Unmasking the Complex World of Hormones with Dr. Sallie Sarrel DPT.

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Unmasking the Complex World of Hormones with Dr. Sallie Sarrel DPT.
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Ever wondered about the magic trio of hormones – estrogen, progesterone, and testosterone – and their role in our bodies? What about the often under-discussed impacts of undergoing a hysterectomy and oophorectomy? Join us as we unravel these complexities with our insightful guests, Sallie Sarrel and Inge. This episode promises to shed light on the incredible synergy between these hormones, their significance for our bone, muscle, and joint health, bladder and cardiovascular systems, and the hurdles in acquiring them.

Brace yourself for a deep dive into the effects of trauma, endometriosis and hysterectomies on hormonal balance. Our guests share their advice on how hormones can be optimally utilized to maintain health. We candidly discuss the implications of patriarchal biases on hormone replacement, highlighting the much-needed role of organizations like AHA in fostering change. From the importance of regular blood work, the intricacies of progesterone use, to the potential impacts of endometriosis on hormonal balance, this episode promises to be a treasure-trove of enlightening conversation and empowering narratives. Don’t miss this engaging episode!

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Discussion on Hormone Replacement and Endometriosis

Speaker 1
0:03

Welcome

to

Endo

Battery
,

where

we

are

sharing

our

endometriosis

journey

and

learning

along

the

way
.

This

podcast

is

in

no

way

meant

to

diagnose

or

give

medical

advice
,

but

a

place

where

you

can

gain

knowledge

and

information

that

can

help

you

to

not

feel

alone
,

as

well

as

become

your

best

advocate
.

We

want

to

learn

with

you

and

support

you

wherever

you

are

in

your

journey
.

Thanks

for

joining

us

as

we

navigate

the

ups

and

downs

and

share

stories

of

strength
,

resilience

and

hope
.

Come

with

us

as

we

dive

deep

into

the

world

of

endometriosis
,

from

personal

experiences

to

expert

insights
.

This

is

Endo

Battery

charging

our

life

when

Endo

drains

us
.

Welcome

back

to

Endo

Battery
.

Join

us

as

we

continue

with

our

part

two

with

Sally

Surrell

and

Inga
.

This

is

where

we

left

off
.

Speaker 2
0:48

So

on

your

last

podcast

I

told

you

I

listened

to

this

a

number

of

times
,

the

other

thing

that

sort

of

struck

me
.

So

you're

probably

fine

if

I

say

this
,

but

both

Alana

and

I

ufrectomy
,

hysterectomy

none

of

that

left
.

And

so

now

we're

on

this

hormone

journey
,

with

not

a

lot

of

literature

out

there

to

support

replacement

with

testosterone

and

I

know

you

specifically

talked

about

estrogen

replacement

and

the

importance

in

that

for

joints

and

ligaments
.

Do

you

have

any

words

of

wisdom

or

any

sort

of

thought

process
,

right

or

wrong
,

when

it

comes

to

testosterone

and

the

role

it

plays

with

that
,

or

is

it

just

specifically

estrogen
?

Speaker 3
1:32

So

it's

not
.

I'm

not

a

hormone

replacement

doctor
,

so

anything

that

I'm

saying

is

just

discussion
.

But

we

are

not

meant

to

be

creatures

without

estrogen
,

progesterone

and

testosterone

like

I

believe

really

ever
,

but

certainly

at

the

young

age

that

many

are

forced

to

go

through

that

with

endometriosis

and

in

terms

of

you

know
,

we

don't

want

to

be

again
,

we're

going

to

get

old

one

day

and

we

don't

want

to

be

osteopenic
,

so

we

don't

want

to

lack

bone

and

to

not

lack

bone
.

You

need

muscle

development

and

you

do

need

many

need

some

testosterone

supplementation

for

that
.

If

it's

done
,

if

your

endometriosis

was

fully

excised
,

then

you

should

be

able

to

find

the

combination

of

testosterone

that

won't

aromatize
,

which

means

transfer

into

estrogen
.

It

may

take

a

couple

of

different

brands
,

it

may
.

You

know

most

people
.

If

they

go

into

early

menopause
,

the

minute

you

get

them

the

right

combo
,

they

like

it's

like

drinking

a

Celsius
.

Speaker 1
2:51

They

think

they're

like

amazing

Right
.

Speaker 3
2:55

I

would

not
.

So

I

told

my

story

on

the

last

podcast
.

But

having

had

that

overtaken

without

consent

and

then
,

given

my

history

with

PCOS

as

well
,

I

went

into

menopause

very
,

very

young
.

I

would

not

have

won

a

national

tennis

championship

had

I

not

been

given

testosterone
.

But

let's

not

negate

the

effects

of

progesterone

as

well
,

and

not

to

mention

bladder

health

and

estrogen
,

as

well

as

cardiovascular

health

and

estrogen
,

because

I

point

out

that

the

Harvard

nurses

study

was

completely

retracted
,

right
.

So

that

study
,

everybody

stopped

giving

it
,

but

they

should

be

giving

it
.

Speaker 3
3:39

And

there

are

studies

about

breast

cancer
,

actually

estrogen

being

protective
,

except

for

one

particular

type

which

you

can

be

tested

for
,

and

as

well

as

neurodegenerative

health
.

And

you're

not

going

to

update

estrogen

the

way

your

system

should

without

testosterone

and

progesterone
.

You

know

we

started

and

I

put

Dolly

in

the

other

room

and

but

Dolly

was

just

hysterectomized

because

she's

a

dog
,

right
,

right
,

you

know

it's

not

a

human
.

