Send us a text with a question or thought on this episode ( We cannot replay from this link)
We start our part two with talking about ways that we can communicate to your care provider and setting the tone for your appointment. Something we should always ask is what is the differential diagnosis? This puts you in a position to gather more information and have your doctor really be present with you in the exam room. That was just the start to the wisdom Kimether showered on us.
We’ve all heard and experienced the abysmal information and care when it comes to Endometriosis. Have you ever stepped back and looked at the history of endometriosis care? Imagine having the same pain as other’s but being told it’s only a white woman’s disease. Kimether continues walking us through the history of Endometriosis and the roots of racism and scientific racism to people of color. She talks about how it all really started with a doctor with the last name of Meigs ( ring a bell?). It started out because of a sociological difference between middle to upper class white woman and people of color. Kimether gives not only the history, but incredibly insightful thoughts on why there’s still racial inequality within our health system and specifically for those of color dealing with Endometriosis, or any chronic disease.
This episode was thought-provoking and full of mind blowing information. Listening to Kimether bring history to light challenges us to look at how we approach inclusive care for all. This is a must listen to for everyone!
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Website endobattery.com
Navigating Healthcare as an Endometriosis Patient
Speaker 1
0:02
Welcome
to
EndoBattery
,
where
I
share
my
journey
with
endometriosis
and
chronic
illness
,
while
learning
and
growing
along
the
way
.
This
podcast
is
not
a
substitute
for
medical
advice
,
but
a
supportive
space
to
provide
community
and
valuable
information
so
you
never
have
to
face
this
journey
alone
.
We
embrace
a
range
of
perspectives
that
may
not
always
align
with
our
own
.
Believing
that
open
dialogue
helps
us
grow
and
gain
new
tools
always
align
with
our
own
.
Believing
that
open
dialogue
helps
us
grow
and
gain
new
tools
.
Join
me
as
I
share
stories
of
strength
,
resilience
and
hope
,
from
personal
experiences
to
expert
insights
.
I'm
your
host
,
alana
,
and
this
is
IndoBattery
charging
our
lives
when
endometriosis
drains
us
.
Welcome
back
to
IndoBattery
.
Speaker 1
0:41
Today
is
part
two
of
our
episode
with
Kimetha
Redman
,
and
this
is
where
we
left
off
.
Speaker 1
0:48
I
went
in
to
see
a
PA
for
a
urology
clinic
and
it
gave
me
a
snippet
of
kind
of
what
you're
talking
about
,
because
I
walk
in
and
she
says
to
me
well
,
your
ultrasounds
are
probably
inconclusive
,
they're
oftentimes
wrong
and
stones
aren't
really
as
big
in
there
as
the
ultrasound
is
made
to
seem
,
and
sometimes
you
don't
have
stones
,
even
if
the
ultrasound
says
that
you
have
stones
.
She
never
palpitated
anything
on
me
,
she
never
looked
at
me
,
she
barely
acknowledged
me
,
even
though
I
have
a
history
of
stones
.
So
this
is
a
lot
of
what
I
feel
like
you
go
through
to
jump
through
hoops
to
just
have
someone
listen
to
you
and
believe
you
.
And
we
,
as
endometriosis
patients
,
already
experience
this
to
a
heightened
level
.
Women
typically
experience
this
to
a
heightened
level
and
all
those
layers
.
So
when
we're
communicating
to
these
practitioners
,
how
do
we
communicate
and
I
don't
want
to
say
demand
,
because
that
can
have
a
negative
connotation
but
how
do
we
set
the
tone
of
respect
and
expectation
as
a
patient
walking
into
a
provider
?
Speaker 2
2:11
The
fact
that
you
had
a
history
of
kidney
stones
.
You
had
documentation
,
you
had
I'm
sure
consultation
notes
previous
visits
with
other
providers
and
they
were
that
dismissive
.
Those
are
the
ones
that
I'm
like
.
I
can't
waste
my
energy
on
you
?
Speaker 1
2:22
Nope
,
I'm
not
going
back
to
her
.
Speaker 2
2:23
No
,
because
,
even
though
I'm
always
giving
people
can't
waste
my
energy
on
you
.
Nope
,
I'm
not
going
back
to
her
.
No
,
because
even
though
I'm
always
giving
people
different
insight
on
,
like
,
how
to
prepare
for
your
visit
,
you
know
,
certainly
you
can
help
set
the
tone
by
coming
in
with
your
symptom
tracking
.
You
know
,
I
try
to
do
a
one
page
summary
of
,
like
the
chief
complaint
kind
of
your
history
or
present
illness
,
like
what's
going
on
with
you
,
how
the
pain
is
impacting
your
life
,
things
like
that
.
You
can
come
in
with
all
of
that
.
You
can
come
in
with
your
imaging
reports
and
everything
.
Speaker 2
2:53
If
you're
dealing
with
someone
who
really
just
has
not
valued
the
importance
of
listening
to
the
patient
,
I
tell
people
to
choose
your
battles
because
it's
not
likely
that
you'll
get
very
far
with
that
person
.
Certainly
,
a
few
times
I
have
encountered
someone
like
that
.
They're
not
listening
,
they've
already
kind
of
in
their
head
,
have
already
decided
what's
going
on
.
Yeah
,
I'll
ask
them
to
explain
their
process
for
coming
up
with
that
diagnosis
and
to
share
their
differential
diagnoses
,
because
that
at
least
and
you
can
say
that
as
lightly
or
bubbly
as
you
like
you-
know
to
ensure
that
it's
not
coming
across
in
a
questioning
type
of
way
.
Speaker 2
3:38
It's
like
I
do
it
in
an
inquisitive
way
.
I'm
like
,
oh
okay
,
oh
,
that's
interesting
.
Can
you
tell
me
what
about
my
history
and
your
physical
exam
that
led
you
to
that
diagnosis
and
what
your
differential
diagnoses
are
?
Because
that
cues
to
them
,
if
they
don't
have
differential
diagnoses
,
that
their
diagnostic
process
is
not
done
yet
,
Because
a
true
diagnostic
process
requires
a
adequate
history
,
which
means
listening
to
you
and
asking
the
right
question
.
Speaker 2
4:08
That's
90%
right
there
.
A
physical
exam
.
You
said
that
they
didn't
even
touch
you
,
so
they
didn't
even
have
a
physical
exam
data
to
work
from
and
then
coming
up
with
differential
diagnoses
.
So
you
have
a
top
diagnosis
.
Speaker 2
4:22
In
this
case
they
thought
you
probably
don't
have
kidney
stones
at
all
.
And
but
what
was
their
second
and
third
differential
diagnosis
?
Because
you
aren't
supposed
to
just
have
one
physician
,
assistant
,
nurse
,
practitioner
.
We're
all
taught
to
make
sure
that
you
have
other
differential
diagnoses
in
mind
,
because
that
way
,
when
you
start
going
down
the
route
of
your
one
diagnosis
that
you
think
it
is
in
this
case
nothing
,
what
happens
when
you
end
up
in
an
emergency
room
with
kidney
stones
?
