Vascular Compression Syndromes Can Mimic Endometriosis Pain

Pelvic Pain That Comes Back

SPEAKER_03
0:00

Pelvic
pain
after
endometriosis
surgery
can
feel
like
the
ultimate
betrayal.
You
did
the
research,
you
found
the
specialist,
you
went
through
surgery,
maybe
even
more
than
once.
So
when
the
pain
comes
back
or
never
fully
leaves,
the
immediate
assumption
is
the
endometriosis
must
be
back.
But
what
if
that's
not
always
the
case?
Today
we're
talking
about
something
that's
often
overlooked
in
the
endometriosis
world:
vascular
compressions,
specifically
Metherner
syndrome,
and
how
it
can
mimic,
contribute
to,
or
even
drive
persistent
pelvic
pain.
For
many
people
living
with
endometriosis,
the
instinct
when
symptoms
return
is
to
rush
towards
another
surgery.
But
what
if
the
next
step
isn't
another
operating
room,
but
a
deeper
investigation
into
other
pain
generators?
Because
not
all
pelvic
pain
is
endometriosis.
And
if
we
want
better
outcomes
for
this
community,
we
have
to
start
asking
better
questions.
So
stick
around.

Meet Chelsea And Set The Scene

SPEAKER_03
1:01

Welcome
to
Indobattery,
where
I
share
my
journey
with
endometriosis
and
chronic
illness
while
learning
and
growing
along
the
way.
This
podcast
is
not
a
substitute
for
medical
advice,
but
a
supportive
space
to
provide
community
and
valuable
information
so
you
never
have
to
face
this
journey
alone.
We
embrace
a
range
of
perspectives
that
may
not
always
align
with
our
own,
believing
that
open
dialogue
helps
us
grow
and
gain
new
tools.
Join
me
as
I
share
stories
of
strength,
resilience,
and
hope.
From
personal
experiences
to
expert
insights.
I'm
your
host,
Alana,
and
this
is
Indobattery.
Charging
our
lives
when
Indometriosis
drains
us.
Welcome
back
to
Indobattery.
Grab
your
cup
of
coffee
or
your
cup
of
tea
and
join
me
at
the
table.
Today,
my
guest
is
someone
who
wears
a
lot
of
hats,
most
of
which
she
didn't
exactly
apply
for.
Chelsea
Taylor
is
an
Indo
warrior
who,
like
so
many
of
us
in
this
community,
has
spent
years
navigating
the
confusing
maze
of
chronic
pelvic
pain,
surgeries,
unanswered
questions,
and
the
frustrating
reality
of
symptoms
that
don't
always
fit
neatly
into
one
diagnosis.
At
some
point
along
the
way,
Chelsea
did
what
a
lot
of
us
end
up
doing.
She
became
her
own
researcher,
investigator,
and
professional.
This
doesn't
feel
right,
question
asker.
She's
also
one
of
my
closest
friends,
a
fellow
board
member
and
our
nonprofit,
and
someone
who
can
send
you
a
research
paper,
a
meme,
and
a
voice
note
roasting
the
healthcare
system
all
within
five
minutes.
Chelsea's
journey
has
included
looking
beyond
endometriosis
when
symptoms
persist,
which
led
her
down
the
rabbit
hole
of
learning
about
things
like
vascular
compressions
and
Mae
Turner
syndrome,
something
many
patients
are
never
even
told
to
consider.
And
while
she
is
currently
in
nursing
school,
which
feels
like
a
very
logical
next
step
for
someone
who's
basically
been
forced
to
learn
half
of
medicine
just
trying
to
survive
their
own
body.
Today
she's
here
as
a
patient
sharing
her
experience
and
perspective.
She's
also
one
of
the
smartest,
funniest
people
I
know,
which
means
this
conversation
is
probably
going
to
include
equal
parts
learning,
validation,
and
likely
a
little
sarcasm.
So
please
help
me
in
welcoming
Chelsea
Taylor
to
the
table.
Thank
you,
Chelsea,
for
coming
back
to
the
table.
It's
been
such
a
long
time
since
you've
been
here,
and
I
don't
appreciate
that.
I'm
just
putting
that
out
there.
We've
been
trying
to
make
this
happen
for
like
so
long,
and
it
just
has
not
come
together.

SPEAKER_02
3:31

But
here
we
are.
Here
we
are.
We
finally
made
it
happen.
Yeah.
Happy
to
be
here.
Thank
you
for
having
me
back.

SPEAKER_03
3:36

You
know
that
I
would
have
you
all
the
time
if
I
could.
I
know.

SPEAKER_02
3:39

I
know.

SPEAKER_03
3:40

But
apparently
you
have
to
go
to
nursing
school.
It's
slightly
ruining
my
life,
if
we're
being
honest.
But
it
is
fun.
So
it
is
fun.
Yeah.
For
those
that
don't
know
who
Chelsea
is,
Chelsea
is
like
one
of
my
best
friends
in
this
whole
world
who
I've
met
because
of
this
disease.
And
so
I
met
her
with
the
nonprofit
that
we
run
together.
And
then
it
just
kind
of
like
trickled
into
this
amazing
friendship,
sisterhood,
like
work-wife
relationship
where
debauchery.

SPEAKER_01
4:11

Debauchery.

SPEAKER_03
4:12

A
lot
of
debauchery.

SPEAKER_01
4:13

A
lot
of
debauchery.

SPEAKER_03
4:15

We
get
in
a
lot
of
trouble
together.
We're
not
known
for
being
filtered.
Or
quiet.
Or
quiet.
Yeah.
And
we're
known
to
corrupt
people
for
karaoke.
Yes.
Oh
yeah.

SPEAKER_01
4:27

At
any
point
in
time.
And
a
little
twerking
sound.
A
little
twerking.
You
never
know
what's
going
to
come
from
much.

SPEAKER_02
4:32

You
never
know
what's
going
to
happen.

SPEAKER_03
4:33

But
before
we
get
started,
one
of
the
things
that
we
talk
about
is
like
our
drink
orders.
And
I
can
just
go
ahead
and
tell
everyone
what
our
drink
order
is.
Probably
no.
Yeah.
We
really
need
to
be
sponsored.
Just
peachy
from
Ziggy's.

SPEAKER_02
4:46

The
best
drink
in
the
world.
I
blame
Alana.
Like
I
would
have
so
much
more
money
in
life
if
it
wasn't
for
Alana
introducing
me
to
these
drinks.
Because
I
I
don't
know,
it's
been
like
three
years,
four
years
since
you
introduced
me
to
it.
And
I
can't
even
fathom
how
much
money
I
have
spent
on
just
peaches
in
my
life.
And
I
have
corrupted
a
bunch
of
other
people
with
it
too.
So
all
of
my
other
friends
love
the
Jess
Peaches.
You're
welcome.

SPEAKER_01
5:11

They're
delicious.
So
you're
welcome.
Ziggies.
Ziggies.
Still
waiting.

SPEAKER_03
5:16

Still
waiting
for
that
sponsorship
to
come
through.
It's
fine.
Yeah.
So
okay.
So
now
that
we
have
and
it
is
an
energy
drink,
which
we
don't
need
and
yet
we
don't
need.
Like
it's
kind
of
that
like
good
energy.

SPEAKER_02
5:28

It
just
kind
of
makes
me
a
little
more
squirrely
than
normal,
but
that's
fine.
It's
fine.
It
makes
it
fun.
But
it's
tasty.
Yeah,
it
is
fun.
So
and
it's
delicious.
And
it
is
delicious.

SPEAKER_03
5:38

So
for
those
that
haven't
listened
to
Chelsea's
episode
way
back
when
this
podcast
first
started,
we
are
gonna
rehash
it
just
a
little
bit
because
I
feel
like
not
only
has
your
story
shifted
and
changed
a
lot,
but
it's
also
evolved
in
the
way
that
we
recognize
our
story
as
pieces
of
our
story
coming
full
circle.
I
feel
like
the
more
we've
learned,
the
more
we
realize
that
we
didn't
know
a
whole
lot
going
through
this
process.
And
even
two
or
three
years
ago,
we
didn't
really
know
that
much.
Like
we
knew
very
little
compared
to
what
we
know
now.
Like
a
lot
more.

