Pt. 2 A Tale of Resilience: Nathali’s Transformation Amidst Endometriosis and Surgery

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Pt. 2 A Tale of Resilience: Nathali's Transformation Amidst Endometriosis and Surgery
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When Nathali opened up about her battle with endometriosis, adenomyosis, and pelvic floor dysfunction, it was more than an interview—it was a revelation of her relentless spirit. Her experiences, etched with pain and misdirection, ultimately led to a pivotal encounter with a medical specialist who enlightened her journey. We’re privileged to have Nathali candidly recount the emotional weight of her diagnosis, the transformative effects of pelvic floor therapy, and the life-altering decisions she faced, from confronting the fears of surgical mesh implants to embracing the hope of recovery.

As a community, we bear witness to the raw and often invisible struggles of those amongst us. Nathali’s account of grappling with her identity, the influence of her condition on her wardrobe choices, and the surge of symptoms that necessitated surgery paint a visceral picture of life with a chronic illness. Her post-surgery narrative doesn’t shy away from the hardships; it embraces the complexities of managing chronic pain, the unwavering support of skilled surgeons, and the revelation of “baby endo,” a term reflecting the disease’s deceptive subtlety. 

The road to recovery is seldom straight, but Nathali’s resilience shines as she shares how she transitioned from grappling with a 30-pound weight to powerlifting an impressive 135 pounds. We delve into her journey of self-discovery, the cultural barriers within the Latino community regarding health, and the impact of endometriosis on family dynamics. As her story unfolds, you’ll find yourself rooting for her strength, inspired by her dedication, and moved by the powerful network of support that lifts her through each chapter of her ongoing quest for wellness. Join us as Nathali delivers a powerful message of hope, perseverance, and the undeniable strength of the human spirit.

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Endometriosis, Adenomyosis, and Pelvic Floor Dysfunction

Speaker 1
0:03

Welcome

to

Indobattery
,

where

I

share

about

my

endometriosis

and

adenomyosis

story

and

continue

learning

along

the

way
.

This

podcast

is

not

a

substitute

for

professional

medical

advice

or

diagnosis
,

but

a

place

to

equip

you

with

information

and

a

sense

of

community
,

ensuring

you

never

have

to

face

this

journey

alone
.

Join

me

as

I

navigate

the

ups

and

downs

and

share

stories

of

strength
,

resilience

and

hope
.

While

navigating

the

world

of

endometriosis

and

adenomyosis
,

from

personal

experience

to

expert

insights
,

I'm

your

host
,

Elana
,

and

this

is

Indobattery

charging

our

lives

when

endometriosis

drains

us
.

Welcome

back

to

Indobattery
.

Grab

your

cup

of

coffee

or

your

cup

of

tea

and

join

me

at

the

table

as

Natalie

continues

her

story

about

the

triumphs

and

the

tribulations

that

she

has

faced

in

her

endometriosis

journey
.

This

is

where

we

left

off

and

where

we're

going
.

Speaker 2
0:58

She

has

me

stand

up

and

she

calls

up

the

Captain

Morgan

pose

and

I

put

my

leg

up

on

the

thing
.

She

does

what

she

has

to

do

and

she's

like

cough
.

And

she's

like

you

don't

have

prolapse
.

She

was

like

you

have

a

severely

hypertonic

pelvic

floor
.

She

was

like

you

are

extremely

tense
.

And

she

was

like

what

have

you

been

doing
?

And

I

was

like
,

well
,

I

do

high

intensity

and

so

we'll

work

outs

and

kicles
.

And

she

was

like

stop

doing

kicles

immediately
.

You

need

loosening
,

not

tightening
.

And

that's

when

I

started

learning

about

the

pelvic

floor
.

And

so

my

husband's

there

and

we're

both

like

gobsmacked

by

this

like

woman

just

pouring

all

the

like
,

you

know
.

And

he's

just

saying

they're

like

yeah
,

those

are

all

her

symptoms
,

that's

all

her

stuff
,

you

know
,

like

we
.

Speaker 2
1:36

I

started

crying

honestly

because

I

would

too
.

I

hadn't
.

I'm

just

crying

out
.

I

had
.

I

had

never

had

that

experience

of

somebody

validating

me

in

that

way

and

I

literally

thought

I

was

in

the

Twilight

Zone
.

Speaker 2
1:49

And

she's

like

you

have

endometriosis
.

We

know

that

for

sure
,

we

know

that

for

a

fact
.

And

she

was

like

I

think

you

have

hernias
.

Who

are

you

thinking

of

seeing
?

And

I

was

like
,

oh

well
,

I

saw

that

there's

Dr

Badali

here
,

and

at

the

time

Dr

Orbuck

was

still

in

New

York

and

I

was

like

I

don't

know

who

to

go

to
.

And

she

was

like
,

oh

well
,

you

know
,

that's

your

choice
,

you

set

your

appointments
.

But

she

was

like

you

know
,

I

know

Dr

Badali
.

Well
,

we're

doing

this

thing

called

the

endometriosis

summit
.

If

you

want

to

come

next

year
.

And

she

was

like

I

just

had

excision

and

hernia

repair
.

So

she

was

like

I

also

have

a

hernia

surgeon

that

you

could

talk

to
.

And

I

was

like
,

okay
,

and

so

this

was

August

Of

what

year

she

was

able

2019
.

Okay
,

and

she's

able

to

do
.

I

don't

know

what

she

did
.

She's

doing

manual

therapy

on

me

external

right
,

external

manual

therapy
,

internal
.

I

start

seeing

her

weekly
.

Speaker 2
2:37

Dr

Sally

was

able

to

give

me

one

pain

free

day

per

week
,

sometimes

two
.

I

could

have

kissed

her

feet

because

I

had

been

in

so

much

pulsing
,

throbbing
,

raw

wound
,

lime

and

salt

being

rubbed

into

burning

pelvic

abdominal

pain

for

so

many

years

that

I

forgot

what

it

was

like

to

not

have

pain
.

And

so

I

trusted

her

and

she

just

was

able

to

keep

giving

me

guidance

and

advice
,

and

so

what

I

got
?

I

decided

that

I

just

wanted

to

see

Dr

Badali

and

I

couldn't

fill

his

packet

out
.

I

got

it

in

August

and

I

was

terrified

to

fill

it

out
.

It

took

me

forever

to

fill

it

out
,

not

because

it

was

difficult

but

because

I

was

like
,

do

I

need

this
?

Well
,

now

that

I'm

pain

free

for

one

day

a

week
,

maybe

it's

not

that

bad
,

maybe

I

can

still

fix

it
.

You

know
,

I'm

still

like

I

could

fix

it

with

diet
,

I

could

fix

it

with

exercise
,

I

could

fix

it

with

whatever
.

And

then

I'm

just

like

you

know

what
?

I'm

just

going

to

fill

it

out

and

I'm

going

to

go

see

the

hernia

surgeon
.

Speaker 2
3:44

I

go

to

Dr

Zolland
,

who

was

also

part

of

the

Intermediate

Stress

Assignment

faculty
,

and

I

gave

him

and

I

brought

like

an

old

CAT

scan
,

because

I

know

that

he

usually

does

MRIs
,

and

he

looks

at

the

CAT

scan

and

he's

like

oh

wow
,

yeah
,

no
.

He

was

like

you

have

hernias
.

He's

like

one
,

two
,

maybe

three
.

He

was

like

I'm

not

even

going

to

do

an

MRI
.

He's

like

they're

clear

as

day
.

Mind

you
,

the

CAT

scan

report

literally

says

no

hernias
,

because

he's

an

occult

hernia

specialist

and

these

are

different

types

of

hernias

that

you

get

from

endo
,

from

having

a

hypertonic

pelvic

floor

and

you

have

a

pelvic

floor

so

tight

that

it's

tugging

and

pulling

constantly

just

from

walking

and

on

top

of

that

I'm

doing

like

jumping

and

weights

and

whatever
.