I

have

spoken

to

hormone

specialists

who

say

if

she

gets

incontinent

when

she's

older
,

you

might

have

to

smear

a

little

estrogen

on

her

belly
,

and

that

we

see

in

humans

also
.

So

I

had

this

with

a

patient
.

Speaker 3
4:26

She's

has

very

light

bleeding

after

sex
.

Light

bleeding

after

sex
.

You

definitely

have

to

go

to

the

doctor
,

right
?

Right
.

She

goes

to

the

doctor
,

tested

and

she

has

the

hysterectomies
.

So

no

pap

smear
.

But

they

do

everything

they

can

do
.

They

determine

it's

not

cancer
,

right
,

because

you

want

to

rule

that

out
.

And

then

they

send

her

home

and

she's

like

wait
,

sally

says

I

might

need

estrogen
.

Can

we

talk

about

that
?

And

first

of

all
,

it

was

who

is

Sally
?

Speaker 3
4:52

And

second

of

all
,

it

was

no
,

your

tests

are

normal
,

but

you

have

to

be

like

you

can

have
.

That

range

is

not

necessarily

what's

right

for

your

body

and

the

tissue

definitely

fins

without

the

presence

of

testosterone

or

estrogen

or

progesterone
.

So

you

feel

like

you've

had

your

oophorectomy

and

hysterectomy
,

but

your

boobs

are

still

sore
.

That's

usually

absence

of

progesterone
,

not

to

mention

and

this

is

taking

a

little

bit

of

a

whole

other

thing
.

Your

insulin

metabolism

is

going

to

suck

without

these

hormones

and

either

you're

going

to

drink

water

and

eat

a

vegetable

that

isn't

a

carrot
,

because

that's

due

high

in

carbs
,

or

you're

going

to

have

to

supplement

with

something
,

and

if

your

progesterone
,

esterine

testosterone
,

are

off
,

that's

also

going

to

contribute

to

cravings
.

So

now

you

have

all

these

cravings

and

your

insulin

metabolism

sucks
,

you're

just

talking

about

this
,

literally

right

before

this

man
.

Speaker 1
5:55

We

crave

the

sweets

and

I

was

telling

Inga
,

the

minute

I

got

out

of

surgery

from

having

my

excision

hysterectomy
,

opherectomy
,

I

wanted

that

chocolate

chip

cookie
.

And

if

anyone

took

that

chocolate

chip

cookie

away

from

me

I

was

like

what

are

you

thinking

Like
?

I

went

on

a

whole

tirade

because

I

craved

the

sweet

and

I

had

never

done

that

before
.

Speaker 3
6:17

Yeah
,

I

would

never
.

I

don't

want

to

say

never
,

but

unless

I

100%

knew

that

the

ovary

was

diseased

through

and

through
,

I

would

be

really

hesitant

to

take

it

over
.

Speaker 2
6:34

And

most
.

Speaker 3
6:34

MDs

are

that

I

work

with
?

Certainly

not

most

MDs
.

They

just

do
.

They

think

they're

starving

the

endo

and

what

they

are

is

starving

your

elderly

future
.

Yes
,

and

I

think

there's

an

organization

advancing

health

after

hysterectomy

Aha
,

and

they

really

tried

it
.

The

plaques

and

Alzheimer's

they're

showing

our

estrogen

depleted

brains

in

many

people
,

and

so

we

have

to

be

proactive
,

we

have

to

take

the

reins

of

this
,

and

you

have

to

be

careful

who

you

go

to
.

Speaker 3
7:13

First

of

all
,

a

lot

of

people

are

trying

to

take

advantage

of

you
.

Yes
,

I

called

the

state

medical

board

on

someone
,

and

when

I

called

the

state

medical

board
,

it

turned

out

their

medical

license

was

in

Pennsylvania
.

It

wasn't

even

in

New

Jersey
.

I

mean

that
.

But

the

other

thing

is

like

I

had

this
.

Now

I

have

someone

I

really

work

with
.

You

think

I'm

annoying
,

but

we

really

work

together

and

he

you

know
,

and

it

helps
.

But

last

year
,

if

your

testosterone

is

too

high

and

you

have

Hashimoto's
,

you're

going

to

change

the

way

your

thyroid

works

and

that

in

itself

will

raise

your

insulin
,

and

then

you're

not

losing

First

of

all
,

you're

not

losing

anyway
.

Speaker 3
7:54

Right

but

it's

not

what's

right
.

It's

you

have

to

work

with

someone

who's

constantly

taking

levels

and

who's

constantly

working

on

you
,

and

it's

it's

expensive
.

Well
,

and

I

think

the

new

frontier

is

going

to

be

ozembic
,

because
,

instead

of

normalizing

their

hormones
,

a

lot

of

people

are

going

to

turn

to

ozembic

because

they're

getting

this

insulin

response

and

they're

not

going

to
,

you

know
,

and

ozembic

can

do

wonders
.

But

should

we

really

be

normalizing

the

hormones

and

then

using

the

ozembic

if

you

need

it

or

the

manjarro

if

we

need

it
?

Because

I'm

not

against

ozembic

or

manjarro
,

but

it's

like

what
,

what
?

What

is

the

order

that

people

are

doing
?

Because

just

because

you're

thin

doesn't

mean

you're

not

going

to

break

every

bone

in

your

body

when

you're

older
.

Speaker 2
8:42

Right
,

well
,

and

I

think

you

know
,

I

was

listening

to

a

pretty

interesting

podcast

about

the

different

hormones
,

but

that's

also

along

with

this
,

like

peeling

back

the

onions

and

doing

all

of

this

with

the

pelvis

and

trying

to

figure

out
,

like
,

what

generator

is

this
?

