it's
an
insightful
article
or
valuable
resource
related
to
our
topics
,
these
links
will
provide
you
with
all
the
information
you
need
to
stay
informed
and
empowered
.
So
,
without
further
ado
,
let's
get
started
.
The
first
study
I
want
to
highlight
is
Endometriosis
a
review
of
recent
evidence
and
guidelines
.
The
reason
this
article
is
important
is
because
this
paper
provides
a
summary
of
the
three
most
recent
evidence-based
guidelines
on
endometriosis
by
the
following
entities
European
Society
of
Human
Reproduction
and
Embryology
.
Royal
Australian
College
of
Obstetricians
and
Gynecologists
.
National
Institute
for
Health
and
Care
Excellence
in
the
the
United
Kingdom
,
and
the
reason
this
is
important
is
along
with
the
uptick
and
awareness
about
endometriosis
.
Alanna
1:25
Governing
medical
groups
worldwide
are
updating
their
clinical
guidelines
.
Clinical
guidelines
cover
various
medical
specialties
and
conditions
,
from
preventative
care
and
chronic
disease
management
to
acute
care
and
surgical
procedures
.
Professional
medical
associations
,
government
health
agencies
or
international
health
organizations
typically
publish
them
.
Healthcare
providers
refer
to
these
guidelines
to
ensure
their
clinical
practices
align
in
the
latest
evidence-based
recommendations
aiming
to
improve
patient
outcomes
and
safety
.
The
general
problem
with
these
is
that
clinical
guidelines
are
meant
to
improve
patient
care
and
outcomes
.
However
,
not
all
specialties
have
enough
of
the
highest
quality
of
evidence-based
research
to
be
considered
an
end-all
be-all
.
Endometriosis
is
known
for
lacking
in
quality
research
,
thus
making
the
guidelines
suspect
.
When
substantial
evidence
isn't
available
,
guidelines
will
allow
for
expert
opinion
.
These
options
are
highly
problematic
since
they
are
simply
opinions
that
are
often
from
medical
professionals
with
a
long
list
of
conflicts
of
interest
.
Additionally
,
because
these
individuals
often
have
pertinent
conflicts
of
interest
,
the
data
chosen
in
the
guidelines
are
often
from
problematic
publications
.
Alanna
2:36
With
that
in
mind
,
I
want
to
bring
attention
to
this
next
publication
.
Social
media
,
endometriosis
and
evidence-based
information
and
analysis
of
content
has
stirred
a
lot
of
discussion
and
concern
.
This
study
is
laced
with
conflicts
of
interest
as
well
as
lack
of
true
scientific
evidence
.
It's
based
off
of
many
biases
,
not
researched
from
a
neutral
point
of
view
.
This
analysis
uses
patients'
concerns
and
viewpoints
to
villainize
them
.
Taking
patients'
thoughts
,
feelings
and
concerns
and
using
them
against
them
to
continue
to
push
a
personal
agenda
is
concerning
at
best
.
When
researching
or
reading
studies
or
papers
,
checking
the
bias
or
conflicts
of
interest
are
imperative
.
Alanna
3:15
As
Endometriosis
Awareness
Month
approaches
,
we
see
more
and
more
articles
being
published
or
regurgitated
that
hinder
the
care
and
education
for
those
with
endometriosis
,
which
leads
us
to
our
next
periodical,
Delay
diagnosis
and
treatment
of
adolescents
and
young
women
with
suspected
endometriosis
.
The
study
is
aimed
to
understand
the
delay
in
diagnosis
and
treating
endometriosis
in
adolescents
and
young
women
.
Researchers
looked
at
medical
records
of
cis
young
women
12
to
22
years
old
evaluated
for
endometriosis
at
medical
centers
between
2017
and
2022
.
Of
out
of
400
evaluated
,
68
were
adolescents
or
young
women
.
They
experienced
,
on
average
,
delay
of
four
years
from
symptom
on
set
to
evaluation
.
Common
symptoms
included
painful
periods
and
gastrointestinal
issues
.
Adolescents
and
young
women
with
suspected
endometriosis
face
delay
in
diagnosis
and
treatment
similar
to
adults
.
There
are
some
additional
valuable
resources
that
you
can
look
at
that
touch
on
this
very
topic
,
which
is
one
that
we
continue
to
talk
about
because
,
as
we
know
,
early
intervention
and
treatment
is
important
.
These
three
publications
have
great
content
to
them
The
first
paper
is,
'A
pilot
feasibility
,
multi-center
study
of
patients
after
excision
of
endometriosis',
The
second
resource
is,
'endometriosis
in
adolescents
.
A
systematic
review'
and
,
lastly
,
it's
worth
reading,
'complete
laparoscopic
excision
of
endometriosis
in
teenagers
.
Is
post-operative
hormonal
suppression
necessary
?
'
All
the
links
to
these
studies
are
in
the
description
.
These
articles
will
equip
you
with
the
understanding
and
knowledge
for
early
diagnosis
and
proper
treatment
of
adolescents
.
Alanna
4:53
Another
research
study
worth
mentioning
is
,
fear
,
progression
,
depression
and
sleep
difficulties
in
people
experiencing
endometriosis
pain
across
sectional
study
.
This
study
out
of
Australia
highlights
the
mental
health
challenges
those
with
endometriosis
faced
,
beyond
just
interpersonal
experiences
with
others
,
including
providers
.
It
also
emphasizes
that
it
is
not
just
a
bad
period
but
is
much
more
sinister
to
the
whole
body
and
quality
of
life
.
