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Dr. Allyson Bontempo discusses the significant research gaps in understanding endometriosis diagnostic delays across different racial, ethnic, and gender groups. With the average diagnostic delay at over eight years based on predominantly white research samples, the delay for minority patients likely remains unknown and potentially much longer.
• Most endometriosis research samples consist of about 85% non-Hispanic white participants
• Existing research shows Black patients typically experience longer diagnostic delays for various conditions
• Dr. Bontempo is collaborating with Baylor College of Medicine to study diagnostic journeys of racial, ethnic, and gender minorities
• Current increased awareness may reduce delays for some patients while including previously excluded minorities in research
• Research partnership between EndoBlack and a university is currently gathering data on Black patients’ experiences
Send your questions by using the link in the description of this episode, emailing contact@endobattery.com, or visiting the endobattery.com contact page.
Website endobattery.com
Introduction to Quick Connect Format
Speaker 1
0:00
Life
moves
fast
and
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should
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answers
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biggest
questions
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I'm
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alana
,
and
it's
time
to
connect
Introducing Dr. Allison Bontempo
Speaker 1
0:47
Today
.
Speaker 1
0:47
I'm
thrilled
to
be
joined
by
Dr
Allison
Bontempo
,
a
postdoctoral
research
fellow
in
the
Department
of
Pediatrics
at
Rutgers
Robert
Wood
Johnson
Medical
School
.
Dr
Bontempo
holds
a
PhD
and
an
MA
in
health
communication
from
Rutgers
University
,
along
with
a
bachelor's
in
science
and
psychology
and
English
writing
from
Sacred
Heart
University
.
Her
research
centers
on
improving
the
patient
experience
,
with
the
focus
on
three
key
areas
diagnostic
error
,
the
patient-clinician
relationship
and
patient
support
networks
,
including
online
communities
.
She's
doing
incredible
work
exploring
how
relationships
between
patients
and
clinicians
,
as
well
as
broader
support
networks
,
shape
the
patient
journey
,
especially
around
issues
of
diagnosis
.
Please
help
me
in
welcoming
Dr
Allison
Racial Disparities in Diagnostic Delays
Speaker 1
1:27
Bontempo
.
Do
you
see
a
disparity
amongst
different
nationalities
,
ethnicities
?
Speaker 2
1:32
races
.
It's
not
something
I've
gotten
as
much
into
.
It's
something
that
I
plan
to
look
at
in
future
work
.
I
am
collaborating
with
some
folks
from
Baylor
College
of
Medicine
and
right
now
we're
interviewing
patients
about
their
diagnostic
journeys
,
essentially
with
endometriosis
and
lupus
,
who
are
specifically
racial
,
ethnic
minorities
and
also
looking
at
gender
minorities
,
so
non-binary
folks
.
I
mean
it
could
just
be
you
know
cisgender
females
as
well
,
but
looking
at
their
experiences
,
just
be
you
know
cisgender
females
as
well
,
but
looking
at
their
experiences
.
Speaker 2
2:08
But
I
know
that
it
takes
longer
to
get
diagnosed
as
a
racial
minority
patient
,
at
least
for
Black
or
African
American
patients
.
If
you
think
about
the
diagnostic
delay
,
what
it
is
now
the
average
diagnostic
delay
I
like
to
emphasize
the
average
because
it's
just
like
.
No
,
this
isn't
like
the
upper
limit
,
this
is
like
the
average
,
right
?
If
we
think
about
that
,
we
think
about
the
fact
that
Blacks
and
other
racial
minorities
have
largely
been
excluded
,
right
?
So
my
studies
a
lot
of
time
I
have
like
85%
of
the
sample
is
non-Hispanic
,
white
and
so
like
.
If
we're
calculating
a
diagnostic
delay
of
eight
point
something
years
with
a
largely
well-educated
white
sample
,
what
are
we
going
to
get
?
When
we
look
at
minority
patients
with
regard
to
socioeconomic
status
,
regard
to
race
,
regard
to
gender
identity
.
You
know
what
does
that
look
like
and
the
research
just
hasn't
been
done
yet
.
Speaker 2
3:00
So
,
while
things
are
hopefully
improving
for
your
diagnosis
right
now
and
more
awareness
and
everything
,
the
more
we
include
those
patients
,
I
feel
like
that
number
might
stay
stagnant
because
,
while
the
numbers
might
be
reduced
from
the
awareness
and
maybe
more
training
and
what
have
you
,
as
we're
also
including
more
Blacks
,
racial
minority
patients
,
we're
probably
also
seeing
.
You
know
what
I
mean
.
So
,
like
that's
research
that
needs
to
be
done
and
I
know
I
did
see
on
there
was
I
forget
what
university
,
but
they
paired
with
EndoBlack
Episode Conclusion and Contact Information
Speaker 2
3:35
the
organization
and
I
know
that
they
were
recruiting
for
a
study
.
So
I'm
interested
in
you
know
,
obviously
it's
going
to
take
a
long
time
for
something
to
come
out
and
be
published
,
but
I'd
like
to
see
what
they
got
in
the
results
.
But
we
are
doing
myself
,
with
some
colleagues
at
Baylor
,
are
doing
that
with
patients
as
well
,
with
endometriosis
.
So
more
needs
to
be
done
.
Speaker 1
3:57
That's
a
wrap
for
this
Quick
Connect
.
I
hope
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more
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.
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?
Keep
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