SPEAKER_02
6:13

So
that's
absolutely

Years Of Symptoms And Gaslighting

SPEAKER_02
6:15

true.
So
yeah,
I
um
have
a
very
typical
endometriosis
story.
So
it
started
with
me
as
a
teenager.
I
was
symptomatic,
I
had
really
painful
periods,
I
had
cramps,
I
had
leg
pain,
and
I
spent
years
and
years
and
years
in
and
out
of
doctors'
offices,
which
is
a
very
familiar
component
of
most
people's
endometriosis
stories.
Um
at
one
point,
I
think
at
the
by
the
end
of
my
journey,
I
think
I
had
seen
over
30
doctors
for
my
different
symptoms
that
I
was
experiencing.
And
I
would
go
through
this
cycle
where
I'd
go
to
the
OBGYN
and
talk
to
the
OBGYN
about
things,
and
they
would
say,
Oh,
this
is
just
normal,
but
your
GI
symptoms
are
weird.
So
they'd
send
me
to
GI
and
I'd
go
to
GI
and
they'd
be
like,
oh
no.
They
would
think
it
was
just
IBS.
And
I
would
get
sent
back
to
my
PCP,
and
then
we'd
look
at
my
urinary
symptoms
and
then
go
to
urology,
and
they
would
say
I
had
painful
bladder
syndrome,
and
it
just
was
this
like
constant
cycle
of
these,
like,
I
want
to
say
like
pseudo-diagnoses,
not
to
say
that
they
aren't,
but
it's
just
when
there's
it
just
didn't
feel
like
they
were
being
investigated.
It
was
just
kind
of
one
of
those,
like,
oh,
you
have
these
symptoms,
IBS.
You
have
these
symptoms,
it's
got
to
be
painful
bladder
or
interstitial
sicitis,
is
also
what
it
was
referred
to.
Um,
and
it
was
like,
so
what
do
I
do
about
these?
And
they
really
didn't
give
me
any
good
options
for
anything.
And
it
was
technically
my
seventh
OBGYN
that
was
like,
hey,
I
think
you
have
endometriosis.
Like
all
of
this
makes
perfect
sense,
but
she
was
not
surgically
skilled
enough
to
handle
the
level
of
disease
that
I
had.
And
so
I
ended
up
seeking
care
through
a
specialist
that
I
found
through
Nancy's
Nook
on
Facebook,
and
went
and
had
my
endosurgery
in
October
of
2020.
And
it
was
awesome.
As
crazy
as
that
sounds.
I
have
never
ever,
like
truly
in
my
life,
like
I
think
about
the
really
important
moments
that
were
in
my
life.
And
it
was
like,
you
know,
meeting
my
husband,
having
my
kids,
and
the
day
I
got
my
endometriosis
diagnosis
because
it
was
such
a
like
powerful
moment
in
my
life
after
over
20
years
of
being
gaslit
and
being
told
that
it
was
in
my
head,
being
told
that
I
needed
a
psychiatrist,
that
I
was
anxious
or
depressed,
and
that's
why
I
felt
like
I
was
dying
every
single
month.
And
so
it
was
just
such
a
profound
moment
in
my
life.
I
remember
sending
my
mom
a
text
and
I
was
like,
I
am
not
crazy,
they
found
endometriosis
like
everywhere.
And
so
um
I
had
excision
surgery,
and
at
the
time
I
also
uh
was
done
having
children
and
we
suspected
adenomiosis,
and
I
also
had
fibroids,
and
so
I
had
a
hysterectomy
at
the
time.
Um,
I
lost
one
ovary
during
that
surgery
due
to
a
large
endometrioma.
We
managed
to
save
my
other
one,
which
was
great
news.
And
at
the
time
I
was
like
so
stoked
to
save
my
ovary
because
I
was
like,
I
won't
go
into
menopause
with
that.
Still
happened.
So
yeah,
um,
which
we'll
talk
about.
But
I
that
was
one
of
those
things
I
learned
years
down
the
road
that
that
can
happen.
So
I
felt
pretty
good
post-surgery.
I
had
some
complications
and
around
the
14-week
mark
that
I
ended
up
being
hospitalized
again
and
I
ended
up
with
an
infection,
and
it
just
kind
of
it
was
a
rough
recovery
for
me.
I
also
do
have
EDS,
and
so
that
definitely
contributed
to
my
compromised
healing,
and
it
just
took
a
lot
longer
for
me
to
kind
of
get
back
to
normal
after
my
surgery
than
what
it
would
take
a
typical
patient,
I
think.
So
went
through
all
that,
um,
made
it
through
my
complications.
I,
you
know,
it
took
about
another
six
months
after
that,
like
I
would
say
mid-summer
of
2021,
where
I
started
being
like,
okay,
like
this
is
kind
of
my
new
normal
baseline.
Like
I
feel
like
I've
healed
from
the
surgeries.
I
ended
up
having
a
second
emergency
surgery
to
fix
a
few
things.
Um,
no
fault
of
the
doctor
or
anything
like
that,
just
my
bad
connective
tissue.
And
I
was
still
kind
of
having
some
issues.
And
it
like
to
the
point
where
I,
when
I
went
in,
I
went
in
for
something,
and
I
was
like,
can
you
see
if
they
actually
took
out
my
uterus?
Because
like
I
still
feel
like
I
have
a
uterus.
Like
I
still
feel
like
I'm
having
these
like
menstrual
cramp
type
feelings,
like
that
kind
of
lower
pelvic
like
heaviness
and
just
kind
of
achy
and
it
was
uncomfortable.
And
it
was
nothing,
nothing
compared
to
what
I
dealt
with
with
the
endometriosis.
Like
that
was
absolutely
like
debilitating.
Could
not
get
out
of
bed,
could
not
go
to
work,
could
not
function.
And
this
was
tolerable,
but
it
was
still
uncomfortable.
And
it
was,
I
was
kind
of
upset,
you
know,
thinking
like,
oh,
my
surgeon
probably
missed
something.
And,
you
know,
starting
to
second
guess
if
I
had
a
quality
surgery,
and
I
just
went
down
this
rabbit
hole
of
like
the
spiral
of
sadness,
because
I
thought
for
sure,
like
I
was
destined
to
be
that
person
that
had
to
have
like
surgery
after
surgery,
and
I
was
just
never
gonna
be
completely
well.
Um,
and
I
started
really
like
paying
attention
to
my
symptoms
and
tracking
things,
and
I
was
really
this
is
one
of
those
things
like
I'm
I
was
lucky
in
a
sense,
because
my
mom
was
diagnosed
with
a
condition
called
May
Thurner
syndrome
when
I
was
a
teenager.
And
with
May
Thurner
syndrome,
it
is
an
iliac
vein
compression.
So
your
iliac
vein
and
arteries
run
down
kind
of
in
your
pelvis.
Your
artery
comes
off
of
the
aorta
and
splits
into
two,
and
then
the
iliac
vein
comes
off
the
vena
cava
and
splits
into
two.
And
what
happens
is
the
artery
sits
over
that
vein
and
compresses
that
vein,
usually
the
left
iliac
vein.
And
my
mom
had
that.
And
so
she
had
had
multiple
blood

Excision Surgery Hysterectomy And Recovery

SPEAKER_02
11:45

clots
from
it
and
had
really
struggled
with
a
lot
of
complications
and
just
serious
pain
and
had
gone
through
a
lot
with
this.
And
so
it
was
something
I
was
kind
of
familiar
with,
and
I
started
really
thinking
about
it
and
paying
attention
to
how
my
legs
felt.
And
I
realized
that
while
the
endometriosis
surgery
fixed
a
lot
of
my
musculoskeletal
issues
that
I
had,
my
back
pain
had
improved
with
my
endosurger.
I
mean,
it
still
didn't
feel
great,
but
I
definitely
it
was
so
hard
because
I
was
really
truly
living
my
life
like
on
a
daily
pain
scale
of
like
a
seven
to
an
eight.
I
mean,
honestly,
every
single
day
I
like
I
was
having
a
hard
time
walking,
I
was
having
a
hard
time
moving
around,
getting
in
and
out
of
bed.
I
couldn't
work
because
I
was
so
ill.
Um,
so
any
improvement
from
that,
you
know,
was
really
nice.
And
it
was
like
easy
to
just
be
like,
okay,
well,
like
this
is
better,
but
it
still
didn't
feel
great.
And
I've
started
paying
attention
to
a
lot
more
of
those
symptoms
and
just
really
kind
of
tracking
how
I
was
feeling
and
tracking
what
was
going
on
in
my
body.
And
um,
I
started
to
realize
that
I
was
still
having
some
issues
with
my
legs,
and
they
just
felt
really
heavy.
And
it
my
pelvis
felt
really
heavy,
and
it's
just
it
felt
like,
you
know,
it's
often
described
as
like
a
hot
bowling
ball
is
like
sitting
in
your
pelvis.

SPEAKER_01
13:05

Yeah.

SPEAKER_02
13:05

And
I
kind
of
felt
that
way.
And
I
was
thinking
about
it,
and
that's
how
my
mom
described
a
lot
of
her
pain
that
she
had
with
her
May
Turner
syndrome.
And
so
I
talked
to
her
a
little
bit
about
it,
and
you
know,
I
was
like,
I'm
really
thinking
that
this
is
something
that
I
should
consider
looking
into.
And
so
I
went
to
my
PCP
and
like
in
true,
like
endo-gaslit
like
trauma
fashion,
had
a
telehealth
appointment
with
her.
And
I
literally
had
sticky
notes
all
the
way
around
my
screen
because
I
was
like,
I
need
to
get
this
referral,
and
I
don't
think
she's
gonna
give
it
to
me.
Like
I'm
so
used
to
just
being
told
no,
like
you're
not
gonna
do
this,
you're
not
gonna
get
this.
This
isn't
you,
this
is
in
your
head.
You
had
surgery,
you
should
be
fine.
You
had
a
hysterectomy,
you
should
be
fine.
And
so,
you
know,
I
went
in
like
overly
prepared,
like
all
these
sticky
notes,
like
all
my
symptoms,
everything
that
I
was
dealing
with,
and
trying
to
get
this
referral.
And
thankfully,
she
was
really
receptive
to
it,
which
was
um
very,
very
nice
surprise
considering
what
I
had
been
through
before.
So
she
gave
me
the
referral.
I
went
to
a
doctor
down
in
Denver
and
uh
was
scheduled
for
what's
called
a
venogram,
where
they
basically
go
in
and
they
make
like
a
little
for
mine,
they
can
go
in
different
places,
but
for
this
one,
they
went
in
and
made
a
little
incision
in
my
neck
and
they
follow
your
veins
down
and
they
just
do
different
like
testing
through
those
veins.
They
do
like
ultrasounds,
like
endovascular,
so
inside
the
vein,
ultrasound,
and
they
kind
of
can
see
like
how
things
are
flowing,
if
there's
compressions
in
there,
what
your
blood
velocities
are,
so
how
quickly
your
blood
is
flowing,
if
it's
flowing
in
the
right
direction.
So
I
had
that
done,
and
they
were
like,
Oh
yeah,
you
have
my
therner
syndrome,
you
also
have
something
called
nutcracker
syndrome,
which
is
a
condition
where
your
renal
vein,
usually
the
left
side,
is
trapped
and
kind
of
squeezed
by
between
your
aorta
and
your
superior
mesenteric
artery,
which
is
that
branch
that
comes
off
of
the
aorta
and
kind
of
runs
down
into
your
abdomen.
And
so
it
was
just
kind
of
squeezed
like
a
nutcracker,
which
is
why
they
call
it
that.
But
it's
a
left
renal
vein
entrapment,
is
the
anatomical
way,
I
guess,
to
describe
it.
And
so
I
had
that,
and
that
made
a
lot
of
sense
because
I
was
had
I
felt
like
I
had
a
kidney
infection,
like
all
the
time.
Like
I
would
get
this
back
pain,
you
know,
that
flank,
uncomfortable,
like
burning
sensation
in
my
back,
especially
if
I'd
been
on
my
feet
for
a
long
time.
So
if
I
was
active
at
all
with
it,
you
know,
cleaning
my
house
within
about
an
hour
of
like
doing
stuff,
cleaning,
being
on
my
feet,
walking,
I
would
get
this
like
searing
back
pain,
like
someone
was
like
stabbing
me
with
like
a
hot
poker.
And
so
things
started
kind
of
coming
together.
And
I
was
like,
okay,
some
of
this
actually
is
making
sense.
I
was
having
some
bladder
stuff,
not
terrible,
nothing
compared
to,
you
know,
to
what
I
dealt
with
with
the
endo,
but
was
still
having
some
weird
like
bladder
sensitivity
issues.
And
so
I
ended
up
pursuing
treatment
through
this
facility
in
Denver,
and
I
had
a
stent
placed
in
my
iliac,
left
iliac
uh
vein.
So,
and
after
that,
I
felt
pretty
good
for
a
while.
I
was
doing
really
well.
It
really
did
change
the
quality
of
my
life.
I
was
able
to
go
back
to
school,
I
was
really
doing
the
things
that
I
wanted
to
do.
We
went
to
Disneyland
like
shortly
after
that,
which
I
had
like
dreaded
going
or
Disney
World.
I
went
to
Disney
World
with
the
kids,
and
it
was
like
I
was
dreading
going
because
I
was
like,
there
is
no
way
that
I'm
gonna
be
able
to
walk.
Like,
I'm
gonna
be
in
the
hotel
the
whole
time
while
everybody
else
is
out
having
fun.
And
I
made
it
the
whole
trip
four
solid
days
walking
through
Disney,
like
15,
20,000
steps
a
day,
and
I
felt
great.
Probably
other
than
being
overstimulated.