You're

playing
,

superwoman
?

Speaker 2
4:25

All

the

time

Right
,

and

I'm

tearing

holes

into

my

body

and

I

have

no

idea
.

And

so

he

was

like

so

now

I

have

two

decisions

to

make
.

Am

I

going

to

have

hernia

repair
?

Am

I

going

to

have

excision
?

Am

I

going

to

do

both

at

the

same

time
?

And

I'm

reading

that

you

can

cure

hernias

naturally
.

Speaker 2
4:42

And

again

I'm

falling

into

the

same

trap

again
.

And

mesh

is

awful
.

The

devil

evil
.

Mesh

will

ruin

you

and

kill

you
,

right
?

And

so

I'm

like

I

don't

know

what

to

do
.

And

so

I'm

talking

to

Dr

Sally

about

it

and

she's

giving

me

all

the

information

that

I

need
.

She's

not

swaying

me

one

way

or

the

other
,

she's

just

giving

me

the

information

that

I

need
.

I

go

see

Dr

Badali
.

He

does

an

intravaginal

sonogram

and

he

was

like

I

think

you

have

a

denomiosis

as

well
.

And

he

was

like

given

your

symptoms
,

he

was

like

I

believe

you're

a

candidate

for

excision

surgery
.

I

believe

that

you

do

have

anemitriosis

and

we're

going

to

do

some

hormone

testing
,

because

I

told

him

that

I

wanted

a

family

plan
.

Nobody

had

ever

tested

their

hormones

before
.

Speaker 1
5:22

So-
.

No

one

ever

does
,

even

after

you

don't

have

a

uterus

half

the

time

you

can't

even

get

hormone

testing
.

This

is

a

whole

other

topic
,

though
,

but

yeah
,

yeah
,

hormones
.

Oh

God
,

anytime

somebody

tells

me

something's

wrong
,

I'm

like

hormones
.

Speaker 2
5:35

Check

your

hormones
.

Speaker 1
5:36

Yeah
.

Speaker 2
5:36

So

this

is

August
.

Now
,

right

In

October
,

my

now

husband

and

I

go

to

Japan
.

The

surgery

is

schedules
.

I'm

going

to

do

excision

surgery

first

In

Japan
.

Speaker 2
5:46

I

was

wonderful
,

I

barely

had

any

pain
.

And

then

that's

when

I

started

learning

about

the

mind-body

connection
,

right
,

how

my

I'm

diagnosed

with

PTSD

and

my

reaction

to

triggers

is

for

my

body

to

tense

up

really

badly
,

so

it

would

make

my

pelvic

floor

even

worse
.

And

that

week

I

was

just

able

to

relax

and

I

was

not

pain-free

but

less

pain
.

And

I

remember

coming

back

sitting

on

Dr

Sally's
,

laying

on

Dr

Sally's

table
,

and

I

was

like

Sally
,

you're

not

gonna
.

I

call

her

Dr

Sally
.

She

hates

it

that

I

call

her

that
,

but

it's

her

Instagram

handle
,

so

I

can't

stop

myself

from

calling

her

Dr

Sally
.

Speaker 2
6:18

She

was

always

like

can

you

just

call

me

Sally
?

And

so

she's

like

and

I

was

like

Dr

Sally
,

you're

not

going

to

believe

what

happened

in

Japan
.

She

was

like

let

me

guess

you

had

less

pain
.

And

I

was

like

how

did

you

know
?

And

she

was

like

there's

something

about

my

clients

that

when

they're

less

stressed

than

they

go

on

vacation
,

they

just

have

less

pain
.

And

she

was

like

it

just

makes

sense

Endometriosis Diagnosis and Surgery

Speaker 2
6:36

.

Right
,

november

comes

and

I'm

should

I

do

the

surgery
?

Should

I

not

do

the

surgery
?

Should

I

cancel

the

surgery
?

I'm

starting

to

feel

better

with

pelvic

floor

therapy
.

It's

getting

better

little

by

little
.

I'm

able

to

walk

and

take

a

step

and

not

feel

a

pulsing
,

burning
,

vibrating
,

throbbing

throughout

my

body
.

You

know
,

I'm

just

in

other

awful

pain
,

but

not

like

that
.

Speaker 1
6:57

But

it's

so

funny

how

we

are

okay

with

just

a

little

bit

better
,

instead

of

like

feeling

not

100%
,

but

even

feeling

like

a

human

half

the

time
,

not

just

a

pin

cushion
.

Speaker 2
7:12

I

think

I

just

didn't

remember

because
.

And

also
,

what

I

hadn't

noticed

was
,

like

I've

always

been

very

feminine

and

I

love

expressing

my

femininity
,

so

I

loved

wearing

high

heels

and

tight

dresses

and

the

way

that

I

like

to

express

it

right
,

and

that

was

always

part

of

me
.

But

like

I

hadn't

even

noticed

that

I

was

in

leggings

all

the

time

and

big

flowy

T-shirts

to

hide

my

endobeli

and

sneakers
,

which

is

totally

fine
,

there's

nothing

wrong

with

wearing

that

but

that's

what

I

had

started

wearing

all

the

time

and

it

just

wasn't

me

and

I

had

lost

a

little

bit

of

my

identity

and

my

confidence

and

like

who

I

was
,

because

I

couldn't

dress

the

way

that

I

liked

to

and

I

say

this

because

at

the

time

it's

November
,

I'm

just

like

it

can't

be

that

bad
,

you

know

whatever
.

And

then
,

literally

the

week

before

the

surgery
,

I

have

the

worst

flare

I've

had

in

the

years
,

probably

the

stress

of

it

coming
,

and

I

was

like
,

okay
,

I'm

gonna

do

the

surgery
,

like
,

even

if

they

find

nothing
,

at

least

I

know

that

it's

not

under

metriosis

and

I'm

gonna

do

something

else

right
.

And

that's

what

I

tell

people

now
,

like

at

the

very

least

you'll

know

that

it's

not

endo

if

they

find

nothing

right

and

like

we

both

know

that

100%

of

the

time

it's

like

you

have

endo
.

Speaker 2
8:20

I

can't

say

enough

about

Dr

Vidalhi
,

the

staff

at

the

Hoboken

Hospital

in

Jersey

and

my

due
.

This

is

August

to

December
.

This

is

a

very

short

period

of

time
.

They

were

wonderful
.

Speaker 2
8:32

I

told

the

anesthesiologist

I

was

like

you

have

to

tell

me

when

you're

gonna

put

me

to

sleep
,

because

I

hate

being

put

to

sleep

and

I

was

like

if

you

don't

tell

me
,

I'm

gonna

walk

off

this

table
.

He

was

very

kind

to

my

and

he

was

like

I'm

gonna

let

you

know
.

So

my

mom's

there
,

my

sister
,

my

now

husband
,

I

remember

going

in
,

waking

up

in

the

room

and

you

know

I'm

like

a

little

groggy

and

I

already

felt

different

and

I

know

that

you're

an

endocrine

acesa

and

all

that
,

but

like

I

already

felt

different

and

I

look

at

my

mom

and

that

moment

before

I

could

even

ask

if

they

find

anything
,

dr

Vidalhi

comes

in
.

He's

like

Natalie

hi

and

he

was

like

wait
,

and

it's

super

self-way
,

yeah
,

yeah
.

And

you

know
,

and

that's

what

I

love

about

Dr

Vidalhi
,

he's

so

passionate

and

proud

of

his

work
,

right
,

like

that's

the

kind

of

person

you

want

doing

surgery
,

somebody

who's

like
.

I'm

gonna

show

you

the

picture

and

the

video
,

because

that's

how

good

I

am
.

Speaker 1
9:20

You

know

what

I

mean
.

