Send us a text with a question or thought on this episode ( We cannot replay from this link)
Endometriosis is more than just a medical condition—it’s a relentless battle against misdiagnosis, systemic healthcare failures, and societal stigma. In this powerful episode, we shares our deeply personal journeys with chronic pain, shedding light on the emotional toll of navigating an often dismissive medical system. We continue our conversation with filmmaker and advocate Fisayo Thompson, who brings her unique perspective as both a patient and storyteller, using her platform to push for change.
Together, we unpack the hidden challenges of endometriosis—from the psychological impact of chronic illness to the urgent need for better education and medical support. With raw honesty and resilience, we discuss how community, advocacy, and breaking cultural taboos can pave the way for better treatment and awareness.
🔹 The emotional & medical struggles of endometriosis
🔹 Fisayo’s personal experiences and her documentary’s mission
🔹 How healthcare barriers delay diagnosis & treatment
🔹 The intersection of mental health and chronic illness
🔹 Why advocacy and education are critical for change
This episode isn’t just a conversation—it’s a call to action. Whether you’re battling endometriosis, supporting a loved one, or seeking to understand this condition better, tune in for a deeply compelling discussion that will leave you informed, empowered, and ready to help shift the narrative.
#EndometriosisAwareness #ChronicIllness #HealthcareAdvocacy #MentalHealth #InvisibleIllness
Website endobattery.com
Introduction to Alana's Journey
Speaker 1
0:02
Welcome
to
EndoBattery
,
where
I
share
my
journey
with
endometriosis
and
chronic
illness
,
while
learning
and
growing
along
the
way
.
This
podcast
is
not
a
substitute
for
medical
advice
,
but
a
supportive
space
to
provide
community
and
valuable
information
so
you
never
have
to
face
this
journey
alone
.
We
embrace
a
range
of
perspectives
that
may
not
always
align
with
our
own
.
Believing
that
open
dialogue
helps
us
grow
and
gain
new
tools
always
align
with
our
own
.
Believing
that
open
dialogue
helps
us
grow
and
gain
new
tools
.
Join
me
as
I
share
stories
of
strength
,
resilience
and
hope
,
from
personal
experiences
to
expert
insights
.
I'm
your
host
,
alana
,
and
this
is
IndoBattery
charging
our
lives
when
endometriosis
drains
us
.
Welcome
back
to
IndoBattery
.
Grab
your
cup
of
coffee
or
your
cup
of
tea
and
join
me
at
the
table
Today
.
Speaker 1
0:46
I'm
thrilled
to
welcome
Fasayo
Thompson
,
a
filmmaker
,
director
and
producer
dedicated
to
telling
powerful
,
untold
stories
.
As
the
creative
force
behind
Walking
Through
Walls
,
fasayo
uses
her
platform
to
shed
light
on
the
realities
of
living
with
endometriosis
,
something
she
knows
firsthand
.
Her
journey
with
endometriosis
began
in
her
teenage
years
,
but
,
like
so
many
others
,
she
faced
cultural
taboos
,
misdiagnosis
and
systemic
health
care
barriers
along
the
way
.
Through
her
documentary
,
she
not
only
raises
awareness
,
but
also
advocates
for
a
better
education
,
improved
medical
care
and
open
conversations
about
chronic
illness
.
Beyond
filmmaking
,
visayo
is
a
passionate
advocate
working
to
create
resources
and
support
for
those
affected
by
endometriosis
.
I
am
so
excited
to
have
her
here
to
share
her
story
,
her
work
and
her
mission
.
If
you
haven't
heard
part
one
,
I
recommend
you
go
back
to
episode
113
,
where
Fasayo
talks
more
about
her
story
.
Here's
a
reminder
where
we
left
off
and
where
we're
going
.
What
has
been
your
experience
walking
through
that
,
from
surgery
to
surgery
and
still
struggling
at
times
?
Speaker 2
1:57
It's
been
heartbreaking
.
I
don't
know
if
there's
another
worse
word
to
explain
that
,
but
it's
been
very
heartbreaking
to
go
from
surgery
to
surgery
.
And
you're
right
,
I
did
set
very
high
expectations
for
every
surgery
and
I'd
say
I
remember
,
you
know
,
every
surgery
I
went
to
,
from
the
first
one
in
2020
.
That's
my
first
excision
.
I'd
say
,
oh
,
one
and
done
.
I
used
to
say
one
and
done
,
one
and
done
,
one
and
done
.
But
now
,
if
you
get
one
and
done
,
I
used
to
say
one
and
done
,
one
and
done
,
one
and
done
.
But
now
,
if
you
get
one
and
done
,
you
know
.
Speaker 2
2:27
So
,
over
the
years
and
with
repeated
surgeries
,
I've
learned
to
manage
my
expectations
.
I've
had
doctors
say
manage
your
expectations
.
I've
had
surgeons
say
that
,
but
I
didn't
take
that
to
heart
until
after
coming
out
of
surgery
.
You
know
,
giving
it
a
couple
of
weeks
,
couple
of
months
and
then
realizing
,
oh
,
my
goodness
,
this
is
not
the
end
.
You
know
,
giving
it
a
couple
of
weeks
,
couple
of
months
and
then
realizing
,
oh
my
goodness
,
this
is
not
the
end
.
You
know
I
still
got
to
go
back
again
.
Speaker 2
2:48
So
,
yeah
,
I
now
advocate
,
you
know
,
to
take
it
easy
on
yourself
.
You
know
if
it's
a
one
and
done
for
you
,
wow
,
congratulations
.
But
if
it's
not
,
don't
be
hard
on
yourself
,
it's
not
your
fault
,
you've
done
your
best
.
And
also
to
also
realize
that
endometriosis
has
a
lot
of
consequences
on
the
body
.
You
know
,
some
of
them
can
be
not
be
treatable
by
surgery
.
You
know
,
some
people
have
lost
organs
.
I've
lost
organs
too
,
and
when
you
lose
organs
it
has
that
effect
on
the
body
.
There's
a
way
.
You
know
God
.
For
those
of
us
,
I
believe
God
designed
the
body
and
if
something
is
,
know
god
.
For
those
of
us
,
I
believe
god
designed
the
body
.
And
if
something
is
missing
,
you
feel
it
,
you
know
it
,
you
know
right
and
so
it's
very
important
to
to
manage
expectations
,
to
have
a
multidisciplinary
team
.
Speaker 2
3:35
I
think
you
know
we
,
we
are
very
fixated
on
surgery
,
because
surgery
is
the
only
treatment
as
of
now
,
because
because
there's
no
cure
.
But
we
also
have
to
realize
that
endometriosis
,
when
seeking
out
care
,
we
should
have
a
multidisciplinary
team
.
So
that's
what
I'm
doing
a
lot
of
now
in
functional
medicine
,
you
know
,
trying
to
supplement
this
,
that
mental
health
as
well
,
because
I
got
to
a
point
where
my
husband
said
I
know
you're
strong
,
but
you
need
mental
help
.
You
know
,
and
I
agree
because
you
know
the
tears
,
the
despondency
.
It
was
a
lot
.
But
I've
had
to
talk
to
myself
,
you
know
,
and
I
still
do
this
,
still
today
,
and
I
tell
people
to
when
they
talk
to
me
,
by
which
is
I
say
take
it
and
easing
yourself
,
don't
be
hard
on
yourself
.
If
all
you
do
in
a
day
is
survive
,
you've
done
the
most
important
thing
.
I'm
a
recovering
perfectionist
.
Yes
,
he
runs
a
family
.
Yes
,
same
.
Speaker 2
4:34
And
I
had
my
life
mapped
out
and
just
this
morning
I
was
preparing
everybody
to
go
out
.
I
walked
from
home
and
everyone
was
going
and
I
realized
,
on
a
scale
of
one
to
10
of
what
I
wanted
my
life
to
look
like
.