SPEAKER_01
16:36

Yeah,
like
it
was
a
lot.

SPEAKER_02
16:38

Um,
thankfully,
my
kids
are
older,
and
so
when
I
did
get
overstimulated,
I'm
like,
you
guys
go
do
what
you
want
to
do,
and
I'm
gonna
go
sit
and
have
a
margarita
at
this
lovely.

SPEAKER_03
16:50

Yeah,
yeah,
yeah,
exactly.

SPEAKER_02
16:51

And
I
let
them
stay
at
the
park
late
with
my
oldest
daughter,
and
so
yeah,
it
was
they
had
a
great
time,
and
I
went
to
bed
a
little
bit
early
a
couple
nights,
and
yeah,
but
I
I
made
it,
you
know,
I
made
the
entire
trip.
I
really
didn't
feel
terrible.
Standing
in
line
was
a
little
tough
on
me.
I
still
find
that
standing
in
one
place,
like
being
stagnant
like
that,
is
hard.
I
can
walk
a
million
steps,
but
don't
make
me
stand
for
more
than
about
five
minutes
in
one
spot.
So
yeah,
it
helped
a
ton.
It
made
a
really
big
difference
in
how
I
felt.
And
then
I
just
started
kind
of
feeling
bad
again.
And
some
of
those
symptoms
started
creeping
back
in.
My
left
leg
was
really
heavy
again.
I
was
really
lucky
because
I
never
had
any
blood
clots
from
this.
Blood
clots
tend
to
be
very
common,
and
a
lot
of
times
how
people
discover
that
they
have
venous
compressions
like
this,
like
May
Terner.
So
I
was
very
lucky
because
I
did
not
have
any
issues

Considering May Thurner After Surgery

SPEAKER_02
17:40

like
that,
but
I
could
just
feel
it
kind
of
creeping
back
in.
So
I
actually
made
another
appointment
with
a
different
doctor,
an
interventional
radiologist
out
of
Denver.
Her
name
is
Dr.
Brooke
Spencer,
and
went
and
saw
her.
And
she
was
highly
suspicious
that
my
stent
was
not
in
the
right
place.
So
we
ordered
some
testing.
I
did
like
a
pelvic
MRI,
we
did
um
a
pelvic
MRV,
which
is
another
type
of
venogram,
and
my
stent
wasn't
in
the
right
place.
So
we
don't
think
it
necessarily
migrated
because
it
was
actually
sitting
lower,
and
typically
if
a
stent
migrates,
I
think
it
usually
moves
in
the
direction
of
the
blood
flow,
which
it
would
maybe
move
upwards
instead.
But
I
think
it
was
just
my
stretchy,
bad
connective
tissue
that
like
then
the
weight
of
it
all
just
kind
of
pulled
it
to
where
it
was
no
longer
where
that
like
bifurcation
is
in
those
veins.
And
so
April
of
2024,
I
went
back
in
for
another
procedure
and
I
had
a
second
stent
placed
and
life-changing,
so
much
better.
Everything's
been
great.
It's
been
almost
two
years
now.
Um,
I
still
go
in
regularly
for
ultrasounds.
I
actually
had
one
just
a
couple
weeks
ago
down
there,
and
everything
looks
really
good.
It's
in
the
right
place,
it's
doing
its
job.
So
I
have,
you
know,
probably
I'd
say
about
eight
inches
of
metal
running
inside
of
me
between
my
belly
button
and
my
groin
on
my
left
side,
but
I
don't
notice
it,
can't
feel
it.
Um,
and
it
has
really
given
my
quality
of
life
back.
I
am
in
nursing
school,
and
I
can't
even
imagine
trying
to
go
through
what
I
am
doing
right
now.
There
is
zero
chance
I
could
make
it
through
some
of
these
clinical
shifts
that
we're
doing
if
I
had
not
had
these
treatments
and
uh
found
the
help
that
I
did
for
what
I'm
doing,
what
I
needed
done.

SPEAKER_03
19:27

Well,
and
it's
interesting
because
like
I
remember
when
you
when
we
first
met.
You
had
already
had
your
stint,
I
think,
at
this
point
when
we
first
met.

SPEAKER_02
19:38

Probably,
yeah.
Yeah.
I
think
I
had
just
gotten
it
done.
Yeah,
it
was
it
was
right
around
when
we
started
our
nonprofit.

SPEAKER_03
19:45

Yeah.

SPEAKER_02
19:46

Um,
before
we
decided
to
make
it
a
nonprofit.

SPEAKER_03
19:48

Right.
So
I'm
pretty
sure
a
dealership
conference
room.
Yeah.
Which
was
amazing.
Um
but
I
do
think
like
during
that
time,
I
remember
you
really
struggling
with
food
a
lot
more.
Like
it
was
it
was
always
like
I
can't,
you
were
losing
weight
like
crazy
because
you
couldn't
keep
food
down.
You
felt
awful
pretty
much
all
the
time.
And
then
as
we,
you
know,
as
a
couple
years
went
on
before
your
second
stint
was
placed,
when
we
were
in
Florida,
and
I'm
gonna
insert
the
picture
because
I
actually
have
a
picture
of
this.
When
we
were
at
the
summit,
you
were
standing
in
the
back
of
the
room
with
one
leg
up
elevated,
and
the
other
leg
like
just
standing
there.
And
I
actually
have
a
picture
of
it.
And
it's
because
it
was
like
looking
back,
it
looks
really
awkward,
but
I
knew
exactly
what
you
were
doing.

SPEAKER_02
20:37

Yeah,
it
was
funny
too,
because
I
remember
Sally
came
up
to
me
and
she
like
looked
at
me
and
she
looks
at
my
leg
and
she
looks
at
me
and
she
goes,
Do
you
have
May
Thurner
syndrome?
And
I
was
like,
I
do,
yes,
because
I
would
always
have
my
leg
up
somewhere
because
if
I
didn't,
all
that
blood
just
sitting
and
pooling
in
my
leg,
it
just
it
would
hurt.
Yeah,
it
was
uncomfortable.
And
so
yeah,
I
was
like
notorious
for
having
my
feet
up
on
the
back
of
somebody's
chair,
or
like
I
think
in
the
picture
you're
talking
about,
it's
like
literally
sitting
on
a
countertop.
Yes,
yeah,
you
know,
and
I
know
which
one
you're
talking
about.
Yeah,
and
I
always
had
it
up,
or
I
would
lay
on
the
floor
and
put
my
feet
up
on
chairs
and
like
I
didn't
care
where
I
was,
like
I
because
it
was
just
like
I
have
to
do
this
or
else
I
feel
like
my
legs
can
explode.
And
so
yeah,
it
was
really
uncomfortable.
And
um,
and
I
did
have
a
lot,
I
had
a
lot
of
food
issues,
and
it
kind
of
goes
with
another
compression
issue.
So
when
I
had
my
complications,
like
between
my
endometriosis
surgery
and
my
complications
from
that,
with
my
endo,
I
had
really
bad
nausea.
And
so
I
was
already
kind
of
having
a
hard
time
like
eating
and
keeping
weight
on.
And
then
with
the
surgery,
I
I
really
just
couldn't
take
very
good
care
of
myself
afterwards.
I
was
still
struggling
getting
enough
protein
in
and
just
getting
enough
calories
in
general.
And
then
after
all
the
complications
and
the
hospitalization,
like
I
just
did
not
feel
well
and
I
lost
so
much
weight.
And
so
I
ended
up
developing
another
type
of
compression,
and
I
was
very
lucky
because
it
was
a
transient.
Kind
of
thing
for
me.
I
was
able
to
fix
it
by
gaining
weight.
But
I
had
something
called
superior
mesenteric
artery
syndrome,
where
again,
it
kind
of
runs
through
that
same
path
that
the
renal
vein,
your
kidney
vein
runs
through,
but
you
have
a
portion
of
your
small
intestine
that
also
runs
between
your
aorta
and
your
superior
mesenteric
artery,
and
it
would
pinch
that
off
and
it
made
eating
like
very
painful.
Yeah.
I
would
just
get
so
nauseous.
Anything
solid
food-wise,
like
I
I
could
take
like
one
or
two
bites
before
I
actually
felt
like
I
was
going
to
throw
up
because
it
made
me
just
so
ill
to
eat
anything.
So
I
had
consulted
with
a
surgeon
out
of
Denver
and
uh
worked
with
him
a
little
bit.
And
I
just
really
was
not
interested
in
having
another
procedure
and
another
surgery
and
have
them
go
in
and
try
to
fix
that
surgically.
Sometimes
it
works
really
well
for
people,
but
I
really
wanted
to
take
a
more
conservative
approach.
And
so
he
had
me
on
a
liquid
diet
for
I
was
on
it
for
seven
months,
where
I
literally
drank
every
single
meal
pretty
much
for
seven
months
straight.
And
in
Disneyland,
actually,
I
drank
most
of
my
meals.
I
brought
my
little
like
mini
blender.
And
so
I
bought
those
insure
or
boost
drinks
and
I
mixed
them
together,
you
know,
with
some
ice
and
throw
a
little
half
and
half
in
there.
And
I
I
I
mean,
when
at
my
worst,
I
was
down
to
92
pounds,
which
I'm
five
foot
five.
So
I
was
like
me
now,
I
was
about
50
pounds
less
than
what
I
weigh
now.
Yeah.
And
so
it
was
a
significant
amount
of
weight
that
I
had
lost.
Um,
you
could
see
all
of
my
ribs
and
my
chest,
like
where
they
attached
to
my
sternum.
And
I
just,
I
mean,
I
looked
ill.
And
so
that
one
was
thankfully
something
that
I
was
able
to
resolve
on
my
own
for
the
most
part.
And
once
I
gained
the
weight
back,
there's
a
little
fat
pad
that
sits
kind
of
in
that
area.
And
there
are
some
patients
who
are
lucky
and
they
can
gain
weight.
And
when
that
fat
pad
increases,
it
buffers
that
space
enough
to
give

