Send us a text with a question or thought on this episode ( We cannot replay from this link)
When Shannon Cohen Stepped back from her legal career to shine a light on endometriosis through film, she redefined the landscape of women’s health advocacy. As our remarkable guest, Shannon recounts her own harrowing experiences with endometriosis, offering an unfiltered glimpse into the realities of these conditions. Her transformation into a filmmaker and social impact strategist gave rise to “Below the Belt” and “Endo What?,” films that serve as a rallying cry for awareness and action. Listen in as we unravel Shannon’s journey, where her daughters’ futures fueled a fire for advocacy, and discover how storytelling can become an extraordinary force for bridging knowledge gaps and sparking critical conversations.
This episode is a battle cry against the misinformation plaguing endometriosis awareness, emphasizing the dire need for research and inclusion in health policies. As we tackle the complexities of this disease, Shannon helps us understand why it is imperative to enhance research efforts for non-invasive diagnostics and targeted therapies. Our dialogue underscores the power patients hold when they become advocates for their own health, armed with credible, science-backed information. Join us for a compelling exploration of how lifestyle choices can significantly influence personal health, and witness how Shannon Cohn’s unwavering resolve is forging a path toward meaningful change in the realm of women’s health advocacy.
https://www.endowhat.com/
https://www.belowthebelt.film/
Website endobattery.com
Empowering Stories of Endometriosis Advocacy
Speaker 1
0:03
Welcome
to
EndoBattery
,
where
I
share
about
my
endometriosis
and
adenomyosis
story
and
continue
learning
along
the
way
.
This
podcast
is
not
a
substitute
for
professional
medical
advice
or
diagnosis
,
but
a
place
to
equip
you
with
information
and
a
sense
of
community
,
ensuring
you
never
have
to
face
this
journey
alone
.
Join
me
as
I
navigate
the
ups
and
downs
and
share
stories
of
strength
,
resilience
and
hope
.
While
navigating
the
world
of
endometriosis
and
adenomyosis
,
from
personal
experience
to
expert
insights
,
I'm
your
host
,
alana
,
and
this
is
EndoBattery
charging
our
lives
when
endometriosis
drains
us
.
Welcome
back
to
EndoBattery
,
grab
your
cup
of
coffee
or
your
cup
of
tea
and
join
me
at
the
table
.
My
guest
joining
me
at
the
table
today
is
Shannon
Cohen
.
Speaker 1
0:50
Shannon
is
an
acclaimed
filmmaker
and
social
impact
strategist
,
renowned
for
her
transformative
storytelling
,
which
transcends
borders
and
challenges
conventional
norms
.
With
a
profound
commitment
to
gender
equality
and
dismantling
stigma
,
she
has
transversed
the
globe
,
delving
into
the
issues
that
resonate
deeply
with
the
audience
worldwide
.
Leveraging
her
dual
expertise
as
a
filmmaker
and
an
international
law
attorney
,
shannon's
groundbreaking
work
extends
beyond
the
cinematic
brilliance
.
Her
acclaimed
films
Below
the
Belt
and
Endo
what
serve
as
a
catalyst
for
global
change
,
particularly
with
the
endometriosis
community
and
women's
health
advocacy
.
Through
her
artistry
and
advocacy
,
shannon
continues
to
redefine
the
power
of
storytelling
,
igniting
conversations
and
affecting
tangible
change
on
a
global
scale
.
Please
help
me
welcome
Shannon
Cohen
.
Speaker 1
1:38
Thank
you
,
shannon
,
so
much
for
joining
me
today
at
the
table
,
and
I'm
excited
that
you've
joined
me
.
This
is
kind
of
a
dream
come
true
for
me
,
so
thank
you
.
Of
course
,
it's
an
honor
to
be
here
.
I've
been
a
fan
of
yours
for
a
long
time
,
mostly
because
I
love
the
work
that
you
do
and
the
ambition
that
you
have
to
do
it
.
But
for
those
who
may
not
know
,
below
the
Belt
was
not
your
first
movie
that
you
did
.
You
actually
did
another
project
prior
to
that
,
called
Endo
.
What
.