Or

you

know
,

what

pain

generator

is

this
?

I've

gone

to

six

different

doctors
,

probably

for

hormone

stuff
,

and

each

one

tells

me

something

different
.

One

is

like

testosterone

for

a

woman
,

like

we

wouldn't

do

that

unless

you

were

trying

to
.

You

know
,

transition
,

transition
,

transition
,

but

that's

very

not

true
.

Speaker 3
9:17

I

know

and

then
.

But

then

At

Yale

they

do

a

lot

of

work

with

they

actually

do

a

lot

of

work

with

testosterone
.

I

think

you

can

get

both

hair

loss

and

hair

growth

in

places

you

don't

want

from

testosterone
,

right
,

but

I

think
,

like

another

industry
,

that

isn't

regulated
.

Speaker 2
9:36

And

well
,

no

studies

for

women
.

And

it's

just

so

frustrating

and

it's
,

you

know
,

I

always

tell
.

I

mean

I

said

to

Alana

I

mean

we

have

how

many

drugs

for

erectile

dysfunction

for

a

man
,

but

like

a

woman's

sexual

desire
,

we

don't

have

anything

for

that
.

There's

no

studies

for

women

for

that
.

And

there's

one

drug
,

but

it's

for

women

who

are
.

Speaker 3
9:57

Yeah
,

I

was

going

to

say

there

is

one

drug
.

Speaker 2
9:58

Who

are

pre

menopausal

and

it's

really

expensive

and

if

you

look

at

the

data

on

it
,

it

was

almost

no

different

from

the

placebo
,

so

it's

just

frustrating
.

It's

it's

frustrating

to

find

somebody
.

Speaker 3
10:12

And

also

like

is

sexual

dysfunction
?

That's

its

own

podcast
,

but

is

sexual

dysfunction

happening
?

Also
,

I

don't

like

the

word

dysfunction
,

but

are

there

issues
?

Because

there

are

issues

within

the

vaginal

wall

tissue

itself
.

Are

there

issues

because

of

the

lack

of

the

hormone

circulating

in

the

system
?

Is

sex

painful
?

Is

there

a

history

of

sex

being

only

for

procreation

because

it's

painful

and

then

that's

impacting

desire

Is
?

Are

all

of

these

things

going

on

at

once
?

And

also
,

are

we

talking

about

all

and

any

of

them
?

Speaker 3
10:51

You

know

I
,

like

Dr

Rachel

Rubin
,

who's

a

urologist
,

is

trying

to
,

you

know
,

really

further

that

conversation
,

Dr
.

There's

another

doctor

in

Florida

who's

furthering

that

conversation

as

well
,

Because

we

shouldn't

be

like

whispering

in

the

shadows

about

what's

going

on

here
.

And

then

the

real

crazy

part

of

the

conversation

is

and

I've

sat

with

leading

experts

in

the

world

about

hormone

replacement

and

why

we

don't

typically

present

a

section

on

it

is

what

is

the

efficacy

of

hormone

replacement

in

endometriosis

patients

If

the

research

is

so

grounded

in

this

estrogenic

backflow

of

menstrual

blood
?

You

know
,

does

it
?

You

know
,

whatever
.

So

I

think
,

by

the

way
,

you

can

make

your

own

decision
,

which

is

what

I

did
,

and

if

you

have

a

full

excision
,

then

you

should

be

able

to

take

hormones
,

but

there's

no

data

on

it
,

I

know
.

Speaker 1
11:55

It's

infuriating

to

me

Don't

put

your

doctor

on
,

say

Sally

says

you

say

Sally

says

I'm

going

to

have

walked

through

this

for

like

the

last

six

months

and

you

know
.

That's

why

having

and

we're

going

to

talk

about

this

in

another

podcast

but

why

having

community

is

so

important
,

because

we

feed

off

of

each

other

and

being

able

to

bounce

ideas

off

of

hey
,

are

you

feeling

this

or

are

you

feeling

that
?

But

we've

been

talking

about

this

for

the

last

six

months

and

trying

to

navigate

all

this
.

Speaker 3
12:22

All

you

have

to

do

is

see

ah-ha
,

is

research

on

how

bad

it

is

not

to

have

estrogen
,

to

have

like

a

moment

in

your

life

where

you're

like
,

do

I

want

to
?

I

mean
,

somebody

with

endometriosis

like

you

could

literally

be

going

60

years
.

Do

you

want

that

on

your

brain
?

Do

you

want

that

on

your

vaginal

tissue
?

I

just

had

lunch

for

the

holiday

with

somebody

who

has

chronic

bladder

infections
.

Do

you

want

that
?

Do

you

want

to

do

that

too
,

to

yourself
?

So

are

you

willing

to
?

And

it's

not

a

risk

of

cancer

anymore
?

Are

you

willing

to

risk

that

your

endometriosis

wasn't

fully

excised
?

And

the

other

issues

we

have

Dr

Gargiulo

talking

about

this

the
,

if

you

still

have

a

uterus
,

progesterones

actually

a

little

protective

against

adenomyosis
.

So

for

those
,

I

went

in

very

early

but

I

had

natural

menopause

and

I'm

not

willing

to

not

have

any

bone

either
,

you

know
.

Speaker 2
13:28

Right
,

I

think

a

lot

of

women

are

scared

to

take

estrogen

and

I

think

a

lot

of

that

stemmed

from

that
.

Like

women's

health

initiative

study

that

was

done
,

that

was

like

just

so

flawed

with

the

group

of

women

that

they

chose
.

They

were

much

older
,

I

think

it

was

like

67-year-olds
.

Speaker 3
13:47

And

they

admitted

the

study

was

flawed

and

they

retracted

everything

and

it

never

took
.