I'd
say
maybe
I'm
on
a
two
on
what
I
want
my
life
to
look
like
at
this
age
.
You
know
so
many
things
I
thought
I'd
figure
out
I'd
ticked
off
.
I'm
on
a
two
,
but
I've
learned
to
be
happy
with
the
little
things
.
I
have
a
roof
over
my
head
.
I
have
food
,
you
know
I'm
happy
with
that
.
I
can
,
I
can
walk
,
you
know
I'm
happy
with
that
.
Speaker 2
5:10
I've
gone
from
two
crutches
to
one
crutch
.
So
I
try
not
to
be
so
frustrated
.
From
time
to
time
I
still
go
back
to
my
crutch
because
I
still
have
ongoing
issues
.
So
when
I
have
to
then
go
back
to
using
the
crutch
I
feel
very
,
very
I
feel
bad
.
But
I
said
,
okay
,
at
least
it's
not
two
crutches
,
it's
one
crutch
.
So
there
is
still
something
to
be
happy
about
.
Speaker 2
5:33
So
it's
very
hard
on
the
mental
health
and
knowing
that
you
may
not
be
as
perfect
as
the
normal
person
in
court
,
as
the
normal
person
in
court
,
but
still
be
grateful
for
what
you
have
.
Some
people
don't
have
what
you
have
,
you
know
,
and
just
give
yourself
grace
.
You
didn't
ask
to
have
it
in
the
matriarchs
,
you
just
have
it
and
you're
doing
your
best
,
even
oftentimes
better
than
the
average
person
.
You've
gone
through
everything
and
you're
still
standing
,
you're
still
going
.
So
I
give
myself
grace
.
I
say
okay
,
if
not
today
tomorrow
,
if
not
today
tomorrow
,
I
did
this
today
.
Tomorrow
is
another
day
.
So
I
take
it
by
the
day
now
and
I
hope
you
know
people
will
live
from
that
and
just
live
in
the
moment
,
enjoy
the
moment
.
Speaker 1
6:27
Yeah
,
that's
something
that
I
have
learned
in
my
journey
is
that
it
is
a
day
by
day
,
moment
by
moment
I
wouldn't
even
say
it's
always
a
struggle
,
but
moment
by
moment
reevaluation
,
right
,
and
I
do
think
there
is
something
to
be
said
about
living
in
gratitude
for
what
you
can
do
and
not
in
fear
of
what
you
can't
do
,
Because
fear
holds
us
back
.
Gratitude
allows
us
to
live
in
that
moment
of
okay
,
I
can
do
this
one
step
at
a
time
,
and
even
if
it's
not
the
most
perfect
step
and
maybe
it's
a
painful
step
to
take
,
it's
one
step
and
it
may
be
a
tiny
one
,
but
it's
one
step
.
And
I
think
it's
about
the
matter
of
perspection
,
right
,
Introspection
,
and
perspective
is
is
important
,
and
that's
kind
of
like
my
,
my
life's
word
is
perspective
,
because
I
think
without
it
you
lose
sight
of
value
and
you
lose
sight
of
growth
and
knowledge
.
And
and
I
and
I
really
think
that
if
we
sit
in
that
space
and
think
about
,
okay
,
my
perspective
is
it's
not
perfect
,
but
I
get
to
do
X
,
Y
and
Z
.
Speaker 2
7:42
And
.
Speaker 1
7:43
I'm
in
pain
today
.
I
can't
walk
but
I
can
breathe
.
Or
I'm
having
a
hard
time
breathing
today
,
but
I
have
food
in
my
belly
.
You
know
,
it's
little
,
finding
moments
of
gratitude
,
finding
pieces
of
gratitude
Support and Awareness Beyond Medical Advice
Speaker 1
8:00
,
and
that's
not
to
be
confused
with
toxic
positivity
,
it's
to
give
you
a
little
bit
of
hope
,
sure
,
along
the
way
,
right
,
like
if
it's
all
doom
and
gloom
,
what
gives
you
purpose
,
what
gives
you
drive
to
keep
going
?
Speaker 2
8:13
you
know
,
but
it's
finding
little
pieces
of
gratitude
,
I
think
,
make
a
huge
difference
in
our
journeys
.
Yes
,
and
it
just
keeps
you
.
It
keeps
you
going
,
you
know
,
gives
you
hope
to
keep
fighting
,
because
the
mental
health
load
,
the
mental
health
,
I'd
say
the
mental
health
is
as
heavy
,
is
as
terrible
as
the
physical
health
.
You
know
,
people
don't
see
the
mental
health
burden
and
consequences
of
endometriosis
.
Usually
it's
not
written
on
your
face
but
it's
huge
.
So
people
say
,
are
you
in
pain
?
Are
you
in
pain
?
I'm
like
,
oh
,
I'm
okay
.
But
it's
the
mental
health
and
healing
.
You
know
,
and
for
me
,
I
think
,
you
know
I've
had
the
quite
unlucky
end
of
this
thing
somehow
,
because
I've
had
surgeries
go
wrong
.
I've
woken
up
with
barely
any
painkillers
and
screamed
and
like
almost
lost
my
mind
,
you
know
.
So
we're
walking
through
it
and
say
,
ok
,
that
was
horrible
,
that
should
have
never
happened
.
But
I'm
glad
I
woke
up
and
little
by
little
I'll
heal
every
day
till
I
get
to
a
good
place
.
Little
by
little
I'll
heal
every
day
until
I
get
to
a
good
place
.
Speaker 1
9:24
Yeah
,
do
you
think
that
there's
been
more
barriers
for
you
because
you're
an
African
woman
?
Who
people
I
mean
you
said
it
when
they
talked
about
this
is
a
rich
white
woman's
disease
and
that's
something
that
I
can't
experience
because
to
some
cultures
I
might
be
rich
,
although
I
don't
feel
that
way
,
but
I'm
definitely
white
living
in
middle
America
,
very
,
very
privileged
.
I
recognize
in
a
lot
of
ways
,
and
do
you
think
that
some
of
these
barriers
that
you
have
faced
and
some
of
the
things
that
you've
experienced
is
because
of
not
only
the
color
of
your
skin
but
your
nationality
and
the
culture
that
you
come
from
?
Speaker 2
10:12
Yeah
,
I
don't
think
I
know
and
I
lived
it
,
you
know
,
and
research
supports
it
and
I
know
many
people
want
to
bury
their
head
in
the
sand
but
it's
the
reality
and
that's
why
I
like
the
work
that
Endo
Black
is
doing
.
But
yeah
,
the
first
time
I
heard
about
this
disease
,
my
race
came
in
immediately
.
So
imagine
and
I
always
think
back
it
took
me
about
19
years
to
first
hear
about
this
disease
,
because
I
now
realize
that
there's
a
difference
between
the
first
time
.
There's
a
timeframe
difference
between
when
I
first
heard
about
this
disease
and
when
I
actually
got
a
diagnosis
of
this
disease
.
You
know
,
there's
that
two
year
gap
between
both
.
Speaker 2
10:53
But
the
first
time
I
heard
about
this
disease
I
was
dismissed
as
oh
,
I'm
sure
you
don't
have
it
because
you're
Black
.
And
so
now
that
I
look
back
I
wonder
how
many
surgeons
,
surgeons
,
how
many
doctors
have
seen
me
,
thought
about
,
you
know
,
the
possibility
of
me
having
endometriosis
,
but
did
not
mention
it
because
I'm
black
.
So
imagine
that
that
um
doctor
,
the
,
the
diner
that
said
it
,
I
remember
she's
um
,
she's
Jewish
,
she's
a
female
Jewish
,
um
um
doctor
,
and
she
said
and
she
just
said
it
in
person
and
said
I'm
sure
you
don't
have
it
,
she's
Jewish
.