What
was
the
most
pivotal
point
and
moment
?
That
you
took
your
experience
and
put
it
into
action
.
Speaker 2
2:12
I
think
I
probably
put
my
personal
experience
into
action
throughout
the
entire
process
,
before
filming
,
while
planning
,
while
researching
and
then
filming
,
and
then
,
after
the
filming
was
,
completing
and
releasing
the
films
and
really
just
trusting
my
own
lived
experience
as
a
guide
to
say
you
know
what
this
would
be
really
helpful
to
know
.
Or
this
is
where
maybe
some
knowledge
gaps
are
.
It's
just
from
my
own
personal
experience
and
conversations
with
other
people
,
I
began
to
see
,
you
know
,
different
patterns
,
different
gaps
that
I
thought
that
we
could
fill
with
film
and
with
some
of
the
other
materials
that
we've
put
together
.
So
,
I
mean
,
the
answer
is
,
I
think
,
constantly
.
Speaker 2
2:54
I
think
we
all
do
that
too
,
by
the
way
,
it's
not
just
me
Like
we're
constantly
using
our
own
experience
and
ideas
and
expertise
and
,
you
know
,
in
real
time
.
I
think
that
what
we
have
to
do
is
learn
to
trust
them
better
.
And
this
is
me
too
.
Like
I'm
constantly
just
saying
,
okay
,
yes
,
just
trust
your
gut
.
There
I
mean
,
of
course
,
always
being
open
to
really
good
,
constructive
feedback
that
comes
from
a
good
place
and
constantly
trying
to
learn
,
to
try
to
be
better
and
do
better
,
but
at
the
same
time
,
like
knowing
,
no
,
this
is
valid
.
Like
these
are
the
feelings
that
I
have
.
These
are
the
experience
that
I
have
is
valid
and
it's
real
,
and
leaning
into
that
and
trusting
that
.
Speaker 1
3:35
Yeah
,
what
made
you
go
the
route
of
film
?
It's
not
something
that
you
would
want
to
do
without
passion
,
because
it's
a
lot
of
work
.
It's
a
lot
of
work
,
it's
a
lot
of
money
,
it's
a
lot
of
time
and
it's
a
lot
of
energy
,
to
just
try
to
kind
of
put
it
all
together
.
What
was
that
pivotal
point
for
you
,
though
,
or
what
was
the
drawing
point
to
making
film
?
Speaker 2
3:56
Well
,
I
am
a
filmmaker
.
I
actually
went
to
film
school
at
NYU
after
I
was
a
lawyer
and
created
social
impact
campaigns
around
films
that
I
was
making
.
I
was
working
with
a
production
company
in
Soho
,
new
York
,
and
I
actually
started
to
see
how
films
could
be
catalyzing
tools
for
change
and
makes
larger
social
impact
,
and
in
different
subjects
that
were
not
related
to
women's
health
at
all
.
And
after
my
second
daughter
was
born
,
I
have
endometriosis
and
I
had
symptoms
,
you
know
,
when
I
was
16
,
but
didn't
hear
the
word
until
I
was
29
.
So
,
like
so
many
others
,
had
a
really
long
diagnostic
delay
,
not
for
lack
of
trying
.
I
definitely
saw
lots
of
specialists
,
had
lots
of
tests
and
were
,
you
know
,
was
told
lots
of
different
things
that
were
not
endometriosis
was
wrong
with
me
.
So
,
really
running
the
gamut
,
like
so
many
people
do
.
And
after
my
second
daughter
was
born
,
though
,
I
read
about
the
seven
times
increased
genetic
risk
,
and
that
really
lit
a
fire
under
me
,
like
my
own
experience
to
that
point
hadn't
.
And
that's
when
I
really
started
.
I
remember
I
just
went
on
Amazon
and
actually
just
bought
books
on
endometriosis
for
the
first
time
ever
,
which
is
bizarre
that
it
didn't
occur
to
me
to
do
it
for
myself
,
like
I
still
,
I
think
I
was
still
in
the
first
phase
that
a
lot
of
us
are
in
when
we
have
a
health
condition
,
we
just
trust
our
doctors
,
yeah
,
and
we
just
kind
of
say
,
okay
,
we'll
do
whatever
you
say
,
because
you
,
you
have
the
white
coat
,
you've
earned
it
.