Venogram Findings And First Stent

SPEAKER_02
23:55

it
room
so
things
don't
get
so
smashed
down.
And
I
was
one
of
those
patients.
So
I
just
have
to
be
really
cautious,
make
sure
my
weight
stays
within
a
certain
range.
If
it
doesn't,
I
start
getting
symptomatic
again.
But
yeah,
it
was
it
was
a
struggle
there.
You
have
traveled
with
me
a
few
times
where
I
was
just
like,
I
can't
eat
this.
Like
I
can't
eat
anything
today.
Like
I'm
gonna
drink
my
calories
and
hope
that
I
can
function
well
enough
to
get
through
this
because
venous
compression
stuff
can
really
wreak
havoc
on
your
life,
you
know,
and
it's
it's
really
hard
to
kind
of
figure
out
because
it's
so
vague.
Yeah,
there's
so
and
there's
so
much
overlap
in
the
symptoms.
I
mean,
truly,
like
my
endometriosis
symptoms
and
my
pelvic
vein
disease
issues
and
my
May
Thurner
stuff
and
nutcracker
stuff,
like
they've
really
felt
very
similar.
Um
very,
very,
very
similar,
like
to
the
point
again
where
you
know,
I
was
like,
are
you
sure
that
my
uterus
is
gone?
Because
I
feel
like
it's
still
there.
So,
and
it's
just
a
lot
of
that,
you
know,
those
veins
get
full
of
blood,
they
put
pressure
on
the
pelvic
nerves,
they
put
pressure
on
the
other
structures
in
there,
they
get
inflamed,
everything
kind
of
gets
irritated.
And
it
it
really
can
kind
of
mimic
a
lot
of
those
things.
So
I
was
happy
with
the
route
that
I
took
where
I
started
with
the
endometriosis
excision.
Though
it
is
invasive,
like
it's
not
something
like
with
a
stent,
because
stents
are
typically
seen
as
permanent.
So
there
are
times
where
they
will
try
to
go
in
and
remove
them,
um,
but
they're
not.
It's
a
really
dangerous
surgery
because
your
iliac
vein
is
a
giant
vein,
right?
And
a
very
important
vein.
And
it's
very
hard
for
them
to
go
in
and
take
that
out
once
it's
actually
like
set
in
that
vein.
And
so
I'm
glad
that
I
did
the
less
invasive,
like
less
permanent,
I
guess,
solution
first,
pursued
all
that,
got
that
done,
and
then
went
on
with
the
stenting
because
you
know
I'll
have
metal
in
my
body
for
the
rest
of
my
life.
But
my
mom's
had
hers
for
almost
30
years
now,
and
she's
doing
great.
So
she's
got
a
few
stacked
up
in
her
too,
and
she
just
has
we
we
have
matching
interior
hardware.

SPEAKER_01
26:08

So
and
you
don't
set
up
the
metal
detectors
in
the
airport,
so
you're
good.
Right.

SPEAKER_02
26:13

You
know
what's
funny
though
is
when
I
was
super,
super
lean,
like
when
I
had
lost
all
that
weight,
it
did
set
it
off
one
time,
and
like
they
sat
there
and
like
like
I
was
stuck
in
security
for
a
few
minutes
because
it
just
kept
because
I
was,
I
mean,
I
was
skin
and
bones,
so
and
it
was
sitting
like
and
it
ran.
That's
the
only
time
it
ever
happened,
but
now
there's
enough
there
to
cover
it
up.
So
you
but
yeah,
it
was
weird,
and
it's
not
supposed
to
set
them
off,
they
tell
you
it's
not,
but
they
sat
there
and
scanned
over
my
like
lower,
you
know,
left
quadrant,
like
over
and
over.
And
I
was
like,
I
prop,
like
there
is
nothing
here.

SPEAKER_01
26:46

I
promise
you,
I've
been
leggings,
of
course,
because
of
it.

SPEAKER_02
26:49

Yeah,
that's
what
all
you
wear.
Yeah,
yeah,
like
I'm
not
hiding
anything.

SPEAKER_03
26:52

Well,
and
it's
like
you
know
this,
like
you
have
metal
in
your
body,
but
they
don't
know
that,
like
going
through
it,
you
know.

SPEAKER_01
26:59

Right,
yeah.

SPEAKER_03
26:59

But
it
was
in
it.
I
think
the
thing
what's
interesting
about
this
is
I
had
never
heard
of
this
until
I
met
you.
And
when
you
started
bringing
up
all
the
symptoms
that
were
so
similar
to
endometriosis,
I
think
a
lot
of
people
have
like
these
reoccurring
surgeries,
thinking
like
my
endometriosis
is
still
back,
or
it's
come
back,
or
they
didn't
take
care
of
it
all,
or
whatever
the
case
is.
And
so
you're
just
chasing
surgery
after
surgery
after
surgery.
And
the
problem
with
that
is
is
that
the
more
that
you
do
that,
the
more
scarred
tissue
you
have.
And
then
it
does,
I
mean,
could
they
always
find
endometriosis?
Probably.
Like
there,
you
know,
maybe,
I
don't
know.
And
then
some
people,
you
know,
they
get
the
the
pathology
back
and
it's
negative.
And
so
it
there's
that
crushing
feeling
of
like
what
is
going
on
with
me.
And
we're
realizing
that
there
is
a
lot
of
like
linking
between
those
with
endometriosis
and
those
with
vascular
issues,
and
I
don't
know
why
that
is.
I
don't
think
they
really
know
why.
I
think
they're
starting
to
look
into
why
and
investigate
it
more,
but
it
just
feels
like
for
those
that
are
maybe
going
through
figuring
out
symptoms,
like
this
may
be
an
avenue
that
you
want
to
consider.
And
this
is
not
a
surgery
or
an
avenue
that
you
want
just
anyone
for.
You
need
a
specialist
who
really
gets
this
and
understands
it
to
follow
that
journey,
right?

SPEAKER_02
28:22

Yeah.
And
you
know,
I
I
feel
like
it's
one
of
those
things
it's
really
easy
once
you
have
an
endometriosis
diagnosis
to
just
assume
everything's
endo.
You
know,
it's
endo,
it's
endo,
it's
it's
always
endo,
right
because
you
know,
there
is
no
cure.
We
manage
it
surgically
as
well
as
we
can
and
hope
that
we,
you
know,
can
trust
in
our
surgeons
that
they
did
a
good
job
and
they
cleared
out
what
they
saw.
And,
you
know,
but
there
is
always
that
chance
of
recurrence.
And
so
I
think
you
get
trapped
in
that
like
cyclical
mind,
you
know,
like
thought
pattern
where
it's
like
it's
endo,
it's
always
gonna
be
endo.
I'm
always
gonna
have
this.
And
I
think
we
fail
to
consider
that
there
are
a
lot
of
pelvic
pain
generators
that
could
be
a
possibility,
you
know,
between
the
vascular
stuff,
endometriosis,
pelvic
floor
dysfunction,
there's
just
a
lot
going
on
there.
You
can
end
up
with
nerve
entrapments,
you
can
end
up
with
um
like
central
sensitization
issues.
There's
so
much
crammed
in
this
tiny
little
space.
Like,
and
I
think
it's
when
you
see
it
on
like
an
anatomical
model
or
like
in
a
textbook
and
you
see
how
you
know
all
the
organs
look
and
stuff,
it's
nice
and
they're
all
spaced
out,
and
you
know,
you
can
see
everything
in
there
is
smashed.
Like
there,
it
is
like
smooshed
together,
like
they're
all
laying
on
top
of
each
other.
And
so
there's
a
lot
that
can
go
wrong.
And
you
know,
it's
not
just
the
ovaries
and
the
uterus
that
are
there.
You
have
your,
you
know,
intestines,
you
have
your
sigmoid
colon,
you
have
your
rectum,
you
have
all
of
these
pelvic
nerves.
It's
just
there's
so
much
at
play.
And
I
think
it's
really
important
that
we
just
take
a
step
back,
especially
post-surgery.
If
you
have
surgery
with
somebody
who
is
considered
a
specialist,
and
you
am
hoping
did
your
homework
before
you
had
surgery,
you
know
that
they're
doing
a
lot
of
these
surgeries,
you
know
that
they
are
competent
in
what
they're
doing.
They're
not
a
standard
OBGYN
that's
doing
three
or
four
endosurgeries
a
year.
If
you
feel
confident
in
your
surgeon's
abilities
and
you
know
that
they've
had
good
outcomes
typically
overall,
I
think
it
is
worth
investigating
other
pelvic
pain
generators.
And
it's
really
interesting
because,
you
know,
with
our
small
nonprofit
group,
what
are
there
now?
Seven
or
eight
of
us
that
have
made
Thurner
diagnosis.
That
we
know
of
like
those
are
just
people
where
like
we've
talked
about
things,
we've
talked
about
the
symptoms.
Some
of
them
attended
the
endometriosis
summit
where
Brooke
Spencer
did
a
talk
about
these
things
and
pursued
care
after
that.
And
um,
I
I
need
like
a
referral
card
for
MIPS
at
this
point.

Symptoms Return And Second Stent

SPEAKER_02
30:55

Yeah,
like
I've
sent
you
10
patients.
Can
I
get
a
free
ultrasound?
Like
that.
So
many
patients.
Right.
Yeah.
So,
but
so
many
of
them
ended
up
having
this.
And
um,
a
lot
of
them
pursued
treatment
and
were
scented,
some
of
them
are
waiting.
Um,
so
you
you
can
take
a
more
conservative
approach
and
just
watch
it
and
wait
it
and
see
what
happens.
But
for
me,
it
really
made
all
the
difference
in
the
world.
It's
allowed
me
to
have
my
life
back,
it's
allowed
me
to
pursue
the
things
that
I
want
to
pursue
and
do
it
without
being
miserable.
I
could
have
probably
suffered
through
school.
I
could
have
suffered
through
this
all
of
this,
but
like
I
I'm
enjoying
it
because
I
am
not
dreading
going
and
sit,
you
know,
standing
in
the
hospital
for
10
to
12
hours
a
day.
I
can
do
that
and
I
look
forward
to
my
shifts
there,
and
I
look
forward
to
walking
around
and
interacting
with
people
and
doing
stuff,
and
I'm
not
like
dragging
my
leg
behind
me
and
like
which
did
happen
so
many
times.
And
like
patching
lidocaine
patches,
you
know,
where
I
have
like
eight
different
lidocaine
patches
and
a
heat
belt
on
and
like
all
these
other
things.
Like
I
can
go
to
work
or
you
know,
go
to
school
with
like
uh
my
like
bag
that
has
like
a
normal
size
like
travel
thing
of
Advil.
Right.
That's
it.
That's
all
I
really
need
to
bring
with
me,
instead
of
like
an
entire
medical
supply
kit
where
it's
like
I
don't
know
what's
gonna
happen,
I
don't
know
how
I'm
gonna
feel
today,
I
don't
know
if
I'm
gonna
need
this
or
this
or
this.
So
yeah.
It's
been
an
adventure,
but
and
it
took
a
few
years.
And
that's
the
other
thing
is
you
really
have
to
be
patient.
Sometimes
it
takes
time
to
kind
of
figure
out
what's
working
and
what's
not
working.
It
takes
time
to
find
the
right
doctors,
it
takes
time
to
find
the
right
treatments
for
you.
And,
you
know,
start
to
finish
my
endo,
you
know,
surgery.
Really
like
I
started
pursuing
surgery
June
of
2020.
And
here
we
are,
you
know,
but
yeah,
it's
it
takes
time,
you
know.
It
took
me
a
few
years
to
really
get
to
a
place.
And
even
there,
you
know,
I
recently
on
Christmas
Eve
this
year,
I
went
and
had
what's
called
a
greater
sophonous
vein
ablation,
where
you
have
these
like
surface,
kind
of
surface
level
large
veins
in
your
legs.
And
I
still
had
a
little
bit,
like
my
legs,
they
didn't
really
hurt
or
anything,
they
just
get
kind
of
tired.
And
it
wasn't
anything
debilitating,
but
I
had
a
pretty
significant
amount
of
reflux
in
my
legs,
probably
from
years
of
them
just
being
like
blood
pooling
in
them
and
them
not
being
able
to
function
properly
to
get
that
out,
and
maybe
some
like
damage
to
some
of
those
valves
in
the
leg
that
just
were
making
it
to
where
they
just
weren't
performing
the
way
that
they
should.
So
I
went
and
had
that
done
um
over
Christmas
break
down
in
Denver
and
on
Christmas
Eve.
So
it
was
nice.
Merry
Christmas.
Yes,
no,
it
was
great.
I
got
a
I
got
a
nice
little
Valium
nap
and
got
done
and
came
home
and
sounds
delightful
to
me.
Christmas
because
I
was
recovering,
so
it
was
kind
of
nice.
So
yeah.
Sounds
great
to
me,
and
that
helped
a
lot
too.
You
know,
it
took
me
a
few
weeks
to
kind
of
really
get
back
into
things,
and
they
encourage
you
to
walk
as
much
as
possible.
And
I've
been
able
to
get
in
at
least
10,000
steps
a
day
most
days,
just
trying
to
get
everything
moving,
and
uh,
and
I
feel
great.