You
didn't
even
start
any
of
the
work
to
figure
out
if
maybe
it's
something
else
,
one
of
your
differential
diagnoses
.
Speaker 2
5:06
So
that
at
least
gives
them
pause
.
Yep
,
and
they
could
decide
to
confirm
that
they're
a
jerk
and
say
I
don't
have
to
,
I
don't
have
to
show
you
,
I
don't
have
to
explain
myself
,
and
that
that
gives
you
the
confirmation
to
be
like
oh
well
,
I'm
looking
for
,
I'm
looking
for
a
provider
who's
a
partner
.
I
need
someone
who's
actually
going
to
partner
with
me
with
my
healthcare
and
not
just
draw
baseless
conclusions
.
So
I
guess
our
time
here
is
over
.
And
then
I
go
to
the
front
desk
person
and
ask
for
my
copay
back
.
Speaker 1
5:40
You
do
See
,
I
should
have
.
I
told
okay
.
So
I
literally
walked
out
.
So
,
dr
LaRiche
,
I
asked
him
a
few
questions
about
it
and
he
,
he
had
called
me
about
it
too
because
my
creatinine
numbers
were
my
base
is
really
high
,
which
indicates
other
things
,
right
,
so
I
call
him
and
tell
him
about
it
.
He
goes
,
you
walk
back
in
there
and
you
tell
him
to
go
,
you
go
talk
to
a
doctor
and
I
was
like
,
but
I
can't
do
anything
till
I
get
the
CT
scan
,
like
then
I
have
everything
,
but
I
never
once
thought
to
ask
to
get
my
copay
back
.
Speaker 2
6:12
I
never
once
even
thought
of
that
.
Yeah
,
if
they
didn't
render
the
service
,
because
that's
the
whole
point
,
right
,
right
,
payment
is
expected
at
time
of
service
rendered
.
If
the
service
wasn't
rendered
and
I'm
not
saying
the
service
means
that
you
had
to
walk
out
with
a
diagnosis
If
they
literally
just
sat
down
and
just
was
like
,
yeah
,
no
,
no
,
no
,
there's
nothing
wrong
with
you
.
Blah
,
blah
,
blah
and
didn't
do
any
due
diligence
,
that's
to
me
worth
being
billable
,
right
,
it's
worth
asking
Ew
,
we
should
set
that
standard
because
it
is
a
service
.
Speaker 1
6:47
we
are
paying
for
it
.
We
shouldn't
just
pay
them
for
not
doing
work
right
you
blow
my
mind
.
You
blow
my
mind
,
I
just
need
more
of
you
.
Speaker 2
7:05
Yeah
,
but
just
to
get
back
,
only
because
I
thought
of
something
else
,
that
we
didn't
talk
about
the
Black
experience
with
endometriosis
specifically
.
I
know
I
mentioned
just
historically
,
just
as
a
country
,
the
role
of
Black
bodies
within
the
healthcare
system
is
awful
.
It's
evil
,
to
be
honest
.
There
is
no
nice
way
to
put
it
.
There's
no
politically
correct
way
to
put
it
.
It
was
awful
.
We
would
certainly
treat
it
with
the
same
,
if
not
worse
,
as
you
would
test
animals
.
So
that
is
heavy
.
And
the
fact
that
fields
of
medicine
,
especially
gynecology
that
is
their
foundation
is
already
problematic
.
So
we're
already
dealing
with
a
very
problematic
system
.
But
with
endometriosis
it
wasn't
immune
to
the
scientific
racism
that
was
being
perpetuated
with
other
diseases
too
.
So
it
didn't
take
long
after
the
doctor's
name
is
Vincent
Miggs
,
it
didn't
take
long
for
him
in
his
practice
to
see
like
,
oh
,
it
seems
like
my
white
patients
who
are
like
well-to-do
,
you
know
,
basically
my
private
patients
,
the
ones
who
had
the
money
to
pay
privately
,
they're
the
ones
to
get
endometriosis
.
He
wasn't
even
focusing
on
race
per
se
.
Speaker 2
8:21
He
really
was
just
like
,
oh
you
know
,
endo
really
seems
to
just
secure
most
frequently
amongst
,
like
my
,
private
patients
versus
,
like
my
,
public
hospital
ward
patients
.
But
at
that
time
and
I
mean
we're
talking
about
like
the
30s
now
,
right
at
that
time
it
was
pretty
highly
influenced
by
socioeconomic
status
and
racial
inequity
.
If
you
were
a
public
hospital
ward
patient
versus
a
private
patient
,
so
being
a
private
patient
was
synonymous
with
being
white
and
being
middle
to
upper
class
,
maybe
being
a
career
person
.
You
know
your
household
had
a
career
and
maybe
you
wanted
to
hold
off
childbearing
so
that
you
could
finish
school
first
and
get
into
your
career
and
then
you
can
go
ahead
and
start
having
children
.
Speaker 2
9:09
Racism
embedded
within
the
literature
for
physicians
to
just
say
,
oh
well
,
if
private
patients
and
white
patients
are
the
ones
who
are
getting
endometriosis
,
then
it
must
be
unlikely
to
happen
in
non-white
patients
,
especially
if
they
are
also
poor
.
So
that's
how
it
became
a
white
woman's
disease
.
So
for
a
long
time
it
was
a
white
career
woman's
disease
.
And
we
know
that
because
even
now
we
encounter
physicians
who
can
get
the
definition
right
of
endometriosis
and
are
dealing
with
like
outdated
information
.
Speaker 2
10:02
So
,
unfortunately
,
there
were
still
textbooks
saying
how
this
was
a
white
women's
disease
,
like
even
just
within
the
last
20
years
.
Wow
.
I
didn't
know
,
I'd
know
that
,
because
,
for
you
know
,
a
lot
of
times
like
medical
textbooks
will
kind
of
outline
the
patient
profile
that
you
can
expect
in
someone
who
has
this
disease
.
Speaker 2
10:23
You
can
expect
in
someone
who
has
this
disease
and
it
was
described
as
like
a
white
woman
you
know
,
middle
to
upper
class
but
no
explanation
behind
it
.
It's
really
irresponsible
of
textbooks
and
literature
to
like
outline
like
,
oh
,
this
seems
to
be
the
patient
profile
,
with
no
context
behind
it
.
Like
that
context
,
for
example
,
could
be
patients
who
can
afford
to
see
a
doctor
privately
,
who
has
,
who
has
the
specialized
training
to
diagnose
endometriosis
,
are
more
likely
to
get
diagnosed
with
endometriosis
.
It's
like
a
no
brainer
and
my
husband
,
who
is
not
a
scientist
or
a
clinician
it
took
him
five
seconds
to
come
to
that
conclusion
that
,
oh
well
,
wouldn't
it
appear
to
be
a
white
woman's
disease
,
just
a
white
,
you
know
,
white
,
middle
to
upper
class
woman
disease
,
simply
because
they
had
the
means
to
be
able
to
get
diagnosed
.