You
know
better
than
me
.
And
at
that
point
it
all
kind
of
just
came
together
when
I
was
like
,
huh
,
wait
a
second
.
Actually
I
don't
think
that's
actually
true
.
Something's
quite
not
not
computing
here
that
I
,
you
know
,
had
this
long
diagnostic
delay
.
I'm
still
,
I've
had
experienced
infertility
.
I
just
had
,
you
know
,
a
lot
of
hurdles
put
in
place
because
of
the
lack
of
answers
and
the
lack
of
effective
treatments
that
I
encountered
due
to
the
healthcare
system
.
So
,
anyway
,
that
kind
of
scared
the
crap
out
of
me
,
basically
for
lack
of
a
more
articulate
phrase
when
I
read
about
that
seven
times
increased
genetic
risk
.
Speaker 2
6:04
Because
I
think
,
like
so
many
people
,
when
someone
we
love
is
threatened
and
it
can
be
a
child
,
but
it
could
be
our
parents
or
our
partner
,
our
sibling
,
our
best
friend
when
they
are
truly
threatened
in
some
way
,
it
just
galvanizes
.
It
will
galvanize
me
in
a
way
that
I
hadn't
,
you
know
things
just
crystallized
in
a
different
way
,
like
wait
a
second
,
like
no
,
this
is
absolutely
unacceptable
Because
the
thought
of
people
I
love
going
through
what
I
knew
that
I'd
gone
through
was
just
devastating
,
just
the
thought
of
it
,
and
it
compelled
me
to
start
,
really
,
you
know
,
putting
like
at
all
under
a
microscope
and
really
looking
at
,
well
,
why
have
things
not
changed
in
the
20
years
since
I
first
had
symptoms
?
Why
is
there
still
this
diet
,
long
diagnostic
delay
,
why
do
we
not
have
better
treatments
,
like
why
does
everything
feel
like
a
sledgehammer
basically
,
where
everybody
is
treated
with
the
same
medication
or
,
you
know
,
regardless
of
them
,
maybe
the
how
they're
presenting
with
symptoms
or
what
their
life
goals
are
?
And
it
just
felt
all
just
primitive
really
,
like
there
was
no
nuance
to
it
.
It
didn't
feel
patient
centered
at
all
and
that's
because
it
hasn't
or
isn't
,
you
know
,
in
the
mainstream
.
So
basically
I
started
digging
,
researching
and
like
probably
other
issues
,
but
with
endometriosis
,
the
deeper
I
,
you
know
,
the
deeper
I
was
digging
,
the
more
infuriated
I
became
.
That
it
just
felt
like
a
lot
of
the
problems
in
the
disease
landscape
were
needless
and
just
because
nobody
,
nobody
was
challenging
the
status
quo
.
Speaker 2
7:45
Basically
that
was
what
was
happening
and
it
became
quite
clear
that
if
anybody
was
going
to
change
endometriosis
it
was
probably
going
to
have
to
be
the
patient
community
,
which
of
course
,
is
not
fair
because
it's
a
sick
community
.
But
that's
the
reality
.
And
the
patient
community
need
to
be
educated
,
they
need
to
be
empowered
,
they
need
to
be
unified
and
mobilized
and
,
as
a
filmmaker
and
a
lawyer
,
I
see
a
lot
of
really
great
potential
in
storytelling
to
catalyze
social
movements
to
make
a
huge
social
impact
,
as
long
as
it's
organized
and
concerted
and
informed
.
I
mean
,
it
happens
all
the
time
,
yeah
.
So
I
started
doing
research
to
figure
out
like
,
okay
,
how
does
this
story
need
to
be
told
?
Like
,
how
can
we
educate
and
empower
patients
?
Speaker 2
8:30
And
it
became
pretty
clear
early
on
that
I
just
felt
like
we
needed
two
films
,
because
you
know
patients
needed
education
,
like
an
accurate
base
of
knowledge
about
education
,
like
basically
all
of
the
things
I
wish
I
had
known
at
16
about
the
.