SPEAKER_03
34:03

So
you've
come
the
wrong
way.
And
I
also
there
was
a
huge
difference
between
when
before
when
before
your
stent
and
your
energy
level.
Like
it
was
so
different.
There
were
moments
where
you
were
like,
I
can't
get
out
of
bed
today.
Right.
Yeah.

SPEAKER_02
34:20

And
now
I
mean
I
I
went
from
being
like
I
mean,
uh
truly
like
very
like
I
was
I
was
at
home
most
of
the
time.
Like
I
really
I
didn't
like
to
leave.
I
would
leave
to
take
my
kids
to
school.
I
wouldn't
go
grocery
shopping.
My
husband
was
managing
most
of
the
things
in
our
lives
that
required
leaving
the
house
because
it
was
I
was
so
tired
that
I
really
like
struggled
with
functioning.
I
mean,
even
socially,
like
it
would
be
really
hard.
I'd
have
friends
go
in
to
do
stuff,
I'd
make
plans
to
go
to
do
stuff,
and
it
was
just
like
I
feel
like
I'm
mono.
I
am
so
tired.
I
feel
like
I
there's
zero
chance
that
I
can
leave
the
house
right
now.
Like
I
like
it
would
be
dangerous
to
be
driving.
I'm
so
tired.
And
having
blood
flow
to
your
brain.
Who
knew?
Who
knew
that
was
gonna
be
the
better?

SPEAKER_03
35:04

Right?
Well,
and
like
not
only
that,
but
like
just
the
overall
feeling
that
you
had
after
your
stint
was
placed,
you
were
completely
different.
Your
brain
fog
was
better.
Yeah,
you
were
able
to
just
like
function
on
a
whole
new
level,
but
it
still
mimics
endosymptoms.
Right.
So
because
so
many
of
us
have
chronic
fatigue,
we
have
chronic
brain
fog.
And
so
I
think
that
that's
what's
so
hard
about
differentiating
between
something
like
May
Turner
or
some
vascular
issue
and
endometriosis.
And
I
really
think,
and
I
I
I
don't
know
if
I
know
anyone
that
has
Mayturner
that
doesn't
also
have
EDS,
which
I
I
do
think
there's
a
huge
correlation
there,
and
I
don't
know
what
that
is,
and
I
can
I
can't
speak
to
that
on
a
scientific
level,
but
it
just
seems
very
prevalent
for
those
who
have
EDS
to
also
have
May
thurner,
nutcracker,
any
kind
of
vascular
issue,
because
if
you
think
of
it,
those
are
connected
tissues.

SPEAKER_02
36:07

Yep,
they
are.
And
I
think
too,
it's
important
to
note
that
you
can
have
May
thurner
anatomy
where
like
that
vein
is
compressed
and
you
may
not
have
symptoms
from
it.
It's
actually,
I
want
to
say
it's
somewhere
like
26-28%
of
people
have
the
anatomy
for
it,
um,
but
they're
not
all
symptomatic.
So,
you
know,
and
it's
it's
hard
to
find
a
lot
of
times.
I
mean,
it
was
never
seen
on
CT
or
any
of
the
other
things.
It
wasn't
until
I
had
MRIs
done
where
and
Venograms
where
they
were
like,
and
my
compression
was
81%
compressed.
So
I
only
had
19%
of
the
blood
flow
that
should
have
been
going
through
that
vein
uh
going
through
it.
And
you
know,
that's
a
pretty
significant
compression.
Um,
sometimes
you'll
see
smaller
numbers
there,
and
and
with
that

Nutcracker And SMA Syndrome Explained

SPEAKER_02
36:50

you
may
be
able
to
treat
or
treat
it
a
little
bit
more
conservatively
and
you
know,
wear
compression
stocks
and
do
other
things
and
avoid
surgery.
But
yeah,
80%
compression.
That's
a
lot.
That
was
a
lot.
That
was
a
lot,
and
I
do
think
there
is
a
link
probably
between
these
vascular
conditions
and
the
connective
tissue
disorder
stuff.

SPEAKER_03
37:10

And
again,
that
connective
tissue
disorder
stuff
and
endometriosis
tend
to
party
together
as
well,
along
with
POTS
and
you
know,
MCAST
and
all
these
other
things.
So
it's
like
this
is
a
massive
rager
of
a
party
of
chronic
illness.
Right?

SPEAKER_02
37:25

Yeah,
and
chronic
diseases
all
seem
to
go
hand
in
hand.
Yeah,
it's
interesting
you
bring
up
the
POTS
stuff
because
growing
up
I
always
had
really,
really
bad
orthostatic
hypotension
where
like
when
I'd
stand
up,
my
blood
pressure
would
just
tank.
Like
I
mean,
in
the
ground,
just
awful
to
the
point
where
like
every
single
time,
I
mean,
I
remember
it
from
like
being
very
young,
standing
up
and
the
whole
world
goes
black.
And
like
I
just
got
to
the
point
where
I
learned
to
like
walk
my
first,
you
know,
five
to
ten
steps,
like
not
being
able
to
see
anything,
just
like
feeling
my
way
around.
And
um,
a
few
times
where
I
fainted,
I
have
a
scar.
I
call
it
my
Harry
Potter
scar
in
my
forehead
because
I
fainted
and
hit
the
banister
once
because
I
stood
up
too
fast.
And
um,
I've
had
that
for
most
like
my
truly
my
entire
life,
like
30
years
that
I
remember
feeling
that
way
and
getting
my
stent
placed.
It's
maybe
happened
five
or
six
times
since
then.
And
there
is
a
link,
it
seems,
and
I'm
not
sure
that
they
know.
There's
a
talk
on
YouTube
where
Dr.
Spencer
goes
into
more
information
about
this
and
more
on
like
a
medical
side
of
things,
but
she
does
talk
about
a
link
between
POTS
and
um
the
these
compression
syndromes
that
people
have,
especially
Mae
Turner
syndrome.
And
she,
I
think
she's
doing
some
studies
on
it
right
now
to
see
kind
of
if
we
can
kind
of
tease
out
what
that
correlation
is
or
how
those
are
connected.
Because
I,
I
mean,
I
it
was
like
it
was
kind
of
a
weird
thing
because
I
just
wasn't
expecting
it.
And
then
I
said,
wait,
I
can
stand
up
without
fainting
or
almost
fainting,
like
five,
I
can
just
like
leap
out
of
my
chair.

SPEAKER_03
39:01

It's
amazing
what
you
notice
when
you
yeah,
like
I
I
noticed
this
with
even
with
my
indo
stuff.
So,
like
the
other
day
I
was
talking
to
Elliot
about
it.
So
I
haven't
had
we
were
talking
about
bloody
noses,
and
I
was
like,
I
haven't
had
a
bloody
nose
since
my
surgery.

SPEAKER_00
39:16

Yeah.

SPEAKER_03
39:17

And
I
didn't
realize,
he
goes,
Yeah,
your
bloody
noses
were
cyclical.
Yeah.
And
we
just
had
to
stop
and
think
about
it.
We
didn't
put
two
and
two
together
until
just
recently
when
we
were
talking
about
it.
And
I
was
like,
oh
my
gosh,
like
this
is
why
it's
so
important
to
continue
learning,
even
after
you've
had
surgery.
Yeah.
Because
I
feel
like
there's
so
many
things
we
learn
about
ourselves
when
we
continue
to
understand
the
things
that
have
affected
and
really
like
invited
themselves
into
our
bodies
in
a
way
that
is
a
lifelong
thing.
We
always
have
to
be
aware
of
these
things,
whether
we're
really
impacted
by
them
at
that
time
or
not.
Being
aware
of
them
and
some
of
the
symptoms
that
go
along
with
it,
I
think
changes
the
outcome
of
our
care
for
everything.

SPEAKER_02
40:00

Yeah,
it
does.
And
I
think
too,
we
get
so
used
to
just
not
feeling
great
that
like
it's
our
baseline.
So
then
when
like
there
were
things,
you
know,
like
the
you
know,
the
dizziness,
the
fainting,
that
type
of
stuff.
Like
I
didn't
even
realize
how
big
of
a
problem
it
was
because
it
was
just
like
part
of
my
life,
you
know.
And
then
once
it
stopped
that
stopped
happening,
it
was
like,
whoa,
like
this
is
really
weird,
you
know,
or
you
know,
with
my
like
leg
vein
ablation
that
I
had,
you
know,
they
bothered
me
a
little
bit,
but
it
wasn't,
I
mean,
you
know,
I'm
so
used
to
just
like
severe
chronic
pain.
And
I
spent
so
many
of
my
years
dealing
with
that
severe
pain.
It's
like
even
these
like
little
small
changes
that
I
had,
like
there,
it
was
actually
pretty
significant
how
much
better
I
felt.
Um,
you
know,
and
it
was,
I
don't
even
think
I
realized
how
much
some
of
these
things
were
affecting
me
until
they
were
gone.
And
I
was
like,
wow,
like
I
actually
feel
way
better.
I
actually
feel
like
maybe
I'm
getting
pretty
close
to
what
a
normal
human
feels
like.
Like
even
sitting
in
a
chair
like
this,
you
couldn't
have
fat.
No,
like
Alana's
been
on
a
plane
with
me
more
than
once.
And
it's
like
I
am
like
a
three-year-old
in
my
chair,
like
I
cannot
sit
because
I
would
just
get
this
like
burning
pain
deep
in
my
um
hips
and
kind
of
my
my
buttocks
joints
there
and
all
that,
and
it
just
hurts
so
bad
to
sit.
And
I
sit
all
day
now.
I
don't
like
to
because
I
like
to
do
it
well.
I
don't
sit
well.
The
ADHD
doesn't
allow
it,
but
yeah,
um,
yeah,
I
like
I
can
sit
on
an
airplane
without
like
driving
everybody
around
me
crazy
because
I'm
squirming
in
my
seat
like
a
three-year-old.