Speaker 2
9:22

Like

what's

better

than

that
?

And

he

comes

in

and

he

was

like

you

had

your

entire

rectovaginal

peritoneal

area

you

know

basically

where

your

butt

is

and

your

vagina

is
,

especially

towards

the

left
.

I

had

masses

of

endometriosis

by

bronic

tissue

just

piled

up

on

top

of

each

other
,

and

I

had

little

clear

endo
,

which

was

baby

endo
.

I

call

it

baby

endo
.

It's

like

new

growth

of

endo
,

Right
.

It's

a

good

word

for

it
,

though
,

and

I

didn't

know

baby

endo

is

like

the

most

painful
.

It

can

be

the

most

painful

because

it's

like

this

brand

new

growth
.

Speaker 2
9:58

And

if

you

look

at

my

images
,

you

would

have

to

be

an

endometriosis

expert

to

see

this
,

because

it

wasn't

brown
,

I

didn't

have

cysts

whatever
.

Discovering Undiagnosed Conditions and Multiple Hernias

Speaker 2
10:06

I

consider

myself

very

lucky

that

I

didn't

have

endometriosis

on

my

uterus
,

my

fallopian

tubes
.

I

had

a

little

bit

on

my

left

ovary

which

she

was

able

to

excise
.

I

didn't

have

it

in

my

intestines
.

It

was

literally

the

mass

of

endometriosis

lesions

on

my

rectovaginal

area

that

was

causing

constipation
,

causing

the

pelvic

floor

dysfunction
.

My

body

was

literally

like

tightening

up

to

protect

itself

from

this

alien

tissue

that

shouldn't

be

there
.

And

he

basically

scooped

me

out

like

a

watermelon
,

like

if

you

see

the

video

in

the

pictures
,

like

he

just

kind

of

cut

in

like

a

nice

little

butterfly

shape
.

All

of

this

mass

of

endo

and

everything

he

said

to

the

lab

was

endo
.

And

I

cried
.

The

second

he

walked

out

because

I

was

like

I

knew

it
.

I

knew

it
.

I'm

not

insane
,

I'm

not

crazy
,

I

wasn't

making

it

up
,

I'm

not

weak
.

Like

I

knew

something

was

wrong

and

nobody

was

listening
.

No

one
,

no

one

cared
.

No

one

cared

to

send

me

to

like

another

specialist
,

nobody

cared

to

send

me

to

a

pelvic

floor

therapist

and

these

people

just

didn't

know

what

they

were

talking

about
.

So

I

was

angry
.

I

was

so

angry

afterwards

because

it's

like

I

wanted

to
.

I

just

wanted

to

take

that

paper

and

be

like

look
,

I

told

you

that

I

was

in

pain
,

I

told

you

that

I

wasn't

okay

and

you

didn't

listen
.

And

I

see

Dr

Badali

for

my

follow

up
.

He

gives

me

the

surgery

video

and

he's

like

oh
,

by

the

way
,

do

you

know

if

you

have

PCOS
?

And

I

go

I

have

no

idea
.

And

he's

like

you

should

check

because

your

hormones

came

back

and

it

looks

like

you

might

have

PCOS
.

And

I

was

like
,

should

I

see

an

endocrinologist

for

that
?

And

he

goes

yeah
,

you

should
,

which

my

PCP

never

told

me

to

do
,

that

he

always
.

I

asked

once

if

I

should

and

he

told

me
,

no
,

I

go

to

endocrinologist
.

So

not

only

do

I

now

know

that

I

have

had

this

massive

endometriosis

excision
,

turns

out

I

had

undiagnosed

Hashimoto's

disease

for

my

entire

life

and

I

had

PCOS
.

Speaker 2
11:57

I

made

the

decision

to

not

take

birth

control

afterwards

because

I

just

wanted

to

see

how

it

would

be

like
.

It

was

suggested

to

me

that

I

should

stay

on

it

so

that

the

first

period

wouldn't

be

so

bad

post-excision
,

but

I

just

wanted

to

see

what

it

would

be

like
.

I

can't

explain

how

that

the

endometriosis

pain

for

me

was
,

very

specifically
,

an

raw
,

open

wound

with

salt

and

lime

being

rubbed

in

and

somebody

just

coming

every

once

in

a

while

and

just

ripping

it

apart

with

like

razor

blades
.

That's

what

it

always

felt

like
.

That

pain

was

gone
,

gone
.

Right

now
,

as

I'm

sitting

here
,

I

do

not

feel

that

pain

and

I

was

shocked

that

it

was

gone
.

But

then

I

had

horrific

throbbing
,

pulsating

pain

in

my

lower

body

and

I

didn't

know

why
.

Or

I

did

know

why

Probably

the

nerve

compression
,

right
,

it's

2020
.

The

world

shuts

down
.

We

don't

know

when

we're

going

back

to

our

doctors
.

Speaker 2
12:52

I

had

like

one

session

with

Dr

Sally
.

Post

operation

I

could

barely

commute

to

work
.

Honestly
,

even

a

month

in
.

It

was

very

difficult

for

me

to

walk
.

It

was

strange

cause

like

I

didn't

have

the

endometriosis

pain

anymore
,

but

I

was

like

in

what

felt

like

worse

pain

than

ever
.

But

I

think

what

it

was

is

just

in

the

absence

of

the

endometriosis

pain
,

the

other

pain

generators

that

I

always

had

were

just

screaming

loud
,

taking

center

stage
,

cause

that's

what

pain

is
.

Pain

is
.

Hey
,

pay

attention

to

me
,

cause

something's

wrong
.

Right
,

pain

has

a

function

and

I

think

I

think

we

forget

that

there's

a

function

to

pain

and

so

I'm

trying

to

do

virtual

therapy

with

Dr

Sally
,

but

I

think

I

should

have

known

at

the

time

cause

her

and

I

discussed

it
,

me

maybe

seeing

somebody

else
,

but

I

was

so

attached

to

her

I

didn't

want

to

leave

her
.

Speaker 2
13:40

Right
,

really

so
,

and

I

was

hoping

that
,

like

when

the

world

right

and

like

and

nobody's

going

to

know

what

Dr

Sally

knows
,

right
,

I

was

so

attached

to

her

and

we're

doing

virtual
,

but

I

literally

can't

walk

for

more

than

five

minutes
.

If

I

walk

for

more

than

five

minutes
,

I

would

say

I

spent

those

first

11

months

post-excision
.

I

was

in

a

fetal

position

on

my

couch

and

thank

God

that

it

was

COVID
,

because

I

would

have

lost

my

job
.

I

just

didn't

know

what

to

do

and

I

knew

that

I

had

to

just

go

get

the

hernia

repair
.

At

that

point

I

was

doing

your

block

injections
,

which

were

helpful
.

I

was

doing

pelvic

floor

injections
,

which

were

helpful
.

I

was

using

suppositories
,

which

were

helpful
.

I

would

say

they

got

me

through

those

11

months
.

But

something

physically

about

me

wasn't

getting

better

because

I

couldn't

move
.

I

just

couldn't

move

and

my

body

just

changed

so

much
.

I

gained

so

much

weight
.

I'd

never

seen

myself

like

this
.

Overnight
,

stretch

marks

erupted

and

it

was

a

reckoning

of

my

relationship

to

myself

and

my

body

and

starting

to

learn

how

to

be

nice

to

my

body

and

accept

my

body

for

what

it's

been

through

and

be

kind

to

it

and

that

those

stretch

marks

are

okay
.

They

were

just

making

way

for

space

that

I

needed

at

the

time

and

being

in

a

fetal

position

was

my

body

trying

to

protect

me

from

this

pain

that

I

was

having
.

Speaker 2
14:56

So
,

november

2020
,

11

months

after

having

excision

surgery
,

I

have

hernia

repair

and

it's

a

little

scary
.