She's
a
female
Jewish
doctor
and
she
just
said
it
in
person
and
said
I'm
sure
you
don't
have
it
.
So
I
wonder
how
many
other
doctors
before
her
had
seen
me
and
thought
I
do
not
have
it
.
So
maybe
I
may
have
even
had
an
earlier
diagnosis
if
I
was
white
,
if
other
doctors
didn't
see
my
black
skin
,
you
understand
,
and
also
africans
.
Speaker 2
11:47
You
know
I've
also
had
.
Oh
,
I'm
sure
africans
don't
have
it
as
well
.
You
know
you
guys
are
strong
and
healthy
.
And
no
,
we're
not
true
,
I
have
a
white
tongue
.
Speaker 2
11:56
And
because
I
usually
end
up
in
the
a
and
e
,
you
know
,
sometimes
every
couple
of
days
,
sometimes
like
clockwork
every
weekend
,
and
I've
had
uncountable
situations
where
I
was
refused
strong
painkillers
,
I
get
,
I
get
to
the
hospital
,
I'm
screaming
in
pain
.
Sometimes
they
want
to
bound
me
to
the
,
to
the
doctors
.
There's
some
footages
of
me
in
horrible
pain
that
that
couldn't
go
on
the
film
because
of
how
violent
they
were
,
you
know
,
and
to
be
in
that
screaming
pain
,
having
to
be
held
down
,
and
they
want
to
give
me
panadol
.
And
my
question
is
do
you
think
I
do
not
have
panadol
at
home
?
You
know
,
I
think
we
call
it
panadol
in
the
uk
,
you
call
it
tylenol
.
Do
you
think
I
have
not
taken
more
than
enough
tylenol
,
ibuprofen
and
diclofenac
,
you
know
.
So
I
come
to
the
hospital
and
I've
had
nurses
and
doctors
on
multiple
occasions
say
,
oh
,
come
on
,
you
can
bear
the
pain
,
you're
a
strong
woman
.
And
I
said
,
okay
,
what
was
that
pause
between
the
strong
and
the
woman
?
Right
,
I
know
you
I
most
.
I
can
bet
you're
about
to
see
a
black
woman
,
you
understand
.
So
they
say
you're
a
strong
woman
and
I'm
like
,
okay
,
is
that
why
you
won't
give
me
good
painkillers
?
And
it
took
a
while
.
I'd
hear
them
outside
my
A&E
room
saying
,
oh
,
she's
strong
,
she
should
be
able
to
manage
it
.
She's
a
mom
.
Because
when
they
looked
through
my
distance
I
say
,
oh
,
you
have
kids
.
I
say
yes
,
how
did
you
have
your
kids
?
Oh
,
just
,
you
know
,
I
had
vaginal
deliveries
.
They
say
,
oh
,
come
on
,
if
you
can
bear
,
you
know
,
vaginal
delivery
,
you
can
bear
this
pain
.
And
I
said
,
no
,
this
is
different
,
you
know
,
and
that
was
just
in
a
couple
of
hours
you
have
the
baby
.
But
this
is
continuous
and
I'm
fed
up
and
they
say
,
well
,
I'm
sure
you
can
bear
the
pain
.
Speaker 2
13:39
There's
even
hospital
research
has
shown
that
doctors
think
that
black
people
have
thicker
skin
and
they
have
less
nerve
endings
,
so
we
feel
less
pain
.
So
it
is
not
what
we
not
just
think
.
It's
documented
that
there
is
that
bias
.
You
know
.
I've
seen
someone
else
in
pain
less
pain
than
me
,
outwardly
and
they
go
muffin
and
for
the
longest
time
I
hear
doctors
say
,
should
we
give
a
muffin
?
Should
we
give
a
muffin
?
Maybe
we
should
.
We
give
her
morphine
?
Maybe
we
should
give
her
morphine
?
Oh
,
no
,
she's
strong
,
she
can
bear
it
.
She's
a
mom
,
you
know
.
And
the
back
and
forth
.
Do
you
think
she's
drug
seeking
?
Oh
,
come
on
,
I'm
sure
she
can
bear
it
.
No
,
people
expect
black
people
to
bear
pain
.
They
think
we
can
bear
pain
,
but
no
,
we
can't
.
We're
all
humans
.
There's
only
one
race
and
that's
the
human
race
.
So
I
think
you
know
there's
a
lot
of
work
to
be
done
in
medical
schools
and
in
the
medical
community
to
read
that
preconceived
notion
that
black
people
can
be
a
more
pain
.
Even
if
we
can
be
a
more
pain
,
that
doesn't
mean
we
should
.
Right
,
that's
it
.
Yeah
,
but
I
don't
even
think
we
can
.
Or
even
if
we
can
,
that
doesn't
mean
we
should
.
Speaker 2
14:49
And
I
wonder
if
that
played
a
role
,
because
when
I
had
my
hysterectomy
,
it
was
about
a
six
,
seven
hour
surgery
and
I
woke
up
particularly
without
any
painkillers
.
The
reason
they
agreed
to
do
the
hysterectomy
was
because
morphine
wasn't
working
for
daily
pain
.
Now
imagine
being
given
the
same
morphine
for
for
six
hours
.
The
surgeon
said
we
kept
cutting
and
cutting
and
cutting
.
We
did
our
best
,
so
I
knew
he
didn't
finish
cutting
.
That's
what
it
meant
,
basically
right
,
you
know
.
Speaker 2
15:18
And
so
you
give
the
same
muffin
that
didn't
work
for
everyday
pain
.
You
give
it
for
six
hours
surgery
where
you
cut
out
organs
out
of
me
.
And
you
cut
so
much
out
of
me
.
Why
will
you
do
that
so
for
many
years
I'd
cry
every
time
.
I
think
about
the
fact
that
you
gave
morphine
because
I
almost
died
because
they
kept
pushing
the
morphine
pushing
and
my
heart
almost
stopped
on
the
table
.
I
woke
up
,
you
know
,
in
the
intensive
.
So
I
feel
like
if
I
was
a
white
woman
,
will
you
,
will
you
do
that
?
I
feel
like
we
black
women
,
we
get
the
shorter
end
of
the
stick
when
it
comes
to
painkillers
,
when
it
comes
to
being
diagnosed
on
time
,
you
know
,
and
getting
quicker
treatment
for
endometriosis
.
Speaker 1
16:03
It
is
documented
.
I
know
that
he
was
advocating
for
you
and
was
his
word
not
valid
in
these
scenarios
either
?
Because
that's
what
to
me
was
when
talking
about
that
is
so
shocking
is
because
here
,
if
your
spouse
who
lives
with
you
is
a
provider
and
is
teaching
medicine
or
is
practicing
medicine
,
they
have
more
validity
to
their
word
most
of
the
time
,
but
it
doesn't
sound
like
that
was
the
case
for
you
guys
.
Speaker 2
16:35
Yeah
it
was
crazy
.
There
was
a
point
,
you
know
,
I
stopped
going
to
the
A&E
because
they
had
labeled
me
drug
seeking
and
they'd
even
told
me
to
my
face
that
you
keep
coming
here
because
you
want
the
morphine
high
,
you
know
,
and
so
I'd
rather
faint
at
home
.
I'd
open
the
,
I
opened
the
door
,
I'd
let
my
husband
know
I
think
I
could
faint
your
son
and
he
keeps
saying
well
,
just
call
the
ambulance
,
go
The Importance of Diverse Perspectives
Speaker 2
17:00
to
the
E&E
.
And
I
refuse
to
go
because
they
wouldn't
give
me
medications
,
so
they
won't
give
me
the
proper
,
adequate
painkillers
.
And
I'd
always
say
but
I
noticed
that
every
time
I
went
with
him
,
you
know
,
they'd
say
,
oh
,
just
give
paracetamol
.
Paracetamol
,
you
know
,
injection
,
infusion
.
And
he'd
have
to
advocate
to
say
,
oh
no
,
you
can't
.