You
know
the
basic
facts
and
symptoms
and
myths
around
.
The
really
is
meant
to
be
an
educational
film
for
patients
,
for
people
to
get
an
accurate
base
of
knowledge
about
the
disease
from
the
world's
experts
so
that
then
they
can
continue
on
to
find
what
works
for
them
.
But
it's
just
the
information
I
wish
every
person
knows
right
at
the
beginning
,
because
then
it's
.
You
know
it
doesn't
take
10
years
to
get
that
information
,
instead
it
takes
an
hour
.
And
then
,
beyond
that
,
I
knew
that
we
needed
a
film
that
was
really
more
geared
toward
the
mainstream
and
that's
more
of
a
typical
documentary
where
you
say
you
know
,
follow
stories
.
You
may
not
necessarily
know
about
the
condition
or
the
issues
when
you
start
,
but
you
know
by
extension
,
by
learning
about
people's
stories
,
you
start
kind
of
caring
about
them
and
then
,
by
extension
,
hopefully
,
if
I've
done
my
job
right
as
a
filmmaker
,
as
a
storyteller
,
you
start
caring
about
the
issues
that
affect
them
.
So
that's
what
we
are
doing
with
Below
the
Belt
.
You
know
a
lot
of
people
.
Of
course
we
have
positive
and
negative
feedback
about
both
films
from
a
lot
of
people
.
Speaker 2
10:11
The
films
can't
be
everything
to
everyone
.
You
know
we
had
to
make
conscious
choices
about
how
to
what
to
put
in
each
film
.
You
know
and
really
endo
what
is
meant
for
the
patient
community
,
the
endo
community
,
people
looking
for
film
.
You
know
and
really
endo
what
is
meant
for
the
patient
community
,
the
endo
community
,
people
looking
for
answers
,
frontline
providers
,
people
who
want
to
know
like
basic
information
about
endo
and
below
the
belt
is
really
meant
for
people
who
may
have
never
heard
of
it
,
but
to
put
endo
on
their
radar
.
I
mean
,
it's
also
,
of
course
,
meant
for
patients
to
feel
like
they've
been
.
They're
seen
,
you
know
,
and
their
experiences
are
seen
and
,
by
extension
,
you
know
,
a
lot
of
caregivers
have
told
me
I
felt
seen
,
you
know
,
I
feel
seen
by
your
movie
,
because
we
do
highlight
the
caregivers
and
below
the
belt
,
the
people
around
the
patients
whose
lives
are
absolutely
affected
by
this
disease
,
that
I
think
a
lot
of
times
go
unseen
.
Speaker 1
11:04
Yeah
,
absolutely
.
It's
so
interesting
because
,
you
know
,
I
started
this
podcast
after
I
really
figured
out
what
endometriosis
really
is
and
how
to
really
treat
it
,
after
years
and
surgeries
later
and
then
two
girls
later
,
and
that
was
such
a
pivotal
point
for
me
as
well
in
pushing
me
into
motion
,
because
I
have
two
girls
and
when
you
have
that
statistic
stacked
against
you
,
you
automatically
go
into
mama
mode
Like
you
want
them
to
never
experience
what
you've
experienced
,
because
the
love
is
so
deep
.
Right
,
the
one
thing
I
will
say
about
the
movie
that
and
I
loved
it
because
we
did
an
event
in
June
and
we
did
a
showing
and
our
primary
focus
was
actually
the
support
people
and
I
cannot
tell
you
the
amount
of
support
people
that
came
up
to
us
later
that
were
like
we
needed
this
.
Speaker 1
11:57
Thank
you
so
much
.
We
felt
seen
that
you
guys
were
talking
about
support
people
and
our
panel
consisted
of
a
therapist
,
a
surgeon
,
an
acupuncturist
,
a
PT
Like
.
It
was
a
well-rounded
panel
because
it
affects
our
whole
lives
,
it
affects
everyone
,
and
so
the
fact
that
you
were
able
to
draw
that
out
in
a
gift
and
an
ability
that
you
have
has
impacted
so
many
people
and
I
think
that
that
trajectory
has
taken
you
not
only
into
the
States
everywhere
and
understanding
advocacy
in
the
United
States
,
but
you've
done
this
globally
and
you've
been
able
to
reach
a
global
audience
.
