Endo Year Reflections: #2

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Endo Year Reflections: #2
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Explore the intricate world of endometriosis as we embark on a thought-provoking journey through our Endometriosis Reflection Series. Discover the cutting-edge techniques shared by the esteemed Dr. Mona Orady, who unlocks the secrets of preventing adhesions during surgery. Her use of lasers, micro laparoscopy, and innovative solutions like Adapt opens new horizons for managing pain and preserving fertility. Dr. Orady’s approach of temporarily suspending the ovaries post-surgery showcases her commitment to advancing care and nurturing hope for those affected. This episode is a crucial checkpoint, urging us to pause and reflect on the significance of fertility preservation and pain management.

Celebrate the unwavering advocacy of Dr. Orady as she champions endometriosis care despite financial barriers. Her tireless work to secure insurance coverage underscores a powerful narrative of passion and dedication. Join me in revisiting the transformative conversations and lessons gathered throughout the year, as we draw strength from the profound insights and stories shared. This episode is more than a reflection; it’s a rallying cry for advocacy, education, and community support, reminding us that together we’re stronger in our battle against endometriosis.

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Endometriosis Reflection Series

Speaker 1
0:02

Welcome

to

EndoBattery
,

where

I

share

my

journey

with

endometriosis

and

chronic

illness
,

while

learning

and

growing

along

the

way
.

This

podcast

is

not

a

substitute

for

medical

advice
,

but

a

supportive

space

to

provide

community

and

valuable

information

so

you

never

have

to

face

this

journey

alone
.

We

embrace

a

range

of

perspectives

that

may

not

always

align

with

our

own
.

Believing

that

open

dialogue

helps

us

grow

and

gain

new

tools

always

align

with

our

own
.

Believing

that

open

dialogue

helps

us

grow

and

gain

new

tools
.

Join

me

as

I

share

stories

of

strength
,

resilience

and

hope
,

from

personal

experiences

to

expert

insights
.

I'm

your

host
,

alana
,

and

this

is

EndoBattery

charging

our

lives

when

endometriosis

drains

us
.

Welcome

back

to

EndoBattery
.

Grab

your

cup

of

coffee

or

your

cup

of

tea

and

join

me

at

the

table
,

because

you're

always

welcome

here
.

Speaker 1
0:49

Can

you

believe

it

is

nearing

the

endo

of

the

year

Again
?

See

what

I

did

there
.

As

I

said
,

this

time

of

year

always

seems

to

come

up

at

full

speed
.

Between

the

holiday

hustle

and

juggling

of

life's

demands
,

it

can

feel

like

there's

hardly

any

time

to

catch

your

breath
.

But

here's

the

thing

the

end

of

the

year

is

also

the

perfect

time

to

pause
,

reflect

and

celebrate

all

the

growth
,

knowledge

and

connections

we've

built

together

and

this

year

it's

been

amazing
.

We've

had

incredible

experts

join

us
,

meaningful

conversations

and
,

of

course
,

there's

plenty

of

moments

where

I

think

we've

all

said

yes
,

that

is

what

I've

been

dealing

with
.

Speaker 1
1:28

I

wanted

to

do

something

a

little

bit

different

to

close

out

the

year
.

Instead

of

cramming

a

single

episode

with

all

the

lessons

and

information

and

the

highlights
,

I

thought

why

not

take

this

journey

in

smaller
,

more

digestible

doses
?

After

all
,

we

know

pacing

ourselves

is

essential

when

managing

energy

and

life
,

and

not

overfilling

our

plates

with

all

the

things
.

So

here's

what

we're

gonna

do

Multiple

times

a

week

for

the

rest

of

the

year
,

we'll

take

a

walk

down

memory

lane

together
.

Each

short

episode

will

spotlight

a

lesson

learned
,

an

expert

who

has

left

their

mark

or

a

conversation

that

resonated

deeply
.

This

is

your

chance

to

reflect

with

me
,

revisit

what

you've

loved

or

maybe

discover

something

you've

missed
.