We

don't

have

a

vaccine

for

COVID

yet
.

It's

at

a

surgical

center
,

not

a

hospital

At

the

time
,

nobody

else

can

come
.

So

I

was

just

like

again
,

if

Dr

Zollan

goes

in

and

he

finds

one

little

hernia

and

that's

what

it

is
,

at

least

we

know

that

it's

not

a

hernia

and

I

gotta

find

out

what's

going

on
.

He

goes

in

and

he

finds

seven

hernias
.

I

have

an

umbilical

hernia
,

I

have

two

inguinal

hernias
,

which

is

like

where

people

would

point

out

their

ovaries
.

I

have

two

obterator

hernias
,

which

are

like

down
,

like

towards

the

inside

of

your

thigh
,

and

I

have

two

no
,

sorry
,

that's

femoral

hernias

and

two

obterator

hernias
,

which

are

kind

of

like
,

in

the

same

area
.

So

I

had

twins

on

both

sides

of

the

body
,

equally

Worse
.

On

my

left

side
,

the

openings

were

a

lot

larger

and

pockets

of

fat

that

had

been

ripped

off

my

abdominal

wall

from

having

the

tense

pelvic

floor

have

fallen

into

these

tears

and

they

were

compressing

the

nerves
.

So

he

had

to

clean

up

debris

out

of

these

holes

and

close

it

up

and

cover

it

with

mesh
.

Recovery Journey to Powerlifting

Speaker 2
16:08

When

I

woke

up
,

first

of

all
,

that

surgery

made

me

realize

that

I

took

the

excision

surgery

for

granted
.

Excision

surgery

is

a

major

surgery
.

Yes
,

it

is

no

joke
.

Yes
,

I

would

do

10

hernia

repairs

over

an

excision

surgery

any

day
.

So

and

I

say

that

for

people

to

be

kind

to

themselves
,

because

excision

surgeries

are

no

joke

and

I

can't

describe

it

to

you

but

the

second

that

I

woke

up

from

that

surgery
,

I

felt

like

somebody

had

gone

from

the

inside

of

my

leg

to

my

ankle

and

zipped

me

up
.

And

it

was

like

I

was

zipped

up

and

it

was

nice

and

tight

and

my

legs

felt

tight
.

Speaker 2
16:44

Dr

Zollan

comes

in

and

he's

like

you

had

seven

hernias

and

he's

like

it

was

worse

on

your

left
.

He's

showing

you

pictures

Again
.

Another

doctor

who's

proud

of

his

work

yeah
,

and

you

know

Sally

knows

how

to

find

really

great

doctors

and

he's

like

you

know

he

was

like

have

you

ever

had

issues

like

not

really

feeling

your

left

leg
?

And

I

was

like
,

oh
,

yeah
,

I

just

you

get

you
,

you

know
.

Yeah
,

of

course
,

like

sometimes

I

can't

feel

my

left

leg

and

he

was

like

well
,

that

should

be

better

now
,

because

you

had

a

really

bad

femoral

compression

there
.

I

repaired

them

all
.

Let's

check

in

in

a

month
.

So

in

a

month
.

The

nerve

pain

is

awful
.

My

legs

feel

better
,

I

feel

sturdier
,

my

legs

feel

like

they

can

move

more
,

but

the

nerve

pain

is

like

out

of

control
.

The

pelvic

floor

pain

is

crazy
.

How

could

it

not
?

Speaker 2
17:27

be
,

I

had

a

major

surgery
.

Then

I

had

another

surgery
.

I

didn't

have

access

to

pelvic

floor

therapy
,

so

I

start

pelvic

floor

therapy

in

2021
.

I

started

going

twice

a

week
.

A

few

months

in
,

I

started

seeing

a

personal

trainer

because

I

was

just

so

weak

Again

I

had

my

abdomen

stretched

out

again

right
,

it's

like

six

months

just

for

your

abs

to

go

back

together

after

surgery
.

Speaker 2
17:50

And

you

know
,

I'm

not

gonna

lie

Like

I

was

feeling

really

defeated
.

I

was

like

I've

been
.

I

butchered

my

body

and

I'm

not

feeling

better
.

What

did

I
?

Did

I

make

a

mistake
?

Speaker 1
18:00

Right
.

Speaker 2
18:01

Maybe

I'm

just

not

fixable
.

Maybe

maybe

there's

something

about

me

that
,

just

like
,

this

is

the

life

I

have

to

live

is

in

pain
,

but

I

had

to

remember

what

I

learned

from

Sally

I

went

to

the

endometriosis

stomach

in

2020
,

right

before

the

world

shut

down

Right
,

and

that's

why
,

like

endometriosis

education
,

post-excision

is

so

important
.

Endometriosis

I'm

not

trying

to

plug

it

here
.

Speaker 1
18:24

I'm

gonna

be

there

in

March

but

like

I'm

gonna

plug

it

real

fast

If

you're

going
,

you

need

to

go
.

Like
,

if

you

have

the

opportunity

and

can
,

you

absolutely

should

go
,

absolutely

100%
.

Speaker 2
18:35

And
,

in

virtual
,

totally

worth

it
.

Yes
,

and

if

you

can't

go

and

you

can't

pay

for

the

ticket
,

watch

the

endometriosis

stomach

videos
.

Yes
,

they

are

free

99

and

you

get

free

information

from

some

of

the

best

in

the

world

yes
,

and

so

that's

when

I

learned

about

like

you

gotta

find

your

pain

generators

and

you

gotta

work

on

them

individually
,

because

the

excision

took

care

of

the

endo
,

but

your

body

got

used

to

something

being

there

for

your

whole

life

and

it's

gone

now
,

but

it's

gonna

keep

reacting

the

way

that

it

did
.

So

it

took

a

long

time
,

but

six

months

into

pelvic

floor

therapy
,

I

was

able

to

walk

30

minutes
.

Six

months

after

that
,

a

year

in
,

I

was

clear

to

lift

weights

and

you're

a

power

lifter
,

right
?

Yes
,

so

in

2022
,

I

was

still

working

with

that

personal

trainer
,

who

is

a

goddess
.

I

love

Holly

so

much
.

She

just

happens

to

be

educated

in

pelvic

floor

Because

she

she

has

worked

with

a

lot

of

women

who

have

had

children
,

but

she's

I'm

gonna

Say

how

awesome

she

is
.

She's

one

of

the

directors

of

fitness

at

NYU

for

the

athletes

and

we're

just

doing

these

little

workouts
,

right
,

because

I'm

feeling

better
,

we're

trying

to

work

up

to

it

and

then
,

all

of

a

sudden

I

get

a

new

job

and

this

job

has

a

rack

with

barbells

on

it

and

she's

like

have

you

ever

used

that

before
?

And

I'm

like

no
.

And

she

was

like

okay
,

let's

start

using

it
.

And

Then

every

week

I

was

getting

stronger

and

stronger
.

My

pelvic

pain

is

lessening
,

my

nerve

pain

is

lessening

and

I'm

still

doing

injections
.

I'm

still

using

suppositories
.

I'm

using

topical

ketamine
,

valium
,

stuff

like

that

to

keep

the

nerves

calm

down
,

because

you

gotta

calm

them

down
.

That's

what

pelvic

pain

rehab

does
.

Oh
,

sorry
,

pelvic

rehabilitation

medicine
,

I

think

they're

called

now
.

The

point

is

to

get

these

nerves

to

just

calm

down
.

Right
,

calm

the

heck

down
.

You're

not

in
.

Nothing's

compressing

you

anymore
,

just

right
.

So

I'm

still

public

floor

therapy
,

injections
,

personal

training
.

Speaker 2
20:32

And

then

I

start

noticing

that

I'm

getting

like

really

strong

every

week
,

every

week
,

I'm

gonna

see

if

I'll

lift

more
.