Speaker 2
13:52

But

that's

still

there
.

No
,

it's
.

That

stigma

is

still

there
,

unfortunately
,

right
.

Speaker 3
13:58

And

what's

worse

is

it's

still

there

in

the

medical

population
.

So

most

people

who

are

seeking

hormones

are

going

to

be
.

I

have

to

go

out

of

pocket
.

Speaker 2
14:08

Mm-hmm
.

Speaker 3
14:09

Same
.

I

have

to

go

out

of

pocket
.

Now

I

have

one
.

They

were

living

abroad
,

but

in

France

it's

very

common

hormone

replacement

and

there
,

you

know
,

it

was

a

whole

different

ballgame

than

we're

getting

there

and

all

I

have

to

say

is

it's

a

very

different

society

sexually

and

look

at

what

they're

accepting
.

But

I

think

it's

so

damaging

that

Harvard's

Women's

initiative

and

the

type

of

breast

cancer

can

be

typed

out
.

It's

like

one

you

can

test

for

to

see

if

you're

at

more

risk

and

obviously

then

you

can't

have

a

certain

kind

of

estrogen
.

But

yeah
,

you

should

meet

the

other

serral
.

Does

this
,

the

other

serral
?

Does

this

the

other

serral
,

does

this

my

uncle
?

Like

invented

hormone

replacement
.

Speaker 1
14:54

Get

out
?

Wow
,

no

way
.

That's

why

you're

so

smart
,

sally

it's

genetic
.

Speaker 3
15:00

No
,

but

like

my

uncle's
,

totally

badass

like
,

trained

by

Masters

and

Johnson

and

not

great

with

endometriosis
.

But

hormone

replacement
,

that's

your

guy
.

Well
,

I

probably

won't

do

a

podcast
.

Speaker 1
15:16

But

let's

just
,

inga

and

I

are

trying

really

hard

over

here

to

figure

out

this

hormone

thing
,

because

it

is

and

that's

the

other

frustrating

thing

about

this

is

like

we're

talking

about

all

these

anatomical

things

or

and

we're

talking

about

frozen

pelvis
,

hernias

and

all

of

the

other

avenues
,

but

how

much

of

that

and

how

much

of

the

hormone

and

how

much

of

the

endometriosis

are

all

tied

together
?

That's

what's

really

hard

to

navigate
,

because

we

don't

know

and

we

don't

know
.

Speaker 3
15:45

But

like
,

don't

forget
,

like

carpal

tunnel

is

tied

to

menopause

and

so
,

like

I

think

at

some

point

my

friend
,

when

she

first

said

it

to

me
,

she

was
,

like

you

got

to

look

at

menopause

like

now

it's

its

own

animal

and

you

have

to

check

out

of

the
,

not

that

endometriosis

is

ended

at

menopause
,

but

that

to

get

menopause

care

you're

going

to

have

to

stop

telling

people

you

had

endometriosis

and

just

count

on

how

good

that

excision

was
,

because

otherwise

you're

not

getting

anything

right
.

And

I've

been

looking

at

this

summer

because

I'm

the

only

one

who

plays

tennis

three

hours

a

day

and

gains

weight

right
,

how

we

work

out

changes

based

on

our

hormones

too
,

and

you

do

need

more

weightlifting

after

menopause
.

But

you're

not

going

to

get

any

results

or

even

feel

very

good

doing

it

without

testosterone
.

Right
,

and

I'm

not

talking

about

steroids

and

jacking

yourself

up
.

Speaker 3
16:44

I'm

talking

about

being

able

to

turn

on

a

toning

video

and

do

30

minutes

with

a

five

pound

weight
.

I

mean

like
,

just

like

basic

weightlifting

and

that's
.

Speaker 1
16:52

it's

Hormonal Dysfunction and Healthcare Challenges

Speaker 1
16:53

interesting
.

You

say

that

because

when

I

finally

in

and

I

were

talking

about

this
,

I

was

like

she's

like
,

did

you

get

your

testosterone

tested
?

I

was

like

no
,

she

goes
,

you

need

to

go

get

it

tested
.

I

said

okay
.

So

I

went

and

got

it

tested

and

it

was

low
,

not

as

low

as

yours
,

yours

was
,

mine

was

two
.

Speaker 1
17:09

Yeah
,

it's

stupid

low
,

but

then
.

So

I

was

like

oh

so

I

started

to

form
,

I

started

testosterone

and

I

put

this

out

there

before

and

I

strongly

believe

that

we

need

to

talk

about

it

more
.

But

I

started

the

testosterone

within

two

weeks
.

The

trainer

my

trainer

looked

at

me

and

he

goes

you

are

worlds

different

than

what

you

were

two

weeks

ago
.

Speaker 3
17:31

Yeah
,

but

it's

not

just

muscle
,

it's

insulin

metabolism
,

it's

thyroid

health
,

like

it's

very

sensitive

with

that

thyroid

Fatigue
.

It's

too

high
,

then

it'll
.

It's

fatigue

and

it's

sense

of

self
.

It's

very

interesting
.

You

know
.

You

should

try

their

Lethos

L-I-T-H-O-S

and

Snowden

S-N-O-D-E-N
.

They're

physical

therapists

that

work

only

in

this

realm
.

But

then

again

you

have

to

conduct

the

interview

as

if

that

endometriosis

doesn't

exist

anymore

because
,

if
?

Speaker 3
18:08

because
,

based

on

our

lousy

history
,

if

you

mentioned

the

word

endometriosis
,

everybody

thinks

like

you

can't

give

any

estrogen
,

which

is
,

but

I

feel

like

they

should

go

try

to

live

it
,

because

I'm

not

on

a

fun

trip
.