Speaker 2
11:17
Or
they
were
more
likely
to
be
taken
seriously
.
I'm
like
,
absolutely
Now
,
if
I
could
just
get
the
rest
of
society
to
pick
up
on
that
,
that'd
be
great
.
Speaker 1
11:27
It's
interesting
too
,
though
,
because
internally
,
we
have
obviously
the
same
parts
and
everything
else
Like
why
Right
?
Speaker 2
11:35
However
,
there
are
scientific
differences
between
white
women
and
women
of
color
in
their
risk
factors
yeah
,
the
risk
factors
and
,
even
more
importantly
,
their
lived
experience
,
like
how
they
interact
with
the
health
care
system
,
how
they're
treated
as
they
go
through
the
health
care
system
.
That
is
a
large
perpetrator
of
poor
health
outcomes
is
how
you're
treated
when
you
interact
with
the
healthcare
system
.
And
those
risk
factors
certainly
are
very
,
they're
very
important
.
But
even
those
,
I
really
try
to
have
an
understanding
of
what's
behind
those
.
Speaker 2
12:19
I
remember
sitting
in
one
of
my
nursing
school
classes
and
the
professor
,
you
know
pretty
flippantly
and
this
isn't
the
first
time
that
it
happened
in
school
,
because
I
remember
sitting
in
one
of
my
nursing
school
classes
and
the
professor
,
you
know
pretty
flippantly
and
this
isn't
the
first
time
that
it
happened
in
school
,
because
I
remember
it
happening
in
my
public
health
program
too
,
where
it
was
just
real
flippantly
noted
that
a
risk
factor
for
HIV
is
being
Black
.
Speaker 2
12:39
And
you
know
,
wow
,
she
mentioned
another
one
I
think
it
was
one
of
your
chronic
illnesses
,
can't
remember
which
one
,
but
she
just
,
very
matter
of
fact
,
actually
just
said
risk
factors
being
Black
and
then
just
moved
on
and
I
remember
I
was
like
,
hey
,
can
we
take
a
moment
to
mention
why
that
this
classroom
of
future
clinicians
is
going
to
believe
that
just
my
inherent
blackness
is
just
going
to
automatically
mean
that
I'm
just
more
prone
to
certain
things
,
and
that's
it
.
There's
no
contents
behind
that
,
like
my
access
to
care
or
how
I'm
treated
within
the
healthcare
system
,
or
my
ability
to
afford
my
medications
or
my
care
in
general
.
Speaker 2
13:24
Yeah
,
even
down
to
like
employment
and
like
my
ability
to
be
able
to
have
a
job
that
provides
excellent
benefits
or
not
,
you
know
and
they
just
brushed
it
off
and
I
walked
out
.
I
was
like
no
,
can't
have
this
.
This
is
not
cool
.
Because
now
,
because
this
is
why
you
have
clinicians
who
just
go
out
into
the
world
and
just
think
that
black
and
brown
people
are
just
inherently
broken
.
You're
just
inherently
going
to
have
bad
health
outcomes
simply
because
you're
black
,
when
it's
way
more
complex
than
that
.
Speaker 1
13:53
Yeah
,
and
we
already
feel
broken
.
That's
the
thing
that
I
was
talking
to
another
endometriosis
person
and
she
was
telling
I
just
felt
broken
,
you
know
,
I
just
I
had
to
have
a
hysterectomy
because
I
was
misinformed
and
I
just
felt
broken
and
I
felt
less
than
as
a
woman
,
but
no
one
explained
why
.
No
one
backed
that
up
with
evidence
,
no
one
backed
that
up
with
.
This
is
not
because
of
you
,
this
is
what
it
is
and
this
is
you
know
.
And
I
think
that
we
carry
so
up
with
this
is
not
because
of
you
.
This
is
what
it
is
and
this
is
you
know
.
And
and
I
think
that
we
carry
so
much
guilt
,
so
much
information
,
because
no
one
says
why
.
So
if
the
textbooks
are
saying
because
you're
black
,
because
you're
white
,
but
why
?
Speaker 2
14:37
why
,
Like
I
,
it
is
not
just
because
I'm
black
that
I
have
a
higher
rate
of
open
versus
minimally
invasive
surgery
gyne
surgery
like
hysterectomies
,
oophorectomies
.
Speaker 2
14:50
It
isn't
just
because
I'm
black
that
I'm
more
likely
that
I'm
going
to
have
a
hysterectomy
or
oophorectomy
at
a
younger
age
.
It
isn't
just
because
I'm
black
that
I'm
more
likely
to
have
surgical
complications
,
diagnostic
delays
,
years
of
progressive
suffering
,
more
likely
to
have
adverse
reactions
to
treatments
.
No
,
it's
so
much
deeper
than
that
.
It's
not
just
because
of
being
Black
that
all
of
this
is
your
fault
,
because
it
is
the
medical
system
,
it
is
racism
,
scientific
racism
,
it's
implicit
bias
,
it's
the
medical
distrust
and
the
normalization
of
our
symptoms
that
we
inflict
on
ourselves
,
absolutely
Simply
because
we
realize
that
we
do
not
have
pleasant
experiences
when
we
interact
with
the
health
care
system
.
It's
us
not
following
up
with
appointments
because
we're
terrified
and
don't
feel
valued
by
the
provider
.
Following
up
with
appointments
because
we're
terrified
and
don't
feel
valued
by
the
provider
,
or
we
would
maybe
gaslit
or
talked
down
to
,
or
made
to
feel
small
,
or
made
to
feel
like
we
were
just
a
uterus
Right
,
or
,
when
we
went
to
our
providers
,
that
were
less
likely
to
seek
care
,
less
likely
to
follow
up
with
appointments
,
like
there's
just
so
much
more
Addressing Disparities in Endometriosis Care
Speaker 2
15:56
to
it
.
I
think
the
reduced
quality
of
care
,
though
,
and
the
access
to
,
the
lack
of
access
to
specialized
care
is
probably
the
biggest
factors
and
justice
me
anecdotally
.
That
is
the
biggest
thing
.
I
think
if
we
had
the
exact
awesome
quality
of
care
as
everyone
else
,
with
excellent
quality
of
care
,
that
these
poor
outcomes
issues
would
start
to
go
away
.
Speaker 2
16:22
And
then
in
the
research
,
so
the
fact
that
,
for
multiple
reasons
,
black
women
have
less
access
to
surgical
diagnosis
,
that's
the
reason
why
we're
also
less
represented
in
research
too
,
because
if
the
research
studies
are
only
including
individuals
with
surgically
confirmed
endometriosis
,
it
eliminates
anyone
who
has
not
had
surgically
confirmed
endometriosis
.
It
eliminates
all
the
people
who
literally
go
decades
,
like
me
,
with
symptoms
,
who
didn't
get
a
diagnosis
until
they
were
almost
40
,
or
that's
if
they
ever
get
one
at
all
.
It
eliminates
those
who
will
never
be
able
to
afford
a
out-of-pocket
endometriosis
specialist
right
,
who
has
the
best
eyes
and
the
best
skill
to
be
able
to
identify
and
remove
all
of
the
endometriosis
.