And

she

was

like

you're

really

strong
.

She

was

like

have

you

ever

thought

about

powerlifting
?

And

I

was

like

what

is

that
?

I

become

obsessed
.

I

start

watching

videos
.

That's

what

I

saw

my

weekends

doing
.

I'm

like

eating

popcorn
,

watching

powerlifting

videos

and

I'm

astonished

at

like

what

these

women

can

lift
.

I'm

like

so

inspired

and

I'm

like

I

can

do

this
.

Speaker 2
20:55

Yeah
,

again
,

I'm

doing

so

much

work

that
,

honestly
,

I

kind

of

shut

people

out
.

I

had

to

shut

people

out
.

I'm

focusing

on

work

and

I'm

focusing

on

my

body

because

I

wanted

so

badly

just

to

get

to

some

sort

of

better

Mm-hmm
.

And

Holly

just

says

to

me

listen
,

I've
,

I'm

tapped

out
.

She's

like

I'm

not

a

powerlifting

coach
,

but

I

think

you

should

work

with

a

coach

if

you're

really

interested

in

this

sport
.

And

so

she

recommended

my

amazing

coach
,

jacob
,

who

Is

just

such

a

kind
,

compassionate

type

of

person

that

you

want

to

train

you
.

It's

not

none

of

this

no

pain
,

no

gain
.

You

got

to

kill

yourself
.

Whatever

I

explain

endometriosis
.

He

understood

it

and

he's

been

so

gentle

with

me

and

so

he

accepted

me

on

his

team
,

which

was

like

insane

to

me
.

I'm

an

athlete

now
.

I

went

from

not

being

able

to

walk

to

I'm

an

athlete
.

I

have

my

first

meet

on

January

27th
,

which

I'm

practicing

for
.

Yesterday

I

squatted

the

most

I've

ever

squatted

in

my

life
.

Speaker 1
21:53

What's

your

PR
?

Speaker 2
21:54

and

so

right

now
,

on

the

squat
,

it's

135

pounds

get

it
,

girl
.

Speaker 1
21:59

That's

not

even

like
.

Speaker 2
22:00

Strength
.

That's

me

working

on

that

scale

that

you

work

on

when

you're

a

powerlifter
.

I

don't

know

I'm

gonna

lift

the

day

of

the

meat
.

But

the

hernia

repair

worked
.

My

nerve

pain

is

97%

less
.

Sometimes

I

get

it

gets

flared

up
.

How

can

it

not

right
,

okay
,

okay
,

like

I

tell

people

all

the

time

that

Sunday

messages
,

you

can't

undo

a

lifetime

of

damage

overnight
.

It's

only

four

years

post-excision

and

three

years

post-nerve

nerve

compression

repair
.

Speaker 1
22:29

Mm-hmm
.

Speaker 2
22:30

I

have

pelvic

floor

flare-up

sometimes
,

but

now

that

I'm

exercising

and

I

learned

my

body

so

well

through

pelvic

floor

therapy
,

I

know

how

to

do

what

I

need

to

do

to

calm

it

down

myself
.

And

if

not
,

I

am

still

seeing

a

pelvic

floor

therapist

weekly
.

Yeah
,

because

that's

just

what

I'm

gonna

need

and

I'm

thankful

that

I

have

the

privilege

to

have

the

access

to

it
.

Yeah
,

but

I

guess

the

thing

is
,

yeah
,

you're

probably

not

gonna

feel

immediately

better

after

excision

surgery
.

But

just

understand

that

there

could

be

so

many

things
.

Speaker 2
22:57

Mm-hmm

that

are

gonna

still

cause

pain
,

that

the

endometriosis

might

have

made

worse

and

you

might

have

comorbidities
.

I

still

deal

with

Hashimoto's

disease
,

right
,

so

I

still

deal

with

Exhaustion
.

If

I'm

not

on

my

meds

properly
,

I

have

PCOS
,

which

I

have

to

deal

with
,

my

severe

insulin

resistance

there
.

So

there's

so

much

more

to

the

puzzle
.

There's

so

much

more

to

the

pain

puzzle

for

endometriosis

patients

and

our

bodies

are

so

different
.

I

know

people

that

have

excision

surgery

and

are

like

running

two

months

later

and

they're

fine
.

That

wasn't

me
.

No
,

that

wasn't

me
.

Speaker 2
23:27

I

just

didn't

give

up
.

I

had

hope
.

I

believed

in

the

medical

team

that

I

built

for

myself
,

mostly

through

the

endometriosis

summit
,

and

they're

the

ones

that

I

still

have

now
.

And

if

it

wasn't

for

that

community

of

Doctors

that

care

about

their

jobs
,

that

were

willing

to

all

even

talk

to

each

other

on

my

behalf
,

even

talk

to

my

personal

trainer

on

my

behalf

Yep
,

I

wouldn't

be

where

I

am
.

The

best

advice

I

could

give

anybody

is

like

if

you

just

had

excision

surgery

and

you're

in

pain
,

I'm

sorry
,

have

patience
.

Yeah
,

if

you're

in

danger
,

if

you

feel

like

your

life

in

the

nature
,

go

to

the

doctor
,

go

to

the

ER
,

go

Right
,

but

what

you're

feeling

may

not

be

endometriosis

pain
.

If

it

was

a

proper

excision

it

might

be

public

floor
.

It

might

be

no

compression

right
.

So

that's

my

story
.

I

went

from

barely

being

able

to

take

a

step

To

powerlifting
,

and

I

could

probably

power

lift

in

high

heels

if

I

tried

yeah
,

why

not
?

Speaker 1
24:22

I

mean

other

than

the

pill
.

You

know

your

PT

might

not

like

that
,

so

much

come

the

following

week
,

but

I

think

it's

important

to

highlight

the

surgery

did

not

cause

the

hernias
.

The

hernias

were

there
.

Speaker 2
24:36

Yes
,

that

is

so

important
,

that's

the

biggest

question

I

get
.

So

Sally

suspected

hernias

way

before

the

excision

and

and

they

were

not

caused

by

the

excision

surgery
.

They

were

not
.

They

were

there
,

like

the

type

of

damage

that

I

had

and

the

openings

that

did

not

happen

from

surgery

it

within

a

few

months
.

That

was

years

and

years

of

tugging
,

tugging
,

ripping
,

ripping

from

having

a

hypertonic

pelvic

floor

Right
,

which

is

this

bizarre

to

me
,

that

like

because

people

say
,

well
,

how

did

the

endo

cause

your

hernias
?

I

was

like
,

well
,

it

caused

pelvic

floor

dysfunction

and

it

had

a

hypertonic

pelvic

floor

and

it

was

pulling

and

pulling

and

ripped

and

ripped

and

and

that's

how

it

ended

up

happening
.

But

yeah
,

that's

a

really

good

point
,

we

suspect

that
,

that

I

had

them

and

I

did

absolutely

had

it

before

I

had

excision

surgery
.

Yeah

for

sure
.

Speaker 1
25:22

What

do

you

do

to

prepare

now

that

you're

powerlifting
?

I

know

it

took

you

a

long

time

and

and

I'm

in

the

same

boat

where

I

have

a

trainer

who

is

very

aware

of

the

public

floor
.

So

we

do

pelvic

tilts

a

lot

90
,

90

stretches
.

Making

sure

internal
,

external

rotation

are

very

important
,

making

sure

we

warm

up

properly

so

that

I

don't

hurt

myself
.

Speaker 2
25:42

Yes
.

Speaker 1
25:43

Those

you

kind

of

have

to

work

up

to

Navigating Pelvic Floor Health and Endometriosis

Speaker 1
25:45

.

I

think
,

in

a

lot

of

ways
,

like

it's

not

something
,

yeah
,

it's

not

instant
.

Speaker 2
25:49

Absolutely

no
,

no
,

no
,

I

mean

I
.