Speaker 1
18:21

Both

of

us
,

we've

all

been

in

that

way
.

We

and

the

thing

is

is

like

why

do

we

feel

like

it's

okay

to

deplete

our

body

of

something

that

is

so

necessary
?

Like

okay
,

well
,

that's

a

whole

other

conversation

We'll

have
.

Speaker 3
18:35

Dr

Maria

Rivolo

will

be

speaking

at

the

summit

about

the

history

of

patriarchy

in

endometriosis
,

and

the

reason
,

ultimately
,

why

we

think

it's

okay

is

because

women's

job

in

life

is

to

have

babies

and

we

might

as

well

throw

you

away

once

you're

done
.

So

why

should

we

do

any

decent

research
?

Speaker 3
19:00

And

you

think

I'm

just

being

bitter

but

this

is

actually

a

history

that

impacts

us

every

single

day
,

and

I

think

it's

so

bad
.

You

know
,

when

you're

looking

at

decent

studies

about

plaque

in

the

brain

and

Alzheimer's

and

estrogen
,

and

yet

somebody

can't

get

any
,

yeah
,

yep
,

yeah
.

I

heard
,

though
,

that

there

is

an

online
,

a

concierge

service
,

that

does

the

vaginal

estrogen

for

bladder

infections
,

because

I

had

a

patient

need

it

and

the

doctor

wouldn't

give
,

and

she

was

just

convinced

that

she

needed

it

because

the

bladder

pain

started

after

the

hysterectomy

and

her

tissues
,

even

though

she

had

rolled

out

cancer
,

her

tissues

were

thin

and

bloody
,

so

not

bloody

like

a

period
,

but

like

a

little

bit

of

blood
,

and

she

used

the

vaginal
,

as

she

tried

it

within

the

first
,

like

two

days
.

Speaker 2
20:04

The

problem

the

one

which

is

shocking

is

for

so

many

people
,

the

vaginal

estrogen

is

stupid
,

expensive

and

that's

so

sad
.

Welcome
,

that's

so

sad
.

Yeah
,

like

why
.

Speaker 3
20:16

Well
,

I'm

working

with

AUA

and
,

like

you

know
,

when

you

talk

about

diversity
,

equity
,

inclusion
,

everybody

should

be

able

to

get

progesterone

and

estrogen
.

Speaker 2
20:24

Right
.

Speaker 3
20:25

You

know
,

it

shouldn't

be

that

hard
.

But

I'm

telling

you

what's

going

to

happen

is

it's

going

to

be

a

lot

easier

Eventually
.

Right

now

it's

expensive
,

but

it's

going

to

be

a

lot

easier
.

To

prescribe

someone

with

manjarra
,

which

all

for

the

drug
.

I'm

not

saying

that

the

drug

is

bad
,

but

then

to

fix

their

hormonal

dysfunction

and

let

them

metabolize

through

it

on

their

own
.

Speaker 1
20:46

Yeah
,

and

we

have

to

be

careful
.

As

people

that

have

gone

through

a

lot

of

trauma

and

our

body

has

had

endometriosis

and

now

we

don't

have

our

own

supply

of

hormones
,

we

have

to

be

careful

of

what

we're

putting

in

our

body

and

how

we're

navigating

health

of

our

body
.

It's

not
,

we

can't

just

throw

everything

to

it

or

we're

not

solving

the

problem
.

It's

like

having

an

ablation

surgery

you

just

put

a

bandaid

on

it
,

right
.

Speaker 3
21:13

Well
,

I

mean
,

I

tried

like

three

or

four

different

types

of

progesterone

before

I

found

one

and

I

don't

always

love

the

doctor

that

prescribes

that
,

but

I

know

I

can't

go

anywhere

else

because

that's

the

only

one

that

I

didn't

get

sick

from
,

and

a

lot

of

times

somebody

who

does

have

a

history

of

endometriosis

will

get

sick

from

progesterone

because

the

receptor

site

sensitivity

is

different
,

so

I

needed

just

a

very

specific

one
.

Interesting
,

yeah
.

So

like

you

were

fine

on

the

testosterone

they

give

you

right

off
.

I

need

to

try

three

of

them
.

Speaker 1
21:48

Well
,

and

we
,

yeah
,

we

have

a
.

They

compound

it

at

one

pharmacy
.

We

can

only

get

it

at

one

pharmacy

here

and

they

compound

it

on

site

and

that

is
,

and

it's

a
,

the

interleague

cream
.

You've

had

a

different

experience

with

it

than

I

have
.

Speaker 2
22:05

Mine

is

just

like

this

I

can't

get

like

a

nice
.

I

did

trokies
,

then

they

were

having

me

inject

and

I

was

like

man
,

I

feel

fantastic
.

And

then

I

went

and

had

my

levels

done

and

it

was

like

230
,

whatever
.

Speaker 1
22:21

And

now

I

did

the

cream

and

I'm

up

again

Like

I

can't
.

Speaker 3
22:25

I've

been

told

the

cream

can

only

be

used

vaginally

and

so

that

you

really

have

to

take

it
,

swipe

the

top

and

put

it

vaginally

and

not

clitorally
,

by

the

way
.

Speaker 2
22:35

No
,

they
.

The

way

they

have

us

do

it

now

is

on

the

inside

of

our

leg
.

But

then

I

was

listening

that

there's

this

like

1%

and

the

tube

should

last

you

10

days
,

where
,

like

a

guy
,

it's

like

one

tube

for

one

day

and

I'm

like
,

well
,

what

is

this
?