SPEAKER_03
41:39

Well,
and
it
would
like
put
you
out
for
a
while.
Yeah.
So
like
you
would
go
on
an
airplane,
we
would
get
somewhere,
and
then
you
would
be
kind
of
done
pretty
much
after
that.
Like
it
was
like
traveling
took
so
much
out
of
you
just
to
get
to
where
you
needed
to
go,
yeah,
that
you
had
to
plan
accordingly
so
that
you
could
have
time
to
rest,
that
you
can
get
your
legs
up,
you
could
whatever.
And
so
now
I
feel
like
you're
able
to.
I
mean,
we
have
where
we
get
off
the
plane
and
we
just
go.
Right.
And
writing
the
luggage
cart.
Riding
the
luggage
cart.
Oh
my
we
had
had
they
been
in
that
hotel
hall
when
we
were
riding
the
luggage
cart,
I'm
pretty
sure
we
would
have
been
kicked
out.

SPEAKER_01
42:18

Yeah.
Oh
yeah,
no.
It's
a
miracle
that
they
there
was
no
tequila
involved
in
that.

SPEAKER_03
42:22

That
was
just
pure
insanity
on
our
part.

SPEAKER_02
42:24

Yeah,
we
hadn't
even
really
started
being
wild
at
that
point.
And
it
just
yeah,
yeah.
I
I
mean,
I
would
have
to
buffer
in
a
day
from
like
traveling
where
it's
like
I
I
get
to
where
I
am
and
the
rest
of
that
day
is
done.
Yep.
Plan
anything,
like
room
service,
you
know,
maybe
like
order
DoorDash
to
the
hotel,
and
then
the
next
day
I
could
do
stuff.
And
then
coming
home,
the
same
thing.
Like
I
would
always
block
out
the
day
after
a
trip
because
I
needed
an
entire
day
to
just
like
rest
and
like
let
my
body
heal
and
let
everything
get
back
to
where
it's
supposed
to
be.
And
I,
you
know,
sitting
and
being
tense
and
having
that
pain
and
like
my
muscles
hurt,
and
I'd
have
to
book
massages
and
which
are
counterproductive
when
you
have
EDS.
Like,
I
finally
stopped
doing
that
and
I
do
feel
like
it's
helped
a
little
bit.
Um,
but
yeah,
like
you
know,
I
go
to
pelvic
floor
PT.
I
traveled
with
my
pelvic
floor
PT
more
than
once.

SPEAKER_01
43:16

So
sometimes
we
just
bring
her
along.
Bring
her
along
because
we
need
help.
Yeah.
And
she's
super
fun.
Oh
my
gosh,
she's
the
greatest
human
ever.
She
is
she's
part
of
the
debauchery
too.
So
loudest
out
of
all
of
us,
believe
it
or
not.

SPEAKER_02
43:28

Yes,
she
is,
but
she's
so
fun.
So
fun.
Yeah,
I
highly
recommend
traveling
with
your
pelvic
floor
therapist.
Yeah.
If
you
can
do
that,
especially
if
they're
really
fun.

SPEAKER_03
43:38

I
think
that's
what
like
and
we
talk,
we
say
this
every
single,
every
single
episode,
and
I
am
a
broken
rep
record,
but
like
community
matters
because
had
you
not
said
something
and
had
you
not
it
gone
down
this
path,
so
many
people
that
we
know
would
not
have
had
that
diagnosis
because
they
were
able
to
convey
their
symptoms
and
you.
were
able
to
you
know
help
them
consider
that
this
could
be
a
possibility
and
that's
something
that
like
you
can't
you
can't
just
like
go
online
and
look
half
the
time
because
there's
so
many
symptoms
that
are
the
same.
Right.

SPEAKER_02
44:14

Yeah
yeah
and
it's
really
hard.
Now
one
thing
if
you
are
trying
to
kind
of
differentiate
pain
from
vascular
stuff
to
endo
pain
and
it's
not
like
it's
not
a
100%
thing
but
a
lot
of
times
if
you
have
pain
and
you
decide

Endo Versus Vascular Pain Clues

SPEAKER_02
44:30

you
go
rest
and
you
get
off
your
feet
and
especially
if
you
can
get
your
legs
up
a
little
bit
prop
your
legs
up
and
get
some
of
that
blood.
And
if
you
feel
better
that's
actually
a
pretty
good
sign
that
what
you're
dealing
with
is
probably
vascular.
Right.
And
so
you
know
you
can
use
that
as
you
wish
I'm
not
saying
it's
a
diagnostic
tool
or
anything
along
those
lines
but
it
might
help
for
those
that
are
seeking
treatment
where
it's
like
hey
I
feel
really
bad.
I
had
endosurgery
I
notice
that
I
feel
better
once
I
lay
down
and
I'm
off
my
feet
or
I
notice
I
feel
better
when
I
wear
my
compression
socks
or
and
I
highly
recommend
like
vascular
issues
or
not
wear
compression
socks.
They
are
just
they
help
so
much
whether
you
have
the
issues
or
you
don't
they
really
do
make
a
big
difference
in
just
how
your
legs
feel
so
I
have
like
the
really
sexy
ones
that
come
like
all
the
way
up
and
I
put
them
on
with
garden
gloves
my
husband
is
I
was
like
you
are
so
lucky
to
be
married
to
his
trophy
wife.
Right
putting
her
giant
grandma
socks
on
but
they
help
you
know
and
and
I
don't
feel
like
I
have
to
wear
them
like
on
long
days
or
anything
but
if
I
know
I'm
gonna
have
like
a
day
where
I'm
gonna
be
standing
all
day
and
on
my
feet
for
12,
16
hours.
Or
in
an
airplane
or
yeah
like
and
they're
they're
especially
on
an
airplane
because
they're
gonna
help
you
not
end
up
with
blood
clots
hopefully
and
those
can
happen
to
anybody
on
an
airplane.
Yeah
you
don't
have
to
have
weird
crunchy
weird
veins
to
have
that
happen.
So
yeah
highly
recommend
good
compression
socks.
You
can
find
them
on
Amazon
you
can
get
them
Bombas
makes
good
ones
that
I
really
like.

SPEAKER_03
46:02

I
like
theirs
you
can
get
compression
leggings
too.
Yeah
yeah
high
compression
I
know
there's
some
out
there
and
they're
like
I
don't
know
they're
a
couple
hundred
dollars
but
they're
like
really
tight
the
formy
ones.
Yeah
I
have
not
tried
them
I
can't
stand
by
them
and
I
can't
tell
you
whether
to
get
them
or
not
but
they
are
out
there
if
you
need
something
really
high
compression.

SPEAKER_02
46:21

Yeah
yeah
and
they
make
different
gradients
you
know
for
it
like
you
can
get
like
lower
compression
ones
and
you
know
on
days
where
I'm
not
doing
a
lot
I'll
wear
my
lower
ones
but
on
days
where
like
I'm
traveling
or
something
I
put
on
the
the
big
boys
cleaning
the
house.

SPEAKER_03
46:36

They're
attractive
but
you
know
what
I
feel
better
and
I'm
a
nicer
person
when
I
wear
them
so
and
and
you
can
do
what
you
need
to
do
longer.
Like
it
gives
you
the
energy
to
do
it
because
you
don't
have
the
pooling
and
you
don't
have
you
know
like
it
preserves
some
of
that
energy.

SPEAKER_02
46:51

Yeah
it
does.
And
yeah
like
you
said
you
know
it's
not
a
huge
issue
for
me
which
is
great.
Like
I
don't
have
to
wear
them
but
it
definitely
it
definitely
makes
things
just
a
little
bit
happier.

SPEAKER_03
47:00

So
well
that
that's
true
with
like
even
EDS.
Yeah
like
I
think
maybe
that's
why
we
do
do
so
well
with
compression
is
because
we
have
these
bendy
bodies
that
just
do
not
like
to
hold
themselves
up.

SPEAKER_02
47:12

So
that
helps
yeah
with
like
the
fatigue
and
stuff
to
be
squeezed
into
place.
Yeah
me
too
everything
where
it's
supposed
to
be
squeezed
because
yeah
it's
too
easy
for
things
to
not
be
where
they're
supposed
to
be.

SPEAKER_03
47:24

And
I
don't
know
if
I
have
Maythorn
I
haven't
looked
into
the
vascular
stuff
as
much
um
my
I
don't
follow
a
lot
of
that
guideline
but
you
don't
have
to
like
to
still
be
impacted
by
it.
I
think
that's
something
like
I
will
probably
venture
down
that
path
I'm
one
thing
at
a
time
right
like
we
all
do
this
one
thing
at
a
time
and
that's
one
thing
I
want
to
encourage
people
to
do
is
like
even
if
you're
considering
any
sort
of
vascular
issue,
do
one
thing
at
a
time.
Don't
try
to
tackle
everything
at
once
because
the
minute
you
do
that
it
gets
so
overwhelming
and
it
gets
a
little
muddy
like
you
can't
really
differentiate
between
what's
helping
and
what's
not
and
I
don't
know
I
just
that's
something
that
I've
learned
in
this
process
of
like
figuring
out
little
things
that
are
going
little
or
big
things
that
are
going
on
with
me
is
it's
one
step
at
a
time.
Yeah.
Don't
try
to
do
everything
at
once
if
you're
in
this
process.

SPEAKER_02
48:14

Yeah
I
I
agree
with
you.
That's
I
think
I
think
it's
a
really
good
idea
for
people
that
go
through
these
and
you
know
take
it
that
one
step
at
a
time
really
investigate
one
thing
thoroughly
get
treated
for
it.
Give
your
body
time
to
heal.
Yeah
you
know
we
get
in
this
like
oh
you
had
excision
you'll
be
back
to
normal
in
two
weeks
you
can
go
back
to
work
you
can
do
it's
like
no
like
do
not
do
that.
Do
what
you
feel
comfortable
doing
but
it
is
you
know
a
year
long
process
for
your
body
to
heal
from
especially
these
like
extensive
excisions
where
they're
removing
the
peritoneum
and
they're
taking
out
ligaments
and
I
mean
it's
it's
a
lot
on
your
body
and
it
takes
a
long
time
for
your
body
to
truly
heal
from
that.
So
I
think
it
is
good
to
take
things
slow,
take
them
one
at
a
time,
address
them
you
know
individually
and
then
see
what
happens.
And
if
that
doesn't
work
move
on
to
the
next
thing
after
some
time.
And
find
yourself
a
support
system.
And
find
yourself
a
support
system.

SPEAKER_01
49:12

Yeah
I'm
so
lucky
that
I
like
our
pelvic
floor
therapist
brought
us
all
together
and
yeah
it
is
like
I
can't
even
tell
you
how
lucky
we
all
are
to
have
each
other.
Like
Alana
is
just
one
of
my
favorite
humans.