I

remember

when

I

couldn't

even

squat

like

a

30

pound

dumbbell

right

and

I

squatted

135

pounds

yesterday
.

So

it's

yeah
,

I

know

I'm

so

excited
.

It

takes

time

and

that's

what

I

say
.

It's

like

this

progress

is

three

and

a

half

years

of

intensive

work

on

my

part
,

like

really

committing

to

doing

it
,

even

on

the

days

I

didn't

want

to
,

and

I

get

it
.

I

get

it

that

you're

in

pain

and

you're

tired

and

all

that

stuff
,

and

you

shouldn't

feel

bad

for

that
.

Some

days

I

just

didn't

do

it

because

I

don't

want

to
.

Speaker 2
26:21

But

but

the

thing

is

like

it

was

three

and

a

half

years

of

work

and

after

three

and

a

half

years

of

like

really

listening

to

your

body

and

I

mean

really

listening

because

it

was
,

if

it

wasn't

friend

of

me
,

true
,

so

I

would

have

never

learned

to

listen

to

my

body

I

can

feel

the

separate

types

of

pain
.

I

know

when

it's

nerve

pain

now
.

I

know

when

it's

pelvic

floor

tension

now
.

And

so

before

I

power

lift
,

or

even

sometimes

in

the

mornings
,

before

I

go

to

work
,

to

someone

to

walk
,

I'm

gonna

commute

right
.

I'm

gonna

use

the

tools

that

my

fit

pelvic

floor

therapist

gave

me

and

my

personal

trainer

gave

me
.

I

keep

my

dilators

clean

and

ready
,

with

the

lube

next

to

it
,

because

maybe

in

the

morning
,

while

I'm

doing

my

makeup

or

Curling

my

hair

before

I

go

to

work
,

I

have

a

dilator

in
,

because

I

can

feel

the

tightness

and

I

know

that

if

I

just

go

with

that
,

the

tightness

starting
,

it's

gonna

get

worse

and

by

the

end

of

the

day

it's

gonna

be

much

worse

than

it

was

before
.

Speaker 2
27:11

So

I

kind

of

know

now

I

need

to

use

a

dilator

today

or

I

need

to

put

a

suppository

in

today

I

used

to

have

to

take

one

of

those

suppositories

daily
.

Now

I

take

it

sporadically
.

Yeah
,

and

when

I

first

started

lifting

and

it

was

really

funny

If

we

would

start

a

new

training

block
,

a

new

type

of

movement

my

body

immediately

would

go

into

pelvic

floor

flare

and

I

learned

this

about

myself
.

So
,

exactly

like

you

said
,

I

do

warmups

that

are

all

about

telling

my

body

it's

safe
,

preparing

it

for

movement
,

telling

my

body

that

it's

gonna

be

okay
,

that

this

isn't

going

to

hurt

me
,

and

I

know

that

sounds

silly
,

but

I

do

talk

to

my

body

and

I'm

gentle

with

it
.

I'm

like

thank

you

for

tessing

up

because

you're

trying

to

protect

me
,

but

I

don't

need

it
,

it's

unnecessary
,

don't

tense

up
.

Speaker 2
28:01

And

your

diaphragmatic

breathing
.

It's

a

simple
,

it's

a

very

simple

thing

to

do
,

but

it's

so

effective
.

You're

calming

your

central

nervous

system

now

and

I

know

that

for

me
,

that

is

definitely

one

of

the

factors

is

I

already

have

a

diagnosis

of

PTSD

from

other

things

that

have

happened

in

my

life

and

I'm

absolutely

a

person

where

I

immediately

get

the

bodily

symptoms

from

it
.

That's

me
.

So

I

will

do

these

warmups

that

are

hip

openers
,

public

floor

relaxers
,

and

just

do

as

much

as

I

can
.

Sometimes

it

doesn't

work
,

sometimes

my

public

floor

is

upset

and

it

just

doesn't

want

to

be

nice

and

cooperative

and

it's

gonna

be

tense

the

whole

time

and

that's

fine
.

And

after

my

workouts

I

will

sit

there

and

do

a

cool

down

right

Crocodile
,

breathing
,

happy

baby
,

which

my

husband
,

every

time

he

sees

me

in

happy

baby
,

he's

like

are

you

calling

the

mother

ship
?

Speaker 2
28:51

And

he

makes

he's

like

and

I'm

like

yes
,

I'm

calling

the

mother

ship

with

my

vagina
,

that's

right
,

and

you'll

thank

me

for

that

later
.

Speaker 1
28:58

okay
,

yeah
,

exactly
.

Speaker 2
29:02

Only

we

need

to

know

about

this

that

do

happy

baby

pose

and

I

don't

care

if

I

do

those

in

the

gym

in

front

of

people
.

They

can

watch

what

they

want
.

My

public

floor

health

is

more

important

than

that
.

And

as

far

as

like

nerve

pain

goes
,

a

lot

of

times

again

I

don't

really

feel

it

as

much

anymore

After

my

workouts

that's

when

I

do
,

or

before

I

do

those

pelvic

tilts

right

and

thrusts

just

hip

thrusts

are

amazing

for

rectal

tension

for

me
.

Speaker 2
29:25

Oh

my

God

if

I

get

a

nice

heavy

barbell

on

me

and

I

do

like

a

really

good

hip

thrust
.

It'll

release

that

tension
.

There's

something

about

me

where

tension

on

tension

just

like

releases

it
,

it

cancels

it

out
.

And

when

I'm

not

working

out
,

I'll

just

make

sure

to

like

do

little

things
,

like

making

sure

that

I'm

sitting

in

a

way

that's

not

making

it

worse
,

using

my

dilators
,

doing

my

diaphragmatic

breathing
.

It's

just

part

of

my

life

now
.

It's

part

of

the

process
.

Speaker 2
29:48

I

don't

see

it

as

a

chore

anymore
.

It

comes

natural

to

me

and

being

mindful

of

what

kind

of

shoes

I

wear
,

being

mindful

of

what

kind

of

clothes

I

wear
,

if

I

feel

a

nerve

flare

coming
,

I'll

try

to

stop

it

with
.

Maybe

sometimes

I

don't

need

the

stuff

from

the

Pimpas

I

address
.

The

lighted

came

patch

over

the

counter
.

I

could

just

pop

it

on

there

and

like

stop

it

before

it

goes

nuts
.

So

I've

learned

it

through

pelvic

floor

therapy
,

working

with

a

personal

trainer

and

just

listening

to

my

body

and

what

it

needs
.

It

doesn't

always

work
,

it's

not

always

perfect
,

I'm

not

always

on

top

of

it
.

I'm

human
.

But

for

the

most

part

I'm

trying

and

that's

the

most

important

thing

that

I

can

do
.

Speaker 1
30:29

It's

just

try

for

myself
.

Speaker 2
30:30

Yeah
,

that's

my

days

now

and

I'm

gonna

say
,

as

I'm

sitting

here
,

like

these

past

few

weeks
,

especially

when

I

lift
,

when

I

lift

I

feel

really

good
.

I've

been

like

90%

and

no

pain
,

right
.

I'm

having

a

weird

like

rib

cage

pain
,

nerve

pain
.

I

have

no

idea

why
.

We'll

figure

it

out

eventually
.

That's

how

I

approach

things

now
.

Speaker 1
30:49

I'm

like

I'll

figure

it

out
,

I'll

figure

it

out
,

but

you

know

the

proper

channels

now
,

too
,

where

it's

like

okay
,

I'm

not

gonna

just

ignore

it
,

I'm

going

to

actually

investigate

what

it

is
.

Okay
,

I'm

gonna

start

with

step

one
.

Is

it

my

pelvic

floor
?

Is

it

pulling

on

that
?

Is

it

something

else
?

So

you

know

the

proper

channels
,

but

you

didn't

get

there

overnight
.