Speaker 3
22:50

No
,

so

I've

heard

a

lot
,

from

more

than

one

source
,

that

if

you're

putting

it

on

the

inside

of

your

leg
,

you're

not

going

to

be

getting

enough

of

it

to

make

a

difference
,

so

you

could

even

be

using

less

of

it
,

but

that

you

have

to

put

it

badging

the

testosterone

has

to

be

done
.

Badging

Interesting
,

or

so
.

The

other

one

is

inside

of

the

elbow
,

but

it's

funny
.

Endometriosis and Hormone Replacement Journey

Speaker 3
23:13

So

like

talk

about

patriarchy
,

the

doctors

like

explaining

this

to

me

and

he's

like

he

goes

like

this

can

you

put

it

vaginally
?

Like

what

are
?

Speaker 2
23:21

you

whispering
?

Speaker 3
23:23

I'm

basically

like

do

you

know

what

I

do

with

my

life
?

Like

what

are

you

whispering
?

Speaker 1
23:26

about
.

Speaker 3
23:30

Yeah
,

I've

heard

the

story
.

We

went

out

to

dinner

like

we

were

traveling

somewhere

and

some

woman

recognized

me

and

she

started

to

ask

me

questions
.

I

can't

take

my

dad's

like
.

Really
,

you're

more

dad
.

So

I

think
,

like

that's

the

thing
.

We're

like

guinea

pigs
.

I

think

a

lot

of

women
,

at

least

with

hormone

replacement
,

a

lot

of

women

are

guinea

pigs
,

which

is

disgusting

as

it
,

but

it's

still

not

a

great

situation
.

Speaker 1
23:59

No
,

but

I

do

feel

like

we

are

smart

enough

to

continue

pushing

and

advocate

for

it

to

be

better

for

future

generations
.

It's

going

to

have

to

happen

at

some

point
.

We

can't

not

try

this

out
,

otherwise

we

would

be

stagnant

and

any

health

benefits

of

it
,

and

so

I

think

that

we

need

to

be

able

to

push

harder

for

future

generations

so

that

this

doesn't

perpetuate
,

but

that

again
.

Speaker 3
24:25

Well
,

I

think

AHA

is

a

great

and

well

funded

organization
.

Well

funded

because

they

train

primary

care

physicians

and

physicians
.

They

have

massive

training

programs

and

that's

where

it's

at
.

That's

one

of

the

reasons

why

we're

doing

the

imaging

course

for

physicians
.

You

have

to

start

training

so

that

those

people

can

go

out

in

the

field

and

train

the

next

part
.

That's

a

huge

part

of

change
.

I

think
,

like

if

you

talk

about

is

this

my

hernia

or

is

this

hormone

replacement
?

You're

not

going

to

testosterone

away

a

hernia
.

Speaker 1
25:02

No
,

no
.

But

does

it

hold

structure
?

Because

does

a

testosterone

help

with

joint

and

ligament

and

muscle
?

Speaker 3
25:11

We're

talking

about

all

of

that
.

Right
,

you

know

that

whole

thing

that

in

pregnancy

they're

relaxing
,

and

that

was

all

proven

to

be

not

true
,

Really
,

Really
,

that's

not

what

triggers

ligament

laxity

and

pregnancy
.

What

is

it
?

It's

a

structural

trigger
.

It's

not

triggered

by

your

hormones
.

That

another

way
,

some

male
,

somewhere
,

decided

to

blame

something

on

a

hormone

In

terms

of

testosterone

and

stability
,

because

you're

able

to

maintain

muscle

mass

probably

not

put

on

muscle

mass
,

but

at

least

maintain

muscle

mass

and

then

that

muscle

mass

will

pull

at

the

tendon

better
.

That

could

be

some

of

your

joint

stability

with

testosterone
.

That

is

a

proven

thing

to

provide

joint

stability
.

Right
,

I

would

have

to

look

up
.

The

progesterone

is

like
.

You

know

who

gets

anxiety

now

that

they're

in

menopause
?

You

know

that's

a

little

bit

of

a

progesterone

deficiency
,

bloating

anxiety
.

It's

sort

of

like

your
,

your

counteract

or

your

progesterone
.

Speaker 3
26:22

Well

and

then

when

Progesterone's

a

hard

one
,

and

people

with

a

history

of

endometriosis
.

Speaker 2
26:26

Well

with

progesterone
.

So

I'm

getting

back

to

like

getting

different

information

from

different

doctors
.

The

first

person

I

saw

was

like
,

yes
,

you

absolutely

need

to

be

on

a

progesterone

even

though

you

don't

have

a

uterus
.

The

next

one

was

like

why

are

you

taking

progesterone
?

You

don't

have

a

uterus
?

Like

we're

not

trying

to

prevent
,

you

know
,

uterine

cancer
.

Speaker 3
26:45

But

you're

not

taking

it

to

prevent

uterine

cancer
.

You're

taking

it

for

brain

and

physical

wellness

and

the

you

know
.

The

issue

with

progesterone

for

people

that

don't

know

is

that

endometriosis

is

proven

to
,

in

many

people
,

have

an

absence

of

the

receptor

sensitivity

for

progesterone
.

So

this

is

Sader

Ballon's

work
,

which

is

sponsored

by

pharma
,

by

the

way
,

but

I

don't

want

to

discount

his

work
.

He's

a

great

guy
.

Speaker 3
27:16

So

we

can't

uptake

progesterone

the

way

somebody

else

can
,

and

so

many

times
.

That's

why
,

like
,

they

put

you

on

a

progesterone

only

pill

and

you

feel

like

you

want

to

kill

yourself

because

you're

so

bloated
,

because

just

throwing

more

at

you

didn't

actually

make

the

receptor

more

sensitive

so

you

could

take

it

in
.