Speaker 2
17:20
My
husband
,
he
used
to
walk
in
the
accident
and
emergency
at
some
point
as
well
,
and
he'd
say
come
on
,
I'm
your
colleague
and
I'm
telling
you
she's
in
a
lot
of
pain
,
she's
in
unbearable
pain
,
she's
managed
all
week
and
she
can't
take
it
anymore
.
You
have
to
give
something
stronger
.
And
I
remember
he
used
to
say
he
was
very
frustrated
and
that
it
was
traumatizing
for
him
to
be
a
doctor
and
see
his
wife
in
so
much
pain
and
still
not
be
able
to
get
her
the
help
that
she
needs
.
So
he
said
your
journey
has
been
very
traumatizing
to
me
,
and
so
I
can
only
imagine
how
much
you
feel
that
you're
going
through
it
.
And
so
he
says
he
feels
very
frustrated
with
his
colleagues
,
especially
when
they
treat
black
people
.
So
he
said
you
need
to
look
beyond
the
skin
color
and
give
adequate
pain
medications
.
And
I
wouldn't
even
go
to
an
E&E
if
I
don't
go
with
my
husband
.
Speaker 2
18:10
And
if
I
say
I'm
in
a
lot
of
pain
,
they
say
,
oh
,
we'll
give
you
Panadol
or
Codine
,
but
my
husband
has
to
speak
up
,
and
that's
another
thing
.
You
know
the
sexism
too
is
there
.
You
know
women
are
not
believed
,
but
if
a
man
comes
with
you
,
they
believe
.
So
if
my
husband
goes
with
me
,
they
give
me
the
morphine
injection
,
but
if
I
go
in
alone
,
they
just
give
me
paracetamol
,
paracetamol
.
Sometimes
my
husband
will
have
to
leave
work
and
drive
down
to
the
e
and
e
to
tell
them
I'm
a
doctor
and
my
wife
is
in
a
lot
of
pain
.
You
have
to
give
her
something
better
.
She
needs
morphine
,
right
,
you
know
?
And
that's
just
crazy
.
And
yes
,
he
says
,
he
says
it
a
lot
.
He
says
sometimes
I
am
ashamed
to
be
a
doctor
when
I
see
the
way
my
colleagues
treat
women
,
you
know
,
women
with
endometriosis
,
women
in
pain
and
even
women
generally
that
need
medical
help
.
Speaker 1
18:59
He
feels
very
frustrated
about
it
or
he's
seeing
this
from
just
a
care
person's
perspective
.
And
I
mean
,
there
were
so
many
times
that
I
look
back
at
my
journey
and
think
,
wow
,
my
husband
was
the
backbone
to
my
journey
because
I
had
no
fight
,
I
was
in
pain
,
I
was
defeated
,
I
was
feeling
this
sense
of
desperation
that
I
was
like
I
just
wanna
be
done
with
it
.
I
just
I
can't
do
this
anymore
.
And
he
was
the
one
that
was
advocating
for
me
.
But
he
also
was
super
frustrated
sometimes
because
he
felt
like
he
was
hitting
that
wall
,
that
proverbial
wall
of
roadblocks
and
just
all
the
things
that
many
of
us
face
and
and
it
is
traumatizing
for
them
and
it's
so
hard
to
see
someone
you
love
so
much
go
through
something
so
horrible
and
not
be
able
to
do
anything
.
And
if
your
husband's
anything
like
mine
which
he
sounds
very
similar
is
that
he's
a
fixer
.
He
wants
to
help
people
,
he
wants
to
fix
,
he
wants
to
make
it
better
and
when
he
can't
,
it's
so
hard
for
them
and
it
takes
a
toll
on
them
.
Speaker 2
20:10
Yes
,
it
does
,
because
people
back
home
both
our
families
back
home
,
you
know
,
when
he
tells
them
about
the
struggles
we
go
through
,
they
say
,
oh
,
you
know
.
And
even
my
friends
.
They
say
,
oh
,
you're
lucky
,
your
husband
is
a
doctor
,
so
I'm
sure
you'll
fix
it
.
You
know
,
they
think
,
oh
,
your
husband
can
treat
you
.
And
I
said
,
no
,
he
can't
treat
me
,
he
can't
even
see
me
as
a
patient
.
Right
,
do
it
.
And
so
they
say
,
oh
,
you're
lucky
,
your
husband
is
a
doctor
.
Speaker 2
20:35
I
said
,
no
,
I
am
telling
you
,
he
has
nothing
to
with
him
being
a
doctor
.
And
he
expresses
his
frustration
.
He
said
I'm
.
I
mean
,
how
do
people
that
are
not
even
medical
manage
?
You
know
,
I'm
a
doctor
,
I
can't
help
her
.
He
says
,
no
,
I
can't
treat
her
,
I'm
a
family
doctor
,
I
can't
do
anything
,
I
can
just
follow
her
,
I
can
talk
,
I
can
,
you
know
,
I
can
express
it
,
and
I
see
he
says
that
.
He
can
see
that
they
believe
when
he
tells
them
more
than
when
I
tell
them
,
and
that's
frustrating
for
him
as
well
.
But
even
at
that
,
we
still
hit
brick
walls
.
They
still
say
,
oh
well
,
doctor
,
you
know
how
the
system
is
,
you
know
,
and
it's
like
,
okay
,
I
give
up
.
Speaker 1
21:14
Honestly
,
right
and
I
and
I
would
say
this
is
not
like
one
country
over
another
,
this
is
globally
an
issue
.
Speaker 2
21:23
Yes
,
and
very
global
,
yeah
,
very
global
.
I
think
some
places
are
worse
than
others
.
We're
in
a
first
world
country
and
when
we
tell
our
family
back
home
,
they
usually
say
,
oh
,
but
you
know
?
Oh
,
you're
in
a
first
world
country
,
you're
lucky
.
And
I
said
no
,
it's
global
,
it's
everywhere
.
The
struggles
are
everywhere
.
It's
not
based
on
the
country
you
live
in
.
To
be
honest
,
it
isn't
.
Speaker 1
21:44
Yeah
,
sometimes
the
first
world
countries
are
worse
than
some
of
the
others
,
depending
on
the
country
,
so
there's
other
barriers
in
place
.
Speaker 2
21:53
Oh
,
yeah
,
there
are
,
because
when
I
was
struggling
to
get
a
hysterectomy
,
it
was
so
bad
and
I
was
suicidal
before
that
hysterectomy
.
It
was
that
bad
and
it
was
afterwards
if
you've
seen
my
uterus
in
the
video
and
I
put
it
side
by
side
.
There
was
a
time
I
took
so
much
morphine
I
almost
lost
my
mind
.
I
think
I
have
an
idea
of
how
it
is
to
actually
go
bonkers
and
lose
your
mind
,
to
be
honest
,
and
I
said
I
was
going
to
do
.
There
was
that
particular
day
.
I
said
I
could
do
something
crazy
right
now
,
but
I
remember
I
have
kids
and
all
of
that
,
and
my
family
said
you
know
what
?
Why
not
just
come
back
to
Nigeria
?
You
live
in
the
first
world
country
.
You
can't
get
the
hysterectomy
.
You
could
get
a
hysterectomy
in
one
week
Back
home
here
.
Just
fly
back
.
You
know
,
if
you
have
your
money
,
you
get
quick
medical
care
.
That's
against
the
long
waiting
time
.
So
yeah
,
every
country
has
its
own
barriers
.
Absolutely
,
absolutely
.
Speaker 1
22:50
Absolutely
,
and
there's
a
lot
of
red
tape
.
The
more
established
in
the
first
world
the
country
is
.
I
think
there's
just
a
lot
,
a
lot
of
the
red
tape
,
a
lot
of
.
Speaker 2
23:01
Bureaucracy
.