I'm

calling

it

the

endo

year

reflection

series

because

sometimes

looking

back

is

just

what

we

need

to

recharge

and

gear

up

for

what's

ahead
.

So

buckle

up

for

this

little

reflection

road

trip

quick

stops
,

meaningful

moments

and

plenty

of

reminders

that

you're

not

alone

on

this

journey
.

Let's

take

this

ride

together
,

one

moment

at

a

time

and
,

as

always
,

thank

you

for

being

here
,

for

listening
,

for

sharing

and

for

showing

up
,

not

just

for

me

but

for

yourself
.

You're

the

heartbeat

of

EndoBattery
.

Speaker 1
2:44

With

that

being

said
,

let's

get

started

on

episode

two
.

Last

episode

I

shared

the

part

one

of

Dr

Mona

Arati's

episode
,

but

this

episode

we're

going

to

reflect

back

on

part

two

of

Dr

Mona

Arati's

episode
,

and

boy

did

she

bring

it

again
,

and

this

time

with

talk

about

adhesions
.

Now

we

have

all

maybe

heard

of

adhesions

and

we've

not

really

quite

understood

what

adhesions

are
,

what

role

they

play

within

endometriosis

and

pain

right
.

So

this

episode

was

really

good

for

me

because

I

didn't

really

understand

that

adhesions

were

such

a

big

issue
.

I

mean
,

yes
,

I

knew

a

little

bit

and

with

adhesions

this

was

something

that

I

didn't

think

was

going

to

play

such

a

big

part

in

pain

factors
,

but

really

it

plays

a

massive

part

in

it
.

Dr

Mona

Arati

is

a

big

advocate

for

adhesion

prevention
.

Speaker 2
3:38

Well
,

just

take

a

listen
.

A

lot

of

people

don't

talk

about

this

but

adhesions

can

have

a

huge

effect

on

women

who

are

still

wanting

childbearing
.

It

can

affect

their

fallopian

tubes

and

block

their

tubes
.

It

can

cause

pain
,

it

can

cause

shifting

of

the

uterus

and

a

lot

of

them

already

have

some

adhesions

from

the

endometriosis
.

And

the

question

is

how

do

we

minimize

reformation
?

And

as

I

said
,

it

would

be

a

whole

lecture
.

I

gave

a

whole

hour

lecture

at

SLS

about

how

to

all

the

techniques

that

I

use

to

minimize

adhesions
.

Speaker 2
4:04

But

to

be

very

brief
,

number

one

minimizing

the

surgery

that

I

do

to

make

sure

I

only

touch

what

needs

to

be

touched
,

Meaning

I

don't

sit

there

digging

around
.

I

pick

up

the

endometriosis

lesions
,

I

excise

it

using

the

least

amount

of

energy

and

the

least

trauma

as

possible
,

Even

if

that

means

using

a

laser

to

actually

laser

to

cut

out

the

lesion
.

It's

less

traumatic

than

using

monopolar

energy

or

monopolar

scissors
.

So

I

use

a

laser

a

lot

in

endometriosis

surgery
,

using

micro

laparoscopy

when

I

can
,

using

sharp

dissection

when

I

can
,

minimizing

tissue

trauma
,

minimizing

bleeding

because

blood

can

cause

adhesions

and

inflammation
.

So

my

surgeries

and

everybody

else's

I

don't

like

to

see

blood

ever
.

They

have

to

be

completely

dry
,

perfectly

hemostatic
.

Speaker 2
4:50

At

the

end

it

has

to

do

everything
.

You

rinse

everything

really

clean

and

then

using

agents

like

Adapt
,

which

is

an

adhesion

prevention

solution

that

coats

everything

and

prevents

things

from

sticking

together
.

It's

kind

of

like

a

syrup

that

covers

everything

and

kind

of

coats

it

so

that

things

don't

stick

together
.

It

makes

everything

slippery

so

that

you

don't

develop

adhesions
.

