Endo Battery Fast Charged: EP 1

The First Podcast
The First Podcast
Endo Battery Fast Charged: EP 1
Loading
/

Send us a text with a question or thought on this episode ( We cannot replay from this link)

Discover the truth behind endometriosis guidelines and research as I, Alanna, join forces with trailblazing patient advocates to uncover the latest insights in the complex world of endometriosis care. We’re peeling back the layers on the updated clinical guidelines from esteemed health organizations and addressing the often undisclosed challenges when evidence is sparse. With a critical eye, we evaluate potential biases and conflicts of interest that could tint the recommendations, directly impacting the outcomes for those affected by this condition.

Join us as we embark on an enlightening journey through the first week of Endo Battery Fast Charged, where knowledge is power and solidarity fuels change in the world of endometriosis.

Articles and Links

Endometriosis: A review of recent evidence and guidelines

https://www1.racgp.org.au/ajgp/2024/january-february/endometriosis


Social Media, Endometriosis, and Evidence-Based Information: An Analysis of Instagram Content

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10778603


Delayed diagnosis and treatment of adolescents and young women with suspected endometriosis

https://www.sciencedirect.com/science/article/abs/pii/S2468784724000163?via%3Dihub

A Pilot Feasibility Multicenter Study of Patients After Excision of Endometriosis

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3662751/

Endometriosis in Adolescents: A Systematic Review

https://journals.sagepub.com/doi/abs/10.5301/je.5000264

Complete laparoscopic excision of endometriosis in teenagers: is postoperative hormonal suppression necessary?

https://www.fertstert.org/article/S0015-0282(11)00335-9/fulltext

Fear of progression, depression, and sleep difficulties in people experiencing endometriosis-pain: A cross-sectional study

https://www.sciencedirect.com/science/article/pii/S0022399924000072?via%3Dihub

Endometriosis and mental health: a population-based cohort study

https://www.ajog.org/article/S0002-9378(24)00064-4/pdf

Relationship of migraine and other forms of chronic pain

https://www.sciencedirect.com/science/article/abs/pii/B9780128233573000276?via%3Dihub

Resources and insights provided by: Heather Guidone BCPA, CEC & Kate Boyce BCPA, Endo Girls Blog

Support the show

Website endobattery.com

Instagram: EndoBattery

Alanna
0:01

Welcome

to

Endo

Battery

Fast

Charged
,

a

series

dedicated

to

keeping

you

informed

and

empowered

in

the

realm

of

endometriosis
.

Alanna
0:08

Teaming

up

with

board-certified

patient

advocates
,

we

bring

you

the

latest

articles
,

research

and

insights

to

equip

you

with

accurate

information

and

a

deeper

understanding
.

Whether

you're

expanding

your

knowledge
,

staying

updated

or

seeking

clarity
,

you're

in

the

right

place
.

I'm

your

host
,

Alanna
,

and

this

is

Endo

Battery

Fast

Charged

charging

and

empowering

your

life

with

knowledge
.

Welcome

back

to

Endo

Battery

Fast

Charged
,

where

we're

all

about

keeping

you

charged

up

and

ready

to

tackle

the

week

ahead

at

lightning

speed
.

Before

we

dive

into

the

highlights

we

have

in

store

for

you

today
,

make

sure

you

take

a

moment

to

check

out

all

the

links

in

the

podcast

description
.

Whether

it's

an

insightful

article

or

valuable

resource

related

to

our

topics
,

these

links

will

provide

you

with

all

the

information

you

need

to

stay

informed

and

empowered
.

So
,

without

further

ado
,

let's

get

started
.

The

first

study

I

want

to

highlight

is

Endometriosis

a

review

of

recent

evidence

and

guidelines
.

The

reason

this

article

is

important

is

because

this

paper

provides

a

summary

of

the

three

most

recent

evidence-based

guidelines

on

endometriosis

by

the

following

entities

European

Society

of

Human

Reproduction

and

Embryology
.

Royal

Australian

College

of

Obstetricians

and

Gynecologists
.

National

Institute

for

Health

and

Care

Excellence

in

the

the

United

Kingdom
,

and

the

reason

this

is

important

is

along

with

the

uptick

and

awareness

about

endometriosis
.

Alanna
1:25

Governing

medical

groups

worldwide

are

updating

their

clinical

guidelines
.

Clinical

guidelines

cover

various

medical

specialties

and

conditions
,

from

preventative

care

and

chronic

disease

management

to

acute

care

and

surgical

procedures
.

Professional

medical

associations
,

government

health

agencies

or

international

health

organizations

typically

publish

them
.

Healthcare

providers

refer

to

these

guidelines

to

ensure

their

clinical

practices

align

in

the

latest

evidence-based

recommendations

aiming

to

improve

patient

outcomes

and

safety
.

The

general

problem

with

these

is

that

clinical

guidelines

are

meant

to

improve

patient

care

and

outcomes
.

However
,

not

all

specialties

have

enough

of

the

highest

quality

of

evidence-based

research

to

be

considered

an

end-all

be-all
.

Endometriosis

is

known

for

lacking

in

quality

research
,

thus

making

the

guidelines

suspect
.

When

substantial

evidence

isn't

available
,

guidelines

will

allow

for

expert

opinion
.

These

options

are

highly

problematic

since

they

are

simply

opinions

that

are

often

from

medical

professionals

with

a

long

list

of

conflicts

of

interest
.

Additionally
,

because

these

individuals

often

have

pertinent

conflicts

of

interest
,

the

data

chosen

in

the

guidelines

are

often

from

problematic

publications
.

Alanna
2:36

With

that

in

mind
,

I

want

to

bring

attention

to

this

next

publication
.

Social

media
,

endometriosis

and

evidence-based

information

and

analysis

of

Instagram

content

has

stirred

a

lot

of

discussion

and

concern
.

This

study

is

laced

with

conflicts

of

interest

as

well

as

lack

of

true

scientific

evidence
.

It's

based

off

of

many

biases
,

not

researched

from

a

neutral

point

of

view
.

This

analysis

uses

patients'

concerns

and

viewpoints

to

villainize

them
.

Taking

patients'

thoughts
,

feelings

and

concerns

and

using

them

against

them

to

continue

to

push

a

personal

agenda

is

concerning

at

best
.

When

researching

or

reading

studies

or

papers
,

checking

the

bias

or

conflicts

of

interest

are

imperative
.

Alanna
3:15

As

Endometriosis

Awareness

Month

approaches
,

we

see

more

and

more

articles

being

published

or

regurgitated

that

hinder

the

care

and

education

for

those

with

endometriosis
,

which

leads

us

to

our

next

periodical,

Delay

diagnosis

and

treatment

of

adolescents

and

young

women

with

suspected

endometriosis
.

The

study

is

aimed

to

understand

the

delay

in

diagnosis

and

treating

endometriosis

in

adolescents

and

young

women
.

Researchers

looked

at

medical

records

of

cis

young

women

12

to

22

years

old

evaluated

for

endometriosis

at

medical

centers

between

2017

and

2022
.

Of

out

of

400

evaluated
,

68

were

adolescents

or

young

women
.

They

experienced
,

on

average
,

delay

of

four

years

from

symptom

on

set

to

evaluation
.

Common

symptoms

included

painful

periods

and

gastrointestinal

issues
.

Adolescents

and

young

women

with

suspected

endometriosis

face

delay

in

diagnosis

and

treatment

similar

to

adults
.

There

are

some

additional

valuable

resources

that

you

can

look

at

that

touch

on

this

very

topic
,

which

is

one

that

we

continue

to

talk

about

because
,

as

we

know
,

early

intervention

and

treatment

is

important
.

These

three

publications

have

great

content

to

them

The

first

paper

is,

'A

pilot

feasibility
,

multi-center

study

of

patients

after

excision

of

endometriosis',

The

second

resource

is,

'endometriosis

in

adolescents
.

A

systematic

review'

and
,

lastly
,

it's

worth

reading,

'complete

laparoscopic

excision

of

endometriosis

in

teenagers
.

Is

post-operative

hormonal

suppression

necessary
?
'

All

the

links

to

these

studies

are

in

the

description
.

These

articles

will

equip

you

with

the

understanding

and

knowledge

for

early

diagnosis

and

proper

treatment

of

adolescents
.

Alanna
4:53

Another

research

study

worth

mentioning

is
,

fear
,

progression
,

depression

and

sleep

difficulties

in

people

experiencing

endometriosis

pain

across

sectional

study
.

This

study

out

of

Australia

highlights

the

mental

health

challenges

those

with

endometriosis

faced
,

beyond

just

interpersonal

experiences

with

others
,

including

providers
.

It

also

emphasizes

that

it

is

not

just

a

bad

period

but

is

much

more

sinister

to

the

whole

body

and

quality

of

life
.

This

research

looked

at

a

cross-sectional

online

survey

with

206

individuals

with

endometriosis
.

Data

was

collected

on

demographics
,

endometriosis

characteristics
,

pain

intensity
,

fear

progression
,

depression
,

fatigue

and

insomnia
.

They

analyzed

the

association

between

variables

using

correlations

and

path

analysis
.

The

publication

highlights

the

importance

of

addressing

psychological

factors

like

fear

of

progression

and

depression

in

managing

fatigue

and

insomnia

in

individuals

with

endometriosis-related

pain
.

It

also

highlights

the

need

for

future

research

that

should

explore

interventions

targeting

these

factors

to

improve

outcomes

in

our

population
.

Alanna
6:01

A

contrasting

article

to

the

previous

one

is

endometriosis

and

mental

health
,

a

population-based

cohort

study
.

Although

this

paper

has

valid

points

as

it

highlights

the

mental

health

challenges

those

with

endometriosis

face
,

it

also

perpetuates

the

narrative

that

endometriosis

is

a

GYN

disorder
.

Categorizing

this

as

a

GYN

disorder

only

further

antagonizes

healthcare

providers

to

treat

it

as

such
,

as

opposed

to

it

being

a

whole

body

disease
.

When

reading

studies
,

making

sure

that

endometriosis

is

defined

and

categorized

correctly

is

important

to

maintain

credibility
.

Along

with

mental

health
.

Alanna
6:37

A

prominent

discussion

of

nutrition

is

often

on

the

radar
,

although

we

know

food

cannot

cure

endometriosis
.

The

publication

titled,

how

Can

Selected

Dietary

Ingredients

Influence

the

Development

and

Progression

of

Endometriosis
.

Looks

at

the

effect

diet

can

have

on

symptoms

with

more

of

a

scientific

viewpoint
.

This

insight

is

critical

due

to

the

rising

number

of

nutritional

influencers

making

substantial

claims

about

products

that

supposedly

cure

or

alleviate

symptoms

of

endometriosis
,

often

at

exorbitant

costs
.

Many

of

these

products

lack

scientific

evidence

to

support

their

efficacy
.

It's

important

to

scrutinize

such

claims

and

not

fall

prey

to

marketing

tactics

without

credible

research

to

back

them
.

Emphasizing

the

importance

of

evidence-based

approaches

to

managing

endometriosis

fosters

a

culture

of

informed

decision-making

and

responsible

health

practices
.

It's

critical

for

individuals

dealing

with

endometriosis

to

consult

healthcare

professionals
,

who

can

provide

personalized

advice

and

treatment

plans

tailored

for

their

specific

needs

and

circumstances
.

Endometriosis

is

a

complex

condition

with

multifaceted

factors

influencing

its

manifestation

and

progression
.

Acknowledging

this

complexity

helps

dispel

simplistic

dietary

solutions

that

promise

quick

fixes
.

Alanna
7:53

The

last

article
,

but

certainly

not

the

least
,

that

I

want

to

highlight

is

relationship

of

migraines

and

other

forms

of

chronic

pain
.

Although

this

isn't

endometriosis

specific
,

it's

important

to

highlight

because

it

does

mention

that

migraines

can

be

a

contributing

symptom

to

endometriosis
.

But

due

to

the

fact

that

many

of

us

have

other

chronic

illnesses

that

may

be

associated

with

endo
,

it's

worth

understanding

this

study
,

as

migraines

affect

over

a

billion

people

globally

and

is

the

leading

cause

of

disability
.

Migraines

often

coexist

with

other

chronic

conditions
,

worsening

our

overall

health
.

The

associated

chronic

illnesses

they

mentioned

migraines

are

linked

to

are

irritable

bowel

syndrome
,

endometriosis
,

temporal

mandibular

dysfunction
,

fibromyalgia

and

lower

back

pain
.

The

exact

reason

for

these

associations

are

not

fully

understood
,

but

there's

likely

a

two-way

relationship

between

migraines

and

these

conditions
.

This

article

emphasizes

that

migraines

frequently

coexist

with

other

chronic

pain

conditions
,

increasing

the

overall

health

burden
.

Identifying

and

treating

co-morbid

conditions

is

essential

for

a

better

management

of

both

migraines

and

associated

chronic

pain
.

More

research

is

needed

to

fully

understand

the

prevalence

and

connections

between

migraines

and

other

pain

disorders
.

Alanna
9:06

We're

just

started

with

with

all

the

information

that's

out

there

about

endometriosis
.

Thank

you

for

tuning

in

to

today's

episode
.

We

hope

that

you

found

the

information

that

was

shared

enlightening

and

informative
.

You

can

find

the

links

to

all

of

these

articles

in

the

description
.

As

we

wrap

up
,

I

want

to

remind

you

that

the

conversation

doesn't

end

here
.

Endometriosis

and

other

chronic

illnesses

affect

millions

worldwide

and

staying

informed

is

key

to

advocacy

and

support
.

The

publications

and

studies

we

discussed

are

just

the

tip

of

the

iceberg
.

There's

so

much

more

happening

within

this

community
,

from

groundbreaking

research

to

empowering

conversations
.

So

stay

engaged
,

stay

informed

and
,

most

importantly
,

keep

advocating
.

Whether

you're

advocating

for

yourself

or

for

loved

ones
,

knowledge

is

power
.

Until

next

time
,

continue

advocating

for

you

and

for

those

that

you

love
.

Leave a Reply

Your email address will not be published. Required fields are marked *