Speaker 1
23:02
Yeah
,
and
you're
up
against
the
cost
.
Still
.
I
think
that's
something
that
people
feel
and
experience
on
multi-level
approaches
,
even
though
we
live
in
a
first
world
country
and
we
have
access
to
care
doesn't
mean
we
can
always
afford
it
and
that's
a
challenge
.
And
we're
paying
for
insurance
here
in
the
US
.
We
pay
for
insurance
to
help
cover
our
medical
expenses
and
then
it's
not
covered
through
our
medical
expenses
.
So
,
yes
,
there's
barriers
everywhere
that
you
turn
when
it
comes
to
this
disease
and
a
lot
of
that
is
because
of
the
standard
of
care
for
endometriosis
and
because
the
lack
of
knowledge
for
endometriosis
in
medical
school
and
in
the
workforce
,
even
in
when
you're
talking
to
a
provider
in
the
office
.
Speaker 1
23:48
I
think
a
lot
of
times
providers
stop
at
educating
themselves
when
they
leave
medical
school
.
It's
what
medical
school
taught
them
and
beyond
that
it
might
be
some
experiential
.
But
honestly
,
if
you're
not
exploring
past
what
is
the
norm
,
you're
missing
some
things
.
We
experienced
this
for
endometriosis
across
the
board
and
something
that
I
loved
that
you
talked
about
in
the
film
was
just
that
delay
in
progression
of
understanding
the
disease
for
providers
and
educators
and
that
you
know
,
like
what
you
said
with
your
husband
,
he
didn't
learn
this
but
maybe
a
day
in
medical
school
and
that
was
optional
,
and
you
broke
this
down
,
the
pharmaceutical
aspect
of
it
.
You
broke
down
the
educational
barriers
and
biases
,
and
I
appreciated
that
,
because
it
that
is
truly
the
crux
of
what
we're
dealing
with
with
endometriosis
is
are
those
barriers
.
What
was
that
like
to
kind
of
speak
about
that
and
to
face
that
head
on
for
this
film
?
Speaker 2
25:11
of
you
know
walking
through
,
you
know
what's
the
route
.
You
know
,
for
every
problem
I
I
see
I
face
,
I
always
go
to
the
roots
.
You
have
to
pull
it
out
at
the
roots
,
you
know
,
and
not
just
at
the
surface
level
,
because
I
see
a
lot
of
us
we're
doing
a
lot
of
advocacy
,
many
people
are
knowing
about
the
matrices
,
but
in
terms
of
actual
tangible
results
we're
in
so
much
you
know
.
And
so
I
said
,
okay
,
what's
the
problem
?
And
I
spoke
with
my
husband
,
I
spoke
a
couple
of
doctors
and
he
said
,
oh
,
they
have
guidelines
as
doctors
,
the
guidelines
they
have
to
follow
.
So
that's
why
I
said
,
okay
,
maybe
the
problem
is
the
guideline
.
So
let's
go
to
this
guideline
and
see
it
.
And
you
know
,
through
the
work
of
you
know
very
,
you
know
they're
very
passionate
warriors
,
like
ray
ray
the
warrior
.
You
know
quite
a
number
of
them
and
funny
diaries
as
well
.
Speaker 2
25:57
She
did
a
breakdown
of
that
,
you
know
.
I
also
looked
at
the
eshra
,
you
know
.
I
said
,
okay
,
eshra
is
the
guideline
.
Eshra
and
nice
they
set
the
guidelines
for
the
treatment
of
endometriosis
.
So
maybe
that's
where
the
problem
is
coming
from
.
So
I
looked
at
that
,
looked
at
the
work
of
other
people
that
we're
talking
about
this
and
I
realized
that
something's
wrong
here
.
This
is
where
the
problem
is
coming
from
.
You
can't
expect
doctors
are
bound
to
do
this
.
This
is
the
problem
,
this
is
the
solution
.
Right
,
and
they
,
they
,
I
think
they're
fearful
,
they
cannot
go
outside
of
that
.
So
I
decided
,
okay
,
let's
take
a
deep
,
deep
dive
into
this
.
So
I
want
to
acknowledge
Fanny
Diaries
in
reading
all
the
work
she
did
into
this
.
It
was
very
brilliant
.
And
I
said
you
know
what
?
All
the
things
reading
through
Eshra
and
seeing
so
much
you
know
pharma
,
pharma
,
pharma
medications
,
medications
,
very
,
you
know
,
not
much
discussion
,
in-depth
talk
and
guidelines
about
surgery
,
but
so
much
about
GnRH
and
hormonal
.
And
we
know
that
.
You
know
hormones
are
Welcoming Fasayo Thompson to the Discussion
Speaker 2
27:00
a
band-aid
,
they're
not
a
solution
.
But
I
felt
like
the
ESHRA
guidelines
went
into
much
details
about
that
and
so
I
said
,
ok
,
who
is
on
these
ESHRA
guidelines
?
Who
are
the
people
setting
up
these
guidelines
?
So
I
found
out
,
you
know
Professor
Becker
.
You
know
he's
the
head
of
the
guidelines
,
but
there
are
members
from
all
over
the
world
.
Speaker 2
27:17
And
then
I
began
to
see
,
okay
,
there's
some
people
representing
pharma
,
big
pharma
.
Why
are
they
in
here
?
That's
a
red
flag
.
You
know
big
pharma
generally
they're
a
for-profit
organization
.
They
want
to
make
profits
.
They
make
medications
for
profit
and
they
have
to
push
this
so
that
you
buy
it
and
they
make
bank
.
So
why
are
they
?
Their
focus
is
Doctors
are
for
us
,
patients
,
but
pharma
make
these
medications
to
make
profits
.
You
understand
,
doctors
are
not
for
profits
,
they're
for
patients
.
So
why
are
they
on
the
team
?
So
that's
why
,
you
know
,
I
spoke
with
them
,
professor
becker
,
to
say
someone's
wrong
here
,
let's
go
to
,
you
know
,
to
oxford
and
find
out
.
Speaker 2
28:00
But
I
spoke
with
a
couple
of
people
and
said
I
want
to
do
a
deep
dive
into
this
.
And
people
said
oh
no
,
you're
treading
on
very
slippery
slope
here
,
going
after
big
pharma
,
you
know
,
and
exposing
a
lot
of
this
.
And
I
said
yeah
,
I
know
,
but
we
need
to
say
the
truth
,
or
else
we're
just
running
around
in
circles
.
And
if
we
don't
say
that
,
we
need
to
say
the
truth
,
or
else
we're
just
running
around
in
circles
.
And
if
we
don't
say
that
,
you
know
,
they
say
the
truth
shall
set
you
free
.
You
know
,
if
you
don't
say
the
truth
,
you're
not
going
to
see
tangible
results
.
So
that's
why
I
had
that
conversation
with
Professor
Becker
.
It
should
have
been
a
whole
lot
more
than
that
actually
,
but
you
know
,
I
did
another
interview
with
him
not
too
long
ago
.
It's
on
my
youtube
page
.
That
just
had
to
be
said
.
Right
,
you
know
that
big
pharma
should
not
have
any
business
being
in
eshra
.
But
he
did
explain
to
say
they're
they're
sponsoring
,
and
I'd
say
,
why
is
government
not
sponsoring
?
The
government
should
take
the
financial
so
that
you
can
focus
on
the
patients
and
not
,
you
know
,
not
big
pharma
.
They
may
put
one
or
two
words
in
terms
of
how
their
hormones
help
and
all
of
that
.
Speaker 2
29:01
Or
,
you
know
,
I
just
saw
quite
a
number
of
,
you
know
,
yellow
and
red
flags
that
absolutely
needed
to
be
exposed
and
I
also
walked
.
I
walked
to
the
lawyer
to
say
,
okay
,
let's
be
safe
here
.
What's
happening
?
Let's
do
the
right
thing
here
.