And

then

I

do

procedures

where

I

like

I'll

elevate

the

ovaries
,

I'll

I'll

like

basically

suspend

the

ovaries

away

from

the

area

that

I

dissected

or

cut

out

endometriosis

for

three

or

four

days

until

that

area

heals

over

and

then

I'll

cut

the

string

and

release

the

ovaries

so

that

when

they

come

back

down
,

the

fallopian

tubes

and

ovaries

were

not

in

the

area

that's

healing
,

so

they

don't

develop

adhesions

around

them
.

Speaker 2
5:32

So

there's

a

lot

of

techniques

that

I

specifically

do

and

I

teach

to

prevent

adhesions
,

because

the

majority

of

my

patients

and

I

think

the

majority

of

endometriosis

patients

have

not

yet

had

children

and

you

don't

want

to

affect

their

ability
,

you

want

to

preserve

their

fertility

and

adhesion

prevention

is

a

big

part

of

that

and

it's

also

a

big

part

of

preventing

pain

and

things

like

that
.

I've

seen

patients

where

I've

reoperated

on
,

who

had

surgery

somewhere

else

or

had

someone

else

do

surgery
,

and

you

go

in

and

it's

a

complete

plastered

mess

of

everything

stuck

to

everything
.

How

is

that

not

hurting
?

Speaker 1
6:04

What

I

loved

about

her

talking

about

adhesions

was

the

fact

that

adhesion

prevention

should

always

be

in

the

forefront

of

a

surgeon's

mind
,

and

I

didn't

realize

just

how

delicate

surgeons

should

be

with

tissue

to

help

prevent

adhesions
.

Speaker 1
6:19

Now
,

as

she

said
,

we

can't

prevent

all

adhesions
,

but

that

should

be

a

goal
.

So

I

thought

that

was

a

really

interesting

and

yet

impactful

thing

to

think

about
,

because

it

does

affect

us
,

especially

post-surgically
.

Another

thing

that

came

from

the

conversation

with

Dr

Arati

was

the

fact

that

we

have

such

a

delay

in

diagnosis

for

endometriosis
,

and

oftentimes

endometriosis
,

although

may

not

manifest

in

painful

periods

right

away
,

does

manifest
,

usually

at

a

younger

age
,

not

always
,

obviously
.

That's

kind

of

a

generalization
,

and

something

I

had

not

considered

was

the

fact

that

why

aren't

we

looking

at

abnormalities

with

our

anatomy

as

an

indicator

for

endometriosis
,

and

could

we

prevent

a

delayed

diagnosis

if

doctors

recognize

the

fact

that

abnormalities

in

the

uterus
,

if

it's

shifted

one

side

or

the

other
,

could

have

endometriosis
?

I

never

really

sat

down

and

thought

about

that
,

but

Dr

Arati

explains

this

in

a

way

that

I

really

hadn't

considered

before
.

Speaker 2
7:19

Take

a

listen

you

go

back

and

you

ask

them

and

you're

like

did

you

have

painful

periods
?

Yeah
,

I

was

passing

out

in

college

or

I

was
,

you

know
,

throwing

up

in

high

school
.

How

come

nobody

knew

that

these

symptoms

are

endometriosis
,

right
,

Right
,

no

one's

talking

about

it
.

How

do

people

not

know

that

dysmenorrhea

is

painful

periods
?

Speaker 2
7:38

but
,

pain

that

happens

before

the

period
,

which

that

is

my

diagnostic

key

for

endometriosis
.

Endometriosis

pain

starts

one

or

two

days

before

the

period
.

Dysmenorrhea
,

or

painful

period
,

starts

when

you're

bleeding
.

That's

dysmenorrhea
.

You

can't

call

pain

one

or

two

days

before

the

period

dysmenorrhea
.

They're

not

having

a

period
.

That

is

endometriosis
.

That's

almost

100%

diagnostic

for

endometriosis
.

If

you

have

pain

the

day

or

two

before

the

period

and

then

as

it

progresses

it

gets

worse

three

days

before
,

four

days

before
,

five

days

before
,

seven

days

before
,

from

ovulation

to

the

period
,

the

whole

month
.