You
know
,
yeah
,
so
even
that
has
some
huge
repercussions
,
like
just
us
not
being
represented
adequately
in
the
research
.
Speaker 2
17:24
It's
heartbreaking
to
me
which
is
why
I
also
advocate
on
just
like
more
representation
in
research
and
I
don't
mean
like
just
the
research
to
keep
repackaging
the
same
GnRH
drugs
or
birth
control
pills
like
actual
research
that's
talking
about
not
only
the
lived
experience
of
a
more
diverse
group
of
people
with
endometriosis
,
but
also
the
outcomes
of
having
a
well
done
incision
Like
.
We
need
to
see
more
of
that
in
the
research
and
it
needs
to
be
from
a
diverse
group
,
and
that's
going
to
have
to
take
more
than
just
including
women
of
color
,
but
it's
going
to
mean
including
LGBTQIA
plus
non-binary
.
We
need
more
of
us
.
We
need
more
of
our
stories
and
more
of
our
data
being
shared
within
the
literature
from
a
specific
geographical
area
.
Speaker 1
18:21
I
think
that
can
also
create
a
bias
right
,
like
here
is
very
different
than
where
you
live
because
culturally
it's
different
here
than
it
is
there
,
and
economics
play
a
big
part
in
that
.
And
so
taking
it
from
every
walk
of
life
and
understanding
background
,
understanding
hardships
,
understanding
all
of
it
is
so
important
to
having
a
well-rounded
research
,
not
just
geographic
,
specific
or
anything
else
,
and
we
need
that
to
really
understand
it
Absolutely
.
Speaker 2
18:54
Yeah
,
absolutely
,
and
we
need
more
.
We
obviously
need
more
endometriosis
education
,
not
only
in
the
general
public
but
especially
amongst
our
clinicians
,
but
we
need
also
the
historical
context
of
the
Black
experience
,
both
in
general
throughout
the
healthcare
system
and
within
endometriosis
.
I
love
telling
people
about
Dr
Donald
Chapman
.
He's
an
African-American
gynecologist
out
of
Chicago
even
though
he
wasn't
the
only
one
he
really
like
doubled
down
and
and
really
like
laser
focused
on
criticizing
the
racial
bias
and
endometriosis
diagnosis
.
And
this
was
in
the
seventies
and
you
know
.
So
endometriosis
was
able
to
go
several
decades
as
just
being
this
white
woman
disease
before
Dr
Chapman
really
put
it
out
there
mainstream
and
really
challenged
his
peers
by
not
only
criticizing
them
about
the
racial
bias
but
actually
conducting
his
own
studies
,
because
the
majority
of
his
patients
unlike
Dr
Miggs
,
majority
of
his
patients
were
black
.
You
know
,
because
he
was
in
Chicago
after
all
and
he
found
that
the
incidence
of
endometriosis
was
quite
comparable
between
Black
women
and
white
women
.
Speaker 2
20:08
But
he
also
published
research
that
showed
how
Black
women
were
more
likely
to
be
diagnosed
with
pelvic
inflammatory
disease
,
which
is
a
complication
of
STDs
,
versus
endometriosis
.
And
then
one
of
his
studies
found
that
40%
of
his
Black
private
patients
key
private
,
his
Black
private
patients
.
They
had
surgically
confirmed
endometriosis
but
40%
of
them
were
first
inappropriately
diagnosed
with
pelvic
inflammatory
disease
Improving Endometriosis Care Through Advocacy
Speaker 2
20:32
.
Interesting
,
we
are
literally
being
given
antibiotics
without
them
doing
any
type
of
urine
test
,
blood
test
anything
.
They
would
just
write
out
antibiotics
and
say
so
urine
test
,
blood
test
anything
.
They
would
just
write
out
,
write
out
antibiotics
and
say
,
take
this
and
you
know
,
I
think
you
have
an
STD
,
without
asking
you
any
questions
about
if
you're
even
sexually
active
.
Speaker 1
20:48
Which
is
the
first
thing
they
ask
us
when
we
go
in
there
.
Speaker 2
20:50
So
yeah
,
and
that's
that's
still
happening
today
.
Still
still
is
happening
today
,
that's
insane
.
Speaker 1
21:02
This
is
why
it's
so
good
to
talk
about
this
,
though
,
and
this
is
why
I
love
your
perspective
,
because
you
come
with
so
much
knowledge
and
you
come
with
a
base
to
that
knowledge
.
It's
not
incomplete
knowledge
,
if
that
makes
sense
.
Oh
gosh
,
it
always
feels
incomplete
and
I'm
like
In
Demetriosis
.
Speaker 1
21:15
knowledge
is
really
incomplete
in
general
,
only
because
we're
still
doing
so
much
research
on
it
.
But
you
are
just
so
knowledgeable
about
this
and
I
appreciate
it
,
because
it
forces
me
outside
of
my
little
bubble
to
look
at
the
bigger
picture
.
And
if
we
don't
look
at
the
bigger
picture
,
we
can't
have
better
care
for
everyone
.
Speaker 2
21:34
I
swear
I'm
just
going
to
die
on
that
hill
of
saying
that
in
my
professional
and
personal
opinion
.
In
my
professional
and
personal
opinion
,
it
is
not
until
we
ensure
that
endometriosis
care
is
greatly
improved
for
the
most
marginalized
that
we
as
a
whole
will
be
able
to
get
very
far
if
we're
not
ensuring
that
the
most
marginalized
are
not
being
brought
along
and
brought
to
the
table
.
I
think
that's
why
I
see
organizations
like
Endo
Black
,
for
example
,
point
we're
like
well
,
let's
combine
efforts
because
the
work
needs
to
be
done
and
improvements
need
to
be
made
.
And
I
just
want
all
of
the
endometriosis
community
,
especially
as
advocates
,
to
really
hone
in
on
addressing
the
discrepancies
in
care
for
the
marginalized
population
.
Because
it's
awful
,
we
have
a
general
idea
of
how
prevalent
endometriosis
is
,
but
really
we
don't
,
because
there's
countless
non-binary
,
LGBTQIA
,
low
income
like
those
who
just
never
get
access
to
the
care
necessary
to
diagnose
their
endometriosis
.
They
remain
countless
.
When
I
say
one
in
10
women
,
it's
really
not
one
in
10
.
Speaker 1
23:04
It's
like
one
in
six
or
seven
maybe
.
Speaker 2
23:08
Maybe
and
I
always
add
on
in
countless
numbers
of
non-binary
,
lgbt
,
low
income
and
others
who
just
are
not
being
viewed
as
belonging
in
this
group
.
Yeah
,
you
know
when
we
need
to
be
ensuring
that
they
get
the
quality
care
necessary
to
to
ensure
that
they
can
get
diagnosed
and
properly
treated
.
Speaker 1
23:33
Yeah
,
it's
kind
of
like
that
you
know
when
we're
in
a
relay
for
endometriosis
right
For
proper
care
diagnosis
you're
only
as
good
as
the
slowest
person
in
the
race
.