And

even

though

endometriosis

has

been

excised
,

that

receptor

sensitivity

likely

there's

no

research

on

that
,

but

it

likely

hasn't

changed
,

and

so

it

becomes

a

game

on

how

much

progesterone

you

can

really

get

in

Some

people
.

I

can

only

do

the

trochies

and

I

can

only

do

a

certain

amount
.

It

took

me

two

years

to

build

up

to

the

right

dosage

and

what

typically

happens

is

the

person

goes

to

a

hormone

specialist
,

they

give

them

a

pill
,

they

feel

sick

and

can't

do

math

the

next

day

because

they're

so

foggy
,

and

then

they

never

try

it

again
.

Speaker 2
28:17

So

you

know

it's

back

to

that

kidney

pain

syndrome
.

They're

like

here's

100

milligrams
,

take

it

to

help

you

sleep
,

and

I

was

like
,

well
,

I

don't

feel

anything

at

all

from

this
.

Speaker 3
28:27

Is

it

raising

your

levels
?

I

don't

know
,

nobody

ever

checked

it

and

I

asked

the

doctor

about

that
?

Speaker 2
28:33

We

don't

have

to

check

it
.

It's

based

on

how

you

feel

and

I'm

like
,

well
,

how
?

Speaker 1
28:36

am

I

supposed

to

know

how

to

feel
?

Speaker 3
28:38

Yeah
,

it's

just

interesting
.

You

know

you

could

my

guy's

a

little

odd
,

but

we

certainly

could

have
.

You

certainly

could

have

him

on
.

Speaker 2
28:45

I

love

odd

people
.

Speaker 3
28:47

I

can

do

odd
,

we

can

do

odd

We'll

talk

about

it

off

air
,

but

I

really

hesitated
,

especially

during

COVID
,

because

I

didn't

want

to

have

blood

work

done

Right
,

but

you

need
,

like

every

three

to

six

months

you

need

to

be

checking

if

you're
,

and

a

lot

of

that

is

because

it

affects

your

thyroid

and

it

affects

your

insulin

metabolism
.

Speaker 1
29:06

It's

so

like

we've

been

on

this

for

a

while

because

I

think

both

Inga

and

I

not

that

we're

not

looking

at

endometriosis

being
,

oh
,

I

think
,

anyone

with

endometriosis
.

We're

always

looking

to

see

if
,

like
,

even

if

we've

had

a

great

excision

doesn't

mean

that

we

can't

have

a

presence

of

endometriosis

still

there
.

But

we're

still

looking

at

other

pain

factors
,

hormone

factors
.

We're

on

this

whole

new

kick

now
.

Speaker 2
29:31

It's

like

how

can

we

optimize

ourselves

as

best

as

possible

after

all

of

this
?

Speaker 3
29:36

I

don't

understand
.

You

mean

you

can't

optimize

yourself

as

best

as

possible

by

purchasing

a

$2,500

coaching

system

from

Instagram
?

Yeah
,

what

that's

the

issue

is

that

we

need

to

be

well

as

a

person

and

because

there's

no

true

roadmap

and

there

isn't

even

a

rope
.

So

we

try

to

teach

you

with

the

endometriosis

summit

how

to

analyze

the

options
,

but

you

become

fodder

for

somebody

else's

profits
.

You

know
,

and

yeah
,

it's

really
,

really

hard
.

Now

people

accuse

the

excisionist

of

that
,

but

I

don't

agree

that

the

Instagram

coaching

is

like

unreal
.

Yeah
,

not

all
.

I'm

not

saying

everyone
,

no
,

I'm

just

saying

there

are

some

out

there

and

now

they

know

exactly

what

they

say

to

get

their

numbers

high
.

And

then

there's
,

before

you

know

it
,

they're

selling

you

like

I

don't

know

what

they're

saying

because

I

don't

buy

it
.

Speaker 1
30:31

Yeah
,

there's

a

lot

out

there

and

I

think

we

have

to

be

really

careful

about

this

pill

and

everything

will

be

okay
.

Speaker 3
30:39

And

you

know

you'd

have

to

like

go

swimming

in

a

vat

of

curcumin

to

get

it

strong

enough
,

and

it

dies
.

Everything

yellow
.

So

I

don't

know
.

Is

that

you

know
,

then
,

the

world's
?

Speaker 1
30:49

yellow
,

I

don't

know

yeah
.

Speaker 3
30:52

And

when

I

remember

somebody

was

trying

to

before

I

had

surgery

or

diagnosis
,

they

were

trying

to

make

me

feel

better

and

they

gave

me

fish

oil

and

it

was

like

a

bottle
,

like

you

know
,

a

bottle

of

fish

oil

and

I

had

to

take

it

was

like

crazy

expensive
.

Speaker 1
31:06

And

they

were

like

it's

a

delicious

tasting

lemon

oil
.

Speaker 3
31:09

to

this

day

I

live

on

the

beach
.

Sometimes

I

have

trouble

going

to

the

beach

because

I

remember

that
.

Speaker 2
31:14

I

was

gagging
.

Speaker 3
31:16

And

then

you

know

the

Chinese

herbs

that

you

grew

yourself
.

My

family

was

like

we're

gonna

ask

him

move

out

and

that's

gonna

solve

it

all
.

And

I

must
.

Speaker 2
31:26

those

herbs

were

like

$250

a

week
,

but

you're

willing

to

try

anything

to

feel

better
,

and

I

think

that's

that's

the

hard

part
.

And

then

they

prey

on

you

because

they

know

sort

of

like

you

said
,

and

you're

just

like
,

I

just

want

to

feel

good

and

so

I'll

do

anything
.