Now

I

mean
,

if

you

go

back

their

history
,

you

can

actually

see

that

it's

literally

the

same

story

every

single

time
.

Speaker 1
8:21

Then

how

do

we

diagnose

earlier
?

Speaker 2
8:23

Through

discussion
,

through

history
,

through

exam
,

through

ultrasound
,

through

the

other

one
,

other

one
,

uh
,

the

tilted

cervix

right
.

Oh
,

I

have

a

tilted

uterus
.

I

mean
,

I

was

tilted

left
,

is

tilted

right
,

it's

shifted

this

and

that

I

mean
.

Do

you

know

that

we're

all

born

with

our

uterus

in

the

middle
,

just

like

our

heart
?

Speaker 2
8:41

is

on

our

left

side

and

our

liver's

on

our

right

side

and

our

gallbladder

is

over

here

and

our

appendix

is

over

here
.

The

uterus

is

in

the

middle
.

That's

how

we're

born
.

That's

how

it

was

created
.

If

it's

not

in

the

middle
,

when

we're

a

teenager

or

when

we're

in

our

twenties
,

something

moved

it
.

Guess

what

moved

it
?

The

endometriosis

moved

it
,

the

fibrosis

moved

it
.

If

your

uterus

is

tilted
,

I

almost

guarantee

you

have

endometriosis
.

And

it's

just

again
.

It

boggles

my

mind
.

I

talk

to

the

patient
.

I

say
,

oh
,

your

uterus

has

shifted

this

or

that
.

Or

oh
,

yeah
,

they

told

me

when

I

was

a

teenager

that

it

was

hard

to

get

a

pap

smear

because

they

couldn't

find

my

cervix

because

it

was

shifted

and

it's

like

and

like

there

was

no

clue

in

that
.

Oh
,

my

God
,

the

cervix

has

shifted
,

there's

something

going

on
.

Speaker 1
9:22

Maybe

she

has

endometriosis
,

Maybe

Maybe

we

should

start

questioning

our

providers

a

little

bit

more

if

things

don't

come

back

normal
,

because

something

that

doesn't

come

back

normal
,

there's

a

reason

for

it
.

It

can't

be

unexplained
.

There

was

so

much

more

that

I

took

away

from

this

episode

but

honestly

those

were

some

major

things

that

have

really

stuck

with

me

throughout

this

year

and

as

I've

planned

ahead
,

and

things

that

I've

looked

at

as

far

as

resources

and

knowledge

have

come

from

this

conversation
.

Something

else

that

I

learned

in

talking

to

Dr

Arati

was

the

fact

that

the

cost

for

endometriosis

excision

specialists

is

significant
.

I

know

a

lot

of

us

complain

that

it's

so

expensive

to

have

endometriosis

excision

surgery

and

it's

not

accessible

to

us
.

I

completely

understand

that

feeling
.

As

someone

who's

had

surgery

with

a

provider

that

has

insurance

coverage
.

It's

still

expensive
,

so

to

get

expert

excision

out

of

pocket

seems

unreasonable
.

But

what

I

didn't

realize

was

the

cost

to

the

doctors
.

Advocating for Endometriosis Care

Speaker 1
10:22

This

was

something

that

Dr

Arati

really

brought

up

to

me
.

That

has

really

stuck

with

me
.

This

is

not

a

cheap

endeavor

for

them

and
,

as

someone

who

wanted

to

provide

insurance

coverage

for

those

patients

to

get

expert

excision
,

it's

not

an

easy

road

for

her

either
.

It's

not

cheap
,

but

her

passion

and

her

drive
,

continue

to

push

her

and

propel

her

forward
.

I

hope

these

episodes

have

inspired

you
.

I

look

back

and

I

continue

learning
,

and

I'm

inspired

all

over

again
.

So

join

me

again

for

the

endo

year

of

reflection

as

we

continue

to

reflect

on

these

impactful

episodes

that

leave

us

with

more

knowledge
,

understanding

and

insight

into

endometriosis
,

its

care

and

its

people
.

Until

next

time
,

continue

advocating

for

you

and

for

those

that

you

love
.

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