Yeah
,
well
,
there
were
,
there
were
just
a
lot
of
.
Speaker 2
29:21
I'm
not
sure
you
should
go
down
that
path
,
but
I
didn't
care
.
If
you've
seen
me
in
pain
,
I
don't
care
whose
ox
is
good
,
and
it's
not
just
me
,
it's
millions
of
us
.
We
need
to
get
to
the
bottom
of
this
,
find
out
what's
wrong
,
who's
causing
it
,
who's
in
the
way
,
who
needs
to
get
out
of
the
way
,
right
so
that
we
can
get
the
the
changes
and
the
help
that
we
need
.
So
,
yeah
,
and
I
think
you
know
that
that
part
really
,
you
know
,
stands
out
for
people
.
You
know
people
are
really
scared
for
me
and
say
I'm
not
sure
if
you
do
this
.
Speaker 2
29:52
But
I
said
I
don't
care
,
because
at
that
point
,
when
I
was
making
the
film
,
I
was
coming
out
of
surgery
and
we're
going
back
into
editing
.
Come
on
,
go
for
surgery
back
into
edit
,
go
for
surgery
back
into
edit
.
And
I
remember
telling
my
editor
I
said
you
know
,
I
may
not
even
live
to
see
this
film
.
I
told
her
and
I
told
my
husband
.
I
said
if
anything
happens
to
me
,
surgery
or
for
any
reason
,
I
can't
make
it
because
people
have
actually
died
from
this
disease
,
because
people
have
actually
died
from
this
disease
you
know
,
and
I
was
in
a
very
bad
place
.
Speaker 2
30:18
I
said
if
I
don't
make
it
to
the
end
of
this
film
,
just
make
sure
you
release
it
and
police
put
that
in
the
investigation
part
of
it
.
You
know
I'm
a
journalist
it's
got
to
show
up
in
the
film
,
yeah
,
so
I'm
glad
I
put
that
in
there
for
people
to
dig
deep
into
the
roots
,
you
know
,
and
I
hope
people
go
deeper
,
because
I
think
what
I
did
was
shine
a
spotlight
on
it
so
that
people
can
dig
deeper
,
you
know
,
and
continue
the
work
from
there
.
Speaker 1
30:47
Yeah
,
absolutely
.
I
think
that
made
a
big
impact
for
me
,
just
having
it
in
a
visual
appearing
piece
where
you
can
take
it
in
If
you're
a
visual
learner
,
that
was
impactful
.
And
I
think
gosh
ma'am
,
we
talk
about
this
all
the
time
and
truly
these
are
things
that
are
life
and
death
for
some
people
,
and
that's
why
I
think
that
it
was
so
impactful
,
because
you
have
lived
that
life
and
death
and
it's
not
just
hearsay
,
it's
not
just
you
know
.
Well
,
this
is
what
I
think
it
is
.
Speaker 1
31:20
This
is
I
went
back
and
I
really
looked
at
this
because
my
life
depended
on
this
and
to
understand
this
,
and
so
that's
why
the
impact
of
that
was
so
profound
is
because
you've
lived
it
and
,
anne
,
not
only
have
you
lived
it
,
your
family
has
lived
this
,
and
they've
seen
you
walk
through
this
.
Not
only
have
you
lived
it
,
your
family
has
lived
this
and
they've
seen
you
walk
through
this
.
And
if
anyone
has
children
,
you
know
that
when
Mama
Bear
comes
out
,
she
does
not
back
down
.
Exactly
,
I've
got
three
girls
.
Speaker 2
31:49
Yes
,
I've
got
three
girls
,
two
of
them
teenagers
.
So
it
isn't
just
about
me
and
us
,
it's
about
our
daughters
too
.
And
I'm
really
scared
.
I
said
is
this
what
our
kids
are
gonna
are
going
to
come
into
?
I'm
a
.
Speaker 2
32:02
I
just
found
out
that
I
think
I'm
a
third
generation
endo
warrior
.
My
uncle
told
me
that
their
aunt
most
likely
had
endometriosis
because
when
he
explained
her
symptoms
they
mirrored
mine
and
she
died
at
a
young
age
.
I
have
it
.
I
suspect
that
my
mom
had
endometriosis
,
possibly
the
silent
type
,
but
I
see
a
lot
of
similarities
in
my
health
and
hers
.
So
their
aunt
,
first
generation
and
,
who
knows
,
earlier
on
,
my
mom's
generation
,
my
,
my
generation
,
and
now
I
have
three
daughters
,
you
understand
,
and
I
just
shudder
to
think
.
And
we
know
that
endometriosis
there's
a
high
genetic
component
on
this
.
You
know
there's
a
chance
it
will
be
passed
down
.
So
I
wonder
I'm
not
going
to
let
my
kids
walk
into
this
.
Speaker 2
32:53
There's
that
prayer
,
but
aside
from
the
prayer
,
we
need
to
do
something
and
call
out
people
.
Nobody
should
be
profiting
off
of
other
people's
illness
.
Yeah
,
you
know
we
.
Everybody
keeps
talking
about
hormones
.
Can
we
get
diagnosis
?
Can
we
get
treatment
?
Can
people
talk
about
the
cure
?
Why
do
we
keep
hearing
about
hormones
.
It's
very
frustrating
.
So
,
yeah
,
I
think
that's
why
I
did
that
,
and
I
didn't
care
whose
ox
was
God
,
because
I
didn't
even
know
if
I
was
going
to
survive
.
So
I
don't
care
.
Speaker 1
33:25
It
needed
to
be
said
.
It
needed
to
be
said
,
and
if
someone
was
going
to
say
it
,
fisayo
was
going
to
say
it
.
We
know
.
Speaker 2
33:31
I
have
the
reputation
of
being
a
rebel
leader
Right
from
my
uni
days
.
People
say
,
oh
,
F're
such
a
rebel
leader
.
I
say
,
yeah
,
if
you
need
to
be
saved
,
we're
going
to
save
you
.
People
are
dying
from
this
thing
,
Yep
.
Speaker 1
33:43
You
know
,
the
thing
that
I've
realized
is
that
those
of
us
with
endometriosis
have
zero
filter
when
it
comes
to
this
stuff
,
and
it's
because
we
fight
so
hard
for
day-to-day
care
not
even
day-to-day
care
,
but
we
fight
for
better
quality
of
life
minute
by
minute
and
so
I
think
we
just
lose
our
filters
,
we
just
stop
caring
,
because
we've
repeated
ourselves
so
many
times
to
try
to
be
seen
,
to
be
heard
,
to
be
validated
that
no
longer
do
we
care
if
we
offend
people
.
Sometimes
,
you
know
,
and
it's
not
even
just
about
offending
,
it's
about
getting
them
to
understand
what
we're
up
against
.
It's
like
,
yeah
,
I'm
walking
through
that
wall
.
Wow
,
you
,
I
mean
,
you
hit
the
nail
on
the
head
with
that
one
.
Thank
you
,
faisal
.
Speaker 1
34:32
You
have
done
so
much
already
and
you've
done
it
in
the
face
of
adversity
,
and
it's
just
.
I
am
in
awe
of
you
all
the
time
and
thinking
back
to
your
story
and
talking
to
you
every
single
time
,
which
I
love
doing
,
by
the
way
.
But
you're
not
stopping
at
just
doing
one
film
.
You
are
doing
other
projects
in
conjunction
to
the
work
that
you've
done
on
the
film
.
What
are
some
of
the
projects
that
we
can
follow
you
on
?
I
realized
from
on
the
film
.
Speaker 2
35:00
What
are
some
of
the
projects
that
we
can
follow
you
on
?
I
realized
,
you
know
from
making
the
film
that
I
still
have
there's
so
many
things
,
you
know
,
so
many
information
,
so
many
very
important
information
that
still
need
to
be
out
there
.
You
know
because
of
making
the
film
.