What
has
been
the
shift
that
you've
seen
globally
in
advocacy
because
of
this
film
?
Speaker 2
12:46
I
mean
,
I
think
there's
a
global
shift
in
advocacy
without
the
film
.
I
mean
,
I
think
things
are
changing
and
I
think
a
lot
of
basically
enough
is
enough
,
I
mean
,
and
I
think
that's
happening
everywhere
around
the
world
and
I
have
to
say
the
U
?
S
is
behind
the
curve
on
a
lot
of
it
.
I
mean
,
we're
doing
our
,
not
for
lack
of
trying
by
our
advocates
,
it's
just
the
system
is
so
complex
.
You
know
,
it's
just
very
complicated
in
this
country
right
now
,
but
places
like
Australia
and
France
and
Denmark
and
the
UK
,
they're
really
making
a
lot
of
strides
in
putting
together
national
action
plans
and
getting
movement
on
policy
and
in
education
.
So
I
think
it's
really
incredible
,
you
know
,
and
we
can
all
learn
from
one
another
.
We
are
absolutely
working
hard
in
the
US
and
there
are
just
tremendous
barriers
to
change
.
It
doesn't
mean
they're
insurmountable
and
I
we
are
getting
past
them
,
you
know
,
and
the
and
the
beautiful
thing
is
right
now
I
think
we're
reaching
like
a
critical
,
like
a
swell
,
you
know
where
this
Navigating Endometriosis Misinformation and Advocacy
Speaker 2
13:55
.
Speaker 2
13:55
These
issues
quote
unquote
women's
health
conditions
are
getting
a
lot
of
attention
and
this
is
something
that
really
applies
to
,
to
endometriosis
and
to
all
of
us
,
and
it
is
something
that
really
applies
to
endometriosis
and
to
all
of
us
,
and
it's
something
that
we
can
be
a
part
of
and
to
make
sure
that
,
you
know
,
with
policy
and
research
funding
,
the
endometriosis
is
included
.
That's
something
I
work
on
every
day
,
you
know
behind
the
scenes
,
and
so
many
others
do
too
,
to
just
make
sure
that
endometriosis
is
included
in
all
of
these
things
,
because
it
deserves
to
be
there
.
I
mean
,
it's
flown
under
the
radar
long
enough
and
,
as
Heather
Rodon
says
,
it's
like
the
wicked
stepchild
of
gynecology
.
It's
been
that
long
enough
.
Speaker 2
14:34
And
because
it's
been
relegated
there
,
but
it
doesn't
not
because
of
any
valid
reason
.
It
needs
to
be
out
,
people
need
to
be
talking
about
it
,
it
needs
to
have
priority
and
it
deserves
a
transformative
amount
of
research
funding
and
research
funding
that
propels
the
studies
forward
that
actually
make
a
difference
in
people's
lives
.
Things
like
biomarker
research
,
a
non-invasive
diagnostic
tool
,
targeted
therapies
,
and
things
like
answering
questions
about
why
endometriosis
presents
differently
in
different
people
.
We
don't
know
the
answer
.
Speaker 2
15:07
That's
insane
that
we
don't
know
the
answer
,
and
until
we
do
know
why
it
presents
differently
in
different
people
,
then
the
treatments
are
still
going
to
be
like
sledgehammers
you
know
,
so
we
really
need
that
transformative
amount
of
research
funding
and
I
think
we
need
to
work
in
concert
with
other
you
know
groups
and
countries
and
you
know
,
as
someone
told
me
recently
,
you
know
we're
all
rowing
in
the
same
direction
.
We
can
have
individual
differences
and
individual
like
differences
in
goals
and
personalities
and
all
of
those
things
,
but
I
think
if
we
recognize
that
we
all
in
fact
,
are
rowing
in
the
same
direction
and
find
commonalities
and
ways
to
work
together
,
that
we
all
in
fact
are
rowing
in
the
same
direction
and
find
commonalities
and
ways
to
work
together
,
that
we're
all
going
to
get
there
a
lot
sooner
.