This
research
looked
at
a
cross-sectional
online
survey
with
206
individuals
with
endometriosis
.
Data
was
collected
on
demographics
,
endometriosis
characteristics
,
pain
intensity
,
fear
progression
,
depression
,
fatigue
and
insomnia
.
They
analyzed
the
association
between
variables
using
correlations
and
path
analysis
.
The
publication
highlights
the
importance
of
addressing
psychological
factors
like
fear
of
progression
and
depression
in
managing
fatigue
and
insomnia
in
individuals
with
endometriosis-related
pain
.
It
also
highlights
the
need
for
future
research
that
should
explore
interventions
targeting
these
factors
to
improve
outcomes
in
our
population
.
Alanna
6:01
A
contrasting
article
to
the
previous
one
is
endometriosis
and
mental
health
,
a
population-based
cohort
study
.
Although
this
paper
has
valid
points
as
it
highlights
the
mental
health
challenges
those
with
endometriosis
face
,
it
also
perpetuates
the
narrative
that
endometriosis
is
a
GYN
disorder
.
Categorizing
this
as
a
GYN
disorder
only
further
antagonizes
healthcare
providers
to
treat
it
as
such
,
as
opposed
to
it
being
a
whole
body
disease
.
When
reading
studies
,
making
sure
that
endometriosis
is
defined
and
categorized
correctly
is
important
to
maintain
credibility
.
Along
with
mental
health
.
Alanna
6:37
A
prominent
discussion
of
nutrition
is
often
on
the
radar
,
although
we
know
food
cannot
cure
endometriosis
.
The
publication
titled,
how
Can
Selected
Dietary
Ingredients
Influence
the
Development
and
Progression
of
Endometriosis
.
Looks
at
the
effect
diet
can
have
on
symptoms
with
more
of
a
scientific
viewpoint
.
This
insight
is
critical
due
to
the
rising
number
of
nutritional
influencers
making
substantial
claims
about
products
that
supposedly
cure
or
alleviate
symptoms
of
endometriosis
,
often
at
exorbitant
costs
.
Many
of
these
products
lack
scientific
evidence
to
support
their
efficacy
.
It's
important
to
scrutinize
such
claims
and
not
fall
prey
to
marketing
tactics
without
credible
research
to
back
them
.
Emphasizing
the
importance
of
evidence-based
approaches
to
managing
endometriosis
fosters
a
culture
of
informed
decision-making
and
responsible
health
practices
.
It's
critical
for
individuals
dealing
with
endometriosis
to
consult
healthcare
professionals
,
who
can
provide
personalized
advice
and
treatment
plans
tailored
for
their
specific
needs
and
circumstances
.
Endometriosis
is
a
complex
condition
with
multifaceted
factors
influencing
its
manifestation
and
progression
.
Acknowledging
this
complexity
helps
dispel
simplistic
dietary
solutions
that
promise
quick
fixes
.
Alanna
7:53
The
last
article
,
but
certainly
not
the
least
,
that
I
want
to
highlight
is
relationship
of
migraines
and
other
forms
of
chronic
pain
.
Although
this
isn't
endometriosis
specific
,
it's
important
to
highlight
because
it
does
mention
that
migraines
can
be
a
contributing
symptom
to
endometriosis
.
But
due
to
the
fact
that
many
of
us
have
other
chronic
illnesses
that
may
be
associated
with
endo
,
it's
worth
understanding
this
study
,
as
migraines
affect
over
a
billion
people
globally
and
is
the
leading
cause
of
disability
.
Migraines
often
coexist
with
other
chronic
conditions
,
worsening
our
overall
health
.
The
associated
chronic
illnesses
they
mentioned
migraines
are
linked
to
are
irritable
bowel
syndrome
,
endometriosis
,
temporal
mandibular
dysfunction
,
fibromyalgia
and
lower
back
pain
.
The
exact
reason
for
these
associations
are
not
fully
understood
,
but
there's
likely
a
two-way
relationship
between
migraines
and
these
conditions
.
This
article
emphasizes
that
migraines
frequently
coexist
with
other
chronic
pain
conditions
,
increasing
the
overall
health
burden
.
Identifying
and
treating
co-morbid
conditions
is
essential
for
a
better
management
of
both
migraines
and
associated
chronic
pain
.
More
research
is
needed
to
fully
understand
the
prevalence
and
connections
between
migraines
and
other
pain
disorders
.
Alanna
9:06
We're
just
started
with
with
all
the
information
that's
out
there
about
endometriosis
.
Thank
you
for
tuning
in
to
today's
episode
.
We
hope
that
you
found
the
information
that
was
shared
enlightening
and
informative
.
You
can
find
the
links
to
all
of
these
articles
in
the
description
.
As
we
wrap
up
,
I
want
to
remind
you
that
the
conversation
doesn't
end
here
.
Endometriosis
and
other
chronic
illnesses
affect
millions
worldwide
and
staying
informed
is
key
to
advocacy
and
support
.
The
publications
and
studies
we
discussed
are
just
the
tip
of
the
iceberg
.
There's
so
much
more
happening
within
this
community
,
from
groundbreaking
research
to
empowering
conversations
.
So
stay
engaged
,
stay
informed
and
,
most
importantly
,
keep
advocating
.
Whether
you're
advocating
for
yourself
or
for
loved
ones
,
knowledge
is
power
.
Until
next
time
,
continue
advocating
for
you
and
for
those
that
you
love
.