So
I
have
a
YouTube
page
.
It's
called
Endo
and
All
on
YouTube
where
you
know
,
I
put
,
know
all
that
,
you
know
,
good
,
very
helpful
information
there
.
And
I
also
,
I
remember
you
know
,
from
the
extra
part
of
the
film
,
people
,
you
know
a
lot
of
people
are
in
my
dms
asking
you
know
how
did
that
go
?
They're
asking
more
questions
,
asking
why
is
pharma
sponsoring
what's
happening
there
?
You
know
so
many
questions
about
that
.
So
I
went
back
to
interview
and
professor
christ
Christian
Becker
to
say
many
people
have
questions
,
can
you
please
come
on
,
you
know
,
and
answer
and
answer
this
.
And
he
was
very
gracious
,
you
know
,
granted
to
us
,
granted
me
an
interview
,
and
so
that
will
be
coming
out
and
very
soon
on
my
YouTube
page
,
endo
and
all
.
So
,
aside
that
as
well
,
you
know
,
my
husband
and
I
we
co-authored
an
endometriosis
adenomyosis
kit
,
so
it's
on
my
website
.
I
run
a
film
production
company
,
so
it's
Fit
Film
Production
and
on
there
we
have
the
free
information
.
Oftentimes
you
meet
people
or
even
your
family
,
your
friends
.
You
can't
start
explaining
endometriosis
from
the
very
beginning
.
So
we
have
this
kit
where
anybody
can
just
go
on
the
site
fitfilmproductionproductioncom
,
download
it
and
you
get
.
You
know
the
a
to
z
of
endometriosis
and
adenomyosis
.
Speaker 2
36:24
And
he
also
talks
about
endometriosis
for
teens
.
You
know
how
to
support
themselves
.
I'm
very
passionate
about
about
teenagers
,
you
know
,
because
that's
they're
at
the
point
where
they
are
not
believed
.
You
know
they're
at
the
point
where
they're
also
trying
to
figure
out
what's
happening
with
them
,
you
know
.
So
we
put
that
there
.
And
also
,
um
,
women
working
and
having
a
new
matriarchs
.
You
know
,
at
this
point
I
cannot
do
a
nine
to
five
because
of
,
I
think
,
but
for
women
that
have
nine
to
fives
and
are
constantly
losing
their
jobs
because
they
cannot
keep
up
,
like
their
,
you
know
,
other
colleagues
,
how
can
they
get
help
and
how
can
their
,
their
organizations
help
them
?
So
all
of
that
is
in
that
kit
.
Speaker 2
36:59
And
then
when
I
Fasayo's Story: Challenges of Diagnosis and Treatment
Speaker 2
37:00
go
to
I
do
,
I
go
to
companies
,
organizations
.
I
also
write
to
schools
to
say
you
know
,
I'd
like
to
come
in
and
talk
about
,
you
know
,
endometriosis
,
sexual
health
,
menstrual
health
,
that
sort
of
thing
,
and
I'd
also
like
the
parents
to
actually
come
in
too
.
You
know
,
it's
not
just
the
students
.
So
I'm
writing
,
you
know
,
I'm
hoping
I
get
the
opportunity
to
do
that
.
Speaker 2
37:19
And
I
approached
,
you
know
,
the
parliament
,
you
know
,
in
in
uk
,
to
say
you
know
,
we'd
like
to
screen
our
film
,
we'd
like
to
talk
to
you
because
there's
actually
an
appg
.
So
that's
all
,
parliamentary
group
on
endometriosis
,
you
know
,
in
parliament
,
but
that's
a
long
that's
a
story
for
another
day
.
Well
,
things
just
,
you
know
,
didn't
work
out
some
charity
ish
and
all
of
that
,
but
I
really
still
wanted
to
make
tangible
results
.
So
I've
gone
back
to
my
home
country
and
we
have
a
project
,
a
week-long
project
,
where
we
want
to
do
advocacy
for
the
public
,
teaching
the
doctors
as
well
,
teach
the
,
the
medical
community
,
and
it's
not
just
family
doctors
or
surgeons
,
you
know
.
So
what
I'm
doing
is
,
you
know
,
getting
specialists
from
different
country
go
back
to
my
home
country
,
teach
doctors
,
surgeons
from
,
from
all
the
specialties
,
because
we
know
endometriosis
is
an
all
the
whole
body
disease
you
know
,
and
then
do
marathon
surgeries
,
you
know
.
Speaker 2
38:16
So
that
way
,
you
know
,
endo
warriors
get
surgery
.
They
need
right
doctors
,
you
know
surgeons
and
residents
.
They
get
the
skills
you
know
surgical
risk
skills
that
they
need
.
And
then
even
people
can
look
back
on
those
videos
.
They
watch
it
as
well
,
you
know
,
and
they
get
a
theoretical
learning
as
well
.
Speaker 2
38:32
So
,
you
know
like
it's
a
week-long
campaign
,
but
you
know
we're
speaking
with
the
legal
state
government
on
this
and
you
know
they're
very
open
to
it
.
So
I'm
really
praying
,
you
know
,
coming
this
coming
year
we
can
see
that
inflation
at
least
.
You
know
,
if
,
if
we're
able
to
impact
,
you
know
,
people
,
I
think
it's
,
it's
it's
legacy
,
you
know
,
because
whatever
you
teach
them
,
world
class
the
top
one
percent
of
the
endometriosis
specialists
and
surgeons
they're
coming
to
nigeria
to
teach
the
people
in
Nigeria
,
you
know
,
bring
them
up
to
standard
,
you
know
.
So
that's
just
a
plan
.
I'm
working
on
that
on
a
daily
basis
because
you
know
it's
a
multi-country
thing
,
getting
everybody
from
different
countries
into
one
place
for
a
week-long
event
.
So
yeah
,
that's
it
.
Speaker 2
39:12
And
also
,
you
know
writing
to
organizations
to
say
we
want
to
come
in
,
talk
to
you
,
talk
to
your
staff
,
and
how
to
have
these
conversations
.
I've
done
a
couple
and
it
was
really
great
.
It
was
really
great
because
then
,
you
know
,
people
began
to
speak
up
about
their
struggles
too
,
and
then
they
had
that
.
You
know
they
had
that
conversation
,
so
it
was
great
.
So
,
yeah
,
that's
just
some
of
the
things
I'm
doing
right
now
.
Speaker 1
39:33
So
nothing
,
I
mean
really
.
You're
just
not
.
You
know
,
you're
just
sitting
around
twiddling
your
thumbs
Because
raising
kids
wasn't
enough
,
we've
got
to
overachieve
and
everything
.
Speaker 2
39:46
Yeah
,
and
hopefully
make
a
film
?
Yeah
,
I
have
that
in
sight
sometime
in
the
future
.
Yeah
,
I
said
no
,
this
is
not
the
end
of
it
.
Walking
through
us
is
not
the
end
of
it
.
Speaker 1
39:56
No
,
it
can't
be
.
It
can't
be
.
I
see
another
film
in
your
future
for
sure
.
Oh
yes
,
Definitely
,
definitely
.
If
you
need
ideas
,
let
me
know
.
Oh
yeah
,
absolutely
,
I'm
open
to
those
.
Speaker 1
40:07
Thank
you
oh
yeah
,
oh
,
my
goodness
,
fasayo
,
I
just
enjoy
spending
time
with
you
.
Speaker 1
40:15
I
love
our
conversations
,
I
love
sitting
down
with
you
.
I
love
that
this
disease
did
not
steal
your
joy
,
the
challenges
didn't
steal
your
joy
,
and
that
permeates
the
wavelengths
between
us
,
it
permeates
the
discussion
and
I
just
I'm
so
appreciative
of
that
because
it
is
so
easy
to
lose
sight
of
what
joy
can
look
like
,
even
in
the
face
of
adversity
.