Speaker 1
15:48
Absolutely
,
and
I
do
think
what's
hard
about
bringing
more
awareness
to
endometriosis
is
then
we
adversely
,
we
have
people
that
do
spread
some
misinformation
.
Do
you
feel
like
that
is
a
constant
battle
that
you're
facing
globally
?
Speaker 2
16:04
Yeah
,
yeah
,
I
mean
,
I
think
it's
a
battle
that
everyone's
facing
in
every
condition
,
and
every
topic
right
now
,
I
mean
we
are
inundated
by
information
,
by
misinformation
,
by
disinformation
,
and
it's
a
real
challenge
and
endometriosis
and
women's
health
and
all
and
every
piece
of
news
or
information
that
we
get
online
or
offline
every
single
day
.
I
actually
had
to
talk
to
my
daughters
about
that
recently
because
they
were
watching
something
and
I
was
like
this
isn't
true
.
Like
I
knew
it
wasn't
true
it
had
nothing
to
do
with
endometriosis
,
but
I
was
like
we
need
to
talk
about
disinformation
and
misinformation
,
guys
,
like
it
was
.
It's
something
I
think
we're
all
battling
and
some
of
it
is
nefarious
.
Speaker 2
16:43
I
think
a
lot
of
it
is
just
irresponsible
.
You
know
what
I
mean
.
Like
people
not
really
doing
.
I
see
quote
,
unquote
,
lazy
journalism
all
the
time
where
it's
like
cut
and
paste
journalism
and
I'm
just
like
this
is
what
happened
to
real
,
you
know
,
and
it's
not
necessarily
.
It's
just
like
a
larger
systemic
issue
we
won't
get
into
,
like
the
challenges
confronting
journalism
today
with
budget
cuts
and
budget
cuts
and
how
.
Speaker 2
17:08
All
of
that
.
I
mean
it's
a
really
thorny
issue
.
I'm
not
saying
that
we're
just
talking
about
the
recipient
side
of
.
How
do
we
know
what
is
trustworthy
,
how
do
we
know
what
we
can
believe
,
how
do
we
know
what
is
backed
in
evidence
,
you
know
,
in
fact
,
and
what
makes
research
good
,
like
what
you
know
,
and
it's
just
,
it
is
overwhelming
to
try
to
sift
through
.
It
really
is
,
and
there
are
a
lot
of
people
doing
a
good
job
at
it
.
Speaker 2
17:35
And
I
would
say
when
people
ask
me
,
I'm
like
,
find
the
people
online
who
are
unbiased
,
they're
not
funded
by
certain
,
you
know
,
commercial
interests
,
that
have
a
certain
point
of
view
,
that
have
something
to
gain
by
you
believing
in
certain
way
,
and
that
seem
to
be
able
to
cite
solid
research
studies
that
have
really
interesting
insights
to
share
,
that
aren't
promoting
one
person
versus
another
person
or
one
provider
of
another
provider
.
I
think
all
of
that's
really
important
for
people
to
kind
of
sift
through
as
they're
considering
,
like
you
know
,
which
doctor
should
I
go
to
,
or
what
medicine
should
I
try
,
or
what
should
I
try
,
this
diet
or
diet
?
You
know
what
I
mean
.
Honestly
,
it's
just
all
so
you
know
,
overwhelming
.
But
I
would
say
like
take
it
a
step
at
a
time
,
try
to
find
really
good
,
trustworthy
information
and
that
will
help
you
find
,
you
know
,
overwhelming
.
Speaker 2
18:29
But
I
would
say
like
take
it
a
step
at
a
time
,
try
to
find
really
good
,
trustworthy
information
and
that
will
help
you
find
,
you
know
,
a
good
healthcare
provider
that
listens
to
you
and
takes
your
symptoms
seriously
,
and
you
can
be
an
advocate
and
a
partner
in
your
healthcare
and
not
just
a
recipient
of
instructions
from
your
healthcare
provider
,
which
I
think
so
many
of
us
and
I
was
definitely
guilty
of
it
at
first
,
where
I
just
followed
instructions
and
it
wasn't
until
I
just
finally
you
know
,
after
years
of
that
realized
like
,
okay
,
these
instructions
aren't
quite
working
,
they're
not
one
size
fits
all
.