It

wasn't

like

oh
,

I

know

what

that

is
.

It

takes

a

long

time
.

Speaker 2
31:12

No
,

it

takes

a

long

time
.

And

I

also

have

just

never

stopped

learning

about

a

new

metriosis
.

And

thank

God

for

Heather
,

for

Sally
,

for

Amy

Corfally
,

for

Katie

Boyce
,

for

you
,

for

people

that

just

keep

talking

about

it

and

talking

about

how

it

affects

us

all

so

differently
.

Because

I

think

that

a

lot

of

times

you'll

have

a

symptom

and

you'll

just

attribute

it

to

something

else

and

then

you'll

just

hear

that

one

conversation

and

be

like

holy

crap
,

it's

my

endo
.

My

endo

is

the

reason

why

this

is

happening
.

And

so

I'm

just

gonna

keep

doing

what

I

did

when

I

was

20
,

which

is

just

keep

learning

about

how

my

diseases

affect

me
.

Speaker 2
31:49

Like

the

way

that

I

picked

my

endocrinologists

and

to

help

me

with

my

PCOS

and

Hashimoto's
.

I

was

like
,

can

you

explain

to

me

biologically

what's

happening

in

my

body
?

Why

do

I

feel

this

way
?

What's

the

mechanism

that's

failing
,

that's

causing

the

symptoms

that

I'm

having
?

I

remember

there

was

one

doctor

who

got

so

offended

by

that

question

and

he

was

like
,

well
,

it

sounds

like

you're

pretty

right

up

on

it
,

so

whatever

you

think
.

And

I

was

like

I'm

never

coming

back

here

again
.

Speaker 1
32:13

That's

nobody

asked

you
,

so

it's

right
.

Speaker 2
32:17

That's

why

I

asked

you

and

it's

like

just

because

I

can

be

so

educated

and

researched

and

whatever
,

I'm

still

not

a

doctor
.

So

I

say
,

endometriosis

has

been

my

cruelest

abuser

but

my

best

teacher
.

I

know

how

to

advocate

for

myself

when

I

have

other

things

wrong

with

me
,

I

know

what

kind

of

questions

to

ask
,

how

to

show

up

to

the

doctor
,

and

no

one
.

It's

time

to

move

on
.

And

maybe

when

I

feel

like

I'm

not

being

heard

and

that's

why

I

started

my

advocacy

page
,

because

I'm

first

generation

and

I

had

to

learn

all

that

by

myself
.

Endometriosis and Latino Cultural Health

Speaker 2
32:45

No

one

in

my

family

knew

what

the

American

healthcare

system

is

like

and

you

don't

think

about

that
.

Speaker 2
32:51

A

healthcare

system

in

another

country

is

just

different
,

and

in

Latino

culture

you're

taught

not

to

question

doctors
,

because

in

the

United

States

people

don't

understand
,

like
,

if

you're

from

in

America
,

honduras

or

El

Salvador
,

like

my

family

is
,

if

you

become

a

doctor
,

that

means

one

that

you're

super

smart
,

because

some

of

the

best

universities

are

public

and

you

have

to

pass

grueling

exams

to

get

in
,

or

two
.

Speaker 2
33:13

You

come

from

extreme

wealth

and

privilege
,

and

so

the

thing

is

in

the

United

States

I'm

not

saying

that

just

anybody

can

become

a

doctor
.

That's

not

the

truth
,

but

it

is

just

a

little

bit

easier
.

But

the

thing

is

that

prestige

and

that

mentality

of

like

you

don't

question

that

type

of

authority

is

ingrained

in

you

as

a

kid

and
,

like

you

know
,

you're

a

kid

like

translating

the

legal

documents
,

medical

documents
.

I

literally

took

a

job

at

a

health

insurance

company

when

I

was

like

25
,

just

to

learn

what

health

insurance

was

like
,

because

I

didn't

understand

it
.

I

didn't

learn

what

health

insurance

worked

like

until

I

took

a

job

at

a

health

insurance

company

and

now

I

know
,

and

I

know

that

it's

a

whole

mess
.

Speaker 1
33:52

We're

going

to

have

to

have

another

part

two

on

that
,

because

that's

a

big
.

You

didn't

know

you

opened

up

that

can

of

worms
,

did

you
?

Yeah
?

Speaker 2
33:59

I

know

I

didn't

Like

a

lot

of

things

that

I've

done

in

my

life
.

I

just

did

them

to

learn

about

them

because

I

had

no

other

person

to

turn

to

and

I

asked
.

I

tried

to

look

for

mentors
,

but

I

think

I

realized

like

so

many

of

us

just

don't

really

know

what

we

don't

know

if

we're

not

dealing

with

it

right
.

Not

everybody's

in

a

chronic

pain

so

they're

not

going

to

know

how

to

navigate
.

Talking

to

doctors

College

again
.

Speaker 2
34:23

I

did

that

on

my

own

I

wish

somebody

would

have

told

me

you

could

transfer

to

a

different

university
.

You

can

do

all

these
.

Just

because

you

studied

psychology

doesn't

mean

you

that's

what

you

have

to

do

for

the

rest

of

your

life
.

It

matters

what

you

do

if

you

have

a

master's

program

for

certain

things
,

and

you

know
,

I've

had

to

learn

so

many

things

on

my

own
,

and

so

that's

why

I

created

endosipota
.

I

wanted

people

to

immediately

know

from

the

name

I

have

endo
,

and

then

I'm

a

Sipota
,

a

Central

American

girl
,

and

that's

the

perspective

that

I

have
.

I'm

the

first

in

the

family

to

do

everything

and

endometriosis
.

I'm

the

first

in

the

family

to

do

endometriosis
,

and

it

explains
,

maybe
,

why

my

grandmother

had

horrific

periods

right

she's

not

with

us

now
,

but
,

oh

man
,

maybe

grandmother

had

endometriosis

right

or

just

being

more

empathetic

and

sympathetic

to

like

the

other

woman

in

our

family

that

might

be

dealing

with

this
.

So

that's

what

I

want

to

do
.

Speaker 2
35:20

I

understand

the

cultural

reasons

why

you

might

not

go

to

a

gynecologist

because

you're

supposed

to

be

a

virgin

until

you

get

married
.

I

understand

that

our

family

teaches

us

that

tampons

take

your

virginity
.

I

understand

that

we're

very

natural
,

organic
,

fresh

food

from

the

farm

focus

and

we

think

that

that's

going

to

solve

all

the

issues

and

that

surgery

is

extreme

and

lazy
.

This

is

a

lot

of

the

programming

that

I

got

just

from

my

own

family
,

so

you

have

to

fight

also

against

that

cultural

part

of

it

that

can

be

tough
.

I'm

explaining

a

disease

that

may

cause

infertility

to

a

Latino

family

where
,

like

having

a

child

is
,

and

American

culture

is

the

same

Having

a

child

is

the

biggest

accomplishment

that

a

woman

can

have

Becoming

a

mother
,

becoming

a

matriarch
,

developing

her

matriarchal

line
.

Speaker 2
36:05

There's

so

much

honor

and

pride

and

carrying

the

family

name
.

I

never

talked

about

it

because

I

got

tired

of

my

family

asking

me

when

I

was

going

to

have

a

kid
,

because

I'm

just

like

I'm

in

pain
.

I

can

barely

take

care

of

myself

right

now
.

I

passed

out

on

the

bathroom

floor

and

when

I

woke

up

I

had

pooped

myself

Right
.

Speaker 1
36:28

I

can't

have

a

kid

right

now
.

I

can't

even

take

care

of

myself

right

now
.

It's

like

you

can't
,

right
,

I'm

the

baby

Right
.

And

you

know

I

will

tell

you
,

as

someone

who

had

two

ablation

surgeries

and

then

I

was

able

to

get

pregnant
,

my

endosymptoms

came

full

force

after

my

first

child
.