Yes
,
yeah
,
you're
,
only
you
will
not
win
this
race
of
advocacy
and
better
care
if
you
don't
work
as
a
team
to
build
it
to
go
faster
.
If
you
don't
include
the
middle
,
the
end
,
the
wherever
.
You
have
to
all
go
at
an
expedited
pace
,
but
you
have
to
do
it
together
and
work
together
.
Speaker 2
24:03
Have
to
do
it
together
.
Speaker 1
24:04
And
I
think
that's
been
so
enlightening
for
me
to
experience
that
because
,
like
I
said
,
I
can
be
stuck
in
a
bubble
over
here
.
Speaker 1
24:13
But
if
we're
not
made
aware
of
the
fact
that
there
are
other
people
with
other
challenges
and
other
struggles
,
and
if
we
don't
work
on
that
together
and
hear
each
other
and
say
,
yeah
,
this
isn't
okay
,
we
really
need
to
work
better
at
this
as
a
whole
,
then
we're
just
going
to
be
stuck
in
this
standstill
,
much
like
a
lot
of
the
medical
system
and
endometriosis
education
,
because
they
don't
look
outside
of
their
bubble
and
what
they
know
.
Because
it's
uncomfortable
at
times
right
,
it's
uncomfortable
for
a
practitioner
sometimes
to
have
to
look
outside
of
what
they
already
know
and
how
and
to
look
outside
of
how
to
treat
certain
demographics
of
people
across
the
board
.
It
can
be
uncomfortable
.
It's
not
what
they
know
,
it's
not
what
they
learn
,
but
we
have
to
to
get
better
.
That's
how
we
grow
and
to
have
that
expectation
walking
into
the
exam
room
I
think
is
important
,
and
maybe
do
we
step
into
the
exam
room
saying
,
hey
,
I'm
looking
for
a
doctor
to
partner
with
me
,
I'm
looking
for
a
practitioner
to
partner
with
me
.
Speaker 2
25:14
I
do
.
Speaker 1
25:15
Yeah
.
Speaker 2
25:15
That's
what
I
like
to
do
,
at
least
with
a
new
provider
,
Because
it's
an
interview
anyway
to
me
.
When
it's
a
new
provider
,
you're
deciding
whether
someone
you're
going
to
even
stick
with
is
even
worth
your
time
.
Right
,
and
the
way
they
present
themselves
in
that
initial
interview
is
going
to
determine
if
you're
going
to
hire
them
.
Speaker 1
25:33
It's
like
a
dating
app
of
sorts
.
If
you
really
think
about
it
,
they're
going
to
know
a
whole
lot
about
you
.
It's
real
intimate
,
so
they're
gonna
know
a
whole
lot
about
you
.
Speaker 2
25:44
it's
real
intimate
,
so
you
might
as
well
,
vet
them
first
,
exactly
,
exactly
,
exactly
,
you
know
.
So
I
try
to
tell
people
.
I
try
to
come
in
with
that
mindset
because
unfortunately
,
a
lot
of
us
that's
and
we
can
blame
,
unfortunately
,
our
a
lot
of
our
past
experience
with
providers
.
We
go
into
appointments
fearful
,
we
feel
small
,
we
feel
completely
at
the
mercy
of
the
provider
,
and
it
shouldn't
be
that
way
,
it
really
shouldn't
.
You
are
very
important
.
In
fact
you
are
just
the
center
of
this
.
That's
the
whole
point
of
patient-centered
care
and
if
a
provider
is
not
understanding
that
or
does
not
fit
within
that
,
then
they
got
shortcomings
that
they
need
to
address
.
But
you
hopefully
can
go
elsewhere
.
Speaker 2
26:32
Hey
,
I've
been
dealing
with
a
lot
,
as
you
can
see
,
in
my
history
.
It's
fairly
extensive
and
I'm
looking
for
a
provider
that
can
do
X
.
I
really
try
to
narrow
it
down
because
I
don't
need
them
to
be
my
end
all
be
all
.
I'm
not
looking
for
a
savior
here
.
I'm
not
looking
for
someone
that
I
could
go
to
for
everything
.
I
try
to
just
say
,
hey
,
this
corner
of
my
health
I
could
use
someone
who
could
help
me
with
that
.
So
that's
what
I'm
looking
for
and
I
do
try
to
like
that
one
pager
summary
.
Speaker 2
27:09
Like
I
said
,
I
try
to
bring
that
to
all
my
appointments
.
And
the
beginning
and
end
of
that
one
pager
says
exactly
what
I'm
here
for
and
what
I
wish
to
leave
with
.
Ooh
,
that's
good
.
So
if
I
come
in
,
and
yeah
,
I
want
you
to
look
at
my
history
and
I
want
you
to
listen
to
me
,
but
I
like
to
let
them
know
right
up
front
that
I'm
looking
for
a
referral
to
pain
management
.
For
example
,
I'm
looking
to
try
a
different
formulation
of
vaginal
suppository
because
the
one
that
I'm
using
is
not
effective
anymore
,
because
clinicians
can
work
with
that
.
They're
like
OK
,
I
can
handle
that
,
that's
within
my
purview
,
it's
targeted
.
I
can
knock
that
out
for
you
within
this
visit
.
I
like
to
give
them
an
opportunity
to
be
able
to
have
an
easy
go
in
too
.
Speaker 1
27:54
Yeah
.
Speaker 2
27:56
Narrow
it
down
yeah
.
Speaker 1
27:58
Mm-hmm
,
and
I
think
too
,
like
if
you
come
in
with
that
,
it
gives
them
little
room
to
wiggle
outside
of
listening
to
you
.
Maybe
I'm
wrong
in
that
,
but
I
think
that
you're
very
good
at
communicating
ways
that
we
can
walk
in
,
and
we
should
all
feel
empowered
to
do
that
.
It
doesn't
matter
who
you
are
,
where
you
come
from
,
the
color
of
your
skin
,
your
sexual
orientation
,
your
religious
beliefs
it
does
not
matter
.
Your
sexual
orientation
,
your
religious
beliefs
,
it
does
not
matter
.
You
should
all
feel
empowered
to
walk
in
there
with
these
very
direct
yet
simplistic
ways
of
communicating
to
your
practitioner
.
Speaker 1
28:36
And
if
they
aren't
on
board
with
that
,
then
I
think
it's
time
to
use
your
feet
and
say
I
don't
know
if
we're
on
the
same
page
,
Thank
you
for
your
time
and
walk
out
the
door
and
try
to
get
what
it
is
that
you
still
need
.
Speaker 2
28:51
I've
seen
providers
that
I'm
like
,
wow
,
this
was
not
a
good
visit
.
But
so
towards
the
end
I'm
like
,
well
,
let's
see
if
there's
anything
on
my
little
checklist
here
that
I
could
at
least
have
them
do
.
Um
,
oh
,
yeah
,
I
saw
.
I'm
like
,
okay
,
are
you
able
to
refer
me
to
another
provider
?