Speaker 2
18:59
I
know
my
body
and
really
know
what
needs
to
work
for
me
,
and
I've
become
attuned
to
my
body
for
better
or
worse
.
Sometimes
I
wish
I
weren't
.
I'm
just
like
,
oh
great
,
this
pain
is
back
today
,
like
,
oh
,
you
know
but
,
and
I
wish
I
weren't
.
But
at
the
same
time
,
it
has
taught
me
certain
things
that
I'm
not
very
happy
about
,
for
example
,
that
I
don't
do
very
well
with
sugar
personally
,
and
when
I
have
sugar
I
become
a
little
bit
achier
,
I
become
like
I
just
don't
feel
great
,
you
know
,
and
that
is
my
most
favorite
thing
.
So
that's
why
it's
so
unfair
.
Speaker 1
19:37
I
mean
why
?
Speaker 2
19:38
can't
it
be
something
gross
Beef
and
eggs
for
me
.
Speaker 1
19:41
I'm
like
that's
easy
protein
and
yet
I
can't
eat
it
.
I
don't
understand
this
.
Like
it's
so
frustrating
.
That's
the
next
movie
I've
got
it
.
That's
the
next
documentary
Steps
After
Endometriosis
Care
.
I
know
right
,
it's
so
frustrating
.
Speaker 2
19:59
And
I
will
say
my
last
thing
is
there's
no
cure
for
endometriosis
.
You
know
I
want
everybody
.
I'm
sure
you're
people
who
listen
to
this
podcast
and
you
know
that
I
had
expert
surgery
.
You
know
that
I
feel
like
my
disease
was
removed
from
my
body
but
I
still
,
you
know
,
have
symptoms
.
I
mean
there's
more
to
this
disease
,
like
we
don't
know
the
answers
.
But
I
still
have
to
manage
my
symptoms
with
an
array
of
physical
therapy
from
time
to
time
,
not
constantly
,
but
when
things
act
up
.
Speaker 2
20:30
You
know
I've
found
that
that
helps
me
.
Diet
certainly
helps
,
you
know
,
like
a
certain
way
of
eating
certainly
helps
,
and
that's
a
lot
by
trial
and
error
and
what
has
worked
for
me
.
Like
I
have
a
good
friend
that
she
doesn't
have
a
problem
with
sugar
,
so
I
mean
great
,
I'm
jealous
,
but
um
,
but
you
know
she
has
a
problem
with
gluten
and
I
don't
actually
have
a
problem
with
gluten
.
So
it's
kind
of
like
a
very
you
know
it's
just
a
nuanced
process
and
I
take
medications
.
You
know
medications
help
,
you
know
,
as
I
.
You
know
I
always
quote
Heather
Gordon
all
the
time
.
Speaker 2
21:05
I'm
just
going
to
,
like
she
used
to
have
her
own
citation
shorthand
but
I
mean
,
oh
gosh
,
what
does
she
say
now
?
I'm
like
making
to
,
like
she
used
to
have
her
own
citation
shorthand
but
I
mean
,
oh
gosh
,
what
does
she
say
now
?
I'm
like
making
a
joke
and
I
can't
remember
what
she
said
.
But
she
was
like
without
medicine
.
She
was
like
without
drugs
we'd
all
be
dead
.
I
mean
,
you
know
that's
a
bit
hyperbolic
,
but
you
know
what
I
mean
.
It's
true
.
It's
not
that
like
I'm
anti
drugs
or
anti
medication
.
I
mean
I
think
that
we
probably
all
need
some
type
of
medication
at
some
point
.
Speaker 1
21:32
You
know
to
manage
our
lives
.
Speaker 2
21:35
Of
course
I
need
to
go
to
show
up
for
my
kid
,
then
I'm
going
to
take
some
medication
,
you
know
like
that's
just
the
way
it
is
sometimes
.