It

is

not

easy

to

parent

with

endo
.

You

have

a

lot

of

guilt

associated

with

that

and

you

have

a

lot

of

trauma

associated

with

that
.

And

my

oldest

will

tell

you

now

mom
,

I

remember

when

you

were

on

the

couch
.

I

remember

when

you

were

throwing

up
.

I

always

have

like

Ziploc

bags

for

my

kids

to

throw

up

in
.

You

know

people

have

buckets
.

I

have

bags

because

it's

easier

for

them

to

carry

around
.

But

I

had

those

and

so

my

daughter

remembers

me

carrying

around

my

Ziploc

bag
.

And

then
,

after

my

second

child

was

born
,

it

got

so

bad

that

I

mentally

some

days

couldn't

handle

being

mom

and

endopatient

and

the

guilt

associated
.

Speaker 2
37:28

So

I

can't

even

imagine
.

Speaker 1
37:29

I

mean
,

I

think

that

is

something

to

you

know

culturally
,

when

you're

expected

to

have

a

child

at

a

certain

age

or

at

a

certain

stage

of

your

relationship
,

but

you

physically

just

feel

like

you

can't
.

Speaker 2
37:41

It's

okay
.

And

I

was

also

told

that

I

was

infertile
,

right
.

So

I

was

30

when

I

had

my

excision

surgery

and

Dr

Vidal
,

I

was

like

you're

fine
,

you

can

totally

have

kids
.

There

was

no

physical

damage

to

your

sex

organs

and

your

AMH

is

fine
.

I

had

already

prepared

for

a

life

without

children
.

Speaker 2
37:58

And

then

I

met

my

husband
,

who

made

me

want

to

have

kids

and

we're

going

to

hopefully

try

soon
,

but

it's

a

sensitive

topic
,

right
?

Just

what

you

explained
,

right
?

Like
,

even

if

you're

having

a

no

matrices

and

you're

able

to

have

children
,

it's

still

a

very

difficult

conversation

to

have
,

because

I've

heard

from

a

lot

of

moms

that

they

have

this

guilt
.

I

admire

you

because

I

just

think
,

like
,

how

lucky

that

those

kids

have

an

endo

mom
,

because

you're

somebody

who

is

going

to

be

so

compassionate

and

empathetic

to

when

they're

in

pain

or

they're

not

feeling

well
,

and

you'll

know

to

just

pay

a

little

bit

more

attention

to

that

detail

and

when

it

comes

to

their

medical

care
,

oh

my

God
,

who

better

than

you
?

I

think

it's

a

privilege

to

be

loved

by

an

endo

mom
,

so

I

think

you're

awesome

and

I

think

those

kids

are

very

lucky
,

even

if

they

have

those

moments

that

they

bring

up

where

you

might

feel

guilty
.

So

thank

you
.

Speaker 2
38:49

I

think

it's

a

great

way

to

have

a

drink

that

not

everyone

does
,

so

yeah
,

that's

a

great

way

to

put

that
.

Speaker 1
38:56

Thank

you
,

that

was

a

little

confidence

booster
,

but

I'm

still

saving

for

therapy

for

them
,

just

for

other

reasons
.

Speaker 2
39:07

It's

like

I

told

my

therapist

I'm

like

I'm

so

afraid

of

messing

my

kids

up

you

know

that

I

don't

have

and

she

was

like

that's

okay
,

there's

going

to

be

a

therapist

for

them

too
.

Speaker 1
39:16

Yeah
,

for

us

all

and

that

was

a

good

point
.

Yeah
,

I

was

like

the

therapist

can

fix

it
.

That's

right
,

I'm

saving

for

it
.

It's

fine
.

This

has

been

so

fun

to

sit

down
.

I

feel

like

we

need

to

do

like

a

part

two
,

part

three
,

part

four
,

part

five
.

I

mean

we'll

do

this

again

because

you're

a

wealth

of

knowledge
,

but

your

compassion

and

your

background

and

your

story

it

highlights

just

some

beauty

within

the

endometriosis

community

In

the

disease
.

That

is

not

beautiful
.

You

have

created

such

a

beautiful

outlook

about

it

and

just

the

way

that

you

have

navigated

that
,

even

though

it's

been

tough
,

is

impactful
.

Thank

you
,

oh

my

gosh
.

Speaker 2
39:57

I

can't

turn

the

red

here
.

They

got

to

make

a

bomb
.

Speaker 1
40:01

No
,

I

just

I've

been

following

you

for

a

while

anyway

online

and

then

it

was

like

hey
,

you

know

we

had

connected

and

I

was

like

you

are

just

a

really

sweet
,

sincere

person

that

has

a

lot

to

offer

so

many

people
,

and

that's

why

I'm

so

excited

that

you're

doing

your

new

publication

posts
.

I'm

really

excited

for

those
.

Speaker 2
40:18

It's

just

going

to

be

Latinas

who

are

first

one
.

Like

me
,

it'll

be

in

English
.

Perfect
,

and

I

eventually

will
.

I

do

have

some

stuff

in

Spanish

and

I

will

always

speak

Spanish

because

I

am

bilingual
,

but

yeah
,

no
,

these

will

be

in

English
.

So

if
,

even

if

you're

not

Latina
,

you're

more

than

welcome
.

If

you

have

endometriosis

and

you

want

to

hear

from

somebody

else

who

has

endometriosis

how

they're

navigating

college
,

career

search
,

self-advocacy
,

how

to

find

the

right

doctors
,

come

and

sit

with

us
,

you're

more

than

welcome
.

Speaker 1
40:45

Yeah
,

and

that's

the

chronic

RBF
.

That's

what

you're

starting
.

Speaker 2
40:50

Yes
,

name

of

my

newsletter

yeah
,

because

I

always

got

a

curious

of

having

resting

bitch

face

and

I

was

like

I

was

in

pain
.

That's

all

I

was
.

I

think

I

was

better

than

anybody
.

I

just

literally

was

trying

to

fall

off

my

chair

and

oh
,

I

was

pretty

irritable
.

Speaker 1
41:03

My

mom

will

tell

you
.

Actually

she

came

on

the

podcast

and

she

was

like

you

were

pretty

irritable
.

I

was
,

but

I

was
,

it

was

because

of

my

pain
.

Response

to

how

could

you

not

be
?

Speaker 2
41:11

Right
,

you're

in

pain

every

second
,

like

how

could

you

not

be

irritable
?

That's

why

I

have

so

much

compassion

now

for

anybody

Appreciation for Back Support and Advocacy

Speaker 2
41:18

.

Like

anytime

anybody

tells

me

like

I

hurt

my

back
,

I'm

like

I

get

it
.

Sit

down
,

relax
,

I'm

going

to

baby

you
,

it's

going

to

be

okay
.

Speaker 1
41:25

You

can

come

my

way

and

baby

me

any

day

when

I

hurt

my

back
.

Speaker 2
41:29

I

will

happily

do

so
.

Speaker 1
41:30

Okay
,

perfect
.

Natalie
,

thank

you

so

much

for

taking

the

time

and

just

spending

that

with

me
.

I

just

really

appreciate

you
.

Thank

you
.

Speaker 2
41:39

I

appreciate

you

too
,

and

your

podcast

is

badass
.

Thank
,

you
.

Thanks

for

all

the

work

you

do
.

Speaker 1
41:44

Oh
.

Speaker 2
41:45

I

can't

imagine

how

much

work

it

is
,

but

I'm

sure

it's

a

lot
.

Speaker 1
41:47

It

is

a

lot
,

but

it's

worth

it
.

When

I

know

that

people

have

been

helped
,

it

is

totally

worth

it
.

Every

hour
,

until

next

time
,

everyone

continue

advocating

for

you

and

for

those

that

you

love
.

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