Maybe
I
need
a
actual
documented
referral
.
I
probably
already
most
likely
already
know
who
I
want
you
to
refer
me
to
.
Right
,
so
I
can
say
could
you
write
me
a
referral
to
go
see
this
clinician
specifically
?
Yeah
,
you
know
again
,
and
see
if
,
if
I
can
at
least
get
that
like
,
I
try
to
get
something
out
of
it
,
especially
if
you're
paying
for
this
time
and
and
it's
not
just
the
monetary
paying
but
it's
also
paying
for
it
physically
,
emotionally
,
mentally
,
like
to
get
yourself
to
this
appointment
and
everything
so
I
try
to
at
least
see
what
I
can
get
out
of
those
appointments
.
But
sometimes
,
if
it's
really
like
crashing
and
burning
,
I'm
like
let
me
just
get
the
heck
out
of
here
,
I
ain't
got
time
for
this
.
Speaker 1
29:52
It's
really
,
you
know
,
it's
interesting
.
Like
you
know
,
endometriosis
statistics
are
they
say
one
in
10
and
really
like
good
doctor's
appointments
,
are
like
one
in
10
.
That's
the
reality
.
Speaker 2
30:06
Yeah
,
until
you
get
like
a
team
of
providers
together
where
you
are
like
,
okay
,
I
finally
have
folks
that
I
feel
comfortable
with
.
None
of
you
move
,
don't
change
practices
,
don't
go
anywhere
.
Speaker 2
30:19
Yes
,
but
it
can
take
time
.
I
mean
,
just
as
an
example
,
it's
taken
me
almost
two
years
to
get
a
multidisciplinary
team
and
it's
not
like
they
work
together
,
because
,
even
though
that
would
be
amazing
if
they
did
,
they
don't
,
because
our
healthcare
system
just
doesn't
really
lend
itself
nicely
to
that
.
But
I
at
least
have
five
providers
that
I'm
like
okay
,
I
feel
comfortable
with
these
five
providers
.
They
know
me
well
,
they
treat
me
well
,
they
listen
.
This
is
who
I
can
move
forward
with
so
that
I
can
stop
having
the
hit
or
miss
.
But
I
can't
tell
you
how
many
providers
I
had
to
see
before
I
finally
got
to
these
providers
.
Speaker 1
30:56
But
it
does
make
you
feel
very
unseen
.
Exactly
.
Speaker 2
31:02
And
it's
exhausting
it
is
and
.
Speaker 2
31:04
I
go
through
periods
of
provider
fatigue
where
I'm
like
I
just
can't
see
anybody
for
a
while
,
even
if
I'm
feeling
not
my
best
.
I'm
like
you
know
what
,
I
just
kind
of
need
to
live
life
for
a
little
bit
because
I
have
to
recharge
my
battery
to
be
able
to
even
prepare
for
another
visit
with
a
new
provider
and
be
able
to
manage
however
that
visit
goes
Right
and
and
whatever
repercussions
of
that
visit
,
and
and
that's
okay
,
that's
okay
.
You
know
,
that's
self-care
.
Honestly
,
it
is
To
say
you
know
what
.
I
need
a
break
.
This
is
exhausting
work
.
I'm
going
to
give
myself
a
week
,
a
month
,
three
months
,
whatever
,
and
then
I'll
pick
back
up
when
I'm
feeling
more
up
to
it
,
because
I
really
try
to
show
up
as
fully
as
I
can
to
my
visits
.
But
you
can
only
do
the
best
you
can
when
you're
dealing
with
chronic
illness
.
Speaker 1
31:55
Yep
,
and
a
doctor
should
be
able
to
meet
you
where
you're
at
too
.
Absolutely
yeah
,
any
practitioner
,
honestly
.
Speaker 2
32:02
Yeah
,
every
practitioner
and
we're
supposed
to
.
But
it
gets
exhausting
when
you
feel
like
you
have
to
be
dressed
up
and
makeup
on
and
questions
ready
and
your
documentation
ready
and
to
show
like
I
am
a
informed
patient
.
I
am
someone
that
you
cannot
just
dismiss
and
it's
going
to
fly
.
I
am
someone
that
you
cannot
just
dismiss
and
it's
going
to
fly
.
I
need
you
to
not
only
listen
,
but
I
need
you
to
actually
do
the
critical
skills
,
the
critical
thinking
that
you
were
trained
to
do
,
to
be
able
to
help
me
with
my
health
issue
.
Speaker 1
32:36
It's
a
lot
to
bring
that
to
the
table
,
yeah
it
is
,
but
you're
doing
an
amazing
job
,
not
only
as
a
practitioner
,
understanding
that
,
you're
doing
an
amazing
job
as
an
advocate
,
and
I
just
think
if
we
had
a
significant
amount
of
Kimethers
in
the
world
,
it
would
be
so
much
better
,
because
you
have
such
a
great
way
of
perspective
and
I
love
that
.
Speaker 2
33:02
I
mean
I
don't
think
I
was
a
jerk
before
chronic
illness
,
but
I
do
feel
like
I've
always
been
passionate
about
serving
the
underserved
.
That
is
clear
.
And
I
think
my
upbringing
as
a
Black
woman
,
seeing
the
women
in
my
family
,
how
they
were
treated
,
the
sacrifices
that
they
had
to
make
literally
sacrifices
to
their
health
even
in
order
to
just
keep
food
on
the
table
,
keep
the
lights
on
and
keep
us
fed
the
dismissal
that
they've
experienced
,
the
ultimately
unnecessary
hysterectomies
,
the
fear
of
questioning
physicians
I
mean
I
grew
up
seeing
all
that
and
really
taking
all
that
in
and
I
feel
like
I
recognized
really
early
that
not
only
was
the
health
care
system
broken
but
it
was
particularly
shattered
when
it
came
to
women
of
color
.
I
feel
like
even
as
a
child
,
I
saw
that
pretty
early
on
and
I
wanted
to
be
a
part
of
fixing
that
.
That's
amazing
.
Speaker 1
34:01
And
you're
doing
a
great
job
.
Empowering Patients Through Advocacy and Care
Speaker 2
34:03
Going
through
chronic
illness
has
added
a
whole
different
level
.
When
I
see
someone
and
I'm
listening
to
their
story
,
I've
experienced
the
dismissal
,
the
gaslighting
,
the
ignorant
.
Personally
,
I
have
had
to
deal
with
the
medical
repercussions
of
the
ignorance
of
providers
.
Going
back
to
the
beginning
of
our
conversation
,
when
I
was
seeking
fertility
treatment
,
what
I
should
have
been
told
is
that
endometriosis
excision
by
an
expert
specialist
is
probably
your
best
bet
at
improving
your
fertility
.
So
you
should
do
that
first
and
then
perhaps
,
if
necessary
,
move
on
to
fertility
treatment
.
But
instead
,
because
of
the
ignorance
of
providers
,
I
was
told
oh
yeah
,
could
be
endometriosis
.