I'm
not
that
I'm
anti
any
kind
of
corporate
interest
that
creates
a
narrative
for
its
own
bottom
line
and
not
for
the
betterment
of
patients
.
That's
what
I'm
against
.
So
there's
a
difference
there
,
absolutely
,
and
I
hope
that
we
can
all
get
informed
consent
and
be
empowered
and
educated
and
find
the
answers
for
us
individually
,
but
also
us
collectively
.
That's
my
hope
and
my
goal
.
Speaker 1
22:08
Yeah
,
and
what
do
you
have
coming
up
Like
,
do
you
?
Because
you're
globally
working
on
legislative
pieces
?
You're
also
,
you
know
,
doing
panel
work
.
Are
we
going
to
see
more
films
?
Are
we
going
to
see
just
more
in
the
bills
and
policies
and
laws
that
are
implemented
?
What
are
we
going
?
To
see
from
Shannon
Cohen
next
.
Speaker 2
22:28
That's
all
I
care
about
right
now
Well
,
what
are
we
going
to
see
from
Shannon
Cohen
next
?
That's
all
I
care
about
right
now
.
Well
,
I
mean
,
maybe
a
film
.
Maybe
a
film
sometime
,
but
it's
not
something
I'm
actively
working
on
right
now
.
I'm
considering
topics
and
researching
and
thinking
about
,
like
you
say
,
like
what's
actually
needed
,
you
know
,
and
thinking
about
what
would
be
helpful
for
where
we
all
are
on
our
journeys
.
Speaker 2
22:47
Yeah
,
good
,
we'll
talk
about
that
later
.
A
lot
of
the
work
that
we're
doing
right
now
is
an
impact
and
that's
what
I'll
be
working
on
for
the
rest
of
the
year
working
with
policymakers
and
DC
to
try
to
,
you
know
,
get
different
policy
changes
to
get
into
nutriosis
,
additional
research
funding
from
the
NIH
,
the
TOD
,
widespread
awareness
.
Continuing
on
making
the
film
accessible
around
the
world
.
We're
in
discussion
right
now
with
different
platforms
.
We're
just
trying
to
.
You
know
it's
so
difficult
with
distribution
.
It's
not
a
linear
process
,
it's
not
a
fast
process
,
but
if
you're
trying
to
get
to
the
widest
audience
possible
in
a
way
that
lasts
,
it
takes
a
bit
of
time
and
it's
complicated
,
but
we're
getting
there
and
I
hope
that
it's
available
widely
on
all
types
of
platforms
very
soon
.
Speaker 2
23:32
And
the
third
aspect
is
education
.
Education
for
patients
,
but
also
we're
really
focusing
on
medical
providers
.
So
school
nurses
we
have
a
school
nurse
program
.
We've
educated
thousands
of
nurses
in
the
U
?
S
and
around
the
world
.
And
then
we're
launching
very
soon
a
frontline
provider
educational
program
in
partnership
with
Harvard
Medical
School
and
Mayo
Clinic
.
So
a
lot
of
what
I'll
be
doing
is
working
on
that
and
making
sure
that
when
patients
come
to
them
educated
and
empowered
,
that
,
then
,
the
second
half
of
that
equation
is
the
provider
is
equipped
to
meet
them
halfway
to
know
what
symptoms
are
and
to
believe
them
,
and
then
to
refer
them
to
a
specialist
.
That's
my
goal
now
is
to
get
to
that
part
.
Speaker 1
24:17
Shannon
,
that's
so
good
.
Well
,
thank
you
so
much
for
taking
your
time
and
for
spending
some
time
with
me
today
and
all
the
valuable
insights
you
have
on
endometriosis
and
advocacy
and
everything
that
you're
doing
.
Thank
you
so
much
.
Speaker 2
24:29
It's
such
a
pleasure
to
see
you
and
to
chat
with
you
,
and
I'm
happy
to
try
to
do
this
more
.
Speaker 1
24:35
Yes
,
let's
do
this
again
.
Thank
you
so
much
for
joining
me
,
of
course
.
Thanks
a
lot
and
until
next
time
,
continue
advocating
for
you
and
for
those
that
you
love
.
Thank
you
.