I

will

take

the

fish

oil

and

burp

it

up

all

day
,

I

will

brew

the

herbs
,

I

will

do

all

the

things

like

just

I

just

want

to

feel

good

and

I

had

somebody

move
.

Speaker 3
31:53

They

decided

it

was

mold

in

their

house
,

which

I'm

not

saying

mold

in

your

house

is

good
,

right
?

Or

that

it's

Candida
,

and

they're

doing

months

and

months

of

Candida

detoxes
.

It's

like

if

we

got

diagnosis

in

the

first

place
,

if

we

were

valued

in

society

as

being

worthy

of

research
,

both

for

the

disease

of

endometriosis

and

for

the

after

effects

of

experiencing

life

with

endometriosis
,

we

would

be

totally

dead
.

It

would

be

totally

different
.

But

instead

we're

like

preyed

upon
.

Yeah

for

sure
.

Speaker 3
32:27

And

then

I

get

accused

of

preying

upon

people

because

I

have

to

charge

for

the

conference
,

and

you

know

what
.

I

can't

put

it

on

without

charging

no

because

then

I

have

to

ask

pharma

for

money
,

and

if

I

ask

for

money
,

then

we're

being

preyed

upon

again
.

You

see
,

it's

not

good
.

Speaker 1
32:41

No
,

I

mean
,

we

have

to

be

mindful

of

that

and

we

felt

that

at

so

many

levels

of

trying

to

figure

this

out
,

and

I

think

it's

so

easy

for

us

to

be

like

we

will

just

do

anything
,

you

say
,

just

to

feel

an

ounce

better
,

and

that's

not

okay
.

Speaker 1
32:55

We

we've

talked

a

lot

about

that

because

it

is

expensive
.

This

disease

is

expensive
.

The

pot
,

the

after

effects

of

the

disease

are

very

expensive
,

and

so

you

want

to

get

it

right
.

And

that's

why

I

think

there's

so

many

questions

of

how

can

we

not

shortcut

treatment

to

getting

better
,

but

how

can

we

analyze

and

effectively

look

at

all

the

scenarios

without

having

to

spend

years

doing

it
?

And

I

think

the

hernia

has

been

a

huge

game

changer

for

us

to

look

at

instead

of

jumping

straight

to

oh
,

this

is

endometriosis
,

or

this

is

herniated
,

this
,

or

or

not

herniated

that
,

or

it's

wrong

pelvis

position
,

frozen

pelvis

you

can

go

in

so

many

different

directions
,

but

having

the

knowledge

to

say
,

okay
,

we've

taken

this

step
,

I'm

not

going

to

spend

six

more

years

looking

at

that

step
,

I'm

going

to

look

at

the

next

step
.

And

how

can

I

effectively

find

care

that's

going

to

give

me

a

better

quality

of

life
?

Bottom

line

right
.

Speaker 3
33:59

So

I

always

say

you

rule

out

endometriosis
,

pelvic

floor

dysfunction
,

hernia
,

bladder

up

regulation
.

I

probably

would

do

bladder

up

regulation

like

endometriosis
,

bladder

up

regulation
,

pelvic

floor

herni
,

right
?

I

also

think

so

many

doctors

have

patient

blamed

that

when

someone

comes

along

and

starts

to

talk

about

these

things
,

it's

not

another

way

of

patient

blaming
,

it's

a

very
,

very

important

thing
.

It's

not

a

way

of

blaming
,

it's

a

way

of

trying

that

help

and

that's

also

very

hard

and

people's

resources
,

mentally

and

financially

are

usually

gone

and

and

that's

why

something

like

this

podcast

is

important
.

Something

like

the

summit

is

important
,

right
?

Something

like

Dr

Molling

and

Dr

Fogelsen

and

Dr

Vidalis

work

on

Instagram

is

super

important
.

The

amount

of

information

center

for

endometriosis

care

puts

out

there
,

somebody

like

Endo

Girls

blog

that's

why

those

free

are

YouTube

we

have

a

fabulous

YouTube

the

endometriosis

summit

and

that

free

stuff

I

feel

like

could

cut

down

on

somebody's

journey

for

like

a

good

you

know
,

a

good

shave
,

like

four

to

five

years

off

of

somebody's

journey
,

yeah
.

Speaker 1
35:08

Yeah
,

it's

so

valuable

and

that's

why

we

adore

you

for

so

many

reasons
,

not

only

because

you're

wise
,

but

because

you

care

so

much

about

it

and

or

always

like

it

is
,

I

think
.

Speaker 2
35:20

I

appreciate

that

and

I

was
,

I

feel
,

super

fortunate

to

have

met

you

today
.

I

am

so

excited

to

meet

you

next

year

and

learn

and

become

a

better

advocate
,

and

I

thank

you

for

today
.

Speaker 3
35:33

Yeah
,

thank

you
,

sally
,

wonderful
,

wonderful
.

Speaker 1
35:36

And

I'm
,

and

you

know
,

you're

always

welcome

here
.

Speaker 3
35:39

Well
,

we'll

come

back

again
.

Can't

wait

what
.

I

don't

know

what

we're

doing

next
.

Speaker 1
35:44

You

know

what
?

I

don't

even

think

we

always

need

direction
,

because

we

just
,

we

can

just

talk

for

hours
.

Speaker 3
35:49

I

know
,

I

know
,

I

know

We'll

see

what

happens
,

but

yes
,

it's

wonderful

to

come

with

you

guys
.

Speaker 1
35:56

Yeah
,

well
,

and

until

next

time
,

everyone
,

remember

to

advocate

for

you

and

for

those

that

you

love
.

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