Speaker 2
34:50
but
it's
fine
,
you
can
get
pregnant
with
it
,
it's
okay
,
and
because
I'm
dealing
with
a
chronic
illness
where
there
is
a
lot
of
ignorance
,
like
,
just
like
lack
of
knowledge
.
What
falls
into
that
gap
of
knowledge
is
bias
.
So
I
unfortunately
think
that
the
way
I
treat
patients
is
largely
informed
by
the
negative
experiences
that
I've
had
and
the
negative
experiences
that
I've
observed
.
I
wish
it
wasn't
that
way
.
I
wish
that
I
was
just
good
,
old
,
young
chemist
that
just
was
like
I'm
going
to
do
this
right
as
a
clinician
and
it's
not
going
to
have
to
come
out
of
a
place
of
harm
Right
,
but
unfortunately
it
has
.
I
will
always
take
my
patients
seriously
.
I
will
always
honor
their
pain
.
When
they
say
10
out
of
10
pain
,
I
believe
10
out
of
10
pain
.
I
believe
10
out
of
10
pain
.
When
they
open
up
to
me
about
something
that
I
know
was
painful
,
like
a
past
trauma
,
I'm
going
to
always
honor
the
courage
that
it
took
for
them
to
do
that
because
I
didn't
have
that
.
Speaker 2
35:58
So
this
is
my
way
of
providing
what
I
didn't
have
,
what
my
mother
didn't
have
fully
,
what
my
grandmother
didn't
have
,
what
my
mother
didn't
have
fully
,
what
my
grandmother
didn't
have
,
what
my
enslaved
ancestors
absolutely
didn't
have
.
I'm
going
to
treat
you
as
a
human
.
I'm
going
to
treat
you
as
a
child
of
God
.
I'm
going
to
treat
you
with
the
respect
and
the
dignity
that
I
would
give
a
family
member
.
Yeah
,
yeah
,
like
.
So
.
It's
what
I
wish
all
clinicians
did
.
Speaker 2
36:27
I
will
say
that
the
vast
majority
want
to
,
right
,
but
we're
within
a
health
care
system
that
really
just
doesn't
lend
itself
to
that
.
I'm
often
taking
work
home
,
I'm
charting
,
I'm
staying
at
work
late
and
I'm
OK
with
that
,
right
,
right
,
because
this
is
the
choice
that
I've
made
and
when
I
decided
that
I
wanted
to
be
a
clinician
that's
going
to
actually
do
this
the
way
that
I
think
it
has
to
be
done
.
This
is
what
it
includes
,
and
so
I
wish
we
could
all
direct
our
careers
in
a
way
that
we
can
provide
care
exactly
in
the
way
that
we
envisioned
when
we
envisioned
ourselves
becoming
clinicians
,
can
provide
care
exactly
in
the
way
that
we
envisioned
when
we
envisioned
ourselves
becoming
clinicians
.
But
unfortunately
,
a
lot
,
don't
?
You
have
a
lot
of
unhappy
clinicians
unfortunately
for
that
reason
.
Speaker 2
37:12
But
that's
no
excuse
for
ignorance
,
no
excuse
for
dismissal
,
it's
no
excuse
for
not
staying
on
top
of
the
literature
,
it's
no
excuse
for
saying
,
huh
,
I
don't
know
that
,
let
me
go
and
look
that
up
.
That's
okay
.
That's
okay
.
Speaker 1
37:27
I
would
rather
a
clinician
tell
me
they
don't
know
than
give
me
a
falsified
answer
that
makes
me
chase
a
diagnosis
or
chase
care
or
chase
getting
better
of
any
sort
.
I
would
much
rather
honesty
every
time
every
time
,
every
time
now
.
Speaker 2
37:48
So
I
will
continue
to
encourage
clinicians
to
do
that
.
The
same
amount
of
energy
I
put
into
trying
to
help
people
who
are
patients
you
know
going
in
to
see
clinicians
,
I
really
try
to
to
use
a
lot
of
energy
also
with
clinicians
too
to
help
them
recognize
,
like
,
what
are
some
ways
that
you
can
recognize
the
humanity
in
your
patient
?
That's
not
going
to
throw
off
your
whole
schedule
,
like
get
you
in
trouble
or
anything
Like
what
can
you
do
and
find
those
opportunities
and
don't
just
give
up
and
just
decide
to
just
be
?
Speaker 1
38:22
part
of
the
exactly
.
Don't
accept
mediocrity
of
yourself
professionally
,
no
because
you'll
find
more
joy
and
a
better
outcome
than
mediocrity
.
Speaker 2
38:32
Yeah
,
yeah
,
yeah
.
Speaker 1
38:34
You
will
.
Kimather
,
thank
you
so
much
for
your
time
and
your
wisdom
,
and
just
taking
the
bull
by
the
horns
that's
what
we
say
out
here
is
the
bull
by
the
horns
because
it's
,
you
know
,
mostly
country
.
You
are
doing
an
amazing
job
and
you
have
given
and
empowered
people
to
get
better
care
while
giving
better
care
,
and
that
is
when
we
talk
about
gold
standard
.
That
is
gold
standard
is
when
we
talk
about
gold
standard
.
That
is
gold
standard
.
And
you
are
living
that
life
of
gold
standard
in
a
place
where
it
has
not
been
gold
standard
for
you
,
but
you're
taking
it
and
you
are
making
it
better
for
others
and
you
are
a
battery
charger
for
so
many
people
not
just
your
patients
,
but
for
those
listening
today
and
for
those
that
you
encounter
in
your
advocacy
work
,
and
so
thank
you
so
much
for
doing
that
.
You're
amazing
.
Speaker 2
39:30
It's
an
absolute
honor
and
I
will
continue
to
do
this
work
for
as
long
as
I
can
and
will
continue
to
find
new
ways
to
reach
more
people
,
and
I
try
to
stay
pretty
involved
with
nonprofits
in
my
area
.
And
,
oh
,
I
could
tell
you
a
little
bit
about
some
of
the
work
that
I've
been
doing
.
Endo
Black
is
an
organization
that
provides
a
safe
space
for
women
of
color
who
are
dealing
with
endometriosis
,
and
I
absolutely
love
them
.
They're
based
here
in
Maryland
and
they
are
getting
ready
to
roll
out
their
fall
schedule
.
They
have
a
gala
that's
coming
up
,
which
is
one
of
their
big
fundraisers
,
and
they
also
do
these
talks
where
they
talk
about
African-Americans
and
endometriosis
,
and
I'm
one
of
the
folks
that
gives
this
talk
,
so
I
let
them
know
.
If
you
ever
need
someone
to
talk
to
the
community
or
to
clinicians
or
med
students
and
nurse
students
,
just
give
me
a
call
.
I'm
always
happy
to
teach
about
endometriosis
,
so
they'll
be
rolling
those
back
out
again
.
So
I'm
excited
to
be
able
to
share
a
lot
about
just
the
history
of
endometriosis
and
the
experience
of
Black
women
to
the
community
and
especially
to
nursing
students
and
medical
students
.
Those
are
my
favorites
.