SPEAKER_02
49:26

We
like
we've
talked
about
and
I'm
sure
you
guys
are
tired
of
hearing
about
it
but
we're
tired.
So
much
fun
like
my
face
hurts
after
hanging
out
with
her.
I
don't
know
that
I'm
gonna
make
it
to
the
summit
this
year.
And
I'm
just
like
pretty
grieving
over
trying
to
figure
out
if
I
can
fly
out
like
at
like
nine
o'clock
on
a
Friday
and
fly
back
at
like
seven
o'clock
on
Sunday
night
because
I'm
like
I
can't
imagine
not
going
and
not
having
those
days
of
just
like
hilarious
crazy
it's
so
much
fun.
We
have
the
best
time.

SPEAKER_03
49:59

Yeah
our
Snapchats
are
yeah
private
for
a
reason.
Yeah
it's
it
is
like
it's
so
and
here's
the
thing
is
like
I
think
because
we
get
each
other
we
get
where
we're
coming
from
we
can
joke
around
about
these
illnesses
in
a
way
that
is
like
so
relatable.
Right.
And
then
I
think
the
other
part
of
this
too
is
like
for
us
we're
very
similar.
So
that's
probably
part
of
it.
But
like
the
whole
group
everyone
on
the
board
we
just
get
along
like
it's
not
a
normal
nonprofit
where
you
know
you
might
like
some
people
but
maybe
you
don't
like
the
other
like
that
treasurer
doesn't
let
you
spend
any
money.
No
it's
not
like
that
at
all.
It's
like
such
a
tight
knit
group
right
that
when
you
allow
yourself
the
space
to
do
this
and
like
be
involved
with
people
your
life
is
so
much
richer.
Right.

SPEAKER_02
50:55

Yeah
it
really
it
really
is
I
mean
it's
it's
amazing
and
it's
so
good
because
you
know
on
the
good
days
we
support
each
other
on
the
bad
days
we
support
each
other.
It's
there's
times
where
you
know
in
our
Instagram
messages
it's
just
all
like
hilarious
chronic
illness
there's
a
lot
there's
a
lot
of
poop
talk
in
our
Instagram
messages.
A
lot
which
is
hilarious
you
probably
wouldn't
expect
that
from
Alana
and
I
but
yeah
like
everything
we
just
we
laugh
about
everything.
Because
if
we
weren't
laughing
we'd
be
crying
and
we
don't
want
to
do
that.
We
want
to
find
joy
in
what
we
can
and

Compression Socks And Practical Management

SPEAKER_02
51:30

we
want
to
find
that
sense
of
connection
with
each
other
and
um
sometimes
a
poop
joke
is
what
brings
us
together.
Yep
we
are
part
of
the
Angry
Pelvis
club.
We
are
part
of
the
Angry
Pelvis
club
so
but
mine
is
so
much
less
angry.
Yeah
like
I
feel
like
I
might
have
to
turn
in
my
membership
card
at
some
point
because
it's
just
it's
it's
a
lot
more
scrouchy
than
grandfathered
in
yeah
yeah
I
I'm
an
original
founder
so
you
are
you
I'm
pretty
sure
you're
the
one
that
came
up
with
that
so
I
am
my
husband
was
just
mortified.

SPEAKER_03
51:59

No
both
our
husbands
for
some
reason
don't
like
it
which
I
think
is
really
weird.

SPEAKER_01
52:03

Yeah
Jackson
my
teenage
son
thinks
it's
hilarious
but
that's
why
he's
one
of
my
favorite
kids
in
the
whole
world
he's
he's
definitely
the
favorite
of
the
other
three
that
we
have
that
he's
funny.

SPEAKER_03
52:14

He's
so
funny
and
he's
gonna
be
like
the
one
child
of
yours
he's
the
only
boy
mind
you
yeah
he's
gonna
be
the
one
that
is
like
going
to
be
the
loudest
advocate
for
any
woman
in
his
life.

SPEAKER_01
52:26

Absolutely
yeah
he
is
not
afraid
like
he
went
to
summer
camp
this
summer
and
explained
to
his
entire
cabin
what
maxi
pads
were
because
none
of
them
knew
and
that's
my
kid
and
he
was
like
you
guys
should
know
this
so
yeah
I
was
like
good
job
and
he's
yeah
he's
15
and
just
he's
the
best
he's
he
is
the
best
he's
so
awesome.

SPEAKER_02
52:46

All
my
kids
are
great.
They
are
he's
the
one
that's
like
very
pro
like
endo
like
I
which
is
funny
because
the
other
three
are
girls
and
you
would
think
that
they
would
be
like
no
but
no
he's
the
one
that's
always
like
asking
about
people's
uteruses
and
stuff.

SPEAKER_03
53:01

Always
he'll
scream
uterus
from
like
anywhere
in
the
house.

SPEAKER_02
53:05

Yeah
so
yeah
have
fun
talking
about
uteruses
yeah
all
the
time
every
time
he
leaves
everything
we
know
endometriosis
is
not
a
uterine
disease
we
know
that's
that
too
but
he
just
thinks
the
word
uterus
is
funny
so
yeah
we
do
talk
about
it
a
lot
yeah
so
I
mean
he's
the
best
he
is
the
best
yeah
if
you
could
tell
people
that
are
in
this
journey
three
word
or
three
things
of
advice
like
what
would
it
be
in
trying
to
process
this
so
that
gives
them
a
good
guidance
as
to
like
steps
to
take
so
just
a
lot
like
it
is
with
endometriosis
finding
the
right
specialist
is
so
key
to
this
especially
when
you're
talking
about
getting
things
like
stunts
or
they
can
go
in
and
they
can
place
like
coils
or
like
foam
blocks
in
some
of
these
like
collateral
veins
that
grow
to
kind
of
work
their
way
around
that
traffic
jam
that
you
have.
Having
those
like
a
lot
of
that
stuff
is
permanently
placed.
So
I
think
it's
really
important
that
the
doctor
that
you're
seeing
has
a
good
reputation
uh
that
they
have
a
history
of
good
outcomes
that
they
can
discuss
those
with
you
that
they're
involved
and
they're
paying
attention
to
what
the
new
research
is
saying
that
they're
doing
continuing
education.
And
so
like
with
my
first
stent
that
was
placed
we
think
that
it
probably
wasn't
the
right
size
and
that's
why
it
just
was
not
doing
what
it
was
supposed
to
do.
So
making
sure
that
you
have
a
stent
that's
placed
that's
the
right
size
and
so
it's
really
that
expertise.
Yeah.
You
know
and
a
lot
of
these
doctors
it's
kind
of
like
the
endometriosis
world
where
they
are
like
gaslit
by
their
peers
where
it's
like
what
are
you
doing?
Why
are
you
treating
this
this
way?
Why
are
you
why
are
you
thinking
this
way?
And
they're
kind
of
the
outliers
that
are
treating
these
diseases
and
it's
not
like
it's
they're
doing
really
good
work
for
patients
and
patients
are
having
really
good
outcomes
a
lot
of
times
because
of
this.
You
know
not
everybody
has
a
perfect
outcome
and
I
think
that's
always
important
to
make
sure
that
people
know
you
can
have
complications
you
can
have
you
know
may
not
feel
better
you
may
feel
worse
but
I
feel
like
overall
statistically
it
does
seem
to
make
a
really
big
difference.
So
yeah
that
level
of
expertise
is
very
important
just
like
picking
a
good
endometriosis
surgeon.
You
don't
want
to
go
to
just
anybody.
And
there
are
some
places
you
know
throughout
the
US
that
treat
this
if
you
are
want
to
see
somebody
here
in
Denver
I
do
really
love
Dr.
Spencer's
office.
But
if
you
are
looking
for
somebody
like
she
might
be
able
to
point
you
in
the
direction
of
someone
that's
closer
to
your
home
like
there's
a
lot
of
people
that
travel
to
Denver
like
pretty
regularly
she
sees
people
from
all
over
the
world
that
come
in
and
uh
have
these
treatments
with
her
office
and
the
other
docs
in
her
office
are
great
too.
So
I
like
them
and
I've
done
a
few
things
with
them
over
the
years
and
they've
been
very
very
helpful
and
they're
very
knowledgeable.
So
that's
one
thing
sorry
um
I
do
think
you
really
have
to
keep
fighting
yeah
it's
you
know
it's
a
lot
like
endometriosis
where
you
really
do
get
gaslit
again.
You
know
I
remember
talking
to
my
uh
or
my
PCP
about
it
and
talking
to
her
about
my
symptoms
and
stuff
and
I
was
like
well
I
you
know
I
kind
of
think
the
endo
could
be
back
and
she's
like
well
that's
not
possible
because
you
had
hysterectomy
and
I
was
just
so
irritated.
I
never
went
back
I
found
a
new
doctor
who
I
love
who
is
so
so
knowledgeable
and
does
a
great
job
and
really
like
trusts
me
but
um
and
this
kind
of
goes
also
with
like
finding
good
PCPs
and
finding
good
doctors
that
will
help
you
find
the
right
path
for
whatever
your
pelvic
pain
generators
are
that
are
interested
in
helping
you
explore
getting
better
that
aren't
going
to
sit
there
and
tell
you
that
you
just
have
to
suffer.
Because
I
really
did
think
for
a
long
time
that
this
was
just
going
to
be
my
life
and
I
was
just
going
to
have
this
like
chronic
dull
you
know
gnawing
pelvic
pain
for
the
rest
of
my
life
and
I
that
doesn't
have
to
be
the
case
necessarily
I
do
think
that
I
had
very
good
outcomes
and
I
think
that
there's
a
chance
that
you
other