And
I
think
that
you
have
faced
that
beautifully
,
but
not
without
its
challenges
and
not
without
its
moments
of
defeat
.
And
I
think
,
more
than
just
what
you've
experienced
from
the
disease
,
I
think
that
people
can
take
away
that
you
don't
have
to
let
it
dictate
your
entire
life
and
how
your
outlook
is
in
life
,
and
I
need
that
reminder
sometimes
.
Even
though
it's
hard
,
we
can
do
this
and
I
think
a
big
part
of
that
is
community
and
reaching
out
to
people
who
have
been
there
and
can
build
you
up
in
moments
that
you
cannot
build
yourself
up
.
So
I
just
appreciate
everything
that
you're
doing
and
the
joy
that
you
permeate
and
who
you
are
in
your
advocacy
.
Speaker 2
41:21
So
thank
you
so
much
.
Thank
you
,
too
,
you're
doing
amazing
Well
.
Honestly
,
you
are
,
especially
from
one
mom
to
the
other
.
Sometimes
we
can
barely
take
care
of
ourselves
.
We
have
to
go
and
take
care
of
the
family
and
,
you
know
,
still
have
time
for
this
,
because
I
understand
,
you
know
,
we
know
the
bone
grinding
fatigue
and
you
know
for
you
to
still
keep
on
.
You
know
do
this
.
You
know
run
an
NGO
,
a
podcast
.
That's
a
lot
you're
doing
right
there
,
honestly
.
So
,
yeah
,
I
am
in
awe
.
Well
done
,
I
am
so
happy
,
you
know
,
to
know
you
.
You
know
to
have
this
conversation
is
beautiful
,
it's
uplifting
and
you
know
,
thank
you
for
what
you're
doing
for
the
community
.
It
is
great
.
Honestly
,
it
is
Thank
you
.
Speaker 1
42:04
You're
beautiful
,
thank
you
.
You
know
I
have
deep
passion
and
compassion
for
this
community
and
I
have
made
some
of
the
most
profound
friendships
because
of
my
angry
uterus
and
pelvis
,
so
I'll
take
it
.
Speaker 2
42:26
I
don't
know
I've
made
the
deepest
friendships
,
even
people
you
know
I've
never
met
,
you
know
.
Hope
to
meet
,
you
know
,
but
we
have
this
deep
.
Nothing
is
TMI
.
You
know
,
conversations
,
yeah
,
it's
great
.
Community
is
really
great
and
it
is
what
we
need
.
I
don't
know
where
I'd
be
or
what
I'd
do
,
you
know
,
without
the
community
,
because
sometimes
you
explain
things
,
you
say
this
is
it
,
this
is
it
,
this
is
it
.
But
it
takes
another
person
that
feels
it
to
understand
that
no
,
I'm
not
nagging
,
I
really
am
Right
.
Yeah
,
so
I'm
just
grateful
.
I
really
am
Right
.
Yeah
,
so
I'm
just
grateful
.
Yeah
,
I
am
grateful
for
this
community
and
the
fact
that
nothing
is
TMI
.
We
can
talk
about
hoops
and
talk
about
feelings
and
sex
and
all
of
that
.
Speaker 1
43:12
I
know
Because
it
impacts
everything
in
our
lives
,
you
know
.
And
so
I
think
,
like
if
you
haven't
lived
that
experience
,
it's
really
hard
to
relate
to
it
on
a
deeper
level
.
And
so
when
you
have
that
community
who
gets
it
,
it
changes
your
outlook
on
the
disease
.
It
changes
your
outlook
on
relationships
.
It
forms
a
different
kind
of
relationship
.
You
know
,
it's
not
like
your
typical
relationship
,
it's
a
different
.
It's
a
whole
nother
ballgame
with
people
who
get
it
.
Speaker 2
43:42
Yes
,
the
sisterhood
you
know
in
the
community
.
You
know
people
in
the
community
.
To
me
they
don't
feel
like
friends
,
they
feel
like
sisters
.
It's
like
you
know
where
we
have
arms
intertwined
in
a
war
and
you're
facing
this
,
you
know
,
and
the
fact
that
you
know
we
all
got
each
other
.
There's
no
keeping
things
.
You
know
,
everyone
is
free
and
say
,
oh
,
this
is
,
this
is
what
I
deal
with
.
You
know
,
and
people
are
just
there
for
you
because
they
understand
as
well
,
they're
going
through
it
as
well
and
nobody
sees
you
as
a
burden
.
You
know
,
that
sort
of
thing
is
really
really
great
to
to
to
have
this
community
.
Speaker 1
44:19
Yeah
,
I
agree
,
and
I
look
forward
to
building
more
community
and
hopefully
one
day
we
can
meet
face-to-face
and
not
just
online
.
But
we
will
get
there
one
day
.
Speaker 2
44:26
I
look
forward
to
that
.
Yes
,
we
will
.
Yes
,
we
will
.
Thank
you
.
Yes
,
I
know
a
lot
of
people
have
been
asking
how
to
watch
the
film
,
where
we're
working
really
hard
,
you
know
,
behind
the
scenes
,
I
keep
saying
that
I
want
the
film
to
be
out
in
such
a
way
that
everyone
can
see
it
,
irrespective
of
where
they
are
,
their
financial
status
and
stuff
like
that
,
and
I
think
that's
one
of
the
reasons
why
I
set
up
the
YouTube
page
,
endo
and
All
.
So
I'm
looking
at
even
having
the
film
on
there
.
So
getting
people
to
subscribe
and
down
the
road
is
a
big
possibility
that
we
will
potentially
.
Potentially
and
we're
looking
at
different
options
but
,
yeah
,
that's
an
option
as
well
.
Potentially
,
because
I
don't
want
any
barrier
to
people
,
you
know
,
being
able
to
access
the
film
.
I
just
want
that
global
access
,
whether
you're
in
the
desert
or
in
the
snow
,
wherever
you
are
,
I
just
want
people
to
just
,
you
know
,
watch
the
film
and
learn
and
advocate
for
themselves
.
So
,
yeah
,
we'll
get
to
that
.
We'll
definitely
get
to
it
because
we're
working
on
it
.
Speaker 1
45:29
Yeah
,
thank
you
.
No
,
we
needed
to
highlight
that
because
I
want
everyone
to
see
this
film
.
It
was
very
enlightening
,
impactful
,
and
you
know
,
I
watched
it
with
the
board
that
I
sit
on
with
Indo
Village
and
we
all
of
us
collectively
were
like
,
wow
,
this
was
so
meaningful
to
us
because
we
saw
so
much
of
ourselves
in
your
story
and
and
not
the
whole
story
.
Everyone's
story
is
different
,
it's
unique
to
the
individual
,
but
I
think
just
seeing
pieces
of
it
and
walking
through
our
own
journeys
and
recognizing
areas
that
we
needed
to
readdress
was
important
too
,
and
we
felt
compassion
and
empathy
for
what
you've
been
through
and
I
think
you
know
that
really
propelled
us
to
continue
doing
what
we
do
with
our
nonprofit
.
So
kudos
to
you
.
Speaker 1
46:18
And
I
really
want
everyone
to
watch
this
film
because
it's
so
good
.
But
,
flosayo
,
thank
you
so
much
again
for
sitting
down
with
me
at
the
table
and
being
vulnerable
and
just
sharing
your
story
and
all
the
things
that
you're
doing
.
It's
making
a
massive
impact
for
this
community
and
for
that
drive
to
push
forward
.
So
thank
you
so
much
for
taking
the
time
.
Thank
you
.
Speaker 1
46:40
I
am
thrilled
with
our
friendship
and
we're
going
to
do
another
episode
,
I'm
sure
at
some
point
,
because
this
has
been
so
fun
.
Thank
you
,
Until
next
time
,
everyone
continue
advocating
for
you
and
for
those
that
you
love
.