Speaker 2
40:42
I'm
just
particularly
excited
that
we're
partnering
with
Emma
my-aimacom
.
They're
a
CBD
suppository
they
just
rolled
out
amazing
organization
.
Please
look
them
up
.
Also
,
check
out
the
founder
,
lana
.
She's
one
of
the
founders
and
she's
amazing
.
She
knows
what
we've
all
been
through
.
She
created
this
product
for
herself
and
I'm
just
so
thankful
that
she
has
chosen
to
make
this
a
business
where
she
can
help
to
treat
chronic
pelvic
pain
and
painful
periods
for
people
across
the
world
.
Really
excited
about
that
partnership
too
.
So
keep
an
eye
out
for
those
things
.
You
can
follow
me
on
at
the
rebellious
uterus
.
You
can
also
follow
my
husband
,
and
his
podcast
is
at
endo
thick
of
it
it's
amazing
.
Speaker 1
41:37
Yeah
,
it's
amazing
.
So
if
you
and
your
significant
other
need
a
space
to
join
together
and
be
a
team
in
this
,
kimather
and
Brandon
,
you
two
provide
that
with
EndoThick
of
it
.
So
.
Speaker 2
41:50
We
just
fill
in
a
space
because
I
feel
like
it
wasn't
there
.
I
was
like
man
.
There's
tons
of
us
who
are
in
relationships
,
who
are
having
to
navigate
these
waters
on
our
own
.
We
really
just
wanted
to
provide
a
place
where
people
could
hear
from
another
couple
who's
also
navigating
this
.
You
know
too
,
so
would
love
to
have
you
and
your
hubby
on
Love
it
yeah
.
Speaker 2
42:15
Because
I
just
I
can't
tell
you
how
amazing
the
feedback
is
that
we
get
when
people
hear
from
other
couples
and
hear
from
other
folks
like
,
oh
wow
,
we
struggle
with
that
too
,
and
they
also
can
feel
more
seen
and
validated
.
So
I
absolutely
love
it
.
Speaker 1
42:34
Well
,
and
it
all
goes
back
to
a
strong
community
.
When
you
have
a
community
behind
you
,
you
feel
more
seen
,
you
feel
more
heard
and
you
feel
more
connected
and
therefore
you
feel
less
isolated
.
And
this
disease
is
very
isolating
.
And
so
when
you
get
together
with
your
community
,
you
feel
less
isolated
and
it
makes
it
more
bearable
.
Speaker 2
42:56
It
makes
this
?
Speaker 1
42:57
living
with
this
chronic
illness
more
bearable
yeah
absolutely
right
,
absolutely
right
.
Speaker 2
43:04
One
of
the
things
that
we're
considering
and
we'll
put
it
out
there
to
just
see
interest
is
a
support
group
that's
couple
specific
.
Yes
,
I'm
seeing
more
and
more
endometriosis
support
groups
out
there
.
Speaker 2
43:18
I'd
love
to
see
more
with
like
adeno
and
PCOS
,
but
I'm
seeing
definitely
more
endometriosis
support
groups
.
But
our
family
member
,
our
partners
,
our
spouses
they're
going
through
it
too
.
Oh
,
absolutely
,
and
they're
having
to
see
the
person
that
they
love
most
going
through
this
.
They
need
the
support
too
.
They
really
do
so
.
I'm
glad
that
I'm
seeing
more
support
groups
for
us
patients
,
but
I
think
that
it
would
be
nice
to
have
more
opportunities
where
partners
can
come
in
too
.
You'll
definitely
see
that
from
the
nonprofit
formerly
known
as
Endoville
.
Speaker 1
43:53
And
Endovillage
,
which
is
the
one
that
we
have
.
So
very
similar
we
have
.
We
have
targeted
that
as
well
.
So
we're
going
to
be
starting
to
do
more
events
for
the
support
people
specifically
and
helping
those
walking
chronic
illness
and
doing
it
together
and
what
that
looks
like
.
Speaker 2
44:12
Oh
,
that's
amazing
.
I
don't
know
if
you
started
doing
it
yet
,
like
with
the
,
with
the
partners
,
but
,
man
,
when
Endoville
did
it
,
it
was
awesome
.
They
would
have
you
know
,
bring
your
family
member
,
bring
your
partner
,
you
know
,
and
sometimes
they'll
have
a
counselor
there
where
people
could
share
,
and
sometimes
it
was
the
first
time
that
the
partner
was
even
ever
asked
.
Well
,
how
do
you
feel
about
what
your
?
Speaker 1
44:38
partner's
been
going
through
.
Speaker 2
44:40
There
was
a
lot
of
thoughts
of
helplessness
and
frustration
,
sadness
,
fear
,
anxiety
.
So
I'm
so
glad
that
you're
doing
that
in
the
village
too
,
because
the
partners
need
.
They
need
that
safe
space
also
.
And
then
we
as
the
patients
the
one
with
the
chronic
illness
need
to
know
that
our
partner
is
being
cared
for
too
,
because
just
because
we're
patients
doesn't
mean
that
we're
not
also
caregivers
.
We're
caring
for
our
partners
too
.
Speaker 1
45:09
And
we
want
them
.
Speaker 2
45:10
We
want
them
to
be
in
a
good
place
mentally
.
That
you
know
a
support
group
that
includes
them
really
helps
with
Supporting Patients With Infertility Challenges
Speaker 2
45:16
that
.
Speaker 1
45:16
Yeah
,
absolutely
.
And
I
think
it's
twofold
when
you're
dealing
with
infertility
on
top
of
a
chronic
illness
and
the
disappointment
of
potentially
not
having
your
own
kids
or
the
expense
of
not
being
able
to
.
This
is
a
full
circle
right
.
It's
a
full
body
disease
,
it's
a
full
life
disease
and
it
encompasses
everyone
within
your
circle
and
beyond
.
So
we
need
to
really
rally
behind
everyone
dealing
with
this
,
not
just
the
patient
,
because
it
affects
everyone
.
Speaker 2
45:43
So
Absolutely
Thank
you
for
all
the
work
that
you
are
doing
.
It's
been
so
amazing
to
just
see
everything
that
you're
doing
flourishing
.
So
just
keep
doing
what
you're
doing
,
because
I'm
just
so
glad
that
the
people
in
your
area
have
you
both
really
championing
this
work
and
somehow
you're
still
staying
on
top
of
this
amazing
podcast
at
the
same
time
.
So
,
yeah
,
keep
up
the
great
work
.
Thank
you
so
much
.
Thank
you
.
I
love
sharing
your
podcast
with
folks
and
they
love
it
,
love
the
information
.
Speaker 1
46:12
Well
,
thank
you
,
and
for
those
that
continue
to
listen
and
follow
really
putting
the
information
out
there
,
and
what
Kimather
is
doing
,
what
Brandon
is
doing
as
a
support
person
,
and
what
we
continue
to
do
is
to
get
the
information
so
that
you
have
better
tools
to
advocate
for
yourself
.
So
,
with
that
being
said
,
continue
advocating
for
yourself
and
for
those
that
you
love
.