Finding The Right Specialists And Team Care

SPEAKER_02
57:00

people
may
not
have
as
good
of
an
experience
and
maybe
I
got
a
little
lucky
but
I
don't
usually
get
lucky
when
it
comes
to
medical
stuff.
I'm
usually
the
one
that
has
the
complications
and
gets
hospitalized
and
has
multiple
surgeries
to
fix
things
and
a
lot
of
drama.
So
I
I
just
think
that
advocating
for
yourself
and
finding
the
right
team
to
help
you
navigate
whatever
it
is
whether
it's
hernias,
it's
pelvic
disease
um
venous
disease
whether
it's
endometriosis,
fibroids,
whatever
happens
to
be
causing
your
issues,
just
find
the
right
team
to
help
walk
you
through
it
and
find
like
the
strength
to
really
keep
fighting
because
you're
gonna
get
told
no
a
lot.
You're
gonna
get
told
that
you're
crazy
you're
gonna
get
told
that
that
can't
be
that's
not
how
this
works
it
doesn't
go
that
way
veins
don't
work
like
that.
Well
mine
did
so
and
I
feel
great
now
and
I'm
able
to
pursue
the
life
that
I
want
and
you
know
just
that
there's
hope
on
the
other
side
of
this
I
spent
a
lot
of
years
very
depressed
really
I
mean
just
like
teetering
on
the
edge
of
just
losing
my
absolute
mind
because
I
was
so
ill
and
I
had
no
support
I
had
you
know
great
family
support
and
support
through
friends
and
stuff
but
when
it
came
to
the
medical
system
I
had
nobody
no
one
and
I
was
really
really
hopeless
and
I
there
was
a
lot
of
times
where
it
was
just
very
very
hard
for
me
to
get
out
of
bed
and
just
keep
going
every
day
and
deal
with
what
I
was
dealing
with.
And
I
really
did
feel
like
I
was
crazy
and
being
on
the
other
side
of
it
and
literally
living
my
dream
right
now.
Like
if
you
would
have
told
me
five
or
six
years
ago
that
I
would
be
in
school
like
in
a
fast
paced
program
full
time
that
I
would
be
enjoying
it
that
I
would
love
going
to
lecture
and
sitting
there
for
four
or
five
six
hours.
It's
still
weird
to
me.
I
know
but
it's
so
fun
so
weird
it's
so
interesting.
We
talk
about
cool
stuff.
No
but
I
just
I
you
know
and
that
I
would
be
able
to
go
and
stand
like
last
week
I
stood
in
I
worked
in
the
GI
suite
and
I
stood
in
there
for
like
nine
hours
straight
like
in
one
spot.
I
mean
I
had
to
like
shift
a
little
bit
and
I
got
to
walk
down
up
and
down
the
hall
with
patients
a
few
times
but
it
was
so
amazing
that
I'm
able
to
live
the
life
that
I
want
to
live
and
it's
something
that
has
been
so
out
of
reach
for
me
my
entire
adult
life.
Like
I've
wanted
to
pursue
nursing
since
I
was
young
and
it
was
just
like
I
could
never
do
that.
Like
I
don't
have
the
physical
capabilities
I
don't
have
the
stamina
and
I
am
not
well
enough
to
get
through
uh
an
intense
program
like
that.
Now
I'm
doing
it.
Now
you're
doing
it.
And
I
have
great
friends
I
have
a
great
family
I
have
a
great
husband
and
it's
just
things
you
know
years
ago
I
just
really
never
thought
I
would
be
here
and
be
in
the
place
that
I
am
in
and
I
am
here
now
and
it
it
took
a
lot
of
fight
and
it
took
not
losing
hope
to
get
there.
And
it
took
a
group
of
girls
behind
me
too
that
listen
to
me
cry
a
lot.

SPEAKER_03
59:58

But
I
and
you're
listening
to
me
cry
that
you're
in
nursing
school
because
I
lost
my
day
friend
your
day
friend
sometimes
Alana
and
I
like
to
go
to
lunch
and
have
a
glass
of
champagne.

SPEAKER_02
1:00:12

Yeah.
But
no
I
don't
I
don't
leave
the
house
except
to
go
to
school
and
it
it
really
bothers
me.
I'm
just
telling
you
right
now
yeah
no
I
don't
like
it
either
I
feel
like
I
miss
you
too
much.
I
don't
like
I
don't
see
anybody
anymore.
Even
my
husband
I
come
home
and
I
like
go
sit
in
the
office
and
I'm
just
there
until
like
11
o'clock
at
night
and
he
just
like
walks
by
and
like
wait
I'm
like
sorry
I
gotta
get
through
this
and
I
can't
do
it.

SPEAKER_03
1:00:37

Well
you're
watching
TV
so
sorry
yeah
well
I
am
thankful
that
we
get
to
just
at
least
spend
time
together
today.
Yeah
which
and
I'm
thankful
that
you
did
this
because
we
this
has
been
like
a
really
long
time
coming
where
we've
talked
about
it
forever
because
there
are
so
many
times
that
we've
had
this
conversation
and
we're
like
we
wish
that
we
could
record
this
for
someone
who
is
struggling.
And
I
cannot
tell
you
how
many
people
I
have
come
across
um
who
have
messaged
me
or
whatever
and
I'm
like
and
they
talk
about
me
thirner
they
talk
about
some
sort
of
vascular
issue
and
I'm
like
here's
the
person
to
talk
to
because
she
understands
it
in
a
way
that
I
don't
understand
it.
But
I
think
that
we
need
to
have
some
more
recognition
behind
it
because
I
really
think
that
this
needs
to
be
in
consideration
with
an
endometriosis
diagnosis.
Like
I
don't
think
that
they
need
to
be
looked
at
necessarily
separately
I
think
when
we're
talking
about
doctors
looking
at
the
whole
picture
we
have
to
start
talking
about
this
as
well
as
an
endometriosis
diagnosis.
Like
and
there's
ways
of
non-invasively
finding
out
whether
you
have
this
or
not
you
don't
have
to
have
a
surgery
to
find
if
you
have
any
vascular
compression
issues.
Like
you
can
tell
on
imaging
that
is
something
that
you
can
do.
Yep
you
know
and
I
recognize
not
everyone
has
that
accessible
to
them.
Like
it
it's
that
is
a
privilege
so
I
do
understand
that
from
that
standpoint
but
I
really
think
that
this
is
going
to
be
the
the
future
conversation.
Right.

SPEAKER_02
1:02:09

Well
and
I'm
really
happy
because
I
know
that
you
know
we
have
a
handful
of
endometriosis
specialists
here
in
Colorado
and
I
know
that
they
all
refer
as
soon
as
a
patient
comes
back
post
excision
or
sometimes
they'll
even
send
them
to
MIPS
first
to
get
evaluated
and
then
make
a
plan
from
there
on
if
they
think
that
it's
you
know
especially
if
they're
like
oh
I'm
not
sure
this
is
endo
like
maybe
go
get
this
looked
at
and
then
and
I
think
they're
consulting
with
her
too
and
like
hey
I
should
we
go
this
way
should
we
go
that
way
and
I
you
know
my
I
had
a
surgeon
that
I
was
working
with
um
out
of
the
Pacific
Northwest
who
consulted
with
the
interventional
radiologist
and
went
through
stuff
and
they
both
looked
at
my
scans
and
you
know
and
it's
like
that
type
of
collaboration
is
going
to
make
a
huge
difference
in
patients'
lives.
And
the
more
that
we
can
talk
about
it
the
more
that
we
can
bring
awareness
not
only
to
endometriosis
but
to
all
this
other
stuff
that
happens
to
go
hand
in
hand
with
it
the
better
impact
that
that's
gonna
have
long
term
on
our
patients.

Hope Community And Closing Requests

SPEAKER_03
1:03:10

Yeah.
So
well
and
I
know
like
even
Dr.
Zach
Spiritos
refers
to
Dr.
Spencer
because
there's
so
many
so
much
of
a
correlation
there
with
like
GI
issues
and
nausea
and
all
this
other
stuff.
So
I
think
like
we're
gonna
start
seeing
some
of
that
collaboration
happening
even
more
because
there's
not
a
one
size
fits
all
doctor.
Right.
Yeah
like
they
have
to
I
mean
multidisciplinary
but
is
always
a
term
we'll
use
but
they
can't
work
in
silos
if
you're
gonna
have
better
outcome.

SPEAKER_02
1:03:43

Right.
Yeah
and
when
we
talk
about
that
multidisciplinary
care
you
know
you
need
a
good
endosurgeon
you
need
a
good
pelvic
fluoret
you
need
somebody
that
can
help
you
with
the
nutrition
side
and
you
might
need
a
vascular
specialist
whether
that's
a
vascular
surgeon
or
an
interventional
radiologist
right
someone
who
knows
these
things
because
you
know
it's
it's
very
I
think
it's
you
know
very
anecdotal
but
just
how
much
we've
seen
of
it
in
our
small
group
I
it's
hard
for
me
to
imagine
that
we
are
the
outliers
that
it's
just
a
coincidence
yeah
that
like
half
of
our
group
has
May
Turner
that
we
know
of
like
that
just
does
not
seem
statistically
possible
for
that
to
be
a
coincidence.
So
some
here
somehow
we're
still
here
like
talking
about
this
right
right
so
yep
fight
for
the
care
that
you
need
and
and
it
and
you
know
research
it
look
into
it
understand
what
these
things
mean
um
because
yeah
there
there
are
different
ways
to
treat
it
there's
different
theories
to
how
impression
should
be
treated
some
believe
it
should
be
treated
from
the
top
down.
I
was
really
lucky
because
with
my
stent
placed
I
pretty
much
fix
my
nutcracker
syndrome.
Like
it's
like
I
don't
have
any
symptoms
of
it
anymore.
I
don't
my
last
um
scan
my
renal
vein
is
finally
like
happy
and
free
and
living
its
best
life
whereas
before
it
was
like
scrunched
and
unhappy
it
made
a
big
difference
but
some
people
you
know
have
to
treat
it
a
different
way
and
they
they
do
it
a
little
bit
differently
and
they
treat
from
top
down
and
so
find
the
right
specialist
that's
gonna
help
you
navigate
what's
best
for
your
situation.

SPEAKER_03
1:05:20

Yeah
absolutely
okay
you
have
to
come
back
again
at
some
point
you
can
have
me
I
mean
anytime
in
the
summer
in
the
summer
summer
I'll
come
hang
out
with
you
all
the
time.
I
know
because
I
just
feel
like
it's
so
much
more
I
just
I
just
love
spending
time
with
you.

SPEAKER_02
1:05:33

I
know
I
just
spending
time
even
when
we're
working
we
still
have
fun
like
we
do
work
days
where
we'll
get
I
mean
we
haven't
lately
because
nursing
school
because
my
I'm
not
bitter
about
it
at
all.
You
know
what
someday
you'll
be
happy
I'll
be
done
soon.
I
only
have
a
year
left
so
we're
getting
closer.
But
yeah
it's
we
do
our
work
days
we
have
so
much
fun
we
just
hang
out
we
drink
our
just
peaches
it
is
an
addiction
it's
the
bad
addiction
how
is
That
mine's
almost
gone.

SPEAKER_03
1:06:01

Because
I
don't
know.
I
just
am
a
slow
drinker
sometimes.
Yeah.
Well,
anyway,
thanks
for
coming.

SPEAKER_02
1:06:08

And
thanks
for
having
me.

SPEAKER_03
1:06:10

I
always
love
having
you.
And
if
you
want
Chelsea
to
come
back,
which
I
think
you
might,
leave
it
in
the
comments.
Let
us
know.

SPEAKER_02
1:06:16

And
if
you
don't,
don't
leave
that
in
the
comments
because
that'll
hurt
my
feelings.

SPEAKER_03
1:06:20

And
also
let
us
know
your
drink
order.
And
maybe
I
will
try
that
next
because
I
do
think,
I
mean,
I
like
to
try
new
things
sometimes.
And
maybe
I'll
find
a
new
addiction.
So
you
never
know.
But
until
next
time,
everyone,
continue
advocating
for
